I Noticed Pain Around My Rib Cage - Spencer | Multiple Myeloma | The Patient Story

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  • เผยแพร่เมื่อ 31 ม.ค. 2025

ความคิดเห็น • 136

  • @ErikStone-z6m
    @ErikStone-z6m 4 หลายเดือนก่อน +87

    Praying for you. I had a similar experience except when I was admitted for pneuomonia, when I questioned the low red and white blood cell counts, low platelets, low ANC, low hemoglobin, and enlarged spleen, they shrugged it off and said my immune system was compromised because of the pneumonia. Months later after TWO follow-ups with a pulmonologist and my FP, nobody ever ordered follow-up blood tests. Three months later, I was still fatigued and called my FP and asked if it would be good standard of care to do blood tests again. He hesitated and only after I insisted, he ordered blood tests. Everything was WORSE than when I had pneumonia. 4 weeks later, I was diagnosed with hairy cell leukemia. Moral to the story- Be your own best advocate! ❤ After chemo and immunotherapy, I am now in remission.

    • @bobs1356
      @bobs1356 4 หลายเดือนก่อน

      How could they tell a tumor with just blood work without doing scans or mri?

    • @dratt5300
      @dratt5300 4 หลายเดือนก่อน +8

      Blood cancer is seen in blood tests, bone marrow biopsy and various genetic tests.

    • @ErikStone-z6m
      @ErikStone-z6m 4 หลายเดือนก่อน +7

      @bobs1356 I didn't have a tumor, I had hairy cell leukemia. The follow-up blood tests confirmed that there was likely some type of blood cancer disorder. 2 weeks later I got a bone marrow biopsy and 2 weeks after that, I had my diagnosis and started chemo 5 days later. Without the follow-up blood test that revealed low white blood cells, low red blood cells, low platelets, low hemoglobin, high mean corpusal volume, and low absolute neutrophils, then I would have gone on until I got sick again and perhaps died from infection. My immune system was toast.

    • @virginiamorales1591
      @virginiamorales1591 4 หลายเดือนก่อน

      @@ErikStone-z6m that’s great news. I agree with you 100% on being our best advocate, because only you know how you feel and that something is wrong with your body. You have to insist with your GP that you need to be checked out. I wish you the best. Sending you blessings and positive vibes.

    • @Demebeso714
      @Demebeso714 4 หลายเดือนก่อน +5

      Please continue to be your own advocate!! It has saved your life..

  • @ColleenC-n5v
    @ColleenC-n5v 5 วันที่ผ่านมา

    Thank goodness you have such a lovely, smiling partner by your side. God bless you on this sacred healing journey.✝💜✝💜✝💜✝💜✝💜✝💜✝💜✝💜✝

  • @susanshaeffer9469
    @susanshaeffer9469 4 หลายเดือนก่อน +45

    My brother, Marshall's, multiple myeloma showed up as flu-like symptoms around Thanksgiving and Christmas 1995. In January 1996, he went to the ER with chest pain and was told he was having a heart attack at age 35. Further testing revealed a dangerous level of calcium in his blood which later confirmed multiple myeloma. He started chemo right away and dealt with bone pain in his back. As the doctors were inserting his port for the 2nd round of chemo, he had a massive heart attack and passed away on the table on February 29th. Later, his autopsy revealed a completely destroyed heart and there is no way he would have survived long term. His doctors figured he probably had multiple myeloma for years but his active lifestyle masked any symptoms or indications. My surviving brother David and I still miss him terribly and our hearts are forever broken.

    • @judithschneider6202
      @judithschneider6202 4 หลายเดือนก่อน +4

      I am so sorry. 😢❤

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน +3

      we are so sorry to hear of his passing :(

    • @mombradshaw5528
      @mombradshaw5528 4 หลายเดือนก่อน +1

      My older foster/adoptive/real brother (I was admitted to UT in TN, I think..at 5 months old for severe dehydration/malnutrition and they picked me up from the hospital and had me till 3 1/2) In other words, every one of my first beautiful memories..and never a bad one with them. My father was a Dr of nuclear science and momma was a homemaker with 5 older children, almost full grown..Most of my memories were of my brother Anthony holding me on his hip in the water (we lived next to Oak Ridge TN on the Clinch River(and yes, I can recount memories from a super-young age)We were in the water constantly.. Anthony was going through medical school and working at Mr Gatties, but he always made time for me. I remember him smelling like spaghetti and pizza when he picked me up. He was diagnosed with AMLwhen he was almost done. I remember him w no hair and sitting down a lot. I remember sitting in this old exotic car w flip buttons and eating Jimminy Cricket Mint Oreos that night with my other older brothers and just remember him missing (now I know that he was likely sleeping) He went into "full" remission and started back to medical school not even three yrs after. Shortly after he finished his next to last months of residency, he fell sick and was diagnosed with it again and died very shortly after. I blame Oak Ridge and him starting back to med school finishing his residency (they stay exhausted w no sleep) He was a brief but huge figure in my life. Anthony was one of the kindest, sweetest men I have ever known. I was blessed with such a beautiful curly-headed , Italian Big brother 🌹🌄✝️ I feel for you missing your brother. I know it hurts and always will, but hopefully not as sharp as time goes on ..

    • @lorrainewilliams2549
      @lorrainewilliams2549 2 หลายเดือนก่อน

      🙏🙏🙏

  • @reh303
    @reh303 4 หลายเดือนก่อน +14

    I'm glad you made it to the transplant. My mom was diagnosed stage 3 MM in May 2021 at age 65, was *this close* to getting stem cells extracted in mid-2022 but everything suddenly went downhill, and she died at 67 in June 2023. Your age and health are on your side, I hope you stay healthy for a long time!

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน +3

      we are so sorry to hear of her passing :(

    • @kiwioffgrid2437
      @kiwioffgrid2437 17 ชั่วโมงที่ผ่านมา +1

      There is something strange about myeloma.
      I'm thinking big pharma enormous profits for treatments.
      I was diagnosed with myeloma while hospitalized with life threatening Sepsis almost 3 years ago....
      Have not had any treatment fir the myeloma but do get very sick often....
      Just waiting....

  • @Questinia1
    @Questinia1 4 หลายเดือนก่อน +10

    Thank you for an honest glimpse into what it's like. My husband was diagnosed with MM in 2021 after being followed for MGUS for several years. He remains in remission after the same protocol you've received. MM is being viewed more and more like a "manageable" disease with all the amazing progress they've made in immunotherapy interventions. People are living longer now and it's hard to say how long they'll live because, well, they're still living! More progress has been made with MM than most any other cancer so I've been told.

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน +1

      we love to hear this news!

  • @RickCT2000
    @RickCT2000 4 หลายเดือนก่อน +6

    You look sooo healthy now! Congratulations on your treatment and new found running/racing addiction!!

  • @MrZimmmy
    @MrZimmmy 4 หลายเดือนก่อน +12

    Hey Spencer, I'm a 75-year-old here in SF who’s preparing for a bone marrow biopsy next week 09/24) for the start of my journey. I want to thank you for sharing your experiences. It was uplifting to hear how well you are managing MM. I wish you all the best.

    • @avarismimi
      @avarismimi 4 หลายเดือนก่อน +3

      Hope you recover quickly & best of luck.😊

    • @MrZimmmy
      @MrZimmmy 4 หลายเดือนก่อน +3

      @@avarismimi Thank you! I had a bone marrow biopsy last week and am waiting for the results. Fingers crossed 🤞!

    • @Littlerockjw
      @Littlerockjw 3 หลายเดือนก่อน +2

      ​@@MrZimmmyhow are you now?

  • @mekiab1499
    @mekiab1499 4 หลายเดือนก่อน +5

    I'm a patient at UTSW for MS. The quality of care there is great! You're in great hands ❤

  • @virginiamorales1591
    @virginiamorales1591 4 หลายเดือนก่อน +12

    Thank goodness that you have that mindset and that your wife is your support system and there for you. You’re in a good place now and understanding that you can do it, and being in a group with your same or similar condition is helpful too. You are an amazing person and deserve to have your health and happiness back. God Bless your journey and my best wishes for you and your future. ❤🙏👏👍😊

  • @brandiroberts5765
    @brandiroberts5765 4 หลายเดือนก่อน +5

    Starting my treatment this week. I've had it for 10 years (also "too young" for it when diagnosed, but this year all of a sudden I fractured my ankle & 2 vertebrae in less than 6 months (after never breaking a bone other than nose & toes). I know my plan is a little different than yours (pill chhemo for phase 2 of 3) but watching this helps me know what to expect over the next 6-7 months. Thanks for sharing! Also in the Dallas area (south of).

  • @marimarxuach7180
    @marimarxuach7180 4 หลายเดือนก่อน +10

    Praying for you 🙏

  • @lizg1976
    @lizg1976 4 หลายเดือนก่อน +4

    Praying. You look so much younger and healthier. I hope that means your treatment is working.

    • @lizg1976
      @lizg1976 4 หลายเดือนก่อน +1

      I reply as I watch the videos hence the second comment

  • @tracywilliams61
    @tracywilliams61 4 หลายเดือนก่อน +14

    My symptoms are very similar, I was in my mid 40’s and had symptoms I thought was heartburn but like you it ended up being multiple myeloma. My treatment involved getting my levels to zero. But where my treatment differed when going into transplant. I was lucky to have an identical twin sister who stepped up and donated her stem cells 😮for which I’m truly grateful. Happy to say I’m on year 15 since my transplant. Do suffer from graft vs host making me not as flexible as I once was. I wish you well!

  • @roaminaround377
    @roaminaround377 4 หลายเดือนก่อน +4

    Bless you for sharing your journey.❤

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน

      THANK YOU for listening to his story :)

  • @laniegonewild
    @laniegonewild 3 หลายเดือนก่อน +2

    Bless you Spencer

  • @jamessistrunk2389
    @jamessistrunk2389 3 หลายเดือนก่อน +1

    Great story my man.God Bless you

  • @pennyloafer3358
    @pennyloafer3358 4 หลายเดือนก่อน +2

    What a nice man. I really enjoyed his message and hope he’ll continue to do well. I lost my aunt to MM ten years ago and I’m worried my mother has it now. Will press for more testing. Best wishes for your continued recovery!

  • @drummersagainstitk
    @drummersagainstitk 4 หลายเดือนก่อน +10

    Stay strong. We all are praying for you. God be with you. Please follow up with us.

  • @ciscokid0110
    @ciscokid0110 4 หลายเดือนก่อน +4

    Lost my dad and my aunt to MM years ago. Treatment is so much better now.

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน +1

      we are so sorry to hear this :(

    • @ciscokid0110
      @ciscokid0110 4 หลายเดือนก่อน +1

      @@ThePatientStory wishing you the best with your future and pray that it’s a healthy happy one🙏🏻

  • @gingerjoy5836
    @gingerjoy5836 4 หลายเดือนก่อน +3

    Prayers for a complete recovery🙏🏼🩵

  • @chapmanmerchant
    @chapmanmerchant 4 หลายเดือนก่อน +2

    You seem to have great famley and friends That has to be great i wish you the best down the road!! Mental is half of it! cheers

  • @carolineheffernan7368
    @carolineheffernan7368 4 หลายเดือนก่อน +5

    God Bless you!

  • @marymotherofgod4861
    @marymotherofgod4861 4 หลายเดือนก่อน +16

    Praying for you 🙏💕

    • @susanrankin1701
      @susanrankin1701 4 หลายเดือนก่อน

      @@beaulieuc8910be encouraged it worked for my son at 9 years old. They told me he was going to die. All the churches in our small town got together prayed for him and he was completely healed! That was 30 years ago. ❤

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน

      ❤❤❤

  • @lizg1976
    @lizg1976 4 หลายเดือนก่อน +3

    My brother died of Multiple Myeloma two years ago. My uncle also died of the same cancer. Prayers for you

    • @mombradshaw5528
      @mombradshaw5528 4 หลายเดือนก่อน

      🌹🫂

    • @dianaray1470
      @dianaray1470 3 หลายเดือนก่อน

      Very encouraging 🙄

    • @darlenesutton7248
      @darlenesutton7248 หลายเดือนก่อน

      Sorry for your loss please get checkups for yourself

  • @thomass2055
    @thomass2055 4 หลายเดือนก่อน +6

    I'm getting tested for myeloma now 38 yrs had symptoms of it for almost 14 yrs and now a doctor took me serious. The symptoms I've had where severe stomach pain/lower intestinal pain, nausea, vomiting, diarrhea, that lasted for months on and of 3 to 4 times a week, headaches that moved to bad migraines, symtoms of bells palsy such as facial paralysis to one or both sides of my face, kidney pain, rib pain felt stabbing and some times felt as they where bieng pulled apart, bone pain in the shins that spread, and the pain ached like growing pains, night sweats, fevers internal, and constant tiredness.

    • @thomass2055
      @thomass2055 4 หลายเดือนก่อน

      ​@beaulieuc8910 Thank You for the positive support you are giving me and thank you also for doing what you can to support others through this terrible cancer MM.

    • @firecracker8071
      @firecracker8071 4 หลายเดือนก่อน

      Oh my gosh your symptoms sound what I am going through

    • @thomass2055
      @thomass2055 4 หลายเดือนก่อน +1

      @firecracker8071 my doctor told me myeloma can have flares just like Lupus they can come and go but unlike lupus the damage is more severe than lupus it will effect the brain heart lung and other major organs. If left Undiagnosed for to long could turn deadly. I hope you ask your doctor about testing you for it I haven't gotten my results back but my doctor says he feels in his opinion that it is it.

    • @MsFibonacci1618
      @MsFibonacci1618 4 หลายเดือนก่อน

      I have Lyme and co infections, I experienced many of these symptoms you describe

    • @joyshuman2727
      @joyshuman2727 4 หลายเดือนก่อน

      @@MsFibonacci1618 I have/had lyme
      was treated with antibiotics at 60 yrs of age
      now 78
      pls watch Under Our Skin
      sent my blood to Igenex Labs in Calif for diagnosis - positive whereas
      Publc health blood tests in Ontario were always negative
      now have low white blood cells and sensation under ribs on right
      so far nothing showed in some imaging

  • @sandradavis9882
    @sandradavis9882 4 หลายเดือนก่อน +6

    You look very nice with your haircut & shave

  • @maggiegarber246
    @maggiegarber246 4 หลายเดือนก่อน +14

    I have told 3 different physicians over the last 2 years that I have a pain under my ribs. They looked at me from across the room and said that there’s nothing ( i.e. internal organs ) located in that location.

    • @MiMi-kx1vy
      @MiMi-kx1vy 4 หลายเดือนก่อน +2

      I am going through the exact same thing. I have the pain in my ribs for about 10 months. And I had some weird blood tests about 4 months ago. I am supposed to repeat them soon. I am going to set that up on Monday.

    • @iSheree
      @iSheree 4 หลายเดือนก่อน +3

      There are internal organs under the ribs though. What do they mean?

    • @kiwioffgrid2437
      @kiwioffgrid2437 17 ชั่วโมงที่ผ่านมา

      Many doctors are useless.
      Find a new one?
      I had unexplained bone fractures, thoracic back pain, uncontrollable itching, intense leg pain for a decade before being diagnosed.
      Lazy doctors taking the money who don't really care.

  • @simplypositiveme
    @simplypositiveme 4 หลายเดือนก่อน

    I'm dealing with this terrible pain in my right side and chest. I've diagnosed with smoldering multiple myeloma a year ago. I am lucky to have found the SMM early and am getting bloodwork every 3 months and am scheduled for first 1 year PET scan this month. Im nervous since the right rib pain is much more severe so I'm preparing for possibly of going into stages. I will pray for you.

  • @barbaradw9969
    @barbaradw9969 4 หลายเดือนก่อน +5

    My husband also had Multiple Myeloma. As his hair started to fall out, he shaved his head. That day, I also shaved mine. We were at the Cancer Center 3 to 5 days a week for most of the day. It was as tiring for the patient as it was for the caregiver.

  • @ginabalestrieri7547
    @ginabalestrieri7547 4 หลายเดือนก่อน +2

    Spencer, you are amazing! I love you so much!!!

  • @gracetanner4132
    @gracetanner4132 4 หลายเดือนก่อน +6

    I’ve had pain in my right ribs for a year now I went to see my doctor and he hasn’t taken me seriously my bloodwork looked normal just a little anemic. But this anxiety that something is wrong in my body has consumed me

    • @maryann823
      @maryann823 4 หลายเดือนก่อน +5

      Go back, insist on a complete work up.

    • @JOHNPT10
      @JOHNPT10 4 หลายเดือนก่อน

      Yes, health anxiety can make you feel even worse

    • @crocadoodle7101
      @crocadoodle7101 3 หลายเดือนก่อน

      Seems like an x ray would be reasonable

  • @carolyngudgel1966
    @carolyngudgel1966 4 หลายเดือนก่อน +2

    I will definitely pray for you and your family! Cancer is no joke! Did you have any symptoms before your testing? Is that why you went to doctor in the beginning? Reason I ask, I've had pain and a lump about the size of an egg that's deep down at just above my waistline. Sometimes, it's downright painful! My doctor just blows me off.

    • @kathyt2108
      @kathyt2108 4 หลายเดือนก่อน +2

      Get a second opinion. Call your insurance company first, and they might cover it.

    • @ThePatientStory
      @ThePatientStory  4 หลายเดือนก่อน

      second opinions are highly recommended!

  • @JocelynJC1913
    @JocelynJC1913 4 หลายเดือนก่อน +3

    May God heal you and restore your health 🙏 Stay strong brother. Sending lots of healing energy and love.❤

  • @jq5843
    @jq5843 4 หลายเดือนก่อน +4

    We all know why there is an explosion in cancer in young people.

  • @ssmccue
    @ssmccue 4 หลายเดือนก่อน +2

    Please research spikes in young adult cancer / nanoplastics.

  • @christinewalker5458
    @christinewalker5458 4 หลายเดือนก่อน

    🙏🏼🙏🏼🙏🏼

  • @friendlhi
    @friendlhi 2 หลายเดือนก่อน +1

    ❤🙏👍

  • @lindacampbell1559
    @lindacampbell1559 4 หลายเดือนก่อน +1

    Sending you prayers and positive thoughts ❤

  • @stevesteve1005
    @stevesteve1005 4 หลายเดือนก่อน +2

    Prayers are with you Brother. My fiancee is experiencing same thing for months. Went for biopsy two weeks ago. We get the results this morning.

  • @californiadoll6273
    @californiadoll6273 4 หลายเดือนก่อน +27

    He legit looks better AFTER cancer lmao

    • @RustyShakleford1
      @RustyShakleford1 4 หลายเดือนก่อน

      Hahaha too funny sometimes being sick gives the excuse we needed to rest in the first place

    • @lindacampbell1559
      @lindacampbell1559 4 หลายเดือนก่อน

      Not funny creep

  • @laurie9722
    @laurie9722 4 หลายเดือนก่อน +1

    You rock. I just shaved my head so it wouldn't make a mess.

  • @christinewalker5458
    @christinewalker5458 4 หลายเดือนก่อน

    I’ve been having slight pain where under my ribcage. It feels like something is not right with my stomach, liver, or pancreas? I don’t know why I’m feeling this sensation there? I’ve told the doctors, u do have stomach issues, bloating, gas, diarrhea. Been on pantoprazole for sometime now. Just got a scopic test done down into my stomach . Saw nothing. Car scan showed nothing? Am I just missing something? This can’t be normal. And waking up wet t-shirt, undergarments. Every morning.

    • @rtru9801
      @rtru9801 14 วันที่ผ่านมา

      Get an MRI

    • @rtru9801
      @rtru9801 14 วันที่ผ่านมา

      And bloodwork

  • @crocadoodle7101
    @crocadoodle7101 3 หลายเดือนก่อน +1

    I cannot understand why the initial ER doctor didn’t refer this man to the hematologist, but instead said see your primary doctor and maybe s/he will. I don’t live in USA, but still it seems like passing the buck. Is the government controlling every move the doctors make, or was this ER doctor just a little unsure? I prefer doctors that feel confident that they will get to the source of the problem for the best outcome for the patient. That’s what all of their medical training was focused on…..the best outcome for the patient!!!

    • @selecttravelvacations7472
      @selecttravelvacations7472 หลายเดือนก่อน +1

      Probably due to insurance issues.

    • @VandaPietrantonio
      @VandaPietrantonio 15 วันที่ผ่านมา +2

      In some cases the ER doctors do this but most take care of the ER problem and refer the patient back to the FD who follows the patient. The problem in CANADA many DO NOT HAVE A FAMILY DOCTOR.

  • @Sammy-il1qf
    @Sammy-il1qf 4 หลายเดือนก่อน +8

    I don't understand why people write on here 'my parent/sibling/uncle had MM and died'.
    Only positive outcomes need to be shared!

    • @24JJ821
      @24JJ821 4 หลายเดือนก่อน +5

      Why? Life is not all rainbows and butterflies.

    • @Sammy-il1qf
      @Sammy-il1qf 4 หลายเดือนก่อน +2

      @@24JJ821 What purpose does it serve to tell someone suffering from a particular kind of cancer that their relative died of that cancer within 2 years? You don't think they might not want to hear that?

    • @24JJ821
      @24JJ821 4 หลายเดือนก่อน +2

      No, I think you should tell them your relatives lived to 200 years old with that type of cancer. 😅

    • @Sammy-il1qf
      @Sammy-il1qf 4 หลายเดือนก่อน +2

      @24JJ821 Or, here's a thought, unhelpful negative stories could just be kept in one's head?
      Clearly you've never had cancer. Move along troll.

    • @24JJ821
      @24JJ821 4 หลายเดือนก่อน +1

      @@Sammy-il1qf haha, sorry for your issues. You like to project onto others lol. Please stop trolling people on here.

  • @ElizabethHurtado-py8ur
    @ElizabethHurtado-py8ur 4 หลายเดือนก่อน +2

    Hi

  • @karenhenley2195
    @karenhenley2195 4 หลายเดือนก่อน +13

    You are so handsome in this video, movie star great looking.
    Please keep your hair this length and no more beard. You can see your dimples. Don't hide that face anymore. I know this isn't about cancer, but I know more about cancer than I ever wanted to. I wanted to comment on something else.

    • @Eagle-eagle1
      @Eagle-eagle1 4 หลายเดือนก่อน +1

      Hey Karen I think you would like to get this guys number ? Let’s make this happen ! ❤

    • @karenhenley2195
      @karenhenley2195 4 หลายเดือนก่อน +2

      ​@Eagle-eagle1 That is funny. When you have cancer compliments can only make you feel better...

    • @Eagle-eagle1
      @Eagle-eagle1 4 หลายเดือนก่อน

      @@beaulieuc8910my bad guys !

    • @Eagle-eagle1
      @Eagle-eagle1 4 หลายเดือนก่อน +2

      I did not realise he was a married man !

    • @WilliamBrandon-f2m
      @WilliamBrandon-f2m 4 หลายเดือนก่อน

      I was diagnosed with multiple myeloma level 3 in June 2017. Same aggressive treatment as the Patient Story. My wife was ill with Parkinson’s and the Stem cell transplant would have involved isolating me in the hospital for its duration. My wife was dying and would not have understood what was happening, so I declined the SCT. After she passed, I was no longer medically eligible for the SCT. I am now in my second remission and do not regret not getting the transplant. No longer as ill as I was (still really dislike dexamethasone!). The problem with mm is the uncertainty. I am 78 and cancer or not I am not going to get another 78 years. I am grateful for the 50 years my wife and I had together. For those who are recently diagnosed, remember that the treatments are getting much better. For the rest, remember to pray, hope, and don’t worry.

  • @PollyWood67
    @PollyWood67 หลายเดือนก่อน

    I'm sorry that you have cancer but, from what I've read, newer treatments are very promising for a cure for MM in the near future.

  • @allanjoyce5265
    @allanjoyce5265 หลายเดือนก่อน

    This has nothing to do with the cancer. Why do you have a beard? You’re a good looking man shaved.