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My personal favorite: You should talk to a therapist.... To a nonverbal person who goes nonverbal when anxious, dealing with new people in new settings Sure, I'll just talk to a stranger at a strange place when I'm already anxious from driving there beyond the normal anxiety of being autistic.
"Later it only comes back even later" was my first response there. I cant just bring up things ive wanted to bring up in the past when someone asks about them... they need to be prompted.
I can relate to this immensely. These are normally the conversations that trigger me to meltdown. I have to try extremely hard to navigate spoken thoughts, especially if I need to speak on how something affects me. I have been known to just say: 😠 how can I tell you why I do something or think a certain way when I dont even know myself?!? I just don't understand what everyone wants.
The funniest thing to me about this presentation in the early minutes is hearing how this wasn’t so researched, discussed until fairly recently, when it was autistic inertia that was the impetus that led me to seek out counseling when I was in crisis in 2002 that I described as “inertia” that got me unexpectedly diagnosed. The weirdest thing to me that struck me as weird and unexplained was having no emotional aspect to the inertia. To this day, I’ve read/heard/seen nobody else that ended up getting diagnosed where inertia was the only root cause as to why someone sought out an explanation. I only sought out counsel and got diagnosed not because I felt any issues regarding any social aspects so many others do, and not because of (what I learned recently by experience) ending up in autistic burnout. I have other issues that made me not think of social differences as even a consideration from the start.
The part about vibrations being helpful…I understood that. When I was about five years old I got some roller skates made of metal that caused me to feel vibrations in my feet as I skated on the concrete sidewalk. I liked that soooo much. I would skate back and forth in front of my house for more than an hour. Even now, just thinking about that is relaxing. Also, I have a ring with gears and ridges that cause a vibration when I twist it. I feel so much better when I have it and feel those vibrations.
I never really thought about it before, but I often like to have some portion of my body in contact with machines that are humming or vibrating. It’s soothing. I also love to have a surround sound system in my personal space, and I will take certain music and crank up the volume and take what I have always referred to in my mind as a “sound bath”. I’d just stand in the middle of my speakers and /feel/ the sound waves on/in my body. It was so soothing and pleasurable. It also provided a /chosen/ loud sensory barrier. None of the other sounds that I am constantly having to manually process could get through, so I could relax a portion of my mind. Man, talking about it has me wanting to do it again.
Thank you so much for this video. I can't overstate how helpful it is to have these concepts broken down in such a detailed and concrete way. I've been trying very hard to find a way to explain what I'm feeling to others, and this effectively does that for many of my symptoms. I notice this is a new channel. Please keep these sorts of lectures coming.
I'm 55 and still acquiring a vocabulary to describe my feelings and experiences of being autistic. One of the hardest aspects of being autistic, especially undiagnosed or "high functioning" (overreductive and debatable), is not knowing how to explain it even to myself. Worse, an abusive environment through the lens of autism leads to misconceptions about human nature and society in general. I recently found out I qualify for formal evaluation that should be fully covered, though I'm willing to shell out what I'm able in order to finally get the formal diagnosis. I didn't think I needed it; however the longer I go without it, the more I question myself despite years of research before acquiescing to the obvious, when you know the details about autism. In order to better stand up for myself, I need that validation, unfortunately. So finally, at more than half a century, I'll presume I'll finally "know" with clinical certainty. And believe me, I really didn't want any more diagnoses; I have enough of those, would love to reduce them if that were possible rather than claim more. On the other hand, classic autie, I live in reality and logic, not delusionally.
I am a late 50s female and can identify with you in your comment. I am about to undergo assessment--in the form of a four-hour battery of tests--but I did not have a good feeling about the psychologist on my intake appointment. He claims to deal with adult autism in his practice. He seemed to be insinuating that I have bpd (one of my diagnoses) and trauma, and I do believe that too, but it doesn't explain everything. He is the type that demands to "fix" his patients, and he talked about being data-driven, relying on the results of the tests, which he said will be comprehensive and test for "everything." I told him that I have a daughter who was diagnosed as autistic, and he immediately questioned whether it was a valid diagnosis or whether she might just be affected by childhood trauma as I was. I also have been diagnosed with numerous other things in the past. I am very, very discouraged. I even told him that I had great difficulty with the pre-screening questionnaire, with interpreting the questions and answers and selecting the best answer. So I have tremendous anxiety about the testing process because everything hangs on that four-hour battery of tests. If he doesn't find autism, I don't know how I will cope with it. I have felt alienated my entire life, and now will this man also officially invalidate me and alienate me from my very self?
@@eveningprimrose3088 professionals can and do get it wrong, so please don’t let this guy make you doubt yourself. I think a lot of older autistic women get hit with skepticism and misdiagnosis, it might be time to get a second opinion or even bounce it off the community
Older, undiagnosed autistic people rack up more psychiatric diagnoses before their autism diagnosis. I read this and it certainly applied to me. In 2006 I had a neuropsych evaluation. One of the things they were looking for was autism. They said that I had some childhood traits of autism and still had some traits but I didn't have autism. I forgot about autism for many years and focused on other mental health issues. But autism came up again. In 2023 I found an assessor who specializes in adult women with autism. I was diagnosed with level 2 autism. How did they miss it before? They didn't know much about autism in women back then. Many professionals still don't know much about autism in adults especially women but some men also fall through the cracks. Not all professionals are up to date on autism. Some have prejudices against adult diagnosis. Some have problems with women. Some are ignorant about how autism can appear differently in women and some men and in minorities.
Connecting with oneself through stimmimg was a good insight. I've always looked for meditation to help with autistic problems. Staying in present, bringing awareness to body regularly..helps. Thank you for sharing an extensive research
This comes as close as I have see it, to understand my experiences. I recognize it in my self and the people closest to me. Please take note and understand.
Thank you. That was super interesting. Shed a lot of light on my behavior. I was diagnosed last year at 53 and as I learn I am so grateful to finally understand my life and be at peace with it.
You say autistic people are not from another planet which is of course true. However, other children tended to treat many of us as if we were from another planet. Some of this even applies to how autistic adults are treated especially in work settings.
Chronic upper body shoulders armpits it was chest before before that that neurologist says it's migraine without headpain as I had conventional chronic migraines 25 years ago are you hypermobile? My father had CFS to now better at 75 than 40 obvously he has ADHD undiagnosed my mother had autism list her last year to severe ms do you have any pain?
How might you explain also why when someone is having a meltdown I push to the limits - why??? Am I trying to get the person to react and break a cycle of sorts? I can not stop myself and feel such a bad person afterwards too, of course - I would love to know
Oh wow..I really want a cat purr vibration device....can it work from my smart watch? My garmin reads my stats...can that be linked to a purrer...thus is exciting!!!😊
Being in a wheelchair is only a problem when there's no ramps? Since when?! You've never treated pressure sores from a chair or heard someone sob they can't walk. Taking political correctness to this extreme hurts society. "Unpack" some honesty.
Fill out this interest form if you're interested in getting more involved with the work that we do: forms.office.com/pages/responsepage.aspx?id=Ptc9i3JOeUaxkVbaFYhxKxig10DfRgNDsqYot8wulu9UMTdXVUlINDhBTFBPVVFSREdZUlpQVjkxRC4u&origin=lprLink&route=shorturl
Always excited to find autism research done by autistics.
My personal favorite: You should talk to a therapist....
To a nonverbal person who goes nonverbal when anxious, dealing with new people in new settings
Sure, I'll just talk to a stranger at a strange place when I'm already anxious from driving there beyond the normal anxiety of being autistic.
I go to therapy online. It still might not work for you but at least it cuts out the driving and the new place.
My therapist and I meet over video chat - makes it way easier .
"Later it only comes back even later" was my first response there. I cant just bring up things ive wanted to bring up in the past when someone asks about them... they need to be prompted.
I can relate to this immensely. These are normally the conversations that trigger me to meltdown. I have to try extremely hard to navigate spoken thoughts, especially if I need to speak on how something affects me. I have been known to just say: 😠 how can I tell you why I do something or think a certain way when I dont even know myself?!?
I just don't understand what everyone wants.
The funniest thing to me about this presentation in the early minutes is hearing how this wasn’t so researched, discussed until fairly recently, when it was autistic inertia that was the impetus that led me to seek out counseling when I was in crisis in 2002 that I described as “inertia” that got me unexpectedly diagnosed.
The weirdest thing to me that struck me as weird and unexplained was having no emotional aspect to the inertia.
To this day, I’ve read/heard/seen nobody else that ended up getting diagnosed where inertia was the only root cause as to why someone sought out an explanation. I only sought out counsel and got diagnosed not because I felt any issues regarding any social aspects so many others do, and not because of (what I learned recently by experience) ending up in autistic burnout.
I have other issues that made me not think of social differences as even a consideration from the start.
The part about vibrations being helpful…I understood that. When I was about five years old I got some roller skates made of metal that caused me to feel vibrations in my feet as I skated on the concrete sidewalk. I liked that soooo much. I would skate back and forth in front of my house for more than an hour. Even now, just thinking about that is relaxing. Also, I have a ring with gears and ridges that cause a vibration when I twist it. I feel so much better when I have it and feel those vibrations.
I never really thought about it before, but I often like to have some portion of my body in contact with machines that are humming or vibrating. It’s soothing.
I also love to have a surround sound system in my personal space, and I will take certain music and crank up the volume and take what I have always referred to in my mind as a “sound bath”. I’d just stand in the middle of my speakers and /feel/ the sound waves on/in my body. It was so soothing and pleasurable. It also provided a /chosen/ loud sensory barrier. None of the other sounds that I am constantly having to manually process could get through, so I could relax a portion of my mind.
Man, talking about it has me wanting to do it again.
I loved roller skating too.
Thank you so much for this video. I can't overstate how helpful it is to have these concepts broken down in such a detailed and concrete way. I've been trying very hard to find a way to explain what I'm feeling to others, and this effectively does that for many of my symptoms.
I notice this is a new channel. Please keep these sorts of lectures coming.
I'm 55 and still acquiring a vocabulary to describe my feelings and experiences of being autistic. One of the hardest aspects of being autistic, especially undiagnosed or "high functioning" (overreductive and debatable), is not knowing how to explain it even to myself. Worse, an abusive environment through the lens of autism leads to misconceptions about human nature and society in general. I recently found out I qualify for formal evaluation that should be fully covered, though I'm willing to shell out what I'm able in order to finally get the formal diagnosis. I didn't think I needed it; however the longer I go without it, the more I question myself despite years of research before acquiescing to the obvious, when you know the details about autism. In order to better stand up for myself, I need that validation, unfortunately. So finally, at more than half a century, I'll presume I'll finally "know" with clinical certainty. And believe me, I really didn't want any more diagnoses; I have enough of those, would love to reduce them if that were possible rather than claim more. On the other hand, classic autie, I live in reality and logic, not delusionally.
I am a late 50s female and can identify with you in your comment. I am about to undergo assessment--in the form of a four-hour battery of tests--but I did not have a good feeling about the psychologist on my intake appointment. He claims to deal with adult autism in his practice. He seemed to be insinuating that I have bpd (one of my diagnoses) and trauma, and I do believe that too, but it doesn't explain everything. He is the type that demands to "fix" his patients, and he talked about being data-driven, relying on the results of the tests, which he said will be comprehensive and test for "everything." I told him that I have a daughter who was diagnosed as autistic, and he immediately questioned whether it was a valid diagnosis or whether she might just be affected by childhood trauma as I was. I also have been diagnosed with numerous other things in the past.
I am very, very discouraged. I even told him that I had great difficulty with the pre-screening questionnaire, with interpreting the questions and answers and selecting the best answer. So I have tremendous anxiety about the testing process because everything hangs on that four-hour battery of tests.
If he doesn't find autism, I don't know how I will cope with it. I have felt alienated my entire life, and now will this man also officially invalidate me and alienate me from my very self?
@@eveningprimrose3088 professionals can and do get it wrong, so please don’t let this guy make you doubt yourself. I think a lot of older autistic women get hit with skepticism and misdiagnosis, it might be time to get a second opinion or even bounce it off the community
Older, undiagnosed autistic people rack up more psychiatric diagnoses before their autism diagnosis. I read this and it certainly applied to me. In 2006 I had a neuropsych evaluation. One of the things they were looking for was autism. They said that I had some childhood traits of autism and still had some traits but I didn't have autism.
I forgot about autism for many years and focused on other mental health issues. But autism came up again.
In 2023 I found an assessor who specializes in adult women with autism. I was diagnosed with level 2 autism. How did they miss it before? They didn't know much about autism in women back then. Many professionals still don't know much about autism in adults especially women but some men also fall through the cracks. Not all professionals are up to date on autism. Some have prejudices against adult diagnosis. Some have problems with women. Some are ignorant about how autism can appear differently in women and some men and in minorities.
@@Catlily5 and also more unhelpful, even detrimental treatments.
@@eveningprimrose3088 Some were helpful and some were definitely not.
Connecting with oneself through stimmimg was a good insight. I've always looked for meditation to help with autistic problems. Staying in present, bringing awareness to body regularly..helps. Thank you for sharing an extensive research
This comes as close as I have see it, to understand my experiences. I recognize it in my self and the people closest to me. Please take note and understand.
Thank you. That was super interesting. Shed a lot of light on my behavior. I was diagnosed last year at 53 and as I learn I am so grateful to finally understand my life and be at peace with it.
This is the most on point and informative research about autism I’ve seen in a few years.
Thank you this is fascinating .I often pick up my cat when I am getting tense the purring close to my body really helps me calm down 😊
💗
Thank you very much 😊
Yesssss. The visual non-integration
You say autistic people are not from another planet which is of course true. However, other children tended to treat many of us as if we were from another planet. Some of this even applies to how autistic adults are treated especially in work settings.
where can we get these vibrational breath focus devices?
I am Autistic. My body has tremors that no one has been able to explain. I wonder if my body naturally vibrates for the reason you explain
My body vibrates when I'm unwell, particularly during viral infections.
I have a exewuo shakes her head when excite d
It's highly likely essential tremor I've had it but not now pain worst symptom
@@Truerealism747 where do you have pain?
Chronic upper body shoulders armpits it was chest before before that that neurologist says it's migraine without headpain as I had conventional chronic migraines 25 years ago are you hypermobile? My father had CFS to now better at 75 than 40 obvously he has ADHD undiagnosed my mother had autism list her last year to severe ms do you have any pain?
How might you explain also why when someone is having a meltdown I push to the limits - why??? Am I trying to get the person to react and break a cycle of sorts?
I can not stop myself and feel such a bad person afterwards too, of course - I would love to know
This sound like possible BPD, which can come with autism or be its own thing.
My family crest motto is "vigilance and strength" in Latin. Hmm...
Oh wow..I really want a cat purr vibration device....can it work from my smart watch? My garmin reads my stats...can that be linked to a purrer...thus is exciting!!!😊
Cat purrs really help me calm down 😊
I feel
Think about it later... lol yeah right!
Being in a wheelchair is only a problem when there's no ramps? Since when?! You've never treated pressure sores from a chair or heard someone sob they can't walk. Taking political correctness to this extreme hurts society. "Unpack" some honesty.
Autistic "inertia" sounds like a fad term...like unpack
Found this very insightful thank you so much for your research