I've had these on and off for years, since i was in my late 20s, finally got diagnosed, and i can attest that they are the absolute worst pain i have ever had. Smashed fingers at work, (i work on an oil rig), burns, chemical or otherwise, shocks, I've had them all, and nothing compared to these. The closest i can say it ever got was a pair of severely infected surface piercings i had as a late teen, we had to cut the rings out and pull the jagged metal through the already inflamed and infected hole, and i nearly passed out, but even then, it was not fully comparable. There is nothing (excluding medication) that helps, and it feels as if you will have the headache forever, especially when you first start to get them and have no idea what is happening, and i became unable to see past the pain i was in. I banged my head against my hardhat, bashed ice packs into my face for even a moment of distraction from the pain, i could not sleep through them, and they would occasionally wake me from a dead sleep. I had never before in my life had anything close to a serious suicidal thought until I started to get them, but the thought of "if you are dead, it won't hurt anymore" started to creep in, that's when I went to the Doctor, and discovered what the issue was.
You are 100% correct on how no other pain can compare to a cluster attack. At least nothing I ever dealt with has ever come close. Good to hear you got some help because that can be difficult at times.
Been there, done that brother. Here is what I do, I spread it around. I've been getting them since about 21,22. I'm 64 now. I'm episodic, usually once or twice a year when weather changes. Sleep is my main trigger, I don't drink but onions are a trigger so I avoid that when in a cluster period. After all these years my treatment plan is pretty much the same, as I've had them so long my body is kind of trained. I get the coffee machine ready when I lay down as hours don't matter much to me. More weather oriented. I wake up at the first sign of a shadow, take a percocet asap, fire up coffee as a vascular constrictor, light cigarette for same reason, and get to icing forehead and back of neck. This will most times stop the shadow before becoming full blown and in ten minutes I'm ok. After all these years and different meds this is the most effective way to stop mine. As for preventitive I'm on calan now. Not as good as prednasone, which for me is the best, but my body can no longer handle the side effects of the steroids. My heartbeat gets too wacky so no longer an option for me. Always looking for options, but never find anything that works. Hope that helps you.
My sincere apologies for the delayed response. I am so sorry to hear that you have been suffering from this- it sounds like it has been very difficult. You're absolutely correct- cluster headaches are extremely painful. I hope you have since been able to find some relief for your symptoms. It may be worth discussing these symptoms with your GP for pain relief options and the possibility of seeing a Watsons Headache Practitioner.
Wow!! I’ve been suffering from Clusters for 25 years and I have been saying from the beginning that they feel like they originate or are at least connected to something in my neck. My neurologist sent me for an MRI of the brain and I practically begged him for the MRI to be of the cervical spine and he refused. This is literally the first time I’ve ever heard this acknowledged. I hope this means we are closer to finding answers.
Thanks very much for your comment. I'm glad to hear you found this information helpful! I'm sorry to hear you've been suffering for so long. Often, even MRI or CT scans may not pick up on small changes in your neck that can cause these types of headaches. This is where doing a hands-on assessment with a Watsons Headache Practitioner can be useful as they may be able to detect changes in your neck that imaging may not.
This makes me feel so much better that more information is coming to light. Been suffering from this on and off for about 10 years now. I knew there was some relation between the pain behind my eye and something in my neck. I would always massage my neck to reduce the pain. I always get them minutes after waking up. Was in a remission for some time now and just had this morning.
Hi Air, I'm so sorry to hear you've been suffering for this long. I'm so glad you have found this video useful- there is indeed a connection between the neck and cluster headaches! My apologies for the delayed response- I hope you have since been able to find some relief for your symptoms!
This is a troubling video. Cluster headache and migraine are not interchangeable, they are not the same. The most commonly understood pathophysiology is not the neck, it is the hypothalamus.
Hi Cindy, thanks for your feedback. Fortunately, treating the neck can have amazing results for cluster headache sufferers. As Simon mentioned below, the fact that the neck is not the most commonly recognised pathophysiology for cluster headaches is the concerning part for us! In the end, what we're actually treating, when treating the neck, is the brainstem.
@@brisbaneheadacheandmigrain3863 the only explanation would be you and yours are misdiagnosing patients, falsely representing another condition as cluster headache in your clinic. I am a federal primary patient advocate joining UCNS certified in primary headache Neurologists across the country annually in Washington DC fighting for more funding, research and awareness. You are asserting the ICHD III diagnostic criteria is flawed or even 100% wrong, yet triptans (and triptamines) abort attacks within minutes. Minutes! Do you have any credentials in neurology? A subspecialty in primary headache? This condition was first described in medical journals in the 1600s. Chiropractic care is absolutely NOT the remedy for cluster headache.
@@CindyReynoldsAdvocacy Agreed! Thankfully, our care is not chiropractic. I haven't specifically done the research on why triptans help with cluster headaches, nor why they help with migraines. Many of the patients that we see in our clinic have been diagnosed by neurologists, and treated successfully by our clinicians. So to say that we are misdiagnosing, the answer is no. We are often not the people giving out the diagnosis. Do our clinicians have credentials in neurology? No, our credentials are specifically in treating headaches of various types, including cluster headaches. I'm concerned by your comment that this condition was first described in the 1600s, are you suggesting that because it was described in the 1600s that it should therefore no longer be researched? I don't really understand the point of that statement. With all of that said, I'm really glad to see your passion regarding this condition and I applaud you for being in the fight for more funding for the condition over there. Hopefully between what you're advocating and what we do in our clinic, we can help more and more people.
@@brisbaneheadacheandmigrain3863 You're concerned? I'm the one who is concerned by this misleading video. Especially since you've shared your practice is not doing the clinical diagnosis. The point of mentioning the history is not at all related to NOT needing additional research. Just the opposite. The point is directly related to how in the past 400 years cluster headache patients have been ignored at best or worse treated as if we have migraine or neck problems. In 2019 a cluster headache patient in Belgium sought and was granted state sanctioned euthanasia. This a a very real example of the despair cluster headache patients endure when seeking treatment. Triptans have a serotonergic affinity. Triptans are serotonin receptor agonists and have at least three different mechanisms of action: vasoconstriction of pain-sensitive intracranial vessels by acting on vascular smooth muscle; inhibition of the release of vasoactive neuropeptides, such as calcitonin gene-related peptide, from trigeminal afferents on the trigeminal nerve. Currently Yale is enrolling participants in their clinical trial to study the efficacy of psilocybin to treat cluster headache. Psilocybin is also has a serotonergic affinity. Cluster headache have been nicknamed the suicide headache. And now, after the patient in Belgium, the euthanasia headache. It is unethical to suggest a manipulation of the neck will stop the excruciating presentation. Diagnostic criteria ICHD III 3.1 Cluster headache Previously used terms: Ciliary neuralgia; erythromelalgia of the head; erythroprosopalgia of Bing; hemicrania angioparalytica; hemicrania neuralgiformis chronica; histaminic cephalalgia; Horton’s headache; Harris-Horton’s disease; migrainous neuralgia (of Harris); petrosal neuralgia (of Gardner); Sluder’s neuralgia; sphenopalatine neuralgia; vidian neuralgia. Coded elsewhere: Symptomatic cluster headache, secondary to another disorder, is coded as a secondary headache attributed to that disorder. Description: Attacks of severe, strictly unilateral pain which is orbital, supraorbital, temporal or in any combination of these sites, lasting 15-180 minutes and occurring from once every other day to eight times a day. The pain is associated with ipsilateral conjunctival injection, lacrimation, nasal congestion, rhinorrhoea, forehead and facial sweating, miosis, ptosis and/or eyelid oedema, and/or with restlessness or agitation. Diagnostic criteria: At least five attacks fulfilling criteria B-D Severe or very severe unilateral orbital, supraorbital and/or temporal pain lasting 15-180 minutes (when untreated)1 Either or both of the following: at least one of the following symptoms or signs, ipsilateral to the headache: - conjunctival injection and/or lacrimation - nasal congestion and/or rhinorrhoea - eyelid oedema - forehead and facial sweating - miosis and/or ptosis a sense of restlessness or agitation Occurring with a frequency between one every other day and 8 per day2 Not better accounted for by another ICHD-3 diagnosis. Notes: During part, but less than half, of the active time-course of 3.1 Cluster headache, attacks may be less severe and/or of shorter or longer duration. During part, but less than half, of the active time-course of 3.1 Cluster headache, attacks may be less frequent. Comments: Attacks occur in series lasting for weeks or months (so-called cluster periods or bouts) separated by remission periods usually lasting months or years. About 10-15% of patients have 3.1.2 Chronic cluster headache, without such remission periods. In a large series with good follow-up, one quarter of patients had only a single cluster period. Such patients meet the criteria for and should be coded as 3.1 Cluster headache. During a cluster period in 3.1.1 Episodic cluster headache, and at any time in 3.1.2 Chronic cluster headache, attacks occur regularly and may be provoked by alcohol, histamine or nitroglycerin. The pain of 3.1 Cluster headache is maximal orbitally, supraorbitally, temporally or in any combination of these sites, but may spread to other regions. During the worst attacks, the intensity of pain is excruciating. Patients are usually unable to lie down, and characteristically pace the floor. Pain usually recurs on the same side of the head during a single cluster period. Age at onset is usually 20-40 years. For unknown reasons, men are afflicted three times more often than are women. Acute attacks involve activation in the region of the posterior hypothalamic grey matter. 3.1 Cluster headache may be autosomal dominant in about 5% of cases. Some patients have been described who have both 3.1 Cluster headache and 13.1.1 Trigeminal neuralgia (sometimes referred to as cluster-tic syndrome). They should receive both diagnoses. The importance of this observation is that both conditions must be treated for the patient to become headache free.
I suffer from these headaches since 2009 and only discovered last year. This video is helpful. If a community of people suffering from it can share their experiences, it would really help others who maybe suffering uknowingly
There are groups on Facebook dedicated to these. It’s nice to truly speak to people who know what you are going through. I recommend checking it out Ave hopefully helps. Good luck brother
Also a great community of people with cluster headaches and others at clusterheadaches.com. There is a message board where sufferers and doctors frequently share information such as medications, studies, and treatments. It has been a great help to me over the years. I recommend it highly! Here’s a link directly to the message board: www.clusterheadaches.com/wwwboard2/index.html
I get these bad headaches probably around 4 times a year. Mostly in the summer months. It is hard to pin point triggers. Usually occurs at night. The day leading up to the headache I feel so drowsy and in a low mood. I know the headache is coming on as a feel headachy, it’s hard to explain the feeling. I settle to bed, then I wake in between 1am and 3am. Once I wake I have horrendous headache pain just above the left eye. Always the same side of my head. The pain gets worst then my nose starts to run. Then I get hot and clammy, I break out in a sweat. The pain becomes unbearable which at times leads to vomiting and diarrhoea. I am unable to stay still in bed. I use an ice pack for relief. Then after around 1 to 2 hrs the pain gradually settles. I fall asleep, I wake up the next day feeling exhausted with my left side of the face numb. After several hours the numbness subsides, I feel a sense of euphoria. I’m in a great mood for the rest of the day. Does this sound like a migraine or a cluster headache??
This sound like what I've just been diagnosed as having I get woken with headaches always wakes me up at 1am always on left side runny nose of it and teary eye mine was cluster headaches
I suffered from cluster headaches for about 30 years. My typical headache lasted about two hours, and the pain was quite severe, but I had no other symptoms. My bouts lasted about a month and were spaced several years apart. Then, after a bout in May 2001, when I was 55 years old, the headaches disappeared and have not returned. I used oxygen during that bout, which was only partly effective. It abolished a headache in a few minutes, but the headache returned about two hours later. I think the disappearance of my headaches was due to aging. However, I did start having migraine attacks. Notice that I said "attacks", not "headaches". I suffer only typical visual migraine auras, which last for only a half hour, with no pain, no nausea, and no light sensitivity. I'm not sure whether the disappearance of clusters and the appearance of migraines were connected. It seems unlikely.
Good video.. I've been suffering for 10 years maybe with my last cluster season being at the end of 2019. The headaches are always, seemingly, triggered by weather that very unseasonable. Once the weather is "normal" again, the headaches go away. This season I've been battling the headaches by working out. Either jogging, jumping, lifting weights, doing band training, or doing sit ups. This stimulates my breathing and generally cuts the pain by a lot and also seems to cut the duration of the headaches. I just went to brain specialist, Dent in Buffalo Ny, and they really let me down. All they want to do is test to see if the headaches could be something else which is just stupid because I know what they are, lol.. I'd love love to come to your clinic.. I'm tired of suffering
Idk whats been bugging me for the last 1 year with this weird thing happening every day, it happens randomly at least 1-3 times a day where i start feeling heavybpain immediately above my eyes then i just fall into my bed to rest for 20 minutes until that extreme pain passes, it starts like an event i felt before than after that pain i forget everything thet happend the last 20 minutes. It's really weird to explain
I get cluster headaches ive had them since I was 10 now I'm 12 and I'm a girl I have one rn and ive had it since I've gone to bed and we have no ibuprofen
I was diagnosed with cluster headaches about 10 years ago by a neurologist. I always believed they were due to a cervical injury I had many years before but none of the doctors or specialists agreed. I was on 960mg of verapamil daily as well as NSAI 3 times daily. This still did not stop the clusters and I was put on steroids many times which did work but had terrible side effects. I now use high flow oxygen as well which works fairly quickly to stop the pain but I still wake up 4-6 times nightly and rarely travel far from home. My neck is always hurting me but this is like discomfort in comparison to the agony behind my eye if I don't use the oxygen immediately as soon as I feel pain in my left nostril. I am kind of shattered to find out it could be my neck as I always believed that to be the case. I live in Perth and would like to know if you have colleagues here I could contact. Thanks
Hi Simon. Unfortunately this is a really common story. It's amazing how often GPs and specialists completely disregard the patient's complaint of the neck, saying that it couldn't possibly related. I really do understand your frustration with that! I don't know of anyone that can help in Perth, but there is definitely a migraine centre in Adelaide that are very experienced as well. They would be a little closer for you, so maybe a little easier to attend. Otherwise, it may be time to book a trip to the east coast!
@@brisbaneheadacheandmigrain3863 Thanks for the reply. I am seeing a Physio in Perth on Monday at Bodywise physiotherapy that use the Watson technique. My GP got me 5 discounted sessions.
I wished that a city or state would've been listed so I can know if I can get treated. The neurologist in my area aren't the best for CH. I been on and off with this for like 25yrs. 😢
Thank you for the info. I wish i can find any Headache Clinician here in my country. Suffered from this cluster headache since 2004. Most people here have never heard of this kind of headache and when I go to the clinic, they will give me migraine medicine.
Hi guys I’m a cluster sufferer since 2005 and I’m 70 this year and it’s been getting harder to cope with getting older. I’m glad I watched this video because I am tired of getting the run around trying every different meds for relief. Most of research has been for migraines as a lot more people get them than clusters . I am happy to hear it could be cervical related . We will see thanks!
Thank you for this video. A month ago I started having pains around my left eye and left side of my head, and my neck - basically all the symptoms you have brought up on this video. My GP put me on a high dosage of Prednisone, and he told me that after 5days I should visit him again. The Prednisone seemed to be working, however, after the 3rd night of being on the medication the headache struck again and it was longer and more server than before. He has recommended that I see a Neurologists, but I would like to know if you have any specialists you'd know that are based in South Africa, Durban city or closer to Durban city.
Hi Masixole. Firstly, I'm sorry to hear that you've started suffering from these attack. They are awful. Secondly, I would agree with your doctor that it is worth speaking to a neurologist. They will be able to find out whether something more sinister is happening that is causing these. If they don't find anything, the next step should be to have your neck assessed to determine whether you have a sensitised brainstem. Unfortunately I don't know of any specialists in South Africa. I haven't had a lot to do with the medical system over there.
I have the headache always on top of my right eye (on my whole right eyebrow, this is the only area) and it's just a constant pain which I think is bearable sometimes like right now. I have it from 2 days now. I do not get any other symptoms like sweating, eye drooping or running nose. Is it cluster headache?
I suffered from carbon monoxide poisoning and was hospitalized for it, my question is, have you ever seen a patient who gets them alternately from either side? One day my right eye swells sinus pours on that side and my head pulsates to the point my hair hurts. Then the next time it could switch to the left side, all the symptoms are same but left sided. I took pictures to show my doctor and he's never seen it effect both sides at different times. Any idea what meds help for it and have you seen this before.
I'm suffering for 10 years now since i was 11 years old now I'm 29 years old. I get attacked every 2,3 weeks and i can't do anything without pain killers and not every pain killers can help this situation. There is anything i can do to help fix my health?. Sorry for my bad English i hope u guys understand.
I was diagnosed with ( cluster migraines) at the age of 26. I'm now 35. But I've had them since I was 8. No medicine ever worked until 6 years ago when I was put on a steroid called Prednisone. 6 years ago it was 5mg. Now its 40mg. And their getting worse.
Hi Faby, thanks for your question. It can involve very specific hands-on treatment around the first three vertebrae of the neck, but this ultimately depends on what is found in the assessment of the brainstem and the neck. Please feel free to get in touch if you have any other questions.
this info is very informing i have suffered from cluster headaches for the past 10 years i can honestly say this is the worst pain i have ever felt in my life i never cry and this pain has me in litteral tears i sometimes find relief when i allow warm to hot water rush over my head for 30 to forty minutes of course it dosent work all the time but when it does im over joyed the scary part about these headaches is they come an go forever.....plz find a cure to this cause for it to be affecting 0.1 percent of people thats a whole lot more then it sounds like
Thanks very much for your comment. I'm very glad to hear you found this information helpful! I'm so sorry to hear you've been suffering from cluster headaches for this long. You may benefit from seeing a Watsons Headache Practitioner- these clinicians may be able to do an assessment and come up with a treatment plan to help relief your symptoms.
Thank you for the video it was very informative. However I would like to ask you if there is a combination of migraines and cluster headaches or if it is possible to suffer from migraines and chronic cluster headaches. Since I was young I’ve been battling migraines and cluster headaches and when it comes to cluster headaches usually the gaps between the clusters were so small that to me it seemed they never went away and would be considered “chronic cluster headaches”. Now before going on I have never been formally diagnosed by a certified physician to have cluster headaches or chronic cluster headaches. However, the symptoms I experience during these headaches are almost exactly spot on to the symptoms of cluster headaches more than they are migraines. In fact I usually could notice the difference between a migraine and cluster headaches, since usually a migraine would make me sensitive to light and sound, as a cluster headache also does for me, but would also bring on nausea and just and an overall feeling of dizziness and even going as far to make me feel tired or want to sleep in efforts to get rid of the migraine. While my cluster headaches usually started off as a small pain behind my eye that seemed more like sinus pressure or the beginnings of a sinus headache. Until it eventually developed into excruciating pain behind my eye in my temple or at the base of my neck where my skull meets my spine if not all three. But unlike migraines would usually remain in these areas of my head rather than spreading and developing into a pain engulfed my whole head to the point that it felt like someone was using my brain a stress ball. However the reason why I ask you if there is a combination between migraines and cluster headaches is because my migraines and cluster headaches aren’t always separate from each other and will either come on both at the same time to the point that I will not only have full head pain from a migraine but will then start to feel emphasized pain behind my eye, at the base of my skull, in my temples, or wherever you happen to feel pain from a cluster headache. Or would start out as a migraine or a cluster headache but would slowly develop into the other or would slowly develop into having both at the same time. Furthermore there have also been instances where my cluster headaches have not developed into a migraine or developed into having both at the same time. But said cluster headaches would last sometimes the whole day, usually far exceeding the three hour maximum, if not even lasting through the night after I had slept. Where in all instances of one developing into the other or having both at the same time or having a cluster headache that lasted unusually long, Would usually develop into excruciating pain that had the possibility of even affecting my walking so much to the point where instead of pacing around my room or my house to try and distract myself from the pain I just end up rolling on the ground or kind of crawling in place because that’s all I can do.Thank you for the video it was very informative. However I would like to ask you if there is a combination of migraines and cluster headaches or if it is possible to suffer from migraines and chronic cluster headaches. Since I was young I’ve been battling migraines and cluster headaches and when it comes to cluster headaches usually the gaps between the clusters were so small that to me it seemed they never went away and would be considered “chronic cluster headaches”. Now before going on I have never been formally diagnosed by a certified physician to have cluster headaches or chronic cluster headaches. However, the symptoms I experience during these headaches are almost exactly spot on to the symptoms of cluster headaches more than they are migraines. In fact I usually could notice the difference between a migraine and cluster headaches, since usually a migraine would make me sensitive to light and sound, as a cluster headache also does for me, but would also bring on nausea and just an overall feeling of dizziness and even going as far to make me feel tired or want to sleep in efforts to get rid of the migraine. While my cluster headaches usually started off as a small pain behind my eye that seemed more like sinus pressure or the beginnings of a sinus headache. Until it eventually developed into excruciating pain behind my eye, in my temple, or at the base of my neck where my skull meets my spine, if not all three. But unlike migraines, would usually remain in these areas of my head rather than spreading and developing into a pain that engulfed my whole head to the point that it felt like someone was using my brain as a stress ball. However the reason why I ask you if there is a combination between migraines and cluster headaches is because my migraines and cluster headaches aren’t always separate from each other and will either come on both at the same time to the point that I will not only have full head pain from a migraine but will then start to feel emphasized pain behind my eye, at the base of my skull, in my temples, or wherever you happen to feel pain from a cluster headache. Or would start out as a migraine or a cluster headache but would slowly develop into the other or would slowly develop into having both at the same time. Furthermore there have also been instances where my cluster headaches have not developed into a migraine or developed into having both at the same time. But said cluster headaches would last sometimes the whole day, usually far exceeding the three hour maximum, if not even lasting through the night after I had slept. Where in all instances of one developing into the other or having both at the same time or having a cluster headache that lasted unusually long, Would usually develop into excruciating pain that had the possibility of even affecting my walking. So much to the point where instead of pacing around my room or my house, to try and distract myself from the pain, I just end up rolling on the ground or kind of crawling in place because that’s all I can do.
Thank you for your comment and my apologies for the delayed response. It is possible to have these variations such as this where individuals can experience both migraines and cluster headaches. It sounds like this has been quite difficult for your and I'm very sorry you've had to experience this! I'm happy to hear you found this video helpful! Please feel free to get in touch if you have any other questions.
Has been getting headaches since a teenager, never could diagnose the problem until seven years ago they called it cluster headaches, still having the same problems no cure, stop for months at a time and then reoccur , can I get some help please
Bad sound quality On videos actually seems to trigger them. Like having too loud of music at a restaurant or just a lot of background noise. It makes it require more focus and that focus takes effort. So turn vol down…
No medication can solve this,start exrcising when it hits you, live a healthy life style do some yoga for streching and meditate.. Remind yourself everything will be past bad and good moments.. U just get stronger mentally
Hi am Augustine from West Africa I am following your cluster headache teachings of which am suffering from cluster headache is disturbing me Dr please me to get some treatments about it. Regards
I have been suffering headache for 3yrs !every year I have a CT scan and the results are the same. it's just an ordinary headache. I took medicine the pain is gone for quite some days and then back again.none of the neurologist that I visited told me that I'm having a clusterheadache.I want to know what is this head ache I am suffering. I can't concentrate on my work.Do I need to undergo MRI or MRA to know?
Good day,thanks for the video it is of great help. I have been experiencing this cluster headache for few months now and it is really bad. Last Sunday I was in church and it came on me that I was taking to the church clinic and there was given pills but did not have any effect until I was given an injection then after a few mins I felt better. Please I need help how I can treat this please.
Hi Damiettes, thank you for your question. It's best to discuss this with your GP if you have bad responses to triptans. There may be other alternative medications your doctor can recommend. I hope this helps! Please feel free to get in touch if you have any questions
What kind of treatment do I need to determine if I have a sensitised brainstem? I live in singapore and I have cluster headaches. Once every alternate years and for about few weeks. I always start with predisolone n verapamill for a few weeks or months. Mr tay
I never had headaches especially cluster headaches before I had sinus inficetion ethmoidits to be e clean.i think they did something to me .eve. Though I have no sinus infection now I still experience cluster headache
Omg I think everything you just said is absolutely true. And before the start of this headache I used to have some kind a pain in neck for like 5 6 months.
Can a cluster headach change sides. I get headaches on the left but sometimes they are on the right. I also suffer from migraines do i need different medication for both???
Most of the time they don't, but I have treated patients where they will occasionally get them on the other side. Often the migraine medication can help with both conditions, so it's definitely worth a try (with the guidance of your doctor). I would also recommend having your neck assessed to determine whether you have a sensitised brainstem.
Hi Mazie, thank you for your input and raising these points. I apologize if my previous response conveyed any inaccuracies. To provide a more comprehensive understanding, cluster headaches can indeed affect both males and females, although they are generally reported to be more common in males. However, it's important to note that cluster headaches can occur in individuals of any gender. Regarding the causes of cluster headaches, it's true that there can be various factors involved. While some individuals may experience cluster headaches due to dysfunction in the neck, it's not the only cause, however it is reportedly the most common cause. Each case of cluster headaches is unique, and it is crucial to consult with a healthcare professional who can conduct a thorough evaluation. I appreciate you bringing up these points.
@@brisbaneheadacheandmigrain3863 Yes ..that would explain the trigeminal nerve getting so inflamed and that's the painful part. Takes time to go down. Awful
@@brisbaneheadacheandmigrain3863this is very interesting. I have a curvature of the cervical spine and have battled cluster attacks since 1985. Do you have any more information on this?
It's not impossible, but I would expect it to be very unlikely. Vaccines typically go through rigorous testing to seek out all of the possible side effects.
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I've had these on and off for years, since i was in my late 20s, finally got diagnosed, and i can attest that they are the absolute worst pain i have ever had.
Smashed fingers at work, (i work on an oil rig), burns, chemical or otherwise, shocks, I've had them all, and nothing compared to these.
The closest i can say it ever got was a pair of severely infected surface piercings i had as a late teen, we had to cut the rings out and pull the jagged metal through the already inflamed and infected hole, and i nearly passed out, but even then, it was not fully comparable.
There is nothing (excluding medication) that helps, and it feels as if you will have the headache forever, especially when you first start to get them and have no idea what is happening, and i became unable to see past the pain i was in.
I banged my head against my hardhat, bashed ice packs into my face for even a moment of distraction from the pain, i could not sleep through them, and they would occasionally wake me from a dead sleep.
I had never before in my life had anything close to a serious suicidal thought until I started to get them, but the thought of "if you are dead, it won't hurt anymore" started to creep in, that's when I went to the Doctor, and discovered what the issue was.
You are 100% correct on how no other pain can compare to a cluster attack. At least nothing I ever dealt with has ever come close. Good to hear you got some help because that can be difficult at times.
Hope you don't get it anymore. Do you have oxygen?
Been there, done that brother. Here is what I do, I spread it around. I've been getting them since about 21,22. I'm 64 now. I'm episodic, usually once or twice a year when weather changes. Sleep is my main trigger, I don't drink but onions are a trigger so I avoid that when in a cluster period. After all these years my treatment plan is pretty much the same, as I've had them so long my body is kind of trained. I get the coffee machine ready when I lay down as hours don't matter much to me. More weather oriented. I wake up at the first sign of a shadow, take a percocet asap, fire up coffee as a vascular constrictor, light cigarette for same reason, and get to icing forehead and back of neck. This will most times stop the shadow before becoming full blown and in ten minutes I'm ok. After all these years and different meds this is the most effective way to stop mine. As for preventitive I'm on calan now. Not as good as prednasone, which for me is the best, but my body can no longer handle the side effects of the steroids. My heartbeat gets too wacky so no longer an option for me. Always looking for options, but never find anything that works. Hope that helps you.
@@rodneystanger1651 Cluster Busters has a conference in September. Lots of good solutions there.
My sincere apologies for the delayed response. I am so sorry to hear that you have been suffering from this- it sounds like it has been very difficult. You're absolutely correct- cluster headaches are extremely painful. I hope you have since been able to find some relief for your symptoms. It may be worth discussing these symptoms with your GP for pain relief options and the possibility of seeing a Watsons Headache Practitioner.
had clusters for more then 10 years and never heard them explained like this w/ the sensitized brainstem.Thank you so much
Wow!! I’ve been suffering from Clusters for 25 years and I have been saying from the beginning that they feel like they originate or are at least connected to something in my neck. My neurologist sent me for an MRI of the brain and I practically begged him for the MRI to be of the cervical spine and he refused. This is literally the first time I’ve ever heard this acknowledged. I hope this means we are closer to finding answers.
Thanks very much for your comment. I'm glad to hear you found this information helpful! I'm sorry to hear you've been suffering for so long. Often, even MRI or CT scans may not pick up on small changes in your neck that can cause these types of headaches. This is where doing a hands-on assessment with a Watsons Headache Practitioner can be useful as they may be able to detect changes in your neck that imaging may not.
This makes me feel so much better that more information is coming to light. Been suffering from this on and off for about 10 years now. I knew there was some relation between the pain behind my eye and something in my neck. I would always massage my neck to reduce the pain. I always get them minutes after waking up. Was in a remission for some time now and just had this morning.
😥😥😥 me to
Me three :/ hopefully will go away soon!
Hi Air, I'm so sorry to hear you've been suffering for this long. I'm so glad you have found this video useful- there is indeed a connection between the neck and cluster headaches! My apologies for the delayed response- I hope you have since been able to find some relief for your symptoms!
Me 4🥺🥺
This is a troubling video. Cluster headache and migraine are not interchangeable, they are not the same. The most commonly understood pathophysiology is not the neck, it is the hypothalamus.
Hi Cindy, thanks for your feedback. Fortunately, treating the neck can have amazing results for cluster headache sufferers. As Simon mentioned below, the fact that the neck is not the most commonly recognised pathophysiology for cluster headaches is the concerning part for us! In the end, what we're actually treating, when treating the neck, is the brainstem.
@@brisbaneheadacheandmigrain3863 the only explanation would be you and yours are misdiagnosing patients, falsely representing another condition as cluster headache in your clinic. I am a federal primary patient advocate joining UCNS certified in primary headache Neurologists across the country annually in Washington DC fighting for more funding, research and awareness. You are asserting the ICHD III diagnostic criteria is flawed or even 100% wrong, yet triptans (and triptamines) abort attacks within minutes. Minutes! Do you have any credentials in neurology? A subspecialty in primary headache? This condition was first described in medical journals in the 1600s. Chiropractic care is absolutely NOT the remedy for cluster headache.
@@CindyReynoldsAdvocacy Agreed! Thankfully, our care is not chiropractic. I haven't specifically done the research on why triptans help with cluster headaches, nor why they help with migraines. Many of the patients that we see in our clinic have been diagnosed by neurologists, and treated successfully by our clinicians. So to say that we are misdiagnosing, the answer is no. We are often not the people giving out the diagnosis. Do our clinicians have credentials in neurology? No, our credentials are specifically in treating headaches of various types, including cluster headaches. I'm concerned by your comment that this condition was first described in the 1600s, are you suggesting that because it was described in the 1600s that it should therefore no longer be researched? I don't really understand the point of that statement. With all of that said, I'm really glad to see your passion regarding this condition and I applaud you for being in the fight for more funding for the condition over there. Hopefully between what you're advocating and what we do in our clinic, we can help more and more people.
@@brisbaneheadacheandmigrain3863
You're concerned? I'm the one who is concerned by this misleading video. Especially since you've shared your practice is not doing the clinical diagnosis.
The point of mentioning the history is not at all related to NOT needing additional research. Just the opposite. The point is directly related to how in the past 400 years cluster headache patients have been ignored at best or worse treated as if we have migraine or neck problems.
In 2019 a cluster headache patient in Belgium sought and was granted state sanctioned euthanasia. This a a very real example of the despair cluster headache patients endure when seeking treatment.
Triptans have a serotonergic affinity.
Triptans are serotonin receptor agonists and have at least three different mechanisms of action: vasoconstriction of pain-sensitive intracranial vessels by acting on vascular smooth muscle; inhibition of the release of vasoactive neuropeptides, such as calcitonin gene-related peptide, from trigeminal afferents on the trigeminal nerve.
Currently Yale is enrolling participants in their clinical trial to study the efficacy of psilocybin to treat cluster headache. Psilocybin is also has a serotonergic affinity.
Cluster headache have been nicknamed the suicide headache. And now, after the patient in Belgium, the euthanasia headache. It is unethical to suggest a manipulation of the neck will stop the excruciating presentation.
Diagnostic criteria ICHD III
3.1 Cluster headache
Previously used terms:
Ciliary neuralgia; erythromelalgia of the head; erythroprosopalgia of Bing; hemicrania angioparalytica; hemicrania neuralgiformis chronica; histaminic cephalalgia; Horton’s headache; Harris-Horton’s disease; migrainous neuralgia (of Harris); petrosal neuralgia (of Gardner); Sluder’s neuralgia; sphenopalatine neuralgia; vidian neuralgia.
Coded elsewhere:
Symptomatic cluster headache, secondary to another disorder, is coded as a secondary headache attributed to that disorder.
Description:
Attacks of severe, strictly unilateral pain which is orbital, supraorbital, temporal or in any combination of these sites, lasting 15-180 minutes and occurring from once every other day to eight times a day. The pain is associated with ipsilateral conjunctival injection, lacrimation, nasal congestion, rhinorrhoea, forehead and facial sweating, miosis, ptosis and/or eyelid oedema, and/or with restlessness or agitation.
Diagnostic criteria:
At least five attacks fulfilling criteria B-D
Severe or very severe unilateral orbital, supraorbital and/or temporal pain lasting 15-180 minutes (when untreated)1
Either or both of the following:
at least one of the following symptoms or signs, ipsilateral to the headache:
- conjunctival injection and/or lacrimation
- nasal congestion and/or rhinorrhoea
- eyelid oedema
- forehead and facial sweating
- miosis and/or ptosis
a sense of restlessness or agitation
Occurring with a frequency between one every other day and 8 per day2
Not better accounted for by another ICHD-3 diagnosis.
Notes:
During part, but less than half, of the active time-course of 3.1 Cluster headache, attacks may be less severe and/or of shorter or longer duration.
During part, but less than half, of the active time-course of 3.1 Cluster headache, attacks may be less frequent.
Comments:
Attacks occur in series lasting for weeks or months (so-called cluster periods or bouts) separated by remission periods usually lasting months or years. About 10-15% of patients have 3.1.2 Chronic cluster headache, without such remission periods. In a large series with good follow-up, one quarter of patients had only a single cluster period. Such patients meet the criteria for and should be coded as 3.1 Cluster headache.
During a cluster period in 3.1.1 Episodic cluster headache, and at any time in 3.1.2 Chronic cluster headache, attacks occur regularly and may be provoked by alcohol, histamine or nitroglycerin.
The pain of 3.1 Cluster headache is maximal orbitally, supraorbitally, temporally or in any combination of these sites, but may spread to other regions. During the worst attacks, the intensity of pain is excruciating. Patients are usually unable to lie down, and characteristically pace the floor. Pain usually recurs on the same side of the head during a single cluster period.
Age at onset is usually 20-40 years. For unknown reasons, men are afflicted three times more often than are women.
Acute attacks involve activation in the region of the posterior hypothalamic grey matter. 3.1 Cluster headache may be autosomal dominant in about 5% of cases.
Some patients have been described who have both 3.1 Cluster headache and 13.1.1 Trigeminal neuralgia (sometimes referred to as cluster-tic syndrome). They should receive both diagnoses. The importance of this observation is that both conditions must be treated for the patient to become headache free.
@@CindyReynoldsAdvocacy are u sure cause I know people who cured their migraine headache with chiropractic care
I've been suffering from these headaches for over 15 years periodically.. glad to know I'm not alone
I suffer from these headaches since 2009 and only discovered last year. This video is helpful. If a community of people suffering from it can share their experiences, it would really help others who maybe suffering uknowingly
There are groups on Facebook dedicated to these. It’s nice to truly speak to people who know what you are going through. I recommend checking it out Ave hopefully helps. Good luck brother
@@jmike4423 Thanks Mike.
Also a great community of people with cluster headaches and others at clusterheadaches.com. There is a message board where sufferers and doctors frequently share information such as medications, studies, and treatments. It has been a great help to me over the years. I recommend it highly! Here’s a link directly to the message board:
www.clusterheadaches.com/wwwboard2/index.html
I suffer from Cluster headaches and it makes me feel better to know i'm not alone.
Not that I wish them upon any of you. If you ever need to ask questions BHMC feel free to get in touch, I am just down in Melbourne.
I get these bad headaches probably around 4 times a year. Mostly in the summer months.
It is hard to pin point triggers.
Usually occurs at night.
The day leading up to the headache I feel so drowsy and in a low mood.
I know the headache is coming on as a feel headachy, it’s hard to explain the feeling.
I settle to bed, then I wake in between 1am and 3am.
Once I wake I have horrendous headache pain just above the left eye.
Always the same side of my head.
The pain gets worst then my nose starts to run.
Then I get hot and clammy, I break out in a sweat.
The pain becomes unbearable which at times leads to vomiting and diarrhoea.
I am unable to stay still in bed.
I use an ice pack for relief.
Then after around 1 to 2 hrs the pain gradually settles.
I fall asleep, I wake up the next day feeling exhausted with my left side of the face numb.
After several hours the numbness subsides, I feel a sense of euphoria. I’m in a great mood for the rest of the day.
Does this sound like a migraine or a cluster headache??
This sound like what I've just been diagnosed as having I get woken with headaches always wakes me up at 1am always on left side runny nose of it and teary eye mine was cluster headaches
That sounds like a cluster headache
Cluster😢
Woaaahhh I always thought it was just a regular headache I would get. Now I know but I feel like mines not as severe, sort of
You would know if it’s a cluster head ache .....
Not a cluster headache, either a normal or tension headache
I suffered from cluster headaches for about 30 years. My typical headache lasted about two hours, and the pain was quite severe, but I had no other symptoms. My bouts lasted about a month and were spaced several years apart. Then, after a bout in May 2001, when I was 55 years old, the headaches disappeared and have not returned. I used oxygen during that bout, which was only partly effective. It abolished a headache in a few minutes, but the headache returned about two hours later. I think the disappearance of my headaches was due to aging. However, I did start having migraine attacks. Notice that I said "attacks", not "headaches". I suffer only typical visual migraine auras, which last for only a half hour, with no pain, no nausea, and no light sensitivity. I'm not sure whether the disappearance of clusters and the appearance of migraines were connected. It seems unlikely.
Clusters daily for 2 years! A break MAYBE 3days per months on injuctions,pills and all!! Still get them
Good video.. I've been suffering for 10 years maybe with my last cluster season being at the end of 2019. The headaches are always, seemingly, triggered by weather that very unseasonable. Once the weather is "normal" again, the headaches go away. This season I've been battling the headaches by working out. Either jogging, jumping, lifting weights, doing band training, or doing sit ups. This stimulates my breathing and generally cuts the pain by a lot and also seems to cut the duration of the headaches. I just went to brain specialist, Dent in Buffalo Ny, and they really let me down. All they want to do is test to see if the headaches could be something else which is just stupid because I know what they are, lol.. I'd love love to come to your clinic.. I'm tired of suffering
I have been feeling a cluster headache over 1 month plus i have gone to the hospital so many times but am still feeling the pain 😢
Idk whats been bugging me for the last 1 year with this weird thing happening every day, it happens randomly at least 1-3 times a day where i start feeling heavybpain immediately above my eyes then i just fall into my bed to rest for 20 minutes until that extreme pain passes, it starts like an event i felt before than after that pain i forget everything thet happend the last 20 minutes.
It's really weird to explain
I get cluster headaches ive had them since I was 10 now I'm 12 and I'm a girl I have one rn and ive had it since I've gone to bed and we have no ibuprofen
I was diagnosed with cluster headaches about 10 years ago by a neurologist. I always believed they were due to a cervical injury I had many years before but none of the doctors or specialists agreed. I was on 960mg of verapamil daily as well as NSAI 3 times daily. This still did not stop the clusters and I was put on steroids many times which did work but had terrible side effects. I now use high flow oxygen as well which works fairly quickly to stop the pain but I still wake up 4-6 times nightly and rarely travel far from home. My neck is always hurting me but this is like discomfort in comparison to the agony behind my eye if I don't use the oxygen immediately as soon as I feel pain in my left nostril. I am kind of shattered to find out it could be my neck as I always believed that to be the case. I live in Perth and would like to know if you have colleagues here I could contact. Thanks
Hi Simon. Unfortunately this is a really common story. It's amazing how often GPs and specialists completely disregard the patient's complaint of the neck, saying that it couldn't possibly related. I really do understand your frustration with that! I don't know of anyone that can help in Perth, but there is definitely a migraine centre in Adelaide that are very experienced as well. They would be a little closer for you, so maybe a little easier to attend. Otherwise, it may be time to book a trip to the east coast!
@@brisbaneheadacheandmigrain3863 Thanks for the reply. I am seeing a Physio in Perth on Monday at Bodywise physiotherapy that use the Watson technique. My GP got me 5 discounted sessions.
@@simonross6201 That's excellent news. Good luck with the treatment.
@@brisbaneheadacheandmigrain3863 I suggest joining a cluster headache specific patient group or non-profit organization such as Clusterheadaches.com
I wished that a city or state would've been listed so I can know if I can get treated. The neurologist in my area aren't the best for CH. I been on and off with this for like 25yrs. 😢
Thank you for the info. I wish i can find any Headache Clinician here in my country. Suffered from this cluster headache since 2004. Most people here have never heard of this kind of headache and when I go to the clinic, they will give me migraine medicine.
Hi guys I’m a cluster sufferer since 2005 and I’m 70 this year and it’s been getting harder to cope with getting older. I’m glad I watched this video because I am tired of getting the run around trying every different meds for relief. Most of research has been for migraines as a lot more people get them than clusters . I am happy to hear it could be cervical related . We will see thanks!
Thank you, amazing information
I have been suffering from cluster headache quite long but now it seems to getting worse please what m i supposed to do help
One of the worst things about these headaches is that when the pain has subsided, there is a loss of brain function.
I m a cluster headache patient from 28 yrs
I m not a smoker or alcoholic consumer. I must tell its really monster pain.
17 years with clusters..new cycle started 5 days ago
Thank you for this video. A month ago I started having pains around my left eye and left side of my head, and my neck - basically all the symptoms you have brought up on this video. My GP put me on a high dosage of Prednisone, and he told me that after 5days I should visit him again. The Prednisone seemed to be working, however, after the 3rd night of being on the medication the headache struck again and it was longer and more server than before. He has recommended that I see a Neurologists, but I would like to know if you have any specialists you'd know that are based in South Africa, Durban city or closer to Durban city.
Hi Masixole. Firstly, I'm sorry to hear that you've started suffering from these attack. They are awful. Secondly, I would agree with your doctor that it is worth speaking to a neurologist. They will be able to find out whether something more sinister is happening that is causing these. If they don't find anything, the next step should be to have your neck assessed to determine whether you have a sensitised brainstem. Unfortunately I don't know of any specialists in South Africa. I haven't had a lot to do with the medical system over there.
My neck is really big from the top and I do get cluster headaches
I have the headache always on top of my right eye (on my whole right eyebrow, this is the only area) and it's just a constant pain which I think is bearable sometimes like right now. I have it from 2 days now. I do not get any other symptoms like sweating, eye drooping or running nose. Is it cluster headache?
Same
May Chronic Cluster Headaches be directly contributed to exposure to prolong exposure to chemicals and asbestos? I look forward to your reply
I suffered from carbon monoxide poisoning and was hospitalized for it, my question is, have you ever seen a patient who gets them alternately from either side? One day my right eye swells sinus pours on that side and my head pulsates to the point my hair hurts. Then the next time it could switch to the left side, all the symptoms are same but left sided. I took pictures to show my doctor and he's never seen it effect both sides at different times. Any idea what meds help for it and have you seen this before.
I'm suffering for 10 years now since i was 11 years old now I'm 29 years old. I get attacked every 2,3 weeks and i can't do anything without pain killers and not every pain killers can help this situation. There is anything i can do to help fix my health?. Sorry for my bad English i hope u guys understand.
I was diagnosed with ( cluster migraines) at the age of 26. I'm now 35. But I've had them since I was 8. No medicine ever worked until 6 years ago when I was put on a steroid called Prednisone. 6 years ago it was 5mg. Now its 40mg. And their getting worse.
So whats the treatment?
Hi Faby, thanks for your question. It can involve very specific hands-on treatment around the first three vertebrae of the neck, but this ultimately depends on what is found in the assessment of the brainstem and the neck. Please feel free to get in touch if you have any other questions.
this info is very informing i have suffered from cluster headaches for the past 10 years i can honestly say this is the worst pain i have ever felt in my life i never cry and this pain has me in litteral tears i sometimes find relief when i allow warm to hot water rush over my head for 30 to forty minutes of course it dosent work all the time but when it does im over joyed the scary part about these headaches is they come an go forever.....plz find a cure to this cause for it to be affecting 0.1 percent of people thats a whole lot more then it sounds like
Thanks very much for your comment. I'm very glad to hear you found this information helpful! I'm so sorry to hear you've been suffering from cluster headaches for this long. You may benefit from seeing a Watsons Headache Practitioner- these clinicians may be able to do an assessment and come up with a treatment plan to help relief your symptoms.
Thank you for the video it was very informative. However I would like to ask you if there is a combination of migraines and cluster headaches or if it is possible to suffer from migraines and chronic cluster headaches. Since I was young I’ve been battling migraines and cluster headaches and when it comes to cluster headaches usually the gaps between the clusters were so small that to me it seemed they never went away and would be considered “chronic cluster headaches”. Now before going on I have never been formally diagnosed by a certified physician to have cluster headaches or chronic cluster headaches. However, the symptoms I experience during these headaches are almost exactly spot on to the symptoms of cluster headaches more than they are migraines. In fact I usually could notice the difference between a migraine and cluster headaches, since usually a migraine would make me sensitive to light and sound, as a cluster headache also does for me, but would also bring on nausea and just and an overall feeling of dizziness and even going as far to make me feel tired or want to sleep in efforts to get rid of the migraine. While my cluster headaches usually started off as a small pain behind my eye that seemed more like sinus pressure or the beginnings of a sinus headache. Until it eventually developed into excruciating pain behind my eye in my temple or at the base of my neck where my skull meets my spine if not all three. But unlike migraines would usually remain in these areas of my head rather than spreading and developing into a pain engulfed my whole head to the point that it felt like someone was using my brain a stress ball. However the reason why I ask you if there is a combination between migraines and cluster headaches is because my migraines and cluster headaches aren’t always separate from each other and will either come on both at the same time to the point that I will not only have full head pain from a migraine but will then start to feel emphasized pain behind my eye, at the base of my skull, in my temples, or wherever you happen to feel pain from a cluster headache. Or would start out as a migraine or a cluster headache but would slowly develop into the other or would slowly develop into having both at the same time. Furthermore there have also been instances where my cluster headaches have not developed into a migraine or developed into having both at the same time. But said cluster headaches would last sometimes the whole day, usually far exceeding the three hour maximum, if not even lasting through the night after I had slept. Where in all instances of one developing into the other or having both at the same time or having a cluster headache that lasted unusually long, Would usually develop into excruciating pain that had the possibility of even affecting my walking so much to the point where instead of pacing around my room or my house to try and distract myself from the pain I just end up rolling on the ground or kind of crawling in place because that’s all I can do.Thank you for the video it was very informative. However I would like to ask you if there is a combination of migraines and cluster headaches or if it is possible to suffer from migraines and chronic cluster headaches. Since I was young I’ve been battling migraines and cluster headaches and when it comes to cluster headaches usually the gaps between the clusters were so small that to me it seemed they never went away and would be considered “chronic cluster headaches”. Now before going on I have never been formally diagnosed by a certified physician to have cluster headaches or chronic cluster headaches. However, the symptoms I experience during these headaches are almost exactly spot on to the symptoms of cluster headaches more than they are migraines. In fact I usually could notice the difference between a migraine and cluster headaches, since usually a migraine would make me sensitive to light and sound, as a cluster headache also does for me, but would also bring on nausea and just an overall feeling of dizziness and even going as far to make me feel tired or want to sleep in efforts to get rid of the migraine. While my cluster headaches usually started off as a small pain behind my eye that seemed more like sinus pressure or the beginnings of a sinus headache. Until it eventually developed into excruciating pain behind my eye, in my temple, or at the base of my neck where my skull meets my spine, if not all three. But unlike migraines, would usually remain in these areas of my head rather than spreading and developing into a pain that engulfed my whole head to the point that it felt like someone was using my brain as a stress ball. However the reason why I ask you if there is a combination between migraines and cluster headaches is because my migraines and cluster headaches aren’t always separate from each other and will either come on both at the same time to the point that I will not only have full head pain from a migraine but will then start to feel emphasized pain behind my eye, at the base of my skull, in my temples, or wherever you happen to feel pain from a cluster headache. Or would start out as a migraine or a cluster headache but would slowly develop into the other or would slowly develop into having both at the same time. Furthermore there have also been instances where my cluster headaches have not developed into a migraine or developed into having both at the same time. But said cluster headaches would last sometimes the whole day, usually far exceeding the three hour maximum, if not even lasting through the night after I had slept. Where in all instances of one developing into the other or having both at the same time or having a cluster headache that lasted unusually long, Would usually develop into excruciating pain that had the possibility of even affecting my walking. So much to the point where instead of pacing around my room or my house, to try and distract myself from the pain, I just end up rolling on the ground or kind of crawling in place because that’s all I can do.
Thank you for your comment and my apologies for the delayed response. It is possible to have these variations such as this where individuals can experience both migraines and cluster headaches. It sounds like this has been quite difficult for your and I'm very sorry you've had to experience this! I'm happy to hear you found this video helpful! Please feel free to get in touch if you have any other questions.
Has been getting headaches since a teenager, never could diagnose the problem until seven years ago they called it cluster headaches, still having the same problems no cure, stop for months at a time and then reoccur , can I get some help please
Thank you very much for video.
I had this today evening
I'm sorry you did Arhan, they're extremely severe! I hope you haven't had any in this last week. Do you normally have these cluster headache attacks?
Can someone tell me the cause?
Bad sound quality On videos actually seems to trigger them. Like having too loud of music at a restaurant or just a lot of background noise. It makes it require more focus and that focus takes effort. So turn vol down…
Been getting them since a teenager
I have been going through this for yrs now i have taken several medications no one can get what I'm going through 😢😢😢
No medication can solve this,start exrcising when it hits you, live a healthy life style do some yoga for streching and meditate.. Remind yourself everything will be past bad and good moments.. U just get stronger mentally
I like Damien.
Hi am Augustine from West Africa I am following your cluster headache teachings of which am suffering from cluster headache is disturbing me Dr please me to get some treatments about it.
Regards
I have been suffering headache for 3yrs !every year I have a CT scan and the results are the same. it's just an ordinary headache. I took medicine the pain is gone for quite some days and then back again.none of the neurologist that I visited told me that I'm having a clusterheadache.I want to know what is this head ache I am suffering. I can't concentrate on my work.Do I need to undergo MRI or MRA to know?
Good day,thanks for the video it is of great help. I have been experiencing this cluster headache for few months now and it is really bad. Last Sunday I was in church and it came on me that I was taking to the church clinic and there was given pills but did not have any effect until I was given an injection then after a few mins I felt better. Please I need help how I can treat this please.
But what if you are allergic or have a bad response to triptanes?
Hi Damiettes, thank you for your question. It's best to discuss this with your GP if you have bad responses to triptans. There may be other alternative medications your doctor can recommend. I hope this helps! Please feel free to get in touch if you have any questions
I had one this morning
Mine Last a few to several hours each time it happens and I lay on my side and rotate every several minutes and then it goes away
What kind of treatment do I need to determine if I have a sensitised brainstem? I live in singapore and I have cluster headaches. Once every alternate years and for about few weeks. I always start with predisolone n verapamill for a few weeks or months. Mr tay
It’s like I have to get once every week
I need help. I am in Cherry Hill, NJ, USA. My name is Monica Nganjone.
thanks alot, this really helps. i've been getting these headaches on and off for about 8 months now and im only 12 :(
I need help urgently. My Nan is Monica Vezuva Nganjone
Cluster headache is similarly cocane nasal pain???
a real good vid tnx
I never had headaches especially cluster headaches before I had sinus inficetion ethmoidits to be e clean.i think they did something to me .eve. Though I have no sinus infection now I still experience cluster headache
I thought CH was a disorder with the hypothalamus?
since my 18th now 65 every time same time 23:15 a week long now whole day on and off
I am suffering from cluster headache 🥺😭
I'm so sorry to hear this Muhammad! I recommend discussing this with your GP. I hope you are able to find some relief for your symptoms!
Omg I think everything you just said is absolutely true. And before the start of this headache I used to have some kind a pain in neck for like 5 6 months.
Glad to hear that you've appreciated the video. Please let me know if you have any questions.
Sir i have cluster headache from 1 month it is very painful and my age is 15 please suggest something to cure it please please 🙏🙏🙏🙏🙏🙏
I am so much happy I'm back to my health fully by the help of dr Edos he has a good heart of helping and i hope he help us all #dredos
Very painful
Can a cluster headach change sides. I get headaches on the left but sometimes they are on the right. I also suffer from migraines do i need different medication for both???
Most of the time they don't, but I have treated patients where they will occasionally get them on the other side. Often the migraine medication can help with both conditions, so it's definitely worth a try (with the guidance of your doctor). I would also recommend having your neck assessed to determine whether you have a sensitised brainstem.
@@brisbaneheadacheandmigrain3863 Thank you, I will talk to my doctor.
Skip to 3:50 to actually see What the cause is...
Not all cluster ppl have a bad neck
One Dr thinks they come from stomach one brain one neck
And the male thing is wrong.
Hi Mazie, thank you for your input and raising these points. I apologize if my previous response conveyed any inaccuracies. To provide a more comprehensive understanding, cluster headaches can indeed affect both males and females, although they are generally reported to be more common in males. However, it's important to note that cluster headaches can occur in individuals of any gender.
Regarding the causes of cluster headaches, it's true that there can be various factors involved. While some individuals may experience cluster headaches due to dysfunction in the neck, it's not the only cause, however it is reportedly the most common cause.
Each case of cluster headaches is unique, and it is crucial to consult with a healthcare professional who can conduct a thorough evaluation. I appreciate you bringing up these points.
@@brisbaneheadacheandmigrain3863
Yes ..that would explain the trigeminal nerve getting so inflamed and that's the painful part. Takes time to go down. Awful
@@brisbaneheadacheandmigrain3863this is very interesting. I have a curvature of the cervical spine and have battled cluster attacks since 1985. Do you have any more information on this?
Please help my bf
I already had the thought, that my Clusterheadache comes from a vaccine back from my childhood.
What do you Guys think of that?
It's not impossible, but I would expect it to be very unlikely. Vaccines typically go through rigorous testing to seek out all of the possible side effects.
All complete BS. When will chiropractors learn to stay in their lane???
I am so much happy I'm back to my health fully by the help of dr Edos he has a good heart of helping and i hope he help us all #dredos