Beyond the Fear: A Documentary about Rat Lungworm Disease
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- เผยแพร่เมื่อ 26 พ.ค. 2016
- "Beyond the Fear" is a documentary which explores part of the mystery behind "Rat Lungworm Disease," specifically on the Big Island of Hawai'i. We follow three characters and come to understand more of this puzzling illness through their experience. In an landscape of questions and emotions, we see the strength that these individuals have gained despite their suffering. A documentary film by Maria Karin Walczuk. Music by Rubyanna Moon plus Nahko Bear & Medicine for the People. Sign the petition for action now! www.thepetitionsite.com/529/19...
This is totally new to me and shocking. Prayers for everyone affected by this disease. Thank you to the researchers and the makers of this film.
I read about this just recently and evidently it's becoming more common on the US mainland.
I read about the case of a young child in Australia a few years back who became very ill after playing with snails- but not sure if it was rat lungworm disease of not.
Thank you Paula B. I agree, it is shocking. Let´s keep raising awareness so that it becomes less shocking and less mysterious. We need to keep the discussion alive, mahalo xx
@@mindrolling24 > The young man in Australia was dared to eat a slug. Sadly, he recently died: www.news.com.au/lifestyle/health/health-problems/sydney-man-who-contracted-rat-lungworm-after-eating-slug-dies/news-story/08b0e700a8d6d6c6709d2dd92dfeaa8f
I want to Thank you, Maria for all of your years of hard work and dedication to me, my loved ones and all the other survivors of this mysterious and deadly disease. We truely appreciate everything you've achieved.❤
Since Day 1, I can only repeat how impressed I am with your strength, intelligence and grace. Charlotte, with this film you have helped inspire me to continue onward - especially through the hard days. It has been my privilege to share your story, and please know that so many are in awe of you, your tenacity and spirit. Much aloha xx
Charlotte, you are beautiful from the outside down into the depths of your soul. When I was diagnosed with a non-curable disease that brought on excruciating pain and mental turmoil that will last until I die, I concluded that suicide was my best way out of what I thought was a hopeless condition. One night I picked up my loaded 38-caliber handgun and was going to go outside and end it all. I spent 2 hours writing a suicide note; but by the time I had finished with the note, my overwhelming urge to take my life had subsided. I called the suicide prevention hotline and they arranged for me to spend 9 days in the mental health wing of a VA hospital. I found new hope and strength there. Since my release, I have sought and found continued strength by searching for others who have been through their own crisis and who came through with the strength to carry on. TH-cam has many stories of people who never gave into hopelessness. You may never know how your experience has fueled hope in those struggling to hang onto life. I hope you beat the odds and recover completely.
Dwight turner: what you have shared is such a very raw & truthful individual experience which certainly I could relate to....... Your very gifted at expressing your true self and who you really are....... Please try to keep writing because I feel your life and what your experiences are and who you are could touch so very many people...... Much love and light to you..... From my life's eyes it appears to be some very, very special, creative people who faces such adversities and I would like to believe this world so needs to hear these very real stories to teach and educate others leaving a very special footprint in this mysterious, wonderful, crazy and cruel world we all share TOGETHER ......LOVE TO ALL (the gal from oz)
To dear Charlotte Harris: a message for you from me not far away ;) please know I wrote it with love and much respect to you....... Love and light forever (fee the gal from oz)
Charlotte Harris i dnt understand what it is though
I never heard of this! Thank you for the information! Very scary! I feel for everyone in this video. I’m so sorry that you have to go through this. By telling your story you are making people aware! Thank you all so much for sharing! I’m sorry for your loss. May god be with you all!
Parasites are a big problem the AMA refuses to address. I had asthma all my life and was assigned inhalers or anti biotics. Humans can also create conjested heart failure. We know that animals have heart worms, right? They dont want to treat people for parasites. We know that our animals need treatments regularly. Why not people? They dont want people to live longer than 70. Our corporate food supply is slightely poison. It is against the law to kill you, but it is lawful to slowly kill you over a period of time. The VA Clinics dont want to properly identify illnesses or cure us of anything. The best thing we can do for ourselves is to grpund our bodies to the earth. (EARTHING VIDEOS)! THAT WILL CLEAN OUT YOUR BLOOD VIENS. Separates your blood platelets to not stick together. Lowers blood thickness and pressure. Dont drink soda pops or sugar. Honor God and get out of Babylon !
Thanks for this information I've never heard of this. God bless you.
Suddenly I don't want to eat salad EVER again!
I don't even want to visit Hawaii!!!!!
That makes 2 of us. Glad I'll never get to hawaii.
Yeah makes me want to puke..
This is an amazing and powerful story about a dark secret Hawaii has been keeping. Mahalo for shedding the light long deserved.
Florida is also affected now.
Robert Gardea I contracted it in the Caribbean
There is NO dark SECRET. This stuff is constantly in the news here and many forums are held to educate the public.
It seems everything is a conspiracy to some people.
My friend Ken Severson has it now..Please say a prayer for him !!
This documentary had the potential to really educate people about this disease but it fell pretty short. More science, and pathophysiology and a lot less of random girl dancing around in a field.
Agreed
How come there was never any discussion about the long-term symptoms & consequences of Rat Lungworm Disease...We hear about some of the common initial symptoms, & eventual diagnosis..Then what??? That's just the *beginning* & not the end...What can patients expect about the quality of their future lives...How are they suffering & why??? My heart really squeezes with emotion for these individuals & everyone ultimately effected...
poppykok5 I contracted rat-lungworm disease in early 2006 after a trip to the Caribbean. Symptoms developed about a week after I returned to my home in Canada. I was misdiagnosed for about three weeks; the doctors were convinced my headaches were migraines and would send me home with opioids. It was a nightmare. The pain was excruciating and I seriously believed I was dying and at one point I begged to die. I was finally diagnosed with rat-lungworm, and have recovered...not completely, but mostly. I have permanent nerve damage on my left side (side of my face, neck and lower arm), after 12 years, I don’t anticipate the nerves regenerating. Although my cognitive impairments have improved, my working memory has suffered greatly, and it is still often difficult to find words in conversation. It’s like early symptoms of dementia, which is terrifying to me. I guess I am one of the lucky ones, as some of the people in this video are much worse off than I am. The face that this disease has moved into the southern US and moving north is very disconcerting. I hope the scientific/medical community continues to study and learn about this disease to prevent anyone else from contracting rat-lungworm. I hope this info answers some of your questions :-)
The Rugby player who ate a slug (on a dare) and contracted Rat Lungworm has passed away: au.news.yahoo.com/man-became-paraplegic-swallowing-garden-slug-dies-aged-28-040955813.html
poppykok5 As I understand the message presented, they need support for research and development. Then there will be answers to those question, hopefully. A vaccine to prevent, would be ideal!
I am so moved and impressed by this touching documentary. Yes, I see the disease is devastating and avoidable, but what I really take away from the experience is their personalities, spirit and resilience. It was so unusual to see how they processed the illness and coped. Maria, you did a great job in creating a gestalt documentary. Hats off to you!
We were one of those families. No confirmed diagnosis but nerve pain, burning skin pain, meningitis - pounding headaches. My 11 year old son was ill for 3 months and in bed for 2 of those months. He was then depressed and was afraid to go outside for fear of dying. Kay was an awesome source of information and support. I was only slightly ill and my boyfriend was in the hospital for 1 week and ill for about 6 weeks. We all are still recovering. We are at about 90-95% healed. Getting our stamina back and still have some sensitive areas on our bodies. I was educated about this disease. I washed my produce and checked each leaf for slim and/or slugs. PREVENTION is the key. I now buy only hydroponic or California greens.
Rachelle Abel I just stumbled upon this disease on TH-cam. I lived in California about 14 years, now back in Minnesota.
California has a huge snail and slug problem,
I wonder if anyone is doing any testing?
Aloha Rachelle Abel, I am very sorry to hear that your family also suffered this terrible experience. Thank you so much for sharing your thoughts and time. Very glad to hear how Kay has been helpful - she is truly an amazing wonder woman. And you are all very brave. Much aloha xx
Aloha Herbielina. This is the latest news on the UH College of Pharmacy and their efforts in fighting rat lungworm disease: www.hawaii.edu/news/2017/05/08/uh-fights-rat-lungworm/ Mahalo for your thoughts, it is important to have a discussion going. Best xx
Rachelle Abel this is y i dnt eat fish nor sea creators
My friend was just released from hospital in Canada with a "lung infection of unknown origin".
It did a number on his diabetes, he should be blind or brain dead from a blood sugar of 66, and he was 113 lbs when he was admitted.
Some of his symptoms were nerve pain in his feet and legs, sudden sickening headaches and a sensation like he was being burned by cigarettes. I'd imagine those might also be diabetes neuropathy pain, but the doctors never figured out what the infection was.
I feel like I learned the emotions that people with this disease go through, but nothing about what the actual disease is. I wish more time had been spent on their symptoms
Exactly. There is not a lot about the pathophysiology of the disease and if there is a cure on the horizon. Disappointed in this documentary.
@Robert Gardea You seem like a nice guy calling people stupid? Bet your mom is proud of her prick son..
Got tears in my eyes watching this, especially for Graham McCumber who has been hit so hard. Folks so vibrant having been struck so viciously, fortunately it appears that it is possible to regain some of their original vibrancy. I lived in Kihei, Maui back in the late 80s and didn't have to worry about this disease. It is tragic to think that folks living and visiting the islands now have to be extra vigilant about avoiding potential exposure to rat lungworm disease vectors. Thankfully folks like yourselves are spreading the word and informing the public about these dangers to help others avoid befalling such a life shattering disease. Thank you.
Worldscott: WELL SAID MATE health love and light to you and to ALL (gal from oz)
A very informative film . Also heart breaking to see those who suffer from it . I visit the Big Island yearly and the reality of this horrible disease is always on my mind . Mahalo for creating more of an awareness and doing so so beautifully .
Mahalo Linda Wilcox, you are very kind. Here is the latest news: www.hawaii.edu/news/2017/05/08/uh-fights-rat-lungworm/ Mahalo for your time, please share if you get the chance. Aloha xx
This is so scary I can't begin to imagine what they must have went through and apparently still going through! I have seen on the show The monster's inside me and a 17 year old girl went on a senior trip and contracted it while eating a salad that had not been cleaned properly and she almost died and suffered long-term effects of this condition which is so sad..its horrible and there should be more awareness of this condition/infection! Thank you so much for sharing this story!
Hat"s off to the f/m research student and her incredible dedication, time and relentless effort in documentation for every med. professional, future student, victim of the disease...
We salute you!
And my deepest empathy is alive for the suffering and, my energy expanded for your recovery. Thank you for your bravery and strength in coming forward to educate us all on your experience. Sending love...
Wow, Maria! I never knew of this horrible disease. I think it deserves a lot of education and research. Despite the gravity of this disabling disease, you've treated the subject and people affected by it sensitively, and made a beautiful film to help raise awareness. Thank you.
Grrrr this is why man needs to stop introducing non native animals to areas where they don't belong!
I pray for you all
GOD Bless and restore your health
sending hugs
This is so beautifully done, Mahalo to all. It'd be wonderful if somehow an eight to ten minute version could be cut and this could be shown as a preview in all the local cinema's around Hawaii-nei.
Mahalo Hualani, that is a wonderful idea, that makes sense. This version is currently being shown on some tv networks within Hawaii-nei. Aloha xx
Feel like I have more questions now.... I want more information
live in washington state and we have an abundance of slugs and snails all over. I have never heard of this. We grow a lot of agriculture too..a lot of lettuce and other stuff
This is not the first time a naturopath has provided the information that "doctors" whom are deemed qualified and capable of providing but are deficient in their knowledge .
Aloha just watched the film, amazing met you and your father in the gallery few weeks back, could I share this on my Facebook please ?
Thank you Tere Leo for sharing. We appreciate your time. By all means please help bring the word about. Here is the latest news: www.hawaii.edu/news/2017/05/08/uh-fights-rat-lungworm/
Not visiting Hawaii again
Interesting, great to raise awareness. I wish more medical info was included; i see diagnoses is difficult; but I'd like to know how they were diagnosed and what treatment was done? I feel like I've learned more medically abt rat lung parasite from the cheesy tv show 'monsters inside me'. This really showed the human side which is important.
WOW, I had no idea about this disease. Definitely be more vigilant in really checking produce in general and washing more.
Is there a risk of fruits and vegetable contamination in other parts of the US? Do major grocery store chains get any of their produce from high risk areas of Hawaii?
THANKS, ALL SCHOOL KIDS MUST SEE SO THEY PROTECT THEM.THIS IS SERIOUS MATTER.
They are working toward getting support to study the disease in more depth. Meanwhile, it’s beautifully done, as is everything Hawaiian. God be with those who have been effected. May government offer support to study and produce a prevention!
💔🙏❤️
Alot like Lyme. .sad... don't take your own life eternity is forever. God created you and he will take you when he wants to. Honor him even through the pain here on Earth do it right and you have complete peace in heaven forever
Viva los pepes Right on!
I was thinking the same bc i have it but didn't want to make it about me but it's more about the huge secrecy and non treatment with the refusal to acknowledge chronic lyme.
Amen I agree totally.
Why doesn't God ever make himself known? Why don't we ever see anything?
Interesting concept about a god. But thankfully one I have no logical reason to put any stock in.
Unfortunately this was not very informative, what are all the possible symptoms? Is there a treatment if so what is it? Is there a way to prevent it? Why isn't there more info out there?
Thanks for bringing awareness to my family about this disease.
Thanks and good luck!
Another important thing along side the slug jug: RAT BUCKETS! There are several tutorials on how to make them on youtube. Perhaps it's not the most humane option, but it's cheap, efficient, and when you have a vector this dangerous the only option is to eliminate the threat.
Stay safe and healthy everyone! Prayers to those affected. ❤ This was a beautiful film.
What is Rat Ringworm?
Note to self: Dont eat salad if you ever visit Hawaii.
More people need to see this
Oh my goodness, my heart.
Thank you for introducing me to this disease. Hope for a cure.
Thankyou for your informative upload :)
Now I’m afraid to garden or eat produce, I’ve seen inchworms on my kale 🥬 but I took it off and let it crawl on my arm for a photo shoot. This is so scary, don’t we get produce from Hawaii in the states. Or am I over thinking this?
Does anybody know the name of the song that plays in the beginning
No more salad for me,now that iv'e seen this.
I Never heard of this before wow
I. Wanabango me neither! Is this just from over sea's or is it in America also".? This is scary
What about the worm medicine for dogs it apparently has an affinity for human lungs and is touted as a cure for lung cancer could that work on rat lung worm
Who do I contact to discuss further.
I have been working on a farm in Waimanalo Hawaii, island of Oahu and 7 of our rabbits have died a violent death in the last month.
F
I have video of a rat going through this (I think) craziest thing I've ever seen..
I lost the narration from about minute 7 to 8. I could see the video and hear background music, but no words ... may be fixable, so just wanted to mention it!
I'm there and not getting narration either.
Ratlungworm parasite is in the ecosystems of many warm areas of the US, such as Florida, Ca, and New orleans
Always wanted to go to Hawaii, now not so sure. What are percentages?
I lived in Hawaii for some time. You're fine. Wash your vegetables and fruits if you go there.
They literally have radio commercials on Rat Lung Worm. Wash your lettuce.
How many times do these emergency room doctors misdiagnose their patients, it is their RESPONSIBILITY too know what health issues they may be presented with. I just had too grimace when i heard that one person was diagnosed by a naturopath after been told by the doctor they had a bad flu . Come on Docs , get with it .
Wow this lettuce is beautiful.
Although this is focused on the Hawaiian islands, there are hints in the video that these worms are widely spread across the tropics.
They are spreading North in the US also
What's the treatment for this
Infection
The young man that was dared to eat a slug (and he did it) suffered terribly and has just passed away. Here's his story: www.news.com.au/lifestyle/health/health-problems/sydney-man-who-contracted-rat-lungworm-after-eating-slug-dies/news-story/08b0e700a8d6d6c6709d2dd92dfeaa8f
I had been watching this poor Sydney boy from NZ but fortunately not a lot of NZ slug/snails infected.
Am also wondering if soaking produce in Apple Vider Vinegar or a salt and water solution would get rid of the worms/eggs...
Would hydroponics help?
So will this effect ducks and chickens too? (Farm animals?)
Off topic but if someone can let me know the song around 22:00-23:00 that’d be great thanks
It’s nahko and medicine for the people - aloha ke akua if anyone was wondering
Ive never heard of this before..this sounds like hell! 😵
I have also never fed my child raw local produce and have no idea how she got it. Doctors sent her out of the hospital both times we had confirmed cases and if we ever have any symptoms anymore they refuse to do any labs to indicate it because of how they are colluding with the DOH to keep confirmed cases down. I'm so upset about the research lab closing here in Hawaii, it seems totally ludacris
Ok . I’m aware. Any follow up on how the average person can guard against this?! It feel funny saying I enjoyed this but it was so well done!
Wash your produce.
Hilo medical center needs sooooo much help so we need better doctors and nurses there if anything’s gonna get better
To beautiful Charlotte, I am so sorry this has happened to you! I really am!! However Hun with the energy you have left & that beautiful soul you clearly have (as do all of these people afflicted) maybe with your teaching skills? Maybe with this adversity, there might be a way you can spread awareness Hun?? I know this very real documentry opened my eyes........ I think a foundation called 'charlotte's web foundation' might be a calling Hun (just a suggestion) you may not beagle to strike up the strength, however when I saw you I really felt you could be 'that' everlasting face and voice to educate schools, farmers, wherever it may take you..... A big ask, believe me with my story I can say I have an idea on how much of an ask this would be....... Much love to ALL OF YOU to your families, friends to ALL inflicted by this cruel parasite!! My heart goes out to you all and to this amazing, curious & confusing world we live in.... Much light (fee the gal from oz)
Ima move to Antarctica after this! Screw warm weather
The theme song was enough to make me find something else to watch.
Amen to that. It was fucking annoying.
lol
UglyFuckling thats and that woman twatting about in a field
UglyFuckling yup
It's over at 01:46.
Who’d want to live in Hawaii if you get this?
Why I stress wash vegetables properly.
MiQuel M. Samuels I wonder if this is in America?
I really like that song and visuals of the intro. Makes me want to get up from here and just move to music....which is healing over all...
I can sympathize with the sufferers with that disease, but whomever is 'singing' that hideous intro song should be behind bars.
Lee Larson Umm yeah.
I thought something was wrong with my device or there was some defect in the initial sound production.
Hoping for a speedy recovery for all these unfortunate people!
She needs to be hanged in public and her vocal cords placed in a dish for all to see.. 😁😁😁🏃🏃🏃🏃🏃🐙🐙
Lee Larson I disagree. Folk music is subjective I think. I enjoyed the song.
So agree. That music is awful.
What about escargot served in fine restaurants and cruise ships?
They have just stopped research for ratlung worm here in Hawaii. My daughter has had 2 confirmed cases this past year. This is not the only travesty in dealing with this growing threat in our ecosystem.
Why have they stopped???
@@RowenX-jg9xw because they are actively covering it up
I have a video of a rat going through what looks like this..
The world is as dangerous as it is beautiful
I'm absolutely shocked to become aware of this disease! 😪
I am genuinely wondering if Ivermectin would be helpful in treating/preventing this...if anybody still believes it's "horse medicine" then please do your own research and talk to real people who has found great success with it...
Love and prayers from Sunny South Africa 🙏💗
I think the bendazoles are better for this. Ivermectin is excellent for the spirochete types tho
WHAT IS THE NAME OF HELPING MEDICINE ?????????
They think it originated in coastal southern China & spread around the Pacific rim with the large rate of shipping in the late 40’s when WWII. Well that’s what I read
My sister has a pet rat for a pet then I find this lol.
What is the matter with people. Nothing wrong with that intro song.
What did he say at 20:59?
"What we can so easily see it as, today"
food grade diatomaceous earth is good for keeping your insides clean
Mainstream/traditional western medicine, at its best, does a lot of good. But things like this show up its limitations. It is disappointing how often mainstream medicine is the last, not the first, to recognize new or emergent diseases. In Canada, mainstream medicine denied for years the presence, and even in some cases the reality, of Lyme disease. Now suddenly they are issuing warnings about its presence far into Canadian territory, as though this happened overnight. This is an example of mainstream medicine's sometimes dogmatic, stubbornly lazy thinking, and it must change or we are all at great risk.
i mean there are ways to prevent from eating slug crap, you can steep your fresh produce in boiling water for a couple seconds and any water thats used to drink or brush your teeth make sure to boil that tap water. but i guess eating out is out of the question.
A similar situation, lyme!
Strap in!
Not enough imformation, only helplessness and sadness.
Bob Roberts brother
Quite informative vid. Thank you
the first 2-minutes are a bit indulgent
I thought just animals got this.
Has anyone tried MMS therapy (sodium chlorite)?
kiyoshi senaga
DON’T do mms please. Nobody should do mms.
Please just call it what it really is: Bleach
Yes this helps kill the parasite and maybe with oxidation of the cells but isn't known to repair the damaged neurology or help with the inflammation
WHAT I NTHE FUCK AM I WATChING?
This is very sad and its not to late for alot of folks so yeah mushroom coffee Chaga tea I live in California and there alo of slugs and product so I had a few septum and drink the tea when I can people have in a pill form Chaga antioxidant DNA SUPPORT VITAMIN. I only pray I know now what I could have known then. And maybe my PARENTS would have a better life. God Bless you all. My father suffered so much.
Don't eat snails , clean foods , that snails/ slugs go on
Statistics?
For Pete's sake ( I wonder who he was !), why waste 30min when all the facts could easilly and more clearly be presented in a max of 10min !
This is the most non-informative, non-educational documentary I think I've ever seen!!!!! And it's supposed to be informative and educational which is the irony of it!
CHAGA tea
Not a great doco. So many unanswered questions.
Unfortunately these things are going to happen more and more since are fruits and vegetables grown in other countries and imported to the US.
I live in puna. This film is very well done visually but I found it frustratingly lacking on actionable information. I still don't understand what the woman in the thumbnail is suffering from and will supposedly be suffering from for the rest of her life? The filmmaker criticizes the lack of information then gives very little information on prevention or treatment; or where to find a trusted up-to-date source of information.
Hi Dylan,
Charlotte Harris is also suffering from Rat Lungworm disease. Unfortunately, there is no diagnostic tool yet available and certainly a lack of treatment for this parasitic form of meningititis. Creating a discussion is important because many people are suffering with Rat Lungworm, as Charlotte and my father. Research both at UH Manoa and UH Hilo is ongoing, but funding remains a struggle for various reasons - including because this disease is considered to be less significant. I hope my film illustrates that there continues to be a strong need for further research.
With what knowledge we have at this point, being cautious of what we eat (and perhaps drink) remains our best strength. Here is some more information pharmacy.uhh.hawaii.edu/rlw/
You are misinforming people, All research shows that she should be free of the parasite the sad truth is she is most likely suffering permanent neurological damage, something we are a long ways away from being able to help with medically. The actual parasite has been dead and disintegrated ages ago, she is not living with the parasite actively as the video and you seem to be implying
Hi mntnrder. My intention is not to inform my audience that the parasite still exists within these individuals bodies - I agree with you. The sad truth is that indeed these individuals continue to suffer the lingering sometimes severe damages long after the parasites have died. Mahalo for your time.
The young lady is confused about her medical status, all research shows that she should be free of the parasite the sad truth is she is most likely suffering permanent neurological damage, something we are a long ways away from being able to help with medically. The actual parasite has been dead and disintegrated ages ago, she is not living with the parasite actively as the video seems to imply-
Should of called it brain worm .!