🥺😢😭sadly ... There is something that you didn't explain well And tbe old nummers are not valuable anymore. They found that out from years of study.. Sadly you didn't say anything about that. And what about countries that don't do any lupus research and therefore keep up numbers from 40/60 years ago... PLEASE DO YOU HAVE ANY ADVICE FOR ME ?
My message to all brave lupus patients: do not ignore regular heart checks! My beloved wife died 2 weeks ago in 44 years of age. I am in despair I feel horrible. I miss her unbelievably. Do not ignore Blood clots and heart murmurs. Take care and fight!
Oh crap. Maybe God made me see your message. I have SLE and my heart has been palpitating for two weeks and I have been avoiding the doctor. I think I'll make an appointment. Than you and I'm sorry for your loss. Lynn
I feel for you ❤️🙏 sorry for your lost I suffer from Lupus . I am almost 3 decades in. Got diagnosed at 16 I am now 44. It's no fun. I hope you have a great family and good friends to support you in this difficult time of yours. I wish you all the best in life 💗. Much love from Denmark, Scandinavia
I am so sorry for your loss. I was told I had SLE at 21 by a GYN doctor but it was never explained and he never referred me. I had no issues until I was officially diagnosed with SLE & lupus nephritis at 54! Eight years later I am blessed to say that my kidney & rheumatologist doctors say I’m in remission. I will however seek a cardiologist. Thank you for sharing.🙏🏼
I'm very sorry for your lost i have lupus sjogrengs fibromyalgia and i been telling my rheumatologist to send me to a cardiologist cuz 2 valves aren't working right
I’ve had a rash that was shortly followed my joint pain for like three months. In the process of getting tested for this and other autoimmune disorders that can cause rashes and joint pain like rheumatoid arthritis Update: I have dermatomyositis! Getting treatment (thank you medicaid). Rash is nearly gone and the joint and muscle pain is gone. I lost a lot of mobility and muscle mass, but i have regained enough flexibility and muscle to move mostly normal
I have had sever joint pains in both feet for years, recently I have been getting rashes on my face,in 2014 I was diagnosed with alopecia areata,and lost my hair,in 2019 my hair began growing back,I haven't yet seeked medical help, I'm just wondering if it's a good idea to go see a doctor,as everyday the pain in my feet aren't getting better
@@aleciastarseeds1557i saw a specialist and she wasnt very helpful. Seeing her a 2nd time soon. Will update you. Im taking predisone to help with the pain and it kinda reduce the swell on my foot but its not good to take it often.
I am currently dealing with COPD and plantar fasciitis and restless leg syndrome and I guess all that wasn't enough for me to handle, my body is being attacked everywhere and it is painful. I've never had any joint problems previously until 3weeks ago , the same time as a plantar facilities started, and I am devastated that I might have this disease. The pain move around like knees to shoulders to hip area then to my fingers and to wrist and so on...... I am very very sad.
I lost my mom cause of this deadly disease few months before, I miss her too badly take care of ur loved ones go for regular check up until it's too late
My friend just died today bcs of he SLE stage IV disease... I never knew abt SLE before... But now since my old friend died from this disease i think we should spread awareness about it... Btw shes 31... She suffers from the disease since we were high school... She endure her sickness so long 😭😭😭
Many thanks. Just to add for your information, that with lupus nephritis there is no specific pattern. However, it may be normal in rare circumstances, otherwise it can be membranous GN, diffuse proliferative GN, focal proliferative GN or mesangial lupus GN.
Being diagnosed with lupus and it's been hard trying to learn solid information about it. This was a week done video. Alot of my symptoms are mentioned in this video. They have me trying hydroxychloroquine.
My doctor has me on that also since Sept when I was diagnosed at age 56. I don’t feel much different. At first, my knees were not as achy but that’s it. I have a follow up appointment in Dec.
Can lupus affect my speech? My family says they’re having difficulty understanding me, that I mumble and have slurred speech? Is this possible with lupus
Hi, All thank you for the video 📹 I also Dignosed with Lupus it has effected my Kidneys I also get sevare Fatigue it is horrible 😢😢 unfortunately with Lupus i can't Plan anything 😢 in many occasions I planned thing's 😢 In the end i and up cancelling because of very poor energy 😢 worse Part noone understand 😞 they think I am just been to lazy to do anything 😢
@@Isaac5123 there r lots of Autoimmune diseases which can be cured just be raw diet please watch videos on it, cancers, Rheumatoid arthritis, autoimmune skin diseases also, Ankylosis spondylitis, Diabetes mellitus, Hypertension, hypo or hyperthyroidism etc can be cured the doctors r not treating the cause The are cutting the weed, but not taking it from the root Our body has self healing power We don't give it time to heal instead we keep on munching food just go nd watch the videos on Satvic Movement nd ppl eating raw food or Fruitarians Hare Krishna Hare Krishna Krishna Krishna Hare Hare Hare Rama Hare Rama Rama Rama Hare Hare
I have lupus and faced stroke on left side of body along left side neuropathy ( C.N.S and P.N.S neuropathy ) My doctor give me steroid hcq mycotero 500 and 6 dose of cyclophosphamide injection through liquid along intracath ...
My doc really think I have this but my blood says no but they are not given it a rest and keep asking are you sure none of your have had lupus a dont understand why they keep going on if my blood is negative to it
Definitely keep going for the tests im 56, and just found out I have this due to an endoscopy. My drs kept just saying it was some infection and all this time all the symptoms, I thought I was going of my head, Good luck
My ANA was 1:100. But the blood test was done right after a laser tattoo removal treatment. I truly do not believe I have lupus. All of the symptoms I had were easily attributed to chronic stress. The only one I have now that I’m returning to baseline is Raynaud’s phenomenon.
I have lupus and am going through a flare. The pain is unimaginably hard. Trembling with pain as I type into this thread. Does anyone have any suggestions on what to do for a flare other than the medications typically prescribed?
@onuohavivian4716 medications are helping I'm just still not realizing what exactly is the disease is how did I get it ,I was trying to learn more but when I started to see all kinds of complications people are living I decided to stop reading and just stay calm ,thinking that my symptoms are relieved and it's not the end of my life I have muscle pain, headache, chest pain and dry eyes but at least I can manage it ,prescription medications are helping
@@cristianrusu8521 honestly dear. I stopped researching. Been praying , taking my medications. Got appointments with the doctors. I developed coronary artery disease as a result. Well I am cured and I believe that there is nothing God cannot do. Keep living one step at a time. May Gods grace, favour and presence be with you. I’m doing a test in a few weeks, I’d come with a positive news. God be with you king
@@cristianrusu8521Hope you’re still doing well. I’m wondering if I may have it as well, because I kind of have a malar rash and I’m very sensitive to sunlight all of a sudden. I’m only 16 years old.
my dad has lupus and was diagnosed very late. spent about 20 years without proper treatment. it's hurt him very badly and I am beginning to show signs of it myself. I hope I am wrong, but don't have insurance to find out properly yet.
19 วันที่ผ่านมา
Does anyone have any insight on a diagnosis of SLE vs Lymophoma,, anything that says clearly one or the other,, before the major labs and imaging etc begin.. Thank you for being kind, I’m sure everyone knows what it feels like to be terrified while you’re waiting (during an acute, serious disease process occurring in an otherwise healthy 45 year old woman.. 2 weeks ago I was the happiest I’d been in many years, and while now I can look back and see serious symptoms since at least January,, nothing remotely close to this, starting with weird cardiovascular events and crazy inguinal lymphandenopathy, then took off so fast from there, im literally too terrified to type the other symptoms because I don’t want someone to say yeah that’s cancer 😔... One week ago it started..I have been stressed to the max and that doesn’t even begin to describe what my life has been like for the past 5 years,, and really for like 20+ 🙄 Takes me a while to do things lol.. I’m actually hoping for an SLE diagnosis at this point.. I probably shouldn’t say that,, again I’m totally terrified right now..) thank you in advance 🙏
Sorry for your loss. 🥺My aunt passed away in her 80s from lupus, she had it for decades. I have it also. If it’s not to intrusive may I ask how long did your beloved sister have lupus?
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🥺😢😭sadly ...
There is something that you didn't explain well
And tbe old nummers are not valuable anymore.
They found that out from years of study..
Sadly you didn't say anything about that.
And what about countries that don't do any lupus research and therefore keep up numbers from 40/60 years ago...
PLEASE DO YOU HAVE ANY ADVICE FOR ME ?
My message to all brave lupus patients: do not ignore regular heart checks! My beloved wife died 2 weeks ago in 44 years of age. I am in despair I feel horrible. I miss her unbelievably. Do not ignore Blood clots and heart murmurs. Take care and fight!
Oh crap. Maybe God made me see your message. I have SLE and my heart has been palpitating for two weeks and I have been avoiding the doctor. I think I'll make an appointment. Than you and I'm sorry for your loss. Lynn
I feel for you ❤️🙏 sorry for your lost
I suffer from Lupus . I am almost 3 decades in. Got diagnosed at 16 I am now 44. It's no fun. I hope you have a great family and good friends to support you in this difficult time of yours. I wish you all the best in life 💗. Much love from Denmark, Scandinavia
I am so sorry for your loss. I was told I had SLE at 21 by a GYN doctor but it was never explained and he never referred me. I had no issues until I was officially diagnosed with SLE & lupus nephritis at 54! Eight years later I am blessed to say that my kidney & rheumatologist doctors say I’m in remission. I will however seek a cardiologist. Thank you for sharing.🙏🏼
I'm very sorry for your lost i have lupus sjogrengs fibromyalgia and i been telling my rheumatologist to send me to a cardiologist cuz 2 valves aren't working right
@@zedsdead6969 Hi, have you been to doctor since the last post? How are you feeling? Have you been diagnosed?
My friend passed away due to Lupus. Thanks for explaining. Another solid reason to pursue my dream to b a doctor.
Sorry for your loss. How old was your friend?
@@09lilmissShe was 23
Am 62 and a Male got diagnosed one year this month.
One of my best friends suffers from this condition. thanks for the clear explanation, it helps me understand his struggle a lot more.
You are such a great friend to have . Thank you for being there for your friend
@@aliwathiq9715 thank you :) that's what friends do ♥️
Some food could help heal, drop emails me
hey can you tell me those foods
@@名氏无-j5g .چه غذایی آیا درمان دارد
My mom got checked and doctors told that she got SLE my heart breaks right now !! I don’t wanna lose her 💔
There is treatment, she can live a lot more from now with proper treatment.
How's it going btw
I watched this, still not understanding to many medical terms. So I really leave with more questions. Layman terms.
I’ve had a rash that was shortly followed my joint pain for like three months. In the process of getting tested for this and other autoimmune disorders that can cause rashes and joint pain like rheumatoid arthritis
Update: I have dermatomyositis! Getting treatment (thank you medicaid). Rash is nearly gone and the joint and muscle pain is gone. I lost a lot of mobility and muscle mass, but i have regained enough flexibility and muscle to move mostly normal
I have had sever joint pains in both feet for years, recently I have been getting rashes on my face,in 2014 I was diagnosed with alopecia areata,and lost my hair,in 2019 my hair began growing back,I haven't yet seeked medical help, I'm just wondering if it's a good idea to go see a doctor,as everyday the pain in my feet aren't getting better
@@aleciastarseeds1557im taking predisone and it helps with the pain but not good to take it often
@@aleciastarseeds1557i saw a specialist and she wasnt very helpful. Seeing her a 2nd time soon. Will update you. Im taking predisone to help with the pain and it kinda reduce the swell on my foot but its not good to take it often.
I am currently dealing with COPD and plantar fasciitis and restless leg syndrome and I guess all that wasn't enough for me to handle, my body is being attacked everywhere and it is painful. I've never had any joint problems previously until 3weeks ago , the same time as a plantar facilities started, and I am devastated that I might have this disease. The pain move around like knees to shoulders to hip area then to my fingers and to wrist and so on...... I am very very sad.
So happy for you and I wish you a speedy recovery
Very good information on SLE. Could you do a video on Dermatomyositis which has several similarities to SLE. Thank you!
This explains soooooo much
I lost my mom cause of this deadly disease few months before, I miss her too badly take care of ur loved ones go for regular check up until it's too late
When your mother digonished for this disease??
It’s not deadly
@@NM-ru2qjsmall percentage can die. So saddly it is
How is it deadly
Thank you for information 👌🏻♥️♥️
Thank you
Amazing video
I have lupus fibromyalgia Ra today is a bad day it has my heart lungs liver and kidney it's very hard
My friend just died today bcs of he SLE stage IV disease... I never knew abt SLE before... But now since my old friend died from this disease i think we should spread awareness about it... Btw shes 31... She suffers from the disease since we were high school... She endure her sickness so long 😭😭😭
Thanx! 😊
All these damn treatments are only giving temporary, if any, relief. There has got to be a genetic cure, a blocker.
Yepp
I have SLE since when I was 18 years old. The doctor in my country doesn't know it then I go to Thailand
Where r u from?
Is your lupus cure now?
Many thanks. Just to add for your information, that with lupus nephritis there is no specific pattern. However, it may be normal in rare circumstances, otherwise it can be membranous GN, diffuse proliferative GN, focal proliferative GN or mesangial lupus GN.
My girlfriend has lupus it's really bad and sometimes I don't know what to do to help her
😢😢😢
Same i understand you 😢
Being diagnosed with lupus and it's been hard trying to learn solid information about it. This was a week done video. Alot of my symptoms are mentioned in this video.
They have me trying hydroxychloroquine.
Is that an anti malaria drug?
@@Isaac5123 yes
@@mikegrace thank you
Some food could help heal much , message me . If interested
My doctor has me on that also since Sept when I was diagnosed at age 56. I don’t feel much different. At first, my knees were not as achy but that’s it. I have a follow up appointment in Dec.
Can lupus affect my speech? My family says they’re having difficulty understanding me, that I mumble and have slurred speech? Is this possible with lupus
Me too
yes it may
I’m having a hard time remembering things even as simple as the name of things
@@Topanga. you have a very cool name. Unforgettable!
@@seyheyalishak awe thank you love! ♥️
Very informative thank you
Hi, All thank you for the video 📹 I also Dignosed with Lupus it has effected my Kidneys I also get sevare Fatigue it is horrible 😢😢 unfortunately with Lupus i can't Plan anything 😢 in many occasions I planned thing's 😢 In the end i and up cancelling because of very poor energy 😢 worse Part noone understand 😞 they think I am just been to lazy to do anything 😢
Yep I have all the symptoms and 2 positive ANA tests , Dr never told me
My mom passed away since we were child and now my younger brother also passed away I'm worried about myself... Is there any cure for this symptoms
There is no cure but symptoms can be managed using available drugs which are usually steroids and immunosuppressive drugs.
Hy
What type of joint pain occurs in it please say someone
I have SLE and fibromyalgia. I find it difficult to work out if I'm in fibro or Lupus flare.
What are some key similarities and differences?
Same here
Have plant based vegan raw veggies nd fruits
Watch videos of Satvic Movement
Joe the juicer
Or follow fruit diet
It will get cured
@@monikaym1325 no there is no cure for lupus. I for one can not digest raw vegetables
@@Isaac5123 there r lots of Autoimmune diseases which can be cured just be raw diet please watch videos on it, cancers, Rheumatoid arthritis, autoimmune skin diseases also, Ankylosis spondylitis, Diabetes mellitus, Hypertension, hypo or hyperthyroidism etc can be cured the doctors r not treating the cause
The are cutting the weed, but not taking it from the root
Our body has self healing power
We don't give it time to heal instead we keep on munching food just go nd watch the videos on Satvic Movement nd ppl eating raw food or Fruitarians
Hare Krishna Hare Krishna Krishna Krishna Hare Hare
Hare Rama Hare Rama Rama Rama Hare Hare
My husband who turns 35 this year was just diagnosed with this.😞
I have lupus and faced stroke on left side of body along left side neuropathy ( C.N.S and P.N.S neuropathy )
My doctor give me steroid hcq mycotero 500 and 6 dose of cyclophosphamide injection through liquid along intracath ...
I can help you call me 👍
Hy
@@k.anncillasushilkumar2802please also help me dear
I got this.
What is the pathophysiology of SLE?
My doc really think I have this but my blood says no but they are not given it a rest and keep asking are you sure none of your have had lupus a dont understand why they keep going on if my blood is negative to it
Go get 2 more medical opinions at least.
Definitely keep going for the tests im 56, and just found out I have this due to an endoscopy. My drs kept just saying it was some infection and all this time all the symptoms, I thought I was going of my head, Good luck
My ANA was 1:100. But the blood test was done right after a laser tattoo removal treatment. I truly do not believe I have lupus. All of the symptoms I had were easily attributed to chronic stress. The only one I have now that I’m returning to baseline is Raynaud’s phenomenon.
My sister also died 2months ago she was only 16 that time 😭
Sorry to hear that 😢
Omg was it by lupus?
😢
Only stupid people can't survive lupus
😢
It’s sometimes lupus.
What else would it be?
I have Lupus and multiple sclerosis. I'm a mess. But take it day by day.
I have lupus and am going through a flare. The pain is unimaginably hard. Trembling with pain as I type into this thread. Does anyone have any suggestions on what to do for a flare other than the medications typically prescribed?
What type of pain and which joints ?
My sister wsa passed away by this Lupus. Last month 29th feb 24. She just 12 years kid
How did she die do young
@@edelquinn6848 A lupus, attacks anything, even a heart or a wound.
@@jouryvip2482 that’s terrible I have it to I’m sorry for ur loss
@@edelquinn6848 thank God I don’t have lives, but I have psoriasis
بنزل شرح لمنهج مواد طب اسنان 🦷✨
Diagnostic today ...I'm 22
Got diagnosed last month. How’re you doing?
@onuohavivian4716 medications are helping I'm just still not realizing what exactly is the disease is how did I get it ,I was trying to learn more but when I started to see all kinds of complications people are living I decided to stop reading and just stay calm ,thinking that my symptoms are relieved and it's not the end of my life
I have muscle pain, headache, chest pain and dry eyes but at least I can manage it ,prescription medications are helping
@@cristianrusu8521 honestly dear. I stopped researching. Been praying , taking my medications. Got appointments with the doctors. I developed coronary artery disease as a result. Well I am cured and I believe that there is nothing God cannot do. Keep living one step at a time. May Gods grace, favour and presence be with you. I’m doing a test in a few weeks, I’d come with a positive news. God be with you king
@@cristianrusu8521Hope you’re still doing well. I’m wondering if I may have it as well, because I kind of have a malar rash and I’m very sensitive to sunlight all of a sudden. I’m only 16 years old.
Hy pls do regular check RFT LFT and total creatinine level, CRP and make sure take care of yourself
my dad has lupus and was diagnosed very late. spent about 20 years without proper treatment. it's hurt him very badly and I am beginning to show signs of it myself. I hope I am wrong, but don't have insurance to find out properly yet.
Does anyone have any insight on a diagnosis of SLE vs Lymophoma,, anything that says clearly one or the other,, before the major labs and imaging etc begin.. Thank you for being kind, I’m sure everyone knows what it feels like to be terrified while you’re waiting (during an acute, serious disease process occurring in an otherwise healthy 45 year old woman.. 2 weeks ago I was the happiest I’d been in many years, and while now I can look back and see serious symptoms since at least January,, nothing remotely close to this, starting with weird cardiovascular events and crazy inguinal lymphandenopathy, then took off so fast from there, im literally too terrified to type the other symptoms because I don’t want someone to say yeah that’s cancer 😔... One week ago it started..I have been stressed to the max and that doesn’t even begin to describe what my life has been like for the past 5 years,, and really for like 20+ 🙄 Takes me a while to do things lol.. I’m actually hoping for an SLE diagnosis at this point.. I probably shouldn’t say that,, again I’m totally terrified right now..) thank you in advance 🙏
I think i have this
Got Lupus.
i remember my doctor said i had signs of lupus when I was 20 years old.
👏🏽
Healthy women half said ..i should be dead by now think the authophagy makes more sense than some doctors
My sister passed away Oct 12 2022 of lupus 😢❤
Sorry for your loss. 🥺My aunt passed away in her 80s from lupus, she had it for decades. I have it also. If it’s not to intrusive may I ask how long did your beloved sister have lupus?
Ik suffering from Lupus, from last one year, my age is 22 only , may I know the details of ur sis age , how lone she survivor with Lupus
Sorry for your loss ,
Also all.my symptoms get smaller less painful when I start avoid sone food ,and eat more of meat and animal fat ...no vegetable and seeds oils
@@sreelathanacharamme too 22
How I can contact u buddy
Today my daughter is no more for lupus
I just confronted my pcp office
It's gone. I already said that.
This seems like a task for herbal remedies
Its always lupus...
😂hahahaha 🤣
I am also suffering with SLE from 2012 i can't eat tablets always😂😂😂😂😂😂😂😂😂😂😂😂
Hai mam, my sister also affected this one year, she having lot of problems, please help to us, please tell ur contact mail id
Pls help me give mail id---i have lupas 3 years--
It's never lupus
Imagine if it was named Loopoos.
Well done twat
selena gomez 😢
Selena Gomez 💔🥲
Does lupus effect literacy? Goodness folks.