It would be great to somehow pass the word to children of seniors that it would be good to keep a brief diary of unusual events with their parent… and maybe a handbook of particular things to watch out for…. For instance.. problems finding the right word, or lists and calendars.
My mom was diagnosed with dementia and I’ve been watching some of your videos, it’s helpful thank you. She had been following me around for about a year and I was so frustrating, it wasn’t until recently we realized for a few years now she has a slow onset, thank you for all the great information!
Ive never been good at being punctual, and I do make a lot of "to do" lists, as I often have 4-5 tasks or things I should do in a day, but I can VERY easily remember "i did this. I still need to do that thing." What I cant keep track of is whats due when a week or multiple days in a row or from now. But thats what a calender is for right? Im 21, but sometimes I worry about my ability to be productive. My former (still alive, im just not in care anymore I mean) foster dad is 78 and he'd always say "put it on the list/calender" and I'd have to remind him "4pm today?" Or something like that. He would also tell stories and half of them would include "I didnt do this" or "I planned on x but it didnt go that way" as though those were like normal things that everyone goes through. This disease can be scary even in earlier stages, a feeling like the person isnt quite right but you cant always pinpoint what.
Thank you for your comment. The very best thing that you can do for your brain health, is the same thing you do for your heart health, watch your sugar intake watch your fast food intake get good exercise daily… Like 20 minutes a day is enough. I actually have a very high chance of developing dementia because I have temporal lobe epilepsy. I joke that I’m trying to teach everyone around me how to take care of me when I get dementia! There is some truth in that statement. But I don’t worry. Worry only makes things worse.
I like the mild and moderate videos the best I dont care for the late stages cuz my loved never went to stage 6-7 tho I prefer the mild stages the best out of the middle stage tbh its actually possible to look back at stage 2 also notice how in stage 2 the sufferer is out of character like saying shameful things to their loved one I didnt actually know my loved one in the moderate stage nearly as much as stage 2 and 3 stage 3 is easier but they do interrupt daily life in stage 3 tho.
Hi Vicky, is there a way to tell the difference between stage 1,2 and brain fog from autoimmune diseases? I have a strong family history and I have always felt I would end up with dementia at some point. But I'm not sure how to seperate my fibro fog from these 2 stages.
Hey, Tory. I’m not sure actually. 🤔 I would ask the doctor who manages your autoimmune condition for a referral to a neuropsychologist (different doctor than a neurologist) and get a good cognitive test to establish your baseline cognition. If it IS dementia, it will get progressively worse, and having that baseline established will be very helpful. If it is brain fog it won’t get better or worse, it seems to me. *I am NOT a Doctor!* Thanks for the question! ❤️ Vicky
I'm going back 27 years with my mother, definitely my sister agrees, she changed in a wierd way ...she was just diferent towards us ...and her grandchildren ...she has a mixed bag Alzheimer's with lewy bodies ....she became more distant so ..you say at that early stage you think she will have been aware that she was not right?she seemed depressed more than anything back then ...but in those days depression was seen as a weakness ...you know" come on pull yourself together"she never went to the doctor . about anything .like that.... but she did start with polimealgia...and was put on steroids. Do you think there is a connection between dementia @ that ? I'm sorry but I'm trying to make some Sence of this whole journey ....now we are at the end stage with my mother ....in future I want to know the signs and have loads of knowledge ...we also went through this with my mother in law she had lewy bodies... She was perfectly normal until she had a major operation for bowel cancer she servived that but dementia kicked in she was 85 @ for 6 years until she died we really didn't get a proper diagnosis ...it was not good 10years ago here in England the doctor would just call it " being a little confused ....my mother in law was seeing things that were not there all the time she had horrible haluciation s it was very scary for her and we Got little help ....so I'm sorry to ramble but I feel I need to drink in the knowledge from people like you for future reference ..😍
Ok i would like 2 voice my thoughts on stage 1 and 2 Stage 2 is easier to see what's happening stage 2 is when there not into there hobbies all the time but very rarely not into there hobbies like 95 percent into there hobbies but 5 percent not into there daily activities in stage 2 they actually like stage 1 obtain recent events and remember fun times stage 2 is easier to recognize then 1 stage 2 they withdraw socially barely with friends and family stage 2 is like they have very little paranoias like once every 4/5 months 365 days in a year that would be 2 possibly 3 paranoias in a year and stage 2 and stage 1 are the same in ways but still not identical.
Ghosthunter775 thanks for your comment!!stage one is actually labeled after the person has gone through subsequent stages. It is defined as a look back over the years. So, you are correct that it is hard to see.
I still think Mci and stage 2 dementia are different because there's a woman who had has mild cognitive impairment for 15 years and hasn't declined at all ever sense I had a loved one who was in stage 2 and forgot to eat but had no memory loss in recent events but had slight change in memory performance but declined in stage 2 and progressed to stage 3 the Mci women didn't have the same problem.
@@DementiaWithGrace Thank you. I'm on your videos about stages and so far we are past stage 4 regardless of type. I realize it's not incredibly important but it's helpful. Thanks so much.
"Nice" channel, with a "nice" treatment of dementia. Elderly people like myself are often freaking with the stages of dementia, as medical "victims". Our dementia is more complex than this channel describes. Dementia differs for reach of us, second to second. It appears, then disappears. Noticeable sometimes, significant sometimes. Depending on the situation, time of day and other environmental factors. Generally as we age, handling multiple demands become harder to do. Stage One Dementia is important, because it means that complex and demanding jobs are not reliably handled by people like myself.|
Each person is different, as each type of dementia is different. I’m sorry you didn’t find help here. Keep searching TH-cam. There are several excellent videos here. Try Teepa Snow or others. All my best on this hard journey. Vicky
It would be great to somehow pass the word to children of seniors that it would be good to keep a brief diary of unusual events with their parent… and maybe a handbook of particular things to watch out for…. For instance.. problems finding the right word, or lists and calendars.
My mom was diagnosed with dementia and I’ve been watching some of your videos, it’s helpful thank you. She had been following me around for about a year and I was so frustrating, it wasn’t until recently we realized for a few years now she has a slow onset, thank you for all the great information!
Ive never been good at being punctual, and I do make a lot of "to do" lists, as I often have 4-5 tasks or things I should do in a day, but I can VERY easily remember "i did this. I still need to do that thing." What I cant keep track of is whats due when a week or multiple days in a row or from now. But thats what a calender is for right? Im 21, but sometimes I worry about my ability to be productive. My former (still alive, im just not in care anymore I mean) foster dad is 78 and he'd always say "put it on the list/calender" and I'd have to remind him "4pm today?" Or something like that. He would also tell stories and half of them would include "I didnt do this" or "I planned on x but it didnt go that way" as though those were like normal things that everyone goes through. This disease can be scary even in earlier stages, a feeling like the person isnt quite right but you cant always pinpoint what.
Thank you for your comment. The very best thing that you can do for your brain health, is the same thing you do for your heart health, watch your sugar intake watch your fast food intake get good exercise daily… Like 20 minutes a day is enough.
I actually have a very high chance of developing dementia because I have temporal lobe epilepsy. I joke that I’m trying to teach everyone around me how to take care of me when I get dementia! There is some truth in that statement. But I don’t worry. Worry only makes things worse.
I like the mild and moderate videos the best I dont care for the late stages cuz my loved never went to stage 6-7 tho I prefer the mild stages the best out of the middle stage tbh its actually possible to look back at stage 2 also notice how in stage 2 the sufferer is out of character like saying shameful things to their loved one I didnt actually know my loved one in the moderate stage nearly as much as stage 2 and 3 stage 3 is easier but they do interrupt daily life in stage 3 tho.
Is repeating phns calls to ppl and doctors a symptom?
Hi Vicky, is there a way to tell the difference between stage 1,2 and brain fog from autoimmune diseases? I have a strong family history and I have always felt I would end up with dementia at some point. But I'm not sure how to seperate my fibro fog from these 2 stages.
Hey, Tory. I’m not sure actually. 🤔 I would ask the doctor who manages your autoimmune condition for a referral to a neuropsychologist (different doctor than a neurologist) and get a good cognitive test to establish your baseline cognition. If it IS dementia, it will get progressively worse, and having that baseline established will be very helpful. If it is brain fog it won’t get better or worse, it seems to me. *I am NOT a Doctor!* Thanks for the question! ❤️ Vicky
@@DementiaWithGrace thanks Vicky, I will ask my Rheumatologist for that referral. Thank you for all your videos 😊🥰
I'm going back 27 years with my mother, definitely my sister agrees, she changed in a wierd way ...she was just diferent towards us ...and her grandchildren ...she has a mixed bag Alzheimer's with lewy bodies ....she became more distant so ..you say at that early stage you think she will have been aware that she was not right?she seemed depressed more than anything back then ...but in those days depression was seen as a weakness ...you know" come on pull yourself together"she never went to the doctor . about anything .like that.... but she did start with polimealgia...and was put on steroids. Do you think there is a connection between dementia @ that ? I'm sorry but I'm trying to make some Sence of this whole journey ....now we are at the end stage with my mother ....in future I want to know the signs and have loads of knowledge ...we also went through this with my mother in law she had lewy bodies... She was perfectly normal until she had a major operation for bowel cancer she servived that but dementia kicked in she was 85 @ for 6 years until she died we really didn't get a proper diagnosis ...it was not good 10years ago here in England the doctor would just call it " being a little confused ....my mother in law was seeing things that were not there all the time she had horrible haluciation s it was very scary for her and we Got little help ....so I'm sorry to ramble but I feel I need to drink in the knowledge from people like you for future reference ..😍
Ok i would like 2 voice my thoughts on stage 1 and 2
Stage 2 is easier to see what's happening stage 2 is when there not into there hobbies all the time but very rarely not into there hobbies like 95 percent into there hobbies but 5 percent not into there daily activities in stage 2 they actually like stage 1 obtain recent events and remember fun times stage 2 is easier to recognize then 1 stage 2 they withdraw socially barely with friends and family stage 2 is like they have very little paranoias like once every 4/5 months 365 days in a year that would be 2 possibly 3 paranoias in a year and stage 2 and stage 1 are the same in ways but still not identical.
Ghosthunter775 thanks for your comment!!stage one is actually labeled after the person has gone through subsequent stages. It is defined as a look back over the years. So, you are correct that it is hard to see.
I still think Mci and stage 2 dementia are different because there's a woman who had has mild cognitive impairment for 15 years and hasn't declined at all ever sense I had a loved one who was in stage 2 and forgot to eat but had no memory loss in recent events but had slight change in memory performance but declined in stage 2 and progressed to stage 3 the Mci women didn't have the same problem.
Is it important to know what sort of dementia your person has?
Lori Abercrombie it can be helpful, yes. But sometimes you can’t get a firm diagnosis. Or you have a diagnosis of mixed dementia.
@@DementiaWithGrace Thank you. I'm on your videos about stages and so far we are past stage 4 regardless of type. I realize it's not incredibly important but it's helpful. Thanks so much.
I believe you are saying that dementia is like a snowflake,each is different.
"Nice" channel, with a "nice" treatment of dementia. Elderly people like myself are often freaking with the stages of dementia, as medical "victims".
Our dementia is more complex than this channel describes. Dementia differs for reach of us, second to second. It appears, then disappears. Noticeable sometimes, significant sometimes. Depending on the situation, time of day and other environmental factors.
Generally as we age, handling multiple demands become harder to do.
Stage One Dementia is important, because it means that complex and demanding jobs are not reliably handled by people like myself.|
Each person is different, as each type of dementia is different. I’m sorry you didn’t find help here. Keep searching TH-cam. There are several excellent videos here. Try Teepa Snow or others. All my best on this hard journey. Vicky