Having been a survivor of a HDFC from a mutated CDH1 gene, I can attest to the struggle of this sort of thing. I found solace in other people and family. My brother and I had a TG on the same day by the same surgeon. That, in a way is a motivation for strength. And by that I mean sibling rivalry. "I can heal faster than you!" I lost. But in a way we both won. We are both so healthy and honestly, have no time for cancer. We have moved on. Cancer can kiss our "you-know-what". Strength to you and anyone who goes through this.
I have the same genetic mutation (CDH1). I lost my grandma and mom to stomach cancer. I had a total gastrectomy and a partial esophagectomy 10 years ago. I was grateful to have found some groups on Facebook as this is so rare, and was especially hard to find info on back then. It’s still a challenge to be in this circumstance, but I have noticed an increase in the association between stomach cancer and this specific mutation.
Hi just looked the video..my cancer is exactly as you duscribe am the same as yours..yes it's terrible..god bless you for sharing keep doing what you doing. I still haven't get a stage yet and am terrified of my outcome. I had total gastrectomy and I had kemo after with radiation..am home I find am loosing weight still..and am thinking is it the cancer what am loosing weight or because I have no stomach..am scared I have little kids and they need me...am always hungry..at time I feel lots of bubbles at my left side sort of like water as well fluids..I Egmore it...am eating as much as I can to
I thought I was done with kemo that what's I was told but now I was told am half way through kemo so I have to finished it...am in no pain and wondering why..this cancer is called a silent killer...I was told I was t2n1 what does that means.
My sister is having a total gastrectomy after testing positive for the CDH1 gene mutation. They performed 38 biopsies, found cancer in 1. Do you know if they preserved your lower esophageal sphincter? I've read studies on NIH, concluding it's better to preserve the LES to decrease instances of esophagitis and other issues.
my father he is 77 he undergo a total gastrectomy . after that he is doing chemo therapy . however its still difficult for him to eat . he vomit sometimes . is this normal ?
Having been a survivor of a HDFC from a mutated CDH1 gene, I can attest to the struggle of this sort of thing. I found solace in other people and family. My brother and I had a TG on the same day by the same surgeon. That, in a way is a motivation for strength. And by that I mean sibling rivalry. "I can heal faster than you!" I lost. But in a way we both won. We are both so healthy and honestly, have no time for cancer. We have moved on. Cancer can kiss our "you-know-what". Strength to you and anyone who goes through this.
I have the same genetic mutation (CDH1). I lost my grandma and mom to stomach cancer. I had a total gastrectomy and a partial esophagectomy 10 years ago. I was grateful to have found some groups on Facebook as this is so rare, and was especially hard to find info on back then. It’s still a challenge to be in this circumstance, but I have noticed an increase in the association between stomach cancer and this specific mutation.
Hi just looked the video..my cancer is exactly as you duscribe am the same as yours..yes it's terrible..god bless you for sharing keep doing what you doing. I still haven't get a stage yet and am terrified of my outcome. I had total gastrectomy and I had kemo after with radiation..am home I find am loosing weight still..and am thinking is it the cancer what am loosing weight or because I have no stomach..am scared I have little kids and they need me...am always hungry..at time I feel lots of bubbles at my left side sort of like water as well fluids..I Egmore it...am eating as much as I can to
Roset Jack how are you doing now?
Hi @rosetjack
I thought I was done with kemo that what's I was told but now I was told am half way through kemo so I have to finished it...am in no pain and wondering why..this cancer is called a silent killer...I was told I was t2n1 what does that means.
My sister is having a total gastrectomy after testing positive for the CDH1 gene mutation. They performed 38 biopsies, found cancer in 1. Do you know if they preserved your lower esophageal sphincter? I've read studies on NIH, concluding it's better to preserve the LES to decrease instances of esophagitis and other issues.
my father he is 77 he undergo a total gastrectomy . after that he is doing chemo therapy . however its still difficult for him to eat . he vomit sometimes . is this normal ?
Hello what stage was it
I had a total gasterectomy, my TH-cam channel "stomachless Lauren" touches on what life is like without a stomach
How are you now
Thanks 👍
How are you now brother???
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