Multifocal Motor Neuropathy with argenx

We have two incredible guests this episode who share their expertise about an autoimmune condition multifocal motor neuropathy: patient advocate Jennifer Burgand and argenx’s Chief Scientific Officer Dr. Peter Ulrichts.
Jennifer Burgand, originally from WI moved to Atlanta, GA after college and was an elementary school teacher and assistant principal UNTIL the Big Apple called her name and she is now a successful Channel Sales Manager. Jennifer has been a fitness enthusiast since she was a young child. She was in gymnastics and dance from the age of 5 and as she got older she enjoyed working out at the gym, salsa dancing, spin classes, snowboarding, hiking, wakeboarding and I forgot to mention her love of high heel shoes. Her journey of “It happened to me” started after she moved to NYC in 2011 and began tripping on her toes and her ankle would suddenly give out during a spin class or while wearing high heels. She was eventually diagnosed with Multifocal Motor Neuropathy. You can join Jennifer’s support group, MMN Warrior, on Facebook.
Peter Ulrichts obtained a PhD in immunology from the university of Ghent (Belgium). After a short post-doc period, he joined argenx in 2010 as research scientist where he was involved in the development of various therapeutic antibodies for the treatment of cancer and autoimmune diseases. In 2013, he headed the development of argenx’ FcRn antagonist Efgartigimod until the first-in-human study after which he transitioned to become the lead scientist of the efgartigimod program. Currently, he holds the position of Chief Scientific Officer and oversees the development of all clinical and pre-clinical compounds within argenx’s pipeline.
For more information head over to Know Rare’s website and argenx’s website.
Stay tuned for the next new episode of It Happened To Me! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.
It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today’s Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.
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[@angelinawilliamson6841]

Glad I found y’all
Thanks for sharing yr story

[@samdanner6806]

Multifocal Motor Neuropathy has changed my life.

[@vickiebrown3687]

Hello ladies. Thank you for sharing your story. I can relate to Jennifer. I was diagnosed with MMN back in 2017. I was originally diagnosed with ALS, but after a barrage of diagnostics (including the EMG/Nerve Conduction testing) I was finally diagnosed with MMN. My disease affects both of my hands pretty severely and my feet, to a lesser extent. I have been receiving IVIG for two consecutive days every 28 days and it has helped, though I feel like I’ve plateaued with any progress for the last couple of years. Best wishes to you, Jennifer. It’s so comforting to hear someone else who is going through this journey since there aren’t many of us. ❤😊

[@Sweetearth1958]

My symptoms are exactly like Jennifers. I just went to the Facebook page. And I had the most stress in my life before this started. So much stress that I thought for sure I would have a heart attack.

[@mohammadhossain5547]

😢

[@angelinawilliamson6841]

How do I find Jennifer on Facebook MMN support groupm

[@Sweetearth1958]

Here: MMN Multifocal Motor Neuropathy WARRIORS