Deborah Zirpolo | Multifocal Focal Neuropathy

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  • เผยแพร่เมื่อ 23 ม.ค. 2025

ความคิดเห็น • 8

  • @kuvs98
    @kuvs98 5 หลายเดือนก่อน

    You have no idea how lucky you are, as someone dealing with ALS I wished to get such a diagnosis. Count your blessings and god bless you.

  • @sophiamatsas7180
    @sophiamatsas7180 4 ปีที่แล้ว +2

    What an outstanding video...thanks for creating this to help all of us patients!

  • @ushamasrani5064
    @ushamasrani5064 3 ปีที่แล้ว +2

    IVIG doesn't work in so many cases,I heard.

  • @Yinyanchant
    @Yinyanchant ปีที่แล้ว

    Its meant to be rare for women to get this yet it’s been 3 women who’s videos I've learned from on YT, come on men, get your vids on here, raise awareness 🤗

  • @RayanAlmaghrabi
    @RayanAlmaghrabi 4 ปีที่แล้ว +1

    Yes it's really hard,, I know

  • @kevinbaxter7390
    @kevinbaxter7390 9 หลายเดือนก่อน

    Just dropped in from 👏🇬🇧!
    2015 GBS hell 2024 still .
    2020- GBS / MMNCB more hell
    IVIG simply has never worked for me since day one ,so basically Foot drop (right) balance,Peripheral neuropathy, atrophy muscles,Essential tremors,fasciculations,cramps ,trips ,can’t open jars ,pill meds ,keys in car ,door keys ,help bath 🛀,shaving,list goes on …slowly deteriorate Physically mentally socially financially.
    Simply I never believe’You was Fully Fit active Sportsman’ you be fine in year two.
    Before 2015 Gym Cycling Walking Dogs walking Rugby don’t drink don’t smoke eat super healthy.
    But nope GBS rare 1/1000000 MMNCB rare 0.6/ 100000
    Advice! Don’t be fooled by Drs Neurologists fight your corner otherwise you be just another patient and forgotten about in the massive overwhelming NHS 🇬🇧🏴󠁧󠁢󠁥󠁮󠁧󠁿 keep pushing after cancellation of appointments,politely but pushy.