I wish medical professionals were more helpful explaining these stages and what to expect. So far I’ve been told nothing on what to expect, what to watch or prepare for. How tragic. No wonder I’m stressed out!! Caregivers need every bit of help they can get. Thank you for your channel.
Medical professionals, make it a few hours of training on dementia, unless they are neurologist. So it is frustrating for your “family doctor“ to not know dementia information. That’s why I decided to start the group on Facebook, and make these videos, and write the book! all of the links to those things are in the description below the video. You might have to hit the button “more” to find the links.
My 93 year old mother is well into this stage and moving into stage 5. She lives alone but has carers who come for an hour a day in the morning. Mother refuses to allow them to perform household tasks, saying she can do them herself. She is stubborn, anti- social and in total denial of her condition. When told she has soiled the bed, mother goes ballistic and says she hasn't. When told she is going to be placed in a Nursing Home due to her inability to self maintain, mother becomes aggressive, loud and belligerent. I am in the process of applying for POA Health and Welfare so that when the time comes, she will have to legally go. This is the only way forward in dealing with her attitude and total non compliance.
Bless your heart! Bless her heart! It seems to me that you are doing what is best, and what is necessary. All behaviors have a natural end. She may put up a fuss at the nursing home, but they will know how to handle it. Come join our group over on Facebook, link is in the description are you can search dementia with Grace caregiver support group. You will find lots of help,Remedies for grief and guilt. All my love, Vicky
My Husband was diagnosed with Alzheimer’s Dementia a week ago. We are married 54 years ago, my husband is 75 years old. He knows about his disease but will not accept it. He just gets so made when he can’t remember or when he puts things in odd places like dirty dishes in the refrigerator and butter in the oven. He also follows me around all the time and keeps saying don’t leave me which I assure him all the time how much I love him and will be there for him.
Big tight hugs and forehead kisses!!!!! You have what it takes to help him through this!! Have you joined our Facebook group? It is the Dementia With Grace Caregivers Support Group on Facebook.
Aww! That's a sweet comment! I don't know how to advertise! Lol! Come join the group!!!! Link in description. The group can help you so much too! ❤️ Vicky
Vicky, I, just this morning, have found your videos and I am bawling! Nobody has been able to explain these stages to me like you are doing. Mom is, I can clearly see, in stage 4 and it is likely to KILL me! I work full time, trying to keep my own home and family, AND take FT care of mom! I already spend at least one of my days off a week with her and every day I either call or stop by. I have resented spending ANY time with her lately because she is just mean, hateful, and just plain awful to me. I see and understand from this video, that this is "normal behavior" for her now, but I just have no idea to show her that grace that I need to because in her "good moments" she is still her old self. It is not possible for my husband and me to move in with her and she physically cannot move in with us. I am trying to prepare myself for each day but I am finding myself distancing myself from her instead of comforting her. Thank you for the videos!
Petra's Happy Place aww, Petra! What a tough spot you are in! Four is SO HARD, but she will transition to 5 and things should get easier, in a way. Other things will be hard. Come join us. We will take good care of you! You can learn SO MUCH from the brave women in our group. (And our few men!). The group link is above in the description. It is private and free and full of geniuses. THEY teach ME everyday!!!! All my love, honey bunny. ❤️❤️❤️❤️❤️🦩🦩🦩🦩🦩Vicky
The way you explain what's going on in these stages is really clear. I never have been the primary caregiver to a person with dementia/Alzheimers but, even so, the way that you present the information makes a lot of sense and I feel like I get it even though I don't have the personal experience. Your explanation of the mental exhaustion from trying to keep all those balls in the air really resonated with me in terms of an experience that I had. As an adult, I went to live in a foreign country to learn the language through an immersion program. Communicating and navigating through a normal day in your native language and in your usual environment doesn't require any thought. But in another country, the struggle simply to understand and be understood is exhausting. So is trying to find your way around in a city where addresses are given in a different format and the street numbers aren't laid out in a way that makes sense to you. And then you can't ask people you meet for directions if you get lost because you don't know the words or wouldn't understand them if they did tell you. Throw in that you can't always make sense of street signs and other types of signs and that you are unfamiliar with the local social customs, etc. So you have to try to remember landmarks everywhere you go to remind you how to find your way home if you do get lost because you can't get help from signs or ask anyone. By the end of the day all I would want to do was to shut myself in my room and not interact with anyone or do anything. I was mentally exhausted and worn out to the point where I could only do completely mindless, passive things like listen to music. Reading or writing an email or cooking a meal were out of the question. In that sense, Stage 4 makes a lot of sense to me.
My husband has recently been diagnosed at early stage 4. Listening to your podcast has been very helpful for me as I continuing to research and try to understand. My husband's main issue right now is stubbornness. Stubbornness at giving up his charge card, stubborness at completing a task he had started. Stubbornness at showering, stubborness with his chores, arguementative/defensive. I took over the checkbook and all the finances now. I make sure that I am home when he cooks or he will walk away from the stove and burn the food or the pan. He is beginning to be aware that he can no longer do certain computer tasks or brush the dogs teeth after feeding her so he avoids. And when he gets mad he takes it out on me (but I did now know why he was this way.)
Hi Vickie. Thank you so much for making these videos. I can’t tell you how much they are helping me understand my Dad’s behavior. He is in this very stage, and only recently was diagnosed. Thank you!
I have a situation with my neighbor she’s 89 and from your description she is in stage 4. Today she called me because she couldn’t figure out why her new checks were out of sequence. She had ordered new checks but didn’t remember to ask for the check number that would follow the last check in her book. She just couldn’t figure it out. We went over and tried to clam her down and explain that it’s okey. While we were talking she said she had some old tax returns she wanted to know if it was ok to burn them. She doesn’t have any family in our state. I don’t know how much I can or should do. Thank you
Vicky Noland fitch the minute you said “ they know what they don’t know” I knew exactly what you meant.. I was in an accident and thrown 50 ft into the highway & by the grace of god above I survived.. from the time I came home I felt like I was on the outside looking through a window of my life trying to figure out where I fit in” that’s the same thing as “ You know what you don’t know” & I also said that recovery was like a puzzle and I was trying to put the pieces of my life’s puzzle back together
Oh my goodness this is so much our life with my mother right now. It is so very difficult and requires a lot of grace on the part of loved ones. Mom is struggling with loss of control and my sister and I have turned into ungrateful, terrible people who are punishing her.
Your videos have been so helpful! I just started working as a caregiver for residents with dementia at a wonderful nursing home and watching your videos has given me such a better understanding about their needs and how their minds work so I can help them in the best way I can.
My father in law is in denial. From what I'm hearing on here he is stage 4. He hasn't been diagnosed officially yet. We have 2 pages of things that have happened that aren't right. We've had two BIG conversations about his condition. He is very angry and has now asked for me to no longer visit. Ive been in this family since I was 14, married to his son 30 years. He told me to my face he only loves his son and his girlfriend of last 10 years. Im devastated. He doesn't even care about our son either. My husband went to his home yesterday and got into another argument. Not sure how to get him diagnosed. He's fighting us every step.
This is so informative! I did not think my husband was this far, but hearing you I'm coming to understand he has progressed beyond this. He's been able to re-correct and re-correct for years, but no longer 'seems' to make an effort to, probably because he can't. Yes, I'm the "golden" choice who gets dumped on daily, and the nature of the dumping has been shifting from extreme frustration and agitation to sometimes giving it up.
Vicky, I find your videos amazingly informative! Right in the middle of this with my 92 yr old mom. You mentioned in a video about sheets to fill out/questions to ask a person with dementia, so as the person remembers less, this information can be helpful. Can you tell me where to find these? Haven't been able to access your website. Thanks!
Glad it was helpful! Would you mind sharing your contact at UC Davis? I would love to connect! Email: vicky@dementiawithgrace.org THANKS! And be sure to join the group! Link in show notes!
Thanks for the information. It is so hard to watch the deterioration of a loved one. It may be even harder to obtain information directly from doctors. As an example, it will be one year from the time I first suspected dementia and requested a screening test to the time I will be able to get her into the neurologist's office. The primary care physician apparently never spotted anything as being wrong. I had to take action without really knowing what to do. Fortunately, there is information available online and in print from you, a few others and dementia organizations, I also had to develop new skill sets such as trying to remain helpful, calm and patient under stressful conditions.
I don't know if you have heard of Everywhere at the End of Time by the Caretaker (a six album musical journey through a hypothetical person's progression of dementia), but your description of Stage 4 reminds me of his description of stage 3 (EATEOT includes only six stages because the first, symptomless stage isn't included in the project, so he begins with stage 2, which becomes his stage 1, etc.). Here it is: Stage 3: "Here we are presented with some of the last coherent memories before confusion fully rolls in and the grey mists form and fade away. ... As we progress some singular memories become more disturbed, isolated, broken and distant. These are the last embers of awareness before we enter the post awareness stages." Post awareness refers to the person no longer "knowing what they don't know," which perfectly fits what you are saying here.
Aloha Vicky! So glad I found your videos, and the answer to the different stages. It's reassuring to learn that my mom is considered to be between stages 4 & 5 or "mid-stage". My mom (86) is still able to do a lot for herself (although living in a care home, mainly due to safety Issues) including putting on her makeup daily, still continent & strong as a bull! Your videos Have given me so much peace of mind and comfort on what many refer to as a long journey. I appreciate all your wonderful strategies and down to earth personality, thank you so very much!
If your not aware, please watch the documentaries 'Under Our Skin' and the sequel Under Our Skin: Emergency' , please, please. My wife was misdiagnosed at the Mayo Clinic years after being diagnosed with lyme but left untreated. She is now stage 4 and neuro lyme with lyme disease also in bone marrow with cancer. Dr McDonald did research using brains from the Alzheimers Brain Bank In MA., and you must see the results, something like 10 out 12 brains were at all Alzheimers but Lyme disease in the brain. If you don't followup and check this, you'll be doing your patient's a huge disservice. You'll see what we mean. I know you'd want to do the very best to help, which is why I beg you look into this further.
Hi Vicky, I am real close to my diagnosis My neurologist is hemming and hawing between Parkinson's dementia or Lewy body I have my petscan March 4th. Is there a baseline of time between 4/5 in the spectrum?
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages. All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages. All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages. All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages. All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
@@DementiaWithGrace Thank you Vicky, I will take all the tight hugs and forehead kisses 😘🤗. I don't feel brave but I guess I can't see that side of things since I'm in the midst of it. I get my Petscan this Fri for a complete diagnosis. I feel like I have a mix of dementias.. I think I have Alzheimer's along with Parkinson's dementia with Lewy bodies. It is my faith that is keeping me brave courageous and strong. Joshua 1:9 I want to continue being me as well as a wife and mother 🙂. In the meantime I'm still here yay!!
my mom has been diagnosed with Dementia but we did not tell her. from your experience, is it better to tell her or not? we heard telling her might progress the disease. What about medications?
Vicky this is so helpful. Thanks from my heart. My min has Alzheimers stage 3/4. Love to watch your stage 3 video but can't find it. Could you help me please?
mariana salazar yes ma’am! Here is the whole playlist on the Stages, which includes all my videos where I specifically discuss stages. I will put the Stage 3 video under this!
Tammy Gagnon it varies. The general consensus is that each stage lasts 2-5 years. So that is quite a range. I have noticed that people go through the stages consistently FOR THEM. If you have a general idea of how your person went from one stage to the next, I believe they will go through the next stages at a similar rate. I hope that makes sense! Come join our group on FB!! I would love to have you! I do a LIVE support group on Thursday night at 8pmCST where I answer questions live. Come join us! Link in description!! ❤️ love and joy! Vicky
peggy thornton If you feel the person is being mistreated or neglected in any way, have a welfare check done. Call the local Area Agency on Aging and they can direct you.
Hey Karen! Each stage can be different. As a general rule, how long they go through each stage will dictate how long they go through each subsequent stage. I hope that makes sense. Watch my other videos on the stages. There is a “stages playlist“. Go to the actual channel: click on the Dementia With Grace title of each video and it will take you to the main channel where you can find each playlist. Hope that helps! ❤️ Vicky
No, they don’t always get angry. Some people’s personality expands, ie she may get sweeter (🙏🏻!) but some personality flips. A nice person becomes argumentative. This would happen in stage 4-5. And also with the stages, they can “straddle” the stages, so heads up on that! I do private consults if you are interested. Email me at vicky@dementiawithgrace.org. Also consider joining the group on Facebook. Link in description above. All my love for the journey! Vicky
@@DementiaWithGrace thank you. I was able to watch more.vodeos today and learned so much. I am on facebook and it encourages me on this journey...i dont feel alone. Am thanking God for this group and your videos
I wish medical professionals were more helpful explaining these stages and what to expect. So far I’ve been told nothing on what to expect, what to watch or prepare for. How tragic. No wonder I’m stressed out!! Caregivers need every bit of help they can get. Thank you for your channel.
Medical professionals, make it a few hours of training on dementia, unless they are neurologist. So it is frustrating for your “family doctor“ to not know dementia information. That’s why I decided to start the group on Facebook, and make these videos, and write the book! all of the links to those things are in the description below the video. You might have to hit the button “more” to find the links.
I agree 💯 families are left in the dark
My 93 year old mother is well into this stage and moving into stage 5. She lives alone but has carers who come for an hour a day in the morning. Mother refuses to allow them to perform household tasks, saying she can do them herself. She is stubborn, anti- social and in total denial of her condition. When told she has soiled the bed, mother goes ballistic and says she hasn't. When told she is going to be placed in a Nursing Home due to her inability to self maintain, mother becomes aggressive, loud and belligerent. I am in the process of applying for POA Health and Welfare so that when the time comes, she will have to legally go. This is the only way forward in dealing with her attitude and total non compliance.
Bless your heart! Bless her heart! It seems to me that you are doing what is best, and what is necessary. All behaviors have a natural end. She may put up a fuss at the nursing home, but they will know how to handle it. Come join our group over on Facebook, link is in the description are you can search dementia with Grace caregiver support group. You will find lots of help,Remedies for grief and guilt. All my love, Vicky
My Husband was diagnosed with Alzheimer’s Dementia a week ago. We are married 54 years ago, my husband is 75 years old. He knows about his disease but will not accept it. He just gets so made when he can’t remember or when he puts things in odd places like dirty dishes in the refrigerator and butter in the oven. He also follows me around all the time and keeps saying don’t leave me which I assure him all the time how much I love him and will be there for him.
Big tight hugs and forehead kisses!!!!! You have what it takes to help him through this!! Have you joined our Facebook group? It is the Dementia With Grace Caregivers Support Group on Facebook.
To my Australian ears your accent is sooo delightful. Thanks for your clear explanations xx
HOW on earth do you only have 3k subs?
You REALLY really know what you are talking about
THANK YOU a million
Aww! That's a sweet comment! I don't know how to advertise! Lol! Come join the group!!!! Link in description. The group can help you so much too! ❤️ Vicky
Vicky, I, just this morning, have found your videos and I am bawling! Nobody has been able to explain these stages to me like you are doing. Mom is, I can clearly see, in stage 4 and it is likely to KILL me! I work full time, trying to keep my own home and family, AND take FT care of mom! I already spend at least one of my days off a week with her and every day I either call or stop by. I have resented spending ANY time with her lately because she is just mean, hateful, and just plain awful to me. I see and understand from this video, that this is "normal behavior" for her now, but I just have no idea to show her that grace that I need to because in her "good moments" she is still her old self. It is not possible for my husband and me to move in with her and she physically cannot move in with us. I am trying to prepare myself for each day but I am finding myself distancing myself from her instead of comforting her. Thank you for the videos!
Petra's Happy Place aww, Petra! What a tough spot you are in! Four is SO HARD, but she will transition to 5 and things should get easier, in a way. Other things will be hard. Come join us. We will take good care of you! You can learn SO MUCH from the brave women in our group. (And our few men!). The group link is above in the description. It is private and free and full of geniuses. THEY teach ME everyday!!!! All my love, honey bunny. ❤️❤️❤️❤️❤️🦩🦩🦩🦩🦩Vicky
The way you explain what's going on in these stages is really clear. I never have been the primary caregiver to a person with dementia/Alzheimers but, even so, the way that you present the information makes a lot of sense and I feel like I get it even though I don't have the personal experience. Your explanation of the mental exhaustion from trying to keep all those balls in the air really resonated with me in terms of an experience that I had. As an adult, I went to live in a foreign country to learn the language through an immersion program. Communicating and navigating through a normal day in your native language and in your usual environment doesn't require any thought. But in another country, the struggle simply to understand and be understood is exhausting. So is trying to find your way around in a city where addresses are given in a different format and the street numbers aren't laid out in a way that makes sense to you. And then you can't ask people you meet for directions if you get lost because you don't know the words or wouldn't understand them if they did tell you. Throw in that you can't always make sense of street signs and other types of signs and that you are unfamiliar with the local social customs, etc. So you have to try to remember landmarks everywhere you go to remind you how to find your way home if you do get lost because you can't get help from signs or ask anyone. By the end of the day all I would want to do was to shut myself in my room and not interact with anyone or do anything. I was mentally exhausted and worn out to the point where I could only do completely mindless, passive things like listen to music. Reading or writing an email or cooking a meal were out of the question. In that sense, Stage 4 makes a lot of sense to me.
When I teach, I often equate it with waking up in a foreign country. Well described!
My husband has recently been diagnosed at early stage 4. Listening to your podcast has been very helpful for me as I continuing to research and try to understand. My husband's main issue right now is stubbornness. Stubbornness at giving up his charge card, stubborness at completing a task he had started. Stubbornness at showering, stubborness with his chores, arguementative/defensive. I took over the checkbook and all the finances now. I make sure that I am home when he cooks or he will walk away from the stove and burn the food or the pan. He is beginning to be aware that he can no longer do certain computer tasks or brush the dogs teeth after feeding her so he avoids. And when he gets mad he takes it out on me (but I did now know why he was this way.)
Hi Vickie. Thank you so much for making these videos. I can’t tell you how much they are helping me understand my Dad’s behavior. He is in this very stage, and only recently was diagnosed. Thank you!
*Our Mom Alzheimer's story:* *th-cam.com/video/ABoP57zTFCg/w-d-xo.html*
I have a situation with my neighbor she’s 89 and from your description she is in stage 4. Today she called me because she couldn’t figure out why her new checks were out of sequence. She had ordered new checks but didn’t remember to ask for the check number that would follow the last check in her book. She just couldn’t figure it out. We went over and tried to clam her down and explain that it’s okey. While we were talking she said she had some old tax returns she wanted to know if it was ok to burn them. She doesn’t have any family in our state. I don’t know how much I can or should do. Thank you
Vicky Noland fitch the minute you said “ they know what they don’t know” I knew exactly what you meant.. I was in an accident and thrown 50 ft into the highway & by the grace of god above I survived..
from the time I came home I felt like I was on the outside looking through a window of my life trying to figure out where I fit in” that’s the same thing as
“ You know what you don’t know” & I also said that recovery was like a puzzle and I was trying to put the pieces of my life’s puzzle back together
Mercy! I’m glad you’re doing ok too! Thanks for commenting!
Thx for the vid. Looks like I'm walking this road with my mom now. We are at between 4 to 5 and everyday is a new day. 🤔.
Oh my goodness this is so much our life with my mother right now. It is so very difficult and requires a lot of grace on the part of loved ones. Mom is struggling with loss of control and my sister and I have turned into ungrateful, terrible people who are punishing her.
Bless your hearts! If you need a group who understands, Please come join our group on Facebook for more support! Link in description!! ♥️. Vicky
Thank you so much for sharing your videos. They are so helpful as I progress as a caretaker with my father who is now in Stage 4 of our journey.
Your videos have been so helpful! I just started working as a caregiver for residents with dementia at a wonderful nursing home and watching your videos has given me such a better understanding about their needs and how their minds work so I can help them in the best way I can.
Emily Turtle that’s wonderful! Blessings as you caregive!!!!
*Our Mom Alzheimer's story:* *th-cam.com/video/ABoP57zTFCg/w-d-xo.html*
My father in law is in denial. From what I'm hearing on here he is stage 4. He hasn't been diagnosed officially yet. We have 2 pages of things that have happened that aren't right. We've had two BIG conversations about his condition. He is very angry and has now asked for me to no longer visit. Ive been in this family since I was 14, married to his son 30 years. He told me to my face he only loves his son and his girlfriend of last 10 years. Im devastated. He doesn't even care about our son either. My husband went to his home yesterday and got into another argument. Not sure how to get him diagnosed. He's fighting us every step.
This is so informative! I did not think my husband was this far, but hearing you I'm coming to understand he has progressed beyond this. He's been able to re-correct and re-correct for years, but no longer 'seems' to make an effort to, probably because he can't. Yes, I'm the "golden" choice who gets dumped on daily, and the nature of the dumping has been shifting from extreme frustration and agitation to sometimes giving it up.
Smarter and Wiser in glad you found some help. We would love to support you in the Facebook group. Link in description!
Hi, I am going to have to deal with this with my husband as well. I'm scared
Vicky, I find your videos amazingly informative! Right in the middle of this with my 92 yr old mom. You mentioned in a video about sheets to fill out/questions to ask a person with dementia, so as the person remembers less, this information can be helpful. Can you tell me where to find these? Haven't been able to access your website. Thanks!
A great explanation of where my husband is right now. Thank you.
Thank you for sharing the information. You were recommended from UC Davis memory care in Sacramento. So helpful!
Glad it was helpful! Would you mind sharing your contact at UC Davis? I would love to connect! Email: vicky@dementiawithgrace.org THANKS! And be sure to join the group! Link in show notes!
Thanks for the information. It is so hard to watch the deterioration of a loved one. It may be even harder to obtain information directly from doctors. As an example, it will be one year from the time I first suspected dementia and requested a screening test to the time I will be able to get her into the neurologist's office. The primary care physician apparently never spotted anything as being wrong. I had to take action without really knowing what to do. Fortunately, there is information available online and in print from you, a few others and dementia organizations, I also had to develop new skill sets such as trying to remain helpful, calm and patient under stressful conditions.
I don't know if you have heard of Everywhere at the End of Time by the Caretaker (a six album musical journey through a hypothetical person's progression of dementia), but your description of Stage 4 reminds me of his description of stage 3 (EATEOT includes only six stages because the first, symptomless stage isn't included in the project, so he begins with stage 2, which becomes his stage 1, etc.). Here it is:
Stage 3: "Here we are presented with some of the last coherent memories before confusion fully rolls in and the grey mists form and fade away. ... As we progress some singular memories become more disturbed, isolated, broken and distant. These are the last embers of awareness before we enter the post awareness stages."
Post awareness refers to the person no longer "knowing what they don't know," which perfectly fits what you are saying here.
Aloha Vicky!
So glad I found your videos, and the answer to the different stages.
It's reassuring to learn that my mom is considered to be between stages 4 & 5 or "mid-stage".
My mom (86) is still able to do a lot for herself (although living in a care home, mainly due to safety
Issues) including putting on her makeup daily, still continent & strong as a bull! Your videos
Have given me so much peace of mind and comfort on what many refer to as a long journey.
I appreciate all your wonderful strategies and down to earth personality, thank you so very much!
Sooo insightful thank you SOOOOO MUCH.
Glad it was helpful!
If your not aware, please watch the documentaries 'Under Our Skin' and the sequel Under Our Skin: Emergency' , please, please. My wife was misdiagnosed at the Mayo Clinic years after being diagnosed with lyme but left untreated. She is now stage 4 and neuro lyme with lyme disease also in bone marrow with cancer. Dr McDonald did research using brains from the Alzheimers Brain Bank In MA., and you must see the results, something like 10 out 12 brains were at all Alzheimers but Lyme disease in the brain. If you don't followup and check this, you'll be doing your patient's a huge disservice. You'll see what we mean. I know you'd want to do the very best to help, which is why I beg you look into this further.
My mama is in 4 I think. She knows she doesn't know most of the time. She feels sad and frustrated, but she isn't angry most the time.
Hi Vicky, I am real close to my diagnosis
My neurologist is hemming and hawing between Parkinson's dementia or Lewy body
I have my petscan March 4th. Is there a baseline of time between 4/5 in the spectrum?
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages.
All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages.
All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages.
All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
Hey Tory. I’m glad you are finally getting some answers! The time frame of decline in between the stages really depend on the type of dementia. For example, dementia with Parkinson’s will be a decline in function more than memory, but each will decline in a stepwise fashion, more similar to Alz. Lewy Body dementia is more of a personality/mood decline along with memory in the latter stages.
All my love to you on this journey. You are so very brave to want information, and I respect that bravery enough to tell you the truth… as I have experienced the stages. Big tight hugs and forehead kisses! ❤️ Vicky
@@DementiaWithGrace Thank you Vicky, I will take all the tight hugs and forehead kisses 😘🤗. I don't feel brave but I guess I can't see that side of things since I'm in the midst of it. I get my Petscan this Fri for a complete diagnosis. I feel like I have a mix of dementias.. I think I have Alzheimer's along with Parkinson's dementia with Lewy bodies.
It is my faith that is keeping me brave courageous and strong. Joshua 1:9
I want to continue being me as well as a wife and mother 🙂. In the meantime I'm still here yay!!
my mom has been diagnosed with Dementia but we did not tell her. from your experience, is it better to tell her or not? we heard telling her might progress the disease. What about medications?
So helpful!
Vicky this is so helpful. Thanks from my heart. My min has Alzheimers stage 3/4. Love to watch your stage 3 video but can't find it. Could you help me please?
mariana salazar yes ma’am! Here is the whole playlist on the Stages, which includes all my videos where I specifically discuss stages. I will put the Stage 3 video under this!
th-cam.com/play/PLggTiAH3rDW7yGcML9rlE9ILtSXRuhPRX.html
mariana salazar Here is the video on Stage 3: th-cam.com/video/TIkTO4d8YyI/w-d-xo.html
TY this is just what I needed to hear. Very informative :)
Lorraine Pellegrino so glad!! Thanks for the feedback!
Do you have a general idea how quick a person advances to another stage Alzheimer’s?
Tammy Gagnon it varies. The general consensus is that each stage lasts 2-5 years. So that is quite a range. I have noticed that people go through the stages consistently FOR THEM. If you have a general idea of how your person went from one stage to the next, I believe they will go through the next stages at a similar rate. I hope that makes sense! Come join our group on FB!! I would love to have you! I do a LIVE support group on Thursday night at 8pmCST where I answer questions live. Come join us! Link in description!! ❤️ love and joy! Vicky
They become very frustrated and lash out!
What stage should a person stop driving?
Here’s the video on it!! th-cam.com/video/bvXeKLmi7NY/w-d-xo.html
ive been caring for my husbands uncle for over 7 years-hes stage 4.
know a person who is about stage 4 who does bolemia and anorexia and makes the wife eat half food any ideas i live in a retirement building?
peggy thornton If you feel the person is being mistreated or neglected in any way, have a welfare check done. Call the local Area Agency on Aging and they can direct you.
How long does stage 4 last
Hey Karen! Each stage can be different. As a general rule, how long they go through each stage will dictate how long they go through each subsequent stage. I hope that makes sense.
Watch my other videos on the stages. There is a “stages playlist“. Go to the actual channel: click on the Dementia With Grace title of each video and it will take you to the main channel where you can find each playlist. Hope that helps! ❤️ Vicky
do they always get angry? mom is 94 and still sweet and compliant.
No, they don’t always get angry. Some people’s personality expands, ie she may get sweeter (🙏🏻!) but some personality flips. A nice person becomes argumentative. This would happen in stage 4-5. And also with the stages, they can “straddle” the stages, so heads up on that! I do private consults if you are interested. Email me at vicky@dementiawithgrace.org. Also consider joining the group on Facebook. Link in description above. All my love for the journey! Vicky
@@DementiaWithGrace thank you. I was able to watch more.vodeos today and learned so much. I am on facebook and it encourages me on this journey...i dont feel alone. Am thanking God for this group and your videos