@@fields4185 There is a Facebook group called Benign Fasciculation syndrome. It is a very supportive group where people who twitch can get advise and ask others about their twitching. Just because you twitch doesn’t mean anything.
@@anishsharma2485 i've done a lot of research meanwhile. Fasciculations appear usually after weakness, sometimes at the same time. There would be an exception from the rule to start with fasciculations. And in ALS are the fasciculations usually localised.
Honestly do not see the point of videos like this. Two guys in suits who pretty much seem as though they decided to sit down and make a one minute video to freak the hell out of anyone with health anxiety who is unfortunate enough to tune-in. Yes, ALS patients may have fasciculations BUT it should be noted that fasciculations of many varieties, quantities and durations are reported constantly by those who have deep rooted health anxiety.
@@mayboul hi, did u ever figure out what was going on? I have the same symptoms and others, started after my 2nd covid exposure...at first i was diagnosed with RA, then rheumatologist changed it to fibromyalgia but i dont really fit that either....im scared cuz the muscle twitching/fasciculations started around 3 weeks ago so things are just getting worse amd im scared😓
Fasciculations are not the typical first presentation. And sensory things like tingling, pain, numbness are also not typical. Weakness in a limb. ALS is also very rare. Your chances of dying in a car accident are 1/100 in the US. Also remember that BFS and other conditions that mimic ALS and are far, far more common.
Been twitching for almost 25 years now. Body wide, even tongue. No weakness but constant anxiety. Not all fasciculations are tied to motor neuron issues.
I read a study that said 1/400 men could get ALS in their life time. Pretty insane statistic honestly. Idk how I feel about it. Scary stuff. I’d rather eat a bullet that to suffer that way.
For 1 months having muscle fasciculations in my legs NON STOP! It’s like they are vibrating constantly and small spasms. I feel this most when I lie down in bed. Last week woke up with a sleepy feet ( while moving my leg sleepiness went away and so did the tingling) but right now I feel sometimes a needle feeling in my left feet even when I’m standing or when I’m lying in bed or sitting on the chair. This goes away after a couple seconds and doesn’t stay but the muscle twitching is present continuously. I’m so scared I’m having ms or als or a brain tumor.
@@ryansaunders8006 started to take magnesium and in 2 days it was gone. I think I had a huge magnesium deficiency. Magnesium citrate, and besides that let the doc check other minerals and vitamins. In the Netherlands they don’t always test on that. But Google told me magnesium deficiency makes muscles spasm etc, so I listened to Google this time, my doc send me home time after time.
Me too. I’m scared . My hands also tremble slightly and I have brain fog - I had an mri they said it was normal- my family thinks I’m exaggerating or they don’t understand how worrisome this is
My brother and his wife had a friend (she has since died from something else) who was having difficulty walking, and she was actually very happy to find out that it was "just" lymphoma, because the first thing they tested her for was ALS. At least lymphoma can be treated, and in her case, it was. The treatment did have lifelong side effects, but at least it wasn't ALS.
Have been having this twitches for a few months now. Some days more so than others. My entire body appears to be in fight or flight mode. I’m coming down a little bit but my lord, this disease brings out the absolute worst anxiety for me. I have read so much on dr. Google trying to diagnose myself which has led me down this lightless rabbit hole of anxiety and frightening thoughts. No weakness. I get down and do some push ups here and there, and pulls ups to diagnose my strength. I seem to be the same each time I do it. Fck this disease. No one deserves to suffer like this. Absolutely no one.
My leg muscles have been twitching for a week. Both calf muscles but the right one not as much. Both feet kinda twitch too. And my left thigh just above the knee will twitch. Weakness in the knee and some foot numbness. It goes on 24/7
I have the same problem but a little different my head twitches a little bit my arms my legs my chest soreness in my arms and legs alittle I'm worried and idk what to do I'm scared it's als
@@chrisday3993 went to neurologist and did the EMG and the needle test. He said it’s benign. My calves still twitch 24/7, sometimes in the left arm and my buttocks sometimes also. It’s not going away but not getting worse either
I’m a 28 year old woman and randomly one day I started to get painless twitches throughout my body. My arms, legs, butt, face, hands pretty much everywhere I recently have had pains in my hands when making a fit or not being able to open things because my hands hurt.. I don’t know if that plays a part or it’s just because i work with my hands making jewelry so I did research and seen my symptoms were some of ALS I’m terrified I have it these twitches have been none stop everyday for two months. I literally lose sleep over it, I get such bad anxiety as well. I’m so fearful and my doctor said he will refer me to a neurologist I’m just so scared what they will find….. 😭
@@WizzleTeats69 I twitch here and there but no where near as much as I was… my hands still hurt at times but not as bad as they did I still go to the gym workout lift and what have you symptoms are getting better rather than worse it’s still just scary.
@@JoyceLaruan my grandma has fibromyalgia The twitching has definitely calmed down I will get like one or two random twitches here and there but I was also talking to my mom about it she said that she promises it’s not ALS if it was I wouldn’t be able to do half the things that I do I go to the gym Monday through Friday hit cardio jump rope and lift heavyweights but I haven’t from my knowledge had any weakness necessarily it is more so the twitching and only my hands feeling sore
Update I went to the neurologist they did a exam they think it was from me having Covid which is crazy to me. But she believes that’s what it is on top I workout a lot
You heard right, but as FDA doesn't give a damn about that drug (called Nurown) as they see no money benefit in it, patients will never ever get the taste of it.
I am really scared of this. I had meningitis and my brain and spinal cord was inflamed also had clinical weakness and i lost a lot of weight. Once i regained weight and gained strength i started feeling fasciculations in my arm. Few weeks later my whole body was having fasciculations and it got me worried. I have isometric tremor and damaged nerves but i started walking again and functioning normally but my fingers and hands are shaking and fasciculations are present. I really hope it is not ALS.
@@andyfernandez3288 neurologists believe its multiple sclerosis. Be safe and if you expirience fasciculations longer than 3 months and you are not weakened. Its safe to say you dont have als. Muscle twitch is common, less common is twitching of the whole body
@@martinbasic2984 I'm happy to hear this Martin. MS, while being something terrible to have, is usually not fatal and you stand to have a better quality of life than if you had ALS. I wish you all the best and a long and happy life
@@LonniMoviin not necessarily. You should get checked out. ALS is extremely rare from what I've read and usually affects people over the age of 40 but there are cases of people that are younger suffering fromit
For those with fasciculations, eliminate eggs, any type of chocolate and caffeine and see if things get better in a couple of weeks. I quite gluten 10 years ago and when i get into chocolate or eggs the fasciculations and cramps come back. I take a calcium citrate in the mornign and at lunch 150 mg each time and i take a couple of drop of liquid vitamin d in the am it's about 1000iu, and i take b-12 liquid 500ug (micrograms) in the am, and before bed i take 300 mg magnesium glycinate, i am extremely active and lift weights 4-5 times a week and bike and run daily.,
Very interesting. I have extreme muscle fatigue and soreness. No twitching but I heavily partake in caffeine and sweets. Wondering why my entire body has weak muscles. Been going on for 10 months now.
visit DR.ADULE today on his TH-cam channel for any type of virus or disease or infections he Is a great traditional doctor.infection like herpes fibroids hpv als.etc..
@Brian Anderson yes every disease is so over diagnosed and false diagnosis for many illnesses. So wrong when kids with boredom are labeled and diagnosed as hyper active add and go en heavy drugs when the kid is normal and I see many people my girlfriend is one , doctor told her she has in imbalance in brain and needs these anti depressant , meanwhile no tests ,no proof. Just give drugs and label as many people because it keeps the dope selling. Doctors are mostly drug pushing reg people with more education than most , they still make false diagnosis regularly. I have a twitch started as well , nerves ? Muscle or tendons ? Strange
wth is he talking about ???? the way he describes it, everybody has ALS. who doesn't have stiffness when they walk occasionally ? who doesn't have coarse voice or fatigue occasionally ? this doesn't help anybody. in fact, this gives people more anxiety just listening to this generic description from an ALS professional doctor. no thanks !
Watch the Entire Program Here: th-cam.com/video/1X4AfIh-gaA/w-d-xo.html
I had a high school friend die of ALS and before that, I'd always assumed cancer was the worst disease.
For those with anxiety keep in mind that weakness occurs before the fasciculations for ALS not the other way around usually
I’ve been worried sick. I have fasiculations all over. Mainly in my legs but in my upper body too. No weakness though
@@fields4185 There is a Facebook group called Benign Fasciculation syndrome. It is a very supportive group where people who twitch can get advise and ask others about their twitching. Just because you twitch doesn’t mean anything.
@@MinkePDX how.long did it take to develop weakness after twitching?.
@@Cangurul0921 usually 1 month or 2 months
@@anishsharma2485 i've done a lot of research meanwhile. Fasciculations appear usually after weakness, sometimes at the same time. There would be an exception from the rule to start with fasciculations. And in ALS are the fasciculations usually localised.
Honestly do not see the point of videos like this. Two guys in suits who pretty much seem as though they decided to sit down and make a one minute video to freak the hell out of anyone with health anxiety who is unfortunate enough to tune-in.
Yes, ALS patients may have fasciculations BUT it should be noted that fasciculations of many varieties, quantities and durations are reported constantly by those who have deep rooted health anxiety.
Its so complex. ALS symptoms might also be something as simple as lack of potassium - I mean, going to a neurologist would be the best ideal.
You mean lack of potassium causes same symptoms as of ALS? My doctor asked me this because I suffer from fasciculations and muscle pain
@@mayboul how are you now?
@@Karanistheir._ a little bit less fasciculations but still having muscle pain. Especially on my right leg
@@mayboul how bad can low potassium be . Like what could be really bad symptoms of it ?
@@mayboul hi, did u ever figure out what was going on? I have the same symptoms and others, started after my 2nd covid exposure...at first i was diagnosed with RA, then rheumatologist changed it to fibromyalgia but i dont really fit that either....im scared cuz the muscle twitching/fasciculations started around 3 weeks ago so things are just getting worse amd im scared😓
Fasciculations are not the typical first presentation. And sensory things like tingling, pain, numbness are also not typical. Weakness in a limb. ALS is also very rare. Your chances of dying in a car accident are 1/100 in the US. Also remember that BFS and other conditions that mimic ALS and are far, far more common.
What's bfs my hands are cramping getting worried a bit.
Benign Fasciculation Syndrome
Mine are too along with muscle tingling in my thigh @rainmanj9978
Been twitching for almost 25 years now. Body wide, even tongue. No weakness but constant anxiety.
Not all fasciculations are tied to motor neuron issues.
I read a study that said 1/400 men could get ALS in their life time. Pretty insane statistic honestly. Idk how I feel about it. Scary stuff. I’d rather eat a bullet that to suffer that way.
My als started in my feet. After seven years my voice is strong but it is in my back, arms and hands.
where in your foot did it start
I have been told I have cervical sponlitic Myelopathy which is a mimic of ALS.
For 1 months having muscle fasciculations in my legs NON STOP! It’s like they are vibrating constantly and small spasms. I feel this most when I lie down in bed. Last week woke up with a sleepy feet ( while moving my leg sleepiness went away and so did the tingling) but right now I feel sometimes a needle feeling in my left feet even when I’m standing or when I’m lying in bed or sitting on the chair. This goes away after a couple seconds and doesn’t stay but the muscle twitching is present continuously. I’m so scared I’m having ms or als or a brain tumor.
Are you okay now ?
Any update or advice? Thanks
@@ryansaunders8006 started to take magnesium and in 2 days it was gone. I think I had a huge magnesium deficiency. Magnesium citrate, and besides that let the doc check other minerals and vitamins. In the Netherlands they don’t always test on that. But Google told me magnesium deficiency makes muscles spasm etc, so I listened to Google this time, my doc send me home time after time.
I have the same things
Me too. I’m scared . My hands also tremble slightly and I have brain fog - I had an mri they said it was normal- my family thinks I’m exaggerating or they don’t understand how worrisome this is
My brother and his wife had a friend (she has since died from something else) who was having difficulty walking, and she was actually very happy to find out that it was "just" lymphoma, because the first thing they tested her for was ALS. At least lymphoma can be treated, and in her case, it was. The treatment did have lifelong side effects, but at least it wasn't ALS.
Some symptoms can also caused by Multiple Sclerosis and are maybe similar to those of als
Is muscle atrophy part of ms as well?
@chopthegawdgamerz6091
Yes, I have MS, my legs below knee have atrophied badly over seven years. I can still walk using a rollator.
Have been having this twitches for a few months now. Some days more so than others. My entire body appears to be in fight or flight mode. I’m coming down a little bit but my lord, this disease brings out the absolute worst anxiety for me. I have read so much on dr. Google trying to diagnose myself which has led me down this lightless rabbit hole of anxiety and frightening thoughts. No weakness. I get down and do some push ups here and there, and pulls ups to diagnose my strength. I seem to be the same each time I do it. Fck this disease. No one deserves to suffer like this. Absolutely no one.
My leg muscles have been twitching for a week. Both calf muscles but the right one not as much. Both feet kinda twitch too. And my left thigh just above the knee will twitch. Weakness in the knee and some foot numbness. It goes on 24/7
I have the same problem but a little different my head twitches a little bit my arms my legs my chest soreness in my arms and legs alittle I'm worried and idk what to do I'm scared it's als
But alot of is what Robert said feet twitches and everything
@@chrisday3993 went to neurologist and did the EMG and the needle test. He said it’s benign. My calves still twitch 24/7, sometimes in the left arm and my buttocks sometimes also. It’s not going away but not getting worse either
I have the same symptoms but it starts approx 10minutes after I fall asleep and wakes me up.
@@chrisday3993 ALS doesn't give you sore muscles
I’m a 28 year old woman and randomly one day I started to get painless twitches throughout my body. My arms, legs, butt, face, hands pretty much everywhere I recently have had pains in my hands when making a fit or not being able to open things because my hands hurt.. I don’t know if that plays a part or it’s just because i work with my hands making jewelry so I did research and seen my symptoms were some of ALS I’m terrified I have it these twitches have been none stop everyday for two months. I literally lose sleep over it, I get such bad anxiety as well. I’m so fearful and my doctor said he will refer me to a neurologist I’m just so scared what they will find….. 😭
How are you doing now?
it might Fibromyalgia too i have the same symptoms
@@WizzleTeats69 I twitch here and there but no where near as much as I was… my hands still hurt at times but not as bad as they did I still go to the gym workout lift and what have you symptoms are getting better rather than worse it’s still just scary.
@@JoyceLaruan my grandma has fibromyalgia The twitching has definitely calmed down I will get like one or two random twitches here and there but I was also talking to my mom about it she said that she promises it’s not ALS if it was I wouldn’t be able to do half the things that I do I go to the gym Monday through Friday hit cardio jump rope and lift heavyweights but I haven’t from my knowledge had any weakness necessarily it is more so the twitching and only my hands feeling sore
Update I went to the neurologist they did a exam they think it was from me having Covid which is crazy to me. But she believes that’s what it is on top I workout a lot
If you have two of these does that mean u have als or one of them
The main symptom in ALS is muscle weakness that progresses. Muscle twiching is not a early sign.
Are itchy muscles a sign im getting paranoid
And I have tired muscles
I play a lot of soccer
But still
Scary
I heard that in israel they are useing stem cell treatment even saw a pato
You heard right, but as FDA doesn't give a damn about that drug (called Nurown) as they see no money benefit in it, patients will never ever get the taste of it.
I am really scared of this. I had meningitis and my brain and spinal cord was inflamed also had clinical weakness and i lost a lot of weight. Once i regained weight and gained strength i started feeling fasciculations in my arm. Few weeks later my whole body was having fasciculations and it got me worried. I have isometric tremor and damaged nerves but i started walking again and functioning normally but my fingers and hands are shaking and fasciculations are present. I really hope it is not ALS.
I hope you got checked out and it isn't/wasn't ALS
@@andyfernandez3288 neurologists believe its multiple sclerosis. Be safe and if you expirience fasciculations longer than 3 months and you are not weakened. Its safe to say you dont have als. Muscle twitch is common, less common is twitching of the whole body
@@martinbasic2984 I'm happy to hear this Martin. MS, while being something terrible to have, is usually not fatal and you stand to have a better quality of life than if you had ALS. I wish you all the best and a long and happy life
So does muscle twitching of whole body mean u have als?
@@LonniMoviin not necessarily. You should get checked out. ALS is extremely rare from what I've read and usually affects people over the age of 40 but there are cases of people that are younger suffering fromit
My friends husband died of this
For those with fasciculations, eliminate eggs, any type of chocolate and caffeine and see if things get better in a couple of weeks. I quite gluten 10 years ago and when i get into chocolate or eggs the fasciculations and cramps come back. I take a calcium citrate in the mornign and at lunch 150 mg each time and i take a couple of drop of liquid vitamin d in the am it's about 1000iu, and i take b-12 liquid 500ug (micrograms) in the am, and before bed i take 300 mg magnesium glycinate, i am extremely active and lift weights 4-5 times a week and bike and run daily.,
Very interesting. I have extreme muscle fatigue and soreness. No twitching but I heavily partake in caffeine and sweets. Wondering why my entire body has weak muscles. Been going on for 10 months now.
What about eggs trigger fasciculations?
thank you!
This is scarey shit for me. I have these symptoms.
visit DR.ADULE today on his TH-cam channel for any type of virus or disease or infections he Is a great traditional doctor.infection like herpes fibroids hpv als.etc..
@Brian Anderson yes every disease is so over diagnosed and false diagnosis for many illnesses. So wrong when kids with boredom are labeled and diagnosed as hyper active add and go en heavy drugs when the kid is normal and I see many people my girlfriend is one , doctor told her she has in imbalance in brain and needs these anti depressant , meanwhile no tests ,no proof. Just give drugs and label as many people because it keeps the dope selling. Doctors are mostly drug pushing reg people with more education than most , they still make false diagnosis regularly. I have a twitch started as well , nerves ? Muscle or tendons ? Strange
Update
Are you ok?
@@kitchenstoriesbyarthi873hello arou u okey arthi
wth is he talking about ????
the way he describes it, everybody has ALS.
who doesn't have stiffness when they walk occasionally ?
who doesn't have coarse voice or fatigue occasionally ?
this doesn't help anybody.
in fact, this gives people more anxiety just listening to this generic description from an ALS professional doctor.
no thanks !
Wait that’s not an anime last stand video
WAN toegang , deserves ALS ALLES
can happen to younger people too
Yes! My The man that I knew his name was Sean he was 31 When he first got diagnosed
@@meganbritt8096 What is the youngest anyone can get it?
@@meganbritt8096 what were his first symptoms?
@@meganbritt8096 what his first symptoms?
It’s extremely rare unless it’s fALS. Sporadic juvenile onset ALS occurs at about a rate of 0.6 per million persons.
معقوله لحد هسه ما كدرو يصنعون علاج لهذا المرض الحقير
连病因都没有搞清楚，遑论治疗……
@@رقيهحيدر-ث3خ الله يصبركم ويعينكم اختي
ابحثي عن العلاج بخلايا الجذعية ممكن يفيد.. انا بحثت وطلع ان في ناس جربته وتحسنت الوظائف الحركية عندهم
للاسف لا
a nothing video
Lyme
What you mean?
I have als oh no oh no fuckkkkkkkkkkkk iam scared very scared
Update? How are you :) Hopefully you didnt have it?
Hii Abhi AAP kaise ho
are you ok?