✅ STRUGGLING THROUGH LONG VIDEOS? Get weekly bullet point summaries straight to your inbox! Short, sweet, and designed for your energy envelope. 💌 mailchi.mp/3bd95045319b/raelan-agle
I got to a point where I welcomed my flares because it meant I was moving forward. I did titrate activity but always moved forward even if it was small steps. I'm now doing everything!!!
It is only after four years of this I am realising CFS is caused by stress and anxiety. The body closes down (nervous system overload) after a long period of stress/trauma/illness. You think you are dealing with a hundred physical symptoms and the endless trips to the dr (who only look at the physical symptom you are presenting at that time) and journeys down internet rabbit holes only keep you in the very state you are desperate to get out of! I’m just starting my journey of changing my thought patterns and building up my confidence again and am now more hopeful of recovery. Thank you Anne and Raelan for your video which confirms that I seem to be on the right track now.
There is something like a hibernation mechanism going on. Why do animals slow down and sleep through the stressful time of winter? Messages to brain/ danger and nothing for you out there- conserve energy. Also, blocking things out is a self preservation mechanism- kind of like denial- and it may work for a time, but also not. Lastly, there was a syndrome in Northern Europe- somewhere there were many refugee families undergoing severe hardship. Their kids would go into the equivalent of a sort of coma and no one knew why’s. When thi mg s got stabilized and families together they slowly came out. Kind of like being frozen for self preservation.
absolutely love these interviews Raelan! I am now recovered from long covid and am now beginning training in mind/body coaching. This channel is so important.
So amazing to hear of your recovery Anne! I think Reverse Therapy is a tremendous book and it's helped me massively, I really wish more people knew of it! I'd say it's not a "mental" thing, but a bodymind thing (more akin to our subconscious / unconscious) - so it's not just thinking your way out of it with your conscious mind (most of us know "pushing through" isn't helpful and doesn't work) but it's a shift that happens at a much deeper level - akin to brain retraining, and being able to interpret your bodymind signals correctly (without our conscious mind interpreting them incorrectly, e.g. thinking we need to rest more when our body might be sending out symptoms as it's had enough of resting or doing something not enjoyable) - I really recommend people get the book, as he explains it well and you can try it for yourself to see the rapid results Anne was talking about, that I also experienced
@@lorikendall2213 no, Dr John Eaton and Dr David Mickel created the therapy. Then they decided to go their separate ways. John creating reverse therapy and David continuing with mickel. But the premise of both therapies is the same
@333_Tarot Practicing a positive mindset by building new dominant stories, such as, all is well. Using the Kinesthetic language to calm the old brain. Very simple if done often enough.
Thanks so much for sharing your story, Anne! It's a shame the Conventional Medical System can't help us more and then we wouldn't end up down loads of rabbit holes trying to get better. It's good to know about Alexandra Barton's book & also about Reverse Therapy! I've never heard of RT before & I'll be checking out the link. I'm so glad RT helped you and that you had a coach to guide you through it! Best Wishes to you both. 💝
20:27 is a great section! Currently navigating the symptoms and what is normal. Really retraining my beliefs at this point in my recovery. ❤ Also, I hated past jobs long before I was ill and was absolutely wiped out on the weekends. I easily worked a lot before illness (although truly too much) and was much happier and more energized all day.
This was so interesting. I have been working through the ANS Rewire Program since early January, which has changed my thinking in a similar way. Annoyingly I am having post-menopausal symptoms - low energy, aches/pains, stubborn weight gain, dizziness ….. Therefore, it is making it difficult to really enjoy my ‘recovery’ so far. I am doing more activity (even started slow running after a 19 year gap, until I dropped something on my foot and now limping about 🙄) and no longer identify as someone living with chronic pain/fatigue (withdrawn from all the social media and blogging I was doing). I am not using my Blue Badge (disabled parking pass in the UK). I love meeting new people and not talking about my health at all. I am 53 and it feels like a fresh start. Just need to balance my hormones now!
Great, I think not identifying a someone with the illness is a huge step. I hate it when people say I'm on remission. Our words and thoughts about things matter hugely.
Great interview! So much of my stress seems to come from trying to pace appropriately. Some recovery stories say pacing was so important and others, like this, say the opposite (which I resonate more with)…but I do find the subject confusing.
second this! I'm feeling maybe its a very personal balance of testing the waters even if it means the onset of symptoms but not going too far. for example, usually I do only an hour of activity per day but today I was like no let's do 2 hours, feel the backlash but being okay with it, and maybe in a few weeks of slight pushing and accepting, ill have improved my baseline. but I'm not going to go ahead and do 4 hours yet type of thing. I'm confused too 😕
I assume that safety is the underlying topic. For some people pacing creates safety because it is structured and gives them (illusionary) control. For me personally just like you said it totally stressed me out, I became so hyperfocused on it and freaked out once I "overdid", so I dropped the classique pacing and feel so much better. I still try to take things slower and give myself breaks.
Great interview! I'm reading the Reverse Therapy book right now and it's like Dr. John Sarno's TMS but with a more robust explanation on emotions and what the body is trying to communicate.
I think there must be different underlying causes of me/cfs. I literally can get so tired after doing an activity that I literally can't do it again for a week, physically, it's not about belief. Getting an excruciating migraine after doing cardio for several days is real. But perhaps for this lady it was in her mind?
I can relate to many things in this video. I was programmed with the "be careful" messages as well. And also beliefs that I am too fragile, that its all physical, and have limited energy, so I better not do this that or the other. My body has felt trapped by this my whole life--I don't know what its like to be free of this mind control. But now after so many years of doing things to heal, I have come to the power of the mind and its beliefs, and am seeing this as the root of the dis-ease. I just now bought the Reverse Therapy book, and am going to see what that brings for me. Thank you for sharing this story 🌄
Im just feeling like I have something different as there's no way I could just go do what I want to. And I don't hear the neurological issues in these mind body recovery stories that I have. You don't push through severe neuropathy, nausea and migraines.
I’m not recovered or functioning by any means yet but I used the Visible app to help with pacing/monitoring my heart rate and was able to reign in my symptoms A LOT. I don’t know if that will help you but I thought I would put it here just in case it’s something you haven’t tried yet.
I felt the same way. The nervous system side of things has been important but I believe most of my symptoms have been rooted in physiological issues. For me one of the main culprits being mold illness (after 27 years of living in quite moldy homes). For other people its been lyme disease, other toxin buildup, etc. Don't doubt yourself!
I've done it with your condition s and heds t flares it I no but some of my symptoms have changed over decades minerals do help with fatigue more than pain best to look at fdn videos
Im beginning ti understand! My reaction to my fatigue just might be a bit too emotional and i think I'm hyper-vigilant to my bodys symptoms, because I'm trying to analyse and find a fix. I think my subconscious is a big old terrified baby, and it needs to grow up and understand it's not abandoned, or unloved! Mmmm ....much food for thought
hmm this is so difficult for me to believe that this is the solution for me or everyone. I once told myself for a whole year that I am not ill and I moved as much as I could. I went jogging, I was hiking, I went dancing etc. I was moving so much despitr being so exhausted with flu like symptoms and concentratiom problems... In the end I was terribly ill. I couldn walk alone, I couldnt talk, I couldn shower alone.. It was hell. I couldnt watch TV for 2 months. etc. So I don't think this is the solutiom for everyone sadly :( But I whish it would be
Many thanks Anna + Raelan!!!.Ithink you have solved my search for the solution + cause of my cfs. It all makes perfect sense to me now. I am going to do exactly what you suggest, and will share this vital info with others. You are both lovely,kind, caring ladies❤❤❤❤❤ Rosemary
'Don't overdo it'. Wow. When I heard that I had a lightbulb moment. My Mum, who had fatigue issues used to say that to me, not my brothers, all the time. It was suffocating. Reverse therapy is a great little book.
Raelan I now understand why scuba diving helps people with ME/CFS. Many of the symptoms associated with CFS/ME and FM may, in fact, be the results of or indirectly related to an over-active immune response or hypersensitive nervous system. A substantial reduction in these symptoms may, therefore, occur with the down regulation or re-regulation of this over active immune system.Vertical immersion in water creates a significant pressure gradient that can enhance lymphatic flow up to the body and torso and into the thoracic duct which lies below the left clavicle. The pressure gradient effect acts to "transfuse" tissue fluid (lymph) back into the blood system at the level of the left subclavian vein (see figure). This auto-transfusion of excess immuno-reactive lymph fluid would provoke a down regulatory immune response which in time could result in a significant improvement of symptoms. This is called Hydrotherapy.
That's so interesting! I've been sleeping semi- upright on a big cushion every night, because of back problems, and I wonder if that's made things much worse ! My lymphatic system is not optimal - I have lipodema !
I wonder if this person’s body had recovered but she hadn’t registered this recovery mentally - and the “reverse therapy,” actually Cognitive Behavioral Therapy, helped her realize it. I have worked with children who have psychosomatic problems - they recover when you get the brain and body aligned.
Very interesting topic. Pacing can be stressfull and lies the focus on the perspective of possible symptoms and consequences, hence it increases anxiety (with hormonal consequences, increased heart rate etc). Personally I am struggling with the method for my long covid which I experience since december 2023. It is clear that patients were overtrained by physiotherapist in the beginning of their illness in the beginning of the pandamic? These patients were trying to live their lives as they were used to. They had no expectancies about the consequences due to a lack of knowledge of the illness. Currently we are focussing on pacing in case of PEM. Acute crashes seem to be damaging to the brain and muscle damage is found in post covid patients after exercise. So I was just wondering to what extent this theory applies to long covid patients? I can imagine that pacing is necessary in the stage when the body is healing, but probably at some point a vicious circle is created by the mind (assuming the worst since this happend before and your cognitions are focussed on the risk of symptoms?). What are your reflections on this theory in the context of long covid/PEM?
Mind/body. What was going on with me and many others…we had a first ever surgery. I knew I was losing energy, but it was slow onset. Was I happy in life, not really.
Thanks for letting me know, Leslie! I'm not really sure what's going on here - could be any number of glitches. I hope it's just a temporary TH-cam hiccup!
Not sure im clear on this part: if it was a physical limitation you wouldnt need to gradually increase activity? Isnt that how we treat all physical limitations like a sprained ankle or an injured knee? Or do you mean limitation as in being disabled completely? Thanks for sharing.
OK good question! I didn't think it was clear at the time! I think it was about how gradual my increases in exercise were needing to be at the time. Acute injuries are really different from chronic ones. I knew I didn't have an acute injury to recover from and I became confident after the Reverse Therapy session that my body wasn't fragile or broken. I'd had enough medical investigations by then. I think whilst I had the belief I was fragile my mind could only cope with very careful, gradual steps,like 5% increase every week. This was recommended in the cfs group I went to but reinforced the belief that I was very fragile, ill and broken. I had no idea how I'd ever move from walking 200m a day to playing badminton for an hour or dancing all night because all the fears would kick in with that jump, which would create symptoms, which would result in even more avoidance and negative beliefs, and on and on. But once I changed my belief and ignored my fearful thoughts afterwards I played badminton that week, went dancing and hiking and felt great, and started to realise I was free. It was the right time for me,and the right circumstances to let go of my pattern. I could probably talk for ages about the influence of the mind over the body!
@anneb7308 thanks so much for the response. That makes a lot of sense. Even though i havent found my healing solution, these recovery stories give me some hope that one day i can be better again.
Great to hear about her recovery but there are many causes of CFS. I’ve had times where I went out and did something fun convinced that CFS was all in my head and then crashed a day or two later. I think that our stress and anxiety over symptoms wears us out as do latent viruses like Epstein-Barr which may come back when we are stressed or run down or tooth infections, mold, etc. which further affects our energy. So addressing the fear and not freaking out about symptoms is the first step while getting enough rest to heal from infections. And then gradually doing more while not being fearful.
exactly!! I would love to hear more recovery stories from peoole who had chronic ebv or where me cfs was directly claused my ebv. I too have reavtivated ebv for a few years now. the lab shows it. So its hard for me to believe that nervous system regularton etc will just get ebv down.
I've come a long way and I just had to go extremely slow. First I moved to a low-mold apartment, then started with like half a capsule of a binder, liver support, b vitamins, and focus on things like circadian rhythm, sun exposure, epsom salt baths, electrolytes. Doing very mild therapies to start the detox pathways moving again *very slowly*. Always starting anything with a tiny dose. Also focusing on lowering toxin intake so that my body had the capacity to handle moving out stored toxins -- can be expensive but things like moving to a low-mold apartment, swapping any toxic household products, air & water filters, getting lots of fresh air.
@@revelation1215 For me I guessed it when my symptoms almostly exactly matched others' I've read online, and I knew I had a history of really bad mold exposure. I just had every single symptom including the more specific ones like peeing all the time and feeling thirsty all the time (low anti-diuretic hormone), low blood pressure, terrible brain fog after moldy/yeasty foods, constant sinus issues, histamine issues, swollen esophagus, oral thrush, multiple other exterior fungal issues, feeling like a zombie and severe cognitive issues, etc etc. Once I knew mold illness was a thing, i saw that changes in my health matched up with living in different places. When I was able to stay in a low-mold place for a while, I started to feel a bit better. I also did some blood testing -- Cyrex Labs Array 12 which measures antibodies to like 25 common "stealth infections," and mine came back negative except for the 3 toxic molds which were sky-high. Also tests like TGIF-B1 which was off the charts for me.
@@annatomlinson1529 thank you for this! I have done most of these things except I don’t tolerate the binders. I do use glutathione and I live in a mold free environment with air filers and I get a lot of fresh air. I don’t have a thyroid or gallbladder so it’s complicating things a bit I think
Great interview. I would love to know if Anna is still experiencing symptoms and reframing each time or is just completely over it. Curious as I wake up with slight brain fog and fatigue, and especially post exertional malaise. Just getting my heading around how to do this practically.
Hi! No I don't get that really drained fatigue feeling now, like someone's pulled the plug on my energy. I get tired before bedtime or if I've had a really bad night's sleep,which is normal. If I did get the fatigue symptoms it would indicate that what I'm doing or thinking at that moment is limiting me in some way, and needs exploring so it would be an opportunity.
I think they're is an element of re framing too. Like if i've just woken up, some sleepiness might be normal for a little while. But I was getting symptoms at other times. It's not about not getting the 'symptoms' it's about what insights you get and what you do differently when you get them. Keeping a symptom journal helped, to see your thought patterns when you get the symptoms. The Reverse Therapy book helped with that as a first step.
It's not easy, letting go of everything you ever learnt about cfs. When you're ready, you will make it happen. You're on this channel which is a great step. I agree with the other comment. The book started it but then gaining enough confidence to change my actions, thoughts and beliefs needed a specialised Reverse therapist. I only needed 2 sessions though and it wasn't that expensive. I don't get commission for this by the way. It might be that you find another path, just keep walking it.
Spoon theory,! No, I agree! The illness threatened to get really entrenched once I found out about pacing and spoon theory. Sometimes now I have more spoons left at the end of the day than I started with! They vary according to what I'm doing and mainly how I'm doing it and what I'm thinking!
Hi Raelan. I love your member channel, but it won't play like a regular you tube video. When the phone screen is off, it stops playing. Your non-member videos do play. Is there a setting you can change? Thanks!
Hi Leslie, I think background playback is a TH-cam Premium feature (ad-free videos, offline viewing and background play). Sometimes phone settings can be tricky - can you see if 'background app refresh' is enabled for your YT app?
Yes - you start fearing activity when you came from super active, hyper, hyper energy.....because you were abandoned in actual physical distress, from the medical community which was triggered from childhood into adulthood neglect during the worst time, eeeetc. Man, it's complicated, complex and deeeeep!
✅ STRUGGLING THROUGH LONG VIDEOS? Get weekly bullet point summaries straight to your inbox! Short, sweet, and designed for your energy envelope. 💌 mailchi.mp/3bd95045319b/raelan-agle
I got to a point where I welcomed my flares because it meant I was moving forward. I did titrate activity but always moved forward even if it was small steps. I'm now doing everything!!!
Wow!!!!! I'm so happy for you 🧡 🧡 🧡 🧡 🧡
It is only after four years of this I am realising CFS is caused by stress and anxiety. The body closes down (nervous system overload) after a long period of stress/trauma/illness. You think you are dealing with a hundred physical symptoms and the endless trips to the dr (who only look at the physical symptom you are presenting at that time) and journeys down internet rabbit holes only keep you in the very state you are desperate to get out of! I’m just starting my journey of changing my thought patterns and building up my confidence again and am now more hopeful of recovery. Thank you Anne and Raelan for your video which confirms that I seem to be on the right track now.
You've got this, Judy! 🧡 🧡
Yeah! Keep going on your path. There is so much to discover that's invaluable.
There is something like a hibernation mechanism going on. Why do animals slow down and sleep through the stressful time of winter?
Messages to brain/ danger and nothing for you out there- conserve energy.
Also, blocking things out is a self preservation mechanism- kind of like denial- and it may work for a time, but also not.
Lastly, there was a syndrome in Northern Europe- somewhere there were many refugee families undergoing severe hardship. Their kids would go into the equivalent of a sort of coma and no one knew why’s. When thi mg s got stabilized and families together they slowly came out.
Kind of like being frozen for self preservation.
absolutely love these interviews Raelan! I am now recovered from long covid and am now beginning training in mind/body coaching. This channel is so important.
@Butterflyintheskywhite I would also like to know!
How did you? Would love to know more
What worked for you?
So amazing to hear of your recovery Anne! I think Reverse Therapy is a tremendous book and it's helped me massively, I really wish more people knew of it! I'd say it's not a "mental" thing, but a bodymind thing (more akin to our subconscious / unconscious) - so it's not just thinking your way out of it with your conscious mind (most of us know "pushing through" isn't helpful and doesn't work) but it's a shift that happens at a much deeper level - akin to brain retraining, and being able to interpret your bodymind signals correctly (without our conscious mind interpreting them incorrectly, e.g. thinking we need to rest more when our body might be sending out symptoms as it's had enough of resting or doing something not enjoyable) - I really recommend people get the book, as he explains it well and you can try it for yourself to see the rapid results Anne was talking about, that I also experienced
Such a great explanation, thanks so much for sharing! 🧡 🧡
Mickel therapy is the same thing as both creators created the approach and then went their separate ways
Agree. Plus: Sad thing that it is always neglected that the brain at the end is a body-part.
Are you talking about the reverse therapy book? There are 2 on Amazon , which one is it ?
@@lorikendall2213 no, Dr John Eaton and Dr David Mickel created the therapy. Then they decided to go their separate ways. John creating reverse therapy and David continuing with mickel.
But the premise of both therapies is the same
Well done Anne. I am fully recovered now too. It's a wonderful feeling..
What was key in your opinion?
@333_Tarot
Practicing a positive mindset by building new dominant stories, such as, all is well. Using the Kinesthetic language to calm the old brain. Very simple if done often enough.
Thanks so much for sharing your story, Anne! It's a shame the Conventional Medical System can't help us more and then we wouldn't end up down loads of rabbit holes trying to get better. It's good to know about Alexandra Barton's book & also about Reverse Therapy! I've never heard of RT before & I'll be checking out the link. I'm so glad RT helped you and that you had a coach to guide you through it! Best Wishes to you both. 💝
Much appreciated, Jo. Agree 100%-RT is definitely worth checking out. 💝
Thank you, Anne, for sharing your story and recovery! I am so happy for you!🩷
20:27 is a great section! Currently navigating the symptoms and what is normal. Really retraining my beliefs at this point in my recovery. ❤ Also, I hated past jobs long before I was ill and was absolutely wiped out on the weekends. I easily worked a lot before illness (although truly too much) and was much happier and more energized all day.
This was so interesting. I have been working through the ANS Rewire Program since early January, which has changed my thinking in a similar way. Annoyingly I am having post-menopausal symptoms - low energy, aches/pains, stubborn weight gain, dizziness ….. Therefore, it is making it difficult to really enjoy my ‘recovery’ so far. I am doing more activity (even started slow running after a 19 year gap, until I dropped something on my foot and now limping about 🙄) and no longer identify as someone living with chronic pain/fatigue (withdrawn from all the social media and blogging I was doing). I am not using my Blue Badge (disabled parking pass in the UK). I love meeting new people and not talking about my health at all. I am 53 and it feels like a fresh start. Just need to balance my hormones now!
Wow, Ali! 🧡 🧡 Thanks so much for sharing your experience - super helpful!
Great, I think not identifying a someone with the illness is a huge step. I hate it when people say I'm on remission. Our words and thoughts about things matter hugely.
Congratulations Anna! Thanks Raelan, lovely interview and conversation going on.
Great interview! So much of my stress seems to come from trying to pace appropriately. Some recovery stories say pacing was so important and others, like this, say the opposite (which I resonate more with)…but I do find the subject confusing.
second this! I'm feeling maybe its a very personal balance of testing the waters even if it means the onset of symptoms but not going too far. for example, usually I do only an hour of activity per day but today I was like no let's do 2 hours, feel the backlash but being okay with it, and maybe in a few weeks of slight pushing and accepting, ill have improved my baseline. but I'm not going to go ahead and do 4 hours yet type of thing. I'm confused too 😕
I assume that safety is the underlying topic. For some people pacing creates safety because it is structured and gives them (illusionary) control. For me personally just like you said it totally stressed me out, I became so hyperfocused on it and freaked out once I "overdid", so I dropped the classique pacing and feel so much better. I still try to take things slower and give myself breaks.
What a wonderful interview! Very inspiring👏🙏
Great interview! I'm reading the Reverse Therapy book right now and it's like Dr. John Sarno's TMS but with a more robust explanation on emotions and what the body is trying to communicate.
I think there must be different underlying causes of me/cfs. I literally can get so tired after doing an activity that I literally can't do it again for a week, physically, it's not about belief. Getting an excruciating migraine after doing cardio for several days is real. But perhaps for this lady it was in her mind?
I can relate to many things in this video. I was programmed with the "be careful" messages as well. And also beliefs that I am too fragile, that its all physical, and have limited energy, so I better not do this that or the other. My body has felt trapped by this my whole life--I don't know what its like to be free of this mind control. But now after so many years of doing things to heal, I have come to the power of the mind and its beliefs, and am seeing this as the root of the dis-ease. I just now bought the Reverse Therapy book, and am going to see what that brings for me. Thank you for sharing this story 🌄
You're so welcome, Celeste! 🧡 "Reverse therapy" is such an insightful book, I'm sure you'll love it! 📕 🎉
I definitely needed to hear this. 👍👍
Glad it was helpful, Tim! 🧡 🧡
Im just feeling like I have something different as there's no way I could just go do what I want to. And I don't hear the neurological issues in these mind body recovery stories that I have. You don't push through severe neuropathy, nausea and migraines.
I’m not recovered or functioning by any means yet but I used the Visible app to help with pacing/monitoring my heart rate and was able to reign in my symptoms A LOT. I don’t know if that will help you but I thought I would put it here just in case it’s something you haven’t tried yet.
I felt the same way. The nervous system side of things has been important but I believe most of my symptoms have been rooted in physiological issues. For me one of the main culprits being mold illness (after 27 years of living in quite moldy homes). For other people its been lyme disease, other toxin buildup, etc. Don't doubt yourself!
I've done it with your condition s and heds t flares it I no but some of my symptoms have changed over decades minerals do help with fatigue more than pain best to look at fdn videos
@@annatomlinson1529do you happen to have hypomobility hypomobility makes us suseptabilty to mold Lyme etc
Keep listening to more of these stories. They Definitely talk about neurological problems and recovery.
I called myself "a Placbo junky" because I always "believe in the LAST treament" would be THE answer. For a while it would help.
Im beginning ti understand! My reaction to my fatigue just might be a bit too emotional and i think I'm hyper-vigilant to my bodys symptoms, because I'm trying to analyse and find a fix. I think my subconscious is a big old terrified baby, and it needs to grow up and understand it's not abandoned, or unloved! Mmmm ....much food for thought
Thank you so much, god bless you for giving us hope.🙏🏾
❤
What a great interview. We just keep learning!
hmm this is so difficult for me to believe that this is the solution for me or everyone. I once told myself for a whole year that I am not ill and I moved as much as I could. I went jogging, I was hiking, I went dancing etc. I was moving so much despitr being so exhausted with flu like symptoms and concentratiom problems... In the end I was terribly ill. I couldn walk alone, I couldnt talk, I couldn shower alone.. It was hell. I couldnt watch TV for 2 months. etc. So I don't think this is the solutiom for everyone sadly :( But I whish it would be
Thank you very much for this beautiful, informative interview! ❤❤❤
Glad you enjoyed it! 🧡 🧡
Many thanks Anna + Raelan!!!.Ithink you have solved my search for the solution + cause of my cfs. It all makes perfect sense to me now. I am going to do exactly what you suggest, and will share this vital info with others. You are both lovely,kind, caring ladies❤❤❤❤❤ Rosemary
So glad it helped! 🧡 🧡
Thank you, I believe you are correct. I'm thinking that I just need to get out and live!
You've got this, Glen! 🧡 🧡
'Don't overdo it'. Wow. When I heard that I had a lightbulb moment. My Mum, who had fatigue issues used to say that to me, not my brothers, all the time. It was suffocating. Reverse therapy is a great little book.
🧡 🧡
Very inspiring video! 🙏
Wow this was a really interesting interview ❤ really appreciate this 👏
Raelan I now understand why scuba diving helps people with ME/CFS. Many of the symptoms associated with CFS/ME and FM may, in fact, be the results of or indirectly related to an over-active immune response or hypersensitive nervous system. A substantial reduction in these symptoms may, therefore, occur with the down regulation or re-regulation of this over active immune system.Vertical immersion in water creates a significant pressure gradient that can enhance lymphatic flow up to the body and torso and into the thoracic duct which lies below the left clavicle. The pressure gradient effect acts to "transfuse" tissue fluid (lymph) back into the blood system at the level of the left subclavian vein (see figure). This auto-transfusion of excess immuno-reactive lymph fluid would provoke a down regulatory immune response which in time could result in a significant improvement of symptoms. This is called Hydrotherapy.
Wow, this is so interesting, Dianne 🧡 🧡 Thanks for sharing!
That's so interesting! I've been sleeping semi- upright on a big cushion every night, because of back problems, and I wonder if that's made things much worse ! My lymphatic system is not optimal - I have lipodema !
Wow, is that why I don't get tired in the pool??
So so interesting! Thank you for this comment!
I wonder if this person’s body had recovered but she hadn’t registered this recovery mentally - and the “reverse therapy,” actually Cognitive Behavioral Therapy, helped her realize it.
I have worked with children who have psychosomatic problems - they recover when you get the brain and body aligned.
Thank you Anne and Raelan. Great story❤️ I am hitting two years so I am ready for the magic 😊
The fact that you're here on this channel shows you've got an open mind to how you're going to recover. Keep going!
My aunt had ME since the 80s she passed off old age in 2018. I wish she would have seen these 😢
❤
❤
Very interesting topic. Pacing can be stressfull and lies the focus on the perspective of possible symptoms and consequences, hence it increases anxiety (with hormonal consequences, increased heart rate etc). Personally I am struggling with the method for my long covid which I experience since december 2023. It is clear that patients were overtrained by physiotherapist in the beginning of their illness in the beginning of the pandamic? These patients were trying to live their lives as they were used to. They had no expectancies about the consequences due to a lack of knowledge of the illness. Currently we are focussing on pacing in case of PEM. Acute crashes seem to be damaging to the brain and muscle damage is found in post covid patients after exercise. So I was just wondering to what extent this theory applies to long covid patients? I can imagine that pacing is necessary in the stage when the body is healing, but probably at some point a vicious circle is created by the mind (assuming the worst since this happend before and your cognitions are focussed on the risk of symptoms?). What are your reflections on this theory in the context of long covid/PEM?
Mind/body. What was going on with me and many others…we had a first ever surgery. I knew I was losing energy, but it was slow onset. Was I happy in life, not really.
Hormones play a role, along with deficiencies....so much part of it, but yes, another good one! Thank you
Hi again, it's called playing in the background, so the video should play, even if I switch to another app or have the screen off. Thanks!
Thanks for letting me know, Leslie! I'm not really sure what's going on here - could be any number of glitches. I hope it's just a temporary TH-cam hiccup!
Not sure im clear on this part: if it was a physical limitation you wouldnt need to gradually increase activity? Isnt that how we treat all physical limitations like a sprained ankle or an injured knee? Or do you mean limitation as in being disabled completely? Thanks for sharing.
OK good question! I didn't think it was clear at the time! I think it was about how gradual my increases in exercise were needing to be at the time.
Acute injuries are really different from chronic ones.
I knew I didn't have an acute injury to recover from and I became confident after the Reverse Therapy session that my body wasn't fragile or broken. I'd had enough medical investigations by then. I think whilst I had the belief I was fragile my mind could only cope with very careful, gradual steps,like 5% increase every week. This was recommended in the cfs group I went to but reinforced the belief that I was very fragile, ill and broken. I had no idea how I'd ever move from walking 200m a day to playing badminton for an hour or dancing all night because all the fears would kick in with that jump, which would create symptoms, which would result in even more avoidance and negative beliefs, and on and on. But once I changed my belief and ignored my fearful thoughts afterwards I played badminton that week, went dancing and hiking and felt great, and started to realise I was free. It was the right time for me,and the right circumstances to let go of my pattern.
I could probably talk for ages about the influence of the mind over the body!
@anneb7308 thanks so much for the response. That makes a lot of sense. Even though i havent found my healing solution, these recovery stories give me some hope that one day i can be better again.
@@bigredbass7898 I'm sure you will.
What if you just do too much for too long...?
I can't stay awake or concentrate long enough to listen to all of this. Can you please summarize what solutions they found next time?
I send out a weekly newsletter summarizing key points from the interviews. You can sign up using the link in the show notes, right under the video.
11:05 12:05 16:00 18:40 22:41 23:34
Great to hear about her recovery but there are many causes of CFS. I’ve had times where I went out and did something fun convinced that CFS was all in my head and then crashed a day or two later. I think that our stress and anxiety over symptoms wears us out as do latent viruses like Epstein-Barr which may come back when we are stressed or run down or tooth infections, mold, etc. which further affects our energy. So addressing the fear and not freaking out about symptoms is the first step while getting enough rest to heal from infections. And then gradually doing more while not being fearful.
I totally agree. The things that bring me joy also flare my symptoms. We're all different I suppose and pleased that lady has recovered.
exactly!! I would love to hear more recovery stories from peoole who had chronic ebv or where me cfs was directly claused my ebv. I too have reavtivated ebv for a few years now. the lab shows it. So its hard for me to believe that nervous system regularton etc will just get ebv down.
So what if it’s physical and mental. Mental therapy won’t work. Yes or no o
Do you have any success stories for people with mold illness who couldn’t tolerate tolerate the detox?
I've come a long way and I just had to go extremely slow. First I moved to a low-mold apartment, then started with like half a capsule of a binder, liver support, b vitamins, and focus on things like circadian rhythm, sun exposure, epsom salt baths, electrolytes. Doing very mild therapies to start the detox pathways moving again *very slowly*. Always starting anything with a tiny dose. Also focusing on lowering toxin intake so that my body had the capacity to handle moving out stored toxins -- can be expensive but things like moving to a low-mold apartment, swapping any toxic household products, air & water filters, getting lots of fresh air.
How do you know you have mold illness?
@@revelation1215 For me I guessed it when my symptoms almostly exactly matched others' I've read online, and I knew I had a history of really bad mold exposure. I just had every single symptom including the more specific ones like peeing all the time and feeling thirsty all the time (low anti-diuretic hormone), low blood pressure, terrible brain fog after moldy/yeasty foods, constant sinus issues, histamine issues, swollen esophagus, oral thrush, multiple other exterior fungal issues, feeling like a zombie and severe cognitive issues, etc etc. Once I knew mold illness was a thing, i saw that changes in my health matched up with living in different places. When I was able to stay in a low-mold place for a while, I started to feel a bit better. I also did some blood testing -- Cyrex Labs Array 12 which measures antibodies to like 25 common "stealth infections," and mine came back negative except for the 3 toxic molds which were sky-high. Also tests like TGIF-B1 which was off the charts for me.
@@annatomlinson1529 thank you for this! I have done most of these things except I don’t tolerate the binders. I do use glutathione and I live in a mold free environment with air filers and I get a lot of fresh air. I don’t have a thyroid or gallbladder so it’s complicating things a bit I think
16:00
Please Raelan , is the book by John Eaton ?
Hi Nibras, yes! If you open the description box under the video, you'll see the list of all things Anne mentioned.
Didn't he develop this with Dr Mickel and they parted company. Now called Reverse or Mickel Therapy. Dr Mickel was quite entertaining when I saw him 😂
Great interview. I would love to know if Anna is still experiencing symptoms and reframing each time or is just completely over it. Curious as I wake up with slight brain fog and fatigue, and especially post exertional malaise. Just getting my heading around how to do this practically.
Hi! No I don't get that really drained fatigue feeling now, like someone's pulled the plug on my energy. I get tired before bedtime or if I've had a really bad night's sleep,which is normal. If I did get the fatigue symptoms it would indicate that what I'm doing or thinking at that moment is limiting me in some way, and needs exploring so it would be an opportunity.
I think they're is an element of re framing too. Like if i've just woken up, some sleepiness might be normal for a little while. But I was getting symptoms at other times. It's not about not getting the 'symptoms' it's about what insights you get and what you do differently when you get them. Keeping a symptom journal helped, to see your thought patterns when you get the symptoms. The Reverse Therapy book helped with that as a first step.
Does this ring true for Long Covid Fatigue? Or are they still thinking that some of the virus is circulating through our bodies?
Worked for my long covid.
Not fully recovered yet, but I went from no progress to some amazing progress with this!
@@kea7721 What did you do exactly?
@@breatheslow356 And you did what she said in the video?
So crazy! I love and hate this approach bc how do you actually do it 😂
getting the Reverse Therapy book on Amazon really helped me! a mind-body coach then helped me take it further
It's not easy, letting go of everything you ever learnt about cfs. When you're ready, you will make it happen. You're on this channel which is a great step. I agree with the other comment. The book started it but then gaining enough confidence to change my actions, thoughts and beliefs needed a specialised Reverse therapist. I only needed 2 sessions though and it wasn't that expensive. I don't get commission for this by the way. It might be that you find another path, just keep walking it.
We’re no spoonies!!
🧡 🧡 🧡 🧡 🧡
Spoon theory,! No, I agree! The illness threatened to get really entrenched once I found out about pacing and spoon theory. Sometimes now I have more spoons left at the end of the day than I started with! They vary according to what I'm doing and mainly how I'm doing it and what I'm thinking!
Hi Raelan. I love your member channel, but it won't play like a regular you tube video. When the phone screen is off, it stops playing. Your non-member videos do play. Is there a setting you can change? Thanks!
Hi Leslie, I think background playback is a TH-cam Premium feature (ad-free videos, offline viewing and background play). Sometimes phone settings can be tricky - can you see if 'background app refresh' is enabled for your YT app?
Yes - you start fearing activity when you came from super active, hyper, hyper energy.....because you were abandoned in actual physical distress, from the medical community which was triggered from childhood into adulthood neglect during the worst time, eeeetc. Man, it's complicated, complex and deeeeep!
Are you saying it’s all in your head?
No, it's not. It's a nervous system injury.
Its mickel .
Sounds like she just had burnout quite badly and after a rest she was fine?
What is the mysterious unnamed book and author? Video is useless to me without this!
The book title, author, and all the links are right here in the description box below the video.
@@RaelanAglethere must be a TH-cam bug as I can’t see your description or bio. It just refreshes the video…