Understanding POTS | Postural Orthostatic Tachycardia Syndrome
ฝัง
- เผยแพร่เมื่อ 9 มิ.ย. 2024
- Dr. Dawn-Elise Snipes is a Licensed Professional Counselor and Qualified Clinical Supervisor. She received her PhD in Mental Health Counseling from the University of Florida in 2002. In addition to being a practicing clinician, she has provided training to counselors, social workers, nurses and case managers internationally since 2006 through AllCEUs.com Understanding POTS | Postural Orthostatic Tachycardia Syndrome
📢SUBSCRIBE and click the BELL to get notified when new videos are uploaded.
💲 AllCEUs.com Unlimited continuing education CEUs $59
💻 Online course based on this video can be found at allceus.com/member/cart/index...
⭐ Specialty Certificate Programs for Case Management and Counselor Certification beginning at $89 AllCEUs.com/certificate-tracks
Join this channel to get access to perks:
/ @docsnipes
NOTE: ALL VIDEOS are for educational purposes only and are NOT a replacement for medical advice or counseling from a licensed professional.
POTS is extremely common and frequently misdiagnosed as anxiety
POTS is an invisible disability that impacts every area of life which can lead to impaired self esteem, depression, anxiety, guilt, grief, relationships and secondary health issues
1-3 million Americans have #POTS or #posturalorthostatictachycardiasyndrome #chronicfatigue #autoimmunediseases
POTS is approximately five times more common in women
It is very common in healthy, active individuals between 13 and 50 impacting 1 in 100 teenagers
Like emotional dysregulation, somatic hypervigilance is misunderstood and often invalidated.
Advocacy, health literacy enhancement, goal setting strategies, cognitive behavioral tools and awareness of ADA accommodations can be essential
Video by Dr. Dawn Elise Snipes on integrative behavioral health approaches including counseling techniques and skills for improving mental health and reducing mental illness.
AllCEUs.com provides multimedia counselor education and CEUs for LPCs, LMHCs, LMFTs and LCSWs as well as addiction counselor precertification training and continuing education on many of the videos on this channel. Unlike other providers like CE4Less, AllCEUs includes a weekly LIVE Stream Webinar with your unlimited continuing education and professional development membership.
TIMESTAMP
00:00 Intro to Understanding POTS | Postural Orthostatic Tachycardia Syndrome
01:34 How common is POTS
07:10 Types of POTS
08:45 What causes POTS | Postural Orthostatic Tachycardia Syndrome
10:45 Identifying symptoms and diagnosing POTS | Postural Orthostatic Tachycardia Syndrome
19:45 What makes POTS worse?
23:37 How is POTS treated
![CAMPปลิ้น | EP.76[1/2] โจโฉเปิดป่าโหดรับโอ๊ต-ป๊อบ รอบนี้พี่เอาจริง!](http://i.ytimg.com/vi/pNg5O7Pf-a0/mqdefault.jpg)
Vanderbilt has a leading POTS and Dysautonomia clinic. They do a lot of clinical trials there. Just FYI: www.vumc.org/autonomic-dysfunction-center/becoming-research-participant
As somebody who has dealt with likely POTS for probably all my life, given I have evidently genes from the hypermobile (not EDS) and excessive adrenaline production genetics and autoimmune disease from both families, I find this idea that we have 'somatic hypervigilance' offensive. It's not hypervigilance, it the instinct for survival. We just know there is something wrong.
I was constipated since birth (my mother can tell you about that, if you want to). I remember having a 225 pulse after gym in my teens and redhot cheeks for two hours after every gym class (not the teen-conscious kind). I never said a word about it to any doctor. Only when I got beta blockers in my twenties was I really able to do sports (needless to say this is because the doctors thought I had anxiety in the 1990s). Having pain from exhaustion in my heart has been customary for me since my twenties in the 1990s, but it was always upon carrying something or doing sports. I never said anything about it to a doctor. Still have not, even if I have had two echocardiograms and four Holters. It was the sleep study that finally evidenced the dips in blood pressure when I finally was admitted for hospital examinations in a multi-disciplinary team.
I was instinctively drinking a lot of fluids, eating a lot of salt and keeping my feet up whilst for decades I pursued a career on beta blockers suffering from constant migraines and constipation. I never complained to a doctor over either one of them. I did global projects, lead teams, set up companies and gained a Ph.D. I think this is what doctors call being 'perky' in POTS females.
What I complained about and went to ER about was having complete exhaustion, as in my body not producing the heart rate that was required for me to function, now that I look at it in hindsight (into the late 1990s and early 2000s). I look at the data from my ER entries being 100/60 blood pressure and 90 heart rate. That is not sufficient for me.
At that point a doctor might think that I am being hypervigilant about my heart rate, but it was never that. It was the lactates in the muscles that I felt, not the heart rate.
I do not even feel a 115 bpm heart rate, which is regular either sitting or standing (and yes I go over 120 every time that I stand up - but the point is that I am more unwell if I do not maintain the heart rate there). When I start feeling any of it is when I sweat (cold), I feel how my blood pressure drops because I get dizzy or because suddenly my blood pools in my legs with a downward gosh, when I get the regular sensation of lack of oxygen in my muscles. If I have to stand up long there comes the pain in the heart... None of which is really new to me outside the vomiting and chronic fatigue of the last decade, and allergies, digestion problems, joint and nerve pains and whatever.
Now I am at a state of vomiting regularly for six years upon standing when my body does not agree with it (like showering, cooking or going to the store). At times I am so poorly that I cannot even make an official or friendly phone call without vomiting or having these red-faced high-blood pressure episodes (my face and neck are riddled with burst veins). I had severe allergic reactions just short of anaphylaxis with calcium channel blockers and earlier I had skintone changes (not Addisons, just high cortisol) with the beta blockers, so maybe something autoimmune going on with the corticosteroid receptors like in diabetes 2 - been having autoimmune markers just at the lower end for a decade now). Now the nausea is getting so bad that I avoid eating and I love good food even in small proportions. To eat any carbohydrates, I have to lay in bed for hours because of the increased heart rate, lactates and if not, I will vomit.
For those of you for whom your body does not produce but the sniffles mostly, to call us who live with this shit everyday 'hypervigilant' is ridiculous, frankly, because for us it's a constant rodeo ride and so no single vital sign recording you do of us will ever say a thing.
Now, aside of that, I really appreciated your investment into this issue. Just wanted to make my point. I am not expecting an answer and I know you do not have a cure. I am just saying.
Thank you!
Thank you !!!❤
Hi
I have it to
"How's it treated? Well first you gotta get it diagnosed."
*cries in American*
Thanks for watching and commenting.
Cries in United Kingdom too, had symptoms since I was 14 I’m 34 in a couple months :( got my diagnosis today after having episodes of hearing loss
@@MsDaniilou I mean at least we don't have to pay hundreds to thousands for one diagnosis
@@honeymelon6177 you do have to pay if you want to get diagnosed in the UK in most cases. The NHS is so underfunded that a lot of people get turned away. Especially with mental health or any conditions that aren't obvious or immediate.
@@honeymelon6177 the commenter had to wait decades to get diagnosed. They likely went through years of medical gaslighting which is a trauma in and of itself. Personally being traumatised and gaslit isn't worth it for years long wait for treatment. You could save up and get a doctor who doesn't treat you like a slug on the bottom of their shoe in that length of time anyway.
Thank you for this! Had pots since I was 15 and I have been treated like a hypochondriac all of my life. Diagnosed at 51 years old!
You are welcome. Wishing you peace, health, and happiness.
Did your symptoms come and go? I was bedridden in December i thought it was anemia but nothing showed up then it got better for a few months and now i'm feeling bad again
Oh god i am so sorry
I'm here for you. How are you doing?
@@nat9844 I'm here for you. How are you doing?
Oh my God this actually made me ball my eyes out. I’ve never heard such a comprehensive explanation as to what I deal with on a daily basis. I literally sometimes don’t even understand if it’s worth living like this.
Thank you so much for watching and thank you for your kind words. I feel grateful to be of help/ What is your favorite tip from the video?
I'm so sorry sweetheart. Blessings sent 🙏 ✨ 🥰
Bless your heart, yes is worth living the diagnosis is the beginning of the healing
@@maric2274 im 4 years post diagnosis…. Not much is helping … it keeps coming in waves ….
Exactly how I feel after having covid. Some days, I feel so depressed that I don't want to keep fighting.
Celiac + pots sufferer here who has a doctor that was convinced my condition was anxiety based. Advocate for yourself and get another doctor.
Yes, I have gone through two already. It's tiring and I wanted to give up but this thing isn't going away so I've got to keep trying.
I was on my 3rd cardiologist but I went to Vanderbilt and he wanted me to do the tilt table it’s says I have POTS I’m waiting on my appointment to go to the autonomic dysfunction center
I have coeliac disease too and they think I have pots wonder if you’re more likely to have it with an auto immune disease
Your videos have been absolutely critical to my healing. Understanding is power. It’s very frightening when you don’t understand and lack the resources to get definitive answers. It’s isolating. You don’t know what’s really wrong, and everyone treats you like you are losing your mind. You have a beautiful way of explaining complex information in a way anyone can understand. Thank you for what you do!
I am so glad I have been able to help. Thanks so much for the support! It really helps the channel. Wishing you peace health, and happiness! I am so sorry it took me this long to see it.
I've had symptoms for YEARS, got told it was anxiety and in my head. They told me I was a hypochondriac. 2 days ago I was diagnosed with POTS.
That’s awful and I am so very sorry it happened to you
What were your symptoms ???
I feel like next time I go into the dr’s, we should wear a tshirt that says NOT A HYPOCHONDRIAC… 🫠 It feels good to be heard, believed and validated finally!
Thank you, looking back had dysautonomia all my life but was told it "girls just faint"and when i grew older it was said it's just anxiety. The medical gaslighting really hurt and made me look like a hypochondriac. I'm now 41 and only last week in the ER it was established I have POTS/dysautonomia as it got so severe I was bedbound. I have received betablockers and they make a huge difference. My heart used to peak at 170 just standing up and now it's only 110. Resting heartrate does get too low though, but overall I feel better medicated. My POTS is caused by being hypermobile.
Hi, when you say you are hypermobile, how hypermobile are you? I have joint instability in my shoulder, they often feel like they pop out just a bit out of place and I just crack them back in, or ask my mom to help me if I feel like I can't move them. My knees also pop out a bit out of place to the point that if I don't sit down and pop them back in I can't walk properly (I hobble). Doctors just say my articulations are lax which is not a diagnosis, just an observation lol
So I guess I'm wondering if my symptoms are too mild to be considered hypermobile.
@@KaleidoscopeEffect You can do the Beighton test ( there's videos on youtube showing how it is done). I score a 9/9. My worst joints are my shoulder and jaw. When younger my knees but my hamstrings have become overly tight to compensate for lax joints.
Firstly, get well soon. I hope you get better. I think I have the same disease. Which betablocks are you using?
@@noyanbenan7031 I am on bisoprolol 1,25mg. I had cerebral bloodflow measured and it is nearly 40% less when upright compared to supine, unfortunately the betablocker does not help for that . It does help with the palpitations and high heart rate though.
@@danide8287 thank you so much. get well soon.
I believe this is exactly what I'm experiencing! I been in and out of ER
over past 2 yrs with all these symptoms and they keep telling me it's anxiety/panic attacks. It actually got worse and more frequent since 8/2021 when my mom passed away due to covid 😭. I have not been able to do anything since
Thank you so much for all this information 👍💯🤗
That's exactly what happened to me. People be telling me I'm crazy lol I have had panic attacks in the past when I was a teen but these episodes don't like panic attacks and I haven't been able to do much either. I would go to volunteer be all happy then all the sudden I would feel lightheaded like about to past out and went to the ER like four times. I have highblood pressure since I was 4 years old and it always been controlled until now. I got my two covid shots and thought that perhaps that's what caused it. I have never heard about pots until now and going to see a cardiologist soon
People with long Covid are experiencing POTS. Some believe it also was triggered by vaccines.
That’s why a lot more people are hearing about it - trying to figure out what’s wrong and why they can’t stand up for very long anymore.
This is literally me!! My symptoms got worse when my grandpa died
My symptoms got worst when my stepfather died anyone found a cure ? Or coping ?
That’s interesting, mines been worse since my grandma passed away. It was very traumatic for me. I hope you’re doing better now. I’m not yet, I still hope for better. x
ive been having high heart rate issues and so many weird unexplained symptoms that ive pretty much just chalked up to anxiety after being repeatedly told it was just anxiety. well yesterday i was diagnosed with POTS, and i stumbled across this video trying to learn more about it, and it all makes so much sense now. im sitting here crying because oh my god, im not crazy, this is real! thank you so much for this from the absolute bottom of my heart.
Thanks for watching.
@Babs Kaz this has been going on for 4+ years. get your anti vax BS out of my comment
@Babs Kaz uh oh someone’s mad i didn’t give in to their conspiracy
Check your magnesium, best wishes.
I HEAR YOU!! I AM 63 AND WAS JUST DIAGNOSED AFTER A LIFE TIME OF ALL THIS. . CALLED HYPOCHONDRIA 😢!!! I AM SO HAPPY FOR YOU AND I!! WE NEED TO SHARE WITH OTHERS. . BLESSINGS TO YOU. I HOPE YOUR CARE TAKERS ARE NEAR BY❤
This is extremely helpful. I am an ex-soldier, veteran of Afghanistan and I am convinced this is what I have. I was very high achieving before all this, I was even able to complete special forces training.
But now doctors don't just tell me I have anxiety but PTSD (I did not have a particularly stressful tour).
It is an exhausting experience having POTS. I do not have a diagnosis yet but have gone through many different doctors - cardiologist, neurologist, etc. I will use this and try some of the treatments myself and speak with my doctor about medication trials.
Thank you so much for this.
You are very welcome. Thanks for your service. Wishing you peace, health, and happiness.
Thank you for your service. Wishing you well in your healing.
David how are you doing now? As another man I like to hear how other men are doing with POTS
Have you looked into gulf war illness ?
@@renu653 I am from Canada so I was not exposed to sarin gas. I only deployed to Afghanistan and, as far as I know, my fellow soldiers are not experiencing what I am. Thank you though.
Was always told my racing heart was just anxiety but I finally just got diagnosed with pots so everything makes sense
Are you male or female
Transgenders...@@ColdVsIce
I appreciate this. The only bone I have to pick is…
What’s really frustrating is, most people who are chronically ill don’t only have one condition they’re living with. (I have several.) Like most specialists who focus on only one condition, the advice they give that may help that specific condition can make another condition worse. This makes it extra difficult to find solid answers for healing and relief.
I am sorry about that and I appreciate you watching
I got POTS 3 years ago when I was 54.
Never heard of it, and never knew something like this could happen to a body.
I knew people and have had family members with Diabetes, Cancer, Congestive Heart Failure, Cirrhosis, OH, High BP, autoimmune conditions, Afib, and I even have a cousin that has MS.
I never expected this, or thought something like this could happen.
I went to the doctor every 6 months all my life for checkups. My last regular checkup before this in Nov. of 2018 I told my doctor I get lightheaded sometimes, and I feel more tired lately. He did the blood work and my WHC count was slightly elevated. He told me I might have an Infection and gave me Antibiotics. I still never felt right and 2 weeks later I was laying in bed, I started sweating really bad, jumped out of bed because I felt like I was having some kind of bad Panic Attack or possibly a stroke. When I stood up my legs felt like I had lead weights on them.
4 times in the ER for feeling like I was having some mind of stroke, they came up with nothing. I was weak, dizzy, and unbalanced. They did a Stress Test and in 1 minute my HR went to 187. They put on the report "Due to lack of physical activity.
That never made sense. My heart never raced, I was riding a bike, fishing, doing everything perfectly healthy, never short of breath, never tired all the time.
On New Years Eve 2018 I felt like passing out sitting by the table. Checked my BP and HR and it was ok.
I stood up to get busy and try and forget about it, and almost fell down. I decided to stand up and check my BP and HR.
My BP was 180/120 and my HR was 185 !
I went right to the ER and showed them, Cardiologist came in and diagnosed me with POTS.
Biggest problem I have is 99% of the doctors sort of know about POTS, but the other issues it causes lie my slow bowels, fatigue all the time, they tell you "That's a separate issue, POTS don't cause that". I finally went to a Neurologist who knows it does.
I have no Diabetes, Neurotrophy, no low blood volume, hormones are perfect, no Secondary Condition.
I know my veins don't constrict the right way since my legs always feel "heavy" and I have slow bowels.
Neuropathic POTS is me.
Thank you for this video.
Geez! I have some of these issues, and so does my son. Thanks for your story, because it makes sense!
Good recount. I've had similar symptoms since thru hiking the Appalachian Trail. Heavy legs, dizziness, fatigue. Neurologist observed orthostatic hypotension by taking BP lying down and after standing up. Not one of several doctors has offered POTS as a diagnosis. It fits except no tachycardia. I stumbled on a POTS video today, then this one, and am encouraged to find a community to learn from.
Sounds like SVT not PoTs
Same here. 190/110 bp. 190bpm. 32 years old. After a virus infection. Then they put me fluids and everything back to normal. Been with this 7months now.
Thank you so much . I’m a critical care nurse that had Covid in august of 21 and had a baby in February of 21. I also have autoimmunity but was well managed. After I had Covid I started having tachycardia horribly, dizziness, feeling of being faint, my legs going weak on me and my heart rate will go into the 130-140 just walking and 120s just standing. For the first time in my career I am struggling to work cause I notice I get worse under stress , which is abundant in the ICU . This helped me understand it so much better 🙏
Thanks for all your hard work! and Thanks for watching. Wishing you peace, health, and happiness.
I am a RN too and I’m having trouble working as well :(
This is me except I dont have to work but im a sahm. Do you have any updates? Feeling better ?
Could also be due to covid vaccines. People are noticing these symptoms
I just got diagnosed today. Thank you so much for the information. I can check nearly all the boxes here. My whole life just makes more sense now.
You are so welcome. I am sorry you are struggling with POTS
This is the most comprehensive explanation of POTS I have seen anywhere. So helpful! I cannot thank you enough for providing this information. I had to learn some of these tips and tricks the hard way, over many years. Having this video 30+ years ago would have saved me a lot of grief and sweat. But having it now helps a lot too. I can just send the link to this video to people in my life who struggle to understand. You are the best!
Wow. Thanks so much!! :)
YES. . I AGREE. . I am 63. . SUFFERING my WHOLE LIFE!!!❤😂😢😢😢😮😅😊
Hi! I just want to leave a comment to thank you! ❤ This video made me realise I have POTS, and I was recently diagnosed. Not knowing what caused my symptoms made me really insecure, so I’m really glad I know what is wrong now. So thank you! 🤗
You’re so welcome. I am glad the video was helpful and I appreciate you watching it
Can I ask how you were diagnosed?
Long time sufferer. (Also have venous insufficiency, hEDS and SFN) I am very familiar with most of this info. Just wanted to say that this is very well done. Do not under estimate hydration and eating fruit throughout the day!! Decrease your stress. Work through anything you can control. Get out of unhealthy situations whether it be a relationship, job, environment. Listen to your body and rest as needed and stay out of the heat!!! Be well potsies.
For all you out there: take her warning about hydration, relaxation and listening to your own bodies etc.
--
Just as a curiosity, because your advice was so different: You think eating carbohydrates makes you OK? My experience is completely different. My advice would be to eat an egg or almond milk with something low car. But then I do not have full-blown gastroparesis.
I was advised to avoid carbohydrates (mu specialist doctors) and I do, because they make my bpm increase and then make me vomit belatedly. Now, my thing may be related to autoimmune or genetic things related to corticoid receptors, who knows.
Now, mind you, I do not have EDS, just regular joint hypermobility (I thought was painful enough) as in pooling in my veins that shows up as bluish skin but does not make me faint (or make me flex like mad).
What do you think about the different manifestations? Just to clarify, I'm not telling you not to tell others what to try, because I do the same based on my own experiences. And as far I am concerned, there should be messages from people from different types of POTS telling people what might help, given that the new long-COVID/some POTS sufferers have equally different genetics or viral exposures than we have.
@@samhartford8677 I think it’s important to hydrate as natural as possible. Fruits and veggies offer what we need. Of course everyone has different things that work for them as far as food goes. I ate strict keto for a very long time. I also live in Phoenix. I feel not eating fruit added to my symptoms dramatically. I learned this by allowing myself fruit but no other sugar. I feel using powdered hydration as my sole source of electrolytes added to it as well. The more natural we can get the better. All of this take discipline, trial and error. Autoimmune issues….in all my reading…has always suggested a more plant based diet. I am a firm believer in foods of the earth are natural healers.
How do you find out - i've been to faintings clinic and did tilt table test which confirmed loosely some things but never a diagnosis. Also been to cardiologist a while ago. Have lots of symptoms how do I see if this is it
@@daisymaker17 do lower histamine diets too. Mast cells. Post viral ie covid. Pms. Adrenals. Pots. All related. All makes sense x didn’t realise pots was autoimmune potentially if all other things ruled out ie neurology, cardiology and other ans relationships.
OMG my hubby has mistreated ADHD and does not get my health issues at all and it's causing so much additional stress that I can feel my hands shake the minute he starts to argue with me.
Anyone that knows ADHD knows how they love to argue.
It's slowly killing me.
Thank you so much for covering this information. my 13-year-old has been going through this for 2 years now. We are finally on a path to have her diagnosed. It's been hard as a mother watching my child struggle in school and social life and not be able to make her feel better. I truly have learned a lot from this presentation and happy I understand more of what she's going through, so I can better help her live a full, healthy and happy life.
Thanks for watching! Wishing you peace, health, and, happiness.
You are highly intelligent, informative and a sweet person for taking your time to help us people suffering from this draining , debilitating disease. Thank you so much!
You’re most welcome. Thanks for watching
Thank you so much for creating this video - I can see by the comments it’s been a great resource for everyone ✨ I was just diagnosed a couple of days ago, after what looks like a lifetime (43) of signs and symptoms. I feel like I’ve found some confidence, that it was ‘just anxiety’ ‘go eat healthy and exercise’ ‘we all get tired’. I’ll rewatch again soon and take better notes 🙌🏼🌸
You’re most welcome. Thanks for watching
I simply love you for this. This is very good. You are so very, very competent, wise and generous.
Thanks for watching. 😀
Finally....I have an answer to the question of my disease. I've been trying to figure out what these episodes where for over a decade. Told I had anxiety...dry eyes...light sensitivity...now I can ask my Dr to look into my symptoms. I'm currently having an episode right now and was looking into low blood pressure and found these videos. Always feel like I'm on high alert and under attack. My body tenses up and suddenly I'm paralyzed on the floor sweating and in pain feeling like I'm about to pass out. In constant fear of living life because "heart attack" always trying to avoid my triggers and migraines and yet no avail. I finally feel like I have an answer as to WHAT is happening. Couldn't continue my service in the military because I was too at risk :( my whole life was ruined smh..I finally have proof and closure. Thank you
Wow. I want to cry. I had covid in November, pretty mild case. I started experiencing these symptoms in January. I finally went to the doctor in April, and all she did was stare at me confused and scratching her head. She even considered me being pre-menopausal, which is absurd considering I’m 28 and regular! She thought that might’ve been the cause of my heat flashes and feeling faint. I have all of these symptoms! I need to find a doctor in this field to get me on a good treatment plan
I would recommend getting a referral to a good cardiologist. Wishing you peace, health, and happiness.
@@RachelAnn27 yeah, I’ve read a lot of similar discouraging stories. It’s sad that it’s not taken seriously due to a simple lack of knowledge. Its an invisible illness but it effects our quality of life. I don’t have energy to do the fun things I used to, & forget about going outside in this heat.
I found a post covid clinic in my area & emailed my doctor the referral link, as long as an article describing POTS symptoms. Wish me luck!
Go to a neurologist not a cardiologist.
@@Jaxinator423 really? Are they well versed in this?
Kelli Yunge yes. POTS can be caused by neurological issues and therefore requires a neurologist to diagnose. My cardiologist misdiagnosed me and was unkind and not receptive to my issues because of the disconnect (Difficult to identify causes). Not all cardiologists will be like this but in general it’s a neurological issue. Talk with your primary care physician and they will be the one to refer you. Also Google ab POTS diagnosis and you will see neurology as the main field.
Truly helpful. Thank you for uploading this.
You’re so welcome. I am grateful to be of help. What did you find most helpful from the video?
Thanks for such an incredible explanation. Me like all the others been suffering the symptoms and the London doctors say is panic attack, things get very frustrating. I was blessed I could travel to Brazil to see other doctors that want to find the cause for my symptoms. I am in my second day of beta blockers and feel sooooo much better. I can finally stand up.
Keep going if you have Pots and some doctor will be able to help you. ❤❤❤❤❤
Thank you so much for watching, Mari. I am glad the beta blockers are working for you. What did you find most useful from the video? Happy New Year!
This was so helpful. Thank you so much.
Glad it was helpful! Thanks for watching.
I feel so seen and understood! Thank you so much!
You’re so welcome. I am grateful to be of help and I appreciate you watching the video. What did you find most useful from it?
Thanks so much for this. I’m getting tested soon for pots and these are so helpful as I’ve experienced so many of these symptoms
Good luck. Thanks for watching! Wishing you peace, health, and, happiness.
This was great. Thank you
This video is so helpful I’m dating a girl who has pots and I’m just trying to understand her condition better so I can be there for her better
Thank you for watching. I am grateful to be of help
This is a amazing presentation! Just diagnosed 45 years old after Covid. I was just bee bopping through my day and then bam!
I am sorry you are struggling with POTS and I appreciate you watching the video
This is SO helpful. I’ve been living with a lot of these symptoms since I got Covid, and this will be so helpful to bring to my doctor to (hopefully) get a diagnosis
this is the best informational video ive seen for pots. i literally can identify with everything explained here with details. thank you so much
You’re so welcome. I appreciate you watching
This made me cry. What I've been going through worsened after having my second and 3rd child. I'd fall a lot when I was pregnant and developed anemia. Everyone always tells me I have anxiety and that my stress is inducing panic attacks. But this happens when I work out, when I stand, when I'm laying down for too long, i feel faint when I'm doing the dishes. When I scoop my cats litter box and stand up. Medications didn't work because it's been for depression and anxiety which I don't have either. Maybe anxiety when I see my kids doing something dangerous or when I watch scary movies. It's NOT the same. These episodes last for up to an hour and it effects my restroom breaks. And the hospitals and doctors make me anxious and stressed when they tell me the same thing.
I am sorry about that and I appreciate you watching the video
All recognizable. After 3 years of psychologists (they said I had a depression, burnout), my occupational therapist came up with POTS and wow! THANK YOU!
Thanks for watching!
Yeah, I had been told I had panic disorders and anxiety that for two decades. The last they told me I had hypochondria, when I suspected I had Additions disease (mind you, I had 75% of the symptoms including the also skin tone changes, stomach paind and vomiting (= the tell-tale sign of Addisons as in lack of cortisol in the body).
At this stage I had not heard of POTS and it did not come up in anything that I searched for in medical literature (I had access to actual medicial databases and never went for any of the silly pages).
Funnily, the skin-tone changes that could have been related to Addison's went away when I stopped betablockers and it turned out I had top-level cortisol and not lack of cortisol as in Addison's. It was just that my body was struggling to produce enough cortisol/the stress hormone in order to deal with POTS, hence the symptom like in Addisons, including stomach pain and vomiting.
(Quick info: POTS induces higher cortisol demand because of venous pooling/idiopathic hypovolemia and the ACHT hormone that gets the production of cortisol flowing in order to maintain blood pressure also increases the production of melatonin that darkens the skin tone. After five years I still get life-long friends of mine tell me 'it's so weird looking at you, what the fuck happened to your skin?').
I was OK without the beta blockers for a while, but then I got gut cramps and trembling in my muscles on top of the vomiting and what not. I've been taking calcium channel blockers for 1.5 years now and I am waiting to see how this turns out. The trembling and the stomach cramps are much better but starting to get the same old chest pain when up-right that I used to get when I was pushing it... A really interesting piece of human experiment this is.
How is your human experiment going?
@@samhartford8677
Thank you for your detailed response! Many recognizable complaints, but especially the ignorance of my GP continues to frustrate me. That asshole acknowledged nothing and kept sending me to psychologists. AND well, I have ADHD, so he wants me to take pills for that. I just get tired and tired, high heart rate, panic and fear. This has been going on for three years now and he even had a heart attack last year.
At the moment I really can't do anything and after 1 minute of vacuuming I am completely broken and have to sit (otherwise I pass out). Also have regular hypos. I think my blood pressure is too low because of the heart medication. And also that my heart performs less.
In any case, it always feels like too little oxygen is going to my brain. I also have severe neck pain 24 hours a day.
Long story short: this Thursday I will hear the treatment plan from the occupational therapist (who has consulted with the GP). Have little faith in it, but try to rejoice in it.
Next month also a night's sleep at the sleep center for apnea. Then they're going to give me extra oxygen.
Good luck to you!
@@mastamove make sure you do Pilates etc and breath work. Just also to get the whole body aligned so oxygen can flow well etc.
Also try low histamine diet - pots can be autoimmune and mast cells might make it worlds (hence post viral covid).
If you’re a woman menstruating it also
Might affect PMs the histamine etc.
Brilliant explanation. Thank you!
You’re most welcome. Thank you for watching
Thank you so much for this! 🙏🏼♥️
You're so welcome!
Thank you, for 3yrs I've had most of these symptoms and no help from my doctor. But I finally know what's wrong with me- now if I can only get my doctor to listen to me. So, thank you again for explaining this in such detail.
You’re most welcome. I am grateful to be of service and I appreciate you watching the video
Thank you so much for this!!! Im currently writing a book and wanting to give some if ny characters chronic illnesses, so am trying to educate on how everything works, why it works, what actually happens, and what to do-
this video was super simple to understand and i found out quite a few new things about POTS! Thank you for the education!
You’re most welcome. Congratulations on writing a book on the topic! I am grateful to be of help
Thank you. I have fibromyalgia/cfs symptoms. I'm currently seeking a fibromyalgia diagnosis but I also want to go to the Dr about my pots symptoms. Which you're right, do overlap a lot. It's so weird but I actually have started avoiding being upright. I am sad that this is what my life has become. I ended up on disability and the fibro and cfs symptoms are even worse now that I'm inactive. People get like jealous of me that I don't have to work but like I'd love to be abled. I hate living with chronic pain and mood issues and not really having answers.
Thanks for watching. Wishing you peace, health, and happiness.
I have both … its honestly excruciating sometimes
This is possibly the best description of what ive been living with for aroind a decade.
Thank you for watching the video and for sharing
Good luck getting it diagnosed. At 44 I, previously a cyclist, developed most of these symptoms and couldn’t manage 40 feet to the mailbox without collapse. Did the gamut of doctors and ERs; heart rhythm meds they prescribed for benign findings made symptoms worse. The consensus was menopausal or crazy or both, get an SSRI and a shrink; the EP said maybe POTS, but he wasn’t going to order a TT test. In the end I bought a Fitbit and walked (slowly) my way back into some kind of condition, but I’m not as good as I was, and I’m still 140 bpm as soon as the the treadmill gets going, forget intervals.
I am sorry about that and I appreciate you watching
I also hang off the mailbox to rest before the return trip.
@@michaelkelly7740 fun, isn’t it? Particularly when the neighbors give you the “are you day drinking” death glare…
@@tinad8561 I'm only a week into this so have not yet seen the humor. But I'm working on it.
@@michaelkelly7740 It takes quite a long time to see the funny side, I admit. I hope your recuperation is quick.
Thank you for this information ...
You’re most welcome. Thanks for watching
Thank you for your information. I realized that I may have POTS since I was a teenager . I have experience all of the symptoms and I am being treated for high blood pressure and pulse rate.
I appreciate you watching! Other videos you might be interested in can be found at: th-cam.com/users/DocSnipessearch?query=POTS
Thank you -once again you have proven there is a God.I have been diagnosed with so many different things ! This morning I was ready to give up and prayed for help.Found this video of yours by accident and realised that most of the symptoms mentioned applied to me.I doubt I will get a diagnosis from my GP because he hates you taking notice of health videos.Will have to deal with it myself or find an open minded doctor.So happy I found this video.Have had a really rough time ever since Renn years .Thank you ❤️
Cleveland clinic and Vanderbilt both specialize in POTS. Is a drive for my daughter but so worth it. They have her to the point she can manage this disease.
Thanks for telling this I have been doing a long time
You're so welcome!
Everything I experience. Thank u 💓
You’re so welcome. What tips from the video will you use to cope with that?
Spot on information
Thank you so much for watching the video and thank you for your feedback. Highly appreciated
Hi, is it possible to get a copy of the slides? In the symptoms you listed most of what I suffer with every day in one way or another & am a healthy active person. I get very frustrated & upset with my health as I do everything to help myself. I've spoken to the doctor many times about POTS but they don't take me seriously & tell me I don't have it. Be good or show them these slides. Many thanks
This is what I'm undergoing tests for, mines was spotted by my fitbit! My heart rate can be in excess of 120 for anything up to 14 hours a day which is absolutely exhausting on it's own. I've been having symptoms for around 8 months so I'm hoping I get my diagnosis soon and can start a medication plan to start to feel somewhat normal again!
I am sorry you are struggling with that and I appreciate you watching the video. What did you find most useful from it?
This got worse post covid but I'm pretty sure that I've had this my whole life!
Thanks for watching. Wishing you peace, health, and happiness.
Thanks for mentioning the dysautonomia center at Vanderbilt! Dr. Satish Raj at Vanderbilt is the reason my doctor prescribed Pyridostigmine to treat my POTS and digestive issues. That medication has been a miracle for me!
Thanks for sharing
I take the same thing! My milligram is a bit expensive
@@SahraBray11 Where do you live? In the USA, Pyridostigmine is 13 cents for a 60mg pill. With the standard dose of 60mg three times daily, a 90 supply runs about $36.
Any side affects?
I am being tested for PAH but leaning that it is not that. Thank you for this, I will share this with my physician.
You’re most welcome. Thanks for watching
When I was 17 I went from being fit and healthy to having a racing heart when standing and all the other symptoms. At 25 they also diagnosed SVT. I'm 50 now and the POTS has gotten a whole lot worse, I'm very depressed about it all 😞
I am sorry about that and I appreciate you watching the video.
How can you live a happy, meaningful life, despite your health problems?
Please try watching some videos on depression:
th-cam.com/users/DocSnipessearch?query=depression
@@DocSnipes Unfortunately I also have scoliosis and that has lead to osteoarthritis and bursitis so the constant daily battle is difficult.. Thank you for recommending some videos, I will definitely watch them as antidepressants really don't get to the root of the problem! Thank you for taking the time to reply, any help is very much appreciated.
my wife was just diagnosed after our wedding in Aug.21. it is hell on her and I . she forgets she turned the stove on or why she was cooking at all. cant walk without assistance. they gave her depokote for the headaches and she became seriously seeing things and tremors and then had a seizure. her typical bp in morning is 58/45 with 139 hr, after her beta blocker in the morning she goes severe high at 153/96bp with 160hr. we are a sinking ship at this point with the health, doctor delays, doctors who know nothing about it.etc. started in august and dont see specialist unitl december. she used to be dehydrated and tried the salt but it maxed her bp out. she talks of flashing circles in her eyes all day long. her eyes look like a drunk after a fifth of whisky, she is nearly blind and cannot see three inches in front of her clearly.
Your info is very appreciated!!!
It can be hard to get to the right Doctor. Wishing you peace, health, and happiness.
So sorry about this. It’s tough trying to see a doctor about a serious issue and they are always booked two months out, it’s frustrating. I hope you find the answers you need for your wife’s health.
Just imagine how she feels. It took me a whole year to get a diagnosis. I wanted to off myself so many times.
Thanks!
Thanks SO much for the support. Greatly appreciated! 😁😎
All of these years as a child even my adult age I've experienced this but not know what it is!!! Wow tic toc saved my life
Thanks for watching! Wishing you peace, health, and happiness.
@yellow phrog I told my Dr about the faint spells I keep having he said it maybe POTS as well! Just experience another yesterday
Same!! I saw a tiktok today and I’m really hoping this is what I have.
Does it make elevator rides and filing hard a POTS person? My legs feel like I’ve swam all day if I ride in an elevator. When I fly climbing up will make me taky. Once leveling I get better. And landing is fine. But when I’m back on the ground I feel super heavy in my legs
Night shade allergy, mold and cheese allergy was causing my pots symptoms. I was prescribed acid reflux medication, a calcium channel blocker, klonopin, sleep study, pulmonary test, tilt table test. you name it! I took absolutely none of these medications and continued to monitor my symptoms. Because pots is not a diagnosis, pots is simply a group of symptoms caused by some unknown condition. Wear a a fitness watch, any brand that monitors heart rate. Pay close attention to your body, the foods you eat. I go to my allergist on Monday and I can't wait to let her know I've been symptom free with a normal heart rate for 7 days now from an elimination diet and environmental changes. I feel better than I have felt my entire life.
I am glad you are feeling better and I appreciate you watching the video
How and when did it start? I’m super curious about this. My symptoms came on randomly and hard at 28. 8 months ago
I developed pots at almost 18 after I relapsed for the second time. I thought my low iron was just back, but after a blood test showed my iron levels were completely normal, and that led to my diagnosis.
I am sorry you are struggling with POTS and I appreciate you watching the video
My symptoms rapidly developed after a vertebral artery dissection. My autonomic nervous system has been out of whack ever since. I used to be an athlete, but ever since the dissection, I struggle with severe weakness when being up right. Shakiness and tremors are constant. I was accused of anxiety before they found the dissection and even after. I have Vascular Ehlers Danlos Syndrome as well.
Thanks for watching.
I have an appointment with a cardiologist next week. I think Ive had this for YEARS!
Thanks for watching. Wishing you peace, health, and happiness.
What happened?
@@carmella88 I have A Fib…Dr gave me meds that keep my heart rate normal 😉
@@leeannefowler7524 what are your symptoms with a fib
@@carmella88 high heart rate …even sitting down. I would black out when I stood up. Cardiologist gave me a stress test and echocardiogram….then gave me Flecainide 2X a day. I’m 99% better now.
I'm a post menopausal Grandma now but believe I had this and now my daughter suffers from this. I remember my 'fertile' yrs and wow, 3 day pre-menses I was a MESS.
I experienced difficulty concentrating and was EXHAUSTED. Back then, I thought I had mental illness. People would comment how I was not 'consistent'. Ugh.
But, after my 'cycle' I'd feel normal/at baseline and would forget my mense's dilemmas. (Only to repeat again!)
I do recall I began a calcium/magnesium routine later (mid 30s?) and it seemed to help!
Prayers for anyone who experiences POTS.😢
Thank you for watching the video and for sharing
Wait am I the first LIKE to this amazing presentation?😮😮😮😮
Thanks for watching the video. You are one of the 2k people that have liked the video and I am very grateful for that.
@@DocSnipes ahhhh 💕💕💕 well DESERVED 🌹🌹🌹
I just went to the ER with tachycardia. I was driving for 3 hours with my heart rate hit 183 then dropped dramatically hopefully my doctors appointment this week helps me.
I just did the same thing two days ago. I stood up and it went to 177 then down to 50 and they were like “that’s a normal range” and sent me on my way. :/
Same here guys
Did anybody get this after an injection with contrast dye e.g. MRI gadolinium? Or after a Vv@×cine?
How do you get diagnosed? I e what are the diagnostic tests? I wonder if there a specific test…I have very low sodium, chest pains, anxiety, I’m frequently very cold & I have depression. I get dizzy when I stand up and past heart tests have said tachycardia so I wonder if I have it…Interesting! Dr. Snipes you’re awesome! Thank you so much for your empathy & professionalism. ♥️🙏🏼
So welcome
You get diagnosed by seeing your primary care doctor and/or a cardiologist.
I was diagnosed by a tilt table test.
walking definitely helps me
Thanks for watching.
Can Pots be when you bend over, but not when you stand up?
When I bend over like to pick something up, sometimes my heart does this jump, and I know it’s coming. Before I can get back upright, my hr will jump to over 200(per my Apple Watch).
We’ve tracked everything from what I’ve eaten, drank, time of day etc. it happens the week before I start my period ... which is really weird. And the only thing that is the same.
Just wondering why a lot of doctors think PoTS is anxiety? How can it be anxiety if my BP stays normal and constant but my heart rate is 125+bpm for however long I’m standing until I’m laying down? How does that scream anxiety to them when I’m totally cool as a cucumber? I just don’t get it 🤷♀️
I've had the exact same despite being to the emergency department 6 times or so in the past 6 months, and I've passed out when arriving there too. But due to being under a mental health team and having a bipolar diagnosis. I did manage to get a cardiology referral finally so I hope they can help
@@alicerosejohnson9911 I have a question about you passing out: how was your blood pressure?
@@jacencko011 so tbh my blood pressure was normal . That said it took me hours and hours to be seen and have my obs taken. I'm tempted to buy my old blood pressure where I can record the obs on the device itself to show to health care professionals
@@alicerosejohnson9911 what is obs? I’m not familiar with that term? Also I would like to clarify that I personally haven’t had an issue with doctors thinking I DON’T have PoTS. I was diagnosed this February by my cardiologist but my neurologist (I have MS, diagnosed in 2018) is one of those doctors who I get the impression is a doc who thinks PoTS is anxiety.
My comment wasn’t really for my situation; it came from other people’s comments really. There are so many people on these PoTS videos who apparently are struggling to get diagnosed for years and I just don’t understand why it’s so hard for them 🤷♀️ it was very black and white for myself when I was diagnosed and it didn’t take a long time, maybe 2 weeks? I didn’t even know I was having palpitations until I went to donate blood and my pulse was 125 and they wouldn’t allow it and told me I should see a doctor. My best friend is a nurse so I stopped by her place after they told me because I totally felt fine/normal. I have an Apple Watch and she looked at the HR data and her eyes bugged out when she saw that there would be days my pulse would go up to 192! Made an appointment with a cardiologist, did a poor mans tilt table test, wore a heart monitor for a week then got an ekg. After looking at the results it was diagnosed as PoTS. I wouldn’t say I “suffer” from it except for lightheadedness and fatigue so at times I’ll need to sit or lay down so my palpitations can subside. I also make sure I’m hydrated and have upped my salt intake. My ADHD meds help with the fatigue from PoTS and MS. My BP is totally normal and my heart is normal. My cardiologist also assured me that PoTS is not fatal and normally palpitations would be a cause for alarm but that’s not the case with PoTS.
Im wondering if you’re not being taken seriously because if your blood pressure is normal, you shouldn’t be passing out. Palpitations alone don’t cause you to loose consciousness, you’d feel lightheaded but it doesn’t medically make sense to pass out unless your blood pressure drops. A drop in blood pressure along with palpitations is also not PoTS; it’s called Orthostatic Hypotension. PoTS is just palpitations upon standing. What is happening with you that’s bringing you to the ER?
@@jacencko011 OK, sorry to intrude, but you do realise that the palpitations go up, because the blood pressure drops, right? That is, because POTS is a dysautonomia and the body is not able to maintain the blood pressure, there are two types of POTS: the one in which one faints because the drop in blood pressure is more sustained, as in the body is not able to respond to the sudden change in blood pressure and two the type in which the body combats the sudden drop in blood pressure and elavates the heart rate and maintains it because the autonomous system has kicked in, possibly in a hyper-reaction.
There are even people in whom the blood pressure is elevated when standing up and they still have POTS.
I suggest you watch vlog on YT by 'York Cardiology' by Dr. Patel (if I remember his name correctly). POTS is a systemic malfunction. I have had it for all my life or at least 30 years and I have changes in my heart as in early signs of heart failure, because of the constant pressure put on the heart to combat the intravenous insufficiency or idiopathic hypovolemia, which are suspected as being some of the causes of POTS. As in there are many causes of POTS and telling another POTS suffered that they are basically nuts is not really helpful. Might I suggest you are a bit over stressed because of your system. Been there done that.
People who have severe EDS and POTS keep dropping like flies in their 20s. I'm in my late 40s. No sign I'm dying of it yet (but I do not have EDS), yet I'm not able to lead a normal life either.
Lived with POTS for two decades without understanding why I was feeling like shit. Now at worst I vomit when laying down, worse when trying to sit up. Needless to say I cannot work, because, well, I'm fucking exhausted and dizzy to the point that I vomit and cannot get out of bed. At best I can have a couple weeks of normal life followed by months in bed, used to be better. Getting worse.
I did get out of bed and work for two decades with this, when I was not as sick as vomiting but was just having tons of migraines, constantly elevated heart rate, pains, constipation, allergies and had to go and put my feet up etc. etc. Loved it actually. Now I love being able to cook food for my nephews twice a week - whilst having to sit down multiple times. The next day the chronic fatigue will get me.
Now, I'm saying this to you, because I feel a certain familiar arrogance in your tone. Do you think I got 5/3rds the credits at uni, because I wanted to end up living at my mother's expense at 50? Do you think I lived in three different countries and worked globally to come back to living with my mother? Do you think I got a Ph.D. or lead a recruitment agency to come to living with my mother at 50? Do you think I look forward the various types of incontinence that this form of dysautonomia have proved me it can cause?
That is, get rid of your arrogance, lady. Your body rules you, you do not rule your body. Learnt it the hard way. Start with being less demanding of others so you can maybe demand less of yourself. I know the stress hormones tell you you are the Queen. Been there done that. Ain't the reality.
Do we elevate the bed head or the foot of the bed. I know you said the head of the bed, but wouldn't that cause the blood to pool at the feet?
Please can you clarify this 🙏
I find it very very interested in these symptoms and the lateral symptoms of depression, anxiety, even bipolar. Maybe we need to treat pots first before those mental illnesses.
Thanks for watching and commenting.
Finally was diagnosed with PoTS and I'm so relieved to have a treatment plan!
Wonderful, I am glad you are getting progress. Wishing you peace, health, and happiness.
What's the treatment plan?
I’m bed ridden for 6 months of the year. I have such bad heat intolerance. Summer nearly kills me
I am so sorry to hear that. My daughter struggles quite a bit with heat intolerance as well.
I just watched a video about some reason I might have POTS and then I found this. I have a lot of these symptoms except the accelerated heart rate(I think)and some other ones. so now I’m really confused, I feel like there is a good chance I might have it but I also feel like what I’ve experienced isn’t as bad as what is explained in this video.
Thanks for watching. Wishing you peace, health, and happiness.
I’m looking into POTS because my son began getting low blood pressure syndrome within 12-24 hours AFTER intense physical exercise. We would go to a trampoline park and he’d begin feeling nauseated on the way home. He’d be really tired and go right to bed upon returning home. Overnight or the next morning, he’d wake me feeling lightheaded and dizzy with nausea. My spider senses told me to check BP which was lower than normal. Doctor just diagnosed a low blood pressure condition. He struggles getting to sleep and is so tired in the morning, it takes him 1.5 hours to get out of grogginess. If he has to rush to wake up, he will crash and get tired in a few hours. He gets over-anxious and struggles to sleep the night before school begins, and he is over-reactive daily and ready to argue fast. He can’t sleep at bedtime but wants to sleep till noon and wake up slowly. He only gets dizzy when he exercises pretty high cardio. He wants to nap daily and crashes around 3-5 pm and has to really fight to stay awake. He has forward neck posture from sitting at a computer all the time. And he stopped being active at 9 years old due to severe Achilles’ tendons/ plantar fascia issues. Could he have POTS?
I don't think it's pots based on what you've said. Heart rate is key for a pots diagnosis and you can't diagnose pots without first correcting the bp issue because I high heart rate may just be a response to the BP drop. Instead it sounds more like a blood pressure issue. You could look into orthostatic hypotension or hypovolemia, but there are probably many other possible causes. For low blood pressure compression socks, salt, and water may help.
You could also look into cervical instability but I don't know much about how founded in science it is...
I’ve been diagnosed with pots this year but I kept getting low BP that I’ve never had an issue with my intire life . My doctor says you can get orthoststic hypotension as a severe sysmptom of pots. I’m also waiting to see a specialist too see what immune disorder I have .
Look up Chronic fatigue Syndrome as with all the sleeping you mention there it sounds like that and with CFS there is a delayed crash just like you describe here. Many also have low BP with it too and it will also cause the symptoms you mention. (POTS can be a secondary condition of CFS). Cardio exercise is often not good for people with CFS.
What is the abdominal pain like? Mine is severe and is definitely my main symptom. But I still have most of the other symptoms of pots. I've been seeing GI specialists for over 2 years (with no diagnosis) and just wondering if I'm looking in the wrong place.
Get yourself (or borrow a blood pressure monitor so you can take your heart rate) and look up how to do a "Poor Man's Test" for POTS and you can find out yourself if you have it or not (this works as well as the tilt table testing some hospitals do). Just make sure you are standing completely still (do not move toes) during the standing part of the test and make sure you have a stable baseline laying reading before you do the standing up part of it.
Thanks for sharing your knowledge about this condition some of us struggle with on daily basis. Is it possible that too much sleep worsens symptoms of Pots?
Thank you for watching the video. There isn't a direct link between too much sleep and worsening symptoms of Postural Orthostatic Tachycardia Syndrome (POTS). However, sleep disturbances can impact overall health, and managing sleep patterns is important for those with POTS. It's essential to maintain a regular sleep schedule and quality sleep to help manage POTS symptoms effectively. Consulting with a healthcare professional who specializes in POTS can provide personalized guidance on managing sleep and symptoms.
I was diagnosed with chronic vasovagal syncope in 5th grade and now 7 years later I’ve been diagnosed with pots could pots be a secondary condition caused from vasovagal syncope or was it just pots basically all along? Still 6 months into my diagnoses of pots so still learning
You can have both, they are separate conditions and can occur in an episode simultaneously (I got diagnosed with both this week)
i got diagnosed when i was 16 and i am now 17, im glad i got to know what it is, and now can learn more about it:) these kind of videos are greatly helpful 🤍 my first episode has been my worst yet, but it’s been a constant learning process to be able to help prevent my episodes 🤍 you got this everyone❕❕ you are so strong,, it’s not so scary when you embrace it :))
Thanks for watching. Wishing you peace, health, and happiness.
I am new to this pots, please tell me what a episode of pots is like, my symptoms usually are: Pounding heart at rest, neck pain, and i usually suffer from a panic attack. I am scared that i will get a heart attack even though the doctor said i have nothing.
@@exempleromega5978 i get scared i will have a heart attack too, but just remember it’s okay and although your heart is beating fast, you won’t be having a heart attack. my regular episodes everyday usually go like this: when i wake up i can’t just stand up first thing, i need to sit up and wake up a bit and then stand up or else i start blacking out. every time i stand up in the day, i start blacking out but i’ve noticed that closing one eye and grabbing onto something helps bring it away quick. i have to drink enough water, eat salty foods, and make sure i’m getting enough rest because of not, i’ll have episodes where i’m dizzy all day and can’t make it to my school classes.
@@exempleromega5978 my heart pounds and i get headaches from that sometimes, as well as very very shaky body, and the pounding heart increases my anxiety which causes my nausea, so that’s what i experience, but recently got on medication to help that. learning to control and relax your body is a big help, i hope that you can find what works best for you! :)
@Babs Kaz in all honesty, i have no idea what that is?
My heart rate has been jumping a lot recently whenever I stand up, whenever my heart rate increases I just get super nervous and freak out a bit and want to cry. I've been getting really hot, nauseous, I feel as though I will faint, and I just need to lay down and breathe. Like when I woke up this morning, I went to brush my teeth and I felt super hot my mouth was dry my heart was beating super fast and I was about to faint. This also happened a couple months after I recovered from COVID, I also had really good lungs but after COVID I breathe hard after walking upstairs. Life sucks man.
Acupuncture, low histamine diet (for mast cells) as pots can be autoimmune, Pilates etc for good spinal alignment - helps flow to Brain etc. breath work where possible. Vitamin d still. Good sleep routines. All the stuff. You can do this.
Yeah same here. Things just haven’t been the same since I got COVID. I don’t know if the shot caused it or the virus itself. Anxiety has been through the roof, feels like I can’t breath, my heart rate goes up when I stand up, feeling tired throughout the day. It’s terrible.
im going to be getting tested for POTS, i have so many of these symptoms. ill sit and my HR is 53 and stand up and it shoots to 124.
Thanks for watching. Wishing you peace, health, and happiness.
Do you have bothersome slow hr? I have both low and high hr, each triggered by bending, squatting, sitting, or standing, or even stress. You're the first I've encountered so far who also has both slow and fast heart rates.
I saw a cardiologist about having exercise intolerance and my heart rate would jump 40-50 bpm just from standing for a few minutes. I was in great shape prior to this. I used to swim at least a mile everyday. Now it’s exhausting just to walk out to my mailbox. I’ve been dealing with this for over three years and I can’t seem to get the right diagnosis 🙁
Hoping you can find a good treatment plan. The POTS medication Pyridostigmine is being researched for treating exercise intolerance in ME/CFS patients, so that might be of interest.
@Babs Kaz no I didn’t even get vaccinated
@@lauradavenport8199 Thank God! Do not take the vaccine. I am having the same symptoms, and I haven’t had the shot. I hope they find out what is wrong with us 😢
SVT what it sounds like
@@lauradavenport8199 get a tilt table test
I started getting palpitations fluttering when my stepfather died , it happened all the time when I got up, cooking , walking then after a few months it only happens when I’m standing still , or waiting for elevator or in line (standing still) what could this be?
I have INSANELY low blood pressure, CRAZY fast heart beat , frequent fainting and close to fainting..and hot flushes...I am highly suspicious of POTs but I have so many other conditions it's just nuts 😢😢😢
I am sorry you are going through that and I appreciate you watching the video
Thank you so much for this video its very informative, perfect actually to show anyone who I need to understand what I am experiencing. Really appreciate the support!! 💕🙏💕
You are so welcome!
Wow! I’ve been told I’m a hypochondriac too. I’m 48. I’m going to ask my dr if I have it…
Thanks for watching.
Demand it....
Question. Who is experiencing bad leg cramps? I developed POTS in mid June and struggled all summer, barely doing anything at all. I have had Lyme for years and years. I feel this is a vaccine injury cuz of the timeline. But these leg cramps are new and at night so it disturbs my sleep which snowballs all the other issues. Help!!
Is it possible for MRSA to be a cause of MRSA to develop?
THANK YOU for saying something happened and they’ve never been the same. I received too much iron from and iron infusion. Blood pooled in my legs and they burned really bad. The dr gave me benedryl because he said it was an allergic reaction. The next morning I woke up and fainted and since March 2021 I can’t swallow properly without Ativan. But the burning legs and brain fog have never left. My dr says it’s just anxiety.
Lyme disease it sounds like
You cant swallow without an anti-anxiety medication? 🤔
can you tell me please, What did you do for traitement ? And what did you do for high heart rate?
How to get insensitive friends/loved ones to "get it"? Some never do. I've had CFS for over 10 yrs and now POTS for 2 yrs, and am so sick of their expectations without thinking first.
Thanks for watching. Wishing you peace, health, and happiness.
Stop trying to get people to “get it”. I don’t bring up my medical diagnosis to friends/family very often. I have what I have and I don’t have to convince anyone of anything. If I can’t hang out because I feel like crap, I just say that and they understand but I don’t go into these long drawn out explanations for why I sometimes feel like crap.
Now POTS is happening frequently in people with Long Haul Covid.
Interesting, not something I have heard before.
I have it bc of covid!
I’m dealing with these symptoms from the Pfizer jab in January ....no official diagnosis yet, but I never had covid.
@@pattyg.4872 don't be a sucker
@@DocSnipes ??? I come you have not 'heard' of it', but I have, and I'm no doctor?
Got covid in August I was 17 years and heart rate starting going up and in January it was messing with my blood pressure and heart rate and I was diagnosed with pots in February and now I'm 18 years old suffering with it for four months I can't run or do hard core exercises no caffeine or energy drinks no caffeine teas .
I have the same problem as you
I was diagnosed with POTS at 24 and now I'm 44 and every day is still miserable when my heart is in the 180s-190s, I literally can't do a damn thing without passing out.
I am sorry about that and I appreciate you watching the video
Omg this has been happening to me on and off😔 i was diagnosed with just tachycardia and anxiety but these are the symptoms i have and it scares me like im going to die
Me too how have you been since then
Can damage to the spinal cord in the neck cause pots?
I have had myelopathy of the cord...as well as Pelvic congestion and compression of the iliac vein. Veinous insufficiency in my legs.
I have low blood pressure, exercise intolerance and night sweats that aren't in a pattern or due to hormones. Dizziness. Chest pains. Weird flushing and faintness during bowel movements on occasion. Hemorrhoids and digestion problems. Die in heat. Die in cold and have numbness . The list goes on.
Did a stress test and my resting heart rate was 82/50 the other day.
The doctors are all confused.
I have a feeling this is it.
Ask them to check for a CFS leak. Very similar symptoms to POTS.
Yes. I got it after 2 spinal fusion surgeries
My cardiologist put me on a low dose Beta Blocker and it helps keep my heart rate from jumping too high and got rid of the fight or flight feeling.
Thank you for watching the video and for sharing
Is there assistance for single mothers struggling with this. I work with horses and stagehand. I’ve been out of work for a few months now.