Our daughter was diagnosed in 1990 with CIDP. She was 16. She had IVIG treatments that were eventually able to be spaced further apart until she was 25, at which time she was back to normal! Thank God for IVIG! She’s 50 now with no lingering effects! Another success story!
Thank you for the great information. I'm from the Philippines. I've been diagnosed with MMN since 2019; until now, both my hands and legs have had the same weakness. My doctor told us that for my condition, it was a long process to cure my MMN, but now I've been treated twice with IVIG, and I feel good, but not totally good.
From GBS TO MMNCB SINCE 2015 total hell illness 😢Physically mentally Financially Socially don’t underestimate this demise in any individual. Cannot do buttons zips meds shave trips balance walking muscle loss fasiculations cramps tremors atrophy 🇬🇧😩 and rounds and rounds of IVIG hasn’t benifited meself
may I ask how you were diagnosed and what symptoms you have? I have something going on and my nueroglist is trying to figure out what but whatever it is my breathing is horrible and I'm struggling I was recently hospitalized because of it
@@crystalr9633 During writting hand and finger stiffness, doesn't move freely,paind in plam and musale. Feeling acuvared writing in front of other person
Our daughter was diagnosed in 1990 with CIDP. She was 16. She had IVIG treatments that were eventually able to be spaced further apart until she was 25, at which time she was back to normal! Thank God for IVIG! She’s 50 now with no lingering effects! Another success story!
thank you so much for all that information. My husband was diagnosed here in Brazil and this video was really helpful!
Thank you for the great information. I'm from the Philippines. I've been diagnosed with MMN since 2019; until now, both my hands and legs have had the same weakness. My doctor told us that for my condition, it was a long process to cure my MMN, but now I've been treated twice with IVIG, and I feel good, but not totally good.
Hi
Thanks
Greater information sir
I live in a town in IN that in two counties they never heard of what this is Cidp! I'm frustrated.
I have MMN , I have received 12 sessions of IVIG and have no response
I have MMN CB from 2015 in my first pregnancy
From GBS TO MMNCB SINCE 2015 total hell illness 😢Physically mentally Financially Socially don’t underestimate this demise in any individual.
Cannot do buttons zips meds shave trips balance walking muscle loss fasiculations cramps tremors atrophy 🇬🇧😩 and rounds and rounds of IVIG hasn’t benifited meself
Does fasting helps against it? Anyone
Nope nope sometimes not even IVIG INFUSION 🇬🇧
Thomas Brenda Martin Donna Anderson Anthony
This fucking disease is killing my breathing, i cant swallow and breathe anymore
may I ask how you were diagnosed and what symptoms you have? I have something going on and my nueroglist is trying to figure out what but whatever it is my breathing is horrible and I'm struggling I was recently hospitalized because of it
@@crystalr9633
During writting hand and finger stiffness, doesn't move freely,paind in plam and musale.
Feeling acuvared writing in front of other person
@@crystalr9633not 😊😊
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