"I forgot what I was talking about" gave me chills because thats me everyday and I can't help it but I joke about it too because I don't want to cry in front of people. They say Its just anxiety, but symptoms seem to get worse including my memory loss.
Hi there. I understand what you’re saying. I have idiopathic intracranial hypertension (pseudotumor celibri) which is a rare brain disease that acts just like a brain tumor. I had brain surgery to put two stents in my brain due to stenosis. I feel like my memories are slowly getting worse and worse. The issue is that my disease is rare and has very little information available about it which makes so little knowledge of not only patients but their doctors.
Oh gosh! That sounds awful I'm so sorry. Isn't it so difficult having such rare conditions, not many people understand - even most Doctors don't get it - and you feel like you have to explain allllll the time. Hopefully you can find a specialist who can help you! Until then, sending lots of love and healing ♡
Bethany has some of these same issues. Surgery date 7/15. She can't remember words for things ( like what an egg is called when she sees it) or finish sentences. Her sister finishes them for her or tells her the word she can't remember. She zones out during conversations as well. Bethany is 20. It is very frustrating for her as well. I think you are just lovely and a very strong person. What you have both( and so many others) gone through is no easy feat! Never give up and I just hope you both can get better from this!
Thank you so much Tracey! So sorry that she is suffering :( totally understand her frustration, it's not easy! Wishing her all the healing, happiness and good health in the world ♡
Hi iBeth, I can only say try an add a picture to the the word helps me with names, don't normally appreciate swearing but in your case with all you have dealt with so gracefully on the outside it's legit, and yes having a great partner gets you through the day. Take care 👍
Sorry I didn't realise how many times I bloody swore in this haha, sorry!! Thanks so much for your comment and for everything you have done for myself and the fund in the past few years - eternally grateful ♡
I just found out I have a cyst on my pineal gland too and I suffer from the the same shit and it's rough I think it has alot to do with food and fluoride and a blocked crown chakra
@@BethFrazerx I'm great still just going strong. I'm willing and able and it doesn't affect me too much im a bit concerned about my crown chakra though but I have faith and hope in myself and the universe and I believe it's trying to tell me something that theres an unresolved internal emotional conflict within causing my seizures after thinking long and hard it's a trigger
"I forgot what I was talking about" gave me chills because thats me everyday and I can't help it but I joke about it too because I don't want to cry in front of people. They say Its just anxiety, but symptoms seem to get worse including my memory loss.
Oh gosh I'm so sorry. It's difficult isn't it :( hope you're ok. Always here if you need to talk!
You are too strong! 💪🏻! Trust me, things will get better day by day! Never give up!
Aww thank you!! Never ♡
Hi there. I understand what you’re saying. I have idiopathic intracranial hypertension (pseudotumor celibri) which is a rare brain disease that acts just like a brain tumor. I had brain surgery to put two stents in my brain due to stenosis. I feel like my memories are slowly getting worse and worse. The issue is that my disease is rare and has very little information available about it which makes so little knowledge of not only patients but their doctors.
Oh gosh! That sounds awful I'm so sorry. Isn't it so difficult having such rare conditions, not many people understand - even most Doctors don't get it - and you feel like you have to explain allllll the time. Hopefully you can find a specialist who can help you! Until then, sending lots of love and healing ♡
Bethany has some of these same issues. Surgery date 7/15. She can't remember words for things ( like what an egg is called when she sees it) or finish sentences. Her sister finishes them for her or tells her the word she can't remember. She zones out during conversations as well. Bethany is 20. It is very frustrating for her as well. I think you are just lovely and a very strong person. What you have both( and so many others) gone through is no easy feat! Never give up and I just hope you both can get better from this!
Thank you so much Tracey! So sorry that she is suffering :( totally understand her frustration, it's not easy! Wishing her all the healing, happiness and good health in the world ♡
what zodiac sign are you?
leo!
Thank you so much for sharing, I hope you are doing well.
I am doing well thank you Joshua - hope you are too! - and thank you so much for watching! 😅♡
Hi iBeth, I can only say try an add a picture to the the word helps me with names, don't normally appreciate swearing but in your case with all you have dealt with so gracefully on the outside it's legit, and yes having a great partner gets you through the day. Take care 👍
Sorry I didn't realise how many times I bloody swore in this haha, sorry!! Thanks so much for your comment and for everything you have done for myself and the fund in the past few years - eternally grateful ♡
where in the u.k. are you from originally? where were you born and raised?
north wales always! never moved away and still live a couple miles from where i was born 🥰
I just found out I have a cyst on my pineal gland too and I suffer from the the same shit and it's rough I think it has alot to do with food and fluoride and a blocked crown chakra
Ah I'm so sorry to hear that :( how are you doing now? ♡
@@BethFrazerx I'm great still just going strong. I'm willing and able and it doesn't affect me too much im a bit concerned about my crown chakra though but I have faith and hope in myself and the universe and I believe it's trying to tell me something that theres an unresolved internal emotional conflict within causing my seizures after thinking long and hard it's a trigger