@@jahacimaglelive5853 okay. I just know from being on IV hydration. I would totally take the trade off. I was having to drink 7L per day or my face would start burning/peeling during chemo. 1L hydration was equal to 2L orally.
My daughter has this condition and I thank him greatly for dining light on it. She suffered daily with it and when she watched this she realized she's not alone. Thank you
I also have this condition. I was officially diagnosed when I was 14 years old. Medication made things worse for me so I do my best everyday. Please give your daughter a hug for me. So many doctors told me growing up that women couldn’t get it. ❤️
We have genetic Central Diabetes Insipidus in my family, fortunately we can take synthetic vasopressin (desmopressin). I drink around 3 gallons a day when I don't take it and I didn't know it existed until I was around 20!
@@merrymayhem3447 I'm an endocrinologist and I'm surprised it took so long for you be diagnosed. Even if you don't do a lot of labs, if you give desmopressin to someone with polyuria (excessive urination) and the urine volume drops significantly, you're pretty sure it's central DI with the posterior pituitary failing to produce enough arginine vasopression (ADH).
My sister in law has hypokalemic periodic paralysis, maby people see her as fine and strong, but whenever her illness attack she can't move any of her body due to low of potassium. Doesn't mean that a person looks okay outside they are okay inside.
God delivered me from depression and scuicide praise God in Jesus Almighty Name Amen All have done evil “For all have sinned, and come short of the glory of God” (Romans 3:23) The penalty for sin is hell (Revelation 21:8). Because of Gods love for us Jesus Christ came down from heaven to take the punishment for our sin on the cross in which he was spat on, beaten, mocked and laughed at. Christ died for the sins of the world and The third day God raised him from the dead (Praise God). This was done so that those who believe on Christ will not perish (hell) but have life everlasting (heaven); be justified by Gods grace through redemption in Christ (John 3:16) (Romans 3:24). The blood Jesus shed on the cross washes away our sin if we Believe in The Son of God and his finished work (ordained by God) on the cross. When this happens the believer receives the righteousness of Christ in place of their own unrighteousness (all sins are forgiven) and this makes them saved (going heaven) and they are born again as a Christian. (Romans 3:25-26
He is strong... He lives alone, he still work despite his illness, he kept strong & motivated to search for cure... Really respect him for his hard work every single day...
Thanks to new treatments, the water he needs per day dropped to 7 liters! I hope eventually it will be even less, but I was very happy to hear about this.
I have had this disease for 11 years. I went 3 years untreated, it is truly horrible. Having to plan your entire life around bathroom breaks every 30 minutes to an hour and constantly having to have a drink with you. I felt like a burden to other people. I was waking up 12-15 times during the night to use the bathroom. Once doctors finally figured out what was wrong (Diabetes Insipidus) I was put on a medication called Desmopressin, and it completely changed my life. I’ve been on it for the last 8 years and I rarely have to use the bathroom at night anymore. And I can now go hours without using a bathroom and I went from drinking 10 gallons of water a day to around a half gallon or so. I know exactly what this man has been going through
@@NicolasMorus The doctors told me to monitor my fluid intake for a 24 hour period as part of the testing, it was just under 10 gallons. Like 9.7 gallons.
@@pithikoulis Desmopressin is a synthetic analog of ADH (naturally produced in the body, to conserve water, anti diuretic hormone = against urine hormone). This drug only works for people with central diabetes insipidus (body does not produce or produces very less ADH). It will not work for the patient in the video as his ADH is being produced normally but the ADH receptors in his body don't respond to ADH. So it does not matter how much you give it to him
@BlueChemistry Yeah sorry if you haven't noticed but I'm not native english. Never heard xenophobic before so I just used the word that I knew was closest to what I meant, thanks for teaching me a new word
I have this same disease, I live in Chicago because it’s one of the only cities that have doctors that actually have studied this disease. Very very rare.
The worst part is having to wake up during the night multiple times. It means this man never in his life managed to get a normal sleep cycle and probably is constantly tired
I'd love to hear about sleep research done on him. I bet since this happened since he was very little, his sleep has "accommodated" and his sleep architecture is quite unique.
is being an ARCHITECT some great accomplishment in the face of adversity? it's not a doctor or a firefighter. it's a decent desk job where you're never too far away from water cooler or toilet. source: am an architect and sometimes i can take a nap in the middle of my workday ffs. not to put any shade on Marc, just your statement seems weird.
@@protectwildlifeanimals8163 In Germany you can drink the tabwater, its perfectly fine to drink so he will be okay ^^ and we still have access to every grocery store, there is no shortage in foods or anything
sure we should be grateful , but know that our problems are still valid. just because someone has it worse than us doesn’t mean we’re not allowed to struggle
I’m evil Karen because I told this little shit “h and h” that what he is saying is good but he’s saying for likes on his comment cause he is like 8 or some shit
My wife has this, and she takes a prescription called DDAVP and it helps a lot, although she was never as severe as this guy. No doctors believed her growing up and we only found out after our son was born. We needed to have an emergency c-section and while she had a catheter the nurses noticed how much water she was drinking and how often she peed, so they have a specialist come in. We were told it was very rare, and then last year my brother in law also got diagnosed, so 2 in the same family. She still needs a lot of water and goes to the bathroom more than the average person but it's not affecting day to day life anymore.
What this guy has is actually a different condition than your wife. If your wife is taking DDVAP, that means she likely has central or neurogenic diabetes insipidus. Her body doesnt produce ADH. She can take synthetic ADH (such as DDVAP) and she is able to be closer to baseline (some are pretty much able to be normal). The guy in the video has nephrogenic or renal diabetes insipidus, which is WAY worse. His kidneys dont respond to ADH. He cant take a synthetic hormone to manage it. He is likely taking thiazide diuretics which can partially manage the disease, but it will not be nearly as reliable as things like DDVAP for central diabetes insipidus. Not to say that your wife has it easy, but this guy's disorder is just on a different level.
I would just wear a camelpack and never take it off unless in needs to be refilled. but in all seriousness thats a bummer. makes me appreciate my healthy state
I have no problem doing that lol, usually in winter i drink ~ 5-6 liters and at summer 10+, i never done 20 cuz i didnt feel the need but for sure i can
@@camataruxxl3101 You're bsing it would flood your stomach and you would die. Imagine trying to lie about drinking loads of water? That's super pathetic
i have 4 chronic illnesses and do not have a mobility aid. you only know when i faint, dislocate my shoulder, can’t hear out of my left ear... we are everywhere, sick people
Not to be pedantic but he is disabled, with the coping mechanism of the diuretics he can achieve near normal functioning levels but that doesnt change that he has a disability
This is just terribly heartbreaking. Any parent who loves their child will know the feeling of helplessness when you watch your child suffer like this. I feel bad for him but also his parents.
My boyfriends bestfriend has the same condition. Whenever they would go places, all of his friends would bring bottles of water not for themselves, but for him.
You can see that this condition and everything surrounding it, every aspect of his life that it impacts has been eroding away at him, but he's still managing university to become an architect, isn't giving up, and is actively looking for any and all support/insight into his condition and anything that can improve his quality of life. A strong man, with strong character and determination that's for sure. Hoping things and life have improved a good amount for Marc. Good for him man. :)
Aside from all the jokes, hopefully he can find something that can help to a point where it is no longer a concern or noticeable. I hope your life gets easier and brighter Marc!
There are so many people living with so many different diseases, it makes you appreciate being healthy. It’s why I thank the universe every single morning I wake up for my health and amazing life and family I have. Poor guy.
Editing this so all the comments make no sense. Also I got bored of seeing the same comments. I got my answer I don’t care now two months after I wrote this.
Most Europeans can speak more than one language and English is a very common language spoken in Europe. My Swedish teenage cousins can speak English at nearly native level.
Phlik look at the doctor’s wedding ring. It is on the LEFT hand. In Germany, the wedding ring is on the RIGHT hand. It could mean that the doctor is NOT based in Germany.
water actually makes you're skin smooth and healthy. I drank only water for a whole month one time and my skin was at the best condition. Still feel bad for this guy though. It's incurable and it's really sad.
@@mouses_HK REALLY OK TIME TO GET LOTS OF WATER Edit: ye so I kinda forgot bout this comment section but I only watched hyram skin care and i have better skin
My friend's husband has this and passed it on to their son. He had a NG tube for water for the first two years of his life. I can't imagine how hard that is.
@okaynevermind5130 I don't think I would have had kids, if I did get pg I would have genetic testing and probably only continue pregnancy if the kid did not have the condition. It's her choice of course, and as the kid grew older he needed fewer interventions. Still, I don't think it was a good idea.
when you question to yourself what ate the comments going to be on this, ohhh probably just like oh what we take for granted kinda thing and you see this XD
@@komekaressme3245 nobody said it was, duh! He meant the problem was he hardly gets any sleep you idiot. I hate it when people call others out for being stupid when it's actually them being moronic and in the wrong. DUH!!
i live with this illness too and went undiagnosed for about 10 years. its a miracle i'm alive as i was drinking 28L water a day long term and drinking too much water can kill you. i'm so grateful to finally get diagnosed and on pathway to treatment now finally.
@@ofir20503mental gymnastics can be quite strong :,) I say this for myself as well (not with this condition, but other things I didn’t realize was not normal)
@@ofir20503he said undiagnosed, meaning probably went to a doctor but they didn’t identify the problem, which can happen with rare diseases and disorders
@@jasperbarrett7184 No bro, he's claiming to be like that for 10 years. This isn't 1200 BC, he's got access to the internet and doctors know better. This has to be some kid that's just exaggerating everything.
@@ofir20503 my mother has been suffering from gut and digestive problems from over 20 years without a diagnosis and has been seeing doctors since, don’t be so skeptical for no reason, yes our medicine is better but not every doctor is an expert in everything , this is why their are 100s of different specialisations. Theres a reason some people just drop dead, doctors miss things, some things aren’t fully understood even in 21st century, some conditions are rare with next to no medical research on them. And while you may be in a country with decent medical care, the majority of the world has sub par or restrictive medical care
@@paxhumana2015 even with diuretics, he still drinks approximately 10-15 litres per day. It is a worry that he will literally drown his body with too much water. He has been admitted to hospital a few times due to very low potassium. He is on magnesium daily to try and stop the loss of minerals from his body.
You already know...bc they're assholes. I have a special needs niece and I won't post a pic of her on social media bc ppl are cruel to ppl they don't understand or make them feel uncomfortable. IRL, they don't say a word. Unfortunately, the internet brings out the worse in ppl.
Yes I have a medical issues as well. People need to be respectful. And look at them selves and Count there blessings. And most importantly be kind to others. Stay strong man 🤗🤗🤗🤗
I used to get up anywhere from just once, to up to 3 times a night... Now, I make it a point to just sip a bit before bed. But I DO pee water out right away and my lips and skin and everything are still so DRY. I drink every few minutes and pee just about every hour or two. I appreciate this, to have one other option for my GP to look into.
Dwight, if he can’t get tap water or bottled water. He can reach out in social media to people near him and pay for some water. If that doesn’t work he can go to a drinkable fountain. If that does work it’s filtering natural water
my mom suffers from this disease as well. the doctors were shocked she was even alive when she got diagnosed, she was diagnosed in her 30’s. she has been getting pounding migraines and constantly has to pee for as long as i can remember. her diagnosis has helped her a lot. she takes medicine everyday that helps her body be able to process water correctly, and it has helped her so much, but of course, she always has a full glass of water with her just incase. i hope everything is going well for him!
Last year I had Lasik eye surgery and I had to put in eye drops every two hours. I can still remember how tormenting it was to not be able to get a full uninterrupted night's sleep; and it was only for TWO DAYS and I didn't even leave the bed. Can't imagine how excruciating it must be to not get a good sleep for 36 years.
My friend’s phone broke and she went 2-3 weeks without a phone and hated it, but as a kid she/everyone had no problem because they never had a phone anyways. Same thing. He doesn’t know what a full night of sleep is like so he can’t even determine what he’s missing out on
@@ashley-sv4lo yeah no. his sleep quality is really bad and he knows it's bad! his whole body feels and tells him. you may get used to being sick in a way, but that doesn't mean you don't painfully know you are.
@@k033as9 Hence why I said to get a high quality filter. Bottled water isn't much different than tap water. Add in a nice filter, and you're getting water that's better than bottled.
its really interesting to see someone else with this disorder, I got diagnosed with mine when I was 16, and its thought I had developed it around 12 due to a brain tumor. This guy isn't lying when he talks about how intense the thirst gets. I should also probably clarify, I have the somewhat easier to handle version of his condition, my kidneys themselves work fine, my brain is the issue, it doesnt produce the needed chemical , so i can take it in pill form to alleviate the affects.
Immense respect to this man for getting himself through school. Especially architecture which is an often brutally time consuming and intense discipline. He is clearly a resilient and willfull person. Hope he gets treated successfully because he has more than earned it.
Not gonna lie imagine your stuck drinking water every single day non stop after a while i get sick of drinking water i always change what drinks i have on a daily basis its not always the same thing i dont know how he managed to cope with that drinking the same stuff day in/day out hourly id go crazy after 1 day not even
As soon as I saw the title I knew this was about diabetes Insipidus. I suffered brain damage and had a temporary case of diabetes insipidus, which was not that bad; i had to drink at least 2 gallons of water a day to stay hydrated. As my brain damage got better, the disorder went away on its own. he has a severe, congenital case of it and i can only have respect for how he maintains a positive attitude.
Reading lots of comments of people joking about his illness. I just don’t believe others misfortune and pain is funny. This is a life and death issue. My heart goes out to him.
I wouldn't mind if it was coming from the guy himself because I use humour and jokes to cope with some things I've been through, but yeah it does seem a little distasteful. Could you imagine how debilitating this sort of thing is, I struggle with a chronic condition and have to prepare for certain pains and sickness before I go anywhere, could you imagine having to carry a certain amount of water every where you go, or make sure you have a source of it all the time. It must be exhausting
Ugh that's the whole fucking point of comedy! Stop being so god damn sensitive. Can you imagine being miserable and people can't smile and laugh around you or with you?
@Pineapple, well techically you do have a condition we all have it. It’s called Being alive. every second you live you get closer to your inevitable death. And whatever comes in the middle of that will decide your fate. I’m assuming you’re a young teen or adult in which you won’t have any problems but when you get older you will have an unfathomable anount of health issues. So good luck and let’s hope your prophecy of good health comes true as you get older👍
Ironically, drinking alcohol will actually make you more thirsty than you otherwise would, & i don't think he'd like to feel more thirsty than he is already...
I’m sure based on the severity of his condition, his water is subsidized by their health care or government program. I’m sure he is not paying out of pocket for all of the bottled water you saw.
No it's not I've spent time in Germany The water is untreated and may have pathogens in it A few of my cohorts found that out the hard way. They ended up in the hospital with dysentery. It REALLY sucked having to rely on bottled water
I have a background in biomedical laboratory technology, I had never heard of that disorder. My deepest thanks to Marc for sharing how he lives with this condition. It's always priceless when patients agree to open up like that to educate others. ❤
I was gonna ask if he could use one it be easier. I use to have to drag around an IV pump for 10 months 24/7 it was giving meds to save my life I got a lot of stares and I wasnt aloud to go to school ( I was in High School at the time) so I could see why he wouldn't want to but it would be cheaper
@J. Ellen P : Honestly, I was thinking the same thing! There’s many conditions that cause people to be attached to an IV long term. I wonder if they could do something like that just so the man can get some sleep without having to wake up to drink! I feel so bad for the man. What a horrible existence he has. 😔
Sister Spooky if he had a port/ continuous saline infusion it would be a lot easier, imo. I have to use a saline infusion once a week in order to stand up (POTS) and some people with MY condition have a continuous saline infusion.
trust me, i really am the biggest fucking bitch in the world. This guy wakes up 20 times a night whilst i complain about it taking me a couple hours to fall asleep. inspirational.
Imagine the apocalypse comes, and this guy needs shelter and you offer him some. Then you wake up and your years supply of water is gone, and he over here saying "I'm really thirsty."
You can tell by the looks on his eyes that he's extremely sad about his condition. I feel so bad for him. 😞
Me to😭😭😭😭😭😭😭
Same it must suck but atleast he has good skin lol
Ok
@@dawsoncarpenter2244 no, actually no because his body DOESN'T ABSORB water
Tigrus245 well his skin looks good so
This is like a living nightmare. Imagine how tiring it is to force yourself to drink 20 liters daily, plus if he sleeps too long he won’t wake up.
He doesent force himself tho. He feels that thirst cause kidneys of his dont absorb water
Why isn't he on IV hydration?
@@saraleo8128 he would spend his whole life on it... Thankfully they found a cure for him from what i know
@@jahacimaglelive5853 okay. I just know from being on IV hydration. I would totally take the trade off. I was having to drink 7L per day or my face would start burning/peeling during chemo. 1L hydration was equal to 2L orally.
He doesn’t force himself to drink, he becomes thirsty at an extremely high rate and drinks to satisfy his thirst
I feel bad for him. He probably spends 50 percent of his day either pissing or drinking water.
Somewhat Knowledgeable Geek I’m sure his body is used to holding it in now
@@annies6566 what
Annie S He said in the video he has to pee every hour and a half
@@TimothyRichard12345 drink not pee
@@annies6566 stupid
Too much water too hold idiot dog
My daughter has this condition and I thank him greatly for dining light on it. She suffered daily with it and when she watched this she realized she's not alone. Thank you
Awww i hope they find a treatment for your baby girl.
I also have this condition. I was officially diagnosed when I was 14 years old. Medication made things worse for me so I do my best everyday. Please give your daughter a hug for me. So many doctors told me growing up that women couldn’t get it. ❤️
We have genetic Central Diabetes Insipidus in my family, fortunately we can take synthetic vasopressin (desmopressin). I drink around 3 gallons a day when I don't take it and I didn't know it existed until I was around 20!
Dining light? You mean “shining light?”
@@merrymayhem3447 I'm an endocrinologist and I'm surprised it took so long for you be diagnosed. Even if you don't do a lot of labs, if you give desmopressin to someone with polyuria (excessive urination) and the urine volume drops significantly, you're pretty sure it's central DI with the posterior pituitary failing to produce enough arginine vasopression (ADH).
And he still got through university and became an architect. Very impressive
And speaks going English
Yes he got through school,.luckily he had fcking plentiful water.
3 more for 1k
God BLESS this CHILD.
Because it's bullshit. There is nothing wrong with him!!
I can't imagine what he must be going through, he looks healthy and he managed to study and become an engineer. Respect
Edit : Architect not engineer.
My sister in law has hypokalemic periodic paralysis, maby people see her as fine and strong, but whenever her illness attack she can't move any of her body due to low of potassium. Doesn't mean that a person looks okay outside they are okay inside.
many people with disabilities and illnesses look fine on the outside.
These are fake lmao
@@aldemar9416 As fake as your stupid brain, perhaps
Architect*
He’s so depressed poor guy god bless him
I know right 😭 I feel. So bad imagining if I was him
U r more depressed and poor then him he is so strong and try to live his life
You know it's fake drinking more than 6 litres in a day kills you
Deadly pancakez it’s a condition did you not watch the video
Deadly pancakez lMafo did you even watch the video? he’s suffering from a rare condition that constantly makes him thirsty
This man is a god damn warrior, he went through university and became an architect while having this condition on his shoulder.
God delivered me from depression and scuicide praise God in Jesus Almighty Name Amen
All have done evil “For all have sinned, and come short of the glory of God” (Romans 3:23) The penalty for sin is hell (Revelation 21:8). Because of Gods love for us Jesus Christ came down from heaven to take the punishment for our sin on the cross in which he was spat on, beaten, mocked and laughed at.
Christ died for the sins of the world and The third day God raised him from the dead (Praise God). This was done so that those who believe on Christ will not perish (hell) but have life everlasting (heaven); be justified by Gods grace through redemption in Christ (John 3:16) (Romans 3:24).
The blood Jesus shed on the cross washes away our sin if we Believe in The Son of God and his finished work (ordained by God) on the cross. When this happens the believer receives the righteousness of Christ in place of their own unrighteousness (all sins are forgiven) and this makes them saved (going heaven) and they are born again as a Christian. (Romans 3:25-26
hey
@@EnergeticSpark63sup
.
@@PescaSuTH-cam hey
He is strong... He lives alone, he still work despite his illness, he kept strong & motivated to search for cure... Really respect him for his hard work every single day...
He's single but he looks so handsome
@@irrahang6983 wanted to comment the same thing, like daaamn 🤭
You can feel he is tired. Dehydrated feelings. Lots of water. Sleepless nights. Boy thats tough. 🙏
This man is an absolute beast, what a strong person.
Thanks to new treatments, the water he needs per day dropped to 7 liters! I hope eventually it will be even less, but I was very happy to hear about this.
awww that's a lot better, more manageable .. and what goes in must come out, so hopefully he can get a decent night's sleep
Dude can you give a link
Link please! This sounds awesome! I’m so happy for him!😊💖
Aw I'm so happy for him thankyou for sharing with us!
That’s good to hear!!! That’s a huge difference from 20L :(
I have had this disease for 11 years. I went 3 years untreated, it is truly horrible. Having to plan your entire life around bathroom breaks every 30 minutes to an hour and constantly having to have a drink with you. I felt like a burden to other people. I was waking up 12-15 times during the night to use the bathroom. Once doctors finally figured out what was wrong (Diabetes Insipidus) I was put on a medication called Desmopressin, and it completely changed my life. I’ve been on it for the last 8 years and I rarely have to use the bathroom at night anymore. And I can now go hours without using a bathroom and I went from drinking 10 gallons of water a day to around a half gallon or so. I know exactly what this man has been going through
10 gallons? or roughly 38L? wow I'm glad the medication worked that's insane
@@NicolasMorus The doctors told me to monitor my fluid intake for a 24 hour period as part of the testing, it was just under 10 gallons. Like 9.7 gallons.
so what does the medicine do exactly?
@@pithikoulis Desmopressin is a synthetic analog of ADH (naturally produced in the body, to conserve water, anti diuretic hormone = against urine hormone).
This drug only works for people with central diabetes insipidus (body does not produce or produces very less ADH).
It will not work for the patient in the video as his ADH is being produced normally but the ADH receptors in his body don't respond to ADH. So it does not matter how much you give it to him
@@ShahsawarM Theres the option to use Thiazides for the renal version.
He looks like he's tired with life. I feel bad for him.
he's german, they all look tired with life, lol
@@jwst8 Tf are you talking about?
@@jwst8 sounding kinda racist there bud. Noone in Germany I know looks tired with life and I am german
@BlueChemistry Yeah sorry if you haven't noticed but I'm not native english. Never heard xenophobic before so I just used the word that I knew was closest to what I meant, thanks for teaching me a new word
@@lykiaookami6070 lol.. gtfoh
I have this same disease, I live in Chicago because it’s one of the only cities that have doctors that actually have studied this disease. Very very rare.
Why does god do this to people?
Supreme Leader Inko he does everything for a reason just know that
Natalie Gonzalez 😂
@@inkoofficial4752 He didn't do anything, the guy was just born with it, kid.
@@user-jg78 God created him with that condition, kid
He has really sad eyes I wanna give him a hug.
Most probably because he cant get 8 hours of sleep
Can I have a hug too ?
@@_Ambition124 Yes you can have a hug ❤ *gives a virtual hug*
The worst part is having to wake up during the night multiple times. It means this man never in his life managed to get a normal sleep cycle and probably is constantly tired
Id give up and wear adult diapers if i had to live with this
@@sshuraiiBut he also has to drink every 2 hours
I'd love to hear about sleep research done on him. I bet since this happened since he was very little, his sleep has "accommodated" and his sleep architecture is quite unique.
He could always use a catheter and iv hydration for when he sleeps
he drinks 20 liters a day of course he gonna wake up at night -.-''
Who else feels sorry for his sad face?
Sunny Shah it makes me so sad
Mr. Burnham tf
Mr. Burnham you shouldn’t be a comedian you wouldn’t survive
He looks suffering poor him i wish he finds his cure and peace
😂😂😂😂😂😂😂🙃😂🙃🙃😂😂🤣😂😂🤣😂😂😂😂😂😂😂😂😂
Imagine how much water he drinks after working out
Strranger. Mike tbh he might not be able to he might just diet bcus with his medical condition it might cause to much strain on his body
@@morgan-dl9ou use your words Shively
/drink gallon 70
Yes
69 liters
I feel bad for this guy. He seems ashamed
Hes so depressed you can see it in his face, poor guy. Just wish he can live normal life.
Ikr
You know it's fake drinking more than 6 litres of water in a day kills you, it's toxic and floods yours lungs
Deadly pancakez exactly shitz so fake
@@anonymous5728 I don't get it?
To be an ARCHITECT under this level of agony is truly an accomplishment. All the best to you Marc.
is being an ARCHITECT some great accomplishment in the face of adversity? it's not a doctor or a firefighter.
it's a decent desk job where you're never too far away from water cooler or toilet. source: am an architect and sometimes i can take a nap in the middle of my workday ffs.
not to put any shade on Marc, just your statement seems weird.
The only man in the world legally allowed to say "it's water weight"
@Smexy Smexican there are probably thousands of other people who have this condition, remember that
@Nugget yt No he didn’t. He said the only man in the world.
@@jespertan1254 you get the point
@@jespertan1254 flueknepper
Hmmm I don’t know... Nikocado Avocado is all water weight too...
He opened that garage door like he was checking in on his victims 0:21
Only 20 likes? This is 2019’s best comment.
Ricky Bachman just wait it will get more
😂
😂😂😂😂
Its funny how you even noticed that 😂
This poor man. He’s just trying to live his life. Can’t they get him an IV or something to help with his water needs? Help this poor guy!!
An IV might be more cumbersome and would still need increased amount.
I hope he doesn’t have a shortage with everyone hoarding water now...
MINIRIN
There is no IV bag big enough to keep him hydrated for 20 mins at a time.
@@protectwildlifeanimals8163 In Germany you can drink the tabwater, its perfectly fine to drink so he will be okay ^^ and we still have access to every grocery store, there is no shortage in foods or anything
this man is constantly living at 3am
😂 I feel this
Dude is Rob Thomas
lol best comment
☹️
i dont get this joke??
Every day I learn I have something new to be grateful for, something to never take for granted again.
So true!
@M Elizabeth,
*Damn, you sure are a lil’ CUTIE 😍! May I PLEASE make direct payments towards your college tuition/student loans (Soon-To-Be Dr.) 😩?*
Same.
@@glowblank17 shut up piss off please
@@glowblank17 what the actual fuck
I can’t get over the fact that he is casually drinking water out of a bowl
Why?
CrunchyEars cause it’s something that a dog would do
@@squrt7701 I sometimes do that
@@crunchy4792 it's like drinking milk out of a bowl after having your cereal. If you do that.
@@kombaun yea i do that
This really shows how lucky and blessed we all are and we should stop taking things for granted.
H and h shut up u ungrateful fuck
sure we should be grateful , but know that our problems are still valid. just because someone has it worse than us doesn’t mean we’re not allowed to struggle
Destiny Fieldhouse nah my dude , I was saying that to Gabriel
I’m evil Karen because I told this little shit “h and h” that what he is saying is good but he’s saying for likes on his comment cause he is like 8 or some shit
Gabriel Bolton can you just stfu if you thinks he’s 8 then why are you getting mad at an 8 year old over a comment
My wife has this, and she takes a prescription called DDAVP and it helps a lot, although she was never as severe as this guy. No doctors believed her growing up and we only found out after our son was born. We needed to have an emergency c-section and while she had a catheter the nurses noticed how much water she was drinking and how often she peed, so they have a specialist come in. We were told it was very rare, and then last year my brother in law also got diagnosed, so 2 in the same family. She still needs a lot of water and goes to the bathroom more than the average person but it's not affecting day to day life anymore.
This is what pisses me off. Women’s issues are almost never taken seriously by doctors unless something big happens. It’s so fucked up.
i have this condition as well!!
What this guy has is actually a different condition than your wife. If your wife is taking DDVAP, that means she likely has central or neurogenic diabetes insipidus. Her body doesnt produce ADH. She can take synthetic ADH (such as DDVAP) and she is able to be closer to baseline (some are pretty much able to be normal). The guy in the video has nephrogenic or renal diabetes insipidus, which is WAY worse. His kidneys dont respond to ADH. He cant take a synthetic hormone to manage it. He is likely taking thiazide diuretics which can partially manage the disease, but it will not be nearly as reliable as things like DDVAP for central diabetes insipidus. Not to say that your wife has it easy, but this guy's disorder is just on a different level.
I would just wear a camelpack and never take it off unless in needs to be refilled. but in all seriousness thats a bummer. makes me appreciate my healthy state
Camelbak*
@@bruhfranknstajn2316 water backpack*
@@cesarsantana7563 but he wrote the companys name wrong so i corrected him
@@bruhfranknstajn2316 I was joking lol
@@cesarsantana7563 i noticed that yeah
Omg I hope he's doing ok with the coronavirus going on
Yes he's fine. It's water he drinks not toilet paper.
Hahaha🤣😂
He got a faucet hes good
@Raw Chef yea, that's why I don't get why he has so much fucking bottled water
Marco Zorzin yea he will be fine but it’s rather the inconvenience that could stack up.
Can you imagine the burden of having to drink 20 liters a day? Damn man I feel for him.
I have no problem doing that lol, usually in winter i drink ~ 5-6 liters and at summer 10+, i never done 20 cuz i didnt feel the need but for sure i can
CAMATARU' xxl drinking more than 6 liters a day can lead to water poisoning lmao
@@kionake1 bro u sure?
@@kionake1 Only if u don't do anything in the day, but if you do heavy exercise you can pass 10+ L a day
@@camataruxxl3101 You're bsing it would flood your stomach and you would die. Imagine trying to lie about drinking loads of water? That's super pathetic
I sincerely hope this man is living his best life now.
Yeah. Wish it was beer instead of water.
I saw a comment stating he went down to 7 Liters a day with certain medication
A person who looks perfectly normal thinks of himself as disabled... blows my mind that I could pass by someone like this and never know...
@Sam Morfitt as long as they have a disabled Placard you mean thought right!
Exactly, it's so sad to think about.
i have 4 chronic illnesses and do not have a mobility aid. you only know when i faint, dislocate my shoulder, can’t hear out of my left ear... we are everywhere, sick people
I touch little b9ts yeah, it’s like when you go to the emergency and some of the ppl who look perfectly fine are incredibly sick. You never know .
Not to be pedantic but he is disabled, with the coping mechanism of the diuretics he can achieve near normal functioning levels but that doesnt change that he has a disability
he looks so sad and depressed. i feel sorry for this guy but also blessed that im healthy
that's how perspective works
Weird flex but ok
Well he’s always exhausted, that would make anyone mentally unstable
Donny Banks very weird flex
This makes me appreciate my healthy body more, and to take care of it for as long as possible.
Deathax For real though, these kinds of videos always make me realise how lucky i am to be healthy.
I’m eating KFC Godfather Meal rn bro💀
j00 Here for a good time, not a long time right? Hahaha
Mira Efron - Damn straight, tastes good af👽
j00 had 3 pieces of KFC chicken earlier today. No regrets.
This is just terribly heartbreaking. Any parent who loves their child will know the feeling of helplessness when you watch your child suffer like this. I feel bad for him but also his parents.
Dude this type of videos shows me how Ungrateful i really am.
me 2
I feel ya.
Me too
Same here
Same bro
And here i force myself to drink 2L a day
Same... I always end up drinking just 1l though🙄.
Me too
human123 same here
i pour myself maybe 2-3 glasses a day and that's more than enough... just don't feel thirsty what so ever
human123 wait is your profile picture literally with a bottle of water? 😂
My boyfriends bestfriend has the same condition. Whenever they would go places, all of his friends would bring bottles of water not for themselves, but for him.
You must be a shitty friend then
R RQ so you’re a whole shitty person then lmfao
@R RQ why are you on this planet
R RQ imagine going onto a TH-cam video about someone who has a serious health condition and saying “I do not want to associate myself with losers”
R RQ you are the loser
You can see that this condition and everything surrounding it, every aspect of his life that it impacts has been eroding away at him, but he's still managing university to become an architect, isn't giving up, and is actively looking for any and all support/insight into his condition and anything that can improve his quality of life.
A strong man, with strong character and determination that's for sure.
Hoping things and life have improved a good amount for Marc.
Good for him man. :)
Narrator: "Mark has a positive outlook"
Mark: Doesn't smile once throughout the whole video
@kalico kat hahaaha yes you are right, really idiotic comment
@kalico kat true
He's german though. He could be having the best time of his life and not have a grin on his face ever.
kalico kat true
Marck (Disch)
Lol
That has to be torture, not being able to sleep, because you have worry about being dehydrated.
You'll wake up
did i was you some where?
i think i dreamed of you lol
Your body will wake up by himself if he needs
Did you even watch the video? He has it treated now so he doesn't wake up in the night to have to drink.
Do i know you? I sear i've seen ypur profile pic somewere
Aside from all the jokes, hopefully he can find something that can help to a point where it is no longer a concern or noticeable. I hope your life gets easier and brighter Marc!
Finally a comment that isn't cancer.
Allah is The Creator of the universe
Peshwaz Waise are you sure
@@islamforamerica4885 shaggy is, idiot
He is lucky he was born in a time where he can surviv with this condition poor guy wish him all the luck
There are so many people living with so many different diseases, it makes you appreciate being healthy. It’s why I thank the universe every single morning I wake up for my health and amazing life and family I have. Poor guy.
Yes we have to be extremely thankful for our health every day. Thank you Lord 🙏🏾
He looks so sad and depressed. God bless this soul. I hope he gets help
Editing this so all the comments make no sense. Also I got bored of seeing the same comments. I got my answer I don’t care now two months after I wrote this.
They probably told him to for the documentary
Juan World Travel....... Juan a way to live eh!?
Most Europeans can speak more than one language and English is a very common language spoken in Europe. My Swedish teenage cousins can speak English at nearly native level.
Phlik look at the doctor’s wedding ring. It is on the LEFT hand. In Germany, the wedding ring is on the RIGHT hand. It could mean that the doctor is NOT based in Germany.
Tabi Jozwick no they Said the doctor was based in Berlin
He is 36?!?!
That water must be doing wonders for his skin
water actually makes you're skin smooth and healthy. I drank only water for a whole month one time and my skin was at the best condition. Still feel bad for this guy though. It's incurable and it's really sad.
@@mouses_HK REALLY OK TIME TO GET LOTS OF WATER
Edit: ye so I kinda forgot bout this comment section but I only watched hyram skin care and i have better skin
@@ManaSamaLover. lol. Caution: You will pee. a lot. Like.. a lot alot lol.
@@mouses_HK ok I'm still doing I have crappy skin but thx lol
@iTheGeek oh 😭
My friend's husband has this and passed it on to their son. He had a NG tube for water for the first two years of his life. I can't imagine how hard that is.
That's why stop making babies!😆
So he reproduced even thougj he was fully aware of his genetic defect? Thats not only irreaponsible but being a bastard aswell...
I think it's incredibly cruel to have kids when this disease can be genetic, now his son goes through the same agony.
@okaynevermind5130 I don't think I would have had kids, if I did get pg I would have genetic testing and probably only continue pregnancy if the kid did not have the condition. It's her choice of course, and as the kid grew older he needed fewer interventions. Still, I don't think it was a good idea.
He seems like a super nice guy, I hope his treatment’s going well
I hope he doesn’t accidentally drink you!
Adam Commercial 😂😂😂😂
*When they ask if he was thirsty...*
*Ma boi is THIRSTY*
dos equis commercial "stay thirsty my friend"
this guy "fuck you"
"It's the first thirstiest time of the year."
*SPRITE*
when you question to yourself what ate the comments going to be on this, ohhh probably just like oh what we take for granted kinda thing and you see this XD
Gerpsie I NEEEEEDDDD IIIIITTTTT
Drink water every 2 hours? How does he sleep?
Saltiest Salted Salty Salt that’s the problem, he barely does
@@AM09286 he has a disease duh. He had it since he was a child. It has nothing to do with no wanting to drink water.
@@komekaressme3245 nobody said it was, duh! He meant the problem was he hardly gets any sleep you idiot. I hate it when people call others out for being stupid when it's actually them being moronic and in the wrong. DUH!!
jojo jo lmao I know. I was thinking how funny it was that they responded so harshly just to not make sense 😂
The water is keeping him afloat
i live with this illness too and went undiagnosed for about 10 years. its a miracle i'm alive as i was drinking 28L water a day long term and drinking too much water can kill you. i'm so grateful to finally get diagnosed and on pathway to treatment now finally.
How do you drink 28L and not immediately think you have a problem? I call cap
@@ofir20503mental gymnastics can be quite strong :,) I say this for myself as well (not with this condition, but other things I didn’t realize was not normal)
@@ofir20503he said undiagnosed, meaning probably went to a doctor but they didn’t identify the problem, which can happen with rare diseases and disorders
@@jasperbarrett7184 No bro, he's claiming to be like that for 10 years.
This isn't 1200 BC, he's got access to the internet and doctors know better.
This has to be some kid that's just exaggerating everything.
@@ofir20503 my mother has been suffering from gut and digestive problems from over 20 years without a diagnosis and has been seeing doctors since, don’t be so skeptical for no reason, yes our medicine is better but not every doctor is an expert in everything , this is why their are 100s of different specialisations. Theres a reason some people just drop dead, doctors miss things, some things aren’t fully understood even in 21st century, some conditions are rare with next to no medical research on them. And while you may be in a country with decent medical care, the majority of the world has sub par or restrictive medical care
The only one who literally can say “The thirst is real”
bro imagine when he runs out of water he just does a spongebob and drys up😂😂
My son is in Australia. He has the same illness
@@witchwoman , do you ever get concerned about things like water toxicity/hyperhydration with him?
@@paxhumana2015 even with diuretics, he still drinks approximately 10-15 litres per day. It is a worry that he will literally drown his body with too much water. He has been admitted to hospital a few times due to very low potassium. He is on magnesium daily to try and stop the loss of minerals from his body.
I cant imagine how u sleep n how u must be exhausted due to ur condition i will pray for you bro hope u find a solution to ur problem...
Anybody else feel extremely dehydrated while watching this?
Nah I got a bottle of oj on me rn
Yeah for real man. My mouths dryer than Ghandi's feet.
Yeah bro I was chompin on a 3 day old dry burger from Applebee’s and I had to run in the kitchen and start gulping on some water
@@alred9699 Hahaha, add some sauce n all will be well.
No my homeostasis is fine
I feel sorry for him
❤❤
Me too 😢
@@beshirhasan1068 Oh yeah yeah 😥😥
@@Tourmalinexd Don't
@@dasadd6374 Oh yeah yeah 😥
He seems so sweet and sad 😔
That one teacher who would never let you drink water in class...
The true villain
He/she would be arrested for (attempted) murder xD
According to that teacher you need water just stay alive, not to thrive. Stupid teacher
we have water on our desks lol
What about the teacher that doesn’t let you go to the bathroom lol
This is really a serious matter and condition. I dont know why people are joking about him.
You already know...bc they're assholes. I have a special needs niece and I won't post a pic of her on social media bc ppl are cruel to ppl they don't understand or make them feel uncomfortable. IRL, they don't say a word. Unfortunately, the internet brings out the worse in ppl.
Immature twenty year olds :(
Brook Scott Official cause it’s obviously fake like the rest of TLC U.K. content.
Yes I have a medical issues as well. People need to be respectful. And look at them selves and Count there blessings. And most importantly be kind to others. Stay strong man 🤗🤗🤗🤗
Handsome guy
It's amazing that he's still managing to be more physically fit than most of the general population
That's because out bodies are made by 75% of water and if he is loosing it, he should be loosing weight, not gaining
If u had to carry all this water with you around, you would be ripped as well ;p
In alot of parts of the world most people are slim smh
Well soda just doesn't cut it for this guy. Plus water is super good for you.
You just gotta drink more water to be fit!
His eyes are of a hope bereft. I hope he finds happiness x
this guy hates road trips
Oh yeah yeah
Eclihpse ur channel is dead asf
Eclihpse Damn you're still relevant? Holy crap
Dani Dauti What do you expect from someone who posts garbage?
Jaydon Turner lmfao
but that shot where he downed a whole glass of water in less than a second, he learned to drink EFFICIENTLY. I wish I could drink water that fast lmao
Hannah Kate I’m pretty sure you don’t want to handle with this disorder.
@@adamothman1124 the person didn't say they wanted the disorder lmfao
If I could drink water that fast then maybe I would drink the right amount of water a day
The thing is drinking it that quickly doesn't actually quench your thirst, a deep breath between each sip is a better way to drink
My brother can drink nearly that fast, I normally take forever to drink anything.
I just want him to get a full night’s sleep
Me to
That would probably be the best feeling he ever had
I used to get up anywhere from just once, to up to 3 times a night... Now, I make it a point to just sip a bit before bed. But I DO pee water out right away and my lips and skin and everything are still so DRY. I drink every few minutes and pee just about every hour or two. I appreciate this, to have one other option for my GP to look into.
@@angelnoennig9067 which lips 👄
Maybe get him a catheter so he doesn't need to get out of bed? You can just pee and go back to sleep.
Poor guy I’m so glad that things worked out for him in the end :)
Yo imagine during a pandemic or natural disaster, when everyone bulk buys water bottles and bread,, I hope this guy always has access to what he needs
:l
Tap water with filter
Dwight, if he can’t get tap water or bottled water. He can reach out in social media to people near him and pay for some water. If that doesn’t work he can go to a drinkable fountain. If that does work it’s filtering natural water
Exactly what I was thinking, if there was a natural disaster in his area. He might be screwed
am i the only person only drinking tap water ??
my mom suffers from this disease as well. the doctors were shocked she was even alive when she got diagnosed, she was diagnosed in her 30’s. she has been getting pounding migraines and constantly has to pee for as long as i can remember. her diagnosis has helped her a lot. she takes medicine everyday that helps her body be able to process water correctly, and it has helped her so much, but of course, she always has a full glass of water with her just incase. i hope everything is going well for him!
Hope she stays well and healthy
her name or else i might accuse you of lying
nevermind i hope she feels better! i saw one of your vids and saw your ma drinking water so yea.
@it's jasmine, how does your mother not ever get things like water toxicity in her life?
What is the name of the disease?
Last year I had Lasik eye surgery and I had to put in eye drops every two hours. I can still remember how tormenting it was to not be able to get a full uninterrupted night's sleep; and it was only for TWO DAYS and I didn't even leave the bed. Can't imagine how excruciating it must be to not get a good sleep for 36 years.
I have the disorder as well, you actually get used to it the older you get because it just becomes a normal thing
My friend’s phone broke and she went 2-3 weeks without a phone and hated it, but as a kid she/everyone had no problem because they never had a phone anyways. Same thing. He doesn’t know what a full night of sleep is like so he can’t even determine what he’s missing out on
@@ashley-sv4lo yeah no. his sleep quality is really bad and he knows it's bad! his whole body feels and tells him. you may get used to being sick in a way, but that doesn't mean you don't painfully know you are.
@@XLightChanX no
This guy is a hero. I hope he knows that!
Why is he a hero?!? Makes zero sense and sounds ridiculous 😂
You know how sometimes you wake up at 3 am with the desperate need for water? Imagine that but every couple hours... Poor guy
couple of hours is too generous
more like every 45 minutes - 1 hour
That used to happen to me because I was drinking way too little water. Know I drink what I'm supposed to, and never happened again.
I get the thirst for water every 10 to 30 minutes
This is the reason I always keep a bottle of water near my bed
Havent drunk a drop of water for 25 years, it's vile
I feel bad for him, but why is he spending so much on bottled water? He should just get a high quality sink filter to save himself the huge expense.
Because it's very pure. People can get kidney stones from drinking regular water.
@@k033as9 Hence why I said to get a high quality filter. Bottled water isn't much different than tap water. Add in a nice filter, and you're getting water that's better than bottled.
@@mistamaog I think he did not understand what you said.
k033as9 Can you read?
@@ShuffleboardJerk are you sick?
plot twist
he's a fish out of water
HE IS A MERMAID!!! Or merman... whatever
Ooo good theory
So we should throw him to the sea and let him survive?
I feel terrible for laughing at this
Allah is The Creator of the universe
its really interesting to see someone else with this disorder, I got diagnosed with mine when I was 16, and its thought I had developed it around 12 due to a brain tumor. This guy isn't lying when he talks about how intense the thirst gets. I should also probably clarify, I have the somewhat easier to handle version of his condition, my kidneys themselves work fine, my brain is the issue, it doesnt produce the needed chemical , so i can take it in pill form to alleviate the affects.
Who became thirsty after watching this video?
It's Ethan hah me
Physically: a bit
Sexually: no
@@blitzmustang1588 I can change that 😘😍
Me. I just drank a 1.2 litre bottle while watching the whole video.bizarre
Yeah
Immense respect to this man for getting himself through school. Especially architecture which is an often brutally time consuming and intense discipline. He is clearly a resilient and willfull person. Hope he gets treated successfully because he has more than earned it.
Well said man. I completely agree and I feel the same way. Really hope he can live on better and greater. Prayers for him.
I'm in perfect health and still struggling in architecture school. Mad respect for this guy
I am so glad this has a happy ending!!!
I like how to drinks out of a bowl, doesn't even fuck about with a cup just goes straight to the bowl.
Rookie shit, I just gulp from my bath tub.
@@everilliem3292 🤣👏
but i do this for years without reasons :(
Not gonna lie imagine your stuck drinking water every single day non stop after a while i get sick of drinking water i always change what drinks i have on a daily basis its not always the same thing i dont know how he managed to cope with that drinking the same stuff day in/day out hourly id go crazy after 1 day not even
My brain hurt reading this
As soon as I saw the title I knew this was about diabetes Insipidus. I suffered brain damage and had a temporary case of diabetes insipidus, which was not that bad; i had to drink at least 2 gallons of water a day to stay hydrated. As my brain damage got better, the disorder went away on its own.
he has a severe, congenital case of it and i can only have respect for how he maintains a positive attitude.
He is so strong. I admire him. Hope he got well
Dian Rahayuningsih poop
Hey, a nice comment. I agree with you and thank you for being kind.
Nigga he won't, what part of "incurable" do you not understand?
@@WafflesAlwaysWin it won't always be incurable. We will discover a cure eventually.
WafflesAlwaysWin look at me haha I use the n word unnecessarily im so cool
The real question is how long is he in the bathroom
how does he sleep?
-Camie Utsushimi- this nigga🤣🤣
He should sleep on the toulet
-Camie Utsushimi- ew why?
@@abdullahfall1517 i have a similar condition. If he's like me he starts drinking immediately when he wakes up.
Reading lots of comments of people joking about his illness. I just don’t believe others misfortune and pain is funny. This is a life and death issue. My heart goes out to him.
I wouldn't mind if it was coming from the guy himself because I use humour and jokes to cope with some things I've been through, but yeah it does seem a little distasteful. Could you imagine how debilitating this sort of thing is, I struggle with a chronic condition and have to prepare for certain pains and sickness before I go anywhere, could you imagine having to carry a certain amount of water every where you go, or make sure you have a source of it all the time. It must be exhausting
@@fawnieee I hope your okay
Ugh that's the whole fucking point of comedy! Stop being so god damn sensitive. Can you imagine being miserable and people can't smile and laugh around you or with you?
@@anthonyhutchins2300 dont worry it's a young child. Most children don't understand dark humor, that's why they don't think it's funny.
@@fawnieee Heeeee 😏🤗🤔
Recently diagnosed with partial DI. This is truly hell to live through. Hope mine doesnt get that bad.
I'm so honored that I can live my live without any issues. God bless him
@Adrian Nyqvist TA06a Oh dear. What's wrong?
@@duk2k he's accidentally had pineapple pizza and life's not the same since then.
jk
@Pineapple, well techically you do have a condition we all have it. It’s called Being alive. every second you live you get closer to your inevitable death. And whatever comes in the middle of that will decide your fate. I’m assuming you’re a young teen or adult in which you won’t have any problems but when you get older you will have an unfathomable anount of health issues. So good luck and let’s hope your prophecy of good health comes true as you get older👍
@@quinnard9750 Thanks mate. Cheers!
Amen
Dont challenge him to a drinking game...
He'd be an undisputed champion
@Josh Salimpour His life cannot get any worse.
Ironically, drinking alcohol will actually make you more thirsty than you otherwise would, & i don't think he'd like to feel more thirsty than he is already...
The Unknown most 30 second pisses in an hour world record
He is buying bottled water. Thats so much money... why not drink tap water? (In Germany tap water is just as good as bottled water. )
Alex Krause he was doing both. Privacy got bottles to take on the go
Damn, he should really buy some reusable water bottles. They have em in like 1 liters and he would save so much money in the long run
I’m sure based on the severity of his condition, his water is subsidized by their health care or government program. I’m sure he is not paying out of pocket for all of the bottled water you saw.
No, the quality of tap water is better. This is probably only for the show being used ...
No it's not
I've spent time in Germany
The water is untreated and may have pathogens in it
A few of my cohorts found that out the hard way. They ended up in the hospital with dysentery. It REALLY sucked having to rely on bottled water
I have a background in biomedical laboratory technology, I had never heard of that disorder. My deepest thanks to Marc for sharing how he lives with this condition. It's always priceless when patients agree to open up like that to educate others. ❤
I’m mean his skin glowing
NAS &MISS
Yep!
Yesss
NAS &MISS your mean?
@@tyronefromprison2844 lmao how
coffee jimin no he said “ I’m mean”
I feel sorry for this guy.
Who wouldn't
I honestly couldn’t live like this. I truly rate this guy. Respect
@Naktursik T He meant to say he suffers a lot
wish him the best. i feel bad for him. im glad he actually accomplished a lot and he has a healthy complexion
that sucks, but hey, he managed to become an architect
He could've just drink holy water smh
Yea and I'm pretty sure if Ur an architect u earn a loooooooooooooooooooooooooooooooooooooooot of money
My mother lived with this, she died 17 years ago, hope this guy is handling well
I'm sorry to hear that. I hope she is resting in peace.
I hope you are okay may she rest in peace
This is so terrible!
@@Alexis-go5cd ok
@@Alexis-go5cd just delete your comment and fuck off
his skin is glowing tho
SAE RIGHTTTT
thats the first thing i noticed jskahsahhkjj
I know right he's good looking guy
Probably because he drinks water unlike most people who don't really drink that much water at all.
RIGHTTTT WOWOWWW
You can truly see the hurt in his eyes. Aquafina should donate a lifetime supply of water to him.
I would rather put in an IV drip and drag the water bag around..... 🤦🏻♀️ poor guy and he looks so nice and humble
I was gonna ask if he could use one it be easier. I use to have to drag around an IV pump for 10 months 24/7 it was giving meds to save my life I got a lot of stares and I wasnt aloud to go to school ( I was in High School at the time) so I could see why he wouldn't want to but it would be cheaper
i think i'd find peeing so much the main issue
@@nm56342 he can always use a catheter.
@J. Ellen P : Honestly, I was thinking the same thing! There’s many conditions that cause people to be attached to an IV long term. I wonder if they could do something like that just so the man can get some sleep without having to wake up to drink! I feel so bad for the man. What a horrible existence he has. 😔
Sister Spooky if he had a port/ continuous saline infusion it would be a lot easier, imo. I have to use a saline infusion once a week in order to stand up (POTS) and some people with MY condition have a continuous saline infusion.
on the bright side, his skin looks AMAZING....
Read this pimple covered people
amanita333
He protec
He attac
But most importantly, towards dehydrated people, he respec
amanita333 chill your pussy wtf is wrong with you
@amanita333 there is a silver lining behind every misfortune and mistakes except YOU
Lol
How is this man still solid.
And kind of cute you mean
Lol
German.
trust me, i really am the biggest fucking bitch in the world. This guy wakes up 20 times a night whilst i complain about it taking me a couple hours to fall asleep. inspirational.
Germans
People complain drinking 8 glasses of water a day is difficult. Then there's this man.
Poor guy😢, I feel very sorry for him and I hope a cure will be found.
Ps:He speaks English very well.
aury love vintage why wouldn’t he speak English very well?
I'm an American who has lived in Germany, 90% of Germans speak completely fluent English! 😊 it's required to learn in school when they are young
A cure isn't possible, its a genetic disorder unfortunately
Mr Smackle the cure is to get new kidneys. It says his kidneys aren’t responding to the hormone so just get new kidneys
@@Cerezo.lindsey lol
Imagine the apocalypse comes, and this guy needs shelter and you offer him some. Then you wake up and your years supply of water is gone, and he over here saying "I'm really thirsty."
Dude you made my night
Lmfaooo oh yt
This made me laugh so hard 😂
Yeah I think anyone would kill him in the first have hour for survival
😂😂😂😂 I'm crying hahahahah
- what's your skin routine? your skin is perfect
- uhm... it's complicated
“Have you heard of hydration? It’s great for your skin, you should TOTALLY try it.”
His skin does not look good. Tear troughs bad
@@tolamyb35d It's a joke dumbass
@@idek2069 Well fucktard, the joke doesn't work considering his skin is garbage
@Berzerker God Jesus... clown to the left of me. Jokers to the right
Yes! I'm so happy the treatment helped.