Less Common Symptoms -- National MS Society
ฝัง
- เผยแพร่เมื่อ 19 ก.ค. 2011
- MS Learn Online is the National MS Society's online educational webcast series. This video features a discussion with Stephen Krieger, MD, who talks about less common symptoms of multiple sclerosis. www.nationalmssociety.org/Symp...
![Mood & Cognition in MS: [What you can do]](http://i.ytimg.com/vi/9uKYOpN4pyA/mqdefault.jpg)
![[TH] 2024 PMSL SEA GF D2 | Summer | ร่วมส่งแรงใจ เชียร์ไทยไปพร้อมกัน](http://i.ytimg.com/vi/dN2gLsCJ0T0/mqdefault.jpg)
He said swallowing problems would be more common in long standing cases of MS. I experienced swallowing problems the first year I was diagnosed after the first major attack at age 45. I was given a radiological swallowing test where it was observed. Fortunately, it mostly resolved.
Same. I don't like this man. So glad he isn't my neuro...
Please review these. They have important info about MS and should be helpful.
th-cam.com/video/vjypJsd9pDQ/w-d-xo.html
th-cam.com/video/EZkCL7kBwOI/w-d-xo.html
th-cam.com/video/W0Pg7CLlLvI/w-d-xo.html
Tina Blunk hi what kind of swallowing difficulties because it sounds n feels like my throat is crunching when I swallow a lot of time n my throat starts to get tight when I eat certain things like bagels n peanut butter n they get stuck
@@ladystrange4769 It seems like you may have an allergic reaction to those food items. You need to visit a doc to confirm.
@@ladystrange4769 I get a terrible tightening when I eat rice and chicken together, like stewed together. My throat tightens up and I literally can't swallow. Sorry so graphic but I have to stand over the sink or trash to keep my mouth wide open to breathe. Eventually with tiny sips of water I can pass the food down. I can eat chicken alone or part of a meal just fine, I can eat rice alone also. I have no idea what triggers my brain to choke and not swallow when it's together. 😔
when I got sick in 1990 MS hit me hard I was ten ,I have seizures also from the MS ..this is basically what I've always known doctors,meds,tests,tests,and more tests and with summer coming the heat is not good at all
Some headaches can in fact be directly caused by MS. Occipital neuralgia when the occipital nerve is involved, just like Trigeminal Neuralgia. The occipital nerves go up the back of the head to the top of the head, which is where you get pain. Also, the first branch of the trigeminal nerve goes to the forehead and front region of the scalp. So guess what folks...head in those areas if that branch is affected and that registers as head pain (headache to be sure).
yeah, this Doc definitely needs to brush up or they need to update this video. I have speech problems and headaches. I don't think it's as un common as he says. So frustrating not being able to get the words out right away or forgetting what I was saying half way thru a sentence. And the headaches cause wavy waterfall like effect in my vision. I always know when I'm going to get a headache thanks to that symptom.
Cathy Casuccio I have speech problems and headaches too.
Please review these. They have important info about MS and should be helpful.
th-cam.com/video/vjypJsd9pDQ/w-d-xo.html
th-cam.com/video/EZkCL7kBwOI/w-d-xo.html
th-cam.com/video/W0Pg7CLlLvI/w-d-xo.html
My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
He can also cured
Herpes virus
Alzheimer's
Cold
Brain tumor
Etc
Or E-mail: nativehealthclinic@gmail.com
th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
.
Yikes! He really needs to listen to his patients because these are COMMON symptoms of multiple sclerosis. Scary!
Not listed 8 years ago! Times and data change.
He looks like a robot
He is a very handsome man. A robot? Please…
All of these symptoms are the same as those of a MAGNESIUM DEFICIENCY! Please look into this topic everyone. I have experienced ALL of the symptoms mentioned in this video - including brain lesions. I do not have MS but I do have chronic magnesium deficiency which causes the symptoms described in this video to come and go. I can always tell when my magnesium is low because the symptoms begin and/or get worse. When this happens, I simply increase my dose of magnesium (or start taking it again if I have run out) and the symptoms disappear within a couple days.
I have been dealing with this for at least a decade and I seriously thought I was getting MS because of the inability to control my large muscle movements (like walking, picking things up, coordination problems, swallowing issues like choking on food and drink, etc.). Oh and the neurologist who did my MRI which showed my brain lesions explained that the lesions can often be the result of MIGRAINES - of which I had several per month...with major migraine aura. Migraines and/or auras are a red flag symptom of magnesium deficiency. I hope this helps someone! :)
Donna how much mag do youtake..i never hear what can be done to help symptoms...and like lymes it seems like it is impossible to tell for sure....l am 73 and my only desire is to keep playing reasonably good golf 4 days a week...and many meds make this impossible....do you know anything that would help?
Swallowing problems occur when you develop lesions on the spine! I learned that with my MRI and my neurologist!
I have TN it’s the most excruciating pain ever! I also have MS and have had the slurred speech and trouble finding word in my brain.
MS is as different to each person as each person is different
Can't find the word! That's me all day.
I've. Had slur speech off and. On all my. Life. And. A. Limp too can. Happen. And. Does. I. Have. Trouble. With. Pain. And. Sleeping. I. Forget. Important Stuff. I. Have. Bad. Depression too
I have MS with heart symptoms
This sounds like my brothers condition. He reminds me that he cannot walk. Before that he couldn’t stand straight. He now cannot control his bowel movement nor urine. He has never mentioned MS. He is bed ridden and scared all when his speech got slurred. What over the counter meds are recommended?
Ok. You say you can’t find words
Do you see the word in your head. But you can’t spell it or say ? Or are you completely at a loss for words?
Do you ever switch words? Like .. did you get the mail in the microwave?
( but I meant to say mailbox).
Thanx doc this was the Best anyone ever explained it to me. I have MS now for six years and everyday i Just realisme how special God has made us and every little thing in our body.
With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on TH-cam medications. Thank you for saving me.......
Contact DR RORPOPOR HERBAL with this link and get Cured totally 👇🌿
th-cam.com/channels/kZwKW6qES4dXDWzb0YQErA.html
I've had MS for 12 years now and also have more and more problems finding the right words. My doctor is gonna send me to a course now to train my memory. We'll see what happens.
That's nice. My docs always just want to medicate and the meds made me worse.
@@k.h.307 It is a very complex balance and different for everyone. I took seven pills a day ay a certain point, and now I take only one a day. I feel better, mentally, than I used to but at the same time I feel my body getting worse. I guess it remains a constante search with a body and mind that changes every day. I started the vlog: The Silver lining - Living with MS to keep my sanity and it has been the best medicine for me up until now.
Dear Ms Secret; I have had MS for over 20 years; symptoms like people are different for everyone. It may take several neurologists to find one that suits you, keep at it!
part 6: I have had optic neuritis in rt. eye for past 1 1/2 month, and was complaining to all my dr.s but got ignored. I had my routine eye exam with ophthalmologist when he asked me how long has my vision been poor even with my bifocals? I told him and he said it's because of optic neuritis. He sent me immediately to the outpt. infusion lab for I.V. steroids x 3 days, I went home with a saline lock in my arm. After I.V. done, I was on 5 weeks of weaning dose.
♡ haven't been diagnosed yet. but having a lot of the symptoms. tasted metals for awhile. Having pain on the right side of my head. it's unbelievable that this takes so long to diagnose. But they did start me on pain meds.
how did it go ?
Every once in awhile I have this weird metal taste in my mouth and it last for a few days and it makes other foods and drinks taste completely off I wonder if I should mention this to my doctor along with some other symptoms I'm suspicious of. Thanks for sharing
Tiffany updates? We’re you diagnosed?
Thank you for having these learning videos online. I do have MS, and these are very informative.
What about numbness side of right face?
Headaches are not a rare symptom of MS. They are in fact a “common symptom.”
“Migraines have been associated with lesions in the brainstem, C2 dorsal horn, and periaqueductal gray matter. In addition, several studies have shown migraines to be more common in patients with relapsing-remitting MS.”
“Another study has correlated primary stabbing headaches with the relapse phase of relapsing-remitting MS, implicating stabbing pain as a potential sign of acute demyelination. Sharp and stabbing headaches were highly associated with headache worsening during MS exacerbations.”
“Another hypothesis suggests that MS and headache, particularly migraines, develop as a result of a shared factor, such as a common environmental and/or genetic link that fluctuates with endocrine changes. One observation that supports this hypothesis is that both MS activity and migraine frequency were reduced in pregnancy.”
“The increase of headache severity with MS exacerbations may also explain, in part, why MS patients are more likely to report greater headache severity in the summer than at any other time of the year.
With emerging data identifying headache as a common symptom of MS, it would be interesting to study the effect of heat on headache development in these patients.”
Headache in Multiple Sclerosis, International Journal of MS Care. 2013 Summer
David Tabby, DO, Muhammad Hassan Majeed, MD, [...], and Jessica Wilcox, BS
My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
He can also cured
Herpes virus
Alzheimer's
Cold
Brain tumor
Etc
Or E-mail: nativehealthclinic@gmail.com
th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
.
I totally agree with you. When he said that I was like "WHAT?!"
Yeah, I agree. And he said aphasia and word finding are really rare in MS, when in reality these are some of the most common cognitive symptoms of MS!
excellent presentation for me as she asked about breathing issues at about 7:10.
I'm so sorry for what you are going through. As a former rad tech I totally understand how you feel as far as going so long without a diagnosis. It's like you've been betrayed by your own kind. After what I've experienced I'm disappointed in our health"care" system and I will never go back to work in that field. I've come a long way emotionally as far as not being able to work and being broke. It helped me a lot to let go of the anger I felt for so long. Hugs to you. Be kind to yourself.
part 8:My family think already that I take enough. I was told I could no longer work as a nurse until more stable. So I got MS, no job, no money to pay bills, severe pain from daily headaches, cant breath, and I am suppose to try and find a happy place to be in , in this world? Most of the days I think about what death would feel like. But then I have my grown kids not yet married, and I want grandbabies. So I am holding on as best I can. be kind if commenting I really can't handle any rudeness
Debra Estephan Hi! I hope 5 years finds you in a better place with your DX of MS. I was a nurse for 25 years and was diagnosed 12 yrs ago. I learned over the years to reinvent myself out of necessity. I worked with Cancer and HIV/AIDS and feel strangely blessed by comparison. Being on SSI and having so many new MS issues, makes it hard to go look for a job, any job because I am not the multi tasker I once was, such is my life... Still feeling blessed....
Debra Estephan I have serious fibromyalgia , the symptoms are very similar. We both know suicide is not an option, it would destroy our children. So we keep going.
Debra Estephan You need to apply for disability so you will receive an income and health care
Debra, I take it, you are an American? Hello, I'm British. For a time, I was a dental nurse before I was diagnosed with MS. Your story is quite sad.... please sweetheart, carry on. Life is still full life and colour and sounds. Yes, life is also a big challenge, but I carry on day by day. I'm with you, even if we are miles away. Xxx
Debra, I too am trying to get to my happy place. Have a supportive husband and believe sincerely in the power of vitamin D supplements. Also Omega 3 fatty acids. Have been diagnosed with MS since 1988 or so. Long time. Can walk with my walker but can not drive. Good luck all!
instead of a hug, I had something more like something wanting to explode out of my back
I was diagnosed with MS on 17 years old but started getting heavy tinnitus in my ears now that I turned 33 years old.
My father that passed away with MS on 59 years old and also complained of really bad tinnitus.
With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on TH-cam medications. Thank you for saving me☘️
Contact DR RORPOPOR with this link and get Cured totally 👇🌿
th-cam.com/channels/kZwKW6qES4dXDWzb0YQErA.html
Oh no how is it now?
Another weird fact. I lost my drivers liscense before anyone did any tests to figure out why I started to wreck my vehicles. Life without a liscense and life with no help is very discouraging. I never worked. I was married for over 38 years. Thus its very hard dealing with all this alone. the seizures became very prominent. Several a day. And I could not figure out why my apartment was in disarray. Its the seizures. I contacted the NMS Society. I have not recieved help yet. Told they cannot help
part 4: I don't think cardiac issues are a part of MS- it just makes me sicker. Finally in Faeb. this year I got tested again by a new neurologist- and he dx me with R&R-MS. I complained to all my doctors about choking on liquids, food getting stuck, and severe GERD, no one till this day cares. I also have a difficult time getting thoughts or words out at times. The biggest problem is that I don't sleep. I have had 4 sleep studies and the last one finally got to the problem.
I can understand you. Doctors care only if you have difficulty in moving, walking, or hand shaking. All the rest are not important to them.
Thank you!
OMG sorry but this "dr" can not really believe these are less common symptoms. He should get in more support groups or read more research. These are not uncommon, they are very common. with luck and patience they will lessen or be treatable with steroids. TAKE ONE DAY AT A TIME AND BE EASY ON YOURSELF!
They actually are unusual for initial diagnosing! But yes, of course we know having MS, that these things can and usually do creep up...
Yes, rare? I was hoping to hear something about Hyperacusis one of my most troublesome symptoms. TROUBLESOME! see me minimising!!! It prevents me from doing A LOT of things.
This!
Can you get severe pain in shoulder and down arm and hand.
Can your calf muscles ache all the time
Agree
I think he makes a good point in that its rather normal to have headaches, and these other symptoms, question is, is it happening when you're relapsing or having a flare-up and followed by your other symptoms? I'm not a doctor, but I think maybe that should be something that looked into as well, and then maybe you'll be able to differentiate.
Very informative; thank you!
part 2: I would be taken to the hospital and told I was fine. A rheumatologist x4 different ones all said it was a different auto-immune disease, but not one said MS. I had numerous MRI's test, and spinal taps (which showed in all of them Oligoclonal bands), and not one dr. diagnosed me with MS. I suffer muscle tremors, I don't sleep or go into REM, I have major shortness of breath (told it was asthma) and given inhalers;
I had a grand mal seizure in my sleep and that is what led to the diagnoses of MS, I spent a year having seizures and I still get slight spells but they are not as bad. I have shaking in my hands, my vision is poor but not bad, I also get a muffled rumbling in my right ear, not all the time. MS is a mystery that needs more research.
Theresa, your symptoms sound similar to mine. I have had symptoms for at least 6 years & doctors kept telling me everything was 'normal'. My neurologist had started me on seizure meds 3 years ago, but finally ordered a 3T MRI & that is when they discovered multiple lesions on my brain. Initially my epileptologist thought I was having a stroke due to the balance problems & weakness in my right leg, but my husband's cardiologist already ruled that out with a CT angiogram. The radiologist report indicates that he feels it is a demyelinating disorder, based on the location of my lesions, but further testing was needed to confirm a diagnosis. So, I am hopeful that I can start some type of treatment, but mainly for the unrelenting fatigue.
I hope you have continued success with your treatment.
Please look into the MS diets.
MS symptoms don't list seizures often. That's really interesting (but obviously unfortunate because seizures are awful).
I had a Gradmal seizure at age 7 then I got TMS at age 14 now I'm a 23year old lady I haven't had a seizure since. I'm on Depacote ER
Hello, thank you for making this video, it helped me understand a bit more about MS.
I was diagnosed with MS 2 months ago, and it was a pain in the arse to figure out what i had, i only had two big flares, one was last year, that one basicly i woul have a spasm in my whole body in one side only, but i couldn't do mutch about it, it was like, literally every 2 to 5 minutes i would have a spasm in my body in one side for like 5 to 10 seconds.
I was checked several times, did a bunch exams to everything, and well, everything was good and no one knew what i had, fast forward 1 month of half body spasms every 2 to 5 minutes and one day, i woke u and everything was fine.
Just like that i had nothing.
1 year later i felt like the spasm were about to come back (I could feel them coming) and i was taking my driver's license, so i stopped my lessons and yeah, surely, they came back, full body spasms again, but on the other side of the body, i went to the emergency again but this time, after checking a bunch of stuff and everything was fine, one doctor asked for a MRI scan, and i went and did it, when i came back from it i heard another doctor saying maybe it would be better to do a lombar puncture to be sure and i turned around and was like "well, if you wanna do it right now go ahead since i'm feeling good at the moment." well, little did i know what that was, anyway, i find the MRI worst, although that was very painfull, anyway, i took corticosteroid for like 5 or 6 days, but man, this year was way worst then the year before, at this point the right side of my face was like, it looked like it fell like i had a stroke or something, i couldn't do anything, could barely get up, i couldn't eat by myself, my speech failed me every couple minutesit was like it slowed down and couldn't say the words right, i got EXTREMELY tired all the time, i couldn't even take a shower by myself, i could not do anything alone, had to ask my lovely wife to cut my food, my hand coordination was terrible, i wouldn't be able to type all this like i am doing, could not type on my phone, sometimes i was swallowing and i felt like, my tongue would push the food downwards but it was just stuck there because my muscles did not work, sometimes i wanted to get up but my legs didn't work, again, my leg muscles just did not work, i got fecal urgency, i got a slight urinary incontinency, it was just terrible, absolutly terrible, when i heat up a bit my vision got blurry and the spasm would come back with the speech problem and all that , i am taking a medication for epilepsy wich is helping on that regard, but again, just terrible i am almost back to 100% again, but i realised that the vision in my right eye is bad, i think this will be permanent, but we will see how it goes, and honestly alot more.
I am 30 years old by the way, and apparently this is a bit unusual, specially for my age.
So yeah, just found out about this, apparently i have a pretty active case of MS, i am already on Ocrelizumab and yeah, i guess we will see how it goes, currently watching videos and learning about MS so, again, thank you.
I now know what to call it when I see the word and I know how to pronounce it correctly because what comes out of my mouth is not correct and I know it...that is so frustrating but I do create words that do not exist in the English language, lmao😂
Mary Hinze-Joyce
I have no voice most of the time, my mind is much faster than my mouth..so I don't talk that much. I could handle MS better if my VOICE was BETTER.
Yup, I can see the word but can't say it.
Omg I have fibromyalgia and I experience this a lot!!
Please review these. They have important info about MS and should be helpful.
th-cam.com/video/vjypJsd9pDQ/w-d-xo.html
th-cam.com/video/EZkCL7kBwOI/w-d-xo.html
th-cam.com/video/W0Pg7CLlLvI/w-d-xo.html
@@capitolahale1736 Please review these. They have important info about MS and should be helpful.
th-cam.com/video/vjypJsd9pDQ/w-d-xo.html
th-cam.com/video/EZkCL7kBwOI/w-d-xo.html
th-cam.com/video/W0Pg7CLlLvI/w-d-xo.html
Are there any great movies about multiple sclerosis available
i do have swallowing and speech, word finding, definitely cognitive and others you mentioned NOW i have head face and neck out of control spasms. i take drip (not steriods any more). Great nerologist but i cant call every day cause i can get by and still need to work. perceptive people pick up on it quickly others dont so see it as an opening to take advantage of me at work. stinks.
Would love to know where this neurologist is getting his research from. If I was him I would make a big effort to improve his knowledge or change careers.
part 1:Please read in order I was diagnosed in Feb. 2012; I have suffered this disease for 18 yrs. and had all the test and lumbar punc. showing oligclonal banding. As an exp. ER nurse, it is hard for me to accept that I have suffered all this time and now have permanent damage. I have complained of choking for years, and food getting stuck when I eat; my husband even yelled at me all the time because he felt I was eating to fast. I complained of dizziness, and actually fainted several times.
Same!!! How are you doing now this comment is so old.
I had unusual symptoms, lost my hearing and ability to taste and smell at the same time, that was in 99’ I was diagnosed a year later with RRMS... 17 years ago I still do not have a specialist to change it to at least SPMS...? It’s so frustrating! I also have seizures and dysphasia grrrrr. Yep MS hug too! It truly sucks. Because I went so long without treatment of the initial major relapse that made me acknowledge that something was wrong, so those major things at first weren’t properly being treated I suffer from it almost daily!
candace Skeen When I was first diagnosed in 2006 with RRMS I was having a major attack. I was numb from the waist to toes, I couldn’t walk, I couldn’t pee, I could barely have a BM, the pain in my head was absolutely horrible, my limbs were a buzz inside, feet and toes were contracting in spasms, and the fatigue was overwhelming to say the least. I was treated immediately with IV steroids and started on disease modifying medication. But I was told it was Relapsing Remitting and everything I read and heard told me that meant those symptoms would clear up (remission) and I would once again be “my normal self” if and until I suffered another relapse/exacerbation/flare/attack. Looking back with the neurologist I could trace weird bouts of symptoms I had experienced the four years or so previous, that had come and gone so I had dismissed and never seen a doctor for them, but now in retrospect was obvious had been RRMS. Therefore, with the information I was getting and from my personal clinical history I was expecting to have full remission again. RRMS...Right? A year later when I had some improvement, but not all of my symptoms had gone away I was frustrated, depressed, and concerned. Where was my remission?! Then I got a neurologist who specializes in MS and learned the truth that at some point you have damage to the point where you don’t get complete remission and you are left with daily symptoms and/or daily disabilities. Depending on the load of damage it can be a lot of daily symptoms left in that so-called “partial remission.” However, it is still RRMS if you have true relapse/exacerbation episodes followed by a remission or improvement (partial remission) of those symptoms of that exacerbation. And that eventually over time, often 20-30 years, RRMS transitions to SPMS.
Later, I finally read this same information. And yet most sources still put forth the simple definition or explanation of RRMS as being attacks followed by remission, or symptoms followed by no symptoms. This misinformation does a disservice to those with RRMS, their families and loved ones, other health care professionals not in the MS field, etc.. I can’t tell you the number of people who think as I did that, “Oh, after the attack you go back to normal...to ok...to no problems.” So NOT true!
candace Skeen j
I have had severe problems with swallowing and with speech and finding the right words. I also suffer from tremors that cause my hands to shake. I cannot carry trays with food and drink or carry a glass that is too full or I will be embarrassed by spilling from the shake. Not a seizure per say. I have had MS for many years now.
I have problems with my arms and hands. I cannot hold a glass or comb my hair, trouble holding on to a fork and cannot use a computer or a computer mouse. Will tysabri help these symptoms?
I was diagnosed in 2000 and have had severe dizziness for around 10 years. My consultant hasn’t suggested any treatment apart from physiotherapy which I found made it worse so couldn’t continue. Has anyone had any success with other treatments?
I had numbness to temperature in my right leg and side for about a month. It baffled doctors until I was diagnosed with MS a year later due to double vision and nystagmus
My MS Disease healing testimony my mouth is short of words,I am so happy because Dr Emmanuel healed me from MS disease a herbalist from west Africa, I have been suffering from it for the past 2years, I have spent money on different medication but it the same, until some lady testify about this dr Emmanuel i decided to give a try, that's how i found my self healed, i can't keep this I got to testify too, chart him up through his WhatsApp +2348140073965
He can also cured
Herpes virus
Alzheimer's
Cold
Brain tumor
Etc
Or E-mail: nativehealthclinic@gmail.com
th-cam.com/channels/pUsOO5kNWlqOYzaWgtQuHQ.html
.
Thank you for this important information. I have MS ,
I have Sjogrens, and a debilitating case of it. Recent months ive began having what im pretty certain is the MS hug. Im also having muscle spasms under my chin. That muscle will spasm so hard for several long seconds, that it is visually apparent. My legs, feet and hands spasm as well. Also im having the explosive diarrhea after bouts of constipation, and sh
ooting pains in my face and head.
It is quite common for Sjogrens patients to get MS as well.
Do any of my symptoms warrant seeking tests for MS in your opinion?
** Sorry to hear about your symptoms. No fun. ☹️ Yes. I suggest seeing if you can get MRI of brain and spine with and without contrast to see if you have any lesions. If they find lesions then they can follow up with antigen blood tests to confirm MS vs another diagnosis that has neurological symptoms and lesions. If your doctor won’t order the MRIs, I’d find another doctor. (Caveat: Perhaps your doctor prefers to refer you to a neurologist to do that testing and diagnosis. If so, that works. If the testing is positive for MS diagnosis you’ll need a neurologist anyway, and preferably a neurologist with MS specialty. I started with neurologist and switched to neurologist with MS specialty a year later with first neurologist’s blessing, so to speak.) Bottom line...Yes, get checked. Yes, you need MRIs to do that.
Ihave problems walking and sometimes pain in my arms. Friday I will receive my second Tysabri infusion. I think it will take some infusions beforeit helps
part 5: I have bradypnea (very low respirations), and I drop my oxygen level when asleep- which triggers my brains to jolt me awake. My brain also keeps me from going into REM sleep, because of my breathing disorder. My complaints for years that I was short-of-breath (SOB) was actually my diaphragm no longer working well, d/t nerve damage by MS. I sleep now in a BiPaP machine and wear portable oxygen as needed.
I was just diagnosed in May. My ears are always buzzing, I'm tired, have ocasional issues with swallowing, I have muscle spasms, the list goes on urgh!!!
My ears starting ringing. How did they diagnose you? MRI. I just had mri. For the ringing in ears.
They did an MRI for dizziness and ringing.
I'm going through a flare up right now! I was told by a doctor years ago that I'm in the beginning stages of MS.i was with Kaiser, lost that insurance through my job and my job, so I've been dealing with these same less common symptoms like the seizures, the eye problems the hearing which can sometimes cause a ringing, a muffled, or Hyper sensitivity causing things to sound louder than normal.. these problems has gotten worse over a course of 7yrs but seems worse every year that the underlined problem isn't treated.. I've been to over 4 neurologist and they brush it off as me having past trauma especially with the seizures or seizure like activity.. they found about five lesions on my brain.. and told me that it's just changes in my brain kinda anyone else..i haven't experienced the ms. Hug since 2013 which is good because that is gut punching feeling. I hate it.. I'm starting to wonder if i should try a doctor from it of state because I'm not getting anywhere with these doctors in Ga!
Jameica Jones hope you are feeling better
Please, research and begin taking vitamin D supplements and Omega 3 fatty acids. Helped me and still does!
@@jenniferbodurtha5852 Hi. I have MS as well. My Neurologist prescribed Vitamin D3 but no mention of Omega3 vitamins. Interesting. I hope you are doing well in this fight. 💓
Starla B, I still take D and omega3. And others like B12 and omega3 is also called flaxseed oil.
Jai, hope you are getting better. You can google the names of other neurologists not too far away and google info about MS for yourself. Best of health always!
part 3: I had a fainting spell during an outing with my family. I had a migraine. I was taken to the hospital. I guess my neuro exam was not normal because I was admitted. I was given dilaudid I.V. and then placed on a PCA pump with dilaudid- I don't remeber anything after that-later I was told while in ICU, that I stopped breathing, and my heart rate went down into the 40's. A code was called and long story short- I ended up with a pacemaker- because I have "life-threatening bradycardia."
Yeah!!Are you a mountain person or beach person?
So, is this related to you having ms?
I am still looking for a diagnosis after over 20 years. My muscle strength is down to 3+, I have 85 - 90 % of the "standard" MS symptoms. But I also have absence seizures, aphasia, breathing problems, problems swallowing & when sitting in the shower with the water running onto my lap - my legs go numb from that point onwards. I have seen 2 Neurologists & had spinal MRI's but no brain scans and have therefore been written off. I am lost as to what to do next.
Did they ever find what was wrong? MS? Doctors have been brutal to me. They all write me off as a neurotic female. But I have suffered so greatly.
I've got M.S. and this is a good informative useful video I assume it was made in the USA.
He is grouping headaches as a rare symptom of MS. He is saying migraines are just more common in females and 2/3 of those with MS are females. However, according to The National MS Society itself, “Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache.
One report noted that migraine headaches were more than twice as common in a group of MS patients than in a matched group of people without MS. Other investigators found a prior diagnosis of migraine in one-third of the MS group being studied. A third study found that 20 percent of a sample group of people with MS had a family history of migraine, compared to 10 percent of controls, suggesting that there may be a common predisposing factor to both MS and migraine. Vascular or migraine type headaches have even been reported as the first symptom of MS.”
I have almost all the symptoms of MS but with the various MRIs and CAT scans that have been done and not "plaque" or "bands" and all other blood tests come out normal. I feel like I am crazy.
+Patricia Garza me too i have started to have severe leg spasms now frightening
How is everything going Patricia? im in the same boat!.
am going going to get tested myself..i have a numb leg for some time and tingling through out my body and some times in neck and leg feels weak and sore burning..am stressed out hope my i dont have it
Have u guys been tested for fibromyalgia? I have that AND bein tested for MS. The Drs have thought for about 20 years that I have had MS. I had yet to have a Dr do the tests to find out if I do. I'm FINALLY gettin them done now! Thank u God! I know if it is MS , honestly I think I might be relieved to know WHAT it finally is. I have been pushed to the side for 20 years now for them not really knowin what has caused a lot of my problems. I have 99.5% of MS symptoms . I have had relapses for 20 years. Idk but they might have misdiagnosed me cause the diseases are pretty close.
May be fibromyalgia. There are diagnostics. See your doctor
I'm tasting sweet when I eat a lemon or mustard. I'm still going through testing though to see if i have MS. I didn't know MS could affect taste.
yesterday I went to see neurologist because I was seeing double, and also in 3-D; I now have optic neuritis in my left eye, and major nerve irritation to my face. I hurt so badly- but refuse to take pain meds, because as a nurse, I dont want to become dependent on pills to deal with this crap.
Sometimes Neurologists act like they know it all.
@jendifilippo Me too; my mom struggled with this from the beginning...
What if you ABSOLUTELY CANNOT have MRI’S b/c you have stimulators(?) is the spinal tap going to be the only way to diagnose?!?! 😮 Thank You Sooooo VERY much!! I’m so nervous
I have all these ...u was diagnosed August 4th 2022 but had these issues for years at this moment the burning stabbing tingling feeling is hitting my brain. I should be telling the drs about....I puke all food up because after every meal the last bit feels weird then my breathing slows and I almost passed out one day then caught my self I puked and I could breath again..
I live with it since I have 15 years
I heard "Dr Kreiger" (like from Archer) and thought "well *obviously* the treatment would be replacing their body parts with a robotic ones". Wonder if he's ever gotten a patient who said that, though something tells me I'd make that joke and he'd be like "what".
Yeah!!Are you a mountain person or beach person?
what sounds verry worrisome is the probability of suffering the "'respiratory neumonia"'.........that is too too much scary ! God Be Kind on Every one :)
While I appreciate these learning videos, I'm not impressed with this doctor. He is downplaying these unusual symptoms of Multiple Sclerosis and making light of things we have to deal with often. I personally don't have hearing loss, but I know it's a real symptom and I know several women who have this with their MS. I could pick apart his explanations one by one, but my memory is getting the best of me right now. Talk to your own doctors people. Talk to other MSers who suffer from these, as well as others, who have or had these unusual symptoms. Join support groups, either online or in person. Please don't take every video on TH-cam as gospel because I assure you a lot of them are incorrect. One more thing; Dr. Aaron Boster, who is an MS specialist, has a wonderful TH-cam page and addresses many things associated with MS in a very personable way.
Right on Athena, I'm going to go out on a limb and say that without a person like Aaron out there speaking for us I would feel like I was up the creek without a paddle.
I have been having MS symptoms for many years and am now talking with my new doctor about getting tested. I have the worst time trying to think of words when I'm talking, I can't remember what I was saying in the middle of a conversation, I have forgotten certain events in my life. I get darkened spots in my vision, I am hard of hearing now, my low back hurts so bad and my hips. I believe I've had these MS Hugs, the last one was a few weeks ago and it was the 1st time it sent me to the floor, I thought I was dying. I need answers and hope I get them soon.
Robert I have learned so much in the last few months from Aaron (Dr. B) videos on MS. He's been instrumental in gaining new insights through his videos. His knowledge base is huge. I would concur that we need to discern what we watch on you tube for information on MS. Knowledge is power for sure.
Hello; how do you differentiate between menopause and MS?.. Thank you.
What a stupid question.
I was wondering the same thing as I have so many symptoms of MS but also can be found as menopause symptoms especially the cognitive changes, depression, bowel bladder changes
I would like to add here as recently diagnosed with ms. I had a relapse it was horrific to me personally ever since I struggling to find words long pause when talking forget words. Difficulties with swallowing it's been on going for 5 weeks or so. Everyday I have had spasms weakness in right leg noticeable gait. Arm weakness hand painful gets really weak pins and needles in face more painful now like electric shocks. Behind ear also like burning sharp pain lasts seconds but comes on everyday on and off. Tremour is so noticeable now in hands. I have only had blurred vision no loss of sight as of yet. Twice had floater over vision only lasted mins. The fatigue is brutal that's all can say about it. Isn't nice I can fall asleep while talking or public transport. I though am finding it difficult with words when am talking ever since I had the attack. Still not recovered if anything more new symptoms. Awaiting for medication to start now concerned is this secondary progression I have.
First 4 minutes is me ....what do I do I just diagnosed on aug 4th have had ms for years but now the speech and swallowing is happening
I'm here searching for answers. Going to the doctor tomorrow. Don't know if I have MS? But, I have some type of ataxia. Symptoms have developed very slowly over about 6 years. My symptoms started as slight balance, which now are getting severe. Some bladder issues and bowl symptoms. Over the last year I have developed problems with swallowing and speech. And having hand dexterity issues.
With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on TH-cam medications. Thank you for saving me☘️
How’d it go?
Dear Dr. Plasma556, please enlighten us as to you medical qaulifcations that allows you to issue such a statement that MS is not real. Having had MS for over 30 years plus a professional knowledge of Neuroscience. I would really like to know how you arrive at the staement MS is not real. I assume out of ignnorance than a solid knowledge base.
i'm 16 i have problem peeing such as frequent urinating sometime hot sensation after peeing when i:m stressed, Straining to poop, i feel a mild tingling in my feet for 2-3 months now i dont know what this is
Hey, i feel numbness, tingling and random pains all over my body, butt,face,legs,back,belly,arms,hands, feet..but my all exams including the mri are clear and inconclusive. What do I have then? Idk it just keeps getting worst and no one knows how to help me plz i would appreciate any advice.
I have the same thing! Is it like shooting pains? I mainly get those but also sometimes heavy or achy feeling in my arms or whole body. I am yet to get an MRI on my brain. Should be getting refered soon.
@@isab1942 exacly
Speech problems- check
Swallowing issues- check (Botox used )
Trigeminal neuralgia - check
Seizure - was my 1st symptom (post partum)
Breathing problem- check. Had trachea !
Oh geez, please revisit symptoms🤦♀️
I understand. No one wants pain. 😢😢😢
Aphasia is a big problem for me. I will be grasping for words or I can’t remember how to pronounce a word. Sometimes I can spell it but can’t pronounce it and vice a versa. I guess this could be old age. But it occurs when I am fatigued.
With natural supplements I was Cured totally from ( M.S ) within 17 days of taking DR RORPOPOR HERBAL on TH-cam medications. Thank you for saving me☘️
Contact DR RORPOPOR HERBAL with this link and get Cured totally 👇🌿
th-cam.com/channels/kZwKW6qES4dXDWzb0YQErA.html
So what if you have MS and TBI
I wish I had better insurance. Can anyone tell me the best insurance that Dr.s don't treat u as charity and dismiss u because your insurance doesn't them much Ugh
+Christine Martinez Move to Canada, we don't have to pay to see a Neurologist, but medications can be expensive
I have healthnet, it's $29 a month (ruby plan). It covers ALOT. Co-pay $5 to see doctor and $50 for neurologist or any specialist.
i experienced a loss of taste like this, no sweet, eating chocolate tasted like butter, lasted a couple of weeks went away again, only once.
phantom smell, foul order that's not really there, it's weird.
Oh yeah I get that
Shooting pain in the head yes getting that a lot lately
Sudden hearing loss is associated with lesions occurring in that area and has been said to be one of the leading symptoms to diagnosing MS. So I beg to differ.
I'm the few that experienced seizures. Taking another pill out of the day :/
My hearing in my right ear...6 weeks... always comes back .numbness in my right arm comes back but can leave fingers numb can be up to....6 weeks ...eye issues...can be same....dragging my toungue....slure... can last a week or few days...stumbling or falling....facial numbness right side...mounth drop right side lasted 6 months then went away...migraines feeling like a tightening band back of head....chest hug feeling fully tightening across back and ribs...spiked stabbing shooting pain jaw, fingertips, toes....night serizures... feel like I'm being pushed into the bed can't wake up.....I tried seizure meds...they didn't work....so I dont take any medication....I think it's because I have celiac and I'm not digesting the medication correctly... if I stay hydrated and not overdue it I can keep symptoms at bay....but my doctors say I have too many symptoms....I'm not sure if its MS....😥but my dad had Grandmal seizures and had epilepsy...and I have a bad gene.....the doctors at the VA do not care what you have....they won't do tests because they say it's too expensive so I dont go anymore...
How are you doing now?
Weird smells. Weird tastes? Do you have hypersensations? All these are considered auras. An aura is an impending seizure. It took years for me to be diagnosed with seizures. Take an EMG TEST. Mine is positive. I was dianosed with MS in 1986. Im now 58. I became an accomplished srtist and photographer. My MS was undiagnosed in 2005 by 7 different neurologists. Sad to say it took the seizures I did not know I had to be rediagnosed with MS. Its the inflammatory process.have 12 lesions now!
I HAVE TN AND MS LIFE IS DOOMED :)
hmayia Your life is not doomed! Please think positive and don’t be hard on yourself. ❤️
@@pamr.8541 thanks beautiful
Okay to be positive or not not my concern
I need this pain to stop >> have any ideas ?
Facing last stage?
I have word-finding issues all the time and have MS.
I have word find difficulty
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on TH-cam and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus🎉..
Loss of sense of smell; decreased sense of taste; visual issues keep changing; speech disorder [getting words out and slurring, drawing-out pace of words, word finding, difficulty enunciating; minor swallowing problems can result in choking anyway; subclinical seizures; hearing has been subtly changing, and noises in ears have increased; pain; breathing issues, allergic asthma and squeezing feeling; tremors/incoordination/sudden loss of control of a limb; stroke-like event without any trail of evidence on MRI; severe bouts of pain in various areas, like feet, or hip[s]; loss of balance; difficulty thinking; hot weather intolerance; light sensitivity; and so much more!
Yet, no diagnosis by mainstream medicine; in fact, been told, 'MS doesn't get pain'; 'you don't have any lesions in your eyes, so can't be MS', or, "there's no lesions on brain MRI, so can't be MS"; etc.
Been dealing with it slowly creeping up and getting worse, for over 30 years, and credit alternative medicine options to keeping me going this well, this long...and lately, semi-legal MMJ has been a solid, miracle God-sent solution to most of these symptoms, for many.
Hello, I have almost all of the symptoms you described (as well as random bouts of fainting) Have you been able to get a diagnosis since you've posted? I still have not been able to get diagnosed, even though I know it's MS, and my doctor refuses to get me an MRI.
sp57018702 Nope. Unsure if getting formally DX'd is a good or not. Refuse to use Pharma drugs except as a as resort..not there yet.
Most Docs I've experienced [though I avoid going to see any unless dire emergency], seemed to be those who graduated in the lower levels of the bottom half of their class..get it? [bottom-50% of class is rampant in most professions.... DSHS, HMO's, clinics, etc. insurance-run medicine purveyors are a big easy for those to get hired into. ...even met one "Doc" who showed many signs of not really being a real one...or else he was just so far to the bottom, was really un-good. Then there was the chronic alcoholic Doc. Some had less ability to DX or figure out how to treat, than I do. Some were plain abusive.
I've been controlling it pretty well for around 30 years, using various alternative measures ...that seems to be working well so far.
I have held off on seeking help from the HMO because one Doc there literally said: "why should I run lab tests for you if you won't take the drugs I can prescribe?" Of course I replied, "so both of us have a clearer picture of what is going on in this body"...she changed the subject....Now does not remember saying that. But that is one example of the craziness encountered, which has kept me decidedly on the side of alternative medicine.
If it gets bad enough that it stops remitting fairy fully, then maybe I will go there.
Sure, have bouts that pretty much put me out of commission for days, weeks or months in some ways...but handling it ok so far. Know how to make some adaptions to get by. Have Disabled parking tag for other DX's, so have that covered. Use assistiive devices as needed 2nd hand those are much less costly, sometimes free.
Problem with mainstream medicine is legion...starting with Docs taught outdated information in Pharma-funded medical schools, and/or who have strange attitudes towards patients.
FEW know how to look for root-causes; mostly treat symptoms they can see at time of an appointment. Not much but lip-service to preventative med., either. If symptoms are reported at a visit, which the Doc cannot witness, any patient is apt to be labeled as mental and referred to psych....for other drugs that are inappropriate.
Did you get DX'd yet?
+Winter Star Unfortunately, I have not, but am currently looking into diet and exercise changes to improve symptoms. The only RX I'd take for it is steroids, so my mom advised me to go around an MS diagnosis and research other reasons to receive steroids. Sad I have to do that.
sp57018702
Wow..steroids are harsh. Imho, if I were to try a mainstream drug, it might be "LDN" [low dose Naltrexone], because that's been found to relieve pain and other symptoms, yet not do other damage. Steroids do control inflammation, and are a common 'go-to' Docs use, but those cause collateral damage over time. MS is nothing if not chronic; chronic steroid use will [not can..will] cause increasing health diminishment over time, in addition to MS.
You can look up the info on LDN online, compared with steroids--what each does, and the adverse effects and chronic use effects.
Then start looking at dietary approaches. One can get Very good results healing from using a few radically different dietary approaches: ketogenic, raw/vegan/ veggies/sprouts [like The Hippocrates or The Optimum Health Institutes], or even high complex carb diet [aka: high starch diet]...3 very different approaches, yet each have been used to achieve stunningly amazing results. Each type has it's good and not so good aspects, depending on the person and their circumstances.
Choosing one that fits you and your needs, or even trying each type to see which one is easiest to stick with, or, to see which works best for some issues than others, has also helped some.
But these three, I have seen do miracles for chronic ills of all types for patients I've cared for, and for me.
Also, certain nutritional supplements might be important, as is doing all you can do to avoid chemicals: laundry, cleaning, personal care, environmental things, which DO affect neurological health. There ARE safer alternatives.
Be aware: MS symptoms wax and wane over time; to know if a diet will work for you, means really sticking to it over a long enough time, to make sure it is the diet, not the pattern of the illness.
How well one sticks to a healing diet, and getting rid of chemicals in their environments, will determine how well those work...you will start to see which chemicals, foods and additives have been causing problems when you start doing better, then cheat on a diet, too. I get eye and body pain symptoms worse if I cheat and eat things like most common breads [full of chemicals and conditioners], or get exposed to higher chemical levels. It can take some days after, to fix that by sticking to a healing regimen more closely.
It will not heal you to the point you can return to old food choices--old food choices WILL bring back symptoms of illness, as will exposures to chemicals in your environment.
Time, patience and sticking to it, win the days.
Be informed: study up on things so you can make actually informed choices.
Good luck!
So I call people with multiple sclerosis normal. I feel exhausted and I am ashamed. I had an involuntary movements of arms and legs yesterday. It could be worse or better. I am going to my doctor today, but I am afraid of not being taken seriously because I take psychiatric medication. Never had this involuntary movements before. How do I get taken seriously? But I feel it’s something different because I don’t feel pain. We do have a family history of Parkinson’s though.
Could be your meds causing the symptoms.
If all this is rare then why was I diagnosed with ms when I have everything thats being talked about
A family member of mine has MS and she can't do anything for herself absolutely nothing she's bed bound and cannot speak. She also have a feeding tube because she can no longer swallow.
I have sore throat and problem with my right ear, also lack of taste 😆
Finding out in 2022 that these so called rare symptoms are rare after all
Pretty sure speech problems and swallowing problems are more common than he thinks.
Has anyone wondered whether it’s EMFs causing this?
Is it normal for my lips to get very dry with an attack?
omg...that's weird, me too. I'm noticing dry/chapped lips precede a bad flare. Thank you for posting your experience!
What are you calling seizures? I have what I call blackout spells. I do not know what I'm doing. I drop my head. I may keep writing or typing for a short while but it is just gibberish. They may last a few minutes or last all day. You can tell me to raise my head and ask me a question and I'll answer you, but it may or may not be the right answer. I talk crazy talk when I come out of them and I could be hallucinating about most anything. These will happen in spells - several at a time - then disappear for a while - then start back again out of the blue. Any one else have these?
Jill Tarleton hi, I have strange seizures too. Many people think seizures are just the "shakey-jakes", however, it's a misfiring of neurones in the brain, and not always affect people the same way. Mine start as a feeling of deja vouz, which, if bad, lead to visual hallucinations and vomiting, then finish with raised heart rate and breathing rate. I remember a not so bad one I had at the dining table with my mum. I got the deja vouz feeling, and I was brushing my hand across the table continuously. My mum was talking, can't remember what about, and I can't remember if I managed to answer her. Even if I had a bad one, another person can't tell that I'm having one until I've finished and tell them I've just had one. Taking medication and learning what exacerbates them makes it easier to control them.
(Didn't mean to sound like I'm teaching you what you may have already searched or found out yourself/talking down to you. Just like you to know you're not alone with the weird seizures.)
I have hearing loss. He is not correct. And it is especially when there are two sounds going on, like someone talking while an ac is going. My ears cannot separate the two sufficiently, which causes me problems processing words heard.
This could be an auditory processing disorder as well as hearing loss. I have that problem, it's bloody annoying and sometimes very distressing if there are too many sounds.
Do MS Lesions ever go away on their own?
I have difficulty swallowing but not difficulty speaking
I have had MS for 32 years. Can still walk with a walker but can not drive. Have an allergy to beef. Makes my right eye blurry. Resolves itself and I will be not eaten it for years.
Any body else?
My first noticeable symptom was muffled hearing
Let me recommend you to Dr Okolo who has herbal medicine to cure MS.. my Dad was completely cured from ALS disease with his herbal medicine.
Email
drokolosolutioncenter@gmail.com
This doc is solid… super smart, totally get what he’s saying.
I want to appreciate Dr Madida on TH-cam for treating my Dad of his Multiple sclerosis with their natural meds..