My son has been diagnosed with the "A" type Franconia he is awaiting a bone marrow transplant !! There is also a gene therapy trail starting but been waiting nearly a year for that to get up and running and there's no guarantee he would be offered a place
my nephew has the same problem as well, however he is not in the US. I hope my brother can find a solution for this god damn rare disease. I dont want to lose my nephew. :(
@@sinsinsinat5377 hi hun we are in the uk and thankfully he had a bone marrow transplant 4 years ago as they picked up early stages of leukaemia he was in Bristol children's hospital for a mth thankfully everything went well and he is doing great at the moment
My sister died at 16 from FA. It missed my next sis and I have it. I wasn't supposed to live passed 13. Here I am at 43.... Scared because I now have issues with health, diabetes, etc. Should I kill myself or somehow deal with it?
My son has been diagnosed with the "A" type Franconia he is awaiting a bone marrow transplant !! There is also a gene therapy trail starting but been waiting nearly a year for that to get up and running and there's no guarantee he would be offered a place
my nephew has the same problem as well, however he is not in the US. I hope my brother can find a solution for this god damn rare disease. I dont want to lose my nephew. :(
@@sinsinsinat5377 hi hun we are in the uk and thankfully he had a bone marrow transplant 4 years ago as they picked up early stages of leukaemia he was in Bristol children's hospital for a mth thankfully everything went well and he is doing great at the moment
Simple but so informative, thank you! :D
Thank you
that video was informative
Any guaranteed treatment for fanconi animea
My sister died at 16 from FA.
It missed my next sis and I have it. I wasn't supposed to live passed 13. Here I am at 43....
Scared because I now have issues with health, diabetes, etc.
Should I kill myself or somehow deal with it?
Keep trying to find your happiness, Jeremy. We all have different and valuable paths
thanx this is very good :)
بنتي عندها فانكوني انيميا وبعدنا مابدأنا العلاج حد ممكن يخبرنا عن تجربته
Salam okhti ana mina lmarrib waldi 3ando fanconi
سلام عليكم كيف حال بنتك حاليا
عندي طفل شاكين بيه فانكوني انيميا كيف تم تشخيص حاله بنتك
Thank youuu sooo much 🙏❤️🌷
I want greek subs if you can !!!! Please
Lost someone because of FA, sending prayers to everyone with this terrible disease
I have Fanconi Anemia
الله يشافيك
May Allah bless you with good health
Me too!
have you been treated now? can you tell me what you did?
That's a well-dressed 20-year-old; rare like Fanconi Anemia.