Chiari Malformation is when the brain starts deviating into the spinal column. It often presents with Hydrocephalus (Water on the Brain). I have the latter, but not Chiari Malformation. I'm so sorry your mother couldn't be saved. You should take legal action against that hospital. Appalling. I'm sending you all my love. 💜
Sounds like Ester is alive to spite the hospital ! 💞😢💞 Just know Andrea we may not be with you physically but mentally ALL of your followers have got your back ! We are ALL cuddling & praying for you & your beautiful family ! 💞❤️🙏🏼❤️💞
A lot of what you are going through mentally is a grieving process, true she is still alive but you are being told she will never be the same again . Give yourself grace and time to absorb the new situation and make sense of all of this . Remember if you don’t take care of yourself you can’t take care of anyone else. Sending both of you prayers. 🙏🙏🙏
VT Lisa here. I found Mayo Clinic in Jacksonville Florida specializes in treating with a team for EDS. PLEASE CHECK IT OUT. Love to you all. I remember Abigails sonograms where you were told she had no cerebellum. Crazy. Frightening.
I called them before any of this happened. I know it says they have a clinic in FL but they do not. If I wanted to go to any Mayo Clinic, its $5,000 cash before I can make an appointment because they do not take my insurance. I cant even make this stuff up.... Thats just to walk in, not to get testing done to see which type we have or try to get any kind of treatment. I cried on the phone, literally nothing for us atm.
Good to know your mother is waking up... she is always in my prayer also do keep my mother in your prayers as she is also in ICU in COPD related issues
Praying for your mom and family. My daughter was diagnosed at 6 with Chiari Malformation. She never had to have surgery for it but still gets terrible headaches but has learned several ways to handle them. Try and get Abigail into a pediatric neurosurgeon that knows what Chiari is and have them give her a MRI.
I have praying for your mom ever since, you let the fans know about her aneurysm. I’m so sorry about her strokes and the coma. Don’t lose your faith and hope that she will pull through her trauma and health issues. I’m so empathic, I cried and told God to send love and healing to your mom today. I feel your pain God bless your entire family. Keep us updated Andrea.
I know how you feel Andrea, I wont go into details of what I went through with my Mum but the sights and smells, noises and seeing your parent in that way in hospital, it is so hard to comprehend. It toughens you up mentally somehow because sometimes thats your automatic way to be able to cope with it. What you say about should you get healthy or whats the point, of course you should get healthy without doubt, not one of us will be here forever, whilst we're are here we owe it to ourself and our loved ones to look after ourself in the best way we possibly can. It makes sense to look after your health and reduce your chances of illness and that means more chance to enjoy life and be with our loved ones. You've got really look after yourself in this situation, its good that you're recognising that and taking time out when you need it, so important. Still thinking of your Ma every day and hoping praying for her recovery. Bless 🌞
Andrea, your health will give you more years with your precious children. That is the main point. I hope Abigail is ok. Maybe she needs to go in for a brain scan.
Esther is always in my prayers. I just found out yesterday, my 43-year-old nephew was given Monjourno for his diabetes. He also has a rare form of MS and has been wheelchair-bound essentially in his early 30's. Because of the mon journo, he had a severe allergic reaction to that. He ended up having some sort of an episode, not really knowing what type of episode other than aspiration. He is currently on a vent and has been on one for 13 days as of today. The doctors are saying that he needs a miracle, so if you all could maybe put a little extra prayer in for my nephew, Andrew, I sure would appreciate it.
That is why they intubated my mom, they were scared of aspiration pneumonia. I am praying that your nephew comes out of it, and I bet he will, since he already has a high pain tolerance with the MS! You just never know with those types of medicines, if you will be allergic to it. I was scared to take my initial dose and I still have it. My insurance wont pay for any more, so there was no point in taking the first dose. I cannot pay cash for it atm. I was always scared to do the IV iron infusions as well because if I have an allergy to it randomly, then I'd be in the hospital just like your nephew. You literally cannot predict these things. One time you may get it and it will be fine, and another time its not. I do wish these medications were honestly tested and reported about so we would have better information on allergy to them! I will definitely be holding him up in prayer. He is young, and thats a big thing for recovery
Kristen, I am 66yrs old and female. I have MS and had cancer 2 times. I also have Type 2 Diabetes and I am new to Monjurno for 5 weeks, 5mg.There are 2 people I know that have had problems with the effects of Monjurno. I'm so sorry for your neohews health problems. There are No Cases of MS in my Family from Mother or Father's side. It effects my Brain function aka Brain Fog and My Speech, and my right foot drags at times causing serious injury from falls. I will keep each of your Families in my Thoughts and Prayers. Bless All. ❤️🙏🏼
Andrea, virtually everything you say deeply hits my heart. I’m going through this with my nephew who has been in a coma, now DOC (disorder of consciousness) since May. The fluttering of the eyes, such a huge deal; every single stroke is a gazillion steps backwards. The list goes on and on. Thank you for posting because you just put into words ALL the crazy issues with medical staff, medications, heartbreaking ups and downs, the future, the teeny and major victories . In one minute everyone’s life is changing forever. Please do take care of yourself by taking a personal mental health day or two. Thank you and many many blessings for your entire family.
Andrea you're right it's so hard to see the first person to love care and protect you be so vulnerable and suffering. It's horrible. I feel you on wanting to be there but you just mentally can't it's hard when you want to be in there for them but you gotta take the time to get away from the worry pain beeps smells sights and information its sensory overload. You'll go through every emotion you can imagine. I'm hugging you from afar right now My prayers are going to be with you all. ❤❤❤ Give yourself some grace, Love from Virginia
Your mom has beat the crap out of the odds so far, so I am praying it is just a matter of time before she wakes up. My heart was filled with joy when I heard her talking and laughing through the mask when the male nurse was helping her sit up. God it's so crappy that they caused her to deteriorate past that point. Hopefully this is just a hiccup in this journey she's on. Praying for you guys ❤ Andrea don't feel bad if you can't go up there everyday. Your mom knows you're her dearest advocate and would want you to get your rest too. Love to Ester Grandma from MD! We wanna hear you laugh with your beautiful grandbabies again!
I totally understand what you mean I have G.A.D. And my daughter was in hospital for over a year with a rare brain infection called Encephalitis anti nmda receptor autoimmune …and went to visit her every day then some days I would break down and say to my husband and other daughter .I can’t go today I just can’t .as it so hard to watch and feel helpless and pray all will be ok so I understand the pain you are going through sweetheart hugs and prayers for Esther and all your familyxx
Your mom is a super strong woman and God saved her cause she is a fantastic mom and grandma but she is damn lucky to have a daughter taking such good care of her too! Don’t forget about that Andrea.. sending big hugs and love! Super proud of you .. hang in there! Sending more prayers and positive light to the whole family!❤❤❤❤❤
I’m so sorry you’re going through this. My mom’s kidneys failed and it caused her to swell up so bad, I couldn’t believe someone could swell up that big it was crazy. I hope she wakes up soon, and you have to take mental health breaks ,I know it’s hard. Stay strong. 🙏🏼🙏🏼
Miraculous is how I describe your mom. I had cluster and migraines as a child. Glad you are on top of everything Andrea. Love your family and keep you all in my heart.
I'm so sorry to hear about all the suffering Mom is enduring, and I hope you find help for Abigail very soon. It's too much. Love and prayers to all. 🌹
Andrea, i’m so sorry to hear about your mom, I hope she does pull through. I know you’ve been through a lot recently, especially with your own health and I’m so sorry to hear that .
Praying for your Mom and family. I believe she is going to be a walking miracle in time. She's a strong woman🙏🙏🙏 Prayers do work!!!!🙏🙏🙏🙏 In the months to come she or your Dad should sue, sue and sue some more. No excuse for that many hospital mistakes!
oh Andrea, I am praying for your family, i have always felt close bond with you, my mom had a aneurysm when she was 36, she was in hospital for over year, and has never really been same person. She wasn't meant to live beyond a few years and she's 60 now but severely disabled and has been since the stroke.
My 45 year old daughter has Chiari. She was finally diagnosed less than 10 years ago. She had the surgery less than a year later after having symptoms for years. There are so few doctors who know anything about this. Even the surgeon who did her surgery won't take her as a patient any more. He said he cured her with the surgery. In most cases, it does not cure. There is no cure. ER visits for the horrible headaches are all the same...."Chiari malformation? What is that?" Followed with pain meds that don't work and sent home after 4 hours in the ER.
Praying for your family. You're a toughie. I remember when you finally got a diagnosis and all the medical stuff started to make sense. I remember thinking that you never really let on how much pain you were really in until after the diagnosis. Im confident that you are taking care of everyone else right now. I hope you are finding the time to take care of yourself through all of this too.
I’ve been thinking about you and your family. Prayers for your mom and all of you. I know it’s tough bc I’ve been through similar with mine. I don’t know how you do it all. I know you posted a video about your iron levels too and pray that you have energy, positive info on your mom and all. Rooting for you all!
Yes, Andrea! I remember your pregnancy with Abigail! When they told you this about Abigail, Hadar had to come to the States to work. I was so worried about you! You were all alone in Israel. You and Rafael...❤ Your Mom knows and understands what you are saying to her, Andrea! She knows you are there for her...IMO... The human brain is remarkable, and your Momma is a strong lady! As always, my love and prayers are being sent to you and your Momma from Louisiana...🙏🙏❤❤
Heeey! I wanted to tell you for the longest time - you remember that Unicorn dress you gave Abigail? it still fits her.. That was like 3 or 4 years ago and she just wore it the other day and I kept wanting to tell you lol. I dont know how it still fits! And Rafaels ninja outfit fits too, of course he chases Abigail around with it at least once a week rofl. My mom absolutely understands what I'm saying because I can see it in her actions and facial expressions. She raises her eyebrows when I say something questionable, like "youre doing so good, mom" and I can SEE her in that expression. I know she will never be the same, but she has slowly started to wake up and she is starting to mouth sentences and words. It is the weirdest thing to be blessed with 2 miracles, but that has got to be the power of prayer and she deserves to be here longer with her grandkids. She has done so much for everyone in this family, and I hope she gets that chance. Thanks so much
@@FoolyLiving Aww... I'm happy "Abigoo", and Rafael are still able to use their costumes! I watched the vlog where Rafael opened his birthday gifts... 11 years old, WOW! My goodness time flies! I still can see him crawling around on the floor pulling Hadar's weights out from under the TV cabinet! LOL! He was, and still is, a precious and funny boy!❤ Abigal's hair is so long and beautiful! She was jumping and dancing so much, she JUMPED her hair right out of her ponytail band, LOL! She is a beautiful little girl! The older she gets, she looks just like her Momma!💞 Yes, your Momma still has a lot to do in this life, and with a daughter like you, I know that with your help, she'll be on the mend soon! As always, my love and prayers are with you AND your Momma, from Louisiana...❤🙏
@@FoolyLivingso good news I really search the comments on videos to find how she's doing now and so happy to read there's hope 🙏🏻 All about the eds brought also some worries to me my son has autism the one the other tourettes and we noticed with our son with autism stretch marks at his back what's not usual for 15 years old and also my husband has such stretch marks at his legs since he is young so I worry about the eds topic. But so happy to hear some good news From Esther!! I'll keep sending my thoughts to her.. 🤗👍🏻
Andrea, I feel your pain so much! I know this has all been so hard. I love my Mama and was so close to my grandmother. I don’t have many friends outside of my family, since having a severely disabled child. You have big shoes to fill Andrea. Stay strong! Love to you my precious sister!❤
Everyday I pray for your mom, she is strong and she will ge through this. It's really unfortunate that doctors and nurses treat coma (or unresponsive) patients as if they are objects, it's not that hard to warn the patient that they're about to be poked or have a procedure done. It's basic human empathy... At least you and your family are there to tell her what's going on. Doctors clearly don't know everything, so don't lose hope! Things will get better. ❤
Andrea, I am sorry to hear that your mom isn't doing well. I pray that she makes s full recovery and that you are able to figure out the cause of your daughter's current health issues.
I can relate to this so much, unfortunately. My Mum is now recovering. It was awful to see her in a coma, looking like shes suffocating with a trach. That really traumatized me tbh. She has lots of complications, but she's home.
❤ Oh my goodness Andrea, I can not imagine how you're able to even wrap your head around all this especially with having to suffer from your own ailments. It's just all too much for anyone to go through. I've suffered many bouts with diverticulitis and i also suffer with TN, (Trigeminal Neuralgia) known as " the suicide disease" it's the most horrific pain on the left side of my face, it's neurological. I also have had to endure the deaths of both of my 17yo and 40yo sons. But Andrea this is just pure agony what you're having to endure. My mind is just blown away with what your precious mom is going through. I can just imagine all you think of is what she's going through and she can't even speak for herself. Bulldoze your way through those 3 doctors, keep them on their toes while you're in the room with your mom and tell it like it is with "all" the nurse's, you don't have to be on their good side but I know you're already 3 steps ahead of any of my advice. I will continue to pray that God's will for your mom is to get through this, if not then I pray God keeps her from anymore pain and I pray for little Abigais health as well. Your mom is a fighter yes so just hang in there kiddo ✝️🙏❤️
Keep fighting for her. Her body is just resting so her brain can recover. It might take some time but shes still there and clearly giving you signs shes conscious. Shes still young and has many years she could still live. Ill keep yall in my prayers.
My Dad had that and would have black out episodes. Basically his brain stem was too long and dangling along his spinal cord and compressing causing him to black out. They gave him medication (don't know what it was called) that he was supposed to take for life to help shrink the brain stem. Seemed to work because he is fine now and off the medication. There is hope :) hang in there.
I'm glad your dad is better. But there's a bit of mis information here, maybe you're confusing malformations. There's no medication in the world to help or cure chiari, There's only one thing to "treat" it: SURGERY and all it does for most people is stop developing more severity in symptoms but sometimes for some time only not forever. And the other thing is that the brain stem doesn't "shrink" it's not a tumor is a part of the brain!. Maybe he took some medicine that help him stabilize his balance to stop blacking out.
I remember that with Abigail! I had a daughter born with Dwarfism and just a ton of problems. It was a whirl wind coming at me. She passed but, I remember watching you when I could take it. So much life we go through as woman with our families. Provigel is some good meds. Seeing your beautiful Mama that way must be so hard for your heart! Wondering about your Dad. His poor heart! I can’t imagine seeing my husband that way! I could go on and on! Just know we care!
Andrea you might want to start playing the videos for your mom in the hospital it helps with stemming the brain to heal ❤❤❤❤keeping everyone in my prayers much love from my home to yours ❤️❤️❤️❤️
Thank God you got my esp message about the gummy bears and blood clots 🤣 The peg tube will eliminate the need for the tube in her nose so that will provide a bit more comfort. She’s lucky to have such a wonderful advocate as you! ❤
Absolutely heart wrenching to know all Esther is going through, as well as the whole family. My heart goes out to y’all… my own precious Mom went through a similar situation. Praying with you all daily for Esther’s complete recovery, in spite of anything or symptom suggesting otherwise. Jesus is still in the miracle and healing business - nothing is too difficult or too far gone for Him to redeem. Much love and prayers for strength and comfort to you, Andrea❤️✝️🙏🫂
You say that, and Ive seen that as well. God is good all the time. He knows why we have to go through these things. Praying for your family, too. It is a long hard road, no matter what stage youre in! The thing we're dealing with since we arrived at the hospital on Thanksgiving is they have all been waiting for her to die at the hospital, while my mom shows them that shes not ready. They don't like to see miracles or something? Thanks so much, I'm sorry you have had to go through this. I would have never thought I'd see something like this!!
Well said and thank you, Sister❤️🙏 It seems they don’t expect healing…in a hospital…go figure. My precious Mom was also in a coma… and my heart breaks for you & the family because I understand the surreal, nightmarish hell that is. The daily stress is tremendous. Esther is a true warrior, bless her heart! Agreeing daily with you, and all here, in prayer for her complete recovery in Jesus name. Much love to you and the family❤️🫂🙏
Oh Andrea, my mum died of a brain aneurysm, my dad died 6 months later of an aortic aneurysm, I went to my doctors and begged to be investigated as I feel I am at risk. I was told to go away and it's not hereditary. I'm in uk and don't know how to get further opinions. I'm thinking about your mum every day. X
So sorry. Keep trying other doctors. I asked a doctor (also uk) to check out my heart after several sudden deaths in the family, it’s hit or miss whether you’ll get a compassionate doctor. Keep trying and asking for different doctors.
I hate Grandma going through this and I hate that you and yours have to go through this. I recently lost a dear friend of mine to cancer that I was taking care of and he wanted to be donated for science, so that's what we did. Good to know more about the medical for Miss Abigail. Def. continuing prayers for all of y'all.
You did a great job explaining everything, thank you for that, I pray that she gets better and I hope that her will to live gets her through this, and fully recovered, and I hope you get Abigail to a doctor soon. Hugs❤️❤️
I'm so sorry 😢! I'm praying 🙏 for you and all your family !! I've been on both sides, my dad had multiple strokes, was his full time care giver and only 24/7. So I know how hard it is to see. I totally understand how you feel and how mentally and physically emotionally exhausting it is. 😪! And in 2016 I myself was life flighted and put on a ventilation machine for 10 days. They really acted like they didn't even want to come in and take care of me!! My husband refused to leave me, and I believe that's why I'm still here today!! 2022, I caught the big C. I was in CCU for a month on that bypap, and it was scary! They were on lockdown, and my husband was not allowed to come into the hospital at all!! Both times, I've seen things heard things people can not think of, and yes, the smell is something people 🙄 can't think of!! Praying 🙏 🙏 🙏
Vermont Lisa again. I have to say your life, your family life is of value. It is not pointless. Please do not take this the wrong way; We are only here temporarily. I personally believe our struggles are here and now. Good times too. We do the best we can, we are kind and loving. We teach and love our children and families; do the best we can. I really believe after this life; we will all be reunited again with unimaginable happiness as well as no more sadness and worries. I have had my life robbed as well with health issues. Just do the best you can . Don’t do what you can’t do. The rest will be what is going to be. So have hope and faith my friend. You are doing great under the circumstances. ❤ prayers for your mom’s doctors to do the right thing. I hate the unnecessary comments on our loved ones charts too. Hello, “you don’t know my mother” It’s Grandma, the fighter! One way or another you will all be ok.
Andrea, I am so sorry to hear this. I will be praying for you all and your Mother. I have not been well since Christmas and posted little but I kept wondering why FB was not showing my friends. Today you came up and I have been watching all about your mother and what happened. I know this must be so painful for you. I will be praying daily for her and for you all. My heart hurts for you but I believe it if it is God's will he can do anything. I know he did when 5 years ago they told me after a bad fall that I was going to die that night from the largest blood clot that was heart to lung that they had ever seen and I told God if it was my time, I was ready ..if not please leave me here. And I heard a voice in my heart say "don't worry. You will be ok." And then I saw Jesus. After the doctors left my son CJ who was with me through it all said "Mama..mama..you are going to be ok". I asked him did he see what I saw and he said "I didn't see anything Mama...I just heard a voice say "Don't worry son. She will be ok." So, keep your hope and faith going and give all the glory to God for he can do anything. I am praying and know I care so much. Your mom is a tough lady and God is even tougher. Love you. Lord, I lay Andrea's mother in your hands for you are the Great Physician and Healer and can do anything. I pray that if it is your will for her mother to remain here with Andrea and her family, that you will do it. I ask you please to flow your love and peace on Andrea,Hadar and the children so that they feel you close and so that her mother is comforted during this difficult time. I believe in you Lord. I pray in Christ's name Amen.
A peg is a feeding tube , ileostomy is a stoma for the small bowel or colostomy us a stoma for the large bowel both are for the poop. I do hope yourmom is getting better
This video brought tears to my eyes,ur mom is a fighter, she shld come out of all this. Do get abigail tested for her headaches.i pray for u ur mom and abigail.andrea u are really a courageous woman,may the lord help u overcome all these problems.🙏
Vermont Lisa. I’ve had cancer from the braca 2 gene like a lot of women. All family on my Dads side had that and ovarian. Ok enough about me. My point; I keep coming back to this video because you are right! No health, no life. I have to believe there is a reason that I just need to have faith. Even my Dad passed away few years back with breast cancer. So hard and this video hit me hard because you are feeling exactly what I feel at times. Just teetering one way then the other. Life can be so hard. I chose to have hysterectomy because I found the drs saying to all my family extended “go home have your babies then hysterectomy “. I said nope, I am not going to ramp up my hormones and then not be there for my babies. Right decision for me. That is why I watch your kids grow up and just adore them and my neighborhood is full of kids. Always at my house after school. One on one or group homework. They feel special. Parents appreciate it. So apparently I didn’t need to have my own; there are lots of kids that need attention with adventures, riding a bike, feeling special and homework. Ive known them all since babies. Rafael and Abigail too. As much as I can.
I’m just as conflicted as you are after what my dearly departed husband went through - the pain and suffering is unbearable! It also left me with PTS. But I do know if I was in that position I would want a DNR - but that’s me. I’m praying for your mom, you and family🙏!
Oh Andrea,I am heartbroken for your mom and whole family.I am very sorry all this has happened.I loved your videos the most when your mom was in them😢,thinking of her here in Maine🙏Wish you could transport her to Boston,they are the best there.
Vermont Lisa here. TH-cam Dr. Paul in one of his many videos talks of EDS. I’m not sure which one maybe toward the end. He know longer practices. Pediatrician. Take care. Prayers
I remember when my mother lived in TN and I went down to visit her, I live in NH so it was quite the drive. By the time we made it to TN i got a call from my mothers caregiver/family friend telling me that my mother had a seizure that was really bad so she was rushed to the hospital. When we got into the hospital I saw someone from across the room with their head wrapped in gauze and wires protruding from her head. I turned and told my husband how bad that person looked, and I hoped that wasn't my mother. We asked the head nurse where my mother was, and to my shock and dismay, the person with their head wrapped WAS my mother. She looked so helpless and a shell of what I remember her being. It was so surreal, and to know my mother and I are a lot alike it scares me that I may develop the things she has. I hope your mother gets better, It is extremely difficult to see a loved one you knew to be vibrant and busy to a former shell of themselves. I also hope that you take that hospital to court!
This is so sad, Nursing care standards seem to be deteriorating, whilst all the equipment keeping you alive, personal care ie, hygiene, cutting nails, combing hair keeping comfortable and clean doesnt seem important. But it is. Prayers for Esther and your family.
So sorry about everything you’re going through. Glad to read on the description grandma is holding on and getting a bit better each day. I’ll keep sending prayers! 🙏🏻 About the doctor that is true. But must be a Florida thing(oh how I miss living in NY!) because we moved here in 2019 and during covid I didn’t go to the doctor because I didn’t want to go if I wasn’t sick and risk catching covid and they almost dropped me and my husband as well! They said we haven’t been for couple years(again during covid I didn’t go anywhere) and they said if we don’t go for our yearly check up then they can drop us and we would have to start all over again as a new patient. So I’m like, I’m forced to come to a doctor’s office even if I don’t feel sick just so I can keep being a patient here?? It’s like a membership to a gym or something! Is this about money? Has to be right? I know it’s good to go once yearly but if you feel fine then I don’t see a reason to go and have to spend the money. Because our insurance is not great and we have a very high co-pay so each visit we pay 100% until we meet a certain deductible. It’s ridiculous! And I don’t remember being like this in NY. Also what you said about doctors just don’t care I feel it’s true for Florida as well. They don’t care or don’t have doctors! I’m trying to find a pediatric allergist for my son in Naples and I’ve been told to drive 2 hours to Sarasota for one!! I have a friend who has EDS in NY, her and her two kids all have it and apparently doctors there are great for this condition. I wish the doctors here were great too. I don’t understand it. Looking forward to moving back to NY one day. My friend always told me people move to Florida to die. I used to laugh at her and think she was just mad that I was leaving NY and our friendship and moving so far away from her but now I totally understand and believe what she said. The health care system here is horrific!! Hang in there Andrea! Please think about creating a gofundme account for your mom’s bills. You have a lot of subscribers and a lot of us who love and care so much about every single one of you. Every little bit helps. ❤🙏🏻 Thanks for the update and looking forward to more.
@@fionafifi7029 wish she would see my comments and set one up. More people have suggested the same. Also when the time is right I’d look into a lawsuit against the hospital! Doctors now a days need to be more aware and careful! They almost killed my mother twice at two different times when she had two stents put in. The second time was even worse than the first. And they hide so much information!! She had complications the first time so we brought up these complications when she was there to have it done the second time and those original complications that we were told about the first time weren’t even on her chart!! The doctor is looking and saying. 🤔 ummm I don’t see any notes about this happening, are you talking about the time we had to use the paddles on her to bring her back?” My sister and I looked at each other like WHAAAAAT?????? That happened????? We were never told about that!!! It’s a sad sad situation! I had to go to the ER about almost a year ago for blood transfusions due to low iron and I was so scared if I was going to come back home alive! They kept me over night and each time a new nurse or doctor came in the room they were like: “soooo what brings you in here today?” I’m like for real???? I have a blood bag drip going, I’ve only been here since yesterday afternoon and not one of you know why I am even here????? 🤦🏻♀️🤦🏻♀️🤦🏻♀️
You can live ok with diagnosed chiari. Don’t worry bout her baby scans now they mean nothing she needs a current mri to diagnose her. Take her via an emergency department
I started therapy recently to process medical trauma from my sons severe medical issues. It has been helping a lot. Do you think you’d be open to that? This is all so traumatizing for you and I don’t want you to struggle alone 😢❤
Both of my sons and I all have hEDS without pots. I have chiari malformation also. And, as you know, they all go hand in hand with autism too. None of us have heart issues from EDS, we’ve all been tested. I didn’t know it could cause brain aneurisms. I hadn’t ever seen or heard that before. I’m definitely going to look into to it! I pray your mom will continue to improve day by day. Edited to add: it’s pronounced key-are-eee. I had brain decompression surgery in 2012 where the surgeon removed a piece of my skull, cauterized off my hanging brain tonsils, untwisted them from my spinal cord, drilled a larger hole in my top 2 vertebrae, then patched my skull up with a bovine patch. 😬
I tried to make an appt with the mayo clinic, and i know it says that online it has an eds clinic in FL, but it does not. I could go up to another state, but they dont take my insurance and want $5,000 cash for me to walk in and be seen. It's INSANE. I cried on the phone with them because this whole situation is hopeless.
@@FoolyLiving yes i think you actually need to go to the Dysautonomia clinic first and they refer you to see rheumatologist/geneticist/neurosurgeon depending won what you need. And yes, if your insurance isn’t accepted it’s ridiculously expensive. I went to Mayo in Phoenix and they did take my insurance but still cost me over $6000 but I was there for a month….
🙏🏼 This is super stressful. Remember to get good sleep and take care of yourself. Hope you have a great set of headphones. Music helped me. I’m kinda sick too. We need distractions 🤙🏽🎧
Andrea? We got faith that your family health will be heal and deliver our prayers went up in heaven and it will be accomplished very soon for us in God's Almighty perfect time what is impossible with us is possible with God Almighty ❤
I was diagnosed with POTS over 15 years ago and my daughter was diagnosed at 11 ( she is 23 now) and it truly sucks. My daughter is very controlled with diet and exercise. Me on the other hand, have had a hell of a time. Brain fog has really been bad the older i get. I also get the numbness all over before i pass out. Luckily there is a lot more known about Dysautonomia now, where little to nothing was known just 10 years ago. Will keep yall in my prayers.
Andrea, this whole thing is heartbreaking. 😔 The fact that you have to stay on top of your mom’s condition & you’re dealing with your own medical conditions, & now your daughter’s, must be exhausting for you. One thing I know is that you have to take care of yourself. You won’t be able to support your family if you’re not mentally & physically rested. I can tell you’re numb to the whole situation. I’ve been there. Please try to rest & take care of yourself, as difficult as that is right now. We will continue to pray for your mom’s healing. 🙏
Ahhhh !!! These old videos are driving me nuts lol I just want to know how everyone is you, your mom, the family, like this is making me bite my nails the anxiety!!! ARE YALL OK ?! Been so worried bc we are now in February of 2024 been watching for so long so its suspenseful!
I remember when you went through that with Abigail, Please find a Hospital to take her to there has to be a Children’s Hospital somewhere around you. I will be praying for her and your Mom, you have to be so stressed I know when I was going through things with my Husband and I didn’t Cry for a while because I didn’t want to he to see me upset but the day I did I went the some friends shopping and all of a sudden I just fell apart so glad I was with my friends. I do know what you are saying about not wanting to see her that way I feel that way about my Husband. I am praying for you so hard, Love and Hugs!
My Dad has a ton of Blood issues ...he's 84. 2 major back surgeries the past 2 yrs....it's funny because he was put on Heparin and for some reason I did a bunch of homework on this med: The optimal duration of intravenous heparin treatment is five to seven days because this is the time needed to obtain an adequate and persistent reduction in the vitamin K dependent clotting factors with oral anticoagulants such as warfarin. Your Mom is so unique, rare and special, I'm so sorry she is allergic to this, as it's a staple in almost all surgeries to prevent blood clots.
My sister has EDS without POTS, thankfully. You had blood clots since your "oldest" son was born, not your youngest. You are definitely suffering from aphasia. Also, they most likely didn't investigate a chiari malformation at birth with Abigail because she wasn't suffering from hydrocephalus, spina bifida, or showing any other related symptoms. Thank you for sharing such intimate and vulnerable information. All your thoughts and feelings are validated. I think this Vlog was healing for you. You are an extremely strong and brave woman, as is your mother. You are doing an amazing job just trying to exist, being present for your mother, and let alone taking care of your family. You are very lucky to have Hadar. He is wonderful in every way. I can't speak highly enough of how good he is with your children and dealing with all your health issues. You are both very special souls. Sending healing energy to your entire family, including the children. I know you are keeping them up-to-date, yet shielding them from the trauma of it all. Yet, they are still very affected and thankfully wonderfully taken care of by their parents. 💓
Andrea hello my girl..... Hope your mom is not feeling pain....gosh this is sad....very sad and your not all that well too....feeling very sad and anxious for you all....God be with you all....hope children Hadar Rudi and kitty are all ok .....please Lord heal her Lord.....in Jesus name amen and amen...
I BELIEVE ABIGAIL PASSING OUT IS KIND OF A BIG DEAL AND DEFINITELY NEEDS TO GO TO THE DR. PASSING OUT IS NOT NORMAL.🙏🏻🙏🏻🙏🏻
Absolutely
Where did you hear that in the video? I didn’t hear it.
@@Malgal16:24
@@Linkelve thanks 😊
Chiari Malformation is when the brain starts deviating into the spinal column. It often presents with Hydrocephalus (Water on the Brain).
I have the latter, but not Chiari Malformation.
I'm so sorry your mother couldn't be saved.
You should take legal action against that hospital. Appalling.
I'm sending you all my love. 💜
Sounds like Ester is alive to spite the hospital ! 💞😢💞 Just know Andrea we may not be with you physically but mentally ALL of your followers have got your back ! We are ALL cuddling & praying for you & your beautiful family ! 💞❤️🙏🏼❤️💞
Thank you so much, I do really appreciate it
@@FoolyLiving💞❤️💞
A lot of what you are going through mentally is a grieving process, true she is still alive but you are being told she will never be the same again . Give yourself grace and time to absorb the new situation and make sense of all of this . Remember if you don’t take care of yourself you can’t take care of anyone else. Sending both of you prayers. 🙏🙏🙏
VT Lisa here. I found Mayo Clinic in Jacksonville Florida specializes in treating with a team for EDS. PLEASE CHECK IT OUT. Love to you all. I remember Abigails sonograms where you were told she had no cerebellum. Crazy. Frightening.
I called them before any of this happened. I know it says they have a clinic in FL but they do not. If I wanted to go to any Mayo Clinic, its $5,000 cash before I can make an appointment because they do not take my insurance. I cant even make this stuff up.... Thats just to walk in, not to get testing done to see which type we have or try to get any kind of treatment. I cried on the phone, literally nothing for us atm.
@@FoolyLiving hi that’s terrible. What has this world come to. Prayers for Grandma Esthers healing. 🦋
Good to know your mother is waking up... she is always in my prayer also do keep my mother in your prayers as she is also in ICU in COPD related issues
Praying for your mom and family. My daughter was diagnosed at 6 with Chiari Malformation. She never had to have surgery for it but still gets terrible headaches but has learned several ways to handle them. Try and get Abigail into a pediatric neurosurgeon that knows what Chiari is and have them give her a MRI.
It's amazing that it wasn't bad enough to need surgery 🙌🏼 . The pain is strong anyway I know. But once you start moving your brain around is not good
I have praying for your mom ever since, you let the fans know about her aneurysm. I’m so sorry about her strokes and the coma. Don’t lose your faith and hope that she will pull through her trauma and health issues. I’m so empathic, I cried and told God to send love and healing to your mom today. I feel your pain God bless your entire family. Keep us updated Andrea.
I know how you feel Andrea, I wont go into details of what I went through with my Mum but the sights and smells, noises and seeing your parent in that way in hospital, it is so hard to comprehend. It toughens you up mentally somehow because sometimes thats your automatic way to be able to cope with it. What you say about should you get healthy or whats the point, of course you should get healthy without doubt, not one of us will be here forever, whilst we're are here we owe it to ourself and our loved ones to look after ourself in the best way we possibly can. It makes sense to look after your health and reduce your chances of illness and that means more chance to enjoy life and be with our loved ones. You've got really look after yourself in this situation, its good that you're recognising that and taking time out when you need it, so important. Still thinking of your Ma every day and hoping praying for her recovery. Bless 🌞
Continuing the prayers for all of you! So glad you're on top of Abigail's health. Sending love to you all from Wisconsin.
Andrea, your health will give you more years with your precious children. That is the main point. I hope Abigail is ok. Maybe she needs to go in for a brain scan.
Glad to hear your mom is slowly waking up. Will continue praying for her definately.
Esther is always in my prayers. I just found out yesterday, my 43-year-old nephew was given Monjourno for his diabetes. He also has a rare form of MS and has been wheelchair-bound essentially in his early 30's. Because of the mon journo, he had a severe allergic reaction to that. He ended up having some sort of an episode, not really knowing what type of episode other than aspiration. He is currently on a vent and has been on one for 13 days as of today. The doctors are saying that he needs a miracle, so if you all could maybe put a little extra prayer in for my nephew, Andrew, I sure would appreciate it.
That is why they intubated my mom, they were scared of aspiration pneumonia. I am praying that your nephew comes out of it, and I bet he will, since he already has a high pain tolerance with the MS! You just never know with those types of medicines, if you will be allergic to it. I was scared to take my initial dose and I still have it. My insurance wont pay for any more, so there was no point in taking the first dose. I cannot pay cash for it atm. I was always scared to do the IV iron infusions as well because if I have an allergy to it randomly, then I'd be in the hospital just like your nephew. You literally cannot predict these things. One time you may get it and it will be fine, and another time its not. I do wish these medications were honestly tested and reported about so we would have better information on allergy to them! I will definitely be holding him up in prayer. He is young, and thats a big thing for recovery
Kristen, I am 66yrs old and female. I have MS and had cancer 2 times. I also have Type 2 Diabetes and I am new to Monjurno for 5 weeks, 5mg.There are 2 people I know that have had problems with the effects of Monjurno. I'm so sorry for your neohews health problems. There are No Cases of MS in my Family from Mother or Father's side. It effects my Brain function aka Brain Fog and My Speech, and my right foot drags at times causing serious injury from falls. I will keep each of your Families in my Thoughts and Prayers. Bless All. ❤️🙏🏼
I love and pray for your mom. Some of my favorite videos - are of you both going to thrift stores around town. praying for you and her.
LORD GOD…Please help ease this families struggles…. I Pray GOD continues to Protect & Guide you & yours always in all ways,
Shalom from Florida
🙏🙏🙏🙏🙏💗💗💗💗💗
Andrea, virtually everything you say deeply hits my heart. I’m going through this with my nephew who has been in a coma, now DOC (disorder of consciousness) since May. The fluttering of the eyes, such a huge deal; every single stroke is a gazillion steps backwards. The list goes on and on. Thank you for posting because you just put into words ALL the crazy issues with medical staff, medications, heartbreaking ups and downs, the future, the teeny and major victories . In one minute everyone’s life is changing forever. Please do take care of yourself by taking a personal mental health day or two.
Thank you and many many blessings for your entire family.
Andrea you're right it's so hard to see the first person to love care and protect you be so vulnerable and suffering. It's horrible. I feel you on wanting to be there but you just mentally can't it's hard when you want to be in there for them but you gotta take the time to get away from the worry pain beeps smells sights and information its sensory overload. You'll go through every emotion you can imagine. I'm hugging you from afar right now My prayers are going to be with you all. ❤❤❤ Give yourself some grace, Love from Virginia
Your mom has beat the crap out of the odds so far, so I am praying it is just a matter of time before she wakes up. My heart was filled with joy when I heard her talking and laughing through the mask when the male nurse was helping her sit up. God it's so crappy that they caused her to deteriorate past that point. Hopefully this is just a hiccup in this journey she's on. Praying for you guys ❤ Andrea don't feel bad if you can't go up there everyday. Your mom knows you're her dearest advocate and would want you to get your rest too. Love to Ester Grandma from MD! We wanna hear you laugh with your beautiful grandbabies again!
I totally understand what you mean I have G.A.D. And my daughter was in hospital for over a year with a rare brain infection called Encephalitis anti nmda receptor autoimmune …and went to visit her every day then some days I would break down and say to my husband and other daughter .I can’t go today I just can’t .as it so hard to watch and feel helpless and pray all will be ok so I understand the pain you are going through sweetheart hugs and prayers for Esther and all your familyxx
Your mom is a super strong woman and God saved her cause she is a fantastic mom and grandma but she is damn lucky to have a daughter taking such good care of her too! Don’t forget about that Andrea.. sending big hugs and love! Super proud of you .. hang in there! Sending more prayers and positive light to the whole family!❤❤❤❤❤
I’m so sorry you’re going through this. My mom’s kidneys failed and it caused her to swell up so bad, I couldn’t believe someone could swell up that big it was crazy. I hope she wakes up soon, and you have to take mental health breaks ,I know it’s hard. Stay strong. 🙏🏼🙏🏼
Miraculous is how I describe your mom. I had cluster and migraines as a child. Glad you are on top of everything Andrea.
Love your family and keep you all in my heart.
Thanks for sharing!!
I'm so sorry to hear about all the suffering Mom is enduring, and I hope you find help for Abigail very soon. It's too much. Love and prayers to all. 🌹
Andrea, i’m so sorry to hear about your mom, I hope she does pull through.
I know you’ve been through a lot recently, especially with your own health and I’m so sorry to hear that .
Praying for your Mom and family. I believe she is going to be a walking miracle in time. She's a strong woman🙏🙏🙏 Prayers do work!!!!🙏🙏🙏🙏 In the months to come she or your Dad should sue, sue and sue some more. No excuse for that many hospital mistakes!
My heart goes out to you. I can't imagine all the pain that you and your mom have had. God bless you. I have no words. Hang in there xo
oh Andrea, I am praying for your family, i have always felt close bond with you, my mom had a aneurysm when she was 36, she was in hospital for over year, and has never really been same person. She wasn't meant to live beyond a few years and she's 60 now but severely disabled and has been since the stroke.
Praying for your Mom, Andrea.
My 45 year old daughter has Chiari. She was finally diagnosed less than 10 years ago. She had the surgery less than a year later after having symptoms for years. There are so few doctors who know anything about this. Even the surgeon who did her surgery won't take her as a patient any more. He said he cured her with the surgery. In most cases, it does not cure. There is no cure. ER visits for the horrible headaches are all the same...."Chiari malformation? What is that?" Followed with pain meds that don't work and sent home after 4 hours in the ER.
Praying for your family. You're a toughie. I remember when you finally got a diagnosis and all the medical stuff started to make sense. I remember thinking that you never really let on how much pain you were really in until after the diagnosis. Im confident that you are taking care of everyone else right now. I hope you are finding the time to take care of yourself through all of this too.
I’ve been thinking about you and your family. Prayers for your mom and all of you. I know it’s tough bc I’ve been through similar with mine. I don’t know how you do it all. I know you posted a video about your iron levels too and pray that you have energy, positive info on your mom and all. Rooting for you all!
Yes, Andrea! I remember your pregnancy with Abigail!
When they told you this about Abigail, Hadar had to come to the States to work. I was so worried about you!
You were all alone in Israel. You and Rafael...❤
Your Mom knows and understands what you are saying to her, Andrea! She knows you are there for her...IMO...
The human brain is remarkable, and your Momma is a strong lady!
As always, my love and prayers are being sent to you and your Momma from Louisiana...🙏🙏❤❤
Heeey! I wanted to tell you for the longest time - you remember that Unicorn dress you gave Abigail? it still fits her.. That was like 3 or 4 years ago and she just wore it the other day and I kept wanting to tell you lol. I dont know how it still fits! And Rafaels ninja outfit fits too, of course he chases Abigail around with it at least once a week rofl. My mom absolutely understands what I'm saying because I can see it in her actions and facial expressions. She raises her eyebrows when I say something questionable, like "youre doing so good, mom" and I can SEE her in that expression. I know she will never be the same, but she has slowly started to wake up and she is starting to mouth sentences and words. It is the weirdest thing to be blessed with 2 miracles, but that has got to be the power of prayer and she deserves to be here longer with her grandkids. She has done so much for everyone in this family, and I hope she gets that chance. Thanks so much
@@FoolyLiving Aww... I'm happy "Abigoo", and Rafael are still able to use their costumes!
I watched the vlog where Rafael opened his birthday gifts... 11 years old, WOW! My goodness time flies! I still can see him crawling around on the floor pulling Hadar's weights out from under the TV cabinet! LOL!
He was, and still is, a precious and funny boy!❤
Abigal's hair is so long and beautiful! She was jumping and dancing so much, she JUMPED her hair right out of her ponytail band, LOL!
She is a beautiful little girl!
The older she gets, she looks just like her Momma!💞
Yes, your Momma still has a lot to do in this life, and with a daughter like you, I know that with your help, she'll be on the mend soon!
As always, my love and prayers are with you AND your Momma, from Louisiana...❤🙏
@@FoolyLivingso good news I really search the comments on videos to find how she's doing now and so happy to read there's hope 🙏🏻
All about the eds brought also some worries to me my son has autism the one the other tourettes and we noticed with our son with autism stretch marks at his back what's not usual for 15 years old and also my husband has such stretch marks at his legs since he is young so I worry about the eds topic.
But so happy to hear some good news From Esther!! I'll keep sending my thoughts to her.. 🤗👍🏻
Andrea, I feel your pain so much! I know this has all been so hard. I love my Mama and was so close to my grandmother. I don’t have many friends outside of my family, since having a severely disabled child. You have big shoes to fill Andrea. Stay strong! Love to you my precious sister!❤
I'm so sorry that your family is going through this hard time. Sending prayers for Grandma.
Everyday I pray for your mom, she is strong and she will ge through this.
It's really unfortunate that doctors and nurses treat coma (or unresponsive) patients as if they are objects, it's not that hard to warn the patient that they're about to be poked or have a procedure done. It's basic human empathy... At least you and your family are there to tell her what's going on. Doctors clearly don't know everything, so don't lose hope! Things will get better. ❤
Andrea, I am sorry to hear that your mom isn't doing well. I pray that she makes s full recovery and that you are able to figure out the cause of your daughter's current health issues.
I can relate to this so much, unfortunately.
My Mum is now recovering. It was awful to see her in a coma, looking like shes suffocating with a trach. That really traumatized me tbh. She has lots of complications, but she's home.
❤ Oh my goodness Andrea, I can not imagine how you're able to even wrap your head around all this especially with having to suffer from your own ailments. It's just all too much for anyone to go through. I've suffered many bouts with diverticulitis and i also suffer with TN, (Trigeminal Neuralgia) known as " the suicide disease" it's the most horrific pain on the left side of my face, it's neurological. I also have had to endure the deaths of both of my 17yo and 40yo sons. But Andrea this is just pure agony what you're having to endure. My mind is just blown away with what your precious mom is going through. I can just imagine all you think of is what she's going through and she can't even speak for herself. Bulldoze your way through those 3 doctors, keep them on their toes while you're in the room with your mom and tell it like it is with "all" the nurse's, you don't have to be on their good side but I know you're already 3 steps ahead of any of my advice. I will continue to pray that God's will for your mom is to get through this, if not then I pray God keeps her from anymore pain and I pray for little Abigais health as well. Your mom is a fighter yes so just hang in there kiddo ✝️🙏❤️
Keep fighting for her. Her body is just resting so her brain can recover. It might take some time but shes still there and clearly giving you signs shes conscious. Shes still young and has many years she could still live. Ill keep yall in my prayers.
Wow this is overwhelming! I think washing her hair is a great idea. Do massage her head and arms and legs as well. ❤
My Dad had that and would have black out episodes. Basically his brain stem was too long and dangling along his spinal cord and compressing causing him to black out. They gave him medication (don't know what it was called) that he was supposed to take for life to help shrink the brain stem. Seemed to work because he is fine now and off the medication. There is hope :) hang in there.
I'm glad your dad is better. But there's a bit of mis information here, maybe you're confusing malformations. There's no medication in the world to help or cure chiari, There's only one thing to "treat" it: SURGERY and all it does for most people is stop developing more severity in symptoms but sometimes for some time only not forever.
And the other thing is that the brain stem doesn't "shrink" it's not a tumor is a part of the brain!. Maybe he took some medicine that help him stabilize his balance to stop blacking out.
I remember that with Abigail! I had a daughter born with Dwarfism and just a ton of problems. It was a whirl wind coming at me. She passed but, I remember watching you when I could take it. So much life we go through as woman with our families. Provigel is some good meds. Seeing your beautiful Mama that way must be so hard for your heart! Wondering about your Dad. His poor heart! I can’t imagine seeing my husband that way! I could go on and on! Just know we care!
W O W !!!!!!!! Angela, that is a LOT to deal with. Praying 👑 🙏 🤲🏼
Andrea you might want to start playing the videos for your mom in the hospital it helps with stemming the brain to heal ❤❤❤❤keeping everyone in my prayers much love from my home to yours ❤️❤️❤️❤️
And i would say play her favorite movie or music or favorite anything
Thank God you got my esp message about the gummy bears and blood clots 🤣
The peg tube will eliminate the need for the tube in her nose so that will provide a bit more comfort.
She’s lucky to have such a wonderful advocate as you! ❤
Absolutely heart wrenching to know all Esther is going through, as well as the whole family. My heart goes out to y’all… my own precious Mom went through a similar situation. Praying with you all daily for Esther’s complete recovery, in spite of anything or symptom suggesting otherwise. Jesus is still in the miracle and healing business - nothing is too difficult or too far gone for Him to redeem. Much love and prayers for strength and comfort to you, Andrea❤️✝️🙏🫂
You say that, and Ive seen that as well. God is good all the time. He knows why we have to go through these things. Praying for your family, too. It is a long hard road, no matter what stage youre in! The thing we're dealing with since we arrived at the hospital on Thanksgiving is they have all been waiting for her to die at the hospital, while my mom shows them that shes not ready. They don't like to see miracles or something? Thanks so much, I'm sorry you have had to go through this. I would have never thought I'd see something like this!!
Well said and thank you, Sister❤️🙏 It seems they don’t expect healing…in a hospital…go figure. My precious Mom was also in a coma… and my heart breaks for you & the family because I understand the surreal, nightmarish hell that is. The daily stress is tremendous. Esther is a true warrior, bless her heart! Agreeing daily with you, and all here, in prayer for her complete recovery in Jesus name. Much love to you and the family❤️🫂🙏
Oh Andrea, my mum died of a brain aneurysm, my dad died 6 months later of an aortic aneurysm, I went to my doctors and begged to be investigated as I feel I am at risk. I was told to go away and it's not hereditary. I'm in uk and don't know how to get further opinions. I'm thinking about your mum every day. X
So sorry. Keep trying other doctors. I asked a doctor (also uk) to check out my heart after several sudden deaths in the family, it’s hit or miss whether you’ll get a compassionate doctor. Keep trying and asking for different doctors.
I hate Grandma going through this and I hate that you and yours have to go through this. I recently lost a dear friend of mine to cancer that I was taking care of and he wanted to be donated for science, so that's what we did. Good to know more about the medical for Miss Abigail. Def. continuing prayers for all of y'all.
Thank you Andrea, heart breaking events … 😢❤ Praying for you all ❤
I had to take my son to a children hospital and they where a lot of help for us and our family as well
praying for your mom and your family🙏
Awe, Andrea, listening to this just made me cry. I’m so sorry. Hugs, prayers, love
You did a great job explaining everything, thank you for that, I pray that she gets better and I hope that her will to live gets her through this, and fully recovered, and I hope you get Abigail to a doctor soon. Hugs❤️❤️
praying for you're mom ❤
I'm so sorry 😢! I'm praying 🙏 for you and all your family !! I've been on both sides, my dad had multiple strokes, was his full time care giver and only 24/7. So I know how hard it is to see. I totally understand how you feel and how mentally and physically emotionally exhausting it is. 😪! And in 2016 I myself was life flighted and put on a ventilation machine for 10 days. They really acted like they didn't even want to come in and take care of me!! My husband refused to leave me, and I believe that's why I'm still here today!! 2022, I caught the big C. I was in CCU for a month on that bypap, and it was scary! They were on lockdown, and my husband was not allowed to come into the hospital at all!! Both times, I've seen things heard things people can not think of, and yes, the smell is something people 🙄 can't think of!! Praying 🙏 🙏 🙏
How is your Mom currently? In February 2024
Andrea stay strong... I am my moms caregiver. She had 2 strokes in a 10 year period. Your in my prayers❤
Vermont Lisa again. I have to say your life, your family life is of value. It is not pointless. Please do not take this the wrong way; We are only here temporarily. I personally believe our struggles are here and now. Good times too. We do the best we can, we are kind and loving. We teach and love our children and families; do the best we can. I really believe after this life; we will all be reunited again with unimaginable happiness as well as no more sadness and worries. I have had my life robbed as well with health issues. Just do the best you can . Don’t do what you can’t do. The rest will be what is going to be. So have hope and faith my friend. You are doing great under the circumstances. ❤ prayers for your mom’s doctors to do the right thing. I hate the unnecessary comments on our loved ones charts too. Hello, “you don’t know my mother” It’s Grandma, the fighter! One way or another you will all be ok.
Sending a lot of prayers to your mom and all of you.
Andrea, I am so sorry to hear this. I will be praying for you all and your Mother. I have not been well since Christmas and posted little but I kept wondering why FB was not showing my friends. Today you came up and I have been watching all about your mother and what happened. I know this must be so painful for you. I will be praying daily for her and for you all. My heart hurts for you but I believe it if it is God's will he can do anything. I know he did when 5 years ago they told me after a bad fall that I was going to die that night from the largest blood clot that was heart to lung that they had ever seen and I told God if it was my time, I was ready ..if not please leave me here. And I heard a voice in my heart say "don't worry. You will be ok." And then I saw Jesus. After the doctors left my son CJ who was with me through it all said "Mama..mama..you are going to be ok". I asked him did he see what I saw and he said "I didn't see anything Mama...I just heard a voice say "Don't worry son. She will be ok." So, keep your hope and faith going and give all the glory to God for he can do anything. I am praying and know I care so much. Your mom is a tough lady and God is even tougher. Love you.
Lord, I lay Andrea's mother in your hands for you are the Great Physician and Healer and can do anything. I pray that if it is your will for her mother to remain here with Andrea and her family, that you will do it. I ask you please to flow your love and peace on Andrea,Hadar and the children so that they feel you close and so that her mother is comforted during this difficult time. I believe in you Lord. I pray in Christ's name Amen.
A peg is a feeding tube , ileostomy is a stoma for the small bowel or colostomy us a stoma for the large bowel both are for the poop. I do hope yourmom is getting better
Yes, I know what you mean. Take care of yourself. You’re doing amazing ❤️
This video brought tears to my eyes,ur mom is a fighter, she shld come out of all this. Do get abigail tested for her headaches.i pray for u ur mom and abigail.andrea u are really a courageous woman,may the lord help u overcome all these problems.🙏
Your mom is a true miracle already and a fighter she will come home soon
Vermont Lisa. I’ve had cancer from the braca 2 gene like a lot of women. All family on my Dads side had that and ovarian. Ok enough about me. My point; I keep coming back to this video because you are right! No health, no life. I have to believe there is a reason that I just need to have faith. Even my Dad passed away few years back with breast cancer. So hard and this video hit me hard because you are feeling exactly what I feel at times. Just teetering one way then the other. Life can be so hard. I chose to have hysterectomy because I found the drs saying to all my family extended “go home have your babies then hysterectomy “. I said nope, I am not going to ramp up my hormones and then not be there for my babies. Right decision for me. That is why I watch your kids grow up and just adore them and my neighborhood is full of kids. Always at my house after school. One on one or group homework. They feel special. Parents appreciate it. So apparently I didn’t need to have my own; there are lots of kids that need attention with adventures, riding a bike, feeling special and homework. Ive known them all since babies. Rafael and Abigail too. As much as I can.
I’m just as conflicted as you are after what my dearly departed husband went through - the pain and suffering is unbearable! It also left me with PTS. But I do know if I was in that position I would want a DNR - but that’s me. I’m praying for your mom, you and family🙏!
Oh Andrea,I am heartbroken for your mom and whole family.I am very sorry all this has happened.I loved your videos the most when your mom was in them😢,thinking of her here in Maine🙏Wish you could transport her to Boston,they are the best there.
Hi Andrea sending big hugs for you and your mum and dad all the family 🤗🙏🏻xxx ❤
Vermont Lisa here. TH-cam Dr. Paul in one of his many videos talks of EDS. I’m not sure which one maybe toward the end. He know longer practices. Pediatrician. Take care. Prayers
I am praying for you and your family ❤ take care
I remember when my mother lived in TN and I went down to visit her, I live in NH so it was quite the drive. By the time we made it to TN i got a call from my mothers caregiver/family friend telling me that my mother had a seizure that was really bad so she was rushed to the hospital. When we got into the hospital I saw someone from across the room with their head wrapped in gauze and wires protruding from her head. I turned and told my husband how bad that person looked, and I hoped that wasn't my mother. We asked the head nurse where my mother was, and to my shock and dismay, the person with their head wrapped WAS my mother. She looked so helpless and a shell of what I remember her being. It was so surreal, and to know my mother and I are a lot alike it scares me that I may develop the things she has.
I hope your mother gets better, It is extremely difficult to see a loved one you knew to be vibrant and busy to a former shell of themselves. I also hope that you take that hospital to court!
Watched you since the beginning. I'm sad for your mom. Worried for sweet abigail. Pleasecfeel my support
This is so sad, Nursing care standards seem to be deteriorating, whilst all the equipment keeping you alive, personal care ie, hygiene, cutting nails, combing hair keeping comfortable and clean doesnt seem important. But it is. Prayers for Esther and your family.
Because hospital cut funds to supply enough nurses to do all the things. We do the best we can. Blame the big managers
So sorry about everything you’re going through. Glad to read on the description grandma is holding on and getting a bit better each day. I’ll keep sending prayers! 🙏🏻
About the doctor that is true. But must be a Florida thing(oh how I miss living in NY!) because we moved here in 2019 and during covid I didn’t go to the doctor because I didn’t want to go if I wasn’t sick and risk catching covid and they almost dropped me and my husband as well! They said we haven’t been for couple years(again during covid I didn’t go anywhere) and they said if we don’t go for our yearly check up then they can drop us and we would have to start all over again as a new patient. So I’m like, I’m forced to come to a doctor’s office even if I don’t feel sick just so I can keep being a patient here?? It’s like a membership to a gym or something! Is this about money? Has to be right? I know it’s good to go once yearly but if you feel fine then I don’t see a reason to go and have to spend the money. Because our insurance is not great and we have a very high co-pay so each visit we pay 100% until we meet a certain deductible. It’s ridiculous! And I don’t remember being like this in NY. Also what you said about doctors just don’t care I feel it’s true for Florida as well. They don’t care or don’t have doctors! I’m trying to find a pediatric allergist for my son in Naples and I’ve been told to drive 2 hours to Sarasota for one!! I have a friend who has EDS in NY, her and her two kids all have it and apparently doctors there are great for this condition. I wish the doctors here were great too. I don’t understand it. Looking forward to moving back to NY one day. My friend always told me people move to Florida to die. I used to laugh at her and think she was just mad that I was leaving NY and our friendship and moving so far away from her but now I totally understand and believe what she said. The health care system here is horrific!!
Hang in there Andrea! Please think about creating a gofundme account for your mom’s bills. You have a lot of subscribers and a lot of us who love and care so much about every single one of you. Every little bit helps. ❤🙏🏻
Thanks for the update and looking forward to more.
Yes a GoFundMe would help for her mother and daughter aswell
@@fionafifi7029 wish she would see my comments and set one up. More people have suggested the same.
Also when the time is right I’d look into a lawsuit against the hospital! Doctors now a days need to be more aware and careful! They almost killed my mother twice at two different times when she had two stents put in. The second time was even worse than the first. And they hide so much information!! She had complications the first time so we brought up these complications when she was there to have it done the second time and those original complications that we were told about the first time weren’t even on her chart!! The doctor is looking and saying. 🤔 ummm I don’t see any notes about this happening, are you talking about the time we had to use the paddles on her to bring her back?” My sister and I looked at each other like WHAAAAAT?????? That happened????? We were never told about that!!!
It’s a sad sad situation! I had to go to the ER about almost a year ago for blood transfusions due to low iron and I was so scared if I was going to come back home alive! They kept me over night and each time a new nurse or doctor came in the room they were like: “soooo what brings you in here today?” I’m like for real???? I have a blood bag drip going, I’ve only been here since yesterday afternoon and not one of you know why I am even here????? 🤦🏻♀️🤦🏻♀️🤦🏻♀️
You can live ok with diagnosed chiari. Don’t worry bout her baby scans now they mean nothing she needs a current mri to diagnose her. Take her via an emergency department
I started therapy recently to process medical trauma from my sons severe medical issues. It has been helping a lot. Do you think you’d be open to that? This is all so traumatizing for you and I don’t want you to struggle alone 😢❤
I remember when the drs told you about Abigails cerebellum.
Love to all of you Andrea. Still praying.
Both of my sons and I all have hEDS without pots. I have chiari malformation also. And, as you know, they all go hand in hand with autism too.
None of us have heart issues from EDS, we’ve all been tested. I didn’t know it could cause brain aneurisms. I hadn’t ever seen or heard that before. I’m definitely going to look into to it!
I pray your mom will continue to improve day by day.
Edited to add: it’s pronounced key-are-eee.
I had brain decompression surgery in 2012 where the surgeon removed a piece of my skull, cauterized off my hanging brain tonsils, untwisted them from my spinal cord, drilled a larger hole in my top 2 vertebrae, then patched my skull up with a bovine patch. 😬
University of Florida and Mayo Clinic also has an EDS/POTS department.
I tried to make an appt with the mayo clinic, and i know it says that online it has an eds clinic in FL, but it does not. I could go up to another state, but they dont take my insurance and want $5,000 cash for me to walk in and be seen. It's INSANE. I cried on the phone with them because this whole situation is hopeless.
@@FoolyLiving yes i think you actually need to go to the Dysautonomia clinic first and they refer you to see rheumatologist/geneticist/neurosurgeon depending won what you need. And yes, if your insurance isn’t accepted it’s ridiculously expensive. I went to Mayo in Phoenix and they did take my insurance but still cost me over $6000 but I was there for a month….
🙏🏼 This is super stressful. Remember to get good sleep and take care of yourself. Hope you have a great set of headphones. Music helped me. I’m kinda sick too. We need distractions 🤙🏽🎧
Andrea? We got faith that your family health will be heal and deliver our prayers went up in heaven and it will be accomplished very soon for us in God's Almighty perfect time what is impossible with us is possible with God Almighty ❤
I remember when you were pregnant with Abigail and they had told you that that was scary. Glad she was OK when she was born.
Andrea this vlog is so informative!!! Praying for your Mom and family ❤
Continuing to pray for your mom, love ❤️
And hope all ok for little Abigail 🙏🏻🙏🏻🥰
I was diagnosed with POTS over 15 years ago and my daughter was diagnosed at 11 ( she is 23 now) and it truly sucks. My daughter is very controlled with diet and exercise. Me on the other hand, have had a hell of a time. Brain fog has really been bad the older i get. I also get the numbness all over before i pass out. Luckily there is a lot more known about Dysautonomia now, where little to nothing was known just 10 years ago. Will keep yall in my prayers.
I remember when you were pregnant and they couldn't find Abigail's cerebellum. I'm going to pray for all of you
thank you for the update I am still praying for all of yall
Andrea, this whole thing is heartbreaking. 😔 The fact that you have to stay on top of your mom’s condition & you’re dealing with your own medical conditions, & now your daughter’s, must be exhausting for you. One thing I know is that you have to take care of yourself. You won’t be able to support your family if you’re not mentally & physically rested. I can tell you’re numb to the whole situation. I’ve been there. Please try to rest & take care of yourself, as difficult as that is right now. We will continue to pray for your mom’s healing. 🙏
Thanks for your precious comments our prayers will be a testimony miracle fulfilled in this precious family Thanks my friend 😊
Ahhhh !!! These old videos are driving me nuts lol I just want to know how everyone is you, your mom, the family, like this is making me bite my nails the anxiety!!! ARE YALL OK ?! Been so worried bc we are now in February of 2024 been watching for so long so its suspenseful!
I remember when you went through that with Abigail, Please find a Hospital to take her to there has to be a Children’s Hospital somewhere around you. I will be praying for her and your Mom, you have to be so stressed I know when I was going through things with my Husband and I didn’t Cry for a while because I didn’t want to he to see me upset but the day I did I went the some friends shopping and all of a sudden I just fell apart so glad I was with my friends. I do know what you are saying about not wanting to see her that way I feel that way about my Husband. I am praying for you so hard, Love and Hugs!
Be strong let God's will be done ❤
Andrea....I am sonsad what all is going on in the hospital....this is aweful.....😢😢😢😢
God bless you all❤❤❤
Words fail me .....takecare of you Andrea. Esther in my prayers🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻💜💜
My Dad has a ton of Blood issues ...he's 84. 2 major back surgeries the past 2 yrs....it's funny because he was put on Heparin and for some reason I did a bunch of homework on this med: The optimal duration of intravenous heparin treatment is five to seven days because this is the time needed to obtain an adequate and persistent reduction in the vitamin K dependent clotting factors with oral anticoagulants such as warfarin. Your Mom is so unique, rare and special, I'm so sorry she is allergic to this, as it's a staple in almost all surgeries to prevent blood clots.
My daughters grandma died of a pulmonary embolisim. It ruptured when she was getting out of the shower.
My sister has EDS without POTS, thankfully. You had blood clots since your "oldest" son was born, not your youngest. You are definitely suffering from aphasia. Also, they most likely didn't investigate a chiari malformation at birth with Abigail because she wasn't suffering from hydrocephalus, spina bifida, or showing any other related symptoms. Thank you for sharing such intimate and vulnerable information. All your thoughts and feelings are validated. I think this Vlog was healing for you. You are an extremely strong and brave woman, as is your mother. You are doing an amazing job just trying to exist, being present for your mother, and let alone taking care of your family. You are very lucky to have Hadar. He is wonderful in every way. I can't speak highly enough of how good he is with your children and dealing with all your health issues. You are both very special souls. Sending healing energy to your entire family, including the children. I know you are keeping them up-to-date, yet shielding them from the trauma of it all. Yet, they are still very affected and thankfully wonderfully taken care of by their parents. 💓
She has an older son named Zeb and I believe she is referring to Rafael who is her younger son.
Omg that’s what my son was born with it. My son had to have emergency surgery to take care of Chiari malformation type 1
Andrea hello my girl.....
Hope your mom is not feeling pain....gosh this is sad....very sad and your not all that well too....feeling very sad and anxious for you all....God be with you all....hope children Hadar Rudi and kitty are all ok .....please Lord heal her Lord.....in Jesus name amen and amen...
I'm praying for you and your family. ❤