I wonder how many women die in nursing homes from undiagnosed UTI. Labeled dementia or die of sepsis because of it. I bet if we really knew it would be shocking
Watching in 2024. You described ME!! Culture is NEVER positive but I have every symptom of a UTI. I’m SO sick! Been dealing with these for 6 years since I went off hormones. 66 years old. I have a GREAT dr who sympathizes with me. I have been on multiple brands of antibiotics and symptoms always return. Tries everything holistic and also hormone cream. Thank you for this!
My dad is incomplete paralyzed vet 76 years old shortly here in September 2024. He was paralyzed in 70s. Gained the ability to walk but with serve limp. But he was able to walk. He never could empty his bladder and would constantly get stones and UTIs. Come around 2010 he got into VA system in Vegas who have been excellent, but they just can't figure this uti thing out. He went to Long Beach as part on annual check up in SCI unit. Spinal cord Injury. They scanned his bladder and he was holding over 900 cc of urine. He had gone 4 decades dribbling out urine and never emptying it. They got him on a self cath system which greatly improved his life. Then he got a tumor in heart removed in 2015. That zapped a lot of his energy and he started using a cane and later a scooter. Now fast forward to 2021 and he has his first seizure . It wasnt a full shaking seizure but his eyes rolled back of head and he was confused and couldn't communicate, and mislabeled items like phone glasses, etc. He went to the hospital and they come up with its a uti causing backup to brain causing seizure symptoms. The gets cleared up and he's fine for about a year and they hit again. A little worse. He gets cleaned up again and he's back to normal , sharp as anyone but then they hit in 2023 a pretty bad 1 and has sepsis. He goes into rehab and gets cleaned but really can't get the ability to walk again . The last year he was usually only walking about 5 to 10 feet to get to bathroom and to scooter. So now he gets permanent foley and in April 2024 he gets a colostomy. It has been great cause he can go out without worry of trying to get to a toilet. But now in June he had a bad seizure with full shakes. He was cleaned up again and doing well at home with my mom but just had another bad 9ne and is back in the hospital as of 8-28-24. What can we do? Can we get him on permanent antibiotics? Thanks .
Thank you for supporting us Dr B and giving us some hope. I am so grateful for your time and efforts to listen to us and for being our voice. Diagnosed with IC at 17 and still battling symptoms on and off. You helped me when everyone else gave up on me. I will be seeing you again soon.
I am so encouraged and excited to see that finally, there’s a doctor taking us seriously! I have been battling infections on and off for 30 years! I’ve been to 4 urologists during this time and every one has eventually told me to read about IC and good luck. I was 4 years infection free and as of November they are back. An infection every month since. I will be following your channel and looking forward to seeing what insights you may offer. Thank you, thank you for your work helping people like me find a permanent resolution and healing from these painful infections!
Thank you Dr B for this channel - I've never been satisfied with the BS diagnosis of "IC" - especially when meds work for a week, things get better, then it comes back...then meds work for another week, things get better, but then it comes back and the "urinalysis tests are normal" so it's all in my mind. (eye roll)
Dr B I am thankful for your efforts. My history dates back 44 years when I had my first urology referral. I have almost always had a positive culture with treatment of 7-10 days of antibiotics based on sensitivity. After menopause my symptoms increased as well as frequency. Always positive cultures, usually ESBL ecoli Same treatment, same outcome. I then saw a great infectious disease doc who put me on long term nitrofuantoin. I went a whole year without infection. He retired, I moved and the rest is ugly. 13 infections last year. 90% positive pseudomonas or klebsiella. I would be happy to be interviewed on you tube with you. Currently I am not a patient of yours, but thinking I will call for an appointment.
This was so valuable!!! I was left three weeks without antibiotics due to a negative urinalysis.. I knew I had a UTI. It got so bad I was in the ER. Finally treated with a 10day prescription of antibiotics!! I still have some symptoms.. I will be asking for another 10 days thanks to you!!! And make sure it’s an antibiotic I’m not resistant to!!! Please talk to doctors to believe our symptoms… we can die if it goes to kidneys and sepsis!!!
Male, 40 years old, I was diagnosed with interstitial cystitis 2 years ago and my life turned into a nightmare. I’m willing to do the interview and evaluation on video and anything necessary.
Male, 35 here. i have been dealing with this horrible condition for the last two years on and off. I have been prescribed different antibiotics like cipro, doxcy and sulfamethoxazole and a few alpha blockers but symptoms disappear and always came back. my urinalysis and all the scans came out negative .some stretching exercises and hot bath helped me along the way. I'm still looking for a miracle cure for this condition as it is affecting my mental and physical well ness and also my sexual life significantly.
@@allytee3427so far i didn't get to the point where I see surgery as an option. On many forums I have seen a lot of people who got worse after surgery so I'm not even sure if I'm going to do it at this point. In my opinion, surgery should always be the last resort.
@@livehappyandblessed384 fair enough, I understand fully. I had chronic uti for 3 years before I had the surgery - 7 months ago now and it’s been a game changer for me. I know everyone is different but where the infection was in my bladder had unfortunately caused a lot of damage and squamous metaplasia, which the bacteria were sticking too like Velcro. They burnt out the infection and the damage, I have found it really beneficial. I hope you feel better soon and find healing. This illness is so hard.
Before the surgery try this, limit your sugar intake, start taking lots of water as well as 20 cloves of garlic and 3 cloves once a week but make sure the infection is not active because this prevents it from coming back, it's no t a cure, i am living proof of this.
Hi Dr B, just subscribed. Am a former UK GP, also patient at Prof Malone-Lee’s chronic UTI clinic in London. Went through the same process of realisation as you due to both my patients’ and my own symptoms and responses to treatment. Have you read the Prof’s book? VG roundup of the evidence (as it stood in 2022), and the barriers to getting the medical profession to abandon the dogmas around “normal urine is sterile” and the MSU culture “gold standard”. Wishing you all the best and looking forward to your future videos.
Thank you for this video. It makes me feel sane. I’m happy to be videotaped if it would help others. I just registered with your office for an appointment.
Finally a doctor who hears us! Ive had this over 25 years always e-coli. Symptoms are awful and life altering to dealbw this day in amd and day out. Im now going to KU medical but they dont even offer Next generation testing Or DNA sequencing. I believe biofilms w embedded bacteria is real. All doctors I have had seem to not know of this at all. Seems to be no hope for real Answer's but this doctor seems to hear his patients
Same here always ecoli, always comes back after the antibiotics. I'm tired of ravaging my body with them! I've been just keeping it at bay with natural remedies, but I can still feel mostly pressure, although I drink a lot. I'm not a fan of pharmaceuticals.
I have chronic UTI and I also have IC . It's very frustrating. I am currently really thinking about having my bladder removed . I have suffered 10 years now .
I've been having this problem for years. I had an infection from Klebsiella Oxytoca after having a hysterectomy. Been on numerous antibiotics that caused this bacteria to be resistant. Had a bladder scope to remove the bacteria. Because there was so much bacteria, it was'nt all removed. Now I have a prolapse bladder and have been given Cipro, with sudaafed, because I am allergic to it. So nauseated and constipated , it's a horrible antibiotic. In three days I have to have another culture. If it's positive I can't get a bladder lift. Will probably have to have another scope. What upsets me the most, is this infection came from the hospital. I think it will always be an on going problem. I'm wondering if an alkaline diet would help? Going out later to get some flora-gel, it's a pro biotic to replace the good bacteria that was killed off by the antibiotics.
Wish you were in the uk, I’ve lost a decade of my life trying to survive day to day with awful symptoms and it took me years to stop gaslighting myself, I always knew it was UTI, I have to buy my own antibiotics, the urologist doesn’t even think chronic uti exists, just IC and PBS. I have had to find the research myself (Prof Malone-Lee) and all the evidence showing that dipsticks and cultures are extremely inaccurate. Edit: sorry for terrible grammar, my mental health is shot as well and can’t even express myself coherently anymore.
Seems like we all have a similar story. Doctor you mentioned DNA but didn't elaborate on it? Briefly my uti's have been so frequent that I have now renal scarring. However, recently it seems thst there is a mast cell activation issue in several systems. Something that has quietened down my bladder significantly is fenofexadine 180mg daily. Also stops asthma, sinus inflammation, blockage and hoarse voice. However there are pus cells in the urine test. It seems to never end.
Can biofilms cause stones? I had bladder trauma from a poorly placed catheter and thereafter developed IC, and now, more than a decade later, I have embedded bladder stones. No idea what else it could be from.
I wouldn’t say I have recurrent uti. But I have had a couple over last few years. My culture always says negative but antibiotics always work. I am on a biological so I can get them easy.
I have no bacteria, but +2 blood in my urine. I definitely need help they keep telling me to go away. There’s no infection. It’s so painful. Can you offer any advice please?
Dr. B, how would you treat recurrent infections that are different bacteria every time a DNA test is done? I had an embedded infection of E-coli and was treated for one year with full strength Nitro. After that, I still get infections but they are different bacteria every time. I've had Klebsiella, E faecalis, and Enterobacter.
Hello doctor I am acute consistent multi drug ressistent patient from India. My age 49 years. I am on antibiotics since last 4 years. Most of the antibiotics ressistent now. Doctor says there are no antibiotics left now. The organism is E coli 90%. I hv IC also. After every Intercourse I used to get severe UTI. Since then almost 20 years I hv been taking antibiotics. But since last 4 years without any trigger I am having consistent IC and UTI.i I hv done almost40 urine culture in last 4 years After one corse I get another episode in next 10 days max. Can you help me pl ? I hv been cranberry supplements, d mannose, applying estrogen cream but it doesn't stop my UTI. Can repeated cystoscopy and Dilation would help? Is there anything which will relwive me from permanent urethra burning. Bladder tenderness. Permanent stress and absolute no life than UTI
I am so sorry for you. I am Indian too casually looking through the comment section fearing I may too get it one day for no reason at all. I don't think there is enough research and treatment available in india about this condition. Where are you from India btw?
So I have recurring utis due to E. coli triggered by sex. I’ve been able to prevent up to 3 years in between. What’s the course of action when I do get a uti? Only symptom is stinky pee. No frequency/no burning. Dr wants to give another 5 day antibiotic. I’ve already been on 2 different ones. Still have uti.
🥹 you are a kind man to reflect like this. In Australia they recently introduced guidelines for CUTI. In the uk not yet, and as the guidelines only mention recurrent uti, there’s no such diagnosis. Malone-Lee cured people with long term high dose antibiotics, at least one year long. Nitrofurantoin, Keflex, Trimethoprim - narrow spectrum ABX
Hi doctor B! I’ve been a patient of yours for three years in states and would do an interview! Thank you for helping me get my life back at only 22 years old. You give us all hope! 💗🫶🏼
![[LIVE] : ONE ลุมพินี 80 | คู่เอก "รักษ์ vs ยอดนำชัย"](http://i.ytimg.com/vi/ckLMRorsMeY/mqdefault.jpg)
I wonder how many women die in nursing homes from undiagnosed UTI. Labeled dementia or die of sepsis because of it. I bet if we really knew it would be shocking
Yes. Good point
You could not have explained this problem any better!! Thank you for being an advocate for patients!
Watching in 2024. You described ME!! Culture is NEVER positive but I have every symptom of a UTI. I’m SO sick!
Been dealing with these for 6 years since I went off hormones. 66 years old. I have a GREAT dr who sympathizes with me. I have been on multiple brands of antibiotics and symptoms always return. Tries everything holistic and also hormone cream.
Thank you for this!
My dad is incomplete paralyzed vet 76 years old shortly here in September 2024. He was paralyzed in 70s. Gained the ability to walk but with serve limp. But he was able to walk. He never could empty his bladder and would constantly get stones and UTIs. Come around 2010 he got into VA system in Vegas who have been excellent, but they just can't figure this uti thing out. He went to Long Beach as part on annual check up in SCI unit. Spinal cord Injury. They scanned his bladder and he was holding over 900 cc of urine. He had gone 4 decades dribbling out urine and never emptying it. They got him on a self cath system which greatly improved his life. Then he got a tumor in heart removed in 2015. That zapped a lot of his energy and he started using a cane and later a scooter. Now fast forward to 2021 and he has his first seizure . It wasnt a full shaking seizure but his eyes rolled back of head and he was confused and couldn't communicate, and mislabeled items like phone glasses, etc. He went to the hospital and they come up with its a uti causing backup to brain causing seizure symptoms. The gets cleared up and he's fine for about a year and they hit again. A little worse. He gets cleaned up again and he's back to normal , sharp as anyone but then they hit in 2023 a pretty bad 1 and has sepsis. He goes into rehab and gets cleaned but really can't get the ability to walk again . The last year he was usually only walking about 5 to 10 feet to get to bathroom and to scooter. So now he gets permanent foley and in April 2024 he gets a colostomy. It has been great cause he can go out without worry of trying to get to a toilet. But now in June he had a bad seizure with full shakes. He was cleaned up again and doing well at home with my mom but just had another bad 9ne and is back in the hospital as of 8-28-24. What can we do? Can we get him on permanent antibiotics? Thanks .
Thank God for Dr.B. I have my life back now under his care.
What did you do? I watched the video did I miss his advice?
Thank you for supporting us Dr B and giving us some hope. I am so grateful for your time and efforts to listen to us and for being our voice. Diagnosed with IC at 17 and still battling symptoms on and off. You helped me when everyone else gave up on me. I will be seeing you again soon.
I am so encouraged and excited to see that finally, there’s a doctor taking us seriously! I have been battling infections on and off for 30 years! I’ve been to 4 urologists during this time and every one has eventually told me to read about IC and good luck. I was 4 years infection free and as of November they are back. An infection every month since. I will be following your channel and looking forward to seeing what insights you may offer. Thank you, thank you for your work helping people like me find a permanent resolution and healing from these painful infections!
Have you tried fulguration ? I did it in Lima Peru , his center is amazing Urozen .
Thank you Dr B for this channel - I've never been satisfied with the BS diagnosis of "IC" - especially when meds work for a week, things get better, then it comes back...then meds work for another week, things get better, but then it comes back and the "urinalysis tests are normal" so it's all in my mind. (eye roll)
Dr B I am thankful for your efforts. My history dates back 44 years when I had my first urology referral. I have almost always had a positive culture with treatment of 7-10 days of antibiotics based on sensitivity. After menopause my symptoms increased as well as frequency. Always positive cultures, usually ESBL ecoli Same treatment, same outcome. I then saw a great infectious disease doc who put me on long term nitrofuantoin. I went a whole year without infection. He retired, I moved and the rest is ugly. 13 infections last year. 90% positive pseudomonas or klebsiella. I would be happy to be interviewed on you tube with you. Currently I am not a patient of yours, but thinking I will call for an appointment.
This was so valuable!!! I was left three weeks without antibiotics due to a negative urinalysis.. I knew I had a UTI. It got so bad I was in the ER. Finally treated with a 10day prescription of antibiotics!! I still have some symptoms.. I will be asking for another 10 days thanks to you!!! And make sure it’s an antibiotic I’m not resistant to!!! Please talk to doctors to believe our symptoms… we can die if it goes to kidneys and sepsis!!!
But many don’t want to be on long term antibiotics because it affects your microbiome. How do you help them eventually get off the antibiotics?
@@janetfagan7536Do you want to kill the infection or do you want to keep your microbes? You can replace those!
I'm one of your Canadian patients, and would absolutely agree to be recorded. If it will help others, especially other doctors, I'm willing.
@@shannonsmith6806 He also does phone and telehealth (online) appointments, thankfully.
@@shannonsmith6806 That's not what I did, but I think it's because it was during covid. I got VERY lucky as I can't afford to go there.
Male, 40 years old, I was diagnosed with interstitial cystitis 2 years ago and my life turned into a nightmare. I’m willing to do the interview and evaluation on video and anything necessary.
Godbless you dr.B.thanks for your videos
I'm from Germany and went through all treatments... UTI since 1½ years and nobody can help me because Dr. are just ignorant here 😢
Male, 35 here. i have been dealing with this horrible condition for the last two years on and off. I have been prescribed different antibiotics like cipro, doxcy and sulfamethoxazole and a few alpha blockers but symptoms disappear and always came back. my urinalysis and all the scans came out negative .some stretching exercises and hot bath helped me along the way. I'm still looking for a miracle cure for this condition as it is affecting my mental and physical well ness and also my sexual life significantly.
Have you considered bladder fulguration surgery? Dr B does this and is very good.
m a male suffer too
@@allytee3427so far i didn't get to the point where I see surgery as an option. On many forums I have seen a lot of people who got worse after surgery so I'm not even sure if I'm going to do it at this point. In my opinion, surgery should always be the last resort.
@@livehappyandblessed384 fair enough, I understand fully. I had chronic uti for 3 years before I had the surgery - 7 months ago now and it’s been a game changer for me. I know everyone is different but where the infection was in my bladder had unfortunately caused a lot of damage and squamous metaplasia, which the bacteria were sticking too like Velcro. They burnt out the infection and the damage, I have found it really beneficial. I hope you feel better soon and find healing. This illness is so hard.
Before the surgery try this, limit your sugar intake, start taking lots of water as well as 20 cloves of garlic and 3 cloves once a week but make sure the infection is not active because this prevents it from coming back, it's no t a cure, i am living proof of this.
Hi Dr B, just subscribed. Am a former UK GP, also patient at Prof Malone-Lee’s chronic UTI clinic in London. Went through the same process of realisation as you due to both my patients’ and my own symptoms and responses to treatment. Have you read the Prof’s book? VG roundup of the evidence (as it stood in 2022), and the barriers to getting the medical profession to abandon the dogmas around “normal urine is sterile” and the MSU culture “gold standard”. Wishing you all the best and looking forward to your future videos.
Thank you for this video. It makes me feel sane. I’m happy to be videotaped if it would help others. I just registered with your office for an appointment.
Finally a doctor who hears us! Ive had this over 25 years always e-coli. Symptoms are awful and life altering to dealbw this day in amd and day out. Im now going to KU medical but they dont even offer Next generation testing Or DNA sequencing. I believe biofilms w embedded bacteria is real. All doctors I have had seem to not know of this at all. Seems to be no hope for real Answer's but this doctor seems to hear his patients
Same here always ecoli, always comes back after the antibiotics. I'm tired of ravaging my body with them! I've been just keeping it at bay with natural remedies, but I can still feel mostly pressure, although I drink a lot. I'm not a fan of pharmaceuticals.
Hi Dr B I would be happy to do this interview, I am an international patient of yours :)
I have chronic UTI and I also have IC . It's very frustrating. I am currently really thinking about having my bladder removed . I have suffered 10 years now .
I have both as well. Can we please connect? I am going through it bad lately & no one understands
I've been having this problem for years. I had an infection from Klebsiella Oxytoca after having a hysterectomy. Been on numerous antibiotics that caused this bacteria to be resistant. Had a bladder scope to remove the bacteria. Because there was so much bacteria, it was'nt all removed. Now I have a prolapse bladder and have been given Cipro, with sudaafed, because I am allergic to it. So nauseated and constipated , it's a horrible antibiotic. In three days I have to have another culture. If it's positive I can't get a bladder lift. Will probably have to have another scope. What upsets me the most, is this infection came from the hospital. I think it will always be an on going problem. I'm wondering if an alkaline diet would help? Going out later to get some flora-gel, it's a pro biotic to replace the good bacteria that was killed off by the antibiotics.
Viele Dank für die Videos bin auch betroffen LG Petra
Diagnosed with IC nearly 30 years ago. Sure hope something can finally help.
I treat myself now with Hiprex. I will stay on it indefinatley
Wish you were in the uk, I’ve lost a decade of my life trying to survive day to day with awful symptoms and it took me years to stop gaslighting myself, I always knew it was UTI, I have to buy my own antibiotics, the urologist doesn’t even think chronic uti exists, just IC and PBS. I have had to find the research myself (Prof Malone-Lee) and all the evidence showing that dipsticks and cultures are extremely inaccurate. Edit: sorry for terrible grammar, my mental health is shot as well and can’t even express myself coherently anymore.
Seems like we all have a similar story. Doctor you mentioned DNA but didn't elaborate on it?
Briefly my uti's have been so frequent that I have now renal scarring. However, recently it seems thst there is a mast cell activation issue in several systems.
Something that has quietened down my bladder significantly is fenofexadine 180mg daily. Also stops asthma, sinus inflammation, blockage and hoarse voice.
However there are pus cells in the urine test. It seems to never end.
Thank you for caring.
I’ve been dealing with this since 17 yo! I can’t wait to see you next month!!!!
Hi doctor B, I was dianosed 10 years ago with IC, suppose to meet you at 6/29 and if you want you can interview me for your channel
I have a chronic uti for the past two months. A slight infection.
Can biofilms cause stones? I had bladder trauma from a poorly placed catheter and thereafter developed IC, and now, more than a decade later, I have embedded bladder stones. No idea what else it could be from.
I wouldn’t say I have recurrent uti. But I have had a couple over last few years. My culture always says negative but antibiotics always work. I am on a biological so I can get them easy.
I’m watching this video 3/2024. UTIs almost every month. What is the treatment?
Спасибо)
Any suggestion to treat pseudomonas inside bladder and four years of bladder pain diagnosed as IC?antibiotics have not worked !
What is you have chronic ITI’s but also have had C-DIF multiple times? HELP!
I have had chemo for cancer and suffered with utis after . Always had them but they got worse.
Immune system?
I have no bacteria, but +2 blood in my urine. I definitely need help they keep telling me to go away. There’s no infection. It’s so painful. Can you offer any advice please?
Dr. B, how would you treat recurrent infections that are different bacteria every time a DNA test is done? I had an embedded infection of E-coli and was treated for one year with full strength Nitro. After that, I still get infections but they are different bacteria every time. I've had Klebsiella, E faecalis, and Enterobacter.
Interview me!!
I have recurring utis and frequent urination!
Hello doctor I am acute consistent multi drug ressistent patient from India. My age 49 years. I am on antibiotics since last 4 years. Most of the antibiotics ressistent now. Doctor says there are no antibiotics left now. The organism is E coli 90%. I hv IC also. After every Intercourse I used to get severe UTI. Since then almost 20 years I hv been taking antibiotics. But since last 4 years without any trigger I am having consistent IC and UTI.i I hv done almost40 urine culture in last 4 years
After one corse I get another episode in next 10 days max. Can you help me pl ? I hv been cranberry supplements, d mannose, applying estrogen cream but it doesn't stop my UTI. Can repeated cystoscopy and Dilation would help? Is there anything which will relwive me from permanent urethra burning. Bladder tenderness. Permanent stress and absolute no life than UTI
I am so sorry for you. I am Indian too casually looking through the comment section fearing I may too get it one day for no reason at all. I don't think there is enough research and treatment available in india about this condition. Where are you from India btw?
So I have recurring utis due to E. coli triggered by sex. I’ve been able to prevent up to 3 years in between. What’s the course of action when I do get a uti? Only symptom is stinky pee. No frequency/no burning. Dr wants to give another 5 day antibiotic. I’ve already been on 2 different ones. Still have uti.
If you have no symptoms i wouldnt even bother. Consider yourself lucky
Hello Doctor, Micaela here, sorry for my english, I think maybe you mistake in the uploading because this video is the same at the first video
🥹 you are a kind man to reflect like this. In Australia they recently introduced guidelines for CUTI. In the uk not yet, and as the guidelines only mention recurrent uti, there’s no such diagnosis. Malone-Lee cured people with long term high dose antibiotics, at least one year long. Nitrofurantoin, Keflex, Trimethoprim - narrow spectrum ABX
Hi doctor B! I’ve been a patient of yours for three years in states and would do an interview! Thank you for helping me get my life back at only 22 years old. You give us all hope! 💗🫶🏼