Akathisia: In Their Own Words

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  • เผยแพร่เมื่อ 26 พ.ย. 2024

ความคิดเห็น • 69

  • @jaimeleecreta8098
    @jaimeleecreta8098 2 ปีที่แล้ว +38

    Im glad this video was made, but 911 and hospitals are absolutely no help! If they haphazardly slap a new diagnosis on you as "bi-polar" or having a manic episode, you are now labeled permanently on a hospital record and they try to add more Akathesia inducing medications. It took 4 years after being polydrugged for me to return to normal again. I'm am now a Neuroscience major and I plan of using my education to find more answers and raise awareness.

    • @mazrio128
      @mazrio128 2 ปีที่แล้ว +3

      Proud of you for kicking ass even though I don’t even know you I’ve experienced this also

    • @theanxiousbench
      @theanxiousbench ปีที่แล้ว +3

      Very true. I went to the ER, and to a family doctor.. they had no idea what was happening.. they just a made a few guesses because they didn't want to look uneducated.I eventually went a psych doc and was given small amounts of SSRI's.. which made me even more sick... finally after weeks of this hell it began to subside...

  • @paulopezz
    @paulopezz 2 ปีที่แล้ว +16

    Akathisia is pure hell beyond description.
    I still suffer tardive akathisia, as well as lots of other symptoms, years after being told it was safe to go cold turkey off prozac by my gp and a psychiatrist.
    I still have severe agitation, axiety, ocd, intrusive thoughts, buzzing and burning in all my nerves, muscles and joints, and my head.
    As well as lots and lots of other very severe physical and mental symptoms.
    Caused by the psychiatric drugs.
    I wish i could give GPs and psychiatrists the brutal symptoms of neurotoxicity caused by psychiatric drugs , even just for 1 day.
    When they still try to deny it really happens.
    So they could feel the pure torture they inflict on their innocent patients.

    • @grv91vr23
      @grv91vr23 10 หลายเดือนก่อน +1

      Any little improvement over time?

  • @NeuroPulse
    @NeuroPulse 3 ปีที่แล้ว +20

    Akathisia is the real deal. Spread the word.

  • @karlaclements4701
    @karlaclements4701 3 ปีที่แล้ว +12

    Akathesia is mental agony. The brain jumps around like bare feet on a hot sidewalk...one foot up while the other burns...and on an on...thank God for the loving support system that helped me survive.

  • @PowerFOOLThunderCLOWN
    @PowerFOOLThunderCLOWN 3 ปีที่แล้ว +8

    TBI 2015. On an off seizure meds. Gabapentenoids, benzo's, keppra, this that and the other one!🤦! Whether it is drug withdrawal from tapering to switch to another med, dosage increases, running out of script on weekend🤦, I suffer from this all the time. It is the worst torment. Horrible.

  • @walkashland
    @walkashland 7 หลายเดือนก่อน +5

    I have lived with severe akathisia for 5 years. This video does a HORRIBLE job conveying what this is like, and what families should do. Some people, myself included, are literally maimed by these meds. My body has been destroyed, and I know my akathisia is permanent. No amount of hope or “believing things can get better” are going to save me.
    Advising people to go to the ER is so stupid and reckless. It makes my blood boil when MISSD suggests this. Every single time we’ve gone to the ER, we’ve been met with dangerous advice, gaslighting, misunderstanding, or a combination of all of these things.
    The only way to prevent people from getting akathisia is to AVOID the drugs that cause it altogether. We need to be teaching people that there are viable alternatives to the meds that cause this permanent hell.
    Do better, MISSD.

    • @Iliketurtlezz
      @Iliketurtlezz 5 หลายเดือนก่อน +2

      Hello brother.
      Please fight for your life. I had enough after 3 years of pure torture and instated on a small dosage of lexapro which resolved 60% of the severity. Hope youre still holding on.

  • @paper3691
    @paper3691 3 ปีที่แล้ว +8

    An excellent video. Thank you. ✅

  • @mazrio128
    @mazrio128 2 ปีที่แล้ว +1

    Thank you so much for this those of us who know know and you are bringing awareness thank you so much

  • @theanxiousbench
    @theanxiousbench ปีที่แล้ว +6

    I had severe Akithesia when I suddenly stopped taking Kratom. It felt like someone stuck a high voltage cattle-prod in my back and left it there. The pain and severe terror were almost impossible to bear. I did not know Kratom could do that to a person. To this day, I still feel traumatized from those scary days.

    • @MsLuciMahon
      @MsLuciMahon ปีที่แล้ว +2

      I'm sorry to hear that.

    • @theanxiousbench
      @theanxiousbench ปีที่แล้ว +2

      @@MsLuciMahon Thank you...I appreciate that so much..

    • @Ilmsyou
      @Ilmsyou 9 หลายเดือนก่อน +2

      @@theanxiousbenchI’m going through the same. How many years did your akathisia last?

    • @theanxiousbench
      @theanxiousbench 9 หลายเดือนก่อน

      @@Ilmsyou it lasted 4 months

    • @sk8n854
      @sk8n854 2 หลายเดือนก่อน +5

      Kratom caused akathisia for me as well. But it wasn't from stopping it. It was from taking it. Mixed with an antidepressant. I then stopped the kratom but it didn't go away. Tried to restabilize on just the antidepressant to no avail so now I'm stuck tapering off of it through absolute hell. There are absolutely no words to describe how awful of a condition this is.

  • @lovewenwin
    @lovewenwin 2 ปีที่แล้ว +2

    I've been on and off psychiatric drugs since my teenage years. I would usually get on them and as soon as I felt well enough I would get off of them. While trying to figure out how to stop the roller coaster of my life going up and down.
    I've been on the meds for about 3 weeks and I started talking about getting off of them. My psychiatric doctor looked me dead in my eyes and said Wendy you just started the medication and you're already talking about getting off of them Do you think that is why you have this roller coaster in your life with depression. So I stayed on the medication for about 2 and 1/2 years completely ruined my life. I went from up and down to completely down. It wasn't until I had a really bad episode of akathisia and found out the vocabulary for my symptoms that I came down this rabbit hole.
    I completely regret associating with the mental health community and seeking out help for mental health & emotional issues.
    None of these cautionary videos ever came up when I was looking for studies or what to expect with my psychiatric drugs. Everything said it was safe and that you would be experiencing depression or suicidal ideation anxiety but nothing about akathisia and the other ET disorders. When you hear those symptoms without the context of what an ET disorder is like akathisia you just believe that once you get off the meds you'll go back to your same depressive / anxiety world that you just came from. Which is not true akathisia and depression or not the same thing akathisia and anxiousness not the same thing akathisia & withdrawal are not the same thing. to use those interchangeably it's very dangerous. Akathisia + medical gas lighting = ⚰️☠️

  • @smilemor-phony5964
    @smilemor-phony5964 3 ปีที่แล้ว +10

    The word ‘medication’ refers to psychiatric medications/drugs.
    The new DSM-5 would also include:
    Substance/Medication-Induced Psychotic Disorder
    Substance/Medication-Induced Depressive Disorder
    Substance/Medication-Induced Anxiety Disorder
    Substance/Medication-Induced Obsessive Compulsive, and Related Disorder
    Substance/Medication-Induced Sleep Disorder
    Sedative-Hypnotic- or Anxiolytic-Related Disorders
    Substance/Medication-Induced Neurocognitive Disorder.
    We experience every one of these during psychiatric drug withdrawals that can last months, and years. These are not fun places to be. Only Doctors will never admit to their patient that the very drug he’s prescribing could very wll be mentally torturing or killing their patient. Instead patients are blamed & shamed for their disabling symptoms and drug-induced, very serious Disorders and totally disregarded and ignored. This is what they call ‘medical’ care is in America where it is legal to murder for profit. Just ask the Sackler family or any pharmaceutical executive.

  • @daylebluegrassprodigyhurn7904
    @daylebluegrassprodigyhurn7904 8 หลายเดือนก่อน +1

    I'm kinda having a panic attack, I'm just finding out I had akathisia about 6 months ago because I started abusing xanax and tramadol. The hospital or the GP didn't know what was going on, blood poisoning was mentioned up but the next day my bloods where fine. It lasted just under 2 weeks and was the worse I've ever felt in my life, never slept never had any food or drink, I thought suicide was the only way out, although I often thought that, I didn't think it's time for me to get out! Having a loved one around made it a little bit easier

  • @amiinia
    @amiinia 2 หลายเดือนก่อน +1

    I am very exhausted from having akathisia, this is the fifth month of suffering and it is not going away. What is the probability that it will be chronic? I often think about suicide, I’m afraid that one terrible day my body and psyche won’t be able to handle it.

  • @MsLuciMahon
    @MsLuciMahon 2 ปีที่แล้ว +4

    Akathisia is absolute Hell!

  • @NeuroPulse
    @NeuroPulse 3 ปีที่แล้ว +4

    I have low blood sugar from skipping lunch and I can't bear to look at people because I'm positive I will mistreat them. I can't even imagine the pain of akathisia, this is a broken nail by comparison.

    • @EspinosaFilms
      @EspinosaFilms หลายเดือนก่อน

      From skipping lunch? That can’t be the reason

  • @goat2503
    @goat2503 3 ปีที่แล้ว +9

    I have had akathisia for two months after an IV injection of 10mg metaclopromide (reglan, maxalon) . I also have tremors over my entire body. I feel like my brain has been damaged and I can’t work or think clearly. Everything is so stiff and I just miss the old me. I don’t know if I’ll ever get better

    • @amiinia
      @amiinia 2 หลายเดือนก่อน

      Are you better now?

  • @strongwallers
    @strongwallers 3 ปีที่แล้ว +14

    Warn, warn, warn !

  • @davidbernardleevuchich3426
    @davidbernardleevuchich3426 2 ปีที่แล้ว +3

    Are any of them still alive ? There are worse things than death.

  • @1beverleysusan
    @1beverleysusan ปีที่แล้ว +5

    Too bad there's 'no' treatment for 23 years of Paxil Withdrawal.

    • @grv91vr23
      @grv91vr23 ปีที่แล้ว

      Which symptoms? Not improved at all?

    • @EspinosaFilms
      @EspinosaFilms หลายเดือนก่อน

      Try low carb or carnivore diet

  • @andyharrier
    @andyharrier 3 ปีที่แล้ว

    I'm living with it right now with no treatment cuz it's the weekend it really sucks but the Benadryl is taking the edge off

  • @sk8n854
    @sk8n854 4 หลายเดือนก่อน +3

    Treated with what? There are no treatments. It all makes it worse.

    • @Creep_tv1998
      @Creep_tv1998 2 หลายเดือนก่อน

      There is , am a surviver and you might think I was went to a psychtrist and got prescribed no I was given a shot and to make things worst where am from akathisia doesn't exist no one knows about it am the first person in my hometown to have and make my people aware about it . Because my hometown never heard that word akathisia they thought I was going crazy soke people thought I had the devil inside, they took me to get more mental drugs got worse akathisia, and worse I had it 3 times and those 3 times I found something that works I ended up meeting a very educated advice psychtrist he said he study the brain apparently he was studying akathisia he told me that he knew I wasn't crazy and to not listen to anyone , he said I was very smart to know what I had and was strong for Going thur it , but he told me I been testing something and I think it would work , he said there is a cure because he already gave this to 2 other patients with akathisia so he gave me 20mg of propranolol and 600mg of gabapentin, a week from taking this I felt like my old self I started eatting , sleeping, having conversations with my family again going to the park to play but another akathisia point strike I took vitamins for extra energy I started to work out little did I know those vitamins for energy that you find in fat burners were in it i was heartbroken but I remembered what I had under my bed I had some left over pills from my last akathisia experience so I took them and I was back on my feet again I wanna spread this to more people I am a film major and am writting a film that will expand this further we need more people to know about akathisia and to spread this recipe I have to help those going thur it I won't stop until akathisia is know as much as people know about cancers

  • @akalucinda8821
    @akalucinda8821 2 ปีที่แล้ว

    Bravo. Ty

  • @lnmemoryofjohnmordaunt7386
    @lnmemoryofjohnmordaunt7386 2 ปีที่แล้ว +3

    These people are describing reactivate depression which is a perfectly healthy response to negative circumstances beyond our control. It's ludicrous that health professionals are so quick to prescribe toxic substances in these situations. They really need to talk to their patients more and drug them less.

  • @joycejnn
    @joycejnn 3 ปีที่แล้ว

    Akthesia caused by antidepressants only last weeks

    • @joycejnn
      @joycejnn 3 ปีที่แล้ว

      @Marcello Romano lasted for three weeks for me and then the anti dress ants started to work their wonders

    • @sk8n854
      @sk8n854 3 ปีที่แล้ว +20

      @@joycejnn there is plenty of evidence. Pages and pages and pages of people suffering from long term akathisia caused by these drugs. Support groups are filled with their stories. I personally knew a few that didn't survive it. I am one that did survive it(barely) and I used to be think the same as you. Hopefully, you don't ever get to go through what I did. Really, seriously wouldn't wish it on anybody. Psychotropic meds should be absolute last resort but they're handed out for mild conditions all of the time which could be dealt with in many other ways.

    • @BrandonsHealthJourney
      @BrandonsHealthJourney 3 ปีที่แล้ว +17

      @@joycejnn that's not true. I've been suffering from akathisia for over a year now. Many people suffer for years. Your experience doesn't make it true to everyone. That's called survivor bias. You have to look outside of yourself and see what's happening to others and the data. Even WebMD can give you an answer that it can last 6 months or more.

    • @goat2503
      @goat2503 3 ปีที่แล้ว +7

      @@joycejnn I’m glad they worked for you Joyce.. the issue is that for many these drugs are very dangerous... and what we are calling for is for patients to be educated about these risks.. because I can tell you now .. I wouldn’t have had an anti nausea injection had I known it would cause akathisia and Tardive movement disorders from just one dose. I had no prior history of mental health issues and I’m 33. Now I’m a basket case because of one dose of a dopamine antagonist.

    • @sk8n854
      @sk8n854 3 ปีที่แล้ว +7

      @@goat2503 hey. The good news is that it's typically not permanent. In fact it is very rare for it to leave any permanent effects whatsoever. I'm just about good as new now except some lingering mild tinnitus. Working again, going back to school in August.