I got an injection for nausea back in 2022. Turns out it was an antipsychotic. I have been living with akathisia for 18 months now and have lost almost everything in my life. Akathisia can't really be put into words and you can't understand it unless you've experienced it yourself. It's worse than words can describe. To this day, family, friends and doctors still think I'm just having panic attacks, but it's so much worse. Trapped in hell and understood by no one.
I’ve had severe akathisia and my doctor also said it’s just anxiety. There are no words to describe the torment. I’m so sorry you are going through this too
@@Irishrose777 Misdiagnosing akathisia is a big problem that needs to be changed. It is probably also the reason why my akathisia has lasted so long. I was always told it was just anxiety and given lots of medication that only made everything worse. In the end they even wanted to give me antipsychotics without me ever being psychotic. Luckily I found out about akathisia and didn't take it. If I had trusted my doctors, that would have been the end for me. It's good that you have recognized your akathisia as such. I wish you all the best and hope you recover and never have to experience this again. 🙏 Keep in mind that your nervous system is now more sensitive to medication.
@@adf4548 when I had akathisia I went to the er after a week. I didn’t know about akathisia back then. They gave me reglan which is a lot Ike compazine, an anti nausea med that’s also an antipsychotic. It was the worst torment on top of already feeling tormented. Doctors are so ill informed when it comes to the this condition and it’s such a problem how they pile up meds upon meds that can worsen the condition. I did heal thankfully but I get mild akathisia from time to time but I don’t have to pace all day and night anymore
THIS WILL HEAL IN TIME. This happened to me with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
Crazy that I spent my late teens and most of my 20s doing every street drug that came my way with no side effects except the legal ones. That people have reactions to things Rx’d to them that is supposed to help them blows my mind. I am feeling very fortunate right now
I was a heavy IV meth and cathinone addict for YEARS. Had no lasting effects or damage. Came off the ssri celexa and developed full-blown blow pssd. No more emotions, severe cognitive impairment, anhedonia, visual issues, inner akathisia, complete loss and sexuality and sexual function, and many other symptoms likely for life. Im living proof street drugs are safer than psychiatric drugs.
Civilisation is insane. Literally. Mental health patients have a story to tell that shines a light on the insanity. The system doesn’t want that so it numbs us with drugs for there benefit, not ours. Love and Power to humanity
@@jasminebarratt1809 I pray the tide is changing. Grassroot groups against this tragedy are growing but I fear too slow for many that have been harmed and continue to be harmed by psychiatry and the toxic meds🥵
Compazine almost killed me as a child. I was given them to take for vomitting and nausea and was given the dosage for a grown man as a very petite 11 year old girl. My head started spinning around backwards as I was watching tv. I thought I was posessed. I had to hold my head straight by pulling my hair over my face to run and tell my mom. By then my back started doing the same thing, I was layed down on my stomach and my legs came up to the point my feet were touching the back of head. She called 911 and luckily our neighbor was a doctor so he came and gave me a shot of benedryl. In the ER they gave me so much benedryl, and it wasnt stopping. They were afraid my heart was going to stop. I was in the hospital for days. Compazine almost killed me, and stupidly enough an ER doctor gave me Reglan for a migraine and i jumped right out of the bed and was pacing the room. My legs would not stop. The nurse said "oh you must feel better!" ...no, Something is wrong! Luckily it went away the next day. I found out afterwards reglan is in the same class as compazine! Doctors are so careless.
Your story is heartbreaking.💔 They all are. Most doctors become angry with me as an adult when I ask questions, I can’t imagine being a child and at the whim of doctors. 😔
The neurologist at the hospital after I was admitted for a csf leak wanted to give me Reglan and Benadryl. Thank goodness I did not take it! Later a nurse was bringing Ativan in iv, I told her that’s it I’m leaving! I had already had the procedure and I was not going to continue with them trying to extend my stay! Thank you for sharing your experience. I’m so sorry you went through that.
I had a dystonic reaction too to Inapsine/Droperidol - which is another dopamine antagonist - also I had severe dystonic reaction. Was given 3 shots after surgery at 19 - I developed severe OCD which led me to a suicide attempt. Took me 15 years to get better - still have some OCD but not nearly as severe as before. Still these drugs can have lasting effects. I'm so sorry you had this reaction too!
I agree with every word from Danielle and my heart goes out to her. The medical industrial complex is totally out of control and without compassion or understanding of the "poisons" they are pushing.
They know the real effects. They just shrug it off. Why? No consequences. Whatever damage the thing does just attribute to the patient. "His head not working properly". Even more, dont question because they are angels, and their intentions are the most pure, "they just want to help", any question means being bad.
This is pretty much my story. 4 years ago I awoke from an operation feeling sick, was given Zofran and Droperidol and the Akathisia hit. Was told I was just anxious and was put into a mental hospital for a month and polydrugged. Now I'm in the fight of my life to get off benzo's and have been injured by so many other things. My kids keep me going but the suicidal ideation is severe. No one will ever pay for this except me and my family.
Hi Tess. I know your story from your interview with Angela Peacock. It happened to me too (Reglan injury). I'm finally getting my life back. It took about 4 years for me to start to turn a corner, and 5 years to REALLY turn a corner. My length of time healing is not the norm. It usually takes less. I had SI too & I am finally getting better, & getting joy back into my life. Hang in there. -❤ Shelly
@@idesigncutethings2196 So sorry this happened to you. That is such a long time to recover. I am so glad you are getting your life back and the SI is faded. Wishing you the best from now on
I'm so sorry you are going through this and I fully believe you. I've had akathasia and it is horrific. The profound feeling of doom, the restlessness, it wanting to crawl out of your skin and your own life - it's so awful and so hard to explain to people. I wish it on no one. You deserve so much care and understanding.
I’m so sorry. Your story breaks my heart. I turned down compezine once after surgery, wasn’t sure about it, and now I’m glad I did. You will heal from this in time. Zofran can cause aka too. I had that a couple of times after getting it but fortunately it went as the drug cycled out. My in laws told my husband I was an addict and was sneaking pills behind his back. Anyone who knows me knows I hated being on the benzo which was very short term. I took my last crumb and took all the meds to the police disposal bin. It was such a hurtful thing for them to say and I’m sorry your parents/inlaws are saying those things.
What? Can Zofran also can cause it? Because that is what I was thinking about, that why don't they use Zofran. I thought that one was very safe. How big dose of Zofran did you use when you got that side effect? And was it a continuous dosing that caused it. Or can it cause it after a single dose like this video is talking about?
As an RN in a hospital setting, I feel I must offer some sort of defense. The video begins with her stating she was suffering from 'severe' headache and nausea, but we aren't given any parameters. Had she contacted her primary care physician? Had she bothered to read up on the side effects/adverse reactions associated with birth control pills? How frequently she was experiencing the nausea? Was she actually having episodes of emesis? How long had these symptoms been occurring, etc. What were her lab results? Did she have normal sodium and potassium levels? (Highly unlikely if someone has been having non-stop emesis.) There are a lot of possiblilties. Unless she emphasized the nausea, I have a difficult time believing compazine was ordered without justification. Given she was complaining of severe headache AND nausea, she was given a medication that can be used for BOTH complaints. In the ER at my hospital Zofran is the go-to for nausea, unless the patient has an allergy, or some history of not tolerating it. Anectdotely, I have probably given GALLONS of compazine in my 27 years an RN and never seen this reaction, which she later states occurs in 40% of the patients receiving it. I could not find any documentation of this in commonly available literature. Not saying the reaction percentage isn't that high, just that it seems statistically suspect that I have never encountered this in all the years I have been in practice...half of that as a chemo infusion nurse, so I am well acquainted with antiemetics. We don't know other details of the situation. Nothing of the intensity of her anxiety and/or the family's experience with her symptoms/behavior leading up to this episode. Could her anxiety be exacerbating her symptoms? That said, their reactions may be perfectly normal in relation to other instances of her 'medical' anxiety. We have no idea what her baseline behavior might have been. She states she accepted the medication and blames the staff for not telling her what it was. True. The staff should have told her what she was being given - and why - but, in all honesty, she should have asked. Had she been told what it was, and that this was a possible reaction, would she have rejected the treatment? I feel empathy for her situation, but these things can happen and spending so much time and energy obsessing over her symptoms isn't a good thing. She doesn't share anything about what she has been doing to transcend this, except for wanting others to 'do something'. Whether the symptoms are psyhcosomatic or physiologic, the suffering is real and taking a toll. I take care of many patients that suffer with chronic health conditions for which there is no cure, and endure the most devastating effects on quality-of-life you can imagine. In those kind of situations counseling/coaching and learning coping techniques, can go a long way toward acceptance, developing resilience, and getting the most out of the life you've been handed. I wish her the best.
@@darlenebradley6756 Did you not mean to post this as a new OP under the video? Because you don't seem to respond to the OP anything. And you only talk about the video it seems like it, right?
In summer of 2019, I went into the ER for severe benzo withdrawal, migraine and dehydration; I had been awake for over 24hrs. They gave me compazine and it blew up akathisia. A neurologist NP I saw later that day said she recognized the side effects of the compazine (the constant movement). The intense terror of akathisia is the worst part.
Same thing happened to me also in the summer of 2019 with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much, to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
@@idesigncutethings2196. Sounds very similar to my experience with Akathisia. Had been on Ativan for about 5 years at the time. Think I was in tolerance withdrawal and one day I just flipped into flight/fight mode 24/7. Couldn’t settle down. Had to move. Lived in a state of terror for months. I would take 1mg of Xanax the doctor prescribed at night and I’d get 2 hrs of sleep and wake up in a terror state. Eventually over a long period of time I slowly got out of fight/flight mode, on my own I might add. Doctor told me to just take more Xanax to treat it. Luckily I just felt like that was the wrong thing to do.
I had akathesia from protracted benzodiazapine withdrawal and I agree with you. Its so hard to describe it to someone who hasn't gone through it but its so excruciating and difficult to put into words. I would go so far as to say it's nearly impossible to fully describe it. The way it's usually defined does not do it justice at all. It's not just a feeling of being "uncomfortable" or wanting to "crawl out of your skin" or feeling "restless." It feels like a physical and mental pain so intense and hard to describe. You do feel like crawling out of your own skin and being extremely restless but you also feel like you are going insane and at the same time aware of it, almost like an observer yet you feel the pain and no matter what you do it wont, go, away. Add in impending doom, insane levels of terror as well as physical symptoms such as heart palpations, dizziness, tremor, spasms, intense head pressure, etc. We need more awareness of this side effect and more doctors need to STOP brushing it off as "anxiety" and accept the true nature of it, an iatrogenic injury.
I pray so much for you. I have also experienced a complete body and mental break down with akathisia and 1000 of other terrifying symptoms, by a hormonal coil in a mix of one antidepressant. I only live because of my kids and I feel SO much for you. I am terrified of the healthcaresystem both for myself and my kids. Thank you for sharing your story 🙏. Joseph, I really hope that this comes out in the public in the press and not only on youtube and all the other stories maybe as anonymous patients/people.
I had a similar reaction to Droperidol/Inapsine. Was given 3 intramuscular injections, and went into full dystonia. It took the hospital 6 hours to figure out what was wrong. All the while I lay there, in full terror, my eyes rolling to the back of my head, stomach muscles seizing up, neck twisting, tongue rolling to the back of my throat and my teeth clenching so hard I thought they'd break. It was until the hospital pharmacist came to my bed that he looked through my chart and realized what was happening. The doctors, nurses, staff - the rest were useless. The nurse told me to "try and relax." I was absolutely terrified. All this because I was given this drug after a surgery. I was only 19 at the time. It ruined my life. I developed extreme OCD as a consequence of this med. I didn't realize it at the time but now I know I was injured long-term from it. I had NO anxiety or OCD issues prior to this incident. Doctors need to know about these side-effects and to look for them. People need to be aware that a lot of people react to these anti-nausea/anti-psychotic meds. Go online. Look up all the terrible reviews on some websites.
I believe every single thing she said. After I had gotten akathisia from abilify I realized I had also had it during my last c section. I had the intense urge to move during the section and moved my arms up and down the entire time until they delivered the baby and gave me some anxiety medication. So now I'm understanding akathisia on a different level. I also havent been the same since that section. I hit a deep depression and feel like i couldnt come out of it. Anyhow, if shes reading this, just know, youre not alone and you are believed by some of us. My life is so different now since i got the extreme akathisia from abilify. I lack motivation to do just about anything. The akathisia isnt even that bad anymore. I just feel trapped in my brain and body. Im not having the pacing or intense terror anymore. Im just trapped. Like i cant do anything.
Same here. I have no other option. (3.5 year not 1%) No one will be held accountable. Life was good until i went to my doctor for help and ended with a prescription for death.
@@grv91vr23 Oh my gosh!! I just can’t comprehend this utter negligence! Please, please, can you get yourself to a Bible believing, Jesus (no other!) following church, and get the pastor and others to pray for you. You might not know of God, as I once didn’t, but oh my, I have had healing from so many things, and I’ve watched others get well when there was no hope. Akathesia has nearly driven me insane, but I have hope in my heart. I have adult children, but sometimes they haven’t been enough to keep me here. It’s my trust and hope in God the Father, who will not let go of your hand, once you hold it out to Him. He is closer to you than you think. I’ll be praying that you reach out to Him who treasures you, and longs to help you 🙏
I went to the ER one day for severe vomiting and stomach pain etc. They hooked me up to an IV to give me fluids and then said they were giving me something for nausea. A few seconds later I began flopping around on the bed like a fish. I then jumped up off the bed yelling for them to help me. I needed them to unhook the IV so I could move, walk pace and your mind is like going nuts in a severe restless way. I actually hate using the word "restless" when I speak of akathisia bc I feel it doesn't so anywhere near justice to what the feeling is actually like. But to people who don't know what it feels like it's really the only way. Anyways, the med the shot into my arm is something called Droperidol. It gave me horrific Akathisia that lasted for months. Akathisia is hell on earth. Especially when you have doctors who have no idea what they are doing and how to treat it. It made what would months later be diagnosed as an active H. Pylori infection, THAT much more brutal. And by the time the infection wad found, it had created 2 bleeding ulcers. Took months of antibiotics to get the infection out. But the worst part of this is that the nausea med left me with what a previous guest goes through. Basically a chemical lobotomy. I replay it in my head all of the time wishing I hadn't gone to the E.R. or at least not THAT ER. My life hasn't been nearly the same.
What a horrible experience...so sorry this happened. You did what you believed to be the right decision at the time in regards to going to the ER, unfortunately they made the situation even worse. Sincerely hope that little by little the days get better and with patience you will fully recover. Our bodies have an absolutely amazing ability to heal if given time...please give it that time. Best wishes for a complete recovery.
Wishing you wellness. Too many drugs cause this in people. I’m hoping for a day when they all get replaced or have society that better supports illness without the need for them all together.
Very interesting. I had akathisia for several months back in 2010. I believe it was from Ativan which I had been taking for 5-6 years. Then several years ago, I had my thyroid taken out due to thyroid cancer. It’s a long story, but basically, they took my right thyroid out , found cancer then had to take out the left thyroid 2 weeks later. I had told them the only problem with the first operation was I felt a little nausea afterwards. I don’t know for sure if I was given any anti nausea med for the 2nd operation, but I came out of surgery with very high blood pressure and developed akathisia. I was pacing the hallways of the hospital all night long. Could not sit still. Impossible. Nurses probably thought I was nuts. They offered me more anti nausea meds and tramadol. I declined both. Fortunately, over the next couple of days the akathisia went away. Like the OP said, you cannot describe akathisia. It’s the worse thing ever.
As a nurse, we gave Compazine as a first line treatment for migraines in the ER 20 years ago, because there was typically a secondary nausea symptom assiciated with them and it seemed like it helped with the pain itself, particularly if the etiology had associated anxiety. This is the first I’ve heard of the fact that the primary classification is antipsychotic and not antiemetic. If we actually listened to patients we would give 75% less medications than we give now (and then). Have hope and faith that drug-derived akasthesia does heal over time ❤
They gave my husband a Haldol/Benadryl dose in the ER because he had a massive headache with nausea and I was afraid he was having another hemorrhagic stroke. They quickly gave him Haldol/Benadryl and within 30 minutes he was agitated/fidgeting/skin crawling/couldn’t relax and we couldn’t figure out that it would be anything but what they’d given him. Turns out it was just a migraine as the CT scan showed no stroke, but they sent us home with a prescription for Compazine which something told me NOT to fill. Glad I didn’t! The feelings did eventually pass after about 18 hours. Why are they recycling these antipsychotic drugs for migraines? I’m so sorry this happened to you, young lady. Please know you are doing such a service for others telling your story.
@@foxibotI took it in the late 80s for nausea, I was in my late teens. I had NO idea it was originally an antipsychotic! Now I'm tapering off a benzo & wondering how the drugs I've taken years ago may still be affecting my body today.
@@drunkensquirrel7545 I didn’t know it was an anti psychotic either, but know a pain Dr gave me an antipsychotic for nausea and it changed my whole personality, I didn’t have the skin crawling and the felling of restlessness like compazine did though. Please taper off you Benzo extremely slow, so you won’t have issues, I told my pain current pain Dr that I will taper off myself when he said DEA doesn’t want people taking it so I slowly slowly did it and was ok. My friend who was on a Xanax for over 20 years for anxiety didn’t listen to me, let her crazy husband I can’t stand who is abusive convince her to get off of it and last I heard she was going in for shock treatments. She couldn’t do anything and then she got very mean, understandably, and she couldn’t focus and it ruined her whole life, I haven’t heard from her since, and I tried to see how she was doing but no answer. This guy on YT had a heart attack when he was fast tapered, and I warned her not to do it but to slow taper and of course she listened to he abusive husband. I do hope she is ok. I think he did it to her on purpose so he could control her, and tell everyone she was crazy. She is older than me and had severe anxiety, I used to take Ativan for sleep and to relax my muscles and the first time I got for off it couldn’t sleep and was awake along with my cousin who also couldn’t sleep, because she took it for anxiety. So I knew the 2nd time I had to do it slowly. I had cancer diagnosis not that long ago, and it was bad bad what happened to me after, I nearly died from hypercalcemia and this nutty ICU dr takes me off my pain meds and turns out I have complex regional pain syndrome, so I hope I can sue her and the hospital. The lack of calcium after caused me to have a heart attack and also another hospital ER and drs after going several times when I was choking, ignored me when I said I was choking and let the tumor attach to my laryngeal nerve. It took years to find a Dr to diagnose me while it grew. My electrolytes went crazy and it felt like I had severe anxiety which the dr told me happens and he had kept me an extra night to make sure I was ok, well it didn’t happen til about 2 months later and I nearly died! I had a heart attack and stroke and pneumonia and was projectile vomiting. I no longer trust ER’s or hospitals, they had asked my pain Dr to medicate me and before that they made me think it was medication causing it. So I got off everything for a short time. I found a dr who believes me and he scoped my throat and saw what happened and said you have cancer. I’m too sick right now and this complex regional pain syndrome is hideous! I took ketamine injections a long time ago that numbed me out for 2 months, on my injuries but my brilliant dr who was also a expert chronic pain Dr and pharmacologist and cancer Dr said I couldn’t use it for painful urinary tract disease IC interstitial cystitis, but the numbing shots were amazing, with the ketamine in those areas for about 2 months. I said let’s do this to my diseases! I have autoimmune diseases like IC and ulcerative colitis and endometriosis that cause bad pain. He was also a cancer dr but I didn’t have it back then, and he died suddenly so that was like losing family. Now I have to find someone who is an expert in this complex pain syndrome, it’s horrible, I woke up screaming the other night and my body has numbness and tingling and acute pain. Even my chronic pain dr dosent understand.. They said I have triggers and I thought yeah your hospital who hurt me was a huge trigger. This crazy nurse after I got out of ICU I couldn’t even walk or stand because I couldn’t eat, doesn’t let them help me transfer me from my gurney and said I could do it with me saying no I can’t so then I got hurt, and they had this horrid old machine where you put this thing over your neck and head and injured me and scraped my back. I refused to do it again and they had to sedate me to get me to do it again. Lucky me they found a brain lesion! So I have a neurosurgeon I see now. I am totally discouraged with my current medical situation and fear hospitals so I suffer, horrendously, , I never had this until I lost my great Dr, who would have listened to me, this is how people are treated if they are female or chronic. He said when Drs can’t cure you they get angry and take it out on you. He said I have cancer patients so I just want them and my chronic pain patients and get this best quality of life I can give them. I also lost my vocal cord which has devastated me, I remember when I was hoarse and I couldn’t get it better and it got worse! I was talking to another person who lost theirs and I was trying to encourage them while being scared myself, my intuition knew something was drastically wrong, and sure enough a few months later I was being told the bad news, and it ruined essentially killed, my laryngeal nerve. Horrible part is after surgery it’s even worse, and I don’t want a needle stuck in my throat with no pain meds or numbing to get the injections because I’m in acute pain. Good luck and I pray and hope you will slowly taper with no side effects or long term, benzos I think as along as you taper off extremely slow or ok, I think when these drs taper you fast your body goes into shock and it messes your brain and central nervous systems up. We need to change the way patients are treated. And it’s gonna take a whole new mindset and the DEA off of chronic pain patients. When a Dr against opiates gave me trazodone for sleep I wrote a paper on how horrible it was and I tell people do not take that either! It’s another anti psychotic. And it’s horrible in my opinion. And so is Gabapentin which they gave me in hospital and it is also horrible. And there is no proof it helps pain. I have never had an issue with pain medicines, and if you get off you just taper off slowly.
Secondly she is correct. If her anxious son is the child that had reglan in the womb, he is fragile to these types of drugs such as roids and the 'anti' medications, like herself, me and my 2 kids! My son tics after any live virus vacs. She's incredibly intuitive & Everything she said is reliable to me, including not being believed. I pray she opens up a youtube channel.. 🙏
This poor woman. The hospital probably gave her the drug because she said she admitted health anxiety prior. Never admit any mental health concerns to doctors. Once it’s in your records no one with ever take you seriously.
I believe you! Because 8:33 The same thing happened to me from compazine! And from holidol. I was illegally injected in an urgent care with compazine back in 2018 and had the EXACTsame reaction you did. I’ve never been the same.
@@taperclinicthank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic homocidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic h0m1cidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official med injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic h0m1cidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my med injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic homocidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
I am still hainted by akathisia. paramedics gave me droperidol. Within a fortnight I took two zyrtec antihistamines and the akathisia terrifyingly returned=, waking me in the night. Doctor dismnissed me and said was a panic attack. It was NOT a poanic attack. I will never call an ambulance ever again. Akathisia was without any dount the most hideous experienbce, and the one thing in life that terrifies me more than anything. It is like crucifixion without even the prospect of death's release. It's like being buried alive, like claustrophobia. No drug with the remotest chance of this side effect should never be used, let alone drugs like droperidol that have such a high chance. ALL DOCTORS need to have this condition induced in them and then there'd be a change! Both experiences lasted under 24 hours, but unforgettable. I feel like it is stalking me now.
The more i listen to people's stories and look back at my own, the more I come to believe that drug injuries are a bucket type of thing... like the damage goes unnoticed until it blows up. I recently had really severe akathisia for months from benzo and ssri withdrawal but had glimpses of it when i was given iv reglan a few years ago. Back then, i didnt know it was akathisia. I had been given iv reglan multiple times before and am also kindled with lexapro and benzos. The recent withdrawal is my second time withdrawing from these meds and im protracted and suffering horribly beyond human understanding with literally more than a hundred symptoms. The first withdrawal i barely noticed a thing... Anyways, akathisia is the worst hell no one should go through. There is simply no word to adequately portray the torture.
OMG I KNEW THEY WERE GOING TO SAY COMPAZINE!!!!!! I had major vomiting and nausea from a kidney infection. They gave me compazine and I felt like i fell into a dark tunnel - I was falling and completely felt like I had separated from my body. I couldn’t even call out for help. I then went into this place where it was like upside down world - everything was black and white and gray and I kept hearing static sound like on a TV that is disconnected from cable. Then I got this overwhelming feeling of death and dying. I felt like the worst doom of my life. After about 15 mins I began to panic and scream AND I STARTED RIPPING MY OWN HAIR OUT!!!!!!! I was yelling for them to KILL ME!!!!!! I reached out to one of the nurses (or whoever it was - I couldn’t connect to anyone) and tried to grab her and was trying to get her to look at me and acknowledge my intense fear!! She took my hands and held them down and I tried to fight her (I am not or ever have been a violent or angry person - not ever physical) and all I could think was to gouge out her eyes she looked so EVIL!!!! She had this quick realization that I was having a bad reaction and gave me an injection of morphine right away. This cut the experience in half - I finally was able to think straight for a minute and just kept apologizing profusely!!!! She kept trying to calm me down telling me it was ok and I was safe and that I was having a reaction to the compazine. She later told me they used to use it as an antipsychotic but that in some people it causes PSYCHOSIS!!!!! I WAS PSYCHOTIC!!!! They were very apologetic and told me that for the rest of my life I need to tell EVERYONE that I am ALLERGIC to compazine and any med in that class. The Drs always ask me what my allergic reaction is and I say “Psychosis, I’ll gouge your eyes out!!! 👀 “ and now I tell everyone I know that if they are ever nauseous - DO NOT LET THEM GIVE YOU ANY OF THE ANTIPSYCHOTICS!!! I still have nightmares about that episode and that was 15 years ago.
This is why I don’t take meds so easily. I’m a nurse, but I like holistic health. Try to resolve things holistically before turning to medications right away
When I was in the hospital for an outpatient procedure, I had a migraine with nausea. They gave me Reglan in my iv, for the nausea. I had the exact same reaction. I wanted to rip off the blood pressure cuff and iv and run out of the hospital. I told the nurse, and she put something in my iv to counteract it. I’m not sure what, but I guess I was lucky that the symptoms stopped! I can take Zofran/ Ondansetron with no side effects, when I have nausea.
I had full blown akathisia and it still rears its ugly head now and then. Many doctors do not understand it. Nor do they know how to treat it. It’s deadly. The fact that this woman was suicidal within 3 days of the onset of symptoms is testimony to how horrific it is. And it’s so common that aka patients are misunderstood.
Same happened to me. I got Haldol after a few minutes in ER saying g I have abdominal pain never said I'm nauseous! They said they would give me something for pain and quickly they had Haldol on my arm but they did check my heart before! And I asked why and they said they always fo that with abdominal pain but nurse seemed to hide something and I found out that protocoll if giving Haldol in iv you should check heart for Qt prolongation before giving the Haldol! So they were sneaky! So why give me sneakily an antipsychotic saying its gor nausea if I never said I'm nauseaus!? I think they give it to people to simply SHUT THEM UP ! I went in the night and they were all sleeping in the chairs! These are. Helical restraints amd if you just alittle bit agitated and looking you gonna press the button for help more than once they put you into chemical restraints knowing it has these side-effects in some patients but they still first knock you out and then cause akathisia! They don't care if you pace for days if they just shut you up for the er stay! They are selfish nurses and docs i think and haye their patients especially. If they possibly classify you as hysterical, or drug seeking ( esp. during night visits). Try to go during the day with a partner and never let them.just give u anything without checking it online. Make sure it isn't an antippsychotic or anything which messes with dopamine receptors! These are many nausea and abdominal pain meds and if u say u have headache they assume u are nauseous too!!
Btw I had akathisia for 3 days after the Haldol shot but I also had REGLAN years before and it also.gave me akathisia or acute dyskinesia. Valium was the antidote. But now benzo ativan gives me trouble after only 1 week of use!! I now do not tolerate many meds and issues with certain antibiotics like amoxycillin! Also I have bowel issues which seem to be at the root of my reactions!
I had this happen in an ER waiting room after being given reglan it does cause skin crawling feeling and makes you feel suicidal…I feel for her it was the worst experience I’ve ever had…they say I have anxiety from reglan …um no it was Akathisia…medications cause it
I was given compazine for nausea while pregnant with my 2nd child. I was instantly freaking out my blood pressure was super high. So they gave me Benadryl. So I was way out of it. From that point on my chart says compazine allergy.
I have severe Dystonia and Akathesia reactions to these class of meds and my PCP told me to let any medical professionals to know this. These are used so much for migraines, and when I’ve gone to ER for severe migraines they want to use them. Once I repeatedly asked the to not administer Droperidol but they didn’t listen. I was to sick with the headache to advocate for myself. I of course had a terrible reaction and they quickly came in with meds to counteract them, but it’s always a nightmare after getting these medications for about 25 hours.
Thanks for the reference - they started the taper at 200mg QD with a 25% decrease Q3 days in that case study - with neurological symptoms that were that extreme, thats quite fast. I wonder if they even asked the patient what he was consuming at baseline pre-admission.
I got full-body dystonia from Zofran after having my gallbladder removed. The nurses told me I needed to “just breathe and relax”. 😳 Fortunately, it resolved, but never again.
I've gone through all you've gone through. I'm on 4 medications now that I wasn't before, but completely back to myself. Akathesia free. I can't believe it, I thought I'd be like that forever, it lasted 5 months.
Years ago I added compazine to the list of "allergies or adverse reactions." Compazine is an old antipsychotic analog of thorazine, stellazine, clorpromazine." I had a gyric crisis when they gave me Tigan for nausea. So I added this to the list. Benadryl is great, but in my opinion Atarax (hydroxizine) antihistamine would have been better for nausea. Sometimes they give Zofran, but I always declined it. Antidepressants are overrated, dangerous; I'd rather take METHADONE. Antibiotics, really do a number and side effects listed are depression.
Is it really possible to restore the sensitivity and number of dopamine receptors, which is normal for you? Or is it irreversible changes (such as tardive dyskinesia)?
Thank you for sharing. I’m so sorry you are going through this. I got Ankathisia from protracted SSRI withdrawal after being off of Zoloft for 3 weeks. I wanted to crawl out of my own skin. I couldn’t stop pacing, could never get comfortable, my heart was constantly racing. I couldn’t eat to the point where I lost 15 pounds in a month and a half. It was absolute hell. I hoped for the end because I couldn’t imagine living around day like that. I had no idea that this could be a withdrawal side effect of Zoloft. I wish I had been informed. So I’m back on the SSRIs just to prevent withdrawal. I am going to try to taper again slowly but I am scarred from Akathisia. it took almost a year to feel normal again even after I got back on the SSRIs. I don’t think I could live that like again but the SSRI side effects aren’t great either. A good resource on protracted withdrawal from psychiatric medications is the maudsley deprescribing guide. It says that some patients incur injury from protracted psychiatric medication withdrawal that do not improve, even after you go back on the medication, with akathisia being one of the side effects listed. I wonder if something similar happened to you when you had the reaction to clozapine. If possible, I would try to find a psychiatrist that specializes in protracted withdrawal or desprescribing.
This is so sad...but what can be done about these kind of reactions? It seems she went in to get treatment for severe nausea and was given something that, for most people, is a usual and successful treatment. In that case, I would have a difficult time blaming the ER doctor for what has happened. Did she even ask what they were giving her? In all honesty, there is no way to predict, in advance, what adverse reactions might occur. People typically discover these things after the fact. I do have a problem with the resistance on the part of the doctors to take her complaints and symptoms seriously and my heart goes out to her. Thank you, Dr. Josef, for another informative video. As an RN in a busy hospital setting I find these very helpful and can say I have benefited greatly from the education.
I was given compazine for a migraine and I felt like I was enraged. I had my fists ballled up and my whole body was rigid like I was about to crash through a window. The nurse acted like I was crazy and said there should be no side effects.
The side effects sounds like what ivsuffer from with anxiety and depression i have been crippled with it , ive only just gotcright on Setraline im actually back to my normal i have not been able to function previously x
I am autistic and I was given topomax for migraines and it made me feel how she described, I had derealization and I felt like I was going crazy and having mini strokes or something I am hyperlexic and my vocabulary is “very superior” it is one of my key skill sets(that’s the wording they used on my evaluation for autism and adhd, lol I’m not just self absorbed) but I felt like I couldn’t think with words, normally I can struggle to explain my feelings but this was different, I couldn’t form sentences in my head and I couldn’t even talk correctly I wish I had looked it up before I took it because apparently allot of people have severe reactions to it, ALWAYS look up meds before you take them - I still haven’t found relief for my headaches and it’s been three years, I even stopped my birth control more than once and switched to a different kind with no improvement:-/ I had spinal surgery and that helped for a like while but they just got worse again and I don’t know what to do, I’m miserable
15:50 Yes, they refuse to diagnose me with TD or movement disorders and keep telling me it's Fibromyalgia but I'm scared to take gabapentin or other antidepressants😢
Thanks for giving medical injurie a face and a voice. It is heartbreaking your not belived by those who did this to you. The trillion dollar pharma companies are responsible
A hypothesis is that the drop in dopamine causes the brain to try to compensate with epinephrine, which increases dopamine via beta receptors. Epinephrine explains the restlessness/akathisia. Other drugs can also can cause akathisia, confirming the above: "antibiotics [30], calcium channel blockers [31], and even illicit drug use such as amphetamine, methamphetamine, and cocaine [32] can elicit akathisia" from Revisiting antipsychotic-induced akathisia: current issues and prospective challenges, 2017 Indeed it seems to be epinephrine, would also explain why benzo and calcium channel blocker withdrawal-caused hypercalcemia induces akathisia, because hypercalcemia correlates with high epinephrine Sympathetic system function and vascular reactivity in hypercalcemic patients. 1982
THIS WILL HEAL IN TIME. This happened to me with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
@DanielleRambo-yl1qe it took me over 5 years. I was not in an acute state the whole time, just the first idk- 4 months or more. Bad enough that I could not leave the house without being in some kind of pain for a very long time. Things slowly improved with each passing month. I started to see bigger healing strides at 5 years. I can still get flares because of stress about 1-2× a year. I know i am sensitive, so I take zero meds. Will need to be life or death in order for me to ever take an antibiotic, but I get stronger & stronger as time passes. Hang in there everyone. It gets better with time. In the last year, I have been attending fall festivals, family holiday gatherings, outdoor small concerts too & able to enjoy them. 😊
Geez man.. I went to the ED for severe migraine, all they gave me was Panadol Forte + fluids… and some drug for nausea which is available over the counter… OMG I am so lucky
Wow that is exactly how I feel! Screaming inside, running inside, while at the same time wanting hide in bed. And feeling like my soul, my spirit, has been dislodged from my body.I don't exist, in the beautiful day, the flowers in the garden . I'm just running without any meaning in the here and now. I got it from superstrong antibiotics for a bladder infection. Two we e ks ago. Bowel is still white with mucus.
Praying for you. You will heal. Even if you can’t do things with your children they feel your love. Be honest with them about what is going on with you so they don’t think it’s their fault. They could possibly react to certain drugs so they need the truth. I’m sending you so much love.
Beautiful advice. Children will often think that they are responsible for the bad things that happen (eg: divorce) and leaving the line of communication open is the best solution to a very difficult problem. I too will be saying prayers for this young women in hopes that she will regain a life of normalcy. Take care and God bless.🙏
🥺PLEASE Please, can someone list the top 5 anti- nausea drugs to absolutely AVOID ☠️ Along with the top 2 or 3 anti nausea drugs that are recommended to be SAFE 😇
Sounds like similar symptoms of Restless Leg Syndrome. Dopamine channels are injured. Ropinerole would probably treat for this condition. Start with low dose to test for allergic reaction. Increase dosage until a therapeutic dosage is attained. Seems like worth looking into.
This sounds like a Benzo injury. The medicine at the ER sounds like it aggravated an underlying injury or neurological disorder. If you haven’t already, try intermittent fasting and an elimination diet. It wasn’t a cure, but it did help calm my nervous system. Your nervous system is out of balance for sure. Give it time, treat your spirit and body well. It will improve. The brain will adjust. Just give it what it needs- except more medicine. Talk therapy and meditation are helpful. Just go easy on yourself, and roll it as much as you can. I completely understand and have experienced everything you have. Hang in there.
We talk about the drug culture on the streets of America, the homeless and severely drug addicted street people. how much attention do we spend on pha.rm.a drugs used so much in western nations. Not as much in Asia or eadtern Europe. We need to reexamine how we live and why we depend so much on drugs. Bless this young woman who needs to be believed and respected. IF she is not, for now, it may be a good plan to leave those who do not give support but doubt her and disrespect her. Opinion.
Awful. So glad she was wise enough to avoid SSRIs (apart from Benadryl). What are her symptoms other than DPDR though? Emotional? Anhedonia? Sexual? Physical numbness?
HARMaceuticals.. cause more nightmares 🤯 Same experience.. different meds. I am Not the same person 20 years later and homebound. Very scary to EVER go for medical.. basically like a Guinea pig. ..😢 God bless..i absolutely get it . And living /surviving it. ❤️🕊️🙏✨
8:19 Yup, years after Zyprexa when I take certain antibiotics or antifungals and other medication, I get the muscle pain and mental side effects then when the course is done I'm fine.
Changing diet can help some (experimenting with keto, anti-inflammatory, carnivore), working with a functional medicine practitioner to help promote your body's ability to heal with supplements, also time (for some people much longer than others).
Anyone else turn to alcohol to try and get some relief from side effects? Risperdal made me suicidal and I started drinking like a fish to feel better.
@@catmomma3119 I'm sorry, I thought you were on a different dopamine blocker than perphenazine. It's a drastic thing to give someone in larger doses. (I'm missing the more precise grammar of Elizabethan/Shakespearean English "you" can mean both "thou" and "ye" in modern English and that's not very comparable to other languages.) I have been having severe dyskinesias all my life, so benzodiazepines and physical training, is the only option for me, if I don't get access to more selective therapies. I didn't intend to say that you, yourself, should have done it differently, except for maybe figuring out how bad the side-effects of contraceptive medication can be. But, it's not likely that all layers know much about pharmacology, although women have always been the best physicians in traditional societies. I'm sorry for your akathesia ( but I haven't been affected longer than a few days, from chlorpromazine or pimozide ( yes it's terrible) and the repurposing of the antipsychotic, is not a thing I'd expect, (but "Big Pharma" is even worse than "Big Agro" these days). Sorry..
@@catmomma3119 Sorry, I didn't check enough, I didn't realise that Big Pharma has recirculated perphenazine, for this kind of use, instead of ditching it. it's drugs like ondansetron and granisetron etc. that are mainstream and among the most beneficial for nausea and migraine. And the group known as the triptan's. (I wasn't using the "you" referring to "thou" but the MD's "ye" , a loss of grammatical precision in English, since the time of Shakespeare 😃). So, I didn't actually say it properly. I have experienced akathesia from related drugs, like chlorpromazine and pimozide, but not over a long timeframe, just like a few days, but it's a horrible state... It's sad to hear that the short term use has affected your life for such a long time., I hope you have come through, and healed 💞🙏🏻
If she only had the drug infused once wouldn't it be out the system by now i have had bad effects of the older generation antidepressants like mirtazapine and had really bad effect from risperodone but it went off when i stopped xx
The argument that medicine can’t do permanent damage and that because it’s out of your system is like saying that a person who was paralyzed in a car accident shouldn’t still be paralyzed anymore because it was months or years ago.
This video broke my heart, it makes me terrified to take anything ever again, This video is an 11 year old boy who go t from iv nausea meds, it's hard to watch, breaks my heart all over again, people don't understand how bad it feels to have it. th-cam.com/video/SaTJ35zgkNs/w-d-xo.htmlsi=0SESJfLcrAIb4Pn6
What's scary about that is when someone shows up at an ER or even a detox place acting like that they get accused of faking it to get drugs. And they get yelled at and screamed at and told to "Shut the Hell up!" And "You need to stop right now!" And they can't stop. It happens a lot more than people know.
@@blackflyingfox3365 I was reprimanded for asking a doctor about it when he wanted to prescribe me psych med and a benzodiazapine, he yelled and told me he was a doctor and he new better, then told me to not look on the internet for advice, he said that happens to 1 out of 100's of thousands, I told him I never hit the lottery but I probably would end up to be one of those 100's of thousand, I left and and never seen went to him again.
I get the bringing awareness to these things but as someone who is going through it, i find these videos so triggering, esp the title « …forever ». It would be helpful if you shared success stories of recoveries as well for us, the victims looking for hope.
Wow I identify with her so much, but with me it’s ADHD as a 44 yr old woman. First of all getting a diagnosis for ADHD (as a recovering addict) and a middle aged female has been a joke. We need to drop this attitude in western medicine that just because someone is a Dr doesn’t mean they are just always right, and all your knowledge and lived experience doesn’t matter if dr doesnt agree (that’s if you are lucky enough to be acknowledged as a human and not just another number).It should be a joint effort between patients and drs. The lay person might not have gone to years of schooling but they have their EXPERIENCES, they can learn and educate themself on their own specific ailments. I know it’s a very complex,multi layered issue with US healthcare in general. It’s a joke now. All drs except for one (who is actually not a dr but a nurse practitioner) have dismissed me for 15 years when I tell them I have adhd. It has been debilitating and the cold shoulder from the medical community has actually exacerbated it. I know exactly how this woman feels. People see a gentle, petite woman who doesn’t know what she’s talking about. You get laughed at when you tell them you have done your own research. Everyone just looks at you with pity. It’s actually programmed misogyny (I actually never believed in that before but I do now). So us women are ANGRY and TIRED and fed up! We do know what we are talking about. I don’t even like saying I have adhd because I immediately feel the dismissal from people when I say it. I feel this woman’s pain. She is a beautiful, strong, loving, very intelligent and astute woman and society truly does seem to not like women like that.
She sounds very worked up and afraid. Perhaps counselling is in order. I'm not denying her having a reaction to meds, but her personality seems bruised to by this and needs healing also. It's tough, I been through SSRI withdrawal myself ya I believe her that she received a injury.
@@DanielleRambo-yl1qe Danielle, My story about akathisia is in Mad in America. Please try hypnotherapy, brainspottting, somatic experiencing, and other holistic approaches, and there will be a shift with time as your subconscious heals you (with the support of nonjudgmental, experienced healing guides). I have a couple of names for referral in CA if you like.
@@DanielleRambo-yl1qethis is exactly what happened with me but with Droperidol ( another antipsychotic nausea drug in Aus) it happened 10 months ago . I am also a 34 year old mother of 2 . I got severe akathisia from one dose , and now I still have spasms , chest pain spasms , and restlessness & anxiety , although most days I am pretty normal . Did you ever get better ? The book ‘overcoming unwanted intrusive thoughts ‘ by Sally Winston was so helpful for those horrific intrusive suicidal thoughts , they were the worst , and lasted 6 months . I have been doing anxiety recovery too, and was thinking that the symptoms I have are from anxiety from how traumatic the initial akathisia was , but lately I realise the restlessness at night returns randomly and I have spasms ALL day .. maybe its a drug injury.. I really hope you have healed and I can too 🙏♥️
Its not click bait GTFO. This woman can't function anymore and she doesn't know if she will ever recover. I'm in the same boat from prescribed benzos. Go ahead, take all the drugs you want, I wish you luck.
@DanielleRambo-yl1qe I have a 5 minute break from work to write this so sorry if it's scattered but I HAVE to write it !!! Your story is EXACTLY THE SAME as mine! I am also a 34-year-old mother from Australia. I got one injection of the anti-nausea drug and got akathisia. I was unmonitored in the hospital and when I told the doctor I REALLY didn't feel like myself they said "We do not have a pill for taking away all bad feelings sorry" Then when I got the tremors they said it was just the coldness from the drip. That was 9 months ago. I had the same horrid reaction, I couldn't sit down, or sleep, a torture you can't explain..and I held my friend's hand as her life support was turned off, it did not come close to the suffering of akathisia; it is not a normal human experience, it is man-made chemical torture! I lost 13 kgs, I couldn't work, study, or leave my house. I am the most devoted mother, it is my absolute world and I couldn't even feel love for 3 months, that was the ultimate nervous system sensitization. I also didn't know it was Akathisia until 3 months later when my psychologist told me, I thought I had just got crazy that night.. because no one believed me. I even went to the doctor the next day and he gave me escitalopram and diagnosed me with Panic Disorder even though I couldn't sit down in the office. I HAVE RECOVERED. except for lingering nervous system sensitization/anxiety which is getting better with every day, but my life is the same as before, although now I am much more mature to put it lightly. What helped me SO much was realising that I was in a trauma response PTSD/ anxiety /nervous system activation. So I treated myself as such and then I finally started to recover. These are the resources: "Hope and Healing for Your Nerves" by Claire Weekes, listen to her audible and get her book. "Dealing with Unwanted Intrusive Thoughts" by Sally Winston: this was the only thing that helped the flashbacks of SI, and suicidal OCD that I developed (extremely fearful of suicide because of the suicidal ideation that came with akathisia - I had never felt that way in my life EVER!!!), listen to the DISORDERED podcast, the DARE podcast, Read the books; at last a Life, Dare, Mark Freeman's TH-cam about ocd, and Shaan Kassams's TH-cam about anxiety recovery and SENSITSATION. Also, I really love Lily Sais on Instagram. I thought I was "damaged" from the akathisia, thinking the spasms and restless legs and intrusive thoughts were lingering damage, but also whenever I believed that I spiralled emotionally and I would panic! thinking I was going to be this way forever, thinking I am insane, getting dreadful intrusive thoughts! but if I didn't believe that thought, I wouldn't panic, so make sure you are HOPEFUL and constantly listening to people who have recovered from nervous system sensitisation !! After the akathisia wore off and then my nervous system, the thoughts and memories of it (I still randomly get flashes of the experience now and then like PTSD) heightened everything so much that I thought it hadn't gone away. I had muscle spasms, twitches, myo jerks, flashbacks of dread and doom, and suicidal OCD (this was the WORST SYMPTOM personally !! my brain was trying to protect me from ME) but it wasn't akathisia...it was my whole being response and its SENSITISATION to THE most traumatic experience of my life..but recovery is a marathon and not a sprint. and now i am fully recovered! You can too, I know you can :) If you start with those resources you will begin to heal. I really hope you are healing, I can't believe how similar our stories are.
Bless you. 🫂 I suffered with migraines for 40 years. I stopped going to the ER because they used to insist on giving me Prochlorperazine IV which made me feel absolutely restless in an aggressive way. If it wasn’t Prochlorperazine it was some other antipsychotic on their “protocol”. The entire protocol took hours All I wanted was a small dose of an opioid quickly so I can go home to sleep but opioids are the devil and my “reactions” are related to stupidity or drug seeking. I had to stop working due to brain injury from all the preventative migraine treatments over the years. I was an RN.
I got an injection for nausea back in 2022. Turns out it was an antipsychotic. I have been living with akathisia for 18 months now and have lost almost everything in my life. Akathisia can't really be put into words and you can't understand it unless you've experienced it yourself. It's worse than words can describe. To this day, family, friends and doctors still think I'm just having panic attacks, but it's so much worse. Trapped in hell and understood by no one.
😭😭😭 I'm so sorry!!
(Haven't watched the video yet )
I’ve had severe akathisia and my doctor also said it’s just anxiety. There are no words to describe the torment. I’m so sorry you are going through this too
@@Irishrose777 Misdiagnosing akathisia is a big problem that needs to be changed. It is probably also the reason why my akathisia has lasted so long. I was always told it was just anxiety and given lots of medication that only made everything worse. In the end they even wanted to give me antipsychotics without me ever being psychotic. Luckily I found out about akathisia and didn't take it. If I had trusted my doctors, that would have been the end for me. It's good that you have recognized your akathisia as such. I wish you all the best and hope you recover and never have to experience this again. 🙏 Keep in mind that your nervous system is now more sensitive to medication.
@@adf4548 when I had akathisia I went to the er after a week. I didn’t know about akathisia back then. They gave me reglan which is a lot Ike compazine, an anti nausea med that’s also an antipsychotic. It was the worst torment on top of already feeling tormented. Doctors are so ill informed when it comes to the this condition and it’s such a problem how they pile up meds upon meds that can worsen the condition. I did heal thankfully but I get mild akathisia from time to time but I don’t have to pace all day and night anymore
THIS WILL HEAL IN TIME. This happened to me with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
Crazy that I spent my late teens and most of my 20s doing every street drug that came my way with no side effects except the legal ones.
That people have reactions to things Rx’d to them that is supposed to help them blows my mind.
I am feeling very fortunate right now
@@discdoggie right... how scary is that!!
I was a heavy IV meth and cathinone addict for YEARS. Had no lasting effects or damage. Came off the ssri celexa and developed full-blown blow pssd. No more emotions, severe cognitive impairment, anhedonia, visual issues, inner akathisia, complete loss and sexuality and sexual function, and many other symptoms likely for life. Im living proof street drugs are safer than psychiatric drugs.
My heart goes out to this beautiful woman who didn't deserve any of this. I wish for her healing in the fastest possible divine timing.
Civilisation is insane. Literally. Mental health patients have a story to tell that shines a light on the insanity. The system doesn’t want that so it numbs us with drugs for there benefit, not ours. Love and Power to humanity
Yes, we need change. We think we're so sophisticated and civilised, but I sometimes think the mental health system is a bit medieval.
@@jasminebarratt1809 I pray the tide is changing. Grassroot groups against this tragedy are growing but I fear too slow for many that have been harmed and continue to be harmed by psychiatry and the toxic meds🥵
Yup. Thats exactly it.
Compazine almost killed me as a child. I was given them to take for vomitting and nausea and was given the dosage for a grown man as a very petite 11 year old girl. My head started spinning around backwards as I was watching tv. I thought I was posessed. I had to hold my head straight by pulling my hair over my face to run and tell my mom. By then my back started doing the same thing, I was layed down on my stomach and my legs came up to the point my feet were touching the back of head. She called 911 and luckily our neighbor was a doctor so he came and gave me a shot of benedryl. In the ER they gave me so much benedryl, and it wasnt stopping. They were afraid my heart was going to stop. I was in the hospital for days. Compazine almost killed me, and stupidly enough an ER doctor gave me Reglan for a migraine and i jumped right out of the bed and was pacing the room. My legs would not stop. The nurse said "oh you must feel better!" ...no, Something is wrong! Luckily it went away the next day. I found out afterwards reglan is in the same class as compazine! Doctors are so careless.
Your story is heartbreaking.💔 They all are. Most doctors become angry with me as an adult when I ask questions, I can’t imagine being a child and at the whim of doctors. 😔
The neurologist at the hospital after I was admitted for a csf leak wanted to give me Reglan and Benadryl. Thank goodness I did not take it! Later a nurse was bringing Ativan in iv, I told her that’s it I’m leaving! I had already had the procedure and I was not going to continue with them trying to extend my stay!
Thank you for sharing your experience. I’m so sorry you went through that.
I had a dystonic reaction too to Inapsine/Droperidol - which is another dopamine antagonist - also I had severe dystonic reaction. Was given 3 shots after surgery at 19 - I developed severe OCD which led me to a suicide attempt. Took me 15 years to get better - still have some OCD but not nearly as severe as before. Still these drugs can have lasting effects. I'm so sorry you had this reaction too!
I agree with every word from Danielle and my heart goes out to her. The medical industrial complex is totally out of control and without compassion or understanding of the "poisons" they are pushing.
They know the real effects. They just shrug it off. Why? No consequences. Whatever damage the thing does just attribute to the patient. "His head not working properly". Even more, dont question because they are angels, and their intentions are the most pure, "they just want to help", any question means being bad.
This is pretty much my story. 4 years ago I awoke from an operation feeling sick, was given Zofran and Droperidol and the Akathisia hit. Was told I was just anxious and was put into a mental hospital for a month and polydrugged. Now I'm in the fight of my life to get off benzo's and have been injured by so many other things. My kids keep me going but the suicidal ideation is severe. No one will ever pay for this except me and my family.
Gosh , that's awful , and i'm so sorry to hear that happened to you😢
Hi Tess. I know your story from your interview with Angela Peacock. It happened to me too (Reglan injury). I'm finally getting my life back. It took about 4 years for me to start to turn a corner, and 5 years to REALLY turn a corner. My length of time healing is not the norm. It usually takes less. I had SI too & I am finally getting better, & getting joy back into my life. Hang in there. -❤ Shelly
@@idesigncutethings2196 So sorry this happened to you. That is such a long time to recover. I am so glad you are getting your life back and the SI is faded. Wishing you the best from now on
Im tapering too!! You are not alone.
Omg, I took Reglan for years, and I’ve been taking Zofran recently. 🥺
I'm so sorry you are going through this and I fully believe you. I've had akathasia and it is horrific. The profound feeling of doom, the restlessness, it wanting to crawl out of your skin and your own life - it's so awful and so hard to explain to people. I wish it on no one. You deserve so much care and understanding.
I’m so sorry. Your story breaks my heart. I turned down compezine once after surgery, wasn’t sure about it, and now I’m glad I did. You will heal from this in time. Zofran can cause aka too. I had that a couple of times after getting it but fortunately it went as the drug cycled out.
My in laws told my husband I was an addict and was sneaking pills behind his back. Anyone who knows me knows I hated being on the benzo which was very short term. I took my last crumb and took all the meds to the police disposal bin. It was such a hurtful thing for them to say and I’m sorry your parents/inlaws are saying those things.
What? Can Zofran also can cause it?
Because that is what I was thinking about, that why don't they use Zofran. I thought that one was very safe.
How big dose of Zofran did you use when you got that side effect?
And was it a continuous dosing that caused it. Or can it cause it after a single dose like this video is talking about?
As an RN in a hospital setting, I feel I must offer some sort of defense. The video begins with her stating she was suffering from 'severe' headache and nausea, but we aren't given any parameters. Had she contacted her primary care physician? Had she bothered to read up on the side effects/adverse reactions associated with birth control pills? How frequently she was experiencing the nausea? Was she actually having episodes of emesis? How long had these symptoms been occurring, etc. What were her lab results? Did she have normal sodium and potassium levels? (Highly unlikely if someone has been having non-stop emesis.) There are a lot of possiblilties.
Unless she emphasized the nausea, I have a difficult time believing compazine was ordered without justification. Given she was complaining of severe headache AND nausea, she was given a medication that can be used for BOTH complaints. In the ER at my hospital Zofran is the go-to for nausea, unless the patient has an allergy, or some history of not tolerating it. Anectdotely, I have probably given GALLONS of compazine in my 27 years an RN and never seen this reaction, which she later states occurs in 40% of the patients receiving it. I could not find any documentation of this in commonly available literature. Not saying the reaction percentage isn't that high, just that it seems statistically suspect that I have never encountered this in all the years I have been in practice...half of that as a chemo infusion nurse, so I am well acquainted with antiemetics.
We don't know other details of the situation. Nothing of the intensity of her anxiety and/or the family's experience with her symptoms/behavior leading up to this episode. Could her anxiety be exacerbating her symptoms? That said, their reactions may be perfectly normal in relation to other instances of her 'medical' anxiety. We have no idea what her baseline behavior might have been.
She states she accepted the medication and blames the staff for not telling her what it was. True. The staff should have told her what she was being given - and why - but, in all honesty, she should have asked. Had she been told what it was, and that this was a possible reaction, would she have rejected the treatment?
I feel empathy for her situation, but these things can happen and spending so much time and energy obsessing over her symptoms isn't a good thing. She doesn't share anything about what she has been doing to transcend this, except for wanting others to 'do something'. Whether the symptoms are psyhcosomatic or physiologic, the suffering is real and taking a toll.
I take care of many patients that suffer with chronic health conditions for which there is no cure, and endure the most devastating effects on quality-of-life you can imagine. In those kind of situations counseling/coaching and learning coping techniques, can go a long way toward acceptance, developing resilience, and getting the most out of the life you've been handed. I wish her the best.
@@darlenebradley6756 Did you not mean to post this as a new OP under the video? Because you don't seem to respond to the OP anything. And you only talk about the video it seems like it, right?
In summer of 2019, I went into the ER for severe benzo withdrawal, migraine and dehydration; I had been awake for over 24hrs. They gave me compazine and it blew up akathisia. A neurologist NP I saw later that day said she recognized the side effects of the compazine (the constant movement). The intense terror of akathisia is the worst part.
Same thing happened to me also in the summer of 2019 with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much, to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
@@idesigncutethings2196. Sounds very similar to my experience with Akathisia. Had been on Ativan for about 5 years at the time. Think I was in tolerance withdrawal and one day I just flipped into flight/fight mode 24/7. Couldn’t settle down. Had to move. Lived in a state of terror for months. I would take 1mg of Xanax the doctor prescribed at night and I’d get 2 hrs of sleep and wake up in a terror state. Eventually over a long period of time I slowly got out of fight/flight mode, on my own I might add. Doctor told me to just take more Xanax to treat it. Luckily I just felt like that was the wrong thing to do.
Oh my goodness
I had akathesia from protracted benzodiazapine withdrawal and I agree with you. Its so hard to describe it to someone who hasn't gone through it but its so excruciating and difficult to put into words. I would go so far as to say it's nearly impossible to fully describe it. The way it's usually defined does not do it justice at all. It's not just a feeling of being "uncomfortable" or wanting to "crawl out of your skin" or feeling "restless." It feels like a physical and mental pain so intense and hard to describe. You do feel like crawling out of your own skin and being extremely restless but you also feel like you are going insane and at the same time aware of it, almost like an observer yet you feel the pain and no matter what you do it wont, go, away. Add in impending doom, insane levels of terror as well as physical symptoms such as heart palpations, dizziness, tremor, spasms, intense head pressure, etc. We need more awareness of this side effect and more doctors need to STOP brushing it off as "anxiety" and accept the true nature of it, an iatrogenic injury.
I pray so much for you. I have also experienced a complete body and mental break down with akathisia and 1000 of other terrifying symptoms, by a hormonal coil in a mix of one antidepressant. I only live because of my kids and I feel SO much for you. I am terrified of the healthcaresystem both for myself and my kids. Thank you for sharing your story 🙏.
Joseph, I really hope that this comes out in the public in the press and not only on youtube and all the other stories maybe as anonymous patients/people.
Im so sorry ill never be the same and now have covid for first time
@@DanielleRambo-yl1qe I am so sorry to hear that. I will pray for you 🙏
I describe Akathasia as restless leg throughout my entire body... People can't possibly understand until they've gone through it.
Agreed, it is very hard for someone else to understand.
I had a similar reaction to Droperidol/Inapsine. Was given 3 intramuscular injections, and went into full dystonia. It took the hospital 6 hours to figure out what was wrong. All the while I lay there, in full terror, my eyes rolling to the back of my head, stomach muscles seizing up, neck twisting, tongue rolling to the back of my throat and my teeth clenching so hard I thought they'd break. It was until the hospital pharmacist came to my bed that he looked through my chart and realized what was happening. The doctors, nurses, staff - the rest were useless. The nurse told me to "try and relax." I was absolutely terrified. All this because I was given this drug after a surgery. I was only 19 at the time. It ruined my life. I developed extreme OCD as a consequence of this med. I didn't realize it at the time but now I know I was injured long-term from it. I had NO anxiety or OCD issues prior to this incident. Doctors need to know about these side-effects and to look for them. People need to be aware that a lot of people react to these anti-nausea/anti-psychotic meds. Go online. Look up all the terrible reviews on some websites.
I believe every single thing she said.
After I had gotten akathisia from abilify I realized I had also had it during my last c section. I had the intense urge to move during the section and moved my arms up and down the entire time until they delivered the baby and gave me some anxiety medication. So now I'm understanding akathisia on a different level.
I also havent been the same since that section. I hit a deep depression and feel like i couldnt come out of it.
Anyhow, if shes reading this, just know, youre not alone and you are believed by some of us.
My life is so different now since i got the extreme akathisia from abilify. I lack motivation to do just about anything. The akathisia isnt even that bad anymore. I just feel trapped in my brain and body. Im not having the pacing or intense terror anymore. Im just trapped. Like i cant do anything.
These pll burn your nervous system from the inside. Thats where you get that defeatist feeling. Your nerves have been fried.
My friend killed herself after she didn't recover from ability injections she waited 2 years and killed herself after not recovering 1%
Uhhg...so sorry to hear that. It is infuriating.
Same here. I have no other option. (3.5 year not 1%)
No one will be held accountable.
Life was good until i went to my doctor for help and ended with a prescription for death.
@@grv91vr23
Oh my gosh!! I just can’t comprehend this utter negligence!
Please, please, can you get yourself to a Bible believing, Jesus (no other!) following church, and get the pastor and others to pray for you.
You might not know of God, as I once didn’t, but oh my, I have had healing from so many things, and I’ve watched others get well when there was no hope.
Akathesia has nearly driven me insane, but I have hope in my heart. I have adult children, but sometimes they haven’t been enough to keep me here. It’s my trust and hope in God the Father, who will not let go of your hand, once you hold it out to Him.
He is closer to you than you think.
I’ll be praying that you reach out to Him who treasures you, and longs to help you 🙏
jajajaja, and they say its us who are "a danger to others"
@@grv91vr23 How will no lawyer take these cases?
I went to the ER one day for severe vomiting and stomach pain etc. They hooked me up to an IV to give me fluids and then said they were giving me something for nausea. A few seconds later I began flopping around on the bed like a fish. I then jumped up off the bed yelling for them to help me. I needed them to unhook the IV so I could move, walk pace and your mind is like going nuts in a severe restless way. I actually hate using the word "restless" when I speak of akathisia bc I feel it doesn't so anywhere near justice to what the feeling is actually like. But to people who don't know what it feels like it's really the only way. Anyways, the med the shot into my arm is something called Droperidol. It gave me horrific Akathisia that lasted for months. Akathisia is hell on earth. Especially when you have doctors who have no idea what they are doing and how to treat it. It made what would months later be diagnosed as an active H. Pylori infection, THAT much more brutal. And by the time the infection wad found, it had created 2 bleeding ulcers. Took months of antibiotics to get the infection out. But the worst part of this is that the nausea med left me with what a previous guest goes through. Basically a chemical lobotomy. I replay it in my head all of the time wishing I hadn't gone to the E.R. or at least not THAT ER. My life hasn't been nearly the same.
I’m so sorry. 😞
What a horrible experience...so sorry this happened. You did what you believed to be the right decision at the time in regards to going to the ER, unfortunately they made the situation even worse. Sincerely hope that little by little the days get better and with patience you will fully recover. Our bodies have an absolutely amazing ability to heal if given time...please give it that time. Best wishes for a complete recovery.
Wishing you wellness. Too many drugs cause this in people. I’m hoping for a day when they all get replaced or have society that better supports illness without the need for them all together.
I'm so sorry this happened to you. Please continue to speak up!
Very interesting. I had akathisia for several months back in 2010. I believe it was from Ativan which I had been taking for 5-6 years. Then several years ago, I had my thyroid taken out due to thyroid cancer. It’s a long story, but basically, they took my right thyroid out , found cancer then had to take out the left thyroid 2 weeks later. I had told them the only problem with the first operation was I felt a little nausea afterwards. I don’t know for sure if I was given any anti nausea med for the 2nd operation, but I came out of surgery with very high blood pressure and developed akathisia. I was pacing the hallways of the hospital all night long. Could not sit still. Impossible. Nurses probably thought I was nuts. They offered me more anti nausea meds and tramadol. I declined both. Fortunately, over the next couple of days the akathisia went away.
Like the OP said, you cannot describe akathisia. It’s the worse thing ever.
As a nurse, we gave Compazine as a first line treatment for migraines in the ER 20 years ago, because there was typically a secondary nausea symptom assiciated with them and it seemed like it helped with the pain itself, particularly if the etiology had associated anxiety. This is the first I’ve heard of the fact that the primary classification is antipsychotic and not antiemetic. If we actually listened to patients we would give 75% less medications than we give now (and then). Have hope and faith that drug-derived akasthesia does heal over time ❤
I was hurt be Reglan, Danielle. I am 35 too. And I have kids too.
I know how you feel, we will make it through for our kids :)
I had some pretty bad reactions to Compazine so when I saw this video I had to watch
They gave my husband a Haldol/Benadryl dose in the ER because he had a massive headache with nausea and I was afraid he was having another hemorrhagic stroke. They quickly gave him Haldol/Benadryl and within 30 minutes he was agitated/fidgeting/skin crawling/couldn’t relax and we couldn’t figure out that it would be anything but what they’d given him. Turns out it was just a migraine as the CT scan showed no stroke, but they sent us home with a prescription for Compazine which something told me NOT to fill. Glad I didn’t! The feelings did eventually pass after about 18 hours. Why are they recycling these antipsychotic drugs for migraines?
I’m so sorry this happened to you, young lady. Please know you are doing such a service for others telling your story.
Compazine is horrid. Made me crazy!
@@foxibotI took it in the late 80s for nausea, I was in my late teens. I had NO idea it was originally an antipsychotic! Now I'm tapering off a benzo & wondering how the drugs I've taken years ago may still be affecting my body today.
@@drunkensquirrel7545 I didn’t know it was an anti psychotic either, but know a pain Dr gave me an antipsychotic for nausea and it changed my whole personality, I didn’t have the skin crawling and the felling of restlessness like compazine did though. Please taper off you Benzo extremely slow, so you won’t have issues,
I told my pain current pain Dr that I will taper off myself when he said DEA doesn’t want people taking it so I slowly slowly did it and was ok. My friend who was on a Xanax for over 20 years for anxiety didn’t listen to me, let her crazy husband I can’t stand who is abusive convince her to get off of it and last I heard she was going in for shock treatments. She couldn’t do anything and then she got very mean, understandably, and she couldn’t focus and it ruined her whole life, I haven’t heard from her since, and I tried to see how she was doing but no answer.
This guy on YT had a heart attack when he was fast tapered, and I warned her not to do it but to slow taper and of course she listened to he abusive husband. I do hope she is ok. I think he did it to her on purpose so he could control her, and tell everyone she was crazy. She is older than me and had severe anxiety, I used to take Ativan for sleep and to relax my muscles and the first time I got for off it couldn’t sleep and was awake along with my cousin who also couldn’t sleep, because she took it for anxiety. So I knew the 2nd time I had to do it slowly.
I had cancer diagnosis not that long ago, and it was bad bad what happened to me after, I nearly died from hypercalcemia and this nutty ICU dr takes me off my pain meds and turns out I have complex regional pain syndrome, so I hope I can sue her and the hospital. The lack of calcium after caused me to have a heart attack and also another hospital ER and drs after going several times when I was choking, ignored me when I said I was choking and let the tumor attach to my laryngeal nerve. It took years to find a Dr to diagnose me while it grew.
My electrolytes went crazy and it felt like I had severe anxiety which the dr told me happens and he had kept me an extra night to make sure I was ok, well it didn’t happen til about 2 months later and I nearly died! I had a heart attack and stroke and pneumonia and was projectile vomiting. I no longer trust ER’s or hospitals, they had asked my pain Dr to medicate me and before that they made me think it was medication causing it. So I got off everything for a short time. I found a dr who believes me and he scoped my throat and saw what happened and said you have cancer.
I’m too sick right now and this complex regional pain syndrome is hideous! I took ketamine injections a long time ago that numbed me out for 2 months, on my injuries but my brilliant dr who was also a expert chronic pain Dr and pharmacologist and cancer Dr said I couldn’t use it for painful urinary tract disease IC interstitial cystitis, but the numbing shots were amazing, with the ketamine in those areas for about 2 months. I said let’s do this to my diseases!
I have autoimmune diseases like IC and ulcerative colitis and endometriosis that cause bad pain. He was also a cancer dr but I didn’t have it back then, and he died suddenly so that was like losing family. Now I have to find someone who is an expert in this complex pain syndrome, it’s horrible, I woke up screaming the other night and my body has numbness and tingling and acute pain. Even my chronic pain dr dosent understand.. They said I have triggers and I thought yeah your hospital who hurt me was a huge trigger.
This crazy nurse after I got out of ICU I couldn’t even walk or stand because I couldn’t eat, doesn’t let them help me transfer me from my gurney and said I could do it with me saying no I can’t so then I got hurt, and they had this horrid old machine where you put this thing over your neck and head and injured me and scraped my back. I refused to do it again and they had to sedate me to get me to do it again. Lucky me they found a brain lesion! So I have a neurosurgeon I see now.
I am totally discouraged with my current medical situation and fear hospitals so I suffer, horrendously, , I never had this until I lost my great Dr, who would have listened to me, this is how people are treated if they are female or chronic.
He said when Drs can’t cure you they get angry and take it out on you. He said I have cancer patients so I just want them and my chronic pain patients and get this best quality of life I can give them. I also lost my vocal cord which has devastated me, I remember when I was hoarse and I couldn’t get it better and it got worse! I was talking to another person who lost theirs and I was trying to encourage them while being scared myself, my intuition knew something was drastically wrong, and sure enough a few months later I was being told the bad news, and it ruined essentially killed, my laryngeal nerve.
Horrible part is after surgery it’s even worse, and I don’t want a needle stuck in my throat with no pain meds or numbing to get the injections because I’m in acute pain. Good luck and I pray and hope you will slowly taper with no side effects or long term, benzos I think as along as you taper off extremely slow or ok, I think when these drs taper you fast your body goes into shock and it messes your brain and central nervous systems up. We need to change the way patients are treated. And it’s gonna take a whole new mindset and the DEA off of chronic pain patients. When a Dr against opiates gave me trazodone for sleep I wrote a paper on how horrible it was and I tell people do not take that either! It’s another anti psychotic. And it’s horrible in my opinion. And so is Gabapentin which they gave me in hospital and it is also horrible. And there is no proof it helps pain. I have never had an issue with pain medicines, and if you get off you just taper off slowly.
They’re terrified of opioids. They will give you ANYTHING but opioids, even if it’s something that’s 100X worse.
They must keep us under the illusion that they know best. Thats their livelihood. Never mind common sense.
Secondly she is correct. If her anxious son is the child that had reglan in the womb, he is fragile to these types of drugs such as roids and the 'anti' medications, like herself, me and my 2 kids! My son tics after any live virus vacs.
She's incredibly intuitive & Everything she said is reliable to me, including not being believed.
I pray she opens up a youtube channel.. 🙏
This poor woman. The hospital probably gave her the drug because she said she admitted health anxiety prior. Never admit any mental health concerns to doctors. Once it’s in your records no one with ever take you seriously.
I got this drug for nausea/migraine from birth control
exactly, scapegoating all the way
I believe you! Because 8:33 The same thing happened to me from compazine! And from holidol. I was illegally injected in an urgent care with compazine back in 2018 and had the EXACTsame reaction you did. I’ve never been the same.
I'm so sorry this happened to you too.
@@taperclinicthank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic homocidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic h0m1cidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official med injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic h0m1cidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my med injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
@@taperclinic thank you ❤ I have a really complicated polypharma history that’s left me disabled and unable to work or return to college. This all started when I was 17 and I’m 25 now. Finding your channel helped me finally figure all of this out and start reexamining my medical records. Akathisia has been my only official drug injury diagnosis. However I was on trazadone, Zoloft, Ativan, klonopin, zyprexa, nortiptaline, trileptal, celexa, Wellbutrin, Benadryl, scopalamine, vyvanse, caffeine, nicotine, tramadol, Celebrex, albuterol, birth control pills, and maybe a few others all in different combinations and different times over the past 7-8 years. Oh and Ritalin. I have a genetic difference which led to that one causing a manic homocidal reaction in me. Anyways tho I have a lot of neurological damage from what I suspect where some prolonged serotonin syndrome episodes as well as cold turkey withdrawal from benzos, trileptal, vyvanse, and trazadone. And I was in interdose withdrawal from tripleptal for FOUR YEARS because i was only taking it once a day. i would love to interview with you at some point to share my drug injury story and what im going to help heal myself. because i am finally making some progress and regaining my old self back.
I am still hainted by akathisia. paramedics gave me droperidol. Within a fortnight I took two zyrtec antihistamines and the akathisia terrifyingly returned=, waking me in the night. Doctor dismnissed me and said was a panic attack. It was NOT a poanic attack. I will never call an ambulance ever again. Akathisia was without any dount the most hideous experienbce, and the one thing in life that terrifies me more than anything. It is like crucifixion without even the prospect of death's release. It's like being buried alive, like claustrophobia. No drug with the remotest chance of this side effect should never be used, let alone drugs like droperidol that have such a high chance. ALL DOCTORS need to have this condition induced in them and then there'd be a change!
Both experiences lasted under 24 hours, but unforgettable. I feel like it is stalking me now.
The more i listen to people's stories and look back at my own, the more I come to believe that drug injuries are a bucket type of thing... like the damage goes unnoticed until it blows up.
I recently had really severe akathisia for months from benzo and ssri withdrawal but had glimpses of it when i was given iv reglan a few years ago. Back then, i didnt know it was akathisia. I had been given iv reglan multiple times before and am also kindled with lexapro and benzos. The recent withdrawal is my second time withdrawing from these meds and im protracted and suffering horribly beyond human understanding with literally more than a hundred symptoms. The first withdrawal i barely noticed a thing...
Anyways, akathisia is the worst hell no one should go through. There is simply no word to adequately portray the torture.
I guess what im trying to say is, it could be that medication injuries are cumulative without you even noticing it until the final blow
OMG I KNEW THEY WERE GOING TO SAY COMPAZINE!!!!!! I had major vomiting and nausea from a kidney infection. They gave me compazine and I felt like i fell into a dark tunnel - I was falling and completely felt like I had separated from my body. I couldn’t even call out for help. I then went into this place where it was like upside down world - everything was black and white and gray and I kept hearing static sound like on a TV that is disconnected from cable. Then I got this overwhelming feeling of death and dying. I felt like the worst doom of my life. After about 15 mins I began to panic and scream AND I STARTED RIPPING MY OWN HAIR OUT!!!!!!! I was yelling for them to KILL ME!!!!!! I reached out to one of the nurses (or whoever it was - I couldn’t connect to anyone) and tried to grab her and was trying to get her to look at me and acknowledge my intense fear!! She took my hands and held them down and I tried to fight her (I am not or ever have been a violent or angry person - not ever physical) and all I could think was to gouge out her eyes she looked so EVIL!!!! She had this quick realization that I was having a bad reaction and gave me an injection of morphine right away. This cut the experience in half - I finally was able to think straight for a minute and just kept apologizing profusely!!!! She kept trying to calm me down telling me it was ok and I was safe and that I was having a reaction to the compazine. She later told me they used to use it as an antipsychotic but that in some people it causes PSYCHOSIS!!!!! I WAS PSYCHOTIC!!!! They were very apologetic and told me that for the rest of my life I need to tell EVERYONE that I am ALLERGIC to compazine and any med in that class. The Drs always ask me what my allergic reaction is and I say “Psychosis, I’ll gouge your eyes out!!! 👀 “ and now I tell everyone I know that if they are ever nauseous - DO NOT LET THEM GIVE YOU ANY OF THE ANTIPSYCHOTICS!!! I still have nightmares about that episode and that was 15 years ago.
😭😭😭
That's horrific. Like being part of an alien experiment & gave you a form of pts, when your still feeling the trauma!😢
This is despicable!! I’m so sorry ❤
This is why I don’t take meds so easily. I’m a nurse, but I like holistic health. Try to resolve things holistically before turning to medications right away
How can you continue being a nurse then if you think the meds are dangerous and you have to give them to patients?
@@yoursugarisminewell said
@@yoursugarisminepushing poison to unknown patients and going holisitic yourself
She has to survive.
When I was in the hospital for an outpatient procedure, I had a migraine with nausea. They gave me Reglan in my iv, for the nausea. I had the exact same reaction. I wanted to rip off the blood pressure cuff and iv and run out of the hospital. I told the nurse, and she put something in my iv to counteract it. I’m not sure what, but I guess I was lucky that the symptoms stopped! I can take Zofran/ Ondansetron with no side effects, when I have nausea.
I had full blown akathisia and it still rears its ugly head now and then. Many doctors do not understand it. Nor do they know how to treat it. It’s deadly. The fact that this woman was suicidal within 3 days of the onset of symptoms is testimony to how horrific it is. And it’s so common that aka patients are misunderstood.
Same happened to me. I got Haldol after a few minutes in ER saying g I have abdominal pain never said I'm nauseous! They said they would give me something for pain and quickly they had Haldol on my arm but they did check my heart before! And I asked why and they said they always fo that with abdominal pain but nurse seemed to hide something and I found out that protocoll if giving Haldol in iv you should check heart for Qt prolongation before giving the Haldol! So they were sneaky! So why give me sneakily an antipsychotic saying its gor nausea if I never said I'm nauseaus!? I think they give it to people to simply SHUT THEM UP ! I went in the night and they were all sleeping in the chairs! These are. Helical restraints amd if you just alittle bit agitated and looking you gonna press the button for help more than once they put you into chemical restraints knowing it has these side-effects in some patients but they still first knock you out and then cause akathisia! They don't care if you pace for days if they just shut you up for the er stay! They are selfish nurses and docs i think and haye their patients especially. If they possibly classify you as hysterical, or drug seeking ( esp. during night visits). Try to go during the day with a partner and never let them.just give u anything without checking it online. Make sure it isn't an antippsychotic or anything which messes with dopamine receptors! These are many nausea and abdominal pain meds and if u say u have headache they assume u are nauseous too!!
Btw I had akathisia for 3 days after the Haldol shot but I also had REGLAN years before and it also.gave me akathisia or acute dyskinesia. Valium was the antidote. But now benzo ativan gives me trouble after only 1 week of use!! I now do not tolerate many meds and issues with certain antibiotics like amoxycillin! Also I have bowel issues which seem to be at the root of my reactions!
Wow really u still cAnt tolerate antibiotics
Pharmaceutical
HARMaceutical
I had this happen in an ER waiting room after being given reglan it does cause skin crawling feeling and makes you feel suicidal…I feel for her it was the worst experience I’ve ever had…they say I have anxiety from reglan …um no it was Akathisia…medications cause it
I was given compazine for nausea while pregnant with my 2nd child. I was instantly freaking out my blood pressure was super high. So they gave me Benadryl. So I was way out of it. From that point on my chart says compazine allergy.
Thank you so much for sharing your experience. I’m wishing you so much wellness. ❤
I have severe Dystonia and Akathesia reactions to these class of meds and my PCP told me to let any medical professionals to know this. These are used so much for migraines, and when I’ve gone to ER for severe migraines they want to use them. Once I repeatedly asked the to not administer Droperidol but they didn’t listen. I was to sick with the headache to advocate for myself. I of course had a terrible reaction and they quickly came in with meds to counteract them, but it’s always a nightmare after getting these medications for about 25 hours.
People don't realize that Benadryl alone can cause a psychotic break
Woah really
www.ncbi.nlm.nih.gov/pmc/articles/PMC5874453/
Thanks for the reference - they started the taper at 200mg QD with a 25% decrease Q3 days in that case study - with neurological symptoms that were that extreme, thats quite fast. I wonder if they even asked the patient what he was consuming at baseline pre-admission.
I got full-body dystonia from Zofran after having my gallbladder removed. The nurses told me I needed to “just breathe and relax”. 😳
Fortunately, it resolved, but never again.
That is terrifying! Happy to hear you recovered.
I've gone through all you've gone through. I'm on 4 medications now that I wasn't before, but completely back to myself. Akathesia free. I can't believe it, I thought I'd be like that forever, it lasted 5 months.
Years ago I added compazine to the list of "allergies or adverse reactions." Compazine is an old antipsychotic analog of thorazine, stellazine, clorpromazine." I had a gyric crisis when they gave me Tigan for nausea. So I added this to the list.
Benadryl is great, but in my opinion Atarax (hydroxizine) antihistamine would have been better for nausea. Sometimes they give Zofran, but I always declined it. Antidepressants are overrated, dangerous; I'd rather take METHADONE. Antibiotics, really do a number and side effects listed are depression.
Is it really possible to restore the sensitivity and number of dopamine receptors, which is normal for you? Or is it irreversible changes (such as tardive dyskinesia)?
Reglan did this to me.
Me too. Raglan IV for a migraine. It was like I desended into Hell.
Thank you for sharing. I’m so sorry you are going through this.
I got Ankathisia from protracted SSRI withdrawal after being off of Zoloft for 3 weeks. I wanted to crawl out of my own skin. I couldn’t stop pacing, could never get comfortable, my heart was constantly racing. I couldn’t eat to the point where I lost 15 pounds in a month and a half. It was absolute hell. I hoped for the end because I couldn’t imagine living around day like that. I had no idea that this could be a withdrawal side effect of Zoloft. I wish I had been informed.
So I’m back on the SSRIs just to prevent withdrawal. I am going to try to taper again slowly but I am scarred from Akathisia. it took almost a year to feel normal again even after I got back on the SSRIs. I don’t think I could live that like again but the SSRI side effects aren’t great either.
A good resource on protracted withdrawal from psychiatric medications is the maudsley deprescribing guide. It says that some patients incur injury from protracted psychiatric medication withdrawal that do not improve, even after you go back on the medication, with akathisia being one of the side effects listed. I wonder if something similar happened to you when you had the reaction to clozapine. If possible, I would try to find a psychiatrist that specializes in protracted withdrawal or desprescribing.
This is so sad...but what can be done about these kind of reactions? It seems she went in to get treatment for severe nausea and was given something that, for most people, is a usual and successful treatment. In that case, I would have a difficult time blaming the ER doctor for what has happened. Did she even ask what they were giving her? In all honesty, there is no way to predict, in advance, what adverse reactions might occur. People typically discover these things after the fact.
I do have a problem with the resistance on the part of the doctors to take her complaints and symptoms seriously and my heart goes out to her.
Thank you, Dr. Josef, for another informative video. As an RN in a busy hospital setting I find these very helpful and can say I have benefited greatly from the education.
I was given compazine for a migraine and I felt like I was enraged. I had my fists ballled up and my whole body was rigid like I was about to crash through a window. The nurse acted like I was crazy and said there should be no side effects.
Sounds like you had akathisia as well. It is one of the most terrifying symptoms in my opinion.
The side effects sounds like what ivsuffer from with anxiety and depression i have been crippled with it , ive only just gotcright on Setraline im actually back to my normal i have not been able to function previously x
I am autistic and I was given topomax for migraines and it made me feel how she described, I had derealization and I felt like I was going crazy and having mini strokes or something I am hyperlexic and my vocabulary is “very superior” it is one of my key skill sets(that’s the wording they used on my evaluation for autism and adhd, lol I’m not just self absorbed) but I felt like I couldn’t think with words, normally I can struggle to explain my feelings but this was different, I couldn’t form sentences in my head and I couldn’t even talk correctly I wish I had looked it up before I took it because apparently allot of people have severe reactions to it, ALWAYS look up meds before you take them - I still haven’t found relief for my headaches and it’s been three years, I even stopped my birth control more than once and switched to a different kind with no improvement:-/ I had spinal surgery and that helped for a like while but they just got worse again and I don’t know what to do, I’m miserable
15:50
Yes, they refuse to diagnose me with TD or movement disorders and keep telling me it's Fibromyalgia but I'm scared to take gabapentin or other antidepressants😢
I was reading that Benadryl is given with compazine to reduce the adverse effects. This would indicate that there are known adverse effects.
I got Benadryl same time it did nothibg
Thanks for giving medical injurie a face and a voice. It is heartbreaking your not belived by those who did this to you. The trillion dollar pharma companies are responsible
A hypothesis is that the drop in dopamine causes the brain to try to compensate with epinephrine, which increases dopamine via beta receptors. Epinephrine explains the restlessness/akathisia.
Other drugs can also can cause akathisia, confirming the above:
"antibiotics [30], calcium channel blockers [31], and even illicit drug use such as
amphetamine, methamphetamine, and cocaine [32] can elicit akathisia" from
Revisiting antipsychotic-induced akathisia: current issues and prospective challenges, 2017
Indeed it seems to be epinephrine, would also explain why benzo and calcium channel blocker withdrawal-caused hypercalcemia induces akathisia, because hypercalcemia correlates with high epinephrine
Sympathetic system function and vascular reactivity in hypercalcemic patients. 1982
Interesting
What a nightmare . ❤ i wish you peace and health .
I was offered anti sickness drug for a bad migraine. Got home realised it was an antipsychotic drug!!!! ETF😮
THIS WILL HEAL IN TIME. This happened to me with one dose of Reglan I.V. in the ER. Unbeknownst to me, I was already in tolerance withdrawal to Ativan. I was having vertigo/balance/feeling boaty and feeling very weird & uncomfortable in restaurants & on busy highways. It never really felt like true anxiety. It always felt weird & extremely uncomfortable. After going to an ENT, & an Audiologist & having all the vestubular testing which found nothing , I kind of gave up on trying to figure it out, but the boatiness got worse & so did the other weird sensations - like feeling like I was going to fall out of my chair in restaurants. This went on for almost a year. One day I got frustrated thinking I had to have a brain tumor or something, so I went to the ER. They gave me Reglan with Benedryl IV and during the IV injection it felt like instant brain damage. I paced the next day at home & many other symptoms. Basically what happened, in hind site, is that I had already had some akathisia from the Ativan, and I was given Reglan which causes akathisia. It's taken me 5 years of being med free, eating clean, not able to work or do much to finally get some normal life back. I have a friend, Samantha Long (her story is on MISSD) , who I met on a Reglan support group on Facebook who had this same injury from Reglan. It took her 6 years to get back to work part time. Many people get this from the anti nausea drugs, and it resolves in a few hours, a few days, a few months. For some, like myself, it can take years. For me, I am overjoyed that I am finally getting my life back, but I won't touch an antibiotic or surgery with a 10 foot pole as I know I am sensitive. I won't even take vitamins. I am clean clean clean ... letting my system heal.
How long did it take u
Your better now??
@DanielleRambo-yl1qe it took me over 5 years. I was not in an acute state the whole time, just the first idk- 4 months or more. Bad enough that I could not leave the house without being in some kind of pain for a very long time. Things slowly improved with each passing month. I started to see bigger healing strides at 5 years. I can still get flares because of stress about 1-2× a year. I know i am sensitive, so I take zero meds. Will need to be life or death in order for me to ever take an antibiotic, but I get stronger & stronger as time passes. Hang in there everyone. It gets better with time. In the last year, I have been attending fall festivals, family holiday gatherings, outdoor small concerts too & able to enjoy them. 😊
Geez man.. I went to the ED for severe migraine, all they gave me was Panadol Forte + fluids… and some drug for nausea which is available over the counter… OMG I am so lucky
Wow that is exactly how I feel! Screaming inside, running inside, while at the same time wanting hide in bed. And feeling like my soul, my spirit, has been dislodged from my body.I don't exist, in the beautiful day, the flowers in the garden . I'm just running without any meaning in the here and now.
I got it from superstrong antibiotics for a bladder infection. Two we e ks ago. Bowel is still white with mucus.
Which antibiotics i also have chronic uti and need antibiotics again….
I just saw on google that compazine has been discontinued….. oh my god
The generics will be available.
Praying for you. You will heal. Even if you can’t do things with your children they feel your love. Be honest with them about what is going on with you so they don’t think it’s their fault. They could possibly react to certain drugs so they need the truth. I’m sending you so much love.
Do you think it's wise to give people false hope based on fuck all evidence?
"Prayers" don't work!
Prayers are useless. This is misguided, there are a lot of things that can't be healed and no amount of stupid prayer would help. Kindly leave.
Beautiful advice. Children will often think that they are responsible for the bad things that happen (eg: divorce) and leaving the line of communication open is the best solution to a very difficult problem. I too will be saying prayers for this young women in hopes that she will regain a life of normalcy. Take care and God bless.🙏
🥺PLEASE Please, can someone list the top
5 anti- nausea drugs to absolutely AVOID ☠️
Along with the top 2 or 3 anti nausea drugs that are recommended to be SAFE 😇
Sounds like similar symptoms of Restless Leg Syndrome.
Dopamine channels are injured.
Ropinerole would probably treat for this condition.
Start with low dose to test for allergic reaction.
Increase dosage until a therapeutic dosage is attained.
Seems like worth looking into.
i will pray for you
Thank you
This sounds like a Benzo injury. The medicine at the ER sounds like it aggravated an underlying injury or neurological disorder. If you haven’t already, try intermittent fasting and an elimination diet. It wasn’t a cure, but it did help calm my nervous system. Your nervous system is out of balance for sure. Give it time, treat your spirit and body well. It will improve. The brain will adjust. Just give it what it needs- except more medicine. Talk therapy and meditation are helpful. Just go easy on yourself, and roll it as much as you can. I completely understand and have experienced everything you have. Hang in there.
They offered me compazine. I had a bad feeling not to. I'm glad I didn't... I'm so sorry everyone
We talk about the drug culture on the streets of America, the homeless and severely drug addicted street people. how much attention do we spend on pha.rm.a drugs used so much in western nations. Not as much in Asia or eadtern Europe. We need to reexamine how we live and why we depend so much on drugs. Bless this young woman who needs to be believed and respected. IF she is not, for now, it may be a good plan to leave those who do not give support but doubt her and disrespect her. Opinion.
Awful. So glad she was wise enough to avoid SSRIs (apart from Benadryl).
What are her symptoms other than DPDR though? Emotional? Anhedonia? Sexual? Physical numbness?
Benadryl is not an ssri… did I just misunderstand you? Genuinely asking
@@athenachristinemusic Benadryl inhibits the reuptake of serotonin, so it is an SSRI, it just isn't marketed as such.
HARMaceuticals.. cause more nightmares 🤯
Same experience.. different meds.
I am Not the same person 20 years later and homebound.
Very scary to EVER go for medical.. basically like a Guinea pig. ..😢
God bless..i absolutely
get it . And living /surviving it.
❤️🕊️🙏✨
Pharmaceutical/
HARMaceutical
Wow!!!
8:19
Yup, years after Zyprexa when I take certain antibiotics or antifungals and other medication, I get the muscle pain and mental side effects then when the course is done I'm fine.
How do you recover from this. I have taken 1 Xanax and felt withdrawal for years. What do you do
Changing diet can help some (experimenting with keto, anti-inflammatory, carnivore), working with a functional medicine practitioner to help promote your body's ability to heal with supplements, also time (for some people much longer than others).
@@taperclinicDoc, have you seen anyone with akathisia benefit from carnivore?
Anyone else turn to alcohol to try and get some relief from side effects? Risperdal made me suicidal and I started drinking like a fish to feel better.
There is still involuntary treatment in Hong Kong. What a shame!
metoclopramide is not for long term use, don't you know?
It was given to me once via IV for a migraine and I was sick for 3 years.
@@catmomma3119 I'm sorry, I thought you were on a different dopamine blocker than perphenazine. It's a drastic thing to give someone in larger doses.
(I'm missing the more precise grammar of Elizabethan/Shakespearean English "you" can mean both "thou" and "ye" in modern English and that's not very comparable to other languages.)
I have been having severe dyskinesias all my life, so benzodiazepines and physical training, is the only option for me, if I don't get access to more selective therapies.
I didn't intend to say that you, yourself, should have done it differently, except for maybe figuring out how bad the side-effects of contraceptive medication can be. But, it's not likely that all layers know much about pharmacology, although women have always been the best physicians in traditional societies. I'm sorry for your akathesia ( but I haven't been affected longer than a few days, from chlorpromazine or pimozide ( yes it's terrible) and the repurposing of the antipsychotic, is not a thing I'd expect, (but "Big Pharma" is even worse than "Big Agro" these days). Sorry..
@@catmomma3119 Sorry, I didn't check enough, I didn't realise that Big Pharma has recirculated perphenazine, for this kind of use, instead of ditching it. it's drugs like ondansetron and granisetron etc. that are mainstream and among the most beneficial for nausea and migraine. And the group known as the triptan's. (I wasn't using the "you" referring to "thou" but the MD's "ye" , a loss of grammatical precision in English, since the time of Shakespeare 😃). So, I didn't actually say it properly. I have experienced akathesia from related drugs, like chlorpromazine and pimozide, but not over a long timeframe, just like a few days, but it's a horrible state... It's sad to hear that the short term use has affected your life for such a long time.,
I hope you have come through, and healed 💞🙏🏻
Are you better now? Can u reach out to me please
Better?
Why doesn't her doctor prescribe Cogentin?? That worked for me
With every pregnancy I suffered post partdum depression I know what your feeling
I ran around the table in the middle of the night with that feeling, my ex called the dr and said she can’t relax and is running around the table.
A panick attack is not a feeling of panic it’s physical that’s what they told me
If she only had the drug infused once wouldn't it be out the system by now i have had bad effects of the older generation antidepressants like mirtazapine and had really bad effect from risperodone but it went off when i stopped xx
The argument that medicine can’t do permanent damage and that because it’s out of your system is like saying that a person who was paralyzed in a car accident shouldn’t still be paralyzed anymore because it was months or years ago.
This video broke my heart, it makes me terrified to take anything ever again,
This video is an 11 year old boy who go t from iv nausea meds, it's hard to watch, breaks my heart all over again, people don't understand how bad it feels to have it.
th-cam.com/video/SaTJ35zgkNs/w-d-xo.htmlsi=0SESJfLcrAIb4Pn6
What's scary about that is when someone shows up at an ER or even a detox place acting like that they get accused of faking it to get drugs. And they get yelled at and screamed at and told to "Shut the Hell up!" And "You need to stop right now!" And they can't stop. It happens a lot more than people know.
@@blackflyingfox3365 I was reprimanded for asking a doctor about it when he wanted to prescribe me psych med and a benzodiazapine, he yelled and told me he was a doctor and he new better, then told me to not look on the internet for advice, he said that happens to 1 out of 100's of thousands, I told him I never hit the lottery but I probably would end up to be one of those 100's of thousand, I left and and never seen went to him again.
Heartbreaking! 😭
I'm so sorry they gave you capizen
I get the bringing awareness to these things but as someone who is going through it, i find these videos so triggering, esp the title « …forever ». It would be helpful if you shared success stories of recoveries as well for us, the victims looking for hope.
Your limbic system is already injured the last thing you need is to activate it more by watching this stuff.
I wonder if a keto or carnivore diet might help her?
Why would it help?
@@kathya1956 Ketosis helps heal the body. Keto, carnivore with fasting can reverse health issues. It can’t help with anxiety as well.
My gut is ondansestrong! Haha 😆
Like 👍 this content to spread awareness
Wow I identify with her so much, but with me it’s ADHD as a 44 yr old woman. First of all getting a diagnosis for ADHD (as a recovering addict) and a middle aged female has been a joke. We need to drop this attitude in western medicine that just because someone is a Dr doesn’t mean they are just always right, and all your knowledge and lived experience doesn’t matter if dr doesnt agree (that’s if you are lucky enough to be acknowledged as a human and not just another number).It should be a joint effort between patients and drs. The lay person might not have gone to years of schooling but they have their EXPERIENCES, they can learn and educate themself on their own specific ailments. I know it’s a very complex,multi layered issue with US healthcare in general. It’s a joke now. All drs except for one (who is actually not a dr but a nurse practitioner) have dismissed me for 15 years when I tell them I have adhd. It has been debilitating and the cold shoulder from the medical community has actually exacerbated it. I know exactly how this woman feels. People see a gentle, petite woman who doesn’t know what she’s talking about. You get laughed at when you tell them you have done your own research. Everyone just looks at you with pity. It’s actually programmed misogyny (I actually never believed in that before but I do now). So us women are ANGRY and TIRED and fed up! We do know what we are talking about. I don’t even like saying I have adhd because I immediately feel the dismissal from people when I say it. I feel this woman’s pain. She is a beautiful, strong, loving, very intelligent and astute woman and society truly does seem to not like women like that.
Thank you for stating this, as a woman who has not been taken seriously. Her story is appalling and it can be any one of us, any day of the week.
We could be the same person…
I have adhd too. Its a beast.
Don’t compare ADHD to akathisia, it is disrespectful to people with akathisia
Try brain retraining
She sounds very worked up and afraid. Perhaps counselling is in order. I'm not denying her having a reaction to meds, but her personality seems bruised to by this and needs healing also. It's tough, I been through SSRI withdrawal myself ya I believe her that she received a injury.
Ive been in counseling since day 3 of my drug reaction.
Counseling has been pointless at best and harmful at worst during my injury.
@@DanielleRambo-yl1qe Danielle, My story about akathisia is in Mad in America. Please try hypnotherapy, brainspottting, somatic experiencing, and other holistic approaches, and there will be a shift with time as your subconscious heals you (with the support of nonjudgmental, experienced healing guides). I have a couple of names for referral in CA if you like.
@@DanielleRambo-yl1qethis is exactly what happened with me but with Droperidol ( another antipsychotic nausea drug in Aus) it happened 10 months ago . I am also a 34 year old mother of 2 . I got severe akathisia from one dose , and now I still have spasms , chest pain spasms , and restlessness & anxiety , although most days I am pretty normal . Did you ever get better ?
The book ‘overcoming unwanted intrusive thoughts ‘ by Sally Winston was so helpful for those horrific intrusive suicidal thoughts , they were the worst , and lasted 6 months . I have been doing anxiety recovery too, and was thinking that the symptoms I have are from anxiety from how traumatic the initial akathisia was , but lately I realise the restlessness at night returns randomly and I have spasms ALL day .. maybe its a drug injury.. I really hope you have healed and I can too 🙏♥️
The click bait is lame
Its not click bait GTFO. This woman can't function anymore and she doesn't know if she will ever recover. I'm in the same boat from prescribed benzos. Go ahead, take all the drugs you want, I wish you luck.
@DanielleRambo-yl1qe I have a 5 minute break from work to write this so sorry if it's scattered but I HAVE to write it !!!
Your story is EXACTLY THE SAME as mine! I am also a 34-year-old mother from Australia. I got one injection of the anti-nausea drug and got akathisia. I was unmonitored in the hospital and when I told the doctor I REALLY didn't feel like myself they said "We do not have a pill for taking away all bad feelings sorry" Then when I got the tremors they said it was just the coldness from the drip. That was 9 months ago. I had the same horrid reaction, I couldn't sit down, or sleep, a torture you can't explain..and I held my friend's hand as her life support was turned off, it did not come close to the suffering of akathisia; it is not a normal human experience, it is man-made chemical torture! I lost 13 kgs, I couldn't work, study, or leave my house. I am the most devoted mother, it is my absolute world and I couldn't even feel love for 3 months, that was the ultimate nervous system sensitization. I also didn't know it was Akathisia until 3 months later when my psychologist told me, I thought I had just got crazy that night.. because no one believed me. I even went to the doctor the next day and he gave me escitalopram and diagnosed me with Panic Disorder even though I couldn't sit down in the office.
I HAVE RECOVERED. except for lingering nervous system sensitization/anxiety which is getting better with every day, but my life is the same as before, although now I am much more mature to put it lightly.
What helped me SO much was realising that I was in a trauma response PTSD/ anxiety /nervous system activation. So I treated myself as such and then I finally started to recover. These are the resources:
"Hope and Healing for Your Nerves" by Claire Weekes, listen to her audible and get her book.
"Dealing with Unwanted Intrusive Thoughts" by Sally Winston: this was the only thing that helped the flashbacks of SI, and suicidal OCD that I developed (extremely fearful of suicide because of the suicidal ideation that came with akathisia - I had never felt that way in my life EVER!!!),
listen to the DISORDERED podcast, the DARE podcast, Read the books; at last a Life, Dare,
Mark Freeman's TH-cam about ocd, and Shaan Kassams's TH-cam about anxiety recovery and SENSITSATION.
Also, I really love Lily Sais on Instagram.
I thought I was "damaged" from the akathisia, thinking the spasms and restless legs and intrusive thoughts were lingering damage, but also whenever I believed that I spiralled emotionally and I would panic! thinking I was going to be this way forever, thinking I am insane, getting dreadful intrusive thoughts! but if I didn't believe that thought, I wouldn't panic, so make sure you are HOPEFUL and constantly listening to people who have recovered from nervous system sensitisation !!
After the akathisia wore off and then my nervous system, the thoughts and memories of it (I still randomly get flashes of the experience now and then like PTSD) heightened everything so much that I thought it hadn't gone away. I had muscle spasms, twitches, myo jerks, flashbacks of dread and doom, and suicidal OCD (this was the WORST SYMPTOM personally !! my brain was trying to protect me from ME) but it wasn't akathisia...it was my whole being response and its SENSITISATION to THE most traumatic experience of my life..but recovery is a marathon and not a sprint. and now i am fully recovered! You can too, I know you can :) If you start with those resources you will begin to heal.
I really hope you are healing, I can't believe how similar our stories are.
Bless you. 🫂 I suffered with migraines for 40 years. I stopped going to the ER because they used to insist on giving me Prochlorperazine IV which made me feel absolutely restless in an aggressive way. If it wasn’t Prochlorperazine it was some other antipsychotic on their “protocol”. The entire protocol took hours All I wanted was a small dose of an opioid quickly so I can go home to sleep but opioids are the devil and my “reactions” are related to stupidity or drug seeking. I had to stop working due to brain injury from all the preventative migraine treatments over the years. I was an RN.