You are young, and I am old (turned 69 a couple of days ago), but I share many of your experiences. In my case, I have a partial walking disability (wheelchair access can be problematical, even in so-called handicapped access restrooms) and also need 24/7 oxygen. At my level of O2 needs, the bulky O2 bottles last just over an hour each, and the portable concentrator I have will run 1.5 hours on its battery unless I can keep it plugged in. I can't do heat and I can't do cold because of my COPD issues. So anyway, I 100% get what you're saying in this video, and yes, it is a bummer, big time. BIIIIIG time. We try to have a good attitude, but it hurts. Thank you for spreading awareness. It is important for all of us to know we aren't alone. (But I wish I had a Harlow!!)
I so feel for you. I am going through similar issues but with different health issues. I have stage 3 untreatable ovarian cancer and the treatment I had caused permanent chronic pain in my chest. So between the pain and the possible progression of my cancer ( been having symptoms the past few months that lean towards progression of the disease), I cant do very much. Today I forced myself to enjoy an hour with my daughter on a nature hike. She is a amature photographer, so she was able to take amazing pictures with her new camera. But as soon as I got home, in bed I have been. I am nauseous,light headed and in pain. Anyway, I hope you get to enjoy a little more of your family vacay. Thank you for sharing your adventures
I'm so sorry you're struggling with Ovarian cancer. My mom had that and it was so hard to watch her suffer from all of the symptoms. Sending so much healing energy your way. I'm glad you have your daughter nearby.
Jaquie, it is so unselfish of you to encourage the family to go and do activities that you are unable to participate in. They are also so understanding of the limitations that you have due to your chronic illnesses. You & Judd both have very loving families!! 🤗❤️
It does my heart good to see you smiling and laughing. You have had such a rough year you deserve some happiness. Bless Judd and your family for being there for you and you being there for them.
So many times I have felt alone or left out not because of my family but because of my diagnosis and I would say no to drives and a lot of things because I couldn't do it. Well my family thought I didn't want to be around them and I felt like I would be a burden because they would have to alter their plans for me so I would just say no so they could have fun and then felt left out. We had a huge needed fight and now we understand each other better. Like they will go for a drive or jeeping then come back and we will go for dessert. I still struggle with feeling like a burden sometimes or wishing I could do more but the support of family, friends and coworkers and other career patients saying your not alone helps so much and I'm very grateful.
You are a warrior, Jaquie! Chronic illness definitely adds an extra level of stress, even on vacation. It’s important to know your limitations and plan accordingly
So true! Knowing our limits and adhering to them makes us smart, not weak. It is the right thing to do. (: (Even though it may not be what we WANT to do, lol)
What a wonderful weekend you had with your family. I have to pass on a lot of outings as well. (Chronic pain since I was 14...now I'm 58, so it's been a long time. Also just dx with chronic leukemia) so I know how you feel. It does however help to have a supportive family so you don't really feel like you are missing out. Keep up with the positive attitude Jacq! You inspire us to do the same!
It's okay to be frustrated about your health Jaq! You cant control it and your illnesses but you can do as much as you can when you can! I love your outlook on this vacation. I hope your pain gets better tonight
I watched this video before my vacation last week and it helped me feel less left out when my sisters and cousin were enjoying all the different roller coasters I couldn’t do and enjoying good dinners I wasn’t able to eat. Thanks your videos have helped me so much. Your videos where you talk about how much your infusions help your POTS helped me talk to my doctor about doing infusions which have really helped my symptoms thanks
Harlow plead the 5th! I think she was picking up after Judd & you called her to come to you in the middle of the cleaning up. I find it hard to believe that she was being mischievous.🐕
Chronically Jaquie I have a dog that is always accused of taking socks. I don't believe it. I think my husband throws them under our bed & blames the dog. Same thing with paper I will never believe it's my dog. It has to be my husband shredding it into tiny pieces. My puppy would never..🐕🙄
I absolutely love how honest you are on this chanel! As someone who doesn’t have any disabilities, I find it important to learn as much as I can on conditions like yours and disabilities in general, to understand your reality better. And also maybe educate people at the best of my abilities if I ever get the opportunity! I’m currently still in school and find that people can be quite ignorant and even mean (On purpose or not) concerning that subject so if content like yours could reach the youth and have a snowball effect on as many people as it can, then I will gladly contribute! Of course you shouldn’t share anything that your are not confortable sharing but just know that I think you are doing a lot of good to this world! Lots of love💖💖
I understand what you are going through I have a chronic illness but like you say all the time keep on going forward. You have a great attitude and yes having faith in God helps a lot. Have a great time with your family and many blessings to you and your family 💗
Thanks for your honesty!! You have great perspective!! Glad you were able to enjoy your family and have a couple outings, as well as eat some! Keep moving forward!😎❤️
Jacquie, I can so relate to not being able to do everything others can do. The challenge for me is that I don't have any family of my own - just my husband's family and both my husband and mother in law seem to have a challenge understanding and accepting what I'm going through. It's beautiful that Judd is so supportive. My husband has a hard time supporting me because he gets overwhelmed with my health stuff.Have you ever thought of creating a facebook group for people with chronic health issues? Although, I vaguely remember you saying you don't have facebook...
I understand how you feel. My husband and I just got back from a trip to Ohio (a 6 hour car ride for us) and we we're planning to go to Michigan to see his friend, but it would be an extra 3 and 1/2 hours for us each way so it just wasn't gonna happen. But we spent a lot of time with his family so it was still a nice trip.
I share the same experiences regarding my health. Went to San Francisco to visit family and had a health attack. I was shaking, dizzy and in lots of pain after a boat ride. I am now wondering if my Dysautonomia and my Central Sensitization Syndrome we’re acting up from the boat ride. It makes sense. We also had a day at the giant redwoods and the path was very bumpy in my wheelchair. Afterwards I felt like I ran miles.
This will be me in November, my mom's side of the family comes down here to Florida to either marco Island or cape coral area and rhey go to the beach daily and I look like I am someone who picks veggies in a field with myself covered up due lupus and mcad and everything that is commorbid rash from lupus plus rashes from the sun and cat do the heat..ugh
Harlow is so cute and funny! I saw your striped duck on the dashboard of your vehicle. :) Judd's sister looks a lot like him. Jaquie, your ice cream come looked delicious.
It would be so nice if we could have magic wand days! A day with out medical or physical problems so we could do what we like! Oh well we take what we are handed! Harlow is such a clown!
Yep. Every time I Vacation I always end up with a bad flare. I mean bad 😞 Before you addressed your feelings I knew something was up. I love how positive you are. And seeing my family upset with my condition makes things worst. I love being home! So since I spend the majority in home I like to decorate ( if I don't feel fatigue 😒) oh boy.
Thank you so much for sharing this I enjoyed watching it because I too have a chronic illness I have done the IVIG immunoglobulin infusions. They're still need it but they're too expensive now. Pain management is something I deal with all the time and it's amazing how I cannot find adequate help my central line has been out now for about 3 years I did three years of IV antibiotics cuz I have chronic lyme disease and it affects me terribly neurologically. My question is what do you do when you don't have any support. You don't do things with your family. And people don't check on you anymore. I feel so lost sometimes. I feel like I'm so sick and tired of being sick and tired. I didn't fill out an application or go for an interview and tell them I was jumping with joy please let me have neuro Lyme disease I wouldn't wish it on my worst enemy. I was diagnosed in 09 and if it wasn't for my best friend who was my caretaker for about 11 years thank God for her I would not be here. However September 20th 2016 she had a massive heart attack and passed away it devastated me and I've had no help since then. My lyme is getting worse and I'm terribly financially bankrupt from all the treatments and things I have done to try to get better. I'm at this point than I am no longer looking for healing or the solution I'm just trying to deal with the symptoms the best that I can but I don't know how much longer I can. My kids don't live very far from me they don't come by and see me or check on me I feel so lonely sometimes and I don't have a support I feel like the single mom who's broke has a chronic illness like I have leprosy or something I don't know
I am pretty sure that ice cream place is the one that we walk to right near my parent's vacation villa! If so, I'm sad I'm not there, I would have loved to meet you. I'm not there again until October
As someone with issues as well. If she does go to an indoor pool they have to make sure it's super well ventilated first. Between the chlorine and humidity, it could really rock her asthma
Ouchie ,Judd hope it doesn't hurt too much! Harlow was just picking up after her dad😋 I can't even do the elliptical machine let alone a boat😷. Well, the positive is you can properly rest and enjoy dinner and your night out.
Hey, I am heat intolerant and cold intolerant. Wondering why you don't have a cooling vest. I have a phase cool vest that has inserts in it that stay at 60 degrees. So I can stay cool and not get too cold. I know you tried the cooling towels and those didn't help, didn't help me either. I still have things I can't do but the vest has opened a lot of things up for me.
Saw my first pain specialist today to get a referral to a physical therapist and the doctor made me feel like a piece of crap. She was like interrogating me like she didn't believe me and I was wasting her time. Who else has experienced that? Made me feel really awful. ☹☹☹
I'm sorry :( Some doctors can be disrespectful. It has no reflection on YOU though! I wouldn't continue with them if they were rude and offered no help. Check out my "How to Get Answers" video. I give some advice there on how to find the right doctor for you. Stay strong!
Really wonderful to see you having a good time with your family! 😊😊😊 Absolutely beastly, however, to see you enjoying gorgeous ice cream, that doesn't exist here😕😊😀😁😂 All love, and best wishes to you all, Claire, Berlin 😘 😘 😘 ✌ 👍 👍 👍
Also in a chair...middle aged. I appreciate your attitude that different is ok. Struck a cord w me today. For some reason, esp in Drs office, people seem to think that chair/ disability equals incompetent. Upsetting esp when medical personnel. Anyhow........sorry to vent here. We all have to deal with disappointments..........
I don't have any illnesses that prevent me from enjoying the beach. But what I do have is extremely white skin that burns very easily. Get me on a Florida beach with bleach white sand and crystal clear water, if I didn't have on sun screen it would take 10 minutes for me to burn to a crisp. And when I get sunburned, I get sick. Not only am I burned but I'm sick with a migraine and just blah. And at the end if the sunburn, I peel and turn right back white, so I don't even get a tan. So my always tan, burn and the next day have great tans, beach bum family I married into just can understand why spending 7 days on a beach drinking beer all day is my personal hell. That's the only family vacation they ever want to do! I'm not sure they even realize there's other places in the world to vacation at besides Destin Florida. You want to do a weekend getaway the beach? Cool let's go! But a full 7 days? WHY!?! 🤦🏻♀️🤷🏻♀️🙄
I had a friend like that in middle school, she would get something called sun poisoning very easily! Sounds similar to what you describe. It is miserable!
I also suffer from chronic pain and sometimes it is a struggle to wake up or go to sleep. I’m glad I stumbled upon your channel. Hope you and your family are well.
I so understand how you feel, I have a chronic/terminal illness and I've only been out the house 5 times this year. We've not been on holiday since 2009. I also feel guilty when my partner misses out on things because I'm to unwell for him to go out and leave me on my own. X
I had to turn down joining in on a family boat ride due to health issues too. I was happy that my family had fun and hopefully someday I can join in. I just rewatched some of the pain management videos and they were helpful since I’m on a similar journey.
Iam sorry when you can't join your family in a lot of the things they are doing you are such a strong beautiful fighter I admire you so much Jacquie love you always thanks for sharing your beautiful life with us sweetheart
You are young, and I am old (turned 69 a couple of days ago), but I share many of your experiences. In my case, I have a partial walking disability (wheelchair access can be problematical, even in so-called handicapped access restrooms) and also need 24/7 oxygen. At my level of O2 needs, the bulky O2 bottles last just over an hour each, and the portable concentrator I have will run 1.5 hours on its battery unless I can keep it plugged in. I can't do heat and I can't do cold because of my COPD issues. So anyway, I 100% get what you're saying in this video, and yes, it is a bummer, big time. BIIIIIG time. We try to have a good attitude, but it hurts. Thank you for spreading awareness. It is important for all of us to know we aren't alone. (But I wish I had a Harlow!!)
❤️
I so feel for you. I am going through similar issues but with different health issues. I have stage 3 untreatable ovarian cancer and the treatment I had caused permanent chronic pain in my chest. So between the pain and the possible progression of my cancer ( been having symptoms the past few months that lean towards progression of the disease), I cant do very much. Today I forced myself to enjoy an hour with my daughter on a nature hike. She is a amature photographer, so she was able to take amazing pictures with her new camera. But as soon as I got home, in bed I have been. I am nauseous,light headed and in pain. Anyway, I hope you get to enjoy a little more of your family vacay. Thank you for sharing your adventures
I'm so sorry you're struggling with Ovarian cancer. My mom had that and it was so hard to watch her suffer from all of the symptoms. Sending so much healing energy your way. I'm glad you have your daughter nearby.
I love Harlow s expression with the sock!
Jaquie, it is so unselfish of you to encourage the family to go and do activities that you are unable to participate in. They are also so understanding of the limitations that you have due to your chronic illnesses. You & Judd both have very loving families!! 🤗❤️
👍
"Harlow, stop licking that candle." AHAHAHAHAHAHAHA! Harlow is too precious! Kiss her on the head for me!
It does my heart good to see you smiling and laughing. You have had such a rough year you deserve some happiness. Bless Judd and your family for being there for you and you being there for them.
A sun kissed glow???? Judd you're as red as a lobster!!!!
So many times I have felt alone or left out not because of my family but because of my diagnosis and I would say no to drives and a lot of things because I couldn't do it. Well my family thought I didn't want to be around them and I felt like I would be a burden because they would have to alter their plans for me so I would just say no so they could have fun and then felt left out. We had a huge needed fight and now we understand each other better. Like they will go for a drive or jeeping then come back and we will go for dessert. I still struggle with feeling like a burden sometimes or wishing I could do more but the support of family, friends and coworkers and other career patients saying your not alone helps so much and I'm very grateful.
You are a warrior, Jaquie! Chronic illness definitely adds an extra level of stress, even on vacation. It’s important to know your limitations and plan accordingly
So true! Knowing our limits and adhering to them makes us smart, not weak. It is the right thing to do. (: (Even though it may not be what we WANT to do, lol)
What a wonderful weekend you had with your family. I have to pass on a lot of outings as well. (Chronic pain since I was 14...now I'm 58, so it's been a long time. Also just dx with chronic leukemia) so I know how you feel. It does however help to have a supportive family so you don't really feel like you are missing out. Keep up with the positive attitude Jacq! You inspire us to do the same!
It's okay to be frustrated about your health Jaq! You cant control it and your illnesses but you can do as much as you can when you can! I love your outlook on this vacation. I hope your pain gets better tonight
Thank you for spreading awareness, it is so important. Sending you well wishes.
I watched this video before my vacation last week and it helped me feel less left out when my sisters and cousin were enjoying all the different roller coasters I couldn’t do and enjoying good dinners I wasn’t able to eat. Thanks your videos have helped me so much. Your videos where you talk about how much your infusions help your POTS helped me talk to my doctor about doing infusions which have really helped my symptoms thanks
Harlow makes all the house elves free by giving a sock (refering to harry potter)
Harlow plead the 5th! I think she was picking up after Judd & you called her to come to you in the middle of the cleaning up. I find it hard to believe that she was being mischievous.🐕
Lol do not be fooled, she definitely has a mischievous streak! And that is part of why we love her
Chronically Jaquie I have a dog that is always accused of taking socks. I don't believe it. I think my husband throws them under our bed & blames the dog. Same thing with paper I will never believe it's my dog. It has to be my husband shredding it into tiny pieces. My puppy would never..🐕🙄
I absolutely love how honest you are on this chanel! As someone who doesn’t have any disabilities, I find it important to learn as much as I can on conditions like yours and disabilities in general, to understand your reality better. And also maybe educate people at the best of my abilities if I ever get the opportunity! I’m currently still in school and find that people can be quite ignorant and even mean (On purpose or not) concerning that subject so if content like yours could reach the youth and have a snowball effect on as many people as it can, then I will gladly contribute! Of course you shouldn’t share anything that your are not confortable sharing but just know that I think you are doing a lot of good to this world! Lots of love💖💖
I understand what you are going through I have a chronic illness but like you say all the time keep on going forward. You have a great attitude and yes having faith in God helps a lot. Have a great time with your family and many blessings to you and your family 💗
Harlow says, "ahem! where's my pup-sized vanilla ice cream, mommy & daddy?" :D
Thank you for the reminders that it’s ok to be frustrated with your body’s limitations :-)
“harlow stop licking tht candle!” dead 🤣
Thanks for your honesty!! You have great perspective!! Glad you were able to enjoy your family and have a couple outings, as well as eat some! Keep moving forward!😎❤️
Awwww!! I’m so happy ur having a swell time!! & I got my Harlow fix!! YAY!!! 😍👍✌️
Jacquie, I can so relate to not being able to do everything others can do. The challenge for me is that I don't have any family of my own - just my husband's family and both my husband and mother in law seem to have a challenge understanding and accepting what I'm going through. It's beautiful that Judd is so supportive. My husband has a hard time supporting me because he gets overwhelmed with my health stuff.Have you ever thought of creating a facebook group for people with chronic health issues? Although, I vaguely remember you saying you don't have facebook...
Seems like you have an amazing family! That's neat the Jaqs choice. Looks like lots of memories made.
Happy 122k from your 122k sub!! X
Hi Guys! So glad you were able to get away and spend time with family! 😁🐱👍💕
Glad you were able to eat some good food! 👍🏻 Judd you are not sun-kissed you are sun burned! 😂😂😂😂
I understand how you feel. My husband and I just got back from a trip to Ohio (a 6 hour car ride for us) and we we're planning to go to Michigan to see his friend, but it would be an extra 3 and 1/2 hours for us each way so it just wasn't gonna happen. But we spent a lot of time with his family so it was still a nice trip.
You are very strong!❤️
It is okay to be frustrated! Let it out and acknowledge all the fun little things 😁 and of course cuddle with Harlow 🐶
Harlow is such a trip! I love her innocent face! 😄
I share the same experiences regarding my health. Went to San Francisco to visit family and had a health attack. I was shaking, dizzy and in lots of pain after a boat ride. I am now wondering if my Dysautonomia and my Central Sensitization Syndrome we’re acting up from the boat ride. It makes sense. We also had a day at the giant redwoods and the path was very bumpy in my wheelchair. Afterwards I felt like I ran miles.
Harlow is too funny 😂😂
This will be me in November, my mom's side of the family comes down here to Florida to either marco Island or cape coral area and rhey go to the beach daily and I look like I am someone who picks veggies in a field with myself covered up due lupus and mcad and everything that is commorbid rash from lupus plus rashes from the sun and cat do the heat..ugh
Harlow is so cute and funny! I saw your striped duck on the dashboard of your vehicle. :) Judd's sister looks a lot like him. Jaquie, your ice cream come looked delicious.
It would be so nice if we could have magic wand days! A day with out medical or physical problems so we could do what we like! Oh well we take what we are handed! Harlow is such a clown!
Jackie McGlasson Especially fitting in Disney.... where's THAT magic?!
Yep. Every time I Vacation I always end up with a bad flare. I mean bad 😞 Before you addressed your feelings I knew something was up. I love how positive you are. And seeing my family upset with my condition makes things worst. I love being home! So since I spend the majority in home I like to decorate ( if I don't feel fatigue 😒) oh boy.
Hi from Colorado. My son has many chronic illnesses also. We also are very limited with activities. God bless.
Thank you so much for sharing this I enjoyed watching it because I too have a chronic illness I have done the IVIG immunoglobulin infusions. They're still need it but they're too expensive now. Pain management is something I deal with all the time and it's amazing how I cannot find adequate help my central line has been out now for about 3 years I did three years of IV antibiotics cuz I have chronic lyme disease and it affects me terribly neurologically. My question is what do you do when you don't have any support. You don't do things with your family. And people don't check on you anymore. I feel so lost sometimes. I feel like I'm so sick and tired of being sick and tired. I didn't fill out an application or go for an interview and tell them I was jumping with joy please let me have neuro Lyme disease I wouldn't wish it on my worst enemy. I was diagnosed in 09 and if it wasn't for my best friend who was my caretaker for about 11 years thank God for her I would not be here. However September 20th 2016 she had a massive heart attack and passed away it devastated me and I've had no help since then. My lyme is getting worse and I'm terribly financially bankrupt from all the treatments and things I have done to try to get better. I'm at this point than I am no longer looking for healing or the solution I'm just trying to deal with the symptoms the best that I can but I don't know how much longer I can. My kids don't live very far from me they don't come by and see me or check on me I feel so lonely sometimes and I don't have a support I feel like the single mom who's broke has a chronic illness like I have leprosy or something I don't know
Judd is such a sweet man!!! Jaquie you are so blessed to have such great supportive husband!!! 🙏🏻🙏🏻
I thank God every day for him!
I am pretty sure that ice cream place is the one that we walk to right near my parent's vacation villa!
If so, I'm sad I'm not there, I would have loved to meet you. I'm not there again until October
Judd said there was over 25 different flavors but the sign said over 100
are u all going to be ok with the hurricane coming near florida?
I was just wondering, do you ever swim in indoor pools? The heat may not be as awful in there as it would be on the beach.
As someone with issues as well. If she does go to an indoor pool they have to make sure it's super well ventilated first. Between the chlorine and humidity, it could really rock her asthma
Ouchie ,Judd hope it doesn't hurt too much! Harlow was just picking up after her dad😋 I can't even do the elliptical machine let alone a boat😷. Well, the positive is you can properly rest and enjoy dinner and your night out.
Hey, I am heat intolerant and cold intolerant. Wondering why you don't have a cooling vest. I have a phase cool vest that has inserts in it that stay at 60 degrees. So I can stay cool and not get too cold. I know you tried the cooling towels and those didn't help, didn't help me either. I still have things I can't do but the vest has opened a lot of things up for me.
I do, I spent a good amount of money on a high quality vest but it really just didn't do enough for me.
I am sorry that it didn't work well enough for you. I wish my insurance helped me pay for mine.
Saw my first pain specialist today to get a referral to a physical therapist and the doctor made me feel like a piece of crap. She was like interrogating me like she didn't believe me and I was wasting her time. Who else has experienced that? Made me feel really awful. ☹☹☹
I'm sorry :( Some doctors can be disrespectful. It has no reflection on YOU though! I wouldn't continue with them if they were rude and offered no help. Check out my "How to Get Answers" video. I give some advice there on how to find the right doctor for you. Stay strong!
@@ChronicallyJaquie Thank you. I'm feeling so defeated today. This has been my experience with nearly every doctor in Florida so far.
Love you. I have a g tube too. I can’t do much too cause if my vision and my anorexia
Other than Disney, where would you like to travel to? Also, I have EDS too, type 3 I think :)
Really wonderful to see you having a good time with your family! 😊😊😊
Absolutely beastly, however, to see you enjoying gorgeous ice cream, that doesn't exist here😕😊😀😁😂
All love, and best wishes to you all, Claire, Berlin 😘 😘 😘 ✌ 👍 👍 👍
Hey jaquie looks like fun
Ugggghhhhh.. now you made me want sand dollar and we are in Illinois 😢
Also in a chair...middle aged. I appreciate your attitude that different is ok. Struck a cord w me today. For some reason, esp in Drs office, people seem to think that chair/ disability equals incompetent. Upsetting esp when medical personnel. Anyhow........sorry to vent here. We all have to deal with disappointments..........
I don't have any illnesses that prevent me from enjoying the beach. But what I do have is extremely white skin that burns very easily. Get me on a Florida beach with bleach white sand and crystal clear water, if I didn't have on sun screen it would take 10 minutes for me to burn to a crisp. And when I get sunburned, I get sick. Not only am I burned but I'm sick with a migraine and just blah. And at the end if the sunburn, I peel and turn right back white, so I don't even get a tan. So my always tan, burn and the next day have great tans, beach bum family I married into just can understand why spending 7 days on a beach drinking beer all day is my personal hell. That's the only family vacation they ever want to do! I'm not sure they even realize there's other places in the world to vacation at besides Destin Florida. You want to do a weekend getaway the beach? Cool let's go! But a full 7 days? WHY!?! 🤦🏻♀️🤷🏻♀️🙄
I had a friend like that in middle school, she would get something called sun poisoning very easily! Sounds similar to what you describe. It is miserable!
I also suffer from chronic pain and sometimes it is a struggle to wake up or go to sleep.
I’m glad I stumbled upon your channel. Hope you and your family are well.
How many more years does he have in the army?
❤❤❤❤
Harlow didn't get an ice cream? :(
I so understand how you feel, I have a chronic/terminal illness and I've only been out the house 5 times this year. We've not been on holiday since 2009. I also feel guilty when my partner misses out on things because I'm to unwell for him to go out and leave me on my own. X
Hang in there
I had to turn down joining in on a family boat ride due to health issues too. I was happy that my family had fun and hopefully someday I can join in. I just rewatched some of the pain management videos and they were helpful since I’m on a similar journey.
You look like you’re having so much fun! ❤️
We are! Even through the struggles we had a blast (:
Have you tried swimming?? Lots of love ❤
I can't get my port wet when it is accessed and I am accessed 24/7, and it is very hot outside. Plus I actually do not swim that well at all :P
😍 I love your videos~
Love you so much
Is ur condition terminal
Stephanie Osbourn nope
Judd is very sunburnt
He really is. Red like a lobster!
😂
Love the videos Jackie. Harlow is adorable
You are awesome.
I love you Jaq!
Hugs. Me too!
Iam sorry when you can't join your family in a lot of the things they are doing you are such a strong beautiful fighter I admire you so much Jacquie love you always thanks for sharing your beautiful life with us sweetheart