I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!
my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.
Lift expectancy is in the late 30s, and that's without these genetic modifier meds that are out there, if her genetic mutation is one that allows her to take it. Amazing she got her feeding tube out.
I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.
CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.
So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.
Lost my friend to this disease yesterday morning..... I want to start fundraiser dedicated to the people who are fighting this disease. ❤️
I am sorry for your loss
I wish we could’ve heard Addy speak during this interview as well! Also I wish they could a segment where her sister spoke out about what it like having a sibling with cystic fibrosis!
I lost my nephew from CF ..he was 35 years old ..we were SO Blessed to have him that long.
I’m very happy to hear that this clinical trial is helping her!
Who else has Cystic fibrosis like me? And Addy u are amazing and so brave :)
I have, hope you're doing well
I have cf
I do!!
i have and its really hard :(
My uncle died from it
I wish someone would find my best friend a cure I really wished he could live a normal life as well
I have this and I hope she keeps breathing and has no problem fighting this
my little cousin, Lilliana, 8 has cystic fibrosis and a few months ago she got her feeding tube out, I’m so proud of her. She won’t be able to donate blood or have kids. She most likely wont make it to 22. A meal of pills she has to take, and treatments two times a day. Sometimes she so happy I forget she has cf.
Lift expectancy is in the late 30s, and that's without these genetic modifier meds that are out there, if her genetic mutation is one that allows her to take it.
Amazing she got her feeding tube out.
I wanted to say this, I was born with cystic fibrosis, my name is Adey, and she is a sweet girl! Hopefully she started tricafta. I have a question does she go to the children’s hospital in Houston.
my friend has cystic fibrosis and i hope by the time he reaches the average lifespan scintests come up with a cure
CF is absolutely genetic. I know the brother of the RESEARCHER who found the cf gene on the human genome map. whysoseriousmister you should probably do a little more research yourself.
i am 13 and i also have cf it is hard you have to take a lot of meds and your in the hospital a lot
I’m sorry
hi im Elizabeth and i have Cystic fibrosis and the parents of Addy i believe they are working on a cure
My baby Victoria died of this cf😭😭😭😭😭😭
So sorry to hear that 😭
Keep spirit sweetheart! Dont be sad ❣
Omg i am gonna pray for u and ur family 😢
God bless you poor soul. Just know that even though I do not know you I am prying for you. 🙏
I have to do treatments
I have CF, you got a semi cure. Ya better plan on sharing that!!!
I have CF too I got diagnosed at he age 7
I have cystic fibrosis
God bless you!
Same here
1:21 When Will My Life Begin? from Tangled
Great dear
You are doing a great job you are just like my real sister
Please study Holy Quran and accept Islam you will get success in both worlds
So you're using one source against thousands? You need to realise that just because you hear one thing doesn't make everyone else wrong. It probably just makes you wrong. Know because you speak.
My sis has cf she got it at birth