Laura, your video just appeared in my feed. You are beautiful and you are a brave young lady for sharing your own story about this syndrome and explaining it so clearly and accurately, for not many people understand it (or care to understand it from my own experiences). Nevertheless, when more females with Mayer Rokitansky Kuster Hauser syndrome speak openly about it, it establishes "real facts" over "fake facts" and intentional ignorance" from others. It also inspires confidence in other girls whose diagnoses have been confirmed by a gynaecologist. As a believer and beloved of God, through the name of Jesus, this topic is not easy to discuss but it is neccessary for those with this health condition. Please know that God created you, God loves you and gave you the female body that you have for a reason, sometimes it's to make an impact in a way that only you can - where you are- and to show others what is possible as we live our lives with joy and hope. Bless you and take care,
I feel great sorrow for all women facing MRKH. This is a huge emotional burden, such brave ladies you are to deal with it daily!! As far as I know, MRKH syndrom remains largely unknown. No link between an environmental cause and MRKH syndrome has ever been established. It is now clear that MRKH syndrome has a genetic origin only. Hardly could I ever get to know about it if not my friend sailing in this boat. All in all, statistics 1 in 4500 is not that rare unfortunately.
😭😭😭 i am also a MRKH girl and i thought that iam alone in this world and my family is very scared and nervous and many of my relatives are saying that you are not a girl as i am not getting my menses 😭
You are a woman - and an amazing one ❤️ I’m sorry that your relatives do not understand this, you can contact me if you would like to talk about your current situation, you are definitely not alone! I’m hugging you tightly
Wictoria I cannot contact you on TH-cam unfortunately... You can reach me on Instagram ❤️ please, stay strong... It is not an easy condition, but there is no need to be scared ☺️ trust me
Treatment for MRKH depends on the individual patient and their symptoms. If the vagina is also missing, many girls choose to have a vagina created through: #Vaginal dilators - A small round tube similar to a tampon, called a dilator, is pressed against the area where the vagina should be on a daily basis to stretch the vaginal canal to a normal length. Progressively larger dilators are used as the area stretches. # Reconstructive surgery to create a vagina. To have a kid ladies often turn to surrogacy. (as they're still able to produce healthy eggs but have no ability to carry a baby on their own). A friend of mine is among those.
Laura, your video just appeared in my feed. You are beautiful and you are a brave young lady for sharing your own story about this syndrome and explaining it so clearly and accurately, for not many people understand it (or care to understand it from my own experiences). Nevertheless, when more females with Mayer Rokitansky Kuster Hauser syndrome speak openly about it, it establishes "real facts" over "fake facts" and intentional ignorance" from others. It also inspires confidence in other girls whose diagnoses have been confirmed by a gynaecologist.
As a believer and beloved of God, through the name of Jesus, this topic is not easy to discuss but it is neccessary for those with this health condition. Please know that God created you, God loves you and gave you the female body that you have for a reason, sometimes it's to make an impact in a way that only you can - where you are- and to show others what is possible as we live our lives with joy and hope.
Bless you and take care,
You r very enthusiastic woman…God is taking care of you…
I feel great sorrow for all women facing MRKH. This is a huge emotional burden, such brave ladies you are to deal with it daily!! As far as I know, MRKH syndrom remains largely unknown. No link between an environmental cause and MRKH syndrome has ever been established. It is now clear that MRKH syndrome has a genetic origin only. Hardly could I ever get to know about it if not my friend sailing in this boat. All in all, statistics 1 in 4500 is not that rare unfortunately.
😭😭😭 i am also a MRKH girl and i thought that iam alone in this world and my family is very scared and nervous and many of my relatives are saying that you are not a girl as i am not getting my menses 😭
You are a woman - and an amazing one ❤️ I’m sorry that your relatives do not understand this, you can contact me if you would like to talk about your current situation, you are definitely not alone! I’m hugging you tightly
I m also MRKH syndrome patient
I have the same thing, I understand you
Can i talk with you,i am willing to learn it more deeply..You are a strong woman.Take love❤
Please, do not hesitate to reach out via private message - I love to connect with other people 🥰 thank you for your kind words
Can I talk to you a bit about MRHK? Because my doctor diagnosed me today and I'm scared
Wictoria I cannot contact you on TH-cam unfortunately... You can reach me on Instagram ❤️ please, stay strong... It is not an easy condition, but there is no need to be scared ☺️ trust me
Treatment for MRKH depends on the individual patient and their symptoms. If the vagina is also missing, many girls choose to have a vagina created through: #Vaginal dilators - A small round tube similar to a tampon, called a dilator, is pressed against the area where the vagina should be on a daily basis to stretch the vaginal canal to a normal length. Progressively larger dilators are used as the area stretches. # Reconstructive surgery to create a vagina. To have a kid ladies often turn to surrogacy. (as they're still able to produce healthy eggs but have no ability to carry a baby on their own). A friend of mine is among those.