Long COVID Treatment Explained: A Comprehensive Patient Guide

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  • เผยแพร่เมื่อ 19 ธ.ค. 2023
  • Michael Brode, MD, a board-certified internal medicine specialist and the Medical Director of UT Health Austin’s Post-COVID-19 Program, shares his framework for treating long COVID as well as valuable insights on guiding patients in the journey toward recovery.
    To learn more about long COVID, please visit: • Understanding Long COV...
    For more information about the Post-COVID-19 Program, visit uthealthaustin.org.
    Video filmed and edited by: Shriya Alli

ความคิดเห็น • 172

  • @genegarneau3822
    @genegarneau3822 3 หลายเดือนก่อน +53

    2 years for me. Now it is in my heart, lungs, nerves and brain fog, always forgetting. I am getting my energy back. I hope I do not have much longer to go. 2 years of this has been hell.

    • @Kilodank1
      @Kilodank1 3 หลายเดือนก่อน +4

      I hope you get there soon !! I can't wait to heal either

    • @jasonm.3933
      @jasonm.3933 3 หลายเดือนก่อน +8

      It’s been nearly 4 years for me. I don’t so much have the brain fog, but definitely the other symptoms, which really aggravates my anxiety, and in turn makes my symptoms worse. Hoping to get accepted to a long Covid program. If I’m not accepted, I don’t know what I’m going to do, as it’s the only one in my area.

    • @vanlo1178
      @vanlo1178 2 หลายเดือนก่อน +3

      Oh man…. 2 and 4 yrs? I already had (have) fibromyalgia and CFS before long covid, but I was able to work. Now instead of just getting tired sooner and having bad muscle pain if I over did it, I’m stuck having body aches and feeling extreme fatigue all day. I’ve already been out of work 3-4 months.

    • @vickijohnson9367
      @vickijohnson9367 2 หลายเดือนก่อน

      @@vanlo1178 Because the me/CFS was a gain of function mycoplasma, patented by U.S. Army Lab. There is still 1 video up and running on the Asperger the microbiologist is Dr. Garth Nicolson. This one information is in a testimony for Germany Commission David Martin on Data Science Association July 2021 video hard to find also.
      And this is what this is
      th-cam.com/users/liveAztC633XUzs?si=AYcYkteiWfr4am5L

    • @Kilodank1
      @Kilodank1 2 หลายเดือนก่อน +3

      @vanlo1178 I've been out of work for 4 years and I'm only 31 I can hardly function being at my house . I still look fit and healthy tho but im in a wheelchair if I step foot out of my house . I can only walk 300 steps before my body completely shuts down then I have to rest for 2 hrs before I'm able to move or think straight again

  • @spiritualkings
    @spiritualkings 3 หลายเดือนก่อน +51

    This is the most accurate description of exactly what I'm going through. He hit everything right on the head. Every time I have a good day, I then have a 'setback' day. It's very frustrating. I have had symptoms for 4 months now. Right before I got covid 11/21/2023 I was in the best shape of my life. I was weight training and showing real muscle gain. I was becoming lean and mean and my cardio was doing great. Then I got covid and it has ALL turned to fat and I have lost everything that I have gained. Not only that, but the first 3 weeks I got covid, the 'FOG' sympotms were SO bad that I could barley even leave the house. It was so bad that I could hardly even hold a conversation without losing track of what I was even saying. The first 3 times I got covid it was NOT nearly this bad. This last time it has been just horrible.
    Luckily for me, I have gotten progressively better each week. It has been SO frustrating as I am a very active person and I thrive on physical activity and keeping up on my workouts. All I can do is pray and take it one day at a time and hope that I recover fully and be ready for spring. Ugh, this has been NO FUN at all. I will never forget this. I pray you are all getting better. God bless.

    • @wesanderson7918
      @wesanderson7918 2 หลายเดือนก่อน +7

      I’m going on 6 months. Starting to feel like groundhogs day. Thanks for sharing what you’re going through. I pray you fully recover. I don’t mean this is a bad way but it’s nice to hear others are going through this. Makes me feel less crazy.

    • @spiritualkings
      @spiritualkings 2 หลายเดือนก่อน +3

      @@wesanderson7918 Thank you! The great news is the past 10 days I have gotten noticeably better. I'm at about 85% again. Thank God! I need to take it slow however. I'm learning how to not to get too far ahead of myself. Thanks again for your support!

    • @kennethbrady
      @kennethbrady 2 หลายเดือนก่อน

      @@spiritualkings So happy for your recovery! 85% is pretty darn good. I am at like 10% and going a little crazy, frankly. I think you understand.
      What kind of treatment did you receive? And how long after treatment did you see progress? Thanks very much!

    • @HardeepHayre
      @HardeepHayre หลายเดือนก่อน +1

      I've been dealing with this since August 27th, 2023. Don't know when my long covid actually began to after initial infection. I've had all the crazy symptoms, fatigue, vertigo, tremors, sleep apena etc. 2 months ago I got here with these weird anxiety symptoms, shortness of breath and sleep anxiety/sleep insomnia. I had this the first 2 months and it came back. It's so frustrating because just when you think you're getting better you have a setback or symptoms come.
      I know how you guys feel. This has been the hardest time of my life. In January for 2 weeks I was really good and had no fatigue and all my energy was back. Then all of a sudden I got hit with fatigue again. Right now I'm sometimes dealing with sleep insomnia, it comes out of nowhere with chest tightness. Still a little bit of fatigue lingering, can I have a random headache now again on and off. And my body is constantly warm.
      Don't give up!

    • @eliaslovstrom4791
      @eliaslovstrom4791 12 วันที่ผ่านมา +1

      @@spiritualkings Hi, how are you feeling now? Did you take any special supplements that helped your symtoms?

  • @GungaLaGunga
    @GungaLaGunga 3 หลายเดือนก่อน +26

    First infection May 2021. Dysautonomia, tachycardia, devasating fatigue and post activity crashes. I'll feel better over a few months, try to get back to life, then crash again. What a nightmare.

    • @JoBroughton-yw7un
      @JoBroughton-yw7un 2 หลายเดือนก่อน +2

      Same here crash after crash.Covid Feb 2020 again22 23 no jabs so I know it's covid, they say things worsen before getting better, this LC is far worse than plain old covid, I am 75 and I will not let it BEAT ME.

    • @GungaLaGunga
      @GungaLaGunga 2 หลายเดือนก่อน +1

      @@JoBroughton-yw7un oh thanks for sharin gyour own experience. i am only speculating for myself, but i am hoping for th eblood tests they are working on are available soon. blood test to either validate or invalidate my educated guesses of my experience: i think it is an autoimmune disease from covid virus damage My body was destroyed. could run two miles before i got my first and only covid infection. Now i get exhausted just doing very light chores. right now, i'm home bound. just going to the store today wiped me out. this is teaching me patience and perseverence i never knew i had. stay strong. i wish you well.

    • @annerowell5050
      @annerowell5050 2 หลายเดือนก่อน

      Same here

    • @firstplayerfilms
      @firstplayerfilms หลายเดือนก่อน

      same with me, since Nov 2020

  • @aurorasurrealis1032
    @aurorasurrealis1032 2 หลายเดือนก่อน +19

    Almost 3 years into long covid 😵‍💫 I'm getting better, but extremely slowly

    • @TheParadigmShiftTV
      @TheParadigmShiftTV 4 วันที่ผ่านมา

      Are you vaccinated, if so which ones and how many doses?

  • @soal-lt9rf
    @soal-lt9rf 3 หลายเดือนก่อน +13

    Thank you so much for your simple yet logical approach to deal with this silent and debilitating condition. Many doctors have chosen to dismiss it -hoping it will go away magically.I think part of the healing process is radical acceptance.

  • @JudyWilson-SiteShackDesign
    @JudyWilson-SiteShackDesign 23 ชั่วโมงที่ผ่านมา +1

    This is truly first-rate, excellent: Clear, plain language that fits amazingly well with what I have experienced since December, 2023 when I tested positive (my first time) for COVID. Following this positive test, I immediately developed asthma and bronchitis (which I have had randomly for years). I was not, fortunately, hospitalized and at this time (5/17/24) my asthma & bronchitis have almost completely tapered off. What remains is almost exclusively PEM. I have a tendency to begin to feel slightly more energetic, then rush off to "drain the battery" - complete numerous big and little tasks - tasks that become exhausting and send me quickly back to PEM and bed rest. This is perhaps my main challenge in trying to heal: Getting enough rest, tempered with a moderate, carefully planned exercise plan etc.👍👍👍

  • @sharonkane1207
    @sharonkane1207 14 วันที่ผ่านมา +2

    He explained everything so well. Post exertion malaise for me is the worst and he reiterated all I've learned, from UK LC services, and I'm trying to apply. So complex and different degrees for everyone. Very informative, helpful and clear. Thank you.

  • @darlasue15
    @darlasue15 4 หลายเดือนก่อน +16

    You seem leaps ahead of the Baylor Long Covid Clinic where I am a patient. I appreciate your explanation and overview of Long Covid and it's treatment.

  • @keegsmum
    @keegsmum 4 หลายเดือนก่อน +20

    Thank you so much for this organized, comprehensive and balanced overview of the subject. I am a 68 year old female triathlete dealing with long COVID symptoms, not from having contracted COVID, but rather from the 5 mRNA vaccines I got. Vaccine #5 (bivalent) pushed me over the edge. Still not recovered- I am 12 months out since my last and final vaccine), but I am now on a good recovery track using a variety of OTC supplements including botanicals (I tried each individually and assessed their usefulness one at a time- discarding some and replacing with others) because I was getting no guidance at all from my family doctor. Because there was no definitive test result (lab work, neurology, cardiology as you mentioned), no treatment approach or medication was offered to me, even when I requested same. I was left on my own to figure it out- with only the suggestion that I might have Chronic Fatigue Syndrome or some vague allergy. I asked about participating in a clinical trial re vaccine injury and got no where. I started making real progress in my recovery once I started to suspect the vaccine might have triggered a condition like histamine intolerance- MCAS even though my labs were negative for MCAS. Bioflavonoids, DAO and Augmented NAC have been the most useful supplements for me in relieving the neuropathy, cardiovascular issues and brain fog. I am slowly working back to regular cardio and strength work in short sessions, and I have to monitor how it goes, to avoid fatigue and relapse. My heat tolerance is still a challenge when I work out - it triggers bad brain fog for some reason, so last summer was pretty tough. A long road indeed...

    • @jawaligt
      @jawaligt 4 หลายเดือนก่อน +4

      LC may very well be spike protein related in many cases. Spike protein has been demonstrated to end up all over the body, in some cases due to vaccination alone. And let's not rule out autoimmunity issues due to the MRNA method of delivery. Unfortunately, vax injured are even more likely to be gaslighted than PASC sufferers. But they often seem to benefit from the same things PASC sufferers do.

    • @brendabrenner2891
      @brendabrenner2891 3 หลายเดือนก่อน +1

      Am same leaky boat as u.. am vac injured , celiac, gut dsybiosis, long Lyme, mold inj7red, see 10 Drs none kno what I'm talking about.. going to start nati, berberine, choline, etc, but 1 at a time.. u encouraged me, ti.
      Neuro going to give me MRI.. no clinic here in RI.. 🙏❤

    • @Richexperience1
      @Richexperience1 3 หลายเดือนก่อน +1

      Dude that is really rough. I’m LC & vax injured. And this bozo on the vid is still recommending multiple vaccines. Job security I guess.

    • @segunabati3256
      @segunabati3256 29 วันที่ผ่านมา

      I feel i understand you. My wife has been on this painful journey and I would like to talk more with you

    • @Elysian777
      @Elysian777 19 วันที่ผ่านมา

      I am part of a long covid group and the worst long covid cases were from infections that happened prior to the creation of a vaccine. We call them 'first haulers'. How do you know you didn't get asymptomatic covid?

  • @elizabethsamuel2219
    @elizabethsamuel2219 17 วันที่ผ่านมา +3

    I am hearing the truth!

  • @sakinahabdulbari6884
    @sakinahabdulbari6884 4 หลายเดือนก่อน +34

    Thank you for the timely information and suggestions about covid-19 and where treatments are at this moment. I had covid-19 in March 2020, and January 2022. I have long-covid since the 2020 infection, I am not doing good. I need more medical help. I was already disabled before covid-19. I am 66, female, and I want and need help. My brain and energy is getting worse. I have doctors, however, they are saying that "people my age get these illnesses" but I did not have them before Covid-19, my prior MRI proves it. I keep my doctors appts. plus I have all my vaccines up to date. I have the muscle wasting you spoke about, I cry almost every day because I have life in my heart, but my brain and body says no more after 2-3 hrs. Please help me.

    • @TheJoyQueenForever
      @TheJoyQueenForever 4 หลายเดือนก่อน +8

      I would recommend showing both his videos to your primary doctor 😢...most have absolutely no clue...which angers me because the AMA is deafening silent ...❤❤❤

    • @anitarespondek2356
      @anitarespondek2356 4 หลายเดือนก่อน +8

      God bless you.. I have friends with these same problems 😢 and it is devastating 🙏🏼

    • @kw7807
      @kw7807 3 หลายเดือนก่อน +2

      Please let us know how you are doing? 😢

    • @sakinahabdulbari6884
      @sakinahabdulbari6884 3 หลายเดือนก่อน

      @@kw7807 Hi, thank you for asking. How are you? I saw a ortho. doc for my left side SI JOINT 3 wks ago, he gave me a reducing dose pkg of medication because of inflammation, which did help while I was on it, ordered MRI/CAT scan, 1st appt available 9 FEB. I had the freakiest fall 28. NOV. '23, right knee did not make contact to surface, but twisted, and hurting really bad, 8 days later xrays showed no injury, just "age" arthritis, it kept hurting, I am limping, had MRI on 18th, waiting on results from doctor. I was told to bedrest my knee as much as possible, lol, I was already doing that, ice-packs helps. Thank you again, I hope you feel better soon.

    • @sakinahabdulbari6884
      @sakinahabdulbari6884 3 หลายเดือนก่อน

      @@anitarespondek2356 I hope your friends are receiving help from doctors. Those of us with long-covid told doctors in summer 2020 that something was wrong, they are releasing much more research now, still no help. Congress (U.S.) had their first COVID long-haul less than 2 weeks ago, did you are your friends get to see/hear it? I did, but I still do not understand what they are going to do. Thank you for your concern.

  • @wesanderson7918
    @wesanderson7918 2 หลายเดือนก่อน +1

    Thank you for discussing.

  • @itsdavidmora
    @itsdavidmora หลายเดือนก่อน +2

    This is the clearest explanation, from a doctor, about what works for managing Long COVID symptoms & why (on a high level). This completely matches my experience.

  • @sebek12345
    @sebek12345 2 หลายเดือนก่อน +8

    🎯 Key Takeaways for quick navigation:
    00:01 *🩺 Long COVID Diagnosis and Testing*
    - Long COVID diagnosis relies on symptom patterns rather than specific tests.
    - Testing aims to rule out other potential causes of symptoms, such as diabetes or thyroid problems.
    - Diagnosis and testing methods are individualized based on medical history and risk factors.
    03:23 *📈 Long COVID Recovery Trends*
    - Most patients with long COVID show improvement over time, with about 60% fully recovering.
    - Recovery typically occurs within the first one to two years post-infection.
    - Symptoms like fatigue, brain fog, and post-exertional malaise may persist but tend to improve gradually.
    04:50 *💊 Fundamental Steps in Long COVID Treatment*
    - Treatment involves managing energy levels and avoiding post-exertional malaise.
    - Intentional rehabilitation focuses on physical, cognitive, and emotional strengths and deficits.
    - Symptomatic management includes using evidence-based treatments and medications to alleviate specific symptoms.
    11:01 *🏋️‍♂️ Intentional Rehabilitation for Long COVID*
    - Rehabilitation encompasses physical therapy, cognitive therapy, and mental health counseling.
    - Balancing exercise to avoid exacerbating symptoms while promoting physical health is crucial.
    - Cognitive therapy helps in managing attention, memory, and breaking tasks into manageable parts.
    12:29 *🩹 Symptomatic Management with Medications*
    - Evidence-based medications target common long COVID symptoms like fatigue, insomnia, and nerve pain.
    - Medications may not cure long COVID but can improve daily functioning for some individuals.
    - Treatment plans are tailored to individual needs and may involve trial and error to find effective medications.
    13:54 *🎯 Exploring Targeted Therapies for Long COVID*
    - Experimental targeted therapies aim to address viral fragments, chronic inflammation, and blood flow issues.
    - Participation in clinical trials is encouraged to assess the efficacy of these treatments.
    - Patients should have thorough discussions with healthcare providers regarding risks, benefits, and costs of experimental therapies.
    Made with HARPA AI

    • @jowiens32
      @jowiens32 24 วันที่ผ่านมา +1

      I appreciate you!

  • @brunomachado9123
    @brunomachado9123 หลายเดือนก่อน

    THANK YOU SO MUCH!

  • @sofiaguadalupe2008
    @sofiaguadalupe2008 3 หลายเดือนก่อน +1

    Thank you so much. Me ayudó mucho escuchar estas explicaciones.❤

  • @AC_2.4-10
    @AC_2.4-10 หลายเดือนก่อน +2

    What a helpful and thorough video - thank you so much! So validating and gives me a tiny bit more hope... Been dealing with ME/CFS for years, and now long COVID. My life has become so limited and if it were not for my faith and trust in God, I don't believe I would have made it this far. Every day is a challenge, and I often pray to just "make it through" another one. 😢

  • @lukepearson8851
    @lukepearson8851 2 หลายเดือนก่อน +5

    I'm a cross country athlete at the college level. Since Covid, I'd get these spouts of fatigue that'd last for a week then I'd be fine again. I'm a sophomore in college now and I've been fatigued with brain fog for the past 3 months straight. I haven't been able to run or compete. My life has been taken away. I've had various blood tests and sonograms done only to conclude I am "in perfect health." I'm finally trying to reach a long covid clinic, but I'm worried I'll never run again.

    • @bennyb.1742
      @bennyb.1742 2 หลายเดือนก่อน +1

      We'll get there man. Ex-pro track cyclist here, so I know how you feel. It can be a long road, that will be longer and harder if you push too hard early on. I know how much it sucks, I know it feels like you've lost your life but you'll get it back. Even if it takes months or years, you're a young guy and have an other 60+ years of running ahead of you once all this is over and just a bad memory.

    • @hutch73
      @hutch73 หลายเดือนก่อน

      @@bennyb.1742are you back on your bike? Cycling was my life before this. Mountain biking hard 3-4 days a week. I did a 60 mile gravel race 2 months prior to getting sick. Going 14 months

    • @Paragon62
      @Paragon62 หลายเดือนก่อน

      I would try hypobaric

  • @jiayihuang6137
    @jiayihuang6137 หลายเดือนก่อน +1

    So glad to watch this. Thank you doctor. The presentation and advice are so clear and helpful. Having these weird symptoms in my third year university study. I hope I can recover one day and become normal.

  • @ericcardenas9812
    @ericcardenas9812 3 หลายเดือนก่อน +16

    OK. So exercise, but don't exercise to avoid the wall. LOL :) My docs don't really know what's going on with long covid. Seeing a specialized doc in a long covid clinic. she says skip exercise and concentrate on diet. But I do feel I'm losing muscle mass. I don't think rehab therapists will now how to advise on exercise to avoid hitting the wall. They'd just see out of shape me and think its all in my head.

    • @anniemoureaux4839
      @anniemoureaux4839 หลายเดือนก่อน +1

      You might consider trying qigong..gentle, focused and healing. There are some good teachers available on line.

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      I feel like without dry fasting I wouldn't heal long covid so thoroughly

  • @debra9040
    @debra9040 18 วันที่ผ่านมา

    Thank you!

  • @user-zp2dl3dh1k
    @user-zp2dl3dh1k หลายเดือนก่อน +1

    What a difference this video has made in my life!! From the bottom of my heart, thank you, Dr. Brode. Vaccinations and vigilance kept Covid at bay until Feb. 2024. 12 days out developed new onset hypertension. Medication is controlling it well. Fatigue and brain fog are biggest roadblocks. Your presentation is the best medical consult I have had!! I feel you have given me a logical and hopeful treatment plan. Priceless👍I will share this video!!

  • @Kathysart
    @Kathysart หลายเดือนก่อน

    Thank you. 🍃🌸🍃

  • @jgonsalk
    @jgonsalk 4 หลายเดือนก่อน +9

    Great video. Very thorough and provides clear priorities. Really appreciate it! I hit the wall too many times and need to slow it down. I have recovered about 60 to 70% but the recovery has slowed which is extremely frustrating. I want my life back but need to give my body time.

    • @brendabrenner2891
      @brendabrenner2891 3 หลายเดือนก่อน

      Any suppliment help.. going to start protocol, I at a time.. sure is a tough journey🙏❤️

    • @felipebaena735
      @felipebaena735 11 วันที่ผ่านมา

      what did you do for recovering?

    • @jgonsalk
      @jgonsalk 11 วันที่ผ่านมา

      @@felipebaena735 Rest is crucial, I try to make sure I don't push myself too hard. I also take a few supplements and medications. Antihistamines and tricyclic antidepressants have helped a lot. I also take vitamin C, D and B (complex), zinc, curcumin and probiotics.

  • @JoBroughton-yw7un
    @JoBroughton-yw7un 2 หลายเดือนก่อน +1

    After 3yrs I had worked this out, now in 2024 and have a better understanding of my demise and do what you suggest it does work.

  • @thetranscendedman
    @thetranscendedman 4 หลายเดือนก่อน +3

    I think you should touch upon expanded access here. Promising clinical trials will go up in mid-2024 for things like existing monoclonal antibodies. There are groups trying to push the use of a central registry of novel treatments as well known as CURE ID that the FDA uses. There is research suggesting this is a promising treatment available today for specific long haulers through expanded access, but it is limited use due to the current circulating variants.

  • @skooflefloofandfriends4557
    @skooflefloofandfriends4557 3 หลายเดือนก่อน +10

    Whats sad is if you work for yourself there is no disability qualifications. You just cant work as much and then you struggle

    • @latestlindsey5620
      @latestlindsey5620 10 วันที่ผ่านมา

      I work for myself too I feel you . 😢

  • @davidlaney6153
    @davidlaney6153 2 หลายเดือนก่อน

    Yes on Serotonin...that's actually a good idea...

  • @marcobagut
    @marcobagut 2 หลายเดือนก่อน +1

    Unbelievable, you described me. I am now left with Chronic Fatigue, post exertions malaise and lightheadedness. The last one has improved lots. I have to say, the brain fog was gone after three months, but the lightheadedness/dizziness still there, although lately is much better!

  • @marcobagut
    @marcobagut 2 หลายเดือนก่อน

    Now I am trying HBOT.

  • @barbietheegod9452
    @barbietheegod9452 หลายเดือนก่อน +1

    Yessss I’m still dealing with this from Covid in December 23 😢😢😢😢

  • @tyitinanot6130
    @tyitinanot6130 2 หลายเดือนก่อน +3

    post exertional malaise is the term I have been looking for. Caught original covid Oct. 2019 at a high school football game. I sat between a guy who could not stop coughing and my ex-wife. Chivalry is not entirely dead. 4 days of sweating gallons and exhaustion sleep 4 to 6 hours at a time. Incredible brain scramble repetitive thoughts dizziness culminating in a day of diarrhea/vomiting. Took a month til I was back to carrying a decent armload of firewood without needing to drop it and gasp for air. Doctors told me A. respiratory infection or flu (this was 3 to 4 months before it hit the news) B. long covid they don't want to touch I presume due to insurance issues. Answer was well you're overweight and 57 years old. Just now getting over omicron JN1 4 years and 4 months since I had the original. My diminished energy probably 50% from the first go round has increased to more like 75% hoping it may improve. Brain fog way worse this time like I'm constantly stoned but only 2 weeks of fatigue and issues taking a full breath of air. I used to run 10K regularly and was very active outdoors kind of guy now winded walking 4 miles down my road needing a 2 hour nap after my (mostly) daily trip. Age and physical condition I think determined my outcome and I am grateful to still be above ground. 5 friends and neighbors 4 of which were younger than myself are no longer alive because of it. I'm certain it shaved off a few years damn it I had planned to live to 100. What are you gonna do.

  • @denisetitchgregory5867
    @denisetitchgregory5867 2 หลายเดือนก่อน

    Thank you for sharing this video, I no longer feel like I am stuck in a never ending nightmare! I have Lupus, Antiphospholipid syndrome and a cardiac pacemaker due to Mobitz type II heart block. Since contracting Covid I have barely been able to get out of bed :( Slightest exercise renders me straight to bed for up to 24 hours. I live in the UK and seriously considering asking for a referral to a long covid clinic.

  • @FreddieAP
    @FreddieAP หลายเดือนก่อน

    @uthealthaustin4585 Which medications are prescribed for fatigue/PEM ?

  • @Lakawanko
    @Lakawanko 4 วันที่ผ่านมา

    I am in my 3 years now, and what ia have is head pressures. I hope you can find treatment for this. I am a nurse and I am trying to recover withiut any check up at all. I have this left which is pressure in my head. Thank God I am relieve which difficulty breathing, visual problems, walking, body pain, etc. At first I was struggling pushing to get better and then I slow it down. Keeping my day focus like normal days like before and then I got better slowly..It takes time. I hope someday it will all go

  • @michaeljhonfantilanan3207
    @michaeljhonfantilanan3207 หลายเดือนก่อน +2

    3 years but still palpitations, anxiety and hard to get sleep lord jesus help us

  • @marcelguldemond2523
    @marcelguldemond2523 24 วันที่ผ่านมา

    Nice clear summary thanks. Can you speak to how much frequent reinfections make the LC worse? I either get reinfected about once a month, or I’m just no longer able to clear it. Have you seen much immune dysregulation in your patients?

  • @brendabrenner2891
    @brendabrenner2891 3 หลายเดือนก่อน

    Tu for this succinct, informative,spot on capsulation of the complex hirror of long cov, i follow dr sayid Haider(tx) + other outstanding drs such as yourself..see 10 drs here + none know what im talking about..was pre med..going to start prticol, SLOWLY, ..ur sage advice is a kight in the dark tunnel🙏💖

  • @gittebukhpedersen72
    @gittebukhpedersen72 2 หลายเดือนก่อน

    THX.. would be great if you could reach some MDs in Denmark

    • @maryr7593
      @maryr7593 15 วันที่ผ่านมา

      Find the academic research paper and bring the printed copy to the appt. You could try sending them the video ...but my experience has been that they dont watch it before the appt. The dr will not have time to read article at appt....but having it on paper allows it to remind them that they need to get up to speed.

  • @sofiaguadalupe2008
    @sofiaguadalupe2008 3 หลายเดือนก่อน +2

    Tuve covid dos veces, la última en enero de 2022, todavía no se me pasa la fatiga física y mental. Me produce ansiedad y tristeza. No pude seguir trabajando. Hago ejercicio a pesar del la fatiga casi insoportable que muchas veces le sigue, dependiendo de la intensidad del mismo y también del estres social que tengo. Si no es long covid, no sé que tengo, los médicos que ví no saben porque estoy tan cansada. Gracias.

  • @jewelleryaddict
    @jewelleryaddict 4 หลายเดือนก่อน +5

    Very lucky can get disability help for l-covid. I have had severe cfs 30 yrs. We battled for first 20 plus years to try and prove we are disabled many gave up because your already tired and this process with usually a lawyer is expensive and takes forever, if you can ever get help Was many many years before we were heard and got help. Hope these people get help soon. This disease unfortunately lasts forever. The mental struggle is just as hard as the physical struggle. Put your armor on your up for big battle. Good luck. They never helped us.

    • @Richexperience1
      @Richexperience1 3 หลายเดือนก่อน +1

      I cannot imagine how horrible that was. So glad you all paved the way. If you didn’t things would be worse.

  • @jackieporter5705
    @jackieporter5705 หลายเดือนก่อน

    Dr Patterson has a definitive test!

  • @I124q.....28
    @I124q.....28 หลายเดือนก่อน

    March 2020 still suffering fatigue and nerve pain

  • @Me-yp7uo
    @Me-yp7uo หลายเดือนก่อน

    I wish healing was a year and a half. My daughter and I are going on 4 years and we most definitely have been getting progressively worse through the years

  • @torchpitchforkpac1593
    @torchpitchforkpac1593 3 หลายเดือนก่อน +2

    I'll be 62 this June and have had Long-Covid since Delta and Omicron. Covid was the worst illness I have ever had. And the first time I contemplated the inevitability of my own mortality. Scary, though I never had it too severe. The brain-fog was the worst, followed by fatigue, headaches, and general soreness.
    Methylene Blue (MB) - about a year ago I was having more bad days than good. Then I started taking Methylene Blue - 40mg/day. A test dose of 10mg/day for a week to identify side effects. The most notable is that your pee turns blue. And of course I add B-vitamins so now its neon-green. :) Too much fun.
    Anyway, I describe this treatment as a 'sports brace' for your mitochondria. It allows you to push a little against the PEM wall without crashing. Also, it helps with the brain-fog. I saw noticeable improvement during the 10mg test week. Titrating the dose took a few weeks, and finding a suitable delivery method took even longer. The MB powder I get (Amazon) comes in 1 gram vials. You can just mix it with water and add it to juice or whatever. Straight it tastes a bit metallic. I cut it with cornstarch for easier handling, and fill 24 capsules which yields 41 2/3 mg/capsule. Roughly 40mg due to losses. Much more than that and I start to get jittery. Also, MB and B-vitamins can exacerbate insomnia so I take them early in the day.
    Six vials of MB costs me $45, so about 35 cents/day. If you are taking regular medications it is a good idea to research interactions with MB. Not many, and the 10mg test shouldn't cause severe reactions, but any meds that don't play nice can have nasty side effects.
    Live long and prosper...

    • @paulbunyan6024
      @paulbunyan6024 2 หลายเดือนก่อน

      Thanks for that comment. I didn't know methylene blue was used for anything but sick fish.
      Should be interesting to give it a test run 😂

  • @romygime5822
    @romygime5822 หลายเดือนก่อน

    What is the treatment?

  • @brad-fg9ss
    @brad-fg9ss 23 วันที่ผ่านมา

    I had the long term Covid last year 2023.How long before I get over the fatigue.?I’ve had to take days off from work for it.Fatigue is the only symptom

  • @jfouts1979
    @jfouts1979 4 หลายเดือนก่อน +8

    I have had some kind of post viral illness for many years (have a dx of CFS/ME). The problem is...the energy envelope changes dramatically all the time -- even many times within one single day....so it is very difficult to meet a moving target....and....if you stay in bed (and I have been bedbound before...)....then you get deconditioned and make things worse....what research is currently happening that is leading to any answers? I've read about the spike protein being found in stool samples along with other potential latent reactivated virii like EBV... I also have read about the hypercoagulation that occurs in long covid.....and recently learned about lower levels of circulating serotonin (not in the brain but peripherally)....also there was the small study done whereby 4g of creatine were given administered daily for 6 months, and study participants reduced fatigue in a statistically meaningful manner....what do you think is going on there? What are some ways to increase serotonin or tryptophan uptake?

    • @brendabrenner2891
      @brendabrenner2891 3 หลายเดือนก่อน

      Serotonin made in the gut. Mine is a mess. Celiac + long cov, long Lyme, vac injured, Mt Sinai has massive grant w huge studies, but only 4 New Yorkers.. Dr David purtrimo.. think he sells supplements.
      Going to start protocol w nattokinase, serratepsee, choline, berberine, but I at a time.. healing prayers 🙏❤

  • @carlosgarcia3836
    @carlosgarcia3836 16 วันที่ผ่านมา

    What supplements have my fellow long haulers worked for them? Salmon oil has helped me, ivermectin, Probiotics, Nattokinase, Hydrogen gas inhalation, humic/fulvic acid cellcore detox. Sitting in natural springs has helped me the most, maybe because it grounds the body and stops inflammation.

  • @RobManser77
    @RobManser77 หลายเดือนก่อน

    I'm interested by what you say around 4 minutes into the video. Before Covid I ran 100km a week (that's an average of 10 miles a day!) and was finishing in the top 10-20 in half marathons. I also windsurfed, walked a lot, cycled and surfed. I had absolutely no pre-existing medical conditions, was a healthy weight, full of energy, and barely ever got sick from coughs and colds. I am now living like an average 80 year old, and it's been just over 2 years since I got Covid. I can't even jog 5km slowly. I am absolutely nowhere near back to normal - in your percentages that you quote I would guess I'm around 5-10% of my previous health, but I hesitate to use that scale because I can't run 10% of my old weekly distance - I can't run at all.

    • @captainted696
      @captainted696 หลายเดือนก่อน

      Rob. I am 80 yrs old also. Before Covid I could average 21 mph on my madone - trek and hold that for 30 miles. I got Covid on a cruise. It wiped me out. Couldn’t breathe. In hospital over night. They wanted to keep me for extra treatment. When my fever broke and appetite returned I wanted out of there. CT showed lots of fluid on the lungs. Initially had trouble sleeping because of breathing problems . They went away. It’s 6 months since and now it’s fatigue and brain fog.my symptoms aren’t as bad as so many people on u-tube.i was a runner all my life. Did Boston- other races would win my age group.Ran Philly broad street run - won my age group. 58:15 when I was 47 years old. Trying organic protein powder. Benadryl. CoQ10., melatonin. People have gotten good results. At this point I have nothing to lose

    • @captainted696
      @captainted696 หลายเดือนก่อน

      I thought u were 80 years😂. Rob. Sounds like have long covid for sure. I would try probiotics, look into antihistamines. Maybe ivermectin. Good luck

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      Don't run anymore duh... You def need some dry fasting in your life

  • @rg1869
    @rg1869 4 หลายเดือนก่อน +2

    Hello! Thank you for your videos. I tested positive 4 weeks ago and I am still feeling the fatigue where making the bed get me winded. Would this be considered long covid?

    • @edjack5on
      @edjack5on 4 หลายเดือนก่อน +1

      No, most guidelines classify as long covid after 3 months. My advice would be to calm your nervous system and increase your immunity believing you will get better soon. This is the best thing you can do to not develop long covid.

    • @jawaligt
      @jawaligt 4 หลายเดือนก่อน +2

      That's not true at all. Most guidelines consider LC to be present after 3 months of sequelae, some even go as low as 4 or 6 weeks. In many cases, symptoms actually seem to intensify or really present themselves 2-3 months after acute infection. That's been my personal experience and I've read many similar reports from other patients.

    • @edjack5on
      @edjack5on 4 หลายเดือนก่อน +1

      @@jawaligt exactly, I wanted to write 3 months, you are correct.

    • @brucedunn6845
      @brucedunn6845 2 หลายเดือนก่อน

      ​@@edjack5on stop talking tripe , no such thing as long COVID, just a reaction to the poison they stuck in people's arms

    • @stuffclusters
      @stuffclusters 2 หลายเดือนก่อน

      @@brucedunn6845 stop being an idiot, i am not vaccinated and i had long covid for almost 2 years

  • @thekmfdmmachine3919
    @thekmfdmmachine3919 หลายเดือนก่อน +2

    Watch new Tucker interview. He has a explication and a treatment thats been helping his 1500 patients.

  • @TheParadigmShiftTV
    @TheParadigmShiftTV 4 วันที่ผ่านมา

    All research into long Covid needs to take vaccination status into consideration. What percentage of long Covid sufferers are vaccinated and how many doses. My dad has been suffering with this ever since his 3rd shot.The vaccine causes your body to produce spike proteins without an off button.

  • @davidlaney6153
    @davidlaney6153 2 หลายเดือนก่อน +3

    No MRNA vaccines....

  • @jenimcleod1553
    @jenimcleod1553 หลายเดือนก่อน

    What happens if you are stuck on step 1 and it's been 4+yrs. I can work my full time job from home... but that is literally it. I sleep *almost* exclusively the rest of the time.

  • @jazziered142
    @jazziered142 4 วันที่ผ่านมา

    I am exhausted and the brain fog is still there. Three years later.

  • @kylecocktails
    @kylecocktails หลายเดือนก่อน +1

    Nattokinase, Serrapeptase, Nac < help alot

  • @meme-fd3fs
    @meme-fd3fs 3 หลายเดือนก่อน

    We are dome 😢

  • @FreddieAP
    @FreddieAP หลายเดือนก่อน

    I am stuck at 30 % after 19 months. Tops 2 short trips of 1.5 hours per week. PEM is what harms me most and has changed who I am.

    • @FreddieAP
      @FreddieAP หลายเดือนก่อน +1

      @uthealthaustin4585 My PEM warning is a sense of feeling invincible, ecstatic, a sort of high I remember from certain medications, feeling my LC is over and I am better.
      If I act on that feeling of "strength" and do more, exercise longer, stay talking at an event (outside ofc) then I am ill for the next few days or week. It feels like a trick my body is playing.

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      Pls look into dry fasting it can be the spark that sends you back into a healing trajectory

  • @davidlaney6153
    @davidlaney6153 2 หลายเดือนก่อน +1

    Ok I think he is right about the malaise wall...

  • @davidburian5095
    @davidburian5095 3 หลายเดือนก่อน +8

    Again no word about ME/CFS... WTF is wrong with medicine

    • @Richexperience1
      @Richexperience1 3 หลายเดือนก่อน

      Lazy siloed thinking and big checks from Pharma.

    • @brendabrenner2891
      @brendabrenner2891 3 หลายเดือนก่อน

      I joined this group, long cov much like fibro, me/cfs (pcp denied I have it) just found great new research going on for me/cfs,, as it parallels long COVID 🙏💖

    • @maryr7593
      @maryr7593 15 วันที่ผ่านมา

      Look up mast cell activation syndrome (mcas). Same symptoms...

  • @jdrex5039
    @jdrex5039 3 หลายเดือนก่อน +4

    I fully recovered until I got reinfected 😢

    • @maryr7593
      @maryr7593 15 วันที่ผ่านมา

      Look for info on mast cell activation syndrome (mcas)

  • @lynnienorris5776
    @lynnienorris5776 7 วันที่ผ่านมา

    DAMN!
    ARTHRITIS!

  • @delmar418
    @delmar418 3 หลายเดือนก่อน

    Dexadrine Spansule.

  • @Noneofyourfuckingconcern
    @Noneofyourfuckingconcern หลายเดือนก่อน +1

    My long covid comes with bad reactions to drugs!

    • @maryr7593
      @maryr7593 15 วันที่ผ่านมา

      Look for which drugs have which fillers. Usually the fillers are what ppl have reactions to.

  • @jenniferbull84
    @jenniferbull84 หลายเดือนก่อน

    I think this is me

  • @safeeffective385
    @safeeffective385 2 หลายเดือนก่อน

    For those posting here about your struggles with long covid we are going to assume that you were fully vax'd and boosted, unless you indicate otherwise!

    • @floriscorner6482
      @floriscorner6482 2 หลายเดือนก่อน

      I'm not vaccinated and have had problems for more than a year, here you go.

    • @safeeffective385
      @safeeffective385 2 หลายเดือนก่อน

      @@floriscorner6482 That's great!
      At least you're honest about your status there, unlike the vast majority of posters here.

  • @gwilkins4617
    @gwilkins4617 หลายเดือนก่อน

    This is good advice for mild cases but for more severe cases there is no real way to treat and manage. This should be explained…

  • @Paragon62
    @Paragon62 หลายเดือนก่อน

    They knew all this 4yrs this video is an absolute waste of time well done.

  • @patwilliams4146
    @patwilliams4146 หลายเดือนก่อน

    Bruce Patterson says there is a test.

  • @ohzone6464
    @ohzone6464 3 หลายเดือนก่อน +2

    Take Vitamin C. As much as you can.!!!

    • @MJ-tm9fr
      @MJ-tm9fr หลายเดือนก่อน

      Be careful with too much vitamin C, it can be hard on the kidneys. A vitamin C IV might be a way around this....but I'm not a doctor!

  • @ezza1236
    @ezza1236 2 หลายเดือนก่อน

    What is so complicated about it
    Just gradually increase activities

    • @yarnexpress
      @yarnexpress หลายเดือนก่อน

      What's complicated is knowing when you're approaching the WALL. A slight increase in activity can cause you to hit the wall. Hitting the wall causes long term damage. (See UVA report in which they biopsied thigh muscles long covid participants & normal participants. Both groups were pushed physically to exhaustion. Results in post exertion biopsies showed normal participants recovered & were even stronger. Long covid were damaged causing a lowering of exertion tolerance.) This causes a downward spiral. I had a 15 min tolerance a year ago. I'm now down to 6 min. Do you get it now?!

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน +2

      ​@@yarnexpressI've increased mine to near fully healed many times, but it required tailored approaches and it's way too easy to trip up and deteriorate, yes

  • @CC-fw5qq
    @CC-fw5qq 8 วันที่ผ่านมา

    Sooo basically this video is pointless. Keep going to the doctor until you’re so broke you can’t eat. Just for them to tell you they don’t know. Maybe China has some answers lol. And by the way, TIME hasn’t helped. I’m still just as bad 2 years later.

  • @mzm8190
    @mzm8190 หลายเดือนก่อน +2

    So the recommended treatment from this big-name long covid center is don't do much, accept that your health and life has been ruined, take meds for the few symptoms that can be treated like blood pressure and anxiety, and be patient since your body may heal itself in a few YEARS. Time heals all - and evidently better than our overpriced and overrated medical system. Thanks for nothing!!!

    • @Paragon62
      @Paragon62 หลายเดือนก่อน

      My sentiments entirely what a rubbish video, might as well say nothing.

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      What do you expect when your vagus nerve is permanently damaged, viral reservoirs, microbiome loss (can't every fully build back), glucose dysregulation and immune system damage.

    • @mzm8190
      @mzm8190 หลายเดือนก่อน

      @@dryfastingclub Thanks for the compassion...saw your username and thought you were going to recommend fasting. Guess that doesn't work either.

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      @@mzm8190 haha, I've cured myself from bed-bound and the full gamut of long covid symptoms from neurological to physiological. I've actually got all my notes and experiments over the last few years online on the dry fasting club. It's definitely a little complicated when it comes to mastering not relapsing exercise envelope, diet and fasting. But without a doubt fasting is number one for LC healing. No doubt, 💯

    • @dryfastingclub
      @dryfastingclub หลายเดือนก่อน

      @@mzm8190 i specialize in long covid healing which i think translates to so many chronic illnesses around lyme/ME/CFS etc. dry fasting is the way!

  • @WildandFree4
    @WildandFree4 16 วันที่ผ่านมา

    I have had long covid for 2yrs. I lost my will to live awhile ago. I recently learned many have taken antihistamines and Ivermectin ( De wormer) and I've been taking for 1 week. I have been amazed at results even after 1 day!!! Please research and try. No pain, more alert, more energy omg 😍

    • @theeducator8574
      @theeducator8574 9 วันที่ผ่านมา

      U take ivermectin daily??

    • @lz898
      @lz898 5 วันที่ผ่านมา

      How do you get Ivermectin? Do you ask your doctor to prescribe for you?

    • @allisonkloehs3082
      @allisonkloehs3082 2 วันที่ผ่านมา

      which antihistamine and what dose?

    • @theeducator8574
      @theeducator8574 วันที่ผ่านมา

      @@allisonkloehs3082 any what suits u the best
      Take cetrazine or loratidine 2 times daily
      Hydroxy chloroquine daily before bed