Your video really affected me. I wish we could have a video of this with you speaking first, and your ice bucket challenge at the end. You speaking about your personal experiences is what is most important. I wish you lots of happy, healthy years.
Hello, TH-camrs! You guys don't know what all the support I've been reading on here means to me. Thank you all for your kindness and encouragement!!!!! I know haters are gonna hate no matter what I say, but I've noticed a number of people mentioning ALS would stop if those of us afflicted simply wouldn't have kids. It's really sad, but that's just not true. The majority of ALS patients have no family history at all, it's a complete surprise :( Anyway, to all of you in this with me, or close to someone who is, we have to keep on fighting! Change can happen, miracles are possible, and we ARE worth saving :) Thank ALL of you so much for watching, sharing, taking the challenge, and supporting the cause. It means *SO* much to me and my family
Anthony, thank you for sharing your story with us today at the LRF Ed Forum. You have shown it only takes one person to help start the wave of change. I wish you the best of luck in your continued efforts and battles.
Oh, Anthony Anthony... Your video made me laugh and cry :( I really want to give you a hug..... -And that's probably also something you need in this hard time of your life :/
You have no idea how f-ing hard I cried after this. You are worth saving. Everyone is. You are amazing to stand up and speak out about ALS. I personally regret it with my life, but unfortunately my family was not able to donate more than $100.. I'm so sorry we didn't donate more. My prays and thoughts are with u Anthony. Thank you so much for this. >3
I'm watching this 4 years after you posted your comment. I'm crying pretty hard as well. And, I agree, he is definitely worth saving! Every single person is worthy of saving!! I donated 5 years ago, 4 years ago and I just donated again.
I want to hug you so hard. You're so strong, and so courageous. Fuck anyone who has anything to say against this movement, and I can't believe that I'm reading negativity in the comments about this. Get over yourselves. It isn't about you or being uncomfortable at his display of emotion. He is entitled to them, he's entitled to fear, and you just sit there and watch it and stop being a shit for once in your life. He deserves love and support, just like you would if you were in his shoes.
I would take an ice bucket every day for the rest of my life to see you healed. Maybe, just maybe this global Ice bucket challenge will finally give research the feet it needs to find the cure. I am convinced the cure is out there, we just need to find it. My thoughts and prayers are with you. You are not alone in this fight!
wonder how much the #foodsupply and #standardamericandiet has to do with it. A lot of illnesses including #autoimmunedisorders are being linked back to gmo's, pesticides, grains (due to change in processing from olden times - aka sprouting) etc. They won't find a cure until the government stops censoring research and buying trials and studies.
Please don't take this the wrong way, but I think you might want to bring this to your attention (if you haven't already). Have you considered stopping the chain? As in, don't let another person live through what everyone in your family before you has lived through. Don't have kids. Remove this disease from the genetic pool.
Doreen Marie You don't see his point? It runs in the family. If he had kids, there would be a really high chance of them having to go through the same, horrifying experience. Not to mention that it might not be too long before he would be too weak to care for them. If he wanted to raise a child, he could still adopt, as there are plenty of kids out there needing homes anyway. Better to give a poor kid a home than to watch your own grow up, knowing that they will probably develop ALS too. Maybe Abe was a bit harsh in saying it, but his idea is still valid.
ALS is a genetic mutation. There are normal healthy people with this gene inside their system. Which means you could be a carrier. Even if we kill everyone that has some type of muscular atrophy disease there is a chance that another mutation that can occur that can causes these exact same effects. Nature sucks tbh... always trying to kill you...
Pie42795 Yea, I agree with your point. It's one of those things that borders on not-ethical, but makes a lot of sense. Many people just comment based on their gut feelings, and so you have comments like that.
I did the Challenge, but was totally unaware of what ALS even was! If I had seen this video a couple days ago, my video would of been a little bit different. I seriously was brought to tears watching this, and I truly hope something happens and a cure is found some day soon!
I'm going to donate $20 cause right now that's all I can with me being only 14 and I don't have a job yet. But thank you for posting this video it left a impact.
Thanks for making this video. It's so powerful and it will definitely make a difference. I did the challenge and donated, and I'll share your video. Take care
Thanks for making this video man, I'm sure some people are just doing the challenge not realizing what its really for, when i did this challenge i donated and am encouraging other people to do so as well its fun and for a good cause
I feel so bad for your family. A teacher at my school was diagnosed with ALS years ago, and a lot of us loved her so much. But she recently passed. I'm so sorry about your family, it kills me inside that so many people have to go through this. This video is an inspiration. So thank you. Thank you for talking about it. I've sent it to my family and friends around the world.
Bro, I can see the passion in your eyes. you make a difference with this. I have known what ALS is and it's effects but hearing/seeing you talk about it with first-hand experience shows me just how much damage it can do. Be strong man, and know this video spread a strong message to me and I am sure to others.
hugs and love to you and your family. 30,000 people in America is 30,000 too many to go through what you will go through. Do not apologise for being honest and putting across the real effects of this disease. Thank you to your mother for being in the video also. Knowledge is strength and you are teaching so many with this video.
Anthony Carbajal my partner has a condition that has affected many people in her family that is devastating and degenerative just like ALS - the rawness of your message and the feeling of hope and strength it has given me has made my day. Thank you brother.
I haven't seen anyone irritated or frustrated with these challenges. You go on and do your thing, baby. And don't get frustrated when people don't want to hear about how scary ALS is. We have cancer (I had it, myself) and Parkinson's in our family (just lost my grandfather a couple months ago). I have these two things and Alzheimer's where I help my friend raise money for her dad who died a couple of years ago. Sometimes a lot gets dumped on your plate and people deserve some days where they don't have more traumatic things to think about. Sometimes you need a few days to just bury your head in the sand. Everyone has their own thing they have to fight for and this fight is yours. So keep fighting, sweetie. We're listening. It may take some a little longer, but we're listening. Good luck to you, *hug*
Your story made me want to live, I've been feeling really suicidal lately. And when I saw this video, it was so inspiring that Anthony is fighting for his life, while I'm giving up on life. It's not fair at all. Thank you Anthony, your story really inspired me to live a day. Now lets kick some ALS butt!!
Does anyone else think it is incredibly selfish to choose to have children when you know there is a high possibility of passing on this disease? His grandmother had it, his mother has it, he has it. How can you choose to have children when you know you will be passing such a horrific disease to them?
I agree, it may seem harsh to say "don't have kids" but if you have such a terrible disease that can be passed on to your children then you probably shouldn't. I honestly think it should be illegal (if you know you have it)
Often you have had your children before you've been diagnosed. Only in recent years with new testing are earlier diagnosis' made. Making it illegal for someone to have children is a ridiculous idea, and there is no guarantee that it WILL be passed onto your children. This video was incredibly moving and having seen first hand what motor neurone diseases can do to people, both professionally and personally, I can't fault any exposure and fundraising for the cause.
Meowtro If you can't afford to feed or house your children, you shouldn't have them either.....should that be illegal too? Forced abortions, adoptions or tying tubes, is that how we solve other peoples problems now? Modern science has discovered that environment is more influential than GENES in determine how cells grow. Delta Petra is partially correct that diet has more influence than most give credit for, but not the only factor of health. Disease is much more likely when a body LACKS NUTRIENTS, has too many TOXINS, and the immune system is weak from stress, fear or a lack of self-integrity. Which brings me to the biggest overlooked piece of health, BELIEF. Big drug companies still get frustrated when their new expensive drugs are outperformed by placebo pills that work about 1/3 of the time without side effects. If you do not believe that you can heal, no doctor, diet or drug will be of much help.
levelupohio Knowledge of this disease was pretty limited until recent years. It's quite probable that when his mother bore children, she was not aware of how it all works. There's virtually no way his grandmother could have known. True, there are many people out there who still have kids knowing they have a high probability of passing on genetic diseases and I disagree with that choice. Just pointing out that it's unlikely in this case that it was an informed choice.
No matter the comments left on this video, this is important and touching. I was already aware of the disease since the age of 6, due to the fact that my grandmother had it. Please know that I am glad you made this video. I know your fear. Be strong.
You shouldn't have to apologize about getting emotional, Anthony! It's such a shame that you have ALS but hopefully one day, a cure will be found and I hope it kicks the absolute shit out of this crippling disease! Such a brave video, (handshake, hug and handshake again!) Make the most of what time you have left! :)
Graet Wyan, I agree with you. My english is not well , but Anthony bless you and your families with love and I did share your video in Hong Kong and I hope that more people know about ALS and more love and respect in the world.
Hey, I'm from Denmark and my father also had ALS. He died around the time that you made this film. I was really inspired by your video, and showed it to my school, and told them my story about ALS. So with your help, we were a whole school in one video and it reached a lot of people. I know you touched me and a lot of other people with this video. And thank you for being so brave to make this video, because I know how it's like to be scared of ALS.
Anthony you are a great voice for the ALS community and you are a very courageous person!! I truly believe that the ice bucket challenge is the movement that WILL make a difference and will be the catalyst that leads to a cure. Anthony your efforts and advocacy are and will continue to make a HUGE difference. Stay strong and keep up the fight!
Thank you for sharing. I have felt the same way about Lupus..for my entire life. It runs in my family & shortly after going into the military at age 17, I elected to go get screened, that's how scared I was!! I do not have lupus, I have friends and family members living with it though. I pray that more will be done to cure diseases that scare the crap out of us than just research & I'm glad people are coming together to raise awareness. Love & Light, HopeG. #alsawareness #lupusawareness #raiseawarenessfordepression
Praying for a cure soon. Your video is encouraging people to become more educated and aware. Hopefully this awareness will be the change needed to bring about a cure sooner. My aunt has ALS and my cousin posted your video so everyone he knows can understand more clearly what this disease does to the people who have it and their families. Thank you and I pray for peace and courage and much love and support for you and most importantly a CURE soon!
My father had ALS. He passed away almost three years ago. It was very hard to watch my best friend slowly loose his independence and I hardly remember a time when he could walk. To everyone affected by ALS, just know you are the strongest people out there
my grand mother and her mother had this disease my mother was so long as i remember scared to get this disease, i never thought about it that i had a chance to get it but because of all these videos i m thinking about it, its great what u guys are all doing
Dude you probable don't even realise this And I know its little comfort to what tour going threw But you are a true hero you are amazing for doing this video With this youli have put a mark on the world A mark in history and your name will probably live threw the ages Good for you and I'm sorry for the rest :(
Hi Anthony. You & your wife came out to Summit Career College in Colton, CA today (11/26/14) to talk with the nursing students there about ALS. I was there with my son on an invite from one of the nursing instructors there on campus. I just want to thank you for sharing awareness with everyone today about ALS. I think it is a very brave & noble thing you are doing. It is very inspiring to me how you are trying to remain as upbeat & positive about life as you can despite your recent diagnosis with ALS. You are a truly remarkable individual as I am sure it is not easy. The face you put on for us today on campus was a brave one..not showing the emotions I would've expected to see that are in this video. I just want to say I wish you the best with your treatment & your journey & want to thank you for taking the time to take a picture with my son & I before we left today..when I look at it, I will remember your strength & courage & it will forever remind me of why I chose nursing as my profession..it is very uplifting & memorable..the impact you have on others. It was a pleasure speaking with your wife today as well..a joy to meet you both! Thank you! :)
Honestly, not to be rude or anything. But if your whole family has it, maybe it would be a good idea to seriously consider not having children. You can always adopt. I personally wouldn't be able to have a child knowing that he would have a strong possibility of having ALS because of my genetics. It IS a genetic disease, and you have full ability to stop it from continuing in the genetic pool.
I think his grandma got it after he was born so they didn't know about the disease yet. I'm sure all his family members don't plan in having kids now that they know they have a chance of getting this disease.
you know i've seen loads of my friends jumping on the band wagon doing this bucket ice challenge, if i hadnt bothered looking it up then i would never really know what was going on. i got pretty annoyed that it kept popping up, not the challenge in it self, but the fact that all they done is nominate and pour water on theirself with no further mention of the illness. no mention of how to donate, or how to help. if only each challenge video just mention the website, then maybe the community would have double the donation. some people are just sheeps, they dont know what theyre doing...
I watched a couple of ice bucket challenges when it first started that had no mention of a charity, and eventually I googled wtf was going on, and learned it was for charity including ALS. So the bare bones ice challenge with no mention of ALS still did it's job, it brought ALS to my attention. So it still works.
SarangKae 사랑캐 Exactly. Most people doing this ARE NOT doing this FOR ALS or to donate, or to help anyone. I just watched 6 videos on my news feed from Friends of Friends on facebook that proves that theory (they said nothing about donating to anyone... They just challenged their friends to "be tough and do it better"... I've watched a lot more than those 6 coming to this day, but now I'm just done watching. I like that ALS is getting the money they need, but most of these people WOULDN'T donate even if they knew about ALS if the Ice Bucket challenge wasn't making them feel important. But I'm glad that ALS is getting the money, even though it has to use this kind of thing because a lot of people are backwards =] In the end... I don't care about those people who don't want to take the time to understand ALS, as long as they keep donating then hopefully we will have a consistent treatment for it... Since our country is too scared to invest in preserving lives.
Hi Anthony. Thank you so much for bring ALS awareness to the world. What you do is a miracle. Many many people dont know ALS or even understand it. The ice bucket challenges is amazing. to see so many people all over the world doing the challenge and people is getting aware of this serious illness. My sister is 27 years old and is so far in the illness. we have been told there is nothing doctors can do for her anymore. we were told she has about a year left with us. see her like this person that use to be my sister is killing every bit of me every day. She cant do anything for herself anymore. This illness is taking the most amazing person that i have in my life away. I know that with a matter of time my time will also come. I am lucky so far to show no signs yet. so for the bottom of my heart and from deep with in my soul i so thank you again for the awareness you have started. I pray for you that you will stay strong in a difficult time ahead. my heart, soul and mind is with you my friend. xxxxxxx
I have ALS I was diagnosed with it in June of this year. Dr. Vota of VCU diagnosed me. He runs the clinic for ALS patients and he is wonderful! I pray every night for a cure so I can live with my very special husband for a long time. Of course it started with my mouth and I am an art teacher. It started for me in December of 2012.
I am truly disgusted by some of the negative comments on here. Did you even watch the whole thing?? Seriously, fuck off people talking shit!!!! To Anthony Carabajal, I just wanted to hug you and I cried with you. At first I was laughing hysterically, thinking what a character you are. Being able to makes us laugh like that is a real gift specially when seeing how it is really affecting you. I have MS which is not nearly as devastating as what you are going through. There is nothing I can say or do, I am just so sorry this is happening to you and others. I truly hope the 20+ millions raised will help, it's not fair that it hasn't been front and center in diseases to fight for. Well it is now!!! I won't wish you good luck, for that would be insulting. I just hope you have lots of support and won't go through this alone. Big hugs and lots of love to you!!
They're mostly trolls taking advantage of the popularity this video is getting. The best thing to do is not reply to them. If everyone ignored them they would have no reason to troll.
I've already done the challange a several times and donated to My grandma past this summer in ALS and if you haven't been around it you have no fucking idea of the feeling. It wasn't her past that hurts me the most, it's the thing that I'm sitting there next to her and have no idea what to do to make the pain any less for her. The worst thing is you want to help but you can't because it hurts even more. I loved being around her, she was and still is one of my greatest rolemodels in life just because she walked through one of the painfullest things you can go through but didn't give up. I hope that everyone with ALS will do the same, don't quit. I'm here, everyone you love are there. That's what's importent, smile as often as you, enjoy everything while you still can because ypu only have one chance. Promise me that you don't spoil it
To be honest I have to blame the mother, i mean, if you know you have ALS and it runs in your family just don't have children. There a so many orphans out there that you can adopt and if you do have child your only making their lives worse. EDIT: Ok people. I have thoroughly read through all the the replies and I think this has gotten out of hand. I will address all of these topics. This topic is ENTIRELY an issue about morality, ethics, values and philosophy so prepare to keep an open-minded view. Keep in mind I and NOT making a statement, this is only an opinion. First of all, I'd like to reword the opinion "If you know you have a hereditary disease/disorder, it is not advisable to have children", this applies to the WHOLE populus, not just ALS and BOTH males and females. I also state that because the mother and grandmother in the above video had no knowledge of the ALS, it is NOT in anyway, shape or form their fault. Point 1. I understand that life is the greatest gift worth giving, BUT is a short life or a life with terrible pain and hardship which is CERTAIN the same? Point 2. Adoption is always available and in addition to, giving a child who would have gone through a lot of pain, a same home and loving environment, there really is no difference, we are people. I also understand that raising a child not from you can be less joyful to some people, but i believe that this point of view is not logical and more emotional and tied with primitive behaviors of reproduction. Point 3. The statement above is only targeting diseases and disorders that are SEVERELY life altering and changing and incurable. Basically, what I am saying is that, is bringing a child into this world with a life-threatening disease the same as bringing a child into this world and being the cause of a life-threatening disease they got. Do you think the man in the video above would want to risk his children with same pain he got? Also please don't reply further, for any inquiries please private message me. :)
Man fuck you. Who the fuck knew it would run in their family? As you can tell he knew his grandma before she was even diagnose with ALS, that means she didn't know her daughter would get it cause it came suddenly to her after her daughter was born. His own mother didn't get it until he was in high school! They didn't know!!
AlienCow6991 That's not what i meant. Of course it's not their fault if they didn't know and it's very unfortunate that there is no diagnosis for this. Before i was under the impression that the grandmother had ALS before having children. Anyway, I still support my original statement, IF you know you have a hereditary disease, it's very selfish to have children. At least see a genetic counselor IMO.
satish pydikondala IMO it is if you know there is a chance for them to get the disease. It is not your risk to take as a mother, as you are affecting their life more than yours.
There's not much point in being so narrow minded, not when most people don't even know they carry any illness until its passed on. His mother didn't even know till he was in high school, she probably would have done things differently if she did. Judging by how wonderful she raised her son she would've wanted to save him from the pain. But for all the what ifs we have a kind man here now that's raising awareness, finding cures is the real answer, not hiding the problem hoping it doesn't surface.
This has been filling my Tumblr dash for a week now, and holy hell... I haven't cried in....I don't remember the last time I cried.... But this.....This made me cry. I'll do the challenge, because I had no idea how much it meant to people. I want to make difference too. So, Eren, Levi, Peace, Uta, Iggy, I hope you guys look at this.
If you do the challenge, isn't that means you'll donate less? Instead wasting water by doing the challenge, why don't you just donate with any money you're willing to donate? Don't care how much, but I'm sure it'll help & give hope to the people who suffer from ALS.
then no one would see the video of the celebrity doing the challenge wont know about ALS and the word wont get spread around. Kinda defeats the purpose doesn't it? And then there fans would donate money to ALS research. Do you want one celebrity 1 million dollars and not get the word spread around or 5 million people donating 1 dollar and make a domino affect which can lead to more money to donate to ALS research.
I was never sad EVER because of the internet before... You're a hero, dude, you'll pull through... I would donate all the money in the world to help you all the other people with ALS.
HUGS! I totally almost turned off the video cause i'm a big manly man and I don't want to cry but you are a beautiful spirit and I hate that you and your mother and your gram and many people like you have this and to live knowing what's coming is indeed scary. Hugs for you and your mom and grams. I wish there was more I could do besides give money. I wish I was smart enough to dedicate my life to finding out how to stop ALS. Hugs some more and I love you back.
I'm absolutely amazed by how negative people could respond and by how much hatred/rudeness some people "expressed" on this page. And I really hope y'all haters, who are talking about 'freedom of expression' and shit, understand that you are not in the right position to talk about Freedom of Expression. I mean.. unless you are gonna protect this guy's freedom of expression and respect what he's doing, which I believe y'all aren't going to, you have no rights or whatsoever to even mention 'Freedom of Expression'
The only problem I have with the ALS Ice Bucket Challenge is when people leave out the entire point of it. I fear this will become just another stupid challenge without any mention of ALS awareness or donations.
thats the main issue with "viral" things like this, is that it's just something "people are doing". Like a member of our community died from brain damage from drowning yesterday, it was on local news and all the friends were talking about it...but I have an issue and I never really knew the person well enough, nor any of our community. It has always been this way, and I hate it so much that it feels a bit like "oh it's trending" and I can't really say anything, regardless of how genuine I care
It doesn't matter whether people do it because it's a "stupid challenge" or not. It will always in some way give you an incentive to maybe find out a bit more about the disease when you see one of your favourite actors doing it, or when a friend does it. The entire point of the challenge was to do something that looks silly and leave people thinking about what it's actually for. In my opinion this works a whole lot better than people constantly making long videos and such about it, because that has little to no impact on the majority of people. Also, since the ALS Ice Challenge started, I believe over $15 million have been raised. That number is most likely even higher now.
I came to your video after seeing you on Ellen today. You rock! I'm so grateful you did this video and brought the reality and the gravity of ALS to the forefront. You've shown how devastating ALS is and gave perspective to the Ice Bucket Challenge. The beginning was clever and very funny and fun, but the rest of the video is the substance. You absolutely don't need to apologize for your rant and your tears. I hate how people only want the sunshine in life. Life is hard and even harder when we don't feel we can be open and talk about the horrible parts. I think the best thing we can do for one another is say, "I don't know anything about that, can you tell me about it?" or "I've heard about it, and I'm here for you. You can talk to me about anything whenever you need to." It's so much more challenging and draining when you feel you have to suffer in silence and put on a happy face for everyone else because they can't handle it or don't want to hear about it or are uncomfortable or don't know what to say. We just need to be there for one another, whatever we are facing. We need to come together for one another and not drift away and get absorbed in our own lives. My mom is in the middle stages of Alzheimer's and I have experienced some of that too. She has lived a long and good life, and continues to do so. Almost everyone I know, family, friend, acquaintance, former coworker, tells me to walk away and put my mom in a home. She is still there. We both benefit from this time we still have together, me caring for her as she once cared for me. I don't know why that is so hard to understand. It's not ideal, obviously, but I wouldn't miss this time with my mom for the world. I was very touched seeing you and your mom together. I'm so very sorry you've had this horrible disease in your family, losing your grandmother and your mother to it, and now diagnosed with it yourself, and so young, just 26. Thank you for your courage in making this video. I wish you and your family well. I'm a stranger, but if you ever want to talk, I'm here.
What kind of cure do you think it will be? I don't think it will be reversible. Possibly preventable, or maybe it will freeze the person in their current state without progression?
***** Think you are onto something here. It's gonna be hard to cure something that is literally encoded in every cell in your body. I think the best hope is some kind of drug that you can continuously take that will dampen the effect. After looking further into ALS it seems that it can happen for different reasons but the version of ALS where it seems to be a defective SOD1 enzyme that is acting as a toxin and causing negative it effect i could be a problem. Can't really think of a way to suppress the defective enzyme and insert or produce the standard working version of the enzyme without also suppressing the working one. It's also a very important enzyme that is necessary for the metabolism of cells. One may be better off just diagnosing this faster and making sure that people with genetic ALS don't get kids. Focus should probably be put on the theory of ALS being caused by environmental factors or a mix of environmental factors in conjunction with each other. But that's just my opinion.
Zaxomio I do think extensive testing into genetic history is the way forward for now. But still, how many selfish parents will still decide they want children even if they are going to be affected by ALS? I think the cure would have been on it's way a lot sooner if its wasn't for George Bushes pro life stance. His views meant that human stem cells couldn't be used for medical research and that that has severely hindered the process imo.
It's been around for a while but it only effects a very small percentage of people and because not a lot is really known about it, it doesn't get mentioned a lot.
It's been around all along I guess. It is still relatively rare THANK GOODNESS. Stephen Hawking is the most famous person with it but he's also very unusual in that he has lived a long time with it. Most people who get it only live a few years. And it's terrible.
I wish the beginning part ( you already know what I'm referring to ) wasn't there. It's not only off-putting, I believe it doesn't fit into the context of the video. It's a discordant note. Otherwise, I think the video is very touching. I cried. The reality of this dreadful illness wasn't clear to me before watching this video. I'm angry with the person who is saying it's fake. Why ? What's the point ? Maybe that person is having an angry day ? Maybe they need to hit someone ?
Anyone can make a sob story/woe-is-me video. This guy was having a fucking laugh in the face of something that is unequivocally terrifying. I'm sure that segment was a great bit of respite for him and cathartic in many ways. Laughter is the universal language and I was glad to see that although he's been diagnosed with what many would consider a death sentence, he still finds humor in life.
onetrickdave I agree with what you wrote. Thanks for a good reminder that laughter is a form of healing our hearts and minds. Also- now I see where the zany beginning might have served an artistic purpose: by showing us his sense of humor, in such an over-the-top fashion, the effect of this abrupt switch into his tragic reality was all the more effective. I was shocked, never saw it coming. The sequence where he's tending to his mother's needs is particularly poignant.
This is the most courageous testimony on the ALS ice bucket challenge I have seen so far. You bring emotion, comedy and drama in your message. You van country on me to spread it!
im so so sorry I've done the als challenge and i had know idea what is was about cause I'm only 13 but you have taught me about it so now i know its for the best cause, btw you very brave
Yeah but if it doesn't have something entertaining like dumping ice over your heqd people won't share it. That's why the ice bucket part exists. So that people will watch and notice the do ate part.
Amazing courage dude. To be honest, I support ALS but the reason why I hate the Ice Bucket Challenge is that... you don't know who's a dick. You don't know if they are just doing the Ice Bucket Challenge because they were just challenged. Their entertaining to watch but you don't know if they are going to donate afterwards or not. It will spread awareness but you don't know if they are going to donate. Kind of the same problem as Kony 2012... but that one is horrible. However, after seeing this, there might be hope and maybe, we might fight ALS as a team. Besides, I hate humans... but I have faith in them.
This thought I had got started when I saw a group of teenagers doing it and the first thing in my mind is... do they have $100 in their wallet or even a dollar? I know most celebrities will donate afterwards but what about the younger generations doing it? The 12 year olds who are doing it so they can be popular.
I'm an 18 year old teenager. I have no 100 dollars in my wallet, but I do have ten dollars, maybe it's not much for now, but when I have the capability, if donate more money to a wide variety of charity. Please believe that there are still some teens that care and wants to help:)
The fact that this has raised about $40 million so far shows that it is more than just idiots doing something to be cool. And for those who can't afford to donate right now, there is something they can do - spread the word! I personally didn't know anything about ALS, now I do. Now yes, there are so idiots who do it without knowing anything about ALS, but someone will see that video and find others and eventually find out that it's for charity. The proof that that is how it's happening? $40 million.
I know its making people be more aware but I think its better to just donate afterwards. However, looking at these comments just made me realize something... not only will this might help fight ALS... it can help other charitires. I won't be surprised to see another charity doing another trend to help fight another ddisease. The power of the internet... Also, looking at these comments gave me more faith in humanity. So thanks for that. 😄
I agree with Vicky I feel bad for u too and u ARE worth curing everyone is, it's just i think they don't have enough money to cure everyone so i think they put it off to the side but i agree they should find a cure 4 ALS because ur just as important as everyone else who is sick and needs medicine
I am not one to cry, but thia video really touched me and managed to do just that. I am so sorry you have to go through this and I really hope with all the money eaised from awareness it can atleast help do something.
More often than not, people easily take notice and make fun of other people's imperfections and pains. Will one still be able to make fun and laugh at pain when it hits you and experience it yourself? I bet not. Didn't all of you listened to what he was saying? Why he was crying? OMG people. Grow up, be human and prove that being human is priceless! #justsaying
condolescence to you and your family. I hope you can walk the hard way ahead of you. i have to ask though. why does someone doing the challenge (therefore NOT donating) lift your spirits? wouldn't you prefer people to donate when challenged? i do not understand the incentive.
Because it means people are hearing about it and even if they aren't doing it for the charity itself, they're donating money and spreading awareness. Every person who does the challenge and/or sends money brings ALS one step closer to a cure.
Thank you for sharing your story! I hate seeing people post the videos of doing the challenge when they don't even know why they're doing it! I am 29, you're 3 years younger than me, and the little amount I know about ALS is that it's scary and just breaks people down! It's not nice to watch! I am sorry for this and I am not going to do the challenge, instead I am going to raise money to donate to ALS! Because that is more helpful then dumping ice water over my head.. unless I'm wrong?!
Donating that money basically is the challenge. The ice part is just for publicity and to make people pay attention, and it's obviously working with the huge increase in donations.
I would love to share this video, however the beginning is far to out there and not appropriate for my viewers. Too bad because otherwise it would have been a perfect video to share and actually lets people see what ALS is all about and how it effects people. If there is a cut of this video without the crazy first part please paste to me.
KrazyKitty75 you can start the view at a specific moment if you want. I also figure that a lot if people might skip it if they start from the very beginning, still I gave it a try cause is damn worth it.
What is crazy about it? A man wearing women's clothing? So what. All your viewers will be dead in 100 years, this guy will be dead in less than 5. It doesn't matter who your viewers are...poor them it's too far out there for them to see a man in women's clothing...your viewers are watching porn...all the time...even right now, they are watching porn....you just don't like to think about it. And if your viewers are kids.....I watched porn when I was 10 years old....thats when I googled it... and if your viewers are younger than 10 years old....then they don't need to be subjected to something as scary as ALS.
I had to the do the ALS Ice Bucket Challenge. I decided to research on it because,I'm a person who wants to know stuff. Anyway when I read about it,I was sad. I had been saving up for a $1,000 (not the actual price,close though.) and I decided that instead of buying a computer I was going to donate $950. I was so happy to be able to help people. I also got freezing cold water dumped on me >.< still remember it. Cold.
I don't think it's right to compare it to cancer... there are so many types of cancer. Some are deadly, some are not. Just like muscular dystrophy -- some are deadly (like ALS, and many forms of SMA), and some are not. I have MD, I just don't feel right discrediting someone's battle for my own. At least not a specific type of cancer. You just said "cancer" as if you meant cancer as a whole. I hope that's not what you meant.
facebook.com/photo.php?v=894005607294319&set=vb.100000546633926&type=2&theater here is my challenge..i was angry when i did it but its heartfelt and to the point. I lost my grandmother to Lou Gherrig's as well. My condolences to you clockwork624
People are not irritated by the ice bucket challenge to raise ALS awareness, they are irritated by the ice bucket challenge not knowing it has a cause and purpose. I watched those challenges on facebook for over a week now and they became really annoying only to find out today it has something to do with the disease. Don't blame people for hating it only because nobody mentions the cause of those challenge. I'm sure if they know the cause they wouldn't mind. My point is most the poepIe do this challenges for a laugh and those are annoying. I watched my friends grandmother die of this and it was terrible.
People can do the challenge and laugh if they want? Happy smiles does not kill you by the way either way they're pumping some sort of money into the research or care of patients with ALS do not take away the smiles of peoples faces smiling is actually healthy (you probably didn't know this) please stop being thick i acknowledge the fact that your "grandmother" died from this and i know how it feels HOWEVER it is about moving on (my grand mother died from cancer she was too weak to move her skin turned yellow she could hardly eat i had to watch this helplessly not having the education to research a cure for cancer myself)
You must have really not searched, I watched the first video and I found out what it was pretty easily because google exists. But also usually if you checked the description, there is a link to the sight, now more people are talking about the actual cause and donating but still. It is fairly simple.
But eventually, like you ypurself said... people do find about it and that's the point of the whole challenge... Viral marketing, don't hate on it... It serves it's purpose...
Can't begin to express my sympathy for what you, your family, and the many others stricken by this disease go through. Your heartfelt video has completely changed my perspective on the ice bucket challenge and the cause it's supporting.
Oh I see, you accidentally typed into the wrong text bar. This is the youtube comment section. What you are actually looking for is the google search bar. It's ok, many people don't know how to internet. You'll learn in time.
It's supposed to raise awareness generally people explain what it is they're raising awareness for. Every other campaign like this has so stop being twats about it
If you don't have anything positive, uplifting, supportive or encouraging to say. GO PISS OFF! The world doesn't need people like you. I support the cause and hope there is a cure one day soon. Anthony, it's ok to cry. Don't ever be sorry for that. Big hugs.
Well technically Epilepsy is quite manageable if you eat a high sat fat diet and stay away from carbohydrates because those set off epileptic fits. It really doesn't need the attention because people who have it can live a full normal life despite having seizures. I had a teacher who had it, but like I said she was a teacher, she had a son and a husband and she was in her fifties and had been diagnosed in college. This guy is twenty six years old, odds are he won't make it over 30, he might never have a spouse of his own, he might never have children nor will he get to experience the rest of his youth as ALS takes over his life. I mean there have been whole studies dedicated to curing Epilepsy, they actually have medication and diets that help. Most people actually know what Epilepsy is, so what I'm saying is that it isn't at the same level as ALS.
tosin O To all of you who made a similar reply, please remember that epilepsy is a class of neurological conditions that range in severity from rare seizures (minimally impactful) to thousands of seizures a day (life threatening.) By the way for life threatening type of epilepsy, it appears that CBD a cannabinoid that actually mitigates THC and other psychoactive cannabinoids, has a profound effect on improving brain function and ending seizures. A group in Denver is promoting a pot strain called "Charlottes Web" named after Charlotte Figi a little girl with a terminal form of epilepsy who was completely cured of her illness by an oil extract from this plant. Before that, the plant was called "Hippies Disappointment" because of its low THC content (this particular plant produces no "High" and only has medicinal value.) Because this plants oils are neuroprotective, I wonder if anyone has thought to see if it help people with neurologcal autoimmune diseases like MS, MD perhaps even Parkinsons? ALS doesn't appear to be autoimmune, but it would be worth at least checking to see if CBD helps. In a number of places its being touted a miracle cure.
I'm sorry but a loooot of people know what epilepsy is. Until the ice bucket challenge I had no idea what als was and I'm sure that's true for a lot of people.
We're still caring you. I've been checking your videos all the time. You're the fighter. It's totally different I've been suffered severe TBI since 2 years for the car accident by the stupid drank driver. I found you before the accident however I've been watching you since your this video. Unbelievable t's been already nearly 5 years! You're an inspiration for all around the world. You're the light that which leads us out from the darkness. Thank you soooooooooooo much!!
Have you ever thought about donating.. Without doing the challenge? :D There's no shame in donating and being the only one to know what you did.. In fact.. I think it's actually more satisfying this way :)
When I began watching, the ice bucket looked goofy and then later when I saw you cry the first time, I said well that is emotions and the second time, I got put off, paused the video. Did not want to watch, but then googled "What is ALS?" Read some of the comments below and that motivated me to continue watching the video. You opened my eyes, at the end of it, I had tears. Thank you for helping me understand What ALS really is. Live every moment you have, in joy and peace. Life is precious. God bless you!
I believe it is because a person with out AlS there bodies do not always have the same numbness that someone with ALS does. The ice is a symbol for that numbness and cold the person feels all the time.
Amanda Grace Although I agree with the awareness of ALS, but isn't it kind of rude to compare pouring ice water on yourself to the feeling people with ALS experience? Not you specifically, I'm just saying the entire challenge is kind of a sick metaphor.
Justin Brennan i don't think it's specifically symbolic of anything in particular, it's more like a "trick or treat" kind of idea: donate and help us or pour unpleasantly cold water over your head because you don't want to help. It became fun enough though, and something funny people could challenge each other to do, film and share with others, like a prank, while still deciding to donate. So there's no rudeness since it's not really comparing the discomfort of ice water to having the disease. And it has raised a lot of money from a lot of people. That's why famous and rich people are challenging other famous or rich people, to get them to donate while they create awareness for the not so rich and famous.
I think the reason people pour cold water on themselves for this cause is because when they do, the way the body reacts to it is a tad similar to how people feel with ALS. Obviously not fully though. So it's raising awareness of how people affected feel. Or so I have heard. Please correct me if any of this seems incorrect!
Hi Anthony, I tried to leave a comment but I don’t see it just in case you get this message twice. I met you at the hair salon earlier and I want to say that I’m very blessed to have met you. I’m praying for you and your mother and thank you for being such an advocate for ALS ❤️🙏
Fantastic video Anthony. That was very brave of you sir.
Yes it was very brave.. :)
Cried. What a powerful video.
Thanks for sharing this video on your channel. Definitely going to share this video with everyone I know.
Thank you for letting us know about this video Chris!
Thanks Chris for telling us about this video!
Stfu. I’m glad you’re no longe uploading any of your shit
I can only imagine how hard this was to make and upload, man! You're strong & our thoughts are with you.
That was an amazing story!! You are a strong man!! 😔😍🙏
Wow. Thank you for this video. I was one of those who was unaware of what ALS is. Thoughts are with you and your family x
Your video really affected me. I wish we could have a video of this with you speaking first, and your ice bucket challenge at the end. You speaking about your personal experiences is what is most important. I wish you lots of happy, healthy years.
Great vid Anthony! I wish you a long, happy, healthy life! Luv ya!!
200th LIKE UP IN THIS BIIITCH
Dude, our prayers are with you. THIS is the reason we did the challenge.
NIVE NULLS! ILY YOU GUYS ~_~
AUSTIN
You have to watch the full video for this. Touched !
On a serious note u should watch it
I dont think people actually kno what the ice buckett challenge is for so ppl need to watch to actually find out !
Obamas done it
Iv seen a obama one on youtube
Ha who fukin knows man least its makin ppl aware
Hello, TH-camrs!
You guys don't know what all the support I've been reading on here means to me. Thank you all for your kindness and encouragement!!!!!
I know haters are gonna hate no matter what I say, but I've noticed a number of people mentioning ALS would stop if those of us afflicted simply wouldn't have kids. It's really sad, but that's just not true. The majority of ALS patients have no family history at all, it's a complete surprise :(
Anyway, to all of you in this with me, or close to someone who is, we have to keep on fighting! Change can happen, miracles are possible, and we ARE worth saving :)
Thank ALL of you so much for watching, sharing, taking the challenge, and supporting the cause. It means *SO* much to me and my family
Anthony, thank you for sharing your story with us today at the LRF Ed Forum. You have shown it only takes one person to help start the wave of change. I wish you the best of luck in your continued efforts and battles.
Thank you very much for making this video! It really helped me to understand ALS better - thanks :)
wishing you the best
This is hard to look at
Oh, Anthony Anthony... Your video made me laugh and cry :(
I really want to give you a hug.....
-And that's probably also something you need in this hard time of your life :/
You have no idea how f-ing hard I cried after this. You are worth saving. Everyone is. You are amazing to stand up and speak out about ALS. I personally regret it with my life, but unfortunately my family was not able to donate more than $100.. I'm so sorry we didn't donate more. My prays and thoughts are with u Anthony. Thank you so much for this. >3
I'm watching this 4 years after you posted your comment. I'm crying pretty hard as well. And, I agree, he is definitely worth saving! Every single person is worthy of saving!! I donated 5 years ago, 4 years ago and I just donated again.
I want to hug you so hard. You're so strong, and so courageous. Fuck anyone who has anything to say against this movement, and I can't believe that I'm reading negativity in the comments about this. Get over yourselves. It isn't about you or being uncomfortable at his display of emotion. He is entitled to them, he's entitled to fear, and you just sit there and watch it and stop being a shit for once in your life. He deserves love and support, just like you would if you were in his shoes.
Yes.
I would take an ice bucket every day for the rest of my life to see you healed. Maybe, just maybe this global Ice bucket challenge will finally give research the feet it needs to find the cure. I am convinced the cure is out there, we just need to find it. My thoughts and prayers are with you. You are not alone in this fight!
wonder how much the #foodsupply and #standardamericandiet has to do with it. A lot of illnesses including #autoimmunedisorders are being linked back to gmo's, pesticides, grains (due to change in processing from olden times - aka sprouting) etc. They won't find a cure until the government stops censoring research and buying trials and studies.
.
No se trata de una moda ni de ser borregada, se trata de ayudar y de hacer conciencia. Qué gran video!!!!
El que hizo Yayo está muy chido. Y tienes razón Sonia, es por una buena causa :D
i literately wanted to reach through the screen and hug you, your a brave soul.
i literately wanted to reach through the screen and face fuck you.
Marl Boro Geez that was very unnecessary
Please don't take this the wrong way, but I think you might want to bring this to your attention (if you haven't already).
Have you considered stopping the chain? As in, don't let another person live through what everyone in your family before you has lived through. Don't have kids. Remove this disease from the genetic pool.
you're disgusting.
Yup, everybody with diseases should stop having kids. That way, the world's "humanity problem" will go away...
Doreen Marie You don't see his point? It runs in the family. If he had kids, there would be a really high chance of them having to go through the same, horrifying experience. Not to mention that it might not be too long before he would be too weak to care for them. If he wanted to raise a child, he could still adopt, as there are plenty of kids out there needing homes anyway. Better to give a poor kid a home than to watch your own grow up, knowing that they will probably develop ALS too. Maybe Abe was a bit harsh in saying it, but his idea is still valid.
ALS is a genetic mutation. There are normal healthy people with this gene inside their system. Which means you could be a carrier. Even if we kill everyone that has some type of muscular atrophy disease there is a chance that another mutation that can occur that can causes these exact same effects. Nature sucks tbh... always trying to kill you...
Pie42795 Yea, I agree with your point. It's one of those things that borders on not-ethical, but makes a lot of sense. Many people just comment based on their gut feelings, and so you have comments like that.
I did the Challenge, but was totally unaware of what ALS even was! If I had seen this video a couple days ago, my video would of been a little bit different. I seriously was brought to tears watching this, and I truly hope something happens and a cure is found some day soon!
Wow. This was a powerful video - thanks so much for making this, it really put ALS into perspective rather than just being about ice water.
I'm going to donate $20 cause right now that's all I can with me being only 14 and I don't have a job yet. But thank you for posting this video it left a impact.
:) Nice move by a young man. Now you are a young adult. I hope life treats you well!
Thanks for making this video. It's so powerful and it will definitely make a difference. I did the challenge and donated, and I'll share your video. Take care
Thanks for making this video man, I'm sure some people are just doing the challenge not realizing what its really for, when i did this challenge i donated and am encouraging other people to do so as well its fun and for a good cause
Your video was like ice challenge x 100 o.O
I feel so bad for your family. A teacher at my school was diagnosed with ALS years ago, and a lot of us loved her so much. But she recently passed. I'm so sorry about your family, it kills me inside that so many people have to go through this. This video is an inspiration. So thank you. Thank you for talking about it. I've sent it to my family and friends around the world.
Bro, I can see the passion in your eyes. you make a difference with this. I have known what ALS is and it's effects but hearing/seeing you talk about it with first-hand experience shows me just how much damage it can do. Be strong man, and know this video spread a strong message to me and I am sure to others.
hugs and love to you and your family. 30,000 people in America is 30,000 too many to go through what you will go through. Do not apologise for being honest and putting across the real effects of this disease. Thank you to your mother for being in the video also. Knowledge is strength and you are teaching so many with this video.
Anthony Carbajal my partner has a condition that has affected many people in her family that is devastating and degenerative just like ALS - the rawness of your message and the feeling of hope and strength it has given me has made my day. Thank you brother.
I haven't seen anyone irritated or frustrated with these challenges. You go on and do your thing, baby. And don't get frustrated when people don't want to hear about how scary ALS is. We have cancer (I had it, myself) and Parkinson's in our family (just lost my grandfather a couple months ago). I have these two things and Alzheimer's where I help my friend raise money for her dad who died a couple of years ago. Sometimes a lot gets dumped on your plate and people deserve some days where they don't have more traumatic things to think about. Sometimes you need a few days to just bury your head in the sand. Everyone has their own thing they have to fight for and this fight is yours. So keep fighting, sweetie. We're listening. It may take some a little longer, but we're listening. Good luck to you, *hug*
Wonderful comment.
It's so sad that some people don't even donate money and do it for fun and fame. Hope your family is doing well. By the way Stacy brought me here.
Stacy brought me here too 👌🏻
same here
same here
hey me too
Ha she brought me too!
Donated today in your name Anthony. Lots of love from a stranger you've never met.
You're my hero of the day Andrea.
***** sad
Your story made me want to live, I've been feeling really suicidal lately. And when I saw this video, it was so inspiring that Anthony is fighting for his life, while I'm giving up on life. It's not fair at all. Thank you Anthony, your story really inspired me to live a day. Now lets kick some ALS butt!!
Does anyone else think it is incredibly selfish to choose to have children when you know there is a high possibility of passing on this disease? His grandmother had it, his mother has it, he has it. How can you choose to have children when you know you will be passing such a horrific disease to them?
I agree, it may seem harsh to say "don't have kids" but if you have such a terrible disease that can be passed on to your children then you probably shouldn't. I honestly think it should be illegal (if you know you have it)
Often you have had your children before you've been diagnosed. Only in recent years with new testing are earlier diagnosis' made. Making it illegal for someone to have children is a ridiculous idea, and there is no guarantee that it WILL be passed onto your children.
This video was incredibly moving and having seen first hand what motor neurone diseases can do to people, both professionally and personally, I can't fault any exposure and fundraising for the cause.
Meowtro
If you can't afford to feed or house your children, you shouldn't have them either.....should that be illegal too? Forced abortions, adoptions or tying tubes, is that how we solve other peoples problems now? Modern science has discovered that environment is more influential than GENES in determine how cells grow. Delta Petra is partially correct that diet has more influence than most give credit for, but not the only factor of health. Disease is much more likely when a body LACKS NUTRIENTS, has too many TOXINS, and the immune system is weak from stress, fear or a lack of self-integrity. Which brings me to the biggest overlooked piece of health, BELIEF. Big drug companies still get frustrated when their new expensive drugs are outperformed by placebo pills that work about 1/3 of the time without side effects. If you do not believe that you can heal, no doctor, diet or drug will be of much help.
levelupohio
Knowledge of this disease was pretty limited until recent years. It's quite probable that when his mother bore children, she was not aware of how it all works. There's virtually no way his grandmother could have known. True, there are many people out there who still have kids knowing they have a high probability of passing on genetic diseases and I disagree with that choice. Just pointing out that it's unlikely in this case that it was an informed choice.
when she was diagnosed, she didn't realise that it was contagious. there was probably little support or recognition for the disease back then.
No matter the comments left on this video, this is important and touching. I was already aware of the disease since the age of 6, due to the fact that my grandmother had it. Please know that I am glad you made this video. I know your fear. Be strong.
I like this more than ANY other ice challenge. Thank you for sharing yourself to the world.
wtf, "I apologize for my tears"? Dude, only real men can cry!
Only ALS-challenge that actually wants me to donate
urgh..."makes me want to donate" *
5:26
You shouldn't have to apologize about getting emotional, Anthony! It's such a shame that you have ALS but hopefully one day, a cure will be found and I hope it kicks the absolute shit out of this crippling disease! Such a brave video, (handshake, hug and handshake again!) Make the most of what time you have left! :)
Graet Wyan, I agree with you. My english is not well , but Anthony bless you and your families with love and I did share your video in Hong Kong and I hope that more people know about ALS and more love and respect in the world.
Hey, I'm from Denmark and my father also had ALS. He died around the time that you made this film. I was really inspired by your video, and showed it to my school, and told them my story about ALS. So with your help, we were a whole school in one video and it reached a lot of people. I know you touched me and a lot of other people with this video. And thank you for being so brave to make this video, because I know how it's like to be scared of ALS.
Anthony you are a great voice for the ALS community and you are a very courageous person!! I truly believe that the ice bucket challenge is the movement that WILL make a difference and will be the catalyst that leads to a cure. Anthony your efforts and advocacy are and will continue to make a HUGE difference. Stay strong and keep up the fight!
This was incredibly moving and powerful. My thoughts are with you and your family x
Thank you for sharing. I have felt the same way about Lupus..for my entire life. It runs in my family & shortly after going into the military at age 17, I elected to go get screened, that's how scared I was!! I do not have lupus, I have friends and family members living with it though. I pray that more will be done to cure diseases that scare the crap out of us than just research & I'm glad people are coming together to raise awareness. Love & Light, HopeG.
#alsawareness #lupusawareness #raiseawarenessfordepression
Praying for a cure soon. Your video is encouraging people to become more educated and aware. Hopefully this awareness will be the change needed to bring about a cure sooner. My aunt has ALS and my cousin posted your video so everyone he knows can understand more clearly what this disease does to the people who have it and their families. Thank you and I pray for peace and courage and much love and support for you and most importantly a CURE soon!
My father had ALS. He passed away almost three years ago. It was very hard to watch my best friend slowly loose his independence and I hardly remember a time when he could walk. To everyone affected by ALS, just know you are the strongest people out there
my grand mother and her mother had this disease my mother was so long as i remember scared to get this disease, i never thought about it that i had a chance to get it but because of all these videos i m thinking about it, its great what u guys are all doing
Same goes to me. Well...life goes on even if we have it :D We have no other chance but to go foward.
Dude you probable don't even realise this And I know its little comfort to what tour going threw But you are a true hero you are amazing for doing this video With this youli have put a mark on the world A mark in history and your name will probably live threw the ages Good for you and I'm sorry for the rest :(
Funny
mark mcdowell Bro before you call this fun please watch it all its not funny at all my friend
I'm sorry but I didn't understand a single thing you said.
Hay didn't read it all and the only out here is in your mouth have a nice day
Hi Anthony. You & your wife came out to Summit Career College in Colton, CA today (11/26/14) to talk with the nursing students there about ALS. I was there with my son on an invite from one of the nursing instructors there on campus. I just want to thank you for sharing awareness with everyone today about ALS. I think it is a very brave & noble thing you are doing. It is very inspiring to me how you are trying to remain as upbeat & positive about life as you can despite your recent diagnosis with ALS. You are a truly remarkable individual as I am sure it is not easy. The face you put on for us today on campus was a brave one..not showing the emotions I would've expected to see that are in this video. I just want to say I wish you the best with your treatment & your journey & want to thank you for taking the time to take a picture with my son & I before we left today..when I look at it, I will remember your strength & courage & it will forever remind me of why I chose nursing as my profession..it is very uplifting & memorable..the impact you have on others. It was a pleasure speaking with your wife today as well..a joy to meet you both! Thank you! :)
Honestly, not to be rude or anything. But if your whole family has it, maybe it would be a good idea to seriously consider not having children. You can always adopt. I personally wouldn't be able to have a child knowing that he would have a strong possibility of having ALS because of my genetics. It IS a genetic disease, and you have full ability to stop it from continuing in the genetic pool.
No you really can if he doesn't have kids unless he craps out a child or something so you're wrong
ohBorris Genetic mutations don't just happen during birth...
His mom wasn't diagnosed before they had children. He mentions his mom was diagnosed when he was in high school.
I think his grandma got it after he was born so they didn't know about the disease yet. I'm sure all his family members don't plan in having kids now that they know they have a chance of getting this disease.
I know you don't have any ill intent by saying that, but don't say that to a person going through what he is.
you know i've seen loads of my friends jumping on the band wagon doing this bucket ice challenge, if i hadnt bothered looking it up then i would never really know what was going on. i got pretty annoyed that it kept popping up, not the challenge in it self, but the fact that all they done is nominate and pour water on theirself with no further mention of the illness. no mention of how to donate, or how to help. if only each challenge video just mention the website, then maybe the community would have double the donation. some people are just sheeps, they dont know what theyre doing...
***** the problem was not all the videos said ALS in it, just ice water challenge
افلام اباحية
I watched a couple of ice bucket challenges when it first started that had no mention of a charity, and eventually I googled wtf was going on, and learned it was for charity including ALS. So the bare bones ice challenge with no mention of ALS still did it's job, it brought ALS to my attention. So it still works.
Mike McGowan i still believe theres a lot of lazy people out there.
SarangKae 사랑캐
Exactly. Most people doing this ARE NOT doing this FOR ALS or to donate, or to help anyone. I just watched 6 videos on my news feed from Friends of Friends on facebook that proves that theory (they said nothing about donating to anyone... They just challenged their friends to "be tough and do it better"... I've watched a lot more than those 6 coming to this day, but now I'm just done watching. I like that ALS is getting the money they need, but most of these people WOULDN'T donate even if they knew about ALS if the Ice Bucket challenge wasn't making them feel important. But I'm glad that ALS is getting the money, even though it has to use this kind of thing because a lot of people are backwards =]
In the end... I don't care about those people who don't want to take the time to understand ALS, as long as they keep donating then hopefully we will have a consistent treatment for it... Since our country is too scared to invest in preserving lives.
don't apologize for your feelings man, thanks for sharing your experience and stay strong friend.
Hi Anthony. Thank you so much for bring ALS awareness to the world. What you do is a miracle. Many many people dont know ALS or even understand it. The ice bucket challenges is amazing. to see so many people all over the world doing the challenge and people is getting aware of this serious illness.
My sister is 27 years old and is so far in the illness. we have been told there is nothing doctors can do for her anymore. we were told she has about a year left with us. see her like this person that use to be my sister is killing every bit of me every day. She cant do anything for herself anymore. This illness is taking the most amazing person that i have in my life away.
I know that with a matter of time my time will also come. I am lucky so far to show no signs yet.
so for the bottom of my heart and from deep with in my soul i so thank you again for the awareness you have started.
I pray for you that you will stay strong in a difficult time ahead. my heart, soul and mind is with you my friend.
xxxxxxx
I have ALS I was diagnosed with it in June of this year. Dr. Vota of VCU diagnosed me. He runs the clinic for ALS patients and he is wonderful! I pray every night for a cure so I can live with my very special husband for a long time. Of course it started with my mouth and I am an art teacher. It started for me in December of 2012.
Praying for you
How was the first symptoms?I will pray for all ALS patients :-(
thank you
.
***** why?
An amazing man with a huge heart, prayers are with him and his family. 💞
Very touching feel bad laughing at the bit at the beginning though :( prayers for him too!
"Because I'm not profitable, I'm not worth saving?" oh my gosh... this made me cry again and again... 😢
7 years ago, I did the challenge.
Thank you again, Anthony. Wishing you all the best.
Gosh, I don't even know you and when you started crying I just wanted to give you a hug
You are amazing! *Hugs* Sending all of our love!
I am truly disgusted by some of the negative comments on here. Did you even watch the whole thing??
Seriously, fuck off people talking shit!!!!
To Anthony Carabajal, I just wanted to hug you and I cried with you.
At first I was laughing hysterically, thinking what a character you are. Being able to makes us laugh like that is a real gift specially when seeing how it is really affecting you.
I have MS which is not nearly as devastating as what you are going through.
There is nothing I can say or do, I am just so sorry this is happening to you and others. I truly hope the 20+ millions raised will help, it's not fair that it hasn't been front and center in diseases to fight for. Well it is now!!!
I won't wish you good luck, for that would be insulting. I just hope you have lots of support and won't go through this alone.
Big hugs and lots of love to you!!
They're mostly trolls taking advantage of the popularity this video is getting. The best thing to do is not reply to them. If everyone ignored them they would have no reason to troll.
I agree and that is why I didn't reply directly to any of their posts. Just some things you should never troll, disgusting people don't get that.
I've already done the challange a several times and donated to
My grandma past this summer in ALS and if you haven't been around it you have no fucking idea of the feeling. It wasn't her past that hurts me the most, it's the thing that I'm sitting there next to her and have no idea what to do to make the pain any less for her. The worst thing is you want to help but you can't because it hurts even more. I loved being around her, she was and still is one of my greatest rolemodels in life just because she walked through one of the painfullest things you can go through but didn't give up.
I hope that everyone with ALS will do the same, don't quit. I'm here, everyone you love are there. That's what's importent, smile as often as you, enjoy everything while you still can because ypu only have one chance. Promise me that you don't spoil it
To be honest I have to blame the mother, i mean, if you know you have ALS and it runs in your family just don't have children. There a so many orphans out there that you can adopt and if you do have child your only making their lives worse.
EDIT: Ok people. I have thoroughly read through all the the replies and I think this has gotten out of hand. I will address all of these topics. This topic is ENTIRELY an issue about morality, ethics, values and philosophy so prepare to keep an open-minded view. Keep in mind I and NOT making a statement, this is only an opinion.
First of all, I'd like to reword the opinion "If you know you have a hereditary disease/disorder, it is not advisable to have children", this applies to the WHOLE populus, not just ALS and BOTH males and females. I also state that because the mother and grandmother in the above video had no knowledge of the ALS, it is NOT in anyway, shape or form their fault.
Point 1. I understand that life is the greatest gift worth giving, BUT is a short life or a life with terrible pain and hardship which is CERTAIN the same?
Point 2. Adoption is always available and in addition to, giving a child who would have gone through a lot of pain, a same home and loving environment, there really is no difference, we are people. I also understand that raising a child not from you can be less joyful to some people, but i believe that this point of view is not logical and more emotional and tied with primitive behaviors of reproduction.
Point 3. The statement above is only targeting diseases and disorders that are SEVERELY life altering and changing and incurable.
Basically, what I am saying is that, is bringing a child into this world with a life-threatening disease the same as bringing a child into this world and being the cause of a life-threatening disease they got. Do you think the man in the video above would want to risk his children with same pain he got?
Also please don't reply further, for any inquiries please private message me. :)
Man fuck you. Who the fuck knew it would run in their family? As you can tell he knew his grandma before she was even diagnose with ALS, that means she didn't know her daughter would get it cause it came suddenly to her after her daughter was born. His own mother didn't get it until he was in high school! They didn't know!!
AlienCow6991 That's not what i meant. Of course it's not their fault if they didn't know and it's very unfortunate that there is no diagnosis for this. Before i was under the impression that the grandmother had ALS before having children. Anyway, I still support my original statement, IF you know you have a hereditary disease, it's very selfish to have children. At least see a genetic counselor IMO.
satish pydikondala IMO it is if you know there is a chance for them to get the disease. It is not your risk to take as a mother, as you are affecting their life more than yours.
There's not much point in being so narrow minded, not when most people don't even know they carry any illness until its passed on. His mother didn't even know till he was in high school, she probably would have done things differently if she did. Judging by how wonderful she raised her son she would've wanted to save him from the pain.
But for all the what ifs we have a kind man here now that's raising awareness, finding cures is the real answer, not hiding the problem hoping it doesn't surface.
Susan Schaefer satish pydikondala Katrina Ponce AlienCow6991 Chaoticheart
You know what guys, I think i'm starting a comment war.
To prevent this from escalating. I'm leaving. Appreciate the constructive criticism.
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#coolguysdontlookatexplosion
The worst thing is this man will be a shell of his former self in 1 year, he will be unrecognizable
Let's hope his ALS progresses slower than that so in a year he'll still be dancing like a crazy man :)
This has been filling my Tumblr dash for a week now, and holy hell...
I haven't cried in....I don't remember the last time I cried....
But this.....This made me cry. I'll do the challenge, because I had no idea how much it meant to people. I want to make difference too.
So, Eren, Levi, Peace, Uta, Iggy, I hope you guys look at this.
Touching, but not tear jerking.
I got nominated, I have yet to do it. I'm going to have water dumped on me by a back hoe.
Jean Kirschtein You donate after you do it.... so is not so stupid
If you do the challenge, isn't that means you'll donate less?
Instead wasting water by doing the challenge, why don't you just donate with any money you're willing to donate? Don't care how much, but I'm sure it'll help & give hope to the people who suffer from ALS.
then no one would see the video of the celebrity doing the challenge wont know about ALS and the word wont get spread around. Kinda defeats the purpose doesn't it? And then there fans would donate money to ALS research. Do you want one celebrity 1 million dollars and not get the word spread around or 5 million people donating 1 dollar and make a domino affect which can lead to more money to donate to ALS research.
I was never sad EVER because of the internet before... You're a hero, dude, you'll pull through...
I would donate all the money in the world to help you all the other people with ALS.
HUGS! I totally almost turned off the video cause i'm a big manly man and I don't want to cry but you are a beautiful spirit and I hate that you and your mother and your gram and many people like you have this and to live knowing what's coming is indeed scary. Hugs for you and your mom and grams. I wish there was more I could do besides give money. I wish I was smart enough to dedicate my life to finding out how to stop ALS. Hugs some more and I love you back.
I'm absolutely amazed by how negative people could respond and by how much hatred/rudeness some people "expressed" on this page.
And I really hope y'all haters, who are talking about 'freedom of expression' and shit, understand that you are not in the right position to talk about Freedom of Expression. I mean.. unless you are gonna protect this guy's freedom of expression and respect what he's doing, which I believe y'all aren't going to, you have no rights or whatsoever to even mention 'Freedom of Expression'
The only problem I have with the ALS Ice Bucket Challenge is when people leave out the entire point of it. I fear this will become just another stupid challenge without any mention of ALS awareness or donations.
thats the main issue with "viral" things like this, is that it's just something "people are doing". Like a member of our community died from brain damage from drowning yesterday, it was on local news and all the friends were talking about it...but I have an issue and I never really knew the person well enough, nor any of our community. It has always been this way, and I hate it so much that it feels a bit like "oh it's trending" and I can't really say anything, regardless of how genuine I care
It doesn't matter whether people do it because it's a "stupid challenge" or not. It will always in some way give you an incentive to maybe find out a bit more about the disease when you see one of your favourite actors doing it, or when a friend does it.
The entire point of the challenge was to do something that looks silly and leave people thinking about what it's actually for. In my opinion this works a whole lot better than people constantly making long videos and such about it, because that has little to no impact on the majority of people.
Also, since the ALS Ice Challenge started, I believe over $15 million have been raised. That number is most likely even higher now.
Also, I do believe Hermione already is a ginger. :D
there have been more donations than ever. If some people do it just for the challenge who cares. It's fucking working.
But the great thing is, with so many celebs on board, they ARE very vocal about ALS and also talk about donating to the cause.
I came to your video after seeing you on Ellen today. You rock! I'm so grateful you did this video and brought the reality and the gravity of ALS to the forefront. You've shown how devastating ALS is and gave perspective to the Ice Bucket Challenge. The beginning was clever and very funny and fun, but the rest of the video is the substance. You absolutely don't need to apologize for your rant and your tears. I hate how people only want the sunshine in life. Life is hard and even harder when we don't feel we can be open and talk about the horrible parts. I think the best thing we can do for one another is say, "I don't know anything about that, can you tell me about it?" or "I've heard about it, and I'm here for you. You can talk to me about anything whenever you need to." It's so much more challenging and draining when you feel you have to suffer in silence and put on a happy face for everyone else because they can't handle it or don't want to hear about it or are uncomfortable or don't know what to say. We just need to be there for one another, whatever we are facing. We need to come together for one another and not drift away and get absorbed in our own lives. My mom is in the middle stages of Alzheimer's and I have experienced some of that too. She has lived a long and good life, and continues to do so. Almost everyone I know, family, friend, acquaintance, former coworker, tells me to walk away and put my mom in a home. She is still there. We both benefit from this time we still have together, me caring for her as she once cared for me. I don't know why that is so hard to understand. It's not ideal, obviously, but I wouldn't miss this time with my mom for the world. I was very touched seeing you and your mom together. I'm so very sorry you've had this horrible disease in your family, losing your grandmother and your mother to it, and now diagnosed with it yourself, and so young, just 26. Thank you for your courage in making this video. I wish you and your family well. I'm a stranger, but if you ever want to talk, I'm here.
Don't worry man, the money donated would go in research and you before you lose anything you and your mom both will get cured. Hang in there man :)
What kind of cure do you think it will be? I don't think it will be reversible. Possibly preventable, or maybe it will freeze the person in their current state without progression?
***** Think you are onto something here. It's gonna be hard to cure something that is literally encoded in every cell in your body. I think the best hope is some kind of drug that you can continuously take that will dampen the effect.
After looking further into ALS it seems that it can happen for different reasons but the version of ALS where it seems to be a defective SOD1 enzyme that is acting as a toxin and causing negative it effect i could be a problem. Can't really think of a way to suppress the defective enzyme and insert or produce the standard working version of the enzyme without also suppressing the working one. It's also a very important enzyme that is necessary for the metabolism of cells. One may be better off just diagnosing this faster and making sure that people with genetic ALS don't get kids. Focus should probably be put on the theory of ALS being caused by environmental factors or a mix of environmental factors in conjunction with each other. But that's just my opinion.
Zaxomio I do think extensive testing into genetic history is the way forward for now. But still, how many selfish parents will still decide they want children even if they are going to be affected by ALS? I think the cure would have been on it's way a lot sooner if its wasn't for George Bushes pro life stance. His views meant that human stem cells couldn't be used for medical research and that that has severely hindered the process imo.
How come I never heard of als until this challenge? Was it just recently discovered?
It's been around for a while but it only effects a very small percentage of people and because not a lot is really known about it, it doesn't get mentioned a lot.
You probably know it as lou gehrig's disease........
Because no one really knew about it until people started doing this. It goes viral :)
Maybe you know Stephen William Hawking.He is also ALS
It's been around all along I guess. It is still relatively rare THANK GOODNESS. Stephen Hawking is the most famous person with it but he's also very unusual in that he has lived a long time with it. Most people who get it only live a few years. And it's terrible.
I wish the beginning part ( you already know what I'm referring to ) wasn't there. It's not only off-putting, I believe it doesn't fit into the context of the video. It's a discordant note. Otherwise, I think the video is very touching. I cried. The reality of this dreadful illness wasn't clear to me before watching this video. I'm angry with the person who is saying it's fake. Why ? What's the point ? Maybe that person is having an angry day ? Maybe they need to hit someone ?
Anyone can make a sob story/woe-is-me video. This guy was having a fucking laugh in the face of something that is unequivocally terrifying. I'm sure that segment was a great bit of respite for him and cathartic in many ways. Laughter is the universal language and I was glad to see that although he's been diagnosed with what many would consider a death sentence, he still finds humor in life.
onetrickdave I agree with what you wrote. Thanks for a good reminder that laughter is a form of healing our hearts and minds. Also- now I see where the zany beginning might have served an artistic purpose: by showing us his sense of humor, in such an over-the-top fashion, the effect of this abrupt switch into his tragic reality was all the more effective. I was shocked, never saw it coming. The sequence where he's tending to his mother's needs is particularly poignant.
Elizabeth Paige u know big words
This is the most courageous testimony on the ALS ice bucket challenge I have seen so far. You bring emotion, comedy and drama in your message. You van country on me to spread it!
This is really, really important guys.
This is heart wrenching.
im so so sorry I've done the als challenge and i had know idea what is was about cause I'm only 13 but you have taught me about it so now i know its for the best cause, btw you very brave
also i hope you can get through als and walk away home free Anthony Carbajal
I feel like instead of nominating people to dump ice water over their heads, they should just watch this video and donate :)
share this video to spread the word
Yeah but if it doesn't have something entertaining like dumping ice over your heqd people won't share it. That's why the ice bucket part exists. So that people will watch and notice the do ate part.
dumping a bucket of ice your head replicates the numbness of people that have ALS, atleast for a little
Some will do both.
I'm so so sorry not only for you, but for all the people that have this. I'm so sorry truly. Please everybody pray and care for these people.
Amazing courage dude. To be honest, I support ALS but the reason why I hate the Ice Bucket Challenge is that... you don't know who's a dick. You don't know if they are just doing the Ice Bucket Challenge because they were just challenged. Their entertaining to watch but you don't know if they are going to donate afterwards or not. It will spread awareness but you don't know if they are going to donate. Kind of the same problem as Kony 2012... but that one is horrible. However, after seeing this, there might be hope and maybe, we might fight ALS as a team. Besides, I hate humans... but I have faith in them.
This thought I had got started when I saw a group of teenagers doing it and the first thing in my mind is... do they have $100 in their wallet or even a dollar? I know most celebrities will donate afterwards but what about the younger generations doing it? The 12 year olds who are doing it so they can be popular.
I'm an 18 year old teenager. I have no 100 dollars in my wallet, but I do have ten dollars, maybe it's not much for now, but when I have the capability, if donate more money to a wide variety of charity. Please believe that there are still some teens that care and wants to help:)
The fact that this has raised about $40 million so far shows that it is more than just idiots doing something to be cool. And for those who can't afford to donate right now, there is something they can do - spread the word! I personally didn't know anything about ALS, now I do. Now yes, there are so idiots who do it without knowing anything about ALS, but someone will see that video and find others and eventually find out that it's for charity. The proof that that is how it's happening? $40 million.
that is the point of his video...he doesnt care if people are being fake or real. all that counts is awareness and $$$$$
I know its making people be more aware but I think its better to just donate afterwards. However, looking at these comments just made me realize something... not only will this might help fight ALS... it can help other charitires. I won't be surprised to see another charity doing another trend to help fight another ddisease. The power of the internet...
Also, looking at these comments gave me more faith in humanity. So thanks for that. 😄
i hope they find cure to save people
Ya true
pls commant
pls follow me
Hope they find a cure for cancer
***** omfg!!!!!!!
This video touched my heart. I hope that things will get better, I really do. Stay strong
I agree with Vicky I feel bad for u too and u ARE worth curing everyone is, it's just i think they don't have enough money to cure everyone so i think they put it off to the side but i agree they should find a cure 4 ALS because ur just as important as everyone else who is sick and needs medicine
I feel bad for him😔
I admire your strength and love your sense of humor. hugs and hugs!
I am not one to cry, but thia video really touched me and managed to do just that. I am so sorry you have to go through this and I really hope with all the money eaised from awareness it can atleast help do something.
***** THANK YOU!!
More often than not, people easily take notice and make fun of other people's imperfections and pains. Will one still be able to make fun and laugh at pain when it hits you and experience it yourself? I bet not.
Didn't all of you listened to what he was saying? Why he was crying? OMG people. Grow up, be human and prove that being human is priceless!
#justsaying
Truth...
condolescence to you and your family. I hope you can walk the hard way ahead of you.
i have to ask though. why does someone doing the challenge (therefore NOT donating) lift your spirits? wouldn't you prefer people to donate when challenged? i do not understand the incentive.
it helps conatin the cells for ALS a little
Because it means people are hearing about it and even if they aren't doing it for the charity itself, they're donating money and spreading awareness. Every person who does the challenge and/or sends money brings ALS one step closer to a cure.
it simply shows that we care and that we are aware of this. it lifts his spirits.
You are still supposed to donate $10 if you do it, $100 if you don't.
Actually by now it's not either ice bucket or donation but usually both.
I have depression and this made me curl up in a ball for about an hour but it was worth it to see a hero help his family.
Thank you for sharing your story! I hate seeing people post the videos of doing the challenge when they don't even know why they're doing it! I am 29, you're 3 years younger than me, and the little amount I know about ALS is that it's scary and just breaks people down! It's not nice to watch! I am sorry for this and I am not going to do the challenge, instead I am going to raise money to donate to ALS! Because that is more helpful then dumping ice water over my head.. unless I'm wrong?!
Donating that money basically is the challenge. The ice part is just for publicity and to make people pay attention, and it's obviously working with the huge increase in donations.
^^ Most. Awesome. Reaction. ^_^
I would love to share this video, however the beginning is far to out there and not appropriate for my viewers. Too bad because otherwise it would have been a perfect video to share and actually lets people see what ALS is all about and how it effects people. If there is a cut of this video without the crazy first part please paste to me.
I also wanna say your bravery to share this story is amazing and I pray for you and your family.
KrazyKitty75 you can start the view at a specific moment if you want. I also figure that a lot if people might skip it if they start from the very beginning, still I gave it a try cause is damn worth it.
What is crazy about it? A man wearing women's clothing? So what. All your viewers will be dead in 100 years, this guy will be dead in less than 5. It doesn't matter who your viewers are...poor them it's too far out there for them to see a man in women's clothing...your viewers are watching porn...all the time...even right now, they are watching porn....you just don't like to think about it. And if your viewers are kids.....I watched porn when I was 10 years old....thats when I googled it... and if your viewers are younger than 10 years old....then they don't need to be subjected to something as scary as ALS.
Really? Here, let me get a link for you: th-cam.com/video/h07OT8p8Oik/w-d-xo.htmlm
How is this inappropriate at all? Stop making excuses
I had to the do the ALS Ice Bucket Challenge. I decided to research on it because,I'm a person who wants to know stuff. Anyway when I read about it,I was sad. I had been saving up for a $1,000 (not the actual price,close though.) and I decided that instead of buying a computer I was going to donate $950. I was so happy to be able to help people. I also got freezing cold water dumped on me >.< still remember it. Cold.
Oh it was a computer I you hadn't known.
This video still makes me cry. You are such a strong individual, Anthony!
Nobody realizes how bad ALS is. it's worse than cancer..Yet nobody pays much attention. My grand mother died of it in 2012..I hope a cure is found..
I don't think it's right to compare it to cancer... there are so many types of cancer. Some are deadly, some are not. Just like muscular dystrophy -- some are deadly (like ALS, and many forms of SMA), and some are not. I have MD, I just don't feel right discrediting someone's battle for my own. At least not a specific type of cancer. You just said "cancer" as if you meant cancer as a whole. I hope that's not what you meant.
facebook.com/photo.php?v=894005607294319&set=vb.100000546633926&type=2&theater here is my challenge..i was angry when i did it but its heartfelt and to the point. I lost my grandmother to Lou Gherrig's as well. My condolences to you clockwork624
Maria Sanu this is what ALS is, its sad......I really hope things get better for everyone
I've seen this
He came on ellen
Plus I like his butt :3
haha, very sexy
People are not irritated by the ice bucket challenge to raise ALS awareness, they are irritated by the ice bucket challenge not knowing it has a cause and purpose. I watched those challenges on facebook for over a week now and they became really annoying only to find out today it has something to do with the disease. Don't blame people for hating it only because nobody mentions the cause of those challenge. I'm sure if they know the cause they wouldn't mind. My point is most the poepIe do this challenges for a laugh and those are annoying. I watched my friends grandmother die of this and it was terrible.
People can do the challenge and laugh if they want? Happy smiles does not kill you by the way either way they're pumping some sort of money into the research or care of patients with ALS do not take away the smiles of peoples faces smiling is actually healthy (you probably didn't know this) please stop being thick i acknowledge the fact that your "grandmother" died from this and i know how it feels HOWEVER it is about moving on (my grand mother died from cancer she was too weak to move her skin turned yellow she could hardly eat i had to watch this helplessly not having the education to research a cure for cancer myself)
You must have really not searched, I watched the first video and I found out what it was pretty easily because google exists. But also usually if you checked the description, there is a link to the sight, now more people are talking about the actual cause and donating but still. It is fairly simple.
But eventually, like you ypurself said... people do find about it and that's the point of the whole challenge... Viral marketing, don't hate on it... It serves it's purpose...
Can't begin to express my sympathy for what you, your family, and the many others stricken by this disease go through. Your heartfelt video has completely changed my perspective on the ice bucket challenge and the cause it's supporting.
You know I've seen about 4 of these and none have explained what ALS is
learn to google
Oh I see, you accidentally typed into the wrong text bar. This is the youtube comment section. What you are actually looking for is the google search bar.
It's ok, many people don't know how to internet. You'll learn in time.
It's supposed to raise awareness generally people explain what it is they're raising awareness for. Every other campaign like this has so stop being twats about it
Did you not watch this video?
I am sooooo sorry for you and your family 😥😪😢😥😢😢😢😢😢😢😢😢😥😢😥😣😥😥😥😥😥😥😥😥😥
Me too
😭😭😭😭😭😭😭😭😭😭😭
+carmen hiew same😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😣😢😣😣😣😣
+carmen hiew are you crying or laughing ???
+ozan cavdar its crying
Greetings...I hope your doing well through these hard times... ❤❤❤ 2021
If you don't have anything positive, uplifting, supportive or encouraging to say. GO PISS OFF! The world doesn't need people like you. I support the cause and hope there is a cure one day soon. Anthony, it's ok to cry. Don't ever be sorry for that. Big hugs.
people out there watch his new videos. he is really sick and needs over 6000$ every month for his caregivers! if u can support him please do it
Come funziona questo video ha 15 milioni di visualizzazioni, se non vi è solo 7 milioni di persone nel mondo?
Dio porco se sei stupido ci sono 7 milliardi di persone nel mondo oddio ...
spero che stai scherzando!!!!
e allora come fa ad avere 15 milioni? 15 milioni di euro sono di più di 7 miliardi di lire
è grazie a gente come te che me ne sono scappato dall'Italia!
grazie di confermarmi ancora una volta che la mia scelta è stata saggia...
rnrossoblu e infatti questi contatori italiani non sanno contare
I wish Epilepsy got the same attention :(
epilepsy is decently treateble tho but i do understand
Well technically Epilepsy is quite manageable if you eat a high sat fat diet and stay away from carbohydrates because those set off epileptic fits. It really doesn't need the attention because people who have it can live a full normal life despite having seizures. I had a teacher who had it, but like I said she was a teacher, she had a son and a husband and she was in her fifties and had been diagnosed in college.
This guy is twenty six years old, odds are he won't make it over 30, he might never have a spouse of his own, he might never have children nor will he get to experience the rest of his youth as ALS takes over his life. I mean there have been whole studies dedicated to curing Epilepsy, they actually have medication and diets that help. Most people actually know what Epilepsy is, so what I'm saying is that it isn't at the same level as ALS.
tosin O To all of you who made a similar reply, please remember that epilepsy is a class of neurological conditions that range in severity from rare seizures (minimally impactful) to thousands of seizures a day (life threatening.) By the way for life threatening type of epilepsy, it appears that CBD a cannabinoid that actually mitigates THC and other psychoactive cannabinoids, has a profound effect on improving brain function and ending seizures. A group in Denver is promoting a pot strain called "Charlottes Web" named after Charlotte Figi a little girl with a terminal form of epilepsy who was completely cured of her illness by an oil extract from this plant. Before that, the plant was called "Hippies Disappointment" because of its low THC content (this particular plant produces no "High" and only has medicinal value.)
Because this plants oils are neuroprotective, I wonder if anyone has thought to see if it help people with neurologcal autoimmune diseases like MS, MD perhaps even Parkinsons? ALS doesn't appear to be autoimmune, but it would be worth at least checking to see if CBD helps. In a number of places its being touted a miracle cure.
I wish ALS had the same survival rate as epilepsy. Then my Aunt and Uncle wouldn't both be dead from it.
I'm sorry but a loooot of people know what epilepsy is. Until the ice bucket challenge I had no idea what als was and I'm sure that's true for a lot of people.
We're still caring you. I've been checking your videos all the time. You're the fighter. It's totally different I've been suffered severe TBI since 2 years for the car accident by the stupid drank driver. I found you before the accident however I've been watching you since your this video. Unbelievable t's been already nearly 5 years! You're an inspiration for all around the world. You're the light that which leads us out from the darkness. Thank you soooooooooooo much!!
I will nominate myself to the challenge after seing this.
Have you ever thought about donating.. Without doing the challenge? :D
There's no shame in donating and being the only one to know what you did.. In fact.. I think it's actually more satisfying this way :)
oh lol XD well I have already donated XD but I want to do the challange to I can give the case more publisity ;)
so*
Giulio Baia let people see, it will push some of them to donate! this helped the association to get more than 60million dollars
I wish I could donate really badly BC this is so sad. I almost cried :-(
I'm 13
+Micheal Stoller
I don't have any money to donate BC I'm broke. -__-
Amahomie luver ask ur dad or mom/bf etc
1:I don't date
2:I don't talk to my "mom"
3: my dads broke and has to worry bought bills
I don't have a computer and my aunt bought the shades last time I saw her
Everyone is worth saving.
When I began watching, the ice bucket looked goofy and then later when I saw you cry the first time, I said well that is emotions and the second time, I got put off, paused the video. Did not want to watch, but then googled "What is ALS?" Read some of the comments below and that motivated me to continue watching the video. You opened my eyes, at the end of it, I had tears. Thank you for helping me understand What ALS really is. Live every moment you have, in joy and peace. Life is precious. God bless you!
If you thumbs down your heartless(︺︹︺)
Can someone explain to me the relation of ice to ALS?
I believe it is because a person with out AlS there bodies do not always have the same numbness that someone with ALS does. The ice is a symbol for that numbness and cold the person feels all the time.
Amanda Grace Although I agree with the awareness of ALS, but isn't it kind of rude to compare pouring ice water on yourself to the feeling people with ALS experience? Not you specifically, I'm just saying the entire challenge is kind of a sick metaphor.
Justin Brennan i don't think it's specifically symbolic of anything in particular, it's more like a "trick or treat" kind of idea: donate and help us or pour unpleasantly cold water over your head because you don't want to help. It became fun enough though, and something funny people could challenge each other to do, film and share with others, like a prank, while still deciding to donate. So there's no rudeness since it's not really comparing the discomfort of ice water to having the disease. And it has raised a lot of money from a lot of people. That's why famous and rich people are challenging other famous or rich people, to get them to donate while they create awareness for the not so rich and famous.
Justin Brennan So we should all just inject and numb ourselves with anesthesia or something to make a more similar comparison..
I think the reason people pour cold water on themselves for this cause is because when they do, the way the body reacts to it is a tad similar to how people feel with ALS. Obviously not fully though. So it's raising awareness of how people affected feel. Or so I have heard. Please correct me if any of this seems incorrect!
Hope they find a cure...
I know what is to live with one disease... I have diabetes... Since my 13... Best of luck
Hi Anthony, I tried to leave a comment but I don’t see it just in case you get this message twice. I met you at the hair salon earlier and I want to say that I’m very blessed to have met you. I’m praying for you and your mother and thank you for being such an advocate for ALS ❤️🙏