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Pitt REAACT: Autism Center of Excellence
เข้าร่วมเมื่อ 18 เม.ย. 2023
We are the University of Pittsburgh REAACT program, and Autism Center of Excellence (ACE) funded by NIMH. We aim to conduct research that will ultimately improve mental health and wellbeing for autistic people across the lifespan. We focus on identifying the mechanisms of emotion dysregulation in autistic people, developing measures of meaningful outcomes, developing community-informed, innovative treatments, fostering meaningful community partnerships, and raising cultural acceptance of autism
EASE-UP: A Study Seeking Participants
Am I right for this study?
We are looking for autistic teens and young adults ages 12-25 who want to strengthen their emotion regulation skills.
The study is open to people with a range of communication abilities. Participants must be able to consent to the study themselves and answer questions about themselves.
Participants need to have a support person that could answer questions about them too. This could be a parent, caregiver, family member, partner or friend.
Participants must live in Alabama or Pennsylvania.
What would I do in the study?
Attend approximately 16-20 weekly therapy sessions, which can be in-person or telehealth with providers from our partnering community mental health clinics.
Complete surveys and interviews at four different times.
Will I be paid?
You will be compensated for completing surveys and interviews associated with the study.
How do I find out more?
Go to: www.reaact.pitt.edu/EASE-UP
We are looking for autistic teens and young adults ages 12-25 who want to strengthen their emotion regulation skills.
The study is open to people with a range of communication abilities. Participants must be able to consent to the study themselves and answer questions about themselves.
Participants need to have a support person that could answer questions about them too. This could be a parent, caregiver, family member, partner or friend.
Participants must live in Alabama or Pennsylvania.
What would I do in the study?
Attend approximately 16-20 weekly therapy sessions, which can be in-person or telehealth with providers from our partnering community mental health clinics.
Complete surveys and interviews at four different times.
Will I be paid?
You will be compensated for completing surveys and interviews associated with the study.
How do I find out more?
Go to: www.reaact.pitt.edu/EASE-UP
มุมมอง: 43
วีดีโอ
SUN: What is SUN?
มุมมอง 393 หลายเดือนก่อน
Creating Safe Schools for All SUN, or Schools Unified in Neurodiversity, is a collaborative of educators and administrators from the Pittsburgh area intended to explore strategies by which the education system can better support autistic and other neurodiverse students. Program goals aim to enhance understanding about: - Neurodiversity and the neurodiverse brain - Safe schools through the suppo...
Neurodiversity: Understanding, Embracing, and Accepting Difference
มุมมอง 1287 หลายเดือนก่อน
Jessie Northrup, PhD & Kelly Beck PhD from University of Pittsburgh School of Medicine About REAACT: www.reaact.pitt.edu/about Neurodivergent Artist Page: www.reaact.pitt.edu/art
Dr. Greg Siegle's "Sensory Sensitivities in Autism: From Narratives to Neuroscience"
มุมมอง 1.3K9 หลายเดือนก่อน
On Thursday, April 11th, 2024, Dr. Greg Siegle about "Sensory Sensitivity in Autism: From Narratives to Neuroscience" as part of UPMC's Autism Acceptance and Neurodiversity Celebration Month. This talk was coordinated by UPMC Western Behavioral Health and the Diversity, Equity, and Inclusion Council. #celebratediversity #celebrateneurodiversity
REAACT Program: Autism Suicidality Inventory
มุมมอง 10110 หลายเดือนก่อน
Enrollment Currently Closed For more information: www.reaact.pitt.edu/ASI Crisis help: If you are struggling with suicidal thoughts or intentions, or experiencing a crisis, talk to a trusted person or therapist. Don't struggle alone. Contact the National Suicide Prevention Lifeline by: • Calling or texting 988 • Chat online 988lifeline.org/chat/ More resources are available at www.autismcrisiss...
REAACT Program: ACE study
มุมมอง 9510 หลายเดือนก่อน
The ACE study is recruiting: • Adults ages 18- to 65-years-old • With or without autism • With or without suicidal ideation For participation information: www.reaact.pitt.edu/ACE Crisis help: If you are struggling with suicidal thoughts or intentions, or experiencing a crisis, talk to a trusted person or therapist. Don't struggle alone. Contact the National Suicide Prevention Lifeline by: • Cal...
Autism and Suicidality Risk
มุมมอง 25410 หลายเดือนก่อน
See how the REAACT program is working to understand these concerns and help at www.reaact.pitt.edu/ Crisis help: If you are struggling with suicidal thoughts or intentions, or experiencing a crisis, talk to a trusted person or therapist. Don't struggle alone. Contact the National Suicide Prevention Lifeline by: • Calling or texting 988 • Chat online 988lifeline.org/chat/ More resources are avai...
SUN: What is SUN?
มุมมอง 113ปีที่แล้ว
Creating Safe Schools for All SUN, or Schools Unified in Neurodiversity, is a collaborative of educators and administrators from the Pittsburgh area intended to explore strategies by which the education system can better support autistic and other neurodiverse students. Program goals aim to enhance understanding about: - Neurodiversity and the neurodiverse brain - Safe schools through the suppo...
Neurodiversity: Understanding, Embracing, and Accommodating Difference
มุมมอง 91ปีที่แล้ว
Neurodiversity: Understanding, Embracing, and Accommodating Difference
SUN Collaborative
มุมมอง 63ปีที่แล้ว
Click here for our more accessible, narrated version of this video: th-cam.com/video/DAldMHhaoFk/w-d-xo.html
Living with Autism: How to Develop a Toolbox for Navigating Life's Transitions
มุมมอง 204ปีที่แล้ว
Allen Meade Gregory, MA describes key strategies to navigating the complications that come along with life transitions for people with autism and those with developmental disorders. These are changes that occur in any life, but may be particularly difficult for neurodiverse people.
Locked in and Screaming: What Neuroscience can say about Autistic Inertia
มุมมอง 10Kปีที่แล้ว
In this talk, Greg J. Siegle, PhD. of The University of Pittsburgh School of Medicine explains his research surrounding the difficulties autistic individuals face surrounding inertia, emotional dysregulation, and the unseen pressure that precedes the outward expressions of those emotions others see.
Suffering in Silence: Suicidality in Neurodiverse Communities of Color
มุมมอง 477ปีที่แล้ว
Suffering in Silence: Suicidality in Neurodiverse Communities of Color
It would be nice to have a summary of the different interventions discussed.
Do you have any Boston Connections?
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Fill out this interest form if you're interested in getting more involved with the work that we do: forms.office.com/pages/responsepage.aspx?id=Ptc9i3JOeUaxkVbaFYhxKxig10DfRgNDsqYot8wulu9UMTdXVUlINDhBTFBPVVFSREdZUlpQVjkxRC4u&origin=lprLink&route=shorturl
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Fill out this interest form if you're interested in getting more involved with the work that we do: forms.office.com/pages/responsepage.aspx?id=Ptc9i3JOeUaxkVbaFYhxKxig10DfRgNDsqYot8wulu9UMTdXVUlINDhBTFBPVVFSREdZUlpQVjkxRC4u&origin=lprLink&route=shorturl
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Excellent video!!! 🙌🏻 Thank you so much for all you do! ☺️
Video is excellent quick descriptive resource!!!
This comes as close as I have see it, to understand my experiences. I recognize it in my self and the people closest to me. Please take note and understand.
Yesssss. The visual non-integration
Yes, autism is an immutable characteristic, no different from your skin color. We are born this way. Can we abolish ABA? It's abuse not therapy.
Always excited to find autism research done by autistics.
Thank you. That was super interesting. Shed a lot of light on my behavior. I was diagnosed last year at 53 and as I learn I am so grateful to finally understand my life and be at peace with it.
In computing, there are often tradeoffs between throughput (total work done per unit time) and latency (time for a given unit of work to be completed). A system optimized for high throughput often has trouble guaranteeing fast and consistent responses to input (in particular, even if the average case response is fast, the worst case can be pathologically slow), and systems optimized for response time are often have considerably less throughput. Is there anything in the neurological data that might suggest something similar going on in autistic brains? If we have a setup where there is a lot of work begun but not completed at any given moment, and where new sensory input cancels work in progress and sends it back to the beginning, in favor of processing the new input, then a lot of sensory input might keep interrupting work before it's completed, resulting in only the first stages of the metaphorical "assembly line" ever receiving anything to work on and very little coming out the other end, unless sensory threshold levels are turned down so far that interruptions are rare.
How might you explain also why when someone is having a meltdown I push to the limits - why??? Am I trying to get the person to react and break a cycle of sorts? I can not stop myself and feel such a bad person afterwards too, of course - I would love to know
This sound like possible BPD, which can come with autism or be its own thing.
Found this very insightful thank you so much for your research
Thank you this is fascinating .I often pick up my cat when I am getting tense the purring close to my body really helps me calm down 😊
💗
I dislike eye contact even with my boyfriend I feel safe with. It makes me feel exposed and like lasers are looking at me. I can stand eye contact for a second. But I don't like it. It is interesting that positively stimulating one sense helps cancel out the negative sensory input of another sense.
I would argue that positively stimulating the same sense that is being overstimulated can help. I ride the bus and it is very noisy. I find if I hum it helps me tolerate it. Of course humming is noise + vibration. So maybe it is not the same sense.
I've never noticed a lot of emotional distress associated with eye contact, but I know that I rarely notice and even more rarely remember the eye color of a given person that I meet.
My family crest motto is "vigilance and strength" in Latin. Hmm...
This is a big problem that shows that all levels of autism need support.
Autistic "inertia" sounds like a fad term...like unpack
Being in a wheelchair is only a problem when there's no ramps? Since when?! You've never treated pressure sores from a chair or heard someone sob they can't walk. Taking political correctness to this extreme hurts society. "Unpack" some honesty.
Glad to hear about this. It could help people.
This is the most on point and informative research about autism I’ve seen in a few years.
Meanwhile US Federal agencies tell people to contact lifeline is feeling suicidal. As an autistic person who has attempted twice I checked it out. That company is literally a govt sponsored suicide booth for autistic humans. I attempted to contact them, was asked a million personal questions then asked to pay for access.... I emailed them multiple times, responded to their attempts to get money, no suicide prevention for autistic humans It is a literal death machine sanctioned by the ADA
Thank you for viewing our video and sharing your experience. You are not alone in this frustration. Your experience truly speaks to the problem with these supports that are not designed to be inclusive of autistic people. Lisa Morgan shared this concern with the government at the IACC meeting just last year. You can see some of her efforts on her website, if interested. www.autismcrisissupport.com/
"My alarm went off and got out of bed" man that so nice. I cant stand the 2 hour reboot process my brain does every morning
Think about it later... lol yeah right!
You say autistic people are not from another planet which is of course true. However, other children tended to treat many of us as if we were from another planet. Some of this even applies to how autistic adults are treated especially in work settings.
Oh wow..I really want a cat purr vibration device....can it work from my smart watch? My garmin reads my stats...can that be linked to a purrer...thus is exciting!!!😊
Cat purrs really help me calm down 😊
I feel
where can we get these vibrational breath focus devices?
The part about vibrations being helpful…I understood that. When I was about five years old I got some roller skates made of metal that caused me to feel vibrations in my feet as I skated on the concrete sidewalk. I liked that soooo much. I would skate back and forth in front of my house for more than an hour. Even now, just thinking about that is relaxing. Also, I have a ring with gears and ridges that cause a vibration when I twist it. I feel so much better when I have it and feel those vibrations.
I never really thought about it before, but I often like to have some portion of my body in contact with machines that are humming or vibrating. It’s soothing. I also love to have a surround sound system in my personal space, and I will take certain music and crank up the volume and take what I have always referred to in my mind as a “sound bath”. I’d just stand in the middle of my speakers and /feel/ the sound waves on/in my body. It was so soothing and pleasurable. It also provided a /chosen/ loud sensory barrier. None of the other sounds that I am constantly having to manually process could get through, so I could relax a portion of my mind. Man, talking about it has me wanting to do it again.
I loved roller skating too.
At 16:50, here is a summary (by ChatGPT) of this amazing finding: In a 2017 study, researchers asked autistic individuals to look at faces on a screen, marking the spot where their gaze should focus. The participants were instructed not to look away, even if the faces showed emotions like fear. The findings revealed that, for autistic participants, this task significantly increased activity in the amygdala, a brain region involved in emotional processing. This heightened response occurred not just for fearful faces but for happy ones as well. Interestingly, such an increase in amygdala activity was not observed in non-autistic (neurotypical) individuals under the same conditions. This suggests that autistic people have a heightened sensitivity to faces in general, not just to expressions of fear or threat. The increased amygdala activity indicates that their brains are more vigilantly processing facial cues, which can make social interactions more intense and potentially overwhelming. It's not just about the emotion displayed on the face; the simple act of processing facial information can activate their emotional response systems more than it does for neurotypical people. This can make social situations particularly challenging, as the heightened vigilance to faces puts them on edge and makes it difficult to disengage.
Thank you very much 😊
I am Autistic. My body has tremors that no one has been able to explain. I wonder if my body naturally vibrates for the reason you explain
My body vibrates when I'm unwell, particularly during viral infections.
I have a exewuo shakes her head when excite d
It's highly likely essential tremor I've had it but not now pain worst symptom
@@Truerealism747 where do you have pain?
Chronic upper body shoulders armpits it was chest before before that that neurologist says it's migraine without headpain as I had conventional chronic migraines 25 years ago are you hypermobile? My father had CFS to now better at 75 than 40 obvously he has ADHD undiagnosed my mother had autism list her last year to severe ms do you have any pain?
I'm 55 and still acquiring a vocabulary to describe my feelings and experiences of being autistic. One of the hardest aspects of being autistic, especially undiagnosed or "high functioning" (overreductive and debatable), is not knowing how to explain it even to myself. Worse, an abusive environment through the lens of autism leads to misconceptions about human nature and society in general. I recently found out I qualify for formal evaluation that should be fully covered, though I'm willing to shell out what I'm able in order to finally get the formal diagnosis. I didn't think I needed it; however the longer I go without it, the more I question myself despite years of research before acquiescing to the obvious, when you know the details about autism. In order to better stand up for myself, I need that validation, unfortunately. So finally, at more than half a century, I'll presume I'll finally "know" with clinical certainty. And believe me, I really didn't want any more diagnoses; I have enough of those, would love to reduce them if that were possible rather than claim more. On the other hand, classic autie, I live in reality and logic, not delusionally.
I am a late 50s female and can identify with you in your comment. I am about to undergo assessment--in the form of a four-hour battery of tests--but I did not have a good feeling about the psychologist on my intake appointment. He claims to deal with adult autism in his practice. He seemed to be insinuating that I have bpd (one of my diagnoses) and trauma, and I do believe that too, but it doesn't explain everything. He is the type that demands to "fix" his patients, and he talked about being data-driven, relying on the results of the tests, which he said will be comprehensive and test for "everything." I told him that I have a daughter who was diagnosed as autistic, and he immediately questioned whether it was a valid diagnosis or whether she might just be affected by childhood trauma as I was. I also have been diagnosed with numerous other things in the past. I am very, very discouraged. I even told him that I had great difficulty with the pre-screening questionnaire, with interpreting the questions and answers and selecting the best answer. So I have tremendous anxiety about the testing process because everything hangs on that four-hour battery of tests. If he doesn't find autism, I don't know how I will cope with it. I have felt alienated my entire life, and now will this man also officially invalidate me and alienate me from my very self?
@@eveningprimrose3088 professionals can and do get it wrong, so please don’t let this guy make you doubt yourself. I think a lot of older autistic women get hit with skepticism and misdiagnosis, it might be time to get a second opinion or even bounce it off the community
Older, undiagnosed autistic people rack up more psychiatric diagnoses before their autism diagnosis. I read this and it certainly applied to me. In 2006 I had a neuropsych evaluation. One of the things they were looking for was autism. They said that I had some childhood traits of autism and still had some traits but I didn't have autism. I forgot about autism for many years and focused on other mental health issues. But autism came up again. In 2023 I found an assessor who specializes in adult women with autism. I was diagnosed with level 2 autism. How did they miss it before? They didn't know much about autism in women back then. Many professionals still don't know much about autism in adults especially women but some men also fall through the cracks. Not all professionals are up to date on autism. Some have prejudices against adult diagnosis. Some have problems with women. Some are ignorant about how autism can appear differently in women and some men and in minorities.
@@Catlily5 and also more unhelpful, even detrimental treatments.
@@eveningprimrose3088 Some were helpful and some were definitely not.
My personal favorite: You should talk to a therapist.... To a nonverbal person who goes nonverbal when anxious, dealing with new people in new settings Sure, I'll just talk to a stranger at a strange place when I'm already anxious from driving there beyond the normal anxiety of being autistic.
I go to therapy online. It still might not work for you but at least it cuts out the driving and the new place.
My therapist and I meet over video chat - makes it way easier .
"Later it only comes back even later" was my first response there. I cant just bring up things ive wanted to bring up in the past when someone asks about them... they need to be prompted.
I can relate to this immensely. These are normally the conversations that trigger me to meltdown. I have to try extremely hard to navigate spoken thoughts, especially if I need to speak on how something affects me. I have been known to just say: 😠 how can I tell you why I do something or think a certain way when I dont even know myself?!? I just don't understand what everyone wants.
The funniest thing to me about this presentation in the early minutes is hearing how this wasn’t so researched, discussed until fairly recently, when it was autistic inertia that was the impetus that led me to seek out counseling when I was in crisis in 2002 that I described as “inertia” that got me unexpectedly diagnosed. The weirdest thing to me that struck me as weird and unexplained was having no emotional aspect to the inertia. To this day, I’ve read/heard/seen nobody else that ended up getting diagnosed where inertia was the only root cause as to why someone sought out an explanation. I only sought out counsel and got diagnosed not because I felt any issues regarding any social aspects so many others do, and not because of (what I learned recently by experience) ending up in autistic burnout. I have other issues that made me not think of social differences as even a consideration from the start.