My Fibromyalgia Story
ฝัง
- เผยแพร่เมื่อ 26 ก.พ. 2019
- I share my origin story. It's not a fun story. It's one of pain, fatigue and vulnerability. Thankfully I fought for myself and that's how I got to here.
Chapters:
Progression of the illness 0:33 seconds
When it got better 5:40
What I am doing next with my work 10:00
Newsletter list melissavsfibromyalgia.us13.li...
Melissa vs Fibromyalgia book amzn.to/2mJl8vE (affiliate)
Fibro Framework amzn.to/2Fwg5dV (affiliate)
Pregnancy and Fibromyalgia Facebook group groups/14340...
Pregnancy and Fibromyalgia book amzn.to/2DcpNxn (affiliate)
www.melissavsfibromyalgia.com
Hi there! My best friend who is 18 has been diagnosed with Fibromyalgia for over a year and we just found your channel! We both are subbed and she is going to be buying your books! You helped her and even me with so much information, please dont stop making info filled videos for people struggling with Fibromyalgia! Xx
I'm so happy to hear that my videos helped you and your friend!!! X
I am so glad you shared your story here. Thank you for your suggestions. I really appreciate them. God bless you!
I just found this video and appreciate it so much. Wishing you the best.
Thank you!! And you :)
Melissa, You have no idea what an encouragement you have been to me! It’s your beautiful spirit you are like a magnet of love ❤ Thank you so much . I am 70 years old and my history is much like yours, i get how very Ill you were 😌. That made me very sad for you and for me . I am just now hearing about LDN and I am beside myself! First hope I have had in a long while. Been feeling like it’s the end of the line lately Now all I need is a very good doctor ❤️. I gotta say Melissa you are naturally gorgeous, with all you have been thru you do not look worse the wear 🙂 much love
Thank you for your kind words. This video is a few years old and I feel that my endometriosis battle over the past 18 months and now post surgery recovery have taken a toll on my skin! I hope you can get a Dr to let you try low dose naltrexone!!
@@MelissavsFibromyalgia I made a tele doc appt today it’s on the 16 th of October ….it’s the fastest route for now then I think I also need to look into Mast Cell Activation 😮. Another step in the journey ❤️
Hi! I just about fell out of my chair! My fibromyalgia also began in my forearms, and many of your symptoms, and how they progressed, is very very similar. My forearms/elbows are still a huge issue for me.
Hi I’ve been dealing with fibromyalgia for about 4 years now. In the beginning my dr. Dismissed me several times about my pain. I saw my husband doctor and she was the one who listened and did test after test to rule out anything else and said you have fibromyalgia. In 2020 I had my second back surgery a fusion which didn’t take and I was left with extremely painful nerve damage in my legs. Sciatica, muscle spasms and weakness. It was only recently I discovered parasfrom a MRI that I need another fusion above my previous one and 3 herniated discs in my C spine.
Hi! Thanks so much for the information and for your channel, I can't believe more people havent commented here! You really provided a lot of information that is extremely helpful. I personally don't know what's going on with me, I had some weird tingling sensations come on in my right arm about a month and a half ago and I thought I just had a pinched ulnar nerve or maybe carpal tunnel and so I had started to seek out a neurologist to see whats going on, then it also started in my left arm. Did some looking on Google and nothing I found made sense. Then I got covid and all these symptoms disappeared! Then, after 10 days of feeling great, fully recovered from covid and ready to take on the world again, the weird numbness and tingling started coming back in my whole body this time. I developed a migraine that lasted 4 days at the same time so I went to the Emergency Room. They treated me for the migraine and gave me a referral to neurology, and I'm waiting to see how that pans out. I won't know until another 3 months from now as the soonest appointment is in march... Anyway, long story short, while the two things I have found match my symptoms the most, fibromyalgia and muscular sclerosis, none of them match 100%. I don't know if what I have is just an overstimulation or a agitation and activation of my nerves due to this covid virus or the fact that I also had gotten mononucleosis when I was a kid which is caused by a virus which I remember right is believed to be responsible for other neurologic and nerve problems later in life...these viruses never truly leave us. They stay dormant in our system to some degree, which is basically what shingles is- a reactivation of the chickenpox virus, which thank God I've never had chicken pox.
Anyway, at 45 years old, of course I have issues with being tired and not having much energy, but it doesn't sound anything like your situation where it's literally debilitating. I still go for my hikes, work on the farm and things like that, but I guess my biggest question is, is Fibromyalgia something that comes on slowly and then intensifies and gets like how you're explaining it, or do all these symptoms kind of just hit you like a ton of bricks at once? Cuz at this point, I don't even know if things are getting worse, in fact, they might be getting a little bit better from day to day. Yesterday and today are my first days without the headache and head pressure which started on November 17th. So I basically had a migraine until nov29. The migraine is gone, and I don't have a lot of the weird sensations I've been struggling with for the past 2 weeks so that's where it sounds a little bit more like MS, cuz MS can flare up but after a while, the symptoms can leave and you'll feel fine again for a while, but a lot of the symptoms I have don't fit MS either. Like there isn't any type of stuff going on in my lower body and it also seems to be that MS hits the optic nerve and the legs the most and I'm experiencing any eyesight problems and I'm not losing any strength or having any weird sensations in my legs. When I get these weird sensations like tingling and pins and needles, or sharp throbbing pains, i do multiple push-ups and squats to make sure I'm not losing strength in my legs or in my upper body, and I'm not, in fact, I'm gaining strength cuz now I can do more squats and push-ups than when I starte, so I don't know.... sorry for my rambling, I'm just kind of distraught knowing it's going to be many months before I can even see a doctor and who knows how much help they'll be able to help considering what you're saying and what I've read on the internet which is it takes some people 15 years to be diagnosed with either condition. And again at the same time, this could just be a weird neuropathy caused by this darn virus! Anyway, take care, God bless you and may He provide you with solutions to any and all of your problems in life ♥️
Thanks for sharing your story. Your big question - fibromyalgia can come on slowly and it can come on suddenly. Mine came on slowly. Have you been assessed for trigger points in your neck and shoulders? They can cause tingling pain and migrainous headaches. Learning about myofascial pain syndrome really helped me with treatment options. Keep going back and asking for help because you deserve answers and help
@@melissanreynolds thanks so much for your response🙂 No, i haven't had any kind of assessment yet, only the ER found i didnt have anything "life threatening" so they treated my headache and released me with a referral to the migraine subcategory of their neurology department, who decided since my headache responded to treatment (a "migraine cocktail" consisting of toradol, benadryl and something else injected via IV and a 300mg capsule of gabapentin) as well as my migraines USUALLY responding to sumatriptan, i didnt qualify to be seen by that particular department, so they passed me off to general neurology and now im waiting to see if they will see me...My ER paperwork says i was seen for migraine and parathesia and it appears theyve decided to focus on the migraine part which is definitely bothersome, but is not the most worrisome symptom...ive had bad migraines before, but never all these other symptoms😞
@@melissanreynolds sorry, I forgot to thank you for suggesting that I look into those trigger points and the myofascial info...Will do that!
@@PureExistence1 perhaps a physical therapist could help here
@@melissanreynolds really? Im open to practically anything that may help.. I just got back from a four mile hike today which is really nothing at all for me, and I've noticed a lot of back pain and muscle tightness in the neck and some weird pain in the front of my chest but nothing serious..(seems like just about anytime mentions pain in the chest, people freak out and think it's a heart attack and want me to go to the ER immediately, lol! And while there's definitely room for that, this isn't that kind of pain. It feels like it's in my ribs or on top of them. And it's pinching like..) I took one of my baclofen muscle relaxers. Seems to help, but again these symptoms are very worrisome. 😞