What I've learned from these two videos is that I've been doing everything wrong. The worn out joints in my left knee will not be able to fix. And the anxiety and possible depression that's been consuming me lately just add more huh. My parents don't know much and are the type to think things like anxiety don't exist. I'm scared. Nothing's going as planned. This is not how i imagined my teenage years would go.
Don't give up! It's daunting and so hard to digest at any age to be diagnosed with RA. There are many many different approaches to get your knee functional again, be it physical therapy, medications as the doc here explained or as last resort joint surgery. It's not too late to start making the changes to what you say you are doing wrong and get treatment. It took me a full year of denial and refusal of meds but after 2 joint replacements and being told (as the doctor stated in this series) without treatment I was facing a very painful and crippling future due to the highly active and aggressive RA. I wish I had taken control of my emotional part of this all much sooner. Best of luck to you....don't give up before you start. Baby steps ;)
This is the most realistic video I have ever watched. Thank you so much for giving real information and educating people on RA. I’ve been a patient for 20 years. I feel lucky to have been diagnosed at a time when there are great medicines that prevent disability.
I want to be in remission. I was just diagnosed. It was hard to get my primary to listen to me. It has attacked my lungs, and I am a former smoker. Thank you for the great info.
Very informative thankyou . Diagnosed in Oct 2021 ....came completely outta the blue as ive been fit all my life with 2 yrly medicals for my work etc . My CRP of 196 on blood test caused a bit of panic for my doctor etc . Glad was diagnosed reletively early & although ive been thru the immobilty & severe pain n massive weight loss & bumps appearing ....I remain positive & am keeping a positive outlook . Now on high dosage of prednisolone & methotraxate & now waiting for further blood tests to see any progress . It shows this disease has no discrimination but altho one cant beat it ...you can make yr life more adaptable for yourself . # Stay Positive my frenz x
I highly recommend Dr. Osaka on TH-cam channel, who helped me in getting rid of my Sle Lupus disease, It Amazing seeing myself free from the deadly diseases with the help of Dr. Osaka, I'm forever grateful Doctor.
Thank you for this....well explained knowledge. I have felt some changes with my joints 1-2 years ago and Im not minding it until I reached 50 and started to feel pain most of the time especially with my hand....although Im feeling pain here in my lower back and sometimes knees too. Actually I dont know what to do, until I've watched this video. I think I need to see a Doctor, but I'm a bit hesitant coz what if they just give me prescription and thats all. I'm hoping that the first Doctor I'm going to meet will be the last....meaning, that he/she will do everything you've said in this video.
Still adjusting to my life being different . Diagnosed 3 months ago and not yet well controlled. As a nurse, a mother of 2 young children and a lover of the outdoors , taking things slow and letting my body rest is hard. I enjoyed listening to your videos. If you have any recommendations for how to exercise for weight loss without overdoing it, I'm all ears .
If you have access to a full depth lane swimming pool facility, aqua jogging and aqua aerobics routines may be an option. After my own severe onset and diagnosis I found it was helpful, being non weight bearing and no impact on hands or feet. If you can get to a pool there may be instructed sessions, let instructors know your condition and purpose. As you progress, you can push the pace, vary the routine, duration, alter the floatation aid used, add resistance. Pools I visit often have such gear for customer loan/use. Good luck. Don’t be deterred or sucked into joining flotillas of relaxation/social lane users and keep pushing to maintain a raised heart rate.
I've learned more from this two-part series than the six years I've been seeing my Rheumatologist whom I first saw for joint stiffness (no pain) associated with a condition called morphea affecting my lower legs, forearms and hands. Recently diagnosed with RA (after a misdiagnosis of OA! that cost me two months) and it was take this shot (cortisone), take these pills (methotrexate) and come back to see me in six weeks. Thank you for this very helpful information.
Thank you so much for yet another informative video. I have PMR and also ?RA in my thumbs and index fingers. My rheumatologist (in France) is currently investigating my hands further. I often follow an anti-inflammatory diet and was reassured by your comments on that. I am not a rule follower but am comfortable for the main part on my food intake. The other parts of my life are relatively stress free (now) after a few months of planning reno work and a huge vacation to Canada coming up in May. I will definitely. keep an I on my stress levels and practice the meditation I was taught in the 80's. Meanwhile, my increased Methotrexate and new delivery format plus a couple of osteopath visits have improved my pain levels 80%. Therefore I am moving. Thank you.
Thank you so much I seriously love your channel it has been such a huge help for me and my life right now I'm so sad of that no one else talks about this I am a huge former Ben Dieter a sugar addict and I have went from one diet to another it's just so frustrating because no one told me that there was a possibility of setting myself up for failure by doing so
When I was first diagnosed with RA by my (UK) GP, and referred on, he commented that the nicest doctors in the hospital were the Rheumatologists. I have found this to be true, and am intrigued as to why. Is it because Rheumatology is an ‘unshowy’ discipline, with no swashbuckling cures available? Does it therefore attract particularly patient, empathetic doctors? Your opinion, please, Dr Ortiz!
Haha…I’ve often thought and wondered the same thing. One of the reasons I was so attracted to Rheum was how nice and down to earth the rheumatologists I met were. For decades, the joke was that rheumatologists only gave aspirin and steroids and, I think, having such limited treatment options self-selected for a type of individual who is ok with not knowing the answer or how to fix it. These days, however we have sooooo many more tools at our disposal. There is still a lot we don’t know (ALOT) but having effective testing and medications has made the field more attractive to young doctors in training. Time will tell though if this changes the culture within the field. Thanks for the Q!
@@ConnectedRheumatology I’ve been reading recently that there is an international shortage of Rheumatologists, which is concerning. My local hospital rheumatology department seems ok, but there are long waiting lists in parts of the UK. I appreciate you work in an entirely different health system, but are you affected by this shortage, too?
I think they’re the nicest because they have us for the rest of our lives! They can’t just fix one bit and then wave us goodbye. They also have to be the type of doctors who actually listen to their patients. My rheumatologists, I’m on my fourth, and the rheumatology nurses, have all been very kind and empathetic. I know that they try their very best for me, and have never ever, in twenty years, told me to just get on with things; they’re always looking for better outcomes.
I have pain and deformity in my finger joints but still can't get my doctor to send me to rheumatologist. It's difficult to understand all that my body is going through.
Methotrexate and the biologics, DMARDS, are not antinflammatories. I have RA -diagnosed 7 years. If these immunopressants are balanced properly....they have extremely improved my quality of life and lessened my pain as it helps prevent complications like joint damage. Just saying. Heat, cold packs, other things can help too. Wish you the best. Btw, it takes a Rheumatoligist's care.
I am 58 and suffering a lot with RA it is so severe that I can't stretch my legs out so I'm very annoyed by it and I'm so so saddened at times that am not worthy
I'm taking benepali a weekly injection I use to be on imraldi I don't find any difference between them my pain is the same had to change my consultant because he wasn't listening to me and by him doing that that my wrist have got worse where they grind if I don't use them the pain is alot less if I use them then I get alot of pain I'm on zapain which I try not use because the fact that your body gets use to them and that u can get addictive to them. I get the stinging in my wrists.
Never smoked, never take alcohol.,alway watch my diet. Love sport especially bodybuilding. But for the last two years, it becomes so annoying for me to go training because i cant train the way i want to. My knees and lower back wont allow me to do the training in peace. I feels i have RA but my doctor is just taking his time to send me for more checkups. My doctor is a joker
I just binged your videos! 🫣I still have one question though. I was recently diagnosed with Seronegative RA and I do wake up very not been able to close my fist, but I also wake up the same way even when taking short naps. Is that normal for RA? I guess I am asking because deep down I want it to be something else. Thank you for your videos
Of course I forgot to ask if exposure to cold affects my RA? I’m an O.R. nurse and it is common for me to be in 58 degree rooms during my 12 hour shifts. Thanks again!
I have Sjogrens, Antiphospholipid syndrome and seronegative RA which is a bit unclear. Genetic testing reveal I have HLA-B27 and spondylarthropathy. That’s a genetic inherited form of inflammatory arthritis. It’s starts at a younger age and causes more damage then regular Rheumatoid Factor positive RA. It’s an inherited autoimmune disorder. It’s treated the same way as RA and a medical team to address all the potential harm it causes to various parts of the body. I hope this answer helps a little.
@@irisquiroz9934 I forgot to address your question about cold hands🤦🏻♀️ A lot of times Raynauds comes with AI disorders. Do your fingers turn white and/or blue when exposed to cold? That’s a sign of Raynauds. It could mean you have vascular issues so definitely talk to your doctor about it as well as getting the HLA-B27 test. This type of AI arthritis does a lot a damage to various organs and you would need a complete evaluation.🙏🏼💪🏼
What I've learned from these two videos is that I've been doing everything wrong. The worn out joints in my left knee will not be able to fix. And the anxiety and possible depression that's been consuming me lately just add more huh. My parents don't know much and are the type to think things like anxiety don't exist. I'm scared. Nothing's going as planned. This is not how i imagined my teenage years would go.
Don't give up! It's daunting and so hard to digest at any age to be diagnosed with RA. There are many many different approaches to get your knee functional again, be it physical therapy, medications as the doc here explained or as last resort joint surgery. It's not too late to start making the changes to what you say you are doing wrong and get treatment. It took me a full year of denial and refusal of meds but after 2 joint replacements and being told (as the doctor stated in this series) without treatment I was facing a very painful and crippling future due to the highly active and aggressive RA. I wish I had taken control of my emotional part of this all much sooner. Best of luck to you....don't give up before you start. Baby steps ;)
@@flutterbyu2 Thank you very much
This is the most realistic video I have ever watched. Thank you so much for giving real information and educating people on RA. I’ve been a patient for 20 years. I feel lucky to have been diagnosed at a time when there are great medicines that prevent disability.
I want to be in remission. I was just diagnosed. It was hard to get my primary to listen to me. It has attacked my lungs, and I am a former smoker. Thank you for the great info.
Very informative thankyou . Diagnosed in Oct 2021 ....came completely outta the blue as ive been fit all my life with 2 yrly medicals for my work etc . My CRP of 196 on blood test caused a bit of panic for my doctor etc . Glad was diagnosed reletively early & although ive been thru the immobilty & severe pain n massive weight loss & bumps appearing ....I remain positive & am keeping a positive outlook . Now on high dosage of prednisolone & methotraxate & now waiting for further blood tests to see any progress . It shows this disease has no discrimination but altho one cant beat it ...you can make yr life more adaptable for yourself . # Stay Positive my frenz x
I highly recommend Dr. Osaka on TH-cam channel, who helped me in getting rid of my Sle Lupus disease, It Amazing seeing myself free from the deadly diseases with the help of Dr. Osaka, I'm forever grateful Doctor.
I LOVE your outlook of how “RA can be a reminder…” Great, uplifting video!
Thank you for this....well explained knowledge. I have felt some changes with my joints 1-2 years ago and Im not minding it until I reached 50 and started to feel pain most of the time especially with my hand....although Im feeling pain here in my lower back and sometimes knees too. Actually I dont know what to do, until I've watched this video. I think I need to see a Doctor, but I'm a bit hesitant coz what if they just give me prescription and thats all. I'm hoping that the first Doctor I'm going to meet will be the last....meaning, that he/she will do everything you've said in this video.
Still adjusting to my life being different . Diagnosed 3 months ago and not yet well controlled. As a nurse, a mother of 2 young children and a lover of the outdoors , taking things slow and letting my body rest is hard. I enjoyed listening to your videos. If you have any recommendations for how to exercise for weight loss without overdoing it, I'm all ears .
If you have access to a full depth lane swimming pool facility, aqua jogging and aqua aerobics routines may be an option.
After my own severe onset and diagnosis I found it was helpful, being non weight bearing and no impact on hands or feet. If you can get to a pool there may be instructed sessions, let instructors know your condition and purpose.
As you progress, you can push the pace, vary the routine, duration, alter the floatation aid used, add resistance. Pools I visit often have such gear for customer loan/use. Good luck.
Don’t be deterred or sucked into joining flotillas of relaxation/social lane users and keep pushing to maintain a raised heart rate.
Very informative. Thank y.
I've learned more from this two-part series than the six years I've been seeing my Rheumatologist whom I first saw for joint stiffness (no pain) associated with a condition called morphea affecting my lower legs, forearms and hands. Recently diagnosed with RA (after a misdiagnosis of OA! that cost me two months) and it was take this shot (cortisone), take these pills (methotrexate) and come back to see me in six weeks. Thank you for this very helpful information.
Misdiagnosed Ceoliac disease started my Ra.
Thank you so much for yet another informative video. I have PMR and also ?RA in my thumbs and index fingers. My rheumatologist (in France) is currently investigating my hands further. I often follow an anti-inflammatory diet and was reassured by your comments on that. I am not a rule follower but am comfortable for the main part on my food intake. The other parts of my life are relatively stress free (now) after a few months of planning reno work and a huge vacation to Canada coming up in May. I will definitely. keep an I on my stress levels and practice the meditation I was taught in the 80's. Meanwhile, my increased Methotrexate and new delivery format plus a couple of osteopath visits have improved my pain levels 80%. Therefore I am moving.
Thank you.
Thank you so much I seriously love your channel it has been such a huge help for me and my life right now I'm so sad of that no one else talks about this I am a huge former Ben Dieter a sugar addict and I have went from one diet to another it's just so frustrating because no one told me that there was a possibility of setting myself up for failure by doing so
When I was first diagnosed with RA by my (UK) GP, and referred on, he commented that the nicest doctors in the hospital were the Rheumatologists. I have found this to be true, and am intrigued as to why. Is it because Rheumatology is an ‘unshowy’ discipline, with no swashbuckling cures available? Does it therefore attract particularly patient, empathetic doctors? Your opinion, please, Dr Ortiz!
Haha…I’ve often thought and wondered the same thing. One of the reasons I was so attracted to Rheum was how nice and down to earth the rheumatologists I met were. For decades, the joke was that rheumatologists only gave aspirin and steroids and, I think, having such limited treatment options self-selected for a type of individual who is ok with not knowing the answer or how to fix it. These days, however we have sooooo many more tools at our disposal. There is still a lot we don’t know (ALOT) but having effective testing and medications has made the field more attractive to young doctors in training. Time will tell though if this changes the culture within the field. Thanks for the Q!
@@ConnectedRheumatology I’ve been reading recently that there is an international shortage of Rheumatologists, which is concerning. My local hospital rheumatology department seems ok, but there are long waiting lists in parts of the UK. I appreciate you work in an entirely different health system, but are you affected by this shortage, too?
Thank you 🙏
I think they’re the nicest because they have us for the rest of our lives! They can’t just fix one bit and then wave us goodbye. They also have to be the type of doctors who actually listen to their patients. My rheumatologists, I’m on my fourth, and the rheumatology nurses, have all been very kind and empathetic. I know that they try their very best for me, and have never ever, in twenty years, told me to just get on with things; they’re always looking for better outcomes.
Hello is there a special diet to follow if you have RA or lupus , connective tissue desease. can u make a video explaining thank you .
I have it on the list! (spoiler alert - there is no one size fits all for diet)
I have pain and deformity in my finger joints but still can't get my doctor to send me to rheumatologist. It's difficult to understand all that my body is going through.
What was the first clue you had that you have RA? I have pain now and then but then my knuckles got so swollen it was obvious.
What can I take if I am allergic to all anti-inflammatories? The pain ruins the quality of life.
Methotrexate and the biologics, DMARDS, are not antinflammatories. I have RA -diagnosed 7 years. If these immunopressants are balanced properly....they have extremely improved my quality of life and lessened my pain as it helps prevent complications like joint damage. Just saying. Heat, cold packs, other things can help too. Wish you the best. Btw, it takes a Rheumatoligist's care.
I am 58 and suffering a lot with RA it is so severe that I can't stretch my legs out so I'm very annoyed by it and I'm so so saddened at times that am not worthy
You are worthy. 💜
I'm taking benepali a weekly injection I use to be on imraldi I don't find any difference between them my pain is the same had to change my consultant because he wasn't listening to me and by him doing that that my wrist have got worse where they grind if I don't use them the pain is alot less if I use them then I get alot of pain I'm on zapain which I try not use because the fact that your body gets use to them and that u can get addictive to them. I get the stinging in my wrists.
I have that & its 🤕
Never smoked, never take alcohol.,alway watch my diet. Love sport especially bodybuilding. But for the last two years, it becomes so annoying for me to go training because i cant train the way i want to. My knees and lower back wont allow me to do the training in peace. I feels i have RA but my doctor is just taking his time to send me for more checkups. My doctor is a joker
I just binged your videos! 🫣I still have one question though. I was recently diagnosed with Seronegative RA and I do wake up very not been able to close my fist, but I also wake up the same way even when taking short naps. Is that normal for RA? I guess I am asking because deep down I want it to be something else. Thank you for your videos
Of course I forgot to ask if exposure to cold affects my RA? I’m an O.R. nurse and it is common for me to be in 58 degree rooms during my 12 hour shifts. Thanks again!
I have Sjogrens, Antiphospholipid syndrome and seronegative RA which is a bit unclear. Genetic testing reveal I have HLA-B27 and spondylarthropathy. That’s a genetic inherited form of inflammatory arthritis. It’s starts at a younger age and causes more damage then regular Rheumatoid Factor positive RA. It’s an inherited autoimmune disorder. It’s treated the same way as RA and a medical team to address all the potential harm it causes to various parts of the body. I hope this answer helps a little.
@@mamashiraz Thank you! ❤️🙏🏼
@@irisquiroz9934 I forgot to address your question about cold hands🤦🏻♀️
A lot of times Raynauds comes with AI disorders. Do your fingers turn white and/or blue when exposed to cold? That’s a sign of Raynauds. It could mean you have vascular issues so definitely talk to your doctor about it as well as getting the HLA-B27 test. This type of AI arthritis does a lot a damage to various organs and you would need a complete evaluation.🙏🏼💪🏼
@@mamashiraz Thanks again! You have been more helpful than I could have imagined. I will definitely look into getting the HLA-B27 test. 🙏🏼
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