Differentiating Cluster Headaches from other Trigeminal Autonomic Cephalalgia
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- เผยแพร่เมื่อ 4 มิ.ย. 2024
- Neurologists and headache specialists Dr. Lawrence Newman and Dr. David Dodick share how to distinguish between cluster headaches and other members of the Trigeminal Autonomic Cephalalgias (TAC) family of headaches.
Drs. Dodick and Newman discuss:
- The different types of TACs
- The symptoms that indicate cluster headache
- Treatments, both therapeutic and medicinal, for cluster headache and other TACs
- Tips for the primary care physician who may have a cluster headache or other TAC patient
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This pain is beyond description. I don't think I can tolerate it much longer it never ends. It removes optimism and keeps on with out ever truly ending .
If you are in a cycle I hope it breaks soon. I fully understand not being able to deal with the pain any longer. Hang in there....
Try lsd. It will help and it can break the cycle
The same pain on my head and have I have visited several doctors but there is no change
everytime i think i can handle it... nope. i tried the shrooms it helped for a few days i think. but they could have been shite. the medications developed for TACs were synthesized FROM DMT so you dont have to go through illicit channels. although those without insurance may find them more accessible. thats why i had to find the shrooms
@@lopiklop if its illegal where u r... u can most likely by spores and grow your own!
I was diagnosed with cluster headaches a little over a year ago. This pain is unlike anything I have ever experienced and is hard to put into words. The fact that it is considered a "headache" is simply not true. It is the embodiment of death toying with your brain, seeing how much pain you can tolerate until you finally say enough, and end your suffering yourself. This is where the term "suicide headache" comes into play. There are days/weeks where all the joy and happiness in my life has been drained due to nonstop excruciating pain. I am a chronic sufferer that only receives days of relief at a time. I often wonder and worry if this is what the rest of my life is going to entail, and that thought alone is enough to send me into a spiral of depression.
try magic mushrooms. they can heal you
try Verapamil brother having an episode as we speak takes 2 weeks to kick in been headache free so far 6 days...
th-cam.com/video/9mQSO4Tzbwk/w-d-xo.html
your welcome
I too am chronic and I agree with every word you typed. It's been 18 years and it doesn't get any easier for me. I pray for you.
Man i have felt exactly the same , hold on , you have t9 break your cycle with psychedelic mushrooms , i hope you have found the already
I got my first cluster headache when i was around 19 its the worst feeling ive ever had im 41 now i still get them every spring or fall i live in constant fear of getting them there like a nightmare come to life i pray that everyone who ever get a cluster headache will be healed in jesus name
Adam - please see my post on this website from about Jan 1 2020 and also my replies to Fara Kahn
Excellent set of specialists .. I had cluster headache attacks ( 9 or so) a couple of years ago, they were horrendous, the 1st one I had I thought I was having a stroke. the doctors, nurses, neurologist in London weren't that great, I don't think even cluster headaches were mentioned. It took me months of research and fact finding to figure it out. If they start again (they were episodic), around the orbits of the eye, down one half of the face etc. if they ever start again, I may fly out to the US and get a consultation with one / both of these seemingly excellent doctors.
Thank you so very much for these incredible insights to the most shocking brain pain I can imagine. It’s so important for everyone Dr’s family and friends to understand exactly what these are? When we say oh I have a headache no body imagines your brain is on fire. Concentrated behind one eye. In order for this to be addressed we desperately need pain management . That helps. I am currently receiving help for the first time since 1981 . Am serious this is not a joke I was in a psychiatric hospital as a result of this and they were giving me grade 10 meds. I was out of it , but that’s not living and so much has changed since then. Thank goodness. And again Thank you for this very much needed Video...ps I am Deeply intrigued at the two thumbs down for this vid
Cluster headaches have literally ruined my life...
Jane - please see my replies to Fara Kahn
Mine too 😢😢
th-cam.com/video/9mQSO4Tzbwk/w-d-xo.html
I have been a sufferer of these nasty headaches since the 90s.
I saw a neurologist in the mid 2000s, and was diagnosed with Cluster Headaches.
Most recently I went to a neurologist, and I just heard about the Hemicrania Continua.
I have taken Relpax, Sumitriptan, and most other medicines outside over the counter medicines.
What I have found that worked very well, is Fiorocet with codeine. I live in the east coast and the found out in 2014 that the crisp winter cold helped very well with the headaches. Combined with Fiorocet with codeine, my pain was gone within 30 minutes. I am well aware that doctors and or numerologist do not like to prescribe medicine with narcotics. But if I may implore what has worked for me, may not work with other people who may suffer from cluster or hemicrania
I think one of the most excruciating thing to happen while in a cycle are the understanding of work colleagues and employers. I’ve had the unfortunate experience of having to secretly record an incident of me having an attack while my boss storms in to complain. I quit that job but it still scares me to have to go through something like that again. No matter how much you try to explain it some people will always think it’s just a migraine
Snap. I have lost all but two jobs I have ever had because of this condition, because let's face it, who is going to emply someone who is off work for three months or so a year? You simply cannot function during a cluster episode, either during the attacks (for obvious reasons), or between them because you are so exhausted through lack of sleep. And your experience with people you work with is very familiar too. They just think you're a drama queen, and one boss actually said so to my face. It's depressing to think that such people exist, but unfortunately he was pretty typical of the kind of ignoramus you will find at the top of many businesses.
That's why I don't use the word headache
My Nero calls them nerological disorder
I quit explaining 35 yrs ago. That in itself is exhausting
@@mazie7952 bingo. i stopped calling them cluster 'headaches' to people because it gives too many people the wrong idea of what it's like. i tell people i have a condition that causes excruciating pain in my head and then they say, "like a headache?" and I get to say "no, not really"
@@zfeazcesd1047 👍
I used to suffer from cluster headaches in my mid 20's. It took me 2 years to find a doctor to help me. The injections stopped my pain, and Verapamil worked to stop the headaches from happening. Eventually, they stopped, after occurring every night, at about the same time, waking me from sleep. I am 55 now, and hope they never come back again!
I feel for everyone suffering from this. And I am also glad, there are now many more new treatment options for this horrible condition.
How old were you when they went away? Mine started at 21 and I am now 40 years old.
@@johnmassey2737 I think they stopped completely after about 5 years.
Don't give up hope! Medical science is advancing very fast. I had major heart surgery, was up and about a day after, and only have a 2 inch scar on my chest! There are lot's of new treatments for CH today...
have had clusters for 11 years and went chronic this year,finally got to see a neurologist recently-should have done this years ago.im trying to be open minded about treatment options,and want to end this never ending cycle of pain!
Blair - see my replies to Fara Kahn. They may help
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I learned so much, thank-you.
Brilliant so informative
One of thee best and most concise discussions I've seen regarding tacs. I've been diagnosed with clusters, but after watching this, I'm not so sure, it's definitely a tac though.
Thank you so much for conducting the discussion and for uploading it.
I had cluster headaches in my twenties. Imitrex injections worked Then they went away. Im now in my fifties and the beast has returned. Had one this evening. I feel it lurking behind my right eye. I have an appointment with my doctor today and I'll beg him for an Imitrex prescription, even though It'll cost me $500 a shot. The pain is just too severe. During this last attack my mother asked me if she should call an ambulance. I told her to f!@$ off. Unacceptable. But she's very understanding and is watching videos like this to realize that the pain is so severe that it can turn you into a different person. Mr. Hyde.
Hey, how are you now? I’ve been suffering with these for 33 years and just finally got the diagnosis. I can identify with the ambulance comment. I’ve actually been taken out in an ambulance due to these headaches. The neurologist that just gave me the diagnosis is going to give me Botox injections to bathe the nerves in my neck and head. Also, he has ordered occipital nerve blocks. The pain has been so bad for me in the past, that I use a hammer and pound myself in the thigh to divert my attention away from the head and neck pain during one of these.
Thanks for this.
God bless these men. I am a brit from the uk and have cluster headache. i have been using injectable sumitriptan for a number of years and it has worked well but in the last few months i have been getting rebound headaches which are so terrible that i have given up on the injections and now have nothing to treat my attacks . i have had these headaches for 35 years and i have had enough of the fight. i have seen a you tube clip on SPG does anyone know anything about this?
I’m on week 9 of a cluster headache cycle. It consumes everything in my life. This is the 4th time I’ve had prolonged (2-3 months) cycle.
I'm sorry Nancy. I hope you have been doing better. I also have ch and have been doing better please reach out.
I am suffering from this headache last 20 years it comes almost every year very rarely in after 2 years and continues 3 to 5 weeks every day same time for exact 1hour and I found some remedies last time paracetamol HCl worked for me
And
naproxen sodium
Or ginkgo biloba extract fast releif
Or take 100 ml cold coke from can instead of bottle
Farhan, Please see my replies to Fara Kahn
Never felts like restless during cluster headaches, just laying still in bed on embryo-positing, because every movement hurts even more. First time though blood vessel rupture in brain, and I'm going to die, but later realize, it would been only relief.
I am glad cluster head aches are known now. No one knew in this first 1/3 of my life with cluster headaches. Started in my early 20th in my late 50s now and have seemed to stop. If you are dealing with this I have read it stops in your 50s. It seems to be true. Oxygen saved me the last decade of my life with this.
I feel the same way. I started with these when I was 15 and I’m 48 now. I’ve been trying to get help from the beginning and no one knew what these were. That’s interesting about it stopping in your 50s. I feel fortunate to have finally gotten a diagnosis. I also feel fortunate to have survived it this long. They don’t call them suicide headaches for nothing. Hope you are still free from them and making up for all you probably missed out on during the first half of your life dealing with them.
I have had Clusters for around 8+ years and it took around 5 years to get diagnosed.
I've just finished this years cycle (bout I believe they call it). I suffer from Episodic Cluster Headaches, and it lasts for around 3-4 months.
I get 3-5 per day ranging from a "feeling" to so much pain my body tenses up to the point where I twitch, can't take a piss and finally vomit.
I get around 2 hours of sleep per night during the bouts and will always be woken up by the pain. I only sleep because I have to. The fear of the pain waking me up compels me to stay awake for as long as possible as I know I will be in pain for 30+ minutes, anywhere up to an hour and a half.
Now the good news, I had the injection in the back of my head this year. It was supposed to last around 3 months but instead it was around 1 month. However I had a month of pain relief which I was absolutely grateful for.
After that wore off I was offered Sumatriptan which works brilliantly. I started with the injection. Took away the pain in seconds however the side effects were massive in my case. From nose bleeds to itching skin from head to toe, to boiling blood to vomiting.
So I tried the nasal form. Perfect. It has next to no side effects and took away the pain in around 4 minutes.
Only bad thing about Sumatriptan was the waiting time. In the UK I have to wait around 2 weeks for a GP appointment then get the drug ordered in which takes around 3 days, all for 6 nasal sprays. 1 week of pain relief then 2 with out.
Edit: Also I trialed this year and it works most of the time for me. Sleep sitting up. I strapped myself to a chair when sleeping and most of the time I have a better sleep. Now it doesn't stop the headaches, however I would get around 6 hours of sleep per night rather than 2. On top of that the headaches thought out the day would be less harsh.
You may want to try 10mg of Melatonin supplement before bed to combat the late night rude awakening attacks. It actually stopped all my late night attacks during my last cycle but is a hit or miss during the cycle I'm in now. I'm in the US so I don't know what the legality of it is in the UK but it is something worth looking into.
Stay headstrong and pain free.
I’ve had these headaches last three days straight. A typical one will last no less than 16 hours for me, solid. I’ve often wondered if my neighbors can hear me screaming through the walls of my house due to the severity. I get these headaches on average 26 days a month. It’s indescribable torment.
What is the coding/protocol for getting a patient qualified for O2 for insurance to pay for it?
good to know... I've be suffering for 6 years... many failed meds... killed my liver.... luckily, I was able to repair (or help it heal) with a homeopathic cleanse... however, have not helped these GD headaches....
+Paolo F (Youmakemewow) You might wanna look into the psychedelics, their legal status and funny name might give them a bad reputation but by being a CH patient myself, I have found something that seem to be truly magic after 10 years of pain.
Thank you. Good video. I think I've got Paroxysmal Hemicrania but I take a good 10 high concentration Serapeptase enzymes pills before it gets really awful. I think without that it might go on for a lot more than 2-3 days, so its hard to tell what the natural duration is.
Can I ask what brand of Serrapeptase please
Thx
I have suffered with all diagnoses you have explained in the past 15 years my headaches never go away the longest attack lasted 4-5 months i now pass blood through my eyes and nose when attacks are in flow what can I do ???
I suffer from 3 different types of rare migraines. :(
Trimingeal neuralgia
Prymoxial Hemicrania Continua
Hemicrania Continua
Nothing seem to help, until I went to Cleveland Clinic an the nurse Practitioner recommended vitamin therapy. I take vitamin B2 & magniusm oxide daily. It has helped alot, but I still struggle with muscle tightness, an extreme fatigue. This illness has changed my life, an has taken the best years of my life. My heart goes out to anyone whom suffers from these rare chronic migraines.
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@@nancywalker-keay8361who is the Dr?
Indocin was a godsend for me I have hemicrania continua.
Blood Patch-It was not the reason they gave me the blood patch but as soon as I received it the attacks
(BEAST) stopped instantly. I had them for eight months straight, multiple times a day until the patch was administered. I have not had one since. It has been 6 years with no further episodes
We’re you leaking cerebral spinal fluid for some reason?
What is a blood patch?
As I have learned more and more about cluster headaches and hemicrania continua. I was also wondering can the things that I have been through as a child, be a culprit to what is playing out today as an adult. As I will explain, my dad was not always a very nice person. Quite abusive and I was always getting slapped or punched in the face from a child to my early teens. And the reason why I mention this, is because I have seen talks discussing the Pituotary gland. But I am just curious as to what any triggers may be to ignite such pains in the head.
When I do get my pains, it begins with a small throbbing pain, behind my left eye. And if I do not take something right away, it becomes an onslaught of piercing, throbbing pains which shoot down my tooth. I can become super uncomfortable, and in need of the cold. Cold floor or rag. I will not say that I get violent, but if I am bothered while I am in pain. That is not a good thing. I have to have like milk or something heavy in order to take the medication, if not. I will vomit and have hot and cold sweats. I have had the pains last for less than a week up to close to two months straight. Everyday almost like clock work if I did not take my meds. And when it comes, it's like any where between midnight to 4 am where I almost literally jump out of bed.
Maybe this info maybe useful to your studies, I don't know. But what I do know, this s💯💯t hurts like most people wouldn't believe.
Hello my friend, can you tell me what medicine you use?
Don't forget to try SPG blocks - no needles, rapid relief - helped me tremendously, and I didn't respond to any of the other nerve blocks (occipital, trigeminal, stellate ganglion), and over two dozen abortives and preventives trialed over the past 12 years.
Is there any bad side effects with that? I havent heard about that yet I'm going to look into it now. Thanks for the info
So I'm having headache directly above my eye only left side closer up to my hairline sometimes it radiates to the back of my head same side but mostly just a throbbing pain in that one spot..I sometimes will tap it hard because it annoys me so much. I wake up with it usually 5 am or 6am in the morning and it will occur sometimes in the evening after dinner ..If I take pain killers Advil gel with Tylenol with codeine or sometimes a 5mg oxycodone with Advil it will subside in about 30 40 min and it will often not bother me the rest of the day until the later evening. Its almost daily now and its been about 4 months occasionally I get a day without out. I do have dry eye syndrome I use eye drops to lubricate my eyes but I do find at night my eyes tear especially the eye on the side of the headache . I will sometimes have a stuffy nose only in the morning on that side but it quickly goes away as soon as I get up from bed. Otherwise no sinus trouble at all. I have never smoked and I don't drink any alcohol. Not sure if that is pertinent. I immediately wonder about tumours after becoming daily headaches...but then I saw the information about cluster and I wondered if that's possibly what it is... I've never been prone to headache before but my dad suffered with migraines all his life. My oldest son had migraine as a pre teen but grew out of it. Is it normal for cluster headache to go away when you take pain medication or Advil? Mine is very treatable if I take something but I hate taking it everyday. Thanks for any insight anyone has to offer.
I get pain on the left side of my head, sometimes it last a couple minutes and other times hours. I get random shooting pains mostly to my left eye, just quick zaps here and there. Also I smell smoke sometimes (which is not there) I also get weird mild like burning sensation in my head in random places. I also suffer from bad anxiety, so I quickly think I have something terminal like an aneurysm when I do get symptoms. What could it be?
Talk to your P.C. doctor give you a referral to Neurologist friend has ruin my life 2 yrs now.
Bro I got the same pain..worst thing I've ever been through.
Luiee H I got a Ct scan and I am clear from anything life threatening. I was scared, but it was just probably stress headaches.
@@robertogarza8960 I just got my referral to a neurologist 🤞
@@robertogarza8960 are u ok now..what have u done to get ok?
I had 2 cluster attacks. And I honestly can say Migraine is nothing against that one. U can hit your head against a wall , break the skull and will not feel it. THAT is how bad that pain is
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
What about those of us that suffer from CH that can not take verapammil due to abnormally low blood pressure? Is there another preventative (aside from Topamax) that works for CH?
doctors don't do free consultation online Kelly, don't be rude.
go to your doctor.
+Kelly Chandley I have that same issue. They went ahead and gave the verapamil at very high doses (usually), back in my 20s and 30s. My resting pulse would be down in the 40s and even 30s sometimes. They did a stress test, ekg's and so on, but my heart never stopped. I would get light-headed when I stood up, but that happened a lot anyway with my low BP. The verapamil would work for a while, then quit; so we'd have to switch to a new combo, usually with prednisone taper to help during transition to effective dose of new stuff. But often lots of uncontrolled time in between. Now that I'm in m 50s I can't tolerate a lot of meds including verapamil at high enough doses to help.
They just came out with Emgality. It's the first FDA approved preventive med for Cluster Headaches. The people on Facebook CH support groups have reported pretty good results with it. I'll be taking it as soon as my pharmacy gets it in stock. Good luck.
Five years Without diagnosis.?!?! I could be so freaking lucky. I’ve been having these headaches for 33 years and just now got a diagnosis. It’s taking everything I have to not put a bullet in my head. That’s how bad they are. Were it not for Jesus I wouldn’t be here today.
Ok if i tell you my symptoms can you help me out
pain in left eye runny red eye. runny nose. veryyy painful in the left eye moves around left side of head, neck, temple, top of head basically starts in left eye and pain is awful can last 30 mins to over an hour. Last night I had four attacks in one night! Absolutely terrible I am missing out on everything because I get no sleep at night because I get attacks early hours of the morning I can be asleep and it will wake me up with the pain. A couple of times I have been sick from the nausea of it. My heart starts beating funny and out of time (palpitations) the pain is unbearable and no pain killers work at all. I hold an ice pack to it which probably doesn't help but it gives me like 2% comfort from the pain. I have told my doctor it is cluster headaches because it seems exactly the same to that. I have suffered this before during fall time for two years now had about a 10 months free of it but it always seems to come back in end of august/september time. But all of a sudden it came back very very bad about a week and a half ago I thought I was having a stroke or was going to die and has been happening every night since. I cannot cope with it anymore. What are my best options to get my life back and stop this horrible pain? My doctors never give me the help I need and I have to get them to let me see a neurologist and mri scan to really see what is going on but they never take me serious and palm it off as tension or stress which it isn't because it doesn't matter if i am relaxed or stressed it still happens. Please help me
You suffer from cluster headache I have the same symptoms and it is HELL on earth for me
@@farakhan7140 Hang in there Fara. I re-read all of these every week to find new posts. only about 1 in 4 people I reply to ever reply back. I'm glad you did. Jim
Please help. For Gods Glory. Amen
where is your god now
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Well, you guys got one thing wrong. Pituitary tumors are found in 20% of all autopsied leading me to believe that 20% of people have them whether they are symptomatic or not. I've had them removed 3 times. The gamma knife finally knocked it according to last year's MRI. Now 5 years after gamma knife, I'm having what seems to be cluster headaches. Could it be my pituitary acting up again? I don't know because I never had headaches even when I had a pituitary adenoma but I'm going to find out because this is misery.
Hum I'm wondering now if I have the last 1 you explained here. I get sever headaches so bad I puke & can't do anything but cry. Then when it let's up, I keep a constant light headache. The bad attacks last me sometimes up to 7 to 8 days. No matter what I do or take nothing stops it till it goes away on it's own.
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Can you help me please?
I have leftsided facial pain attacks (eye and nose area with nasal congestion) almost daily, they last between 10 minutes and 3-5 hours, since this year they sometimes last up to 12 hours. I was first diagnosed with cluster headache. But now my whole face and also my neck hurts during the attacks. After seeing an Atlas Specialist the pain attacks sometimes change to the right side. I'm from Germany, female and 25 years old and none of my german doctos knows whats happening with my body. I have a 19mm pineal cyst. My this be the cause? I'm really desperate because of the pain.
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I took a 2000 B12 that my doctor gave me and it’s from a company called Solgar. It has Cyanocobalamin 83,333% and I got dizzy from it like an hour later. 3 times. I think I won’t take it since they charged us lots of money even though it’s $20 on Amazon
I want the cluster headache chat room............
My son who is only 8 yrs old suffers from cluster headaches. He has Autism which causes a huge communication barrier..... We go see a Neurologist in two weeks. I pray to GOD there is something they can do for him. As his mother I WOULD GIVE MY LIFE IF IT WOULD STOP HIS PAIN!!!! ITS ABSOLUTELY HEART WRENCHING WHEN YOU FEEL THERE IS NOTHING YOU CAN DO TO HELP HIM AND HE IS BEGGING ME “MOMMA PLEASE MAKE IT STOP PLEASE MAKE IT STOP!!!!””””😭😭😭😭😭😭
Oh that's so sad that your son is still suffering from this, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I had cluster headaches for the last 20 years, and in the last 10 years I asked the doctor to give me prescription of oxygen and that’s the only thing what I use. I have oxygen tanks with me in the car and I use 10 L per minute. That’s how I get relief of the cluster headaches attack.
Webinar: Differentiating Cluster Headaches from other members of the #TAC family of headaches
I've got one right now that has been going on 5 days now. I'm 99.9% sure I've got the contninuia ones. Because when the bad flare ups end, I keep a light migraine 24/7. I've been having them since 1996 after a bad car wreck. It really screwed up my neck to the point I need surgery to fix C4-c7, fuze them together and titanium plates & screws put in. Now if I get a strong smell of a skunk I won't have any type of headache for up to 6 to 8 hours. Not sure why but it works. Even short time I welcome it.
Two years ago I started looking into my frequent headaches and thought I probably had cluster headaches, so I started keeping a diary of them. Then after a couple of months the headaches became more and more, until now the past year I've had about 330 days of headaches, where the remaining days are primarily ones I simply slept through. I'm no stranger to headaches, I had a cyst in my head causing spinal fluid build-up about 6 years back. That is pure pain. All in all I've gone more than a decade with various kinds of headaches. Funny, I have this memory from when I was a kid asking my mother what headaches were like, wondering if I'd ever have any myself.
Last month I read about Hemicrania Continua, and I certainly recognized myself in most of the symptoms, except that eye watering and rhinorrhea are more pronounced on the opposite side of my face, with occasional pain on that side as well, however that feels different from the more constant one that is on my right.
At any rate, I just started taking Indomethacin today, so I'll know soon enough if it's HC or not. I only hope I can rid myself of headaches one of these days.
I hope you get well soon. Can’t imagine what ur going through right now.
How did cyst get into your brain?
@@ilqar887 Who knows. I had similar headaches years before it got so bad I had to go to the hospital where they found the cyst. From a quick google it says some cysts might form as a result of an injury to the head, which in my youth I was not a stranger to.
@@southhill6667 how do you get rid of it?
@@ilqar887 With a craniotomy. Basically cutting a flap in the skull through which they stick a tube to suck the cyst out. If the cyst's crystallized the operation's a bit more complicated, but luckily mine was just liquid and they got it out no problem. Immediately upon waking up I felt like I was getting the first breath of fresh air in years!
Though I later got Hemicrania Continua, and some other unidentified headache atop of that, but thankfully those meds I started taking when I made that first comment are working, and as long as I take those every six or so hours the HC headaches stays away. :'D
I have been a sufferer for years now, the cycle seems to begin at the same time each year which is Oct for me, I have an appointment at docs today but already feel its pointless going because i'm not going to get any effective treatment. I'm fearful to lay down n go to sleep
Nomad - I suffered CH for 16 years and was finally cured. Go to Clusterbusters.com and go to the Forum to see what all they have to say. There are ways to treat CH and you will find them there. Also, look up a post by "DragonKiller" (ME). The post was labeled "What if there was a cure". If you reply to this post here, I will get notification and will be happy to discuss further with you. Do not reply to the DragonKiller post on Clusterbusters, as I have terminated that account.
Also see my post on this website and my replies to Fara Kahn
😢😢 I truly understand
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
I had one last night
I really would like the medical community that is looking into cluster headaches to really research the psilocybin option to abort attacks or even clusters. I am suffering from cluster headache and a tiny amount of psilocybe semilanceata is totally aborting my pain. While all other prescribed medicines I had never stopped an attack fully, for 10 years... I want to highlight the fact that I cannot feel any side effect from such small amounts of psilocybe semilanceata, no funny feeling, no drowsiness, nothing really but a clear, painless head.
i dit try it en best ever fore nothing else dit work fore me finely some relief i kan sleep al night i stil have pain but no atacks ;-) wisching you the best
Cluster headache has been something disturbing my life for nearly 2 years now. The pain is indescribable sometimes
Oh that's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
10 years before i was diagnost whit ch
good video, but poor sound. please use a mic. thanks.
I absolutely hate these headaches!
It feels like someone driving a ice pick into the side of my head around the temple and squeezing the back of my eye and the side of my head is cracking open! I also get hot sweats and dull ache down the side of my neck. I've taken Imitrex(Sumatriptan) but don't like how jittery it makes me feel. Like a turbo shot of caffeine! Relpax(Eletriptan ) is ok, but takes too long to work. Usually kicking in about the time the headache is on it's way out and already been suffering for 30min! Maxalt(Rizatriptan) in it's fast-acting dissolving tablets works very well in the first half a cycle for me. For whatever reason, the last half of the cycle it doesn't fully relieve the headaches! Usually turning them into a dull, annoying pain that continues for another 30mins. Thing that sucks about Maxalt is that i can only take one a day while i have about 3-8 headaches a day!
Please see my posts here from January and last week. Also see my ongoing conversation with Fara Kahn. Also, with the Maxalt (Rizatriptan 10mg ODT), try cutting those tiny tablets into 4 pieces with a razor blade and only take one piece per attack. That 1/4 tablet always stopped my attack within 5 minutes, and if it works for you then you are just overdosing for one stupid headache when you could be treating 4 with each tablet, each day. If you would like to try what cured me after 16 years of chronic CH with up to 5 attacks a day, then reply to this message and I will get a notification. I have not had a CH for 23 months now, and it only cost $15 USD, for a prescription antibiotic type drug. It is not yet tested by anybody but myself and I am looking for people to try it to see if it will work for anybody else. What have you got to lose except the fear and the pain?
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I appreciate their efforts but LSD and shrooms have been my go to and it's amazing.
Vagus Nerve ATTACK ⚡️⚡️
I can them BOLTZ⚡️ I see why they also call them 'Suicide Headaches ' I feel so worthless. I'm constantly Paranoid of the pain.
I just had an MRI done and I am a cluster headache suffer. They told me my MRI came back as normal there is obviously something not normal about my brain even cluster headache doctors state that brains that suffer cluster and migraine are abnormal brains. I can confirm that whatever is wrong with my brain is currently not known as to what to look for by the professionals that are looking at the results of MRI
I don't think mri gives them any significant info when trying to diagnose them...Unless things have changed, but when I was getting tossed around to doc after doc and test after test, nothing helped point them toward that diagnosis. Ive had sinus surgery and all during that time and it took finally seeing the right neurologist that was familiar with clusters to diagnoses it, based on the symptoms.
@@HomeGrownPyro1 so u had cluster headaches
@@ilqar887 Unfortunately yes, been dealing with then for the last 16 years...started getting them around age 19. They are absolutely brutal!
How about you do you get them too?
@@HomeGrownPyro1 I think it has a lot to do with sinusitis trauma I had ethmoiditis I got rid of it then ..pain started and it never stopped ever since..I got pain in my cheek bone in my eyes in my temple more like constant ..most of the time it happens when I go out my eyes get dark...I get congestion...
@@ilqar887did it ever go away?
MUSHROOMS!
i leav in israel & sufer from ch for more then 20 y,the last month is just too much for me,i realy realy tierd frome this ,the pain is killing me ,i want to die but i dont want to do it becous i have my 15 y o son,pls help me pls.
nothing better than magik mushrooms
@Andrea Allen by testing it , reed clusterbusters
Clusters busters psylocybin
En yes testing
So what will happen if the patient suffering from hemicrania continue to be allergic to Indomethacin, and the next option is Melatonin? Isn't it Melatonin is used as a sleep aid? So does it mean the person with hemicrania continue will always be sleepy and unable to do their ADL? 🤔
Why aren't these eligible for a disability in themselves? Particularly if they are chronic. They are so debilitating that one just cannot hold down a job while dealing with these.
My problem is the pain in my left eye is so bad that I want my eye out. I did good for a year and half now my migraines just came back
Oh shoot no that’s not good I’m sorry!!
Have headaches been misdiagnosed rather it is a parasite instead .
If you don't mind my asking-what were your symptoms? What type of parasite?
What type of parasite?
@@Salimjackson23 The ones that are airborne.
merhabalar türkiyeden yazıyorum yaklaşık 20 yıldır bu agrıyla yasadım caresini buldum
I need to find this man, please help me! I’m a Navy Vet and I’m still active, they’ve pulled teeth! Please God I’ve considered suicide at it’s worse. Imitrex injection helps but my spells can last from a to a Month! I’ve been in 13yrs now and I just want to healthy. Prednisone bloat and Relpax/Topamax no appetite Wth. My small frame is confused as hell 😂 Maxalt gives me jitters. I have a 14yr old that I got to keep up with! 🤣 You guys stay encouraged 🙏🏾
Oh that's so sad sweetie to hear you are still facing this condition, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I get a lot of Headache in a day and keeps me up all night
I have found that 50k units of vitamin d twice a week helps
Breaking a bone: OW
Dog bite: OW JESUS
Shot: OW, FUCK
Cluster headaches: SHIT THAT HURTS
Trigeminal Neuralgia: i have terminal depression
Also,,called, Suicide Headaches.
michael scott? 4:55
ugh... neurologist gave me verapamil (sp?) then prednisone.... it messed up my brain....lost years of memory(I'm allergic to cortisone...) u
I have had seizures
I suffer from cluster headache my quality of life is zero I am always in excruciating pain for me death would be peaceful the pain is unbelievable I have 7 attacks a day I have no quality of life I would prefer to have cancer at least may be I would get treated
Fara - I suffered CH for 16 years and was finally cured. Go to Clusterbusters.com and go to the Forum to see what all they have to say. There are ways to treat CH and you will find them there. Also, look up a post by "DragonKiller" (ME). The post was labeled "What if there was a cure". If you reply to this post here, I will get notification and will be happy to discuss further with you. Do not reply to the DragonKiller post on Clusterbusters, as I have terminated that account.
@@Chow-Guy I have tried the website a d it will not show the correct state I am in it only shows places in America but I live in the UK ENGLAND DERBYSHIRE
@@farakhan7140 Fara, I am putting together a post discussing all of the things that did help me over the years and how to use them, as well as the story of my cure. It will take me ad day or so but I will post it on this website and will also post it a a reply to you. The best thing I can suggest in the meantime is try to get a source of oxygen. I will include the particulars of that treatment in my post. I got mine from a welding shop. If you know any welders ask them if they can get you a tank of oxygen and a regulator. JIM
Thmkyou so much for taking concern in me I really appreciate it I have already got oxegen tanks the hospital supplies me with them and I take sumutriiptan tablets but still very sick
@@farakhan7140 Fara, - first, I am not a doctor and nothing I suggest is intended to be taken as a doctors advice or as a treatment or cure for any malady. That said as required under US law, I am still working on a total discussion of what has helped me, but for now I want to know that you are using oxygen properly. I was initially prescribed oxygen but it was not what is needed. They gave me a small tank which only offered "supplemental" oxygen. In order for oxygen to work, you must be breathing pure oxygen and nothing but oxygen for the duration of an attack. You must have equipment that will allow you to breath pure oxygen straight from the tank and not allow any outside air. You must also start the oxygen as soon as you feel an attack coming on. For me, it kept the pain at the level it was at the time I started the oxygen. If I was already well into an attack and the pain level was already extreme, the oxygen did not help. If you just have equipment that adds oxygen to outside air as you breathe, it will NOT help.
Also, with the sumatriptan, if it is not the type that you place under the tongue, which supplies an immediate dose as it dissolves, it will not work for cluster headache. I ended up getting Maxalt ODT 10 mg tablets. (ODT is "oral dissolving tablets") Rizatriptan is the generic form, and you place the tablets under the tongue where they dissolve and are quickly absorbed. They stopped my attacks within 5 minutes and I personally had no side effects. Now for warnings - Rizatriptan can have severe side effects, just like all of the triptan drugs. Knowing this, and also having used Zolmatriptan nasal sprays in the past, I was cautious. The Zolmatriptan did stop my headaches quickly but left me completely "wiped out" like a hangover for hours afterward. Rizatriptan did not have any hangover effect. But I never did take a whole tablet. The tablets are tiny, but on my first time using it I cut the tablet into 4 pieces with a razor blade and took only one small piece at a time. I then put the remaining pieces into an airtight plastic pill bottle for later use. I did occasionally have to use 2 or 3 pieces within a 24 hour period and never had any bad effects. My prescription for these says not to use more than 2 tablets in 24 hours. By cutting the tablets in 4 pieces, it would suggest that I could take up to 8 pieces in 24 hours, but I never needed more than 3. I will add - if you can get this product, read and consider all of the warnings, and I would not suggest that you use this or any other triptan without doctor supervision. Also, even the generic Rizatriptan is pretty expensive here in the US, but by having my doctor give me a prescription for the maximum allowed of 7 at a time, and then searching online for discounts, I was able to get the Rizatriptan for about 5 USD each. Then by using only 1/4 tablet at a time, it was really quite cheap. I pray that this will help you for now.
No one is talking about hallucinogens. They changed my life. I not only can use them as an abortive treatment, they make the headaches go away for long periods up sometimes 1.5 years. I have had episodic cluster cycles (like my father) since i was 17. Treating them with hallucinogens changed my life. Probably not for everyone but I am upset it is not even part of this discussion.
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I’ve had them for 50 years. There is no cure. These people will take your $$$ though.
That's so sad sweetie, I know of a doctor who can help you out with this. He also help me from this same disease , He can also help you cure yours permanently
1 month ago I was diagnosed of CLUSTER HEADACHE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including CLUSTER HEADACHE , at first i doubted if it was real but decided to give it a try , when i contact this herbalist via his email and he prepared a CLUSTER HEADACHE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 5 months of usage, I am now free from CLUSTER HEADACHE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for. He can help get rid of yours permanently... Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@@nancywalker-keay8361how did you get help with yours , and if a dr knows what to do , why don’t they all do the same
There is no cure.
Brilliant so informative
Brilliant so informative
Brilliant so informative
Brilliant so informative