Tourette’s Syndrome - From A Parents Perspective
ฝัง
- เผยแพร่เมื่อ 21 ก.ค. 2024
- hey!! thank you to everyone who sent in questions, if yours didn’t make it to this video it was probably because they were all quite similar!💗🎗
thanks to my mum for doing this with me!!💕
little update: i have started medication for my tourettes for the first time ever, it’s a bit nerve wracking because i’m on other meds and we were worried about them clashing. i’ve only been on the new ones for 2 days so far and they’re making me feel drowsy and they’ve lowered my blood pressure even more so i get very dizzy when i stand up but hopefully my body will adjust!! just keeping you all in the loop!🎗💜
hope you enjoyed this video and maybe learnt something new,💘
thank you for watching🥰🥰 - บันเทิง
"It was just putting a name to it"
"Beans"
Tourette's has now been rebranded
It’s comments like this that make my day
Regardless of subject, it's refreshing in this crazy world to see such a lovely family ... So beautifully down to earth.
My thoughts exactly!
@@aprilisme1186... We should start a family lol
exactly what I was thinking!!!
@@kaylakoonz6838... Not wanting to risk sounding like a bounder or anything but ... Johnnie and Kayla ... That could work too lol
I love the natural birdie sounds.
WE CRUMBLED
No, we didn't.
LOL
Ikr
@WILLIAM VENRICK 0:50
Evie clearly got her cuteness from her mom. You're both so pretty.
Literally beautiful.
my tics make me hit my mum alot and i always feel really bad, but shes so sweet about it
There is no more loyal love than a Mom and her child.
@@choppermike3329 lol so not true. Only a few kids get the sweet non toxic loving ones.
@@erlenederenecourt1360 Sorry you feel that way but of all the families I've known in my life, only a very small percentage involved a "toxic" mother. In general, Mothers love their children.
@@choppermike3329 maybe that depends what people you know, I have a very toxic mom and I can easily spot that kind of person. They often seem normal, even kind as a first impression, but then you sense this tension from the child, cause it knows it's fake :) I also know many loving families but I wouldn't call them ,,general''
@@Minji_Poland I never said that families were "general". I'm saying generally a Mother loves her children. I never said every single Mother loves their children or child unconditionally. That's why I used the term "generally".
You are the spitting image of her! Wow.
Their matching bangs are gorgeous!
not really. both very different but i understand why people say that.
Both of them are so beautiful 🥰🥰
Why did someone dislike this video? How can they dislike this heartwarming video.
The only way I can think is coz they are bitter coz there question didn't get answered or they clicked by accident and didn't notice.
Or if they accidentally clicked dislike, I've done it before
People dislike because they want to be different. They want to be part of those 3 dislikes that people see when the click on the video. It’s just attention seeking
I don’t know I did see were someone was calling her fake on another video tho they basically said that people use this as an excuse for bad behavior... I was dumbfounded yes it’s called a medical practice meaning we’re always learning new things but the call someone with a neurological problem a faker is beyond stupid
There are people who think she’s faking it 🙄 so I’m sure there’s plenty of stupid reasons people can dislike
This is the sweetest and most understanding mother ever.
In your own way you are the opitomy of girl power!
Do be so sad about not being a teacher in a school. You ARE still teaching people, just in a different way. The amount of awareness you bring to Tourette's and the knowledge people gain from your videos is HUGE! You ARE still teaching AND you are allowing others with Tourette's find a safe space to just be themselves.
I love to see mother and daughter in this harmony, in my opinion you are an example to follow❤
She is such a lovely girl beyond and including the turrets, I hope some day she have her own family and enjoy life to the fullest xx
@@MrRobWaugh she deserve that kind of life,because she never give up,she loves in the clearest way possible(sorry if i made some ortographic mistake but i'm italian)
Your mum is such a rock star.
I would not mind having Evie as a roommate, just saying. ❤
I would say beans back to her
@@brittanypanda9348 and she would be mad at you,since she doesn't like when someone comment her tics
@@marcosv295 but thats not? Its the same thing her mom does? Plays it off as a joke?
@@marcosv295 if we are with a group of people and she shouts beans and i shout beans it wont be as weird for people who dont know her.
@@brittanypanda9348 she thinks:"laugh with us,not at us" so if you repeat beans at her tic you will stimulate her tic to repeat beans,her mom answer her tics,not repeat(sorry for my english but i'm italian and i'm not using google translate)
As a parent of a special needs child, I should say that I really admire your parents...haven't seen much of your dad on camera but I love the relationship you all share together...I strive to have the same with my special little one.
baking video with my dad coming soon 🥰
I love you guys. My mom was diagnosed with dementia and, last week, fell and broke her hip. So the roles for me are a bit reversed. It's so hard, but you guys help inspire me that I can help, I can do this. We can figure this out. Thank you.
It'll get better. Keep your head up majesty
@@eveningcommenter6312 Dementia is awful and sorry you’re all going through this! I’m in healthcare and dementia causes you to eventually forget how to do everything, starting with the most recent life events first. They therefor don’t know their limitations anymore. Sorry to be so clinical, my Mom took a stroke that killed 95% of her right hemisphere of her brain, I know it all too well and it’s how I deal. She’s the reason I do what I do, she was my first patient. Try to stay positive but please, watch out for caregiver burnout, take your time to regroup too.
@@eveningcommenter6312 if she has dementia she would keep forgetting and trying to stand up and she would just fall as her hip is broken
I apologize to anyone currently undiagnosed with tourrets and has family who are not acknowledging it as a real diagnosis and are thinking you are not being real about it. Love you guys and hope you find that acceptance. I accept ya'll
U're so sweet, I have diagnosis and have had tics for 11 yrs nw, I'm 21 and my family still doesn't accept it it's craxzy
@@lujainalshami2073 thank you. You've got this. 💜
Turrets! I love it! Do you have the verbal pew pews?
@@lullylew9083 huh?
@@thatoneredhead3816 they mean it is spelt Tourette’s
I LOVE YOUR MOM SO MUCH SHE’S SO CHILL Y’ALL HAVE SUCH GOOD VIBES TOGETHER
I showed one of your video’s to my mum (the fight song video) and she cried and she said that you look so wonderful and strong❤️
Ugh i wish my mom liked evie but when i showed my mum one of her videos and explained that she had tourettes my mum said that "that's not tourettes" and that "she's very rude" 😢
@@ioanna1500 owh that’s not so nice
I truly salute your mom for her never ending patience, caring and unconditional love for you. She deserves all the praises!
Kind of weird complement but you guys have great genes, you look almost like sisters and you’re both very pretty ☺️
(This is a great vid idea, I’ve never heard from a parent’s perspective)
Totally agree they are both stunning
Honestly, Evie and her mom are so sweet together. If she did not have Tourette's and I stumbled upon her channel accidentally, I'd still watch.
You are such a strong, charismatic and inspiring person Evie! I’m so happy for you with the amazing news of your book release!! I can’t get enough of that sweet contagious laugh you have.
Ps, Your mother is admirable.
Big Love ❤️
Found this angel's channel last night and haven't been able to stop watching since...I feel the same way as your comment...and her mother is amazing!
What's the book called?
Thank you for being so open about mental health. I have severe depression, social anxiety, and generalized anxiety that makes my future seem very bleak. But when I see what you're dealing with and how you're still succeeding in life, it gives me hope. It's also comforting to see you normalize living with your family as a mentally ill adult, it honestly makes me feel like a loser sometimes knowing I may never be able to move out even though I'm only 19. Anyway, thanks for all you do. Much love.
Wow are you literally me? Lol
God, your mum is just the loveliest.
Also, Beans! is the cutest tic ever.
I'm gonna show this to my parents who accuse me of faking. I'm currently undiagnosed
I wish you good luck
@@BorkBorkBorkBorkBorkBorkBork I just got a letter for a phone appointment. I can't wait
@@thebrokensystem4915 even though I got diagnosed my mom still thinks I'm faking it and that I can stop at any time.
Hopefully if you get your diagnoses your family will be more understanding
@@underfreak1046 I feel sorry for you because of that.😥 Stay safe!🎀
@@thebrokensystem4915 YES! Congratulations ❤️
You’re mum is so pretty🥺
Your mom is such a beautiful human! She's raising one as well. It makes me feel calm to watch you guys together :)
Can we just take a moment to appreciate how pretty both Evie and her mum are? ❤️
Your mum is the true definition of what a mother should be...loving, caring and supporting!! Such a lovely video xx
I have seizures a lot, for 12 years now (we're about the same age). I never really looked into this before. Youre very inspiring! I tend to meow, over and over and over again. Or make movements that I can't control. To be honest I've always thought it was just my seizures and the medication side effects (perhaps it is) but I'm going to bring this up to my neurologist. Thank your mom for me for sharing her insight, i'm greatful that I have my mom by my side too. I can't live alone. Youre amazing, xoxo
I have Tourettes but people don’t believe me and I’ve lost friends because of it. You are my only understanding friend and I support you. The only thing is that you don’t know me, you’re still my only understanding friend tho.
Is there a support group in your area? Have you tried an online support group? I'm going to sound like my father and say if they left your side over anything that was beyond your control, they weren't your true friends. I hope you find peace in your life. Never give up yourself. 😊
i understand this too. my parents don’t believe me and they punish me for ticcing and some old friends have left me. i can say you will find people who support you. my gsa teacher has helped me tell other teachers so i can tic freely in school now. it will get better. i promise
Your mom is literally "keep calm and carry on" 😊 just the embodiment of calmness
Your mom is an angel! ❤️
I declare an Official Fantastic Mother Award, to you, Evie's Mum. You are truly a wonderful woman! ♥️🌻🌹🌻🌹🌻🌹🌻🌹😀
Your mum is such an amazing person, she puts you before herself in every way and you can tell that example has made you such an amazing person, this is what parenting should look like diagnosis or not, you are both such great people, joy can conquer so much
Your illness must be utterly exhausting for you and your family, the fact you cope with such style, panache and perseverence is a credit to you all, love and respect always....
so my mum doesn’t really support it in a way. 🥲 she didn’t believe it for a while, and when she did she asked me to control it around her and suppressing is hard. But seeing you guys work in harmony makes me so happy! makes me look forward to when my mum does want to understand. i wish i knew how to explain it to her but patience is virtue. thank you so much for the video!! So cute! as always 💕🌙
Sometimes I meow when usually when things are awkward
Same
0:01 I couldn’t I just lost it and laughed super hard thanks for making my day!!!❤️❤️❤️
I was diagnosed with Tourette’s somewhat recently. And your content really helps me with self acceptance, and positivity. You’re amazing.
I love more than anything else that Evie looks so much like her mum! And how her mum aged with so much grace. This is such a beautiful family, struggles, giggles and all.
You two have one of the most beautiful relationships I've ever seen. 2:01 I'm really proud of Evie for holding back that punch. BEANS!
Awww you literally have the cutest relationship 😊
Best mother-daughter team ever! Next time you should have a chat with dad too. 🦋🌺
I can understand how your mum feels about seizures, my last epileptic seizure I stopped breathing, which was very scary for her
Your relationship with your parents is so cute!!❤️
Awww the way she calls you pet is so sweet 🥰
Your Mom is beautiful and very British (meant to be a compliment). Y’all have a wonderful day. 🇺🇸🇬🇧
She is sooooo beautiful ❤️❤️
Your mum and dad are extaordinary people. I admire your mum so much and love the sense of humour you share!
I stumbled on your videos quite a while ago and have been following from "afar" periodically checking in to watch and I just have to say that your candor and reality that you expose is simply amazing. It makes me wonder how in the hell anyone ever thought people with conditions like this were ever worthy of stigmatization!
Though exhausting and OBVIOUSLY awful to experience from both your perspective and your mums, I can't see how I could ever think someone with tourette's as anything but worth of love and also respect for their strength.
Your mother is an absolute gem.
You're an absolute gem.
Such adorable energy between you two and I love it.
I’ve always love seeing and hearing your mom in the background of your videos it’s so great seeing her she is a absolute beautiful person and so so strong and supportive and an inspiration
I love you and your mom!! She just seems so very supportive!!
Your mum is just the loveliest person ever!
1:13 Just got me giggling but you and your mum are so adorable such a great family bond between you.
Your family is so compassionate and it's beautiful!!
I really love how your mum supports you soo much and it is amazing to see how much she loves you!!!♥️
I showed your videos to my parents and they said your so inspirational to all your fans🥺🥰
Evie you are so cute, and you have the most patient mother, love y’all both! 💗💗
This is so heartwarming. Your connection is amazing and you guys are so sweet.
Only recently found your channel, and it is brilliant. Being so open and helping people understand the condition is an amazing thing really. I think so many people shy away from tourettes, mental health issues and related problems, this helps opens their eyes to how it is in the real world. I love the fun you bring to it all :-) x
Was wondering how you were, its great to see the mother daughter relationship you have. So sweet and loving. Like peas in a pod you two.
Your mom is my hero. I have 3 boys, 2 of whom were diagnosed ADHD and one with very high functioning autism. If only I had her grace and calm...
I absolutely value this! Your mom's an angel. I truly love your little family. Thank you for sharing.
So sweet seing that your mom handle your tics so well. The band between you seems so strong❤️ so sweet!❤️
heyy, thank you so much for making content
you inspired me to start working on my art again and also because of you I was able to go get a tourettes diegnosis
When she moves I laugh especially when she says "beans" I can't stop laughing it's so cute,you're so strong! Keep fighting!
love you!
I can't belive someone dislike this, How would they do that to a heartwarming video!?
Evie, Your mom is amazing. Having her support is beyond a blessing.
Your mom is a true inspiration. She has such a beautiful heart ❤️
What an outstanding mom! You both are lovely.
I am glad that your family is supportive because ive had many friends where family wasent supportive. I have adhd but i have adhd tics . But i trying to control it. But i am glad that your family know how to handle it
Your Mom is such a lovely person, what a blessing she is for you!
I need your butterfly shrug. It’s so pretty! I love how informative this is. Thank you and love to your mum!
I loved this! You and your mum are just like two peas in a pod. Very inspirational ❤️❤️
Two beans in a pod. Lol
Mom was great. Not boring at all. This is something I have no idea about, and your channel has been enlightening.
Thank you for being part of my life! I binged all the YT videos haha.. You and your mom are an amazing super team; The love for each other is indescribable. For some reason watching and listening to you makes me relax, and your voice sounds beautiful. You have some a inner peace that comes out somehow. I can't really describe it. As somebody with a (light) spastic disability, I completely understand the concept of the lack of control of the body. Thank you for being you!! love,love,love... a big hug from the Netherlands! Stay safe!! PS. Every time I see beans, I smile and think of you. (It's weird I know haha! I have a parrot that gets a bean-sprouts mix one in a while).
I love your mom. She is so kind hearted and hilarious. I love watching you guys together. We need more of these!
Send a lot of love!
You're mom is gorgeous
Greetings from Poland!
I'm 25 and my 3 year old has epilepsy and autism. He's also mainly non verbal. Sometimes it gets really hard for me but I don't ever show how lost I feel and actually guilty even though ik I couldn't have done anything to change it. He's had 17 seizures in such a pinical time in his brain development but as of now he's 10 months without a seizure and I am so grateful for it. I'm still worried about it but I can't help but be happy and just focus on his SIB behavior and his autism and understanding his ticks. He has sensory displacement as well. Which is an entire other world
Have you taught him baby sign language? My mom did the same for me because I was also non-verbal. It worked well. Of course, every autisic child is different. But it can make a huge difference!
He's learned a bit of sign language. Basic "more, eat, all done, milk, play"
@@xjjeal1424 that's good! I'm very proud of him! I hope you can teach him more! There are books for it as well! 😊
Love it how your moms keeps so calm and explains like everything is normal❤️ great mother!!!
Oh your mum is just a sweetheart !!!! Beautiful face and spirit. I’m so glad you have a beautiful family to support you
I know it's been said about a thousand times, but you have a great mom 💕
Omg her mom is so pretty, her skin is glowing. I want that face.
Awww you arent boring, its really inspiring that you take everything in stride! Being melodramatic about it would be boring, seeing you be so chill and strong is great ❤
Thanks to both of you for your candor and humility. Pair of angels! I've lavished enough praise on some of your other videos, so I'll leave you to assume that this was similarly received :)
NOOOO IM IN SCHOOL!! I CANT WATCH 😭💕 I'll watch later!!!
"Willy." "Thank you for your contribution." xD
I love you two, i feel like i’m sitting & conversing irl. Both of you make me feel at ease, believe it or not. Thanks for that.
I hope everyone here is in good health mentally & physically!
Thank you for sharing your experiences with me. I have watched yours and several other videos from people suffering from this syndrome. I now realize that there are a lot more people and families, who are dealing with this than I had previously assumed.
I appreciate the efforts made to shine a light on this syndrome and bringing an awareness of how a person dealing with the conditions, goes through along with the parents. How you handle it as the person and how the parents are able to cope with getting you through the episodes of your conditions. Every parent, I would think, wants to help their children through any and all crisis they may face in their life. To prevent or limit the hurt, harm or fears they may face, preparing them to go out and live life on their own, one day. Ultimately, in my mind, we all are looking out for the safety and welfare of our children in their future.
I hope that you may soon find some relief to lessen the more harmful of the conditions, making your life more manageable and you happier. Your mother seems absolutely wonderful. Best wishes.
It seems like they treat her tics like a 3rd person. Very smart: it's Evie AND the tics. Her mum can separate the 2 and be that much more focused and caring for Evie. Not a lot of people can do that.
Omg I love you so much omg omg your laugh is so cute 🥰🥰🥰
It’s so nice to see that you have somebody looking out for you, you and your mum are truly outstanding people!💜💜💜 ⭐️⭐️⭐️💜💜💜⭐️⭐️⭐️💜💜💜⭐️⭐️⭐️💜💜💜⭐️⭐️⭐️
Your mum is so lovely! You can tell the love you share between each other 😊 Your videos are so informative, thank you for spreading awareness x
I heard the answer to "What's your pronouns" as "Shelob" the giant spider in the Tolkien Lord Of The Rings
Daughter of Ungoliant.
Very recently I had an episode, where my legs was stiffing up during a walk, which I believe was due to my epilepsy, not sure though.
But I had a co-resident with me that day, which offered me a shoulder in case I fell over - luckily it never happened 😊👍
Once we were back home, my co-resident told the staff what he observed, and later that day, I texted my parents , to let them know what was going on
You mom is the most sweetest person ever. To have someone so dedicated is just heart warming. Shes an angel ❤️
Something about this is really beautiful.. Love to see you have healthy support, both ways. Also about wanting to teach, I felt through TH-cam you're teaching people about your conditions that they might share or get help from.
I literally always hit my mum when she's next to me and I always feel bad for it 🥺
Hey love, I just recently got diagnosed with TS and I was wondering if you could recommend some good fidget toys for our condition.💙💙💙
You mom reminds me of the good memories of mine. Thank you for this video, it was truely a blessing today. You and your mom are absolutely incredible and wonderful and beautiful 💖
Your mum and yourself have such a beautiful relationship, she's a precious soul. Makes me miss my mum even more!