when you're a mummy, your children are your world!! so yes this is the biggest thing in your world, don't ever feel guilty or apologize for how you feel anyone in your position would feel the same. my friends son has had a cleff palette repair and I didn't know until she had told me. my son had a tendon transfer last year on his right foot to correct his talipies (aged 3), so I completely sympathise with you, and watching your video brings back so many emotions from such a difficult time. I hope everything goes well for daisy, I will have her in my thoughts on the big day. big hugs to you xx
Oh Charlotte, I'm watching this in tears. I'm a parent of two and pregnant with another and can't imagine how you are feeling. I just think you're amazing. Simple as that, you and your family are amazing and you are doing the very best for Daisy. I will most definitely spare a thought for Daisy on the 14th. X
Ms Charlotte..you are brave you are strong you can do this!!!! Use this as your mantra when u have those tough moments. In a year from now you can look back & see how strong you are & daisy can look back later & know your love & strength as her mum! Come on sister power thru!!! I believe in u!!!!! Mama power!!!!
We will be thinking and praying for your little precious Daisy ... huge hugs charlotte to you and your family .. you will be glad to put it all behind you xxx 😘😘😘
I tweeted the other day and said I'm more of a silent viewer but i just wanted to wish Daisy and all of you all the luck in the world. I'm sure loads of people will have you all in their thoughts, including myself. Thanks for sharing this, love how real and honest you are, never apologise for getting upset. It's a natural emotion. Take care xxx
Aww Charlotte, I'm sending you lots of love and hugs xxxx I have a 14 week old little girl and can't imagine how difficult this must be for you. You're such a kind and loving mother & we will be thinking of you all on the day. Much love xxx
I don't usually comment on videos but seeing you so emotional really got to me and as a mother to a 5 month old I can only imagine how you must be feeling. I wish you and your little Daisy all the best for her operation xxx
Charlotte, we are all here for you, Mark & your precious babies. Praying for all of you, and a special prayer for Daisy flower. Love & Blessings💕💕💕,...xx
Oh Charlotte, firstly I'm sending you a huge hug, mumma. You are so so brave for making this video, I am certain that there's parents out there who are facing the same journey and will find comfort from you. On a day that is known for love, hearts and flowers. I for one, will be sending you, Daisy, Mark and Bill lots of love, keep you all in my heart and be thinking of your precious little flower. Don't apologise for getting upset, sweetheart, you're human, that's what we do. You are braver than you believe, stronger than you seem, smarter than you think and loved more than you know 💛 xxxx
Oh Charlotte I just wanted to give you a hug. Can't imagine what you're going through but know I will be thinking of little daisy and all your family on the day xxx
Awww Charlotte, you are an amazing mother to your gorgeous children....look how far you have come with all the issue's you were faced with Daisy she is such a happy and beautiful girl. I think your 100% right in doing what your doing to help Daisy in her future. I haven't got much knowledge on cleft plates but I'm sending all my love and wishing it's a speedy recovery for your Daisy. love watching your videos and how honest and just lovely you are. will be thinking of you all. xxxx
Charlotte, you have every right to feel the way you do. It must be so daunting as it's been building up for so long. It is the biggest thing in the world for you and your family. However, it is all for the best as you well know from your own experience. Thank you for the informative video, I will be thinking of you all and sending you lots of luck on the day and for the future hurdles. She is such a doll and has come so far! Chin up! Xx
You are so incredibly strong! My little girl is 5mo and she was in neonatal for the first week of her life where we didn't have the best experience. It has left me incredibly scared of ever having to go back to hospital and trusting strangers to take care of her. We came very close to having to go in last night and I was terrified! I can't imagine what it must be like for you, but I will definitely be thinking of you and little Daisy. Sending you all my love ❤️
Aww Charlotte, this was such a moving video! You are a wonderful Mummy to William and little Daisy and such an inspiration and brave young woman! We will all be with you every step of the way, no need to apologise for 'rambling'' it's a human emotion when you are worried about your precious baby. Sending you loads of hugs lovely xx
Im so glad i found your channel. I know these vids are 3 years old but its interesting to watch your daughters journey as i was 11 months old when my cleft pallete was repaired (i have marshal/stickler syndrome like you and your daughter :) ) i like this perspective of what it must have been like for my mom and i have so much respect for how strong mamas are who have to endure this ❤️ i subscribed
You are so brave to share your journey, I'm sure it's going to help so many other parents out there. Will be thinking of you all, especially beautiful Daisy xxx
I found your channel about a month or two after my Daisy was born. She was also born with an isolated cleft in the soft palate. Your video today hit me square in the gut. I've been having similar feelings lately as my Daisy is 5 months old, we've been through such a wide range of appointments and there have been talks of her having Stickler since my oldest daughter was born with a submucous cleft. I know what to expect to some degree, but I also don't know how the surgery will affect an infant since my oldest daughter was 4 when she had her first surgery and then a fistula repair 6 months later. Thank you for sharing your journey. It really has let me know that I'm not alone. :)
Wish I could give you a hug , it must be so horrible going back to hospital and doing all that again - bless you. I hope she has a quick a recovery as possible and you are ok too lovely xx
Ow my love ❤️We had a rough ride with hospitals and I can relate to the dread of going back there. You shouldn't feel guilty one bit!! Your doing all you can and she will be fine but it's hard. Sending you our thoughts and a little prayer 🙏🏻 She'll still be your Daisy and she'll make new noises and it won't be any different.
I am a fairly new subscriber. I am shocked to see the title of this video. Of the few videos I watched of yours with Daisy featured I haven't even noticed she has a cleft. I'm always so mesmerized by her beautiful eyes and that sweet button nose. She's beautiful, Stay strong mama! ❤
You are so brave to share this, I cried along with you. Daisy is so strong but I can understand why you are worried but she will be fine. Big hugs sent your way xxxx
i know it isnt the same thing but my little boy Oskar needs to have an op this year, he has a small hypospadia ( no idea if i have spelt that right lol) which is a birth defect to his ... boy bits.. which needs correcting. i am TERRIFIED , i know this op happens 10 times a day.. surgeons can do it with thier eyes closed , but that makes no differance to me. he is my baby. my small bloke who be operated on. and thats huge to me. your an amazing mommy. Daisy is adorable. and you have almost 9000 people who are here for you. stay strong sweetheart xx
Will be thinking of all your family! You've put a video in to how I'm feeling about my sons operation in March. He's a month or two older than Daisy and it's really hard. My partner's taking paternal leave which any parent can take for I think up to 18 weeks a year. I'm not sure if Mark would be able to do that and help you or if you knew about the leave as you mentioned school runs etc. I just thought I would let you know as it was a great comfort knowing my partner could use that as he had no holiday entitlement left and be there. You're amazing and always remember you're doing your best :) xxxx
You are a brilliant mummy! It's so difficult to come to terms with the fact things are being taken out of your control, but just keep reminding yourself that this is a step forward. I kind of understanding how your feeling with the whole blaming yourself thing, my son has a rare genetic syndrome, and I carry the DNA mutations that carry it. So I went into a dark place for a long time, thinking it's my fault that he'll never walk, and I'll never hear him say 'I love you mummy' but as he's grown, he's found different ways to communicate which brightens my heart. We've also been there in terms of the surgery side of things, although very different to what you guys are experiencing. It is so scary to have that control taken away, but just remember you'll be there when she's goes to sleep, and you and her daddy are the first people she'll see when she wakes up. She'll be so looked after! This is a massive step into the unknown for you all, but please know, it will definitely get easier. After everything you've been through already, you'll rock this out! I find strength in our 'Positives' and brushing the negatives to the side, you can't change anything, so you should definitely appreciate the positive things you have! I hope this helps you, I'm not great at getting my point across clearly when writing 🙊 x
Hope it goes well. I'm sure she will be fine. Millions of children have surgery everyday ..Just think of the end result and the fact that she is a healthy and a happy child all in all. Good luck xxxxx
Very brave to share, can't even imagine what's your go by through. My little dude was in scbu for 16 days which in comparison is nothing but to us that was hell on earth so I'm sending lots of love to you all. As for the school run and keep daisy well I would pop the rain cover on while your out no matter the weather. I did that on the school run when Esme my youngest had chicken pox. She had only just turned 1 last march and caught it off her brother who had it 2 week before hand. I still needed to get him to school and also keep esme protected. I have the wayfarers in raspberry so the rain cover is like a huge bubble and it did the trick. (. Please understand I'm not comparing chicken pox to Daisy's recovery) just a little suggestion Hun to try and help manage life. I know how hard it is to juggle life with 2 little ones. I'm on my own so throwIng a poorly baba in the mix your one amazing lady. Chin up sweet. Lots of love xxxx ❤️
My baby is going to be 6months and I feed her orally but also she has NG tube not sure when they will remove coz she can’t drink from a bottle or a cup, I feel you so much so many nights I cried to sleep and now what scares me is after the repair. FYI her PRS is 2 and it’s only the soft palate. Can you please tell me when did you start your speech and language therapy? What was your age? And was it private or was referred by a doc? You’re amazing and I love you.
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when you're a mummy, your children are your world!! so yes this is the biggest thing in your world, don't ever feel guilty or apologize for how you feel anyone in your position would feel the same. my friends son has had a cleff palette repair and I didn't know until she had told me. my son had a tendon transfer last year on his right foot to correct his talipies (aged 3), so I completely sympathise with you, and watching your video brings back so many emotions from such a difficult time. I hope everything goes well for daisy, I will have her in my thoughts on the big day. big hugs to you xx
Oh Charlotte, I'm watching this in tears. I'm a parent of two and pregnant with another and can't imagine how you are feeling. I just think you're amazing. Simple as that, you and your family are amazing and you are doing the very best for Daisy. I will most definitely spare a thought for Daisy on the 14th. X
Ms Charlotte..you are brave you are strong you can do this!!!! Use this as your mantra when u have those tough moments. In a year from now you can look back & see how strong you are & daisy can look back later & know your love & strength as her mum! Come on sister power thru!!! I believe in u!!!!! Mama power!!!!
We will be thinking and praying for your little precious Daisy ... huge hugs charlotte to you and your family .. you will be glad to put it all behind you xxx 😘😘😘
I tweeted the other day and said I'm more of a silent viewer but i just wanted to wish Daisy and all of you all the luck in the world. I'm sure loads of people will have you all in their thoughts, including myself. Thanks for sharing this, love how real and honest you are, never apologise for getting upset. It's a natural emotion. Take care xxx
Aww Charlotte, I'm sending you lots of love and hugs xxxx I have a 14 week old little girl and can't imagine how difficult this must be for you. You're such a kind and loving mother & we will be thinking of you all on the day. Much love xxx
I don't usually comment on videos but seeing you so emotional really got to me and as a mother to a 5 month old I can only imagine how you must be feeling. I wish you and your little Daisy all the best for her operation xxx
Charlotte, we are all here for you, Mark & your precious babies. Praying for all of you, and a special prayer for Daisy flower.
Love & Blessings💕💕💕,...xx
Oh Charlotte, firstly I'm sending you a huge hug, mumma. You are so so brave for making this video, I am certain that there's parents out there who are facing the same journey and will find comfort from you. On a day that is known for love, hearts and flowers. I for one, will be sending you, Daisy, Mark and Bill lots of love, keep you all in my heart and be thinking of your precious little flower. Don't apologise for getting upset, sweetheart, you're human, that's what we do.
You are braver than you believe, stronger than you seem, smarter than you think and loved more than you know 💛 xxxx
Oh Charlotte I just wanted to give you a hug. Can't imagine what you're going through but know I will be thinking of little daisy and all your family on the day xxx
Awww Charlotte, you are an amazing mother to your gorgeous children....look how far you have come with all the issue's you were faced with Daisy she is such a happy and beautiful girl. I think your 100% right in doing what your doing to help Daisy in her future. I haven't got much knowledge on cleft plates but I'm sending all my love and wishing it's a speedy recovery for your Daisy. love watching your videos and how honest and just lovely you are. will be thinking of you all. xxxx
Charlotte, you have every right to feel the way you do. It must be so daunting as it's been building up for so long. It is the biggest thing in the world for you and your family. However, it is all for the best as you well know from your own experience. Thank you for the informative video, I will be thinking of you all and sending you lots of luck on the day and for the future hurdles. She is such a doll and has come so far! Chin up! Xx
Oh sweetie, sending hugs and positive thoughts and many prayers to you and sweet Daisy.
Oh my...if I could send hugs I would! Just watching this video had me in tears
You are so incredibly strong! My little girl is 5mo and she was in neonatal for the first week of her life where we didn't have the best experience. It has left me incredibly scared of ever having to go back to hospital and trusting strangers to take care of her. We came very close to having to go in last night and I was terrified! I can't imagine what it must be like for you, but I will definitely be thinking of you and little Daisy. Sending you all my love ❤️
Aww Charlotte, this was such a moving video! You are a wonderful Mummy to William and little Daisy and such an inspiration and brave young woman! We will all be with you every step of the way, no need to apologise for 'rambling'' it's a human emotion when you are worried about your precious baby. Sending you loads of hugs lovely xx
Of course it is the biggest thing in the world it's your baby!! Will be thinking of Daisy and sending her loads of love!
you are a really good mum charlotte. I don't have children yet im only a teenager but love your videos. xxx
Im so glad i found your channel. I know these vids are 3 years old but its interesting to watch your daughters journey as i was 11 months old when my cleft pallete was repaired (i have marshal/stickler syndrome like you and your daughter :) ) i like this perspective of what it must have been like for my mom and i have so much respect for how strong mamas are who have to endure this ❤️ i subscribed
Aww you're so lovely Charlotte. Everyone will be thinking of you and your lovely little family. Xxx
You are so brave to share your journey, I'm sure it's going to help so many other parents out there. Will be thinking of you all, especially beautiful Daisy xxx
I found your channel about a month or two after my Daisy was born. She was also born with an isolated cleft in the soft palate. Your video today hit me square in the gut. I've been having similar feelings lately as my Daisy is 5 months old, we've been through such a wide range of appointments and there have been talks of her having Stickler since my oldest daughter was born with a submucous cleft. I know what to expect to some degree, but I also don't know how the surgery will affect an infant since my oldest daughter was 4 when she had her first surgery and then a fistula repair 6 months later. Thank you for sharing your journey. It really has let me know that I'm not alone. :)
Wish I could give you a hug , it must be so horrible going back to hospital and doing all that again - bless you. I hope she has a quick a recovery as possible and you are ok too lovely xx
I’m waiting for our call for our daughters cleft repair and I have the same emotions, thank you for sharing. I can be so difficult to put into words.
Such a brave mama! What an apt day for her cleft repair. Thank you for sharing this with us x
Great help for those who might need this in the future. Hugs to you all ❤️️
Ow my love ❤️We had a rough ride with hospitals and I can relate to the dread of going back there. You shouldn't feel guilty one bit!! Your doing all you can and she will be fine but it's hard. Sending you our thoughts and a little prayer 🙏🏻 She'll still be your Daisy and she'll make new noises and it won't be any different.
This is so sad but so positive too. I say this all the time but you are such an inspiration. All my love and best wishes for you all!
Your are very strong and an inspirational person Charlotte. ❤️ you know you can get through this and everyone around you is supporting you xxx
You are so strong! I will be thinking of you all. All the luck in the world xx
Stay strong love, I know you'll be brave and strong for your sweet girl and I'm sure we'll all be here to help support you as you need us to. 😘
I am a fairly new subscriber. I am shocked to see the title of this video. Of the few videos I watched of yours with Daisy featured I haven't even noticed she has a cleft. I'm always so mesmerized by her beautiful eyes and that sweet button nose. She's beautiful, Stay strong mama! ❤
I just want to give you a massive squish my lovely. Sending you and yours so much love. Daisy will come out of this strong...she has you as a mama ❤❤
Will be thinking of Daisy and your family lots and hoping all goes well x
Thinking of you so much charlotte and sending you the biggest of hugs xx
Oh bless you. your such a lovely lady. All my best wishes are with you all. Bless you all.x
You are so brave to share this, I cried along with you. Daisy is so strong but I can understand why you are worried but she will be fine. Big hugs sent your way xxxx
very brave mummy. stay strong for your little girl and wish you all luck and love on the day I am sure all will be well ❤❤ xx
Sending lots of hugs Charlotte! Hoping Daisy's doing well 💛💛
I can't imagine what you must be feeling. I hope all goes well for your gorgeous girl. sending you both lots of hugs xx
We'll be sending so much love her way! x
Stay strong muma, you're such an inspiration you really are. I just wanted to give you the biggest hug
i know it isnt the same thing but my little boy Oskar needs to have an op this year, he has a small hypospadia ( no idea if i have spelt that right lol) which is a birth defect to his ... boy bits.. which needs correcting. i am TERRIFIED , i know this op happens 10 times a day.. surgeons can do it with thier eyes closed , but that makes no differance to me. he is my baby. my small bloke who be operated on. and thats huge to me. your an amazing mommy. Daisy is adorable. and you have almost 9000 people who are here for you. stay strong sweetheart xx
Will be thinking of all your family! You've put a video in to how I'm feeling about my sons operation in March. He's a month or two older than Daisy and it's really hard. My partner's taking paternal leave which any parent can take for I think up to 18 weeks a year. I'm not sure if Mark would be able to do that and help you or if you knew about the leave as you mentioned school runs etc. I just thought I would let you know as it was a great comfort knowing my partner could use that as he had no holiday entitlement left and be there. You're amazing and always remember you're doing your best :) xxxx
You are a brilliant mummy! It's so difficult to come to terms with the fact things are being taken out of your control, but just keep reminding yourself that this is a step forward. I kind of understanding how your feeling with the whole blaming yourself thing, my son has a rare genetic syndrome, and I carry the DNA mutations that carry it. So I went into a dark place for a long time, thinking it's my fault that he'll never walk, and I'll never hear him say 'I love you mummy' but as he's grown, he's found different ways to communicate which brightens my heart. We've also been there in terms of the surgery side of things, although very different to what you guys are experiencing. It is so scary to have that control taken away, but just remember you'll be there when she's goes to sleep, and you and her daddy are the first people she'll see when she wakes up. She'll be so looked after! This is a massive step into the unknown for you all, but please know, it will definitely get easier. After everything you've been through already, you'll rock this out! I find strength in our 'Positives' and brushing the negatives to the side, you can't change anything, so you should definitely appreciate the positive things you have! I hope this helps you, I'm not great at getting my point across clearly when writing 🙊 x
Sending lots of love to you and your family. Your one very brave lady xx
Hope it goes well. I'm sure she will be fine. Millions of children have surgery everyday ..Just think of the end result and the fact that she is a healthy and a happy child all in all. Good luck xxxxx
Oh my gosh hunny my hearts breaking watching this! I know she’s ok now but I can truly feel your sadness in this 😢
Very brave to share, can't even imagine what's your go by through. My little dude was in scbu for 16 days which in comparison is nothing but to us that was hell on earth so I'm sending lots of love to you all. As for the school run and keep daisy well I would pop the rain cover on while your out no matter the weather. I did that on the school run when Esme my youngest had chicken pox. She had only just turned 1 last march and caught it off her brother who had it 2 week before hand. I still needed to get him to school and also keep esme protected. I have the wayfarers in raspberry so the rain cover is like a huge bubble and it did the trick. (. Please understand I'm not comparing chicken pox to Daisy's recovery) just a little suggestion Hun to try and help manage life. I know how hard it is to juggle life with 2 little ones. I'm on my own so throwIng a poorly baba in the mix your one amazing lady. Chin up sweet. Lots of love xxxx ❤️
awk bless you, she'll be in my thoughts on that day ❤ sending you all the love in the world to you and your gorgeous family 😊
I'll be thinking of you all lovely and sending you such a big hug. xxx
Such a great video to raise awareness. Will of course be thinking of you and little Day on February the 14th ❤️️❤️️ Stay strong Charlotte xxx
I feel so sorry for you all . Take care and big hugs x
Hugs and prayers! Always thinking about you and your family ❤🎀🌼
you're so brave for sharing this, you're so strong and Daisy is too.
Oh bless you. I hope it all goes OK. I will be thinking of you all x
Good luck little flower, love Granny xx
awwww,I think everyone will be thinking about you all and saying a prayer!hope all goes well! xx
sending lots of hugs and love to all of you and will be thinking of you all loads 💜 xxxxx
Sending you all lots of love hugs & prayers xx
will be thinking of you all hun xxxx
My baby is going to be 6months and I feed her orally but also she has NG tube not sure when they will remove coz she can’t drink from a bottle or a cup, I feel you so much so many nights I cried to sleep and now what scares me is after the repair.
FYI her PRS is 2 and it’s only the soft palate.
Can you please tell me when did you start your speech and language therapy? What was your age? And was it private or was referred by a doc? You’re amazing and I love you.
Will be thinking of you on that day xx 😘
I just want to reach through the screen and hug you!
Bless you x
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