Post-Covid POTS | Covid-19 Survivor Diaries Episode 10
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- เผยแพร่เมื่อ 5 พ.ค. 2024
- Weeks after catching Covid-19, these three “survivors” started experiencing irregular heart rates, dizziness, and in some cases fainting. After many doctor appointments, they were diagnosed with a previously rare condition called postural orthostatic tachycardia syndrome or POTS which has a surprising link to astronauts.
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Hi! We're Morgana and Jaco. When Covid-19 started spreading where we lived in 2020, we began documenting and sharing stories of Covid-19 survivors to spread awareness about the disease. But, we decided that wasn’t enough. We wanted to show how Covid-19 has impacted people across America. So, we packed up our New York apartment and moved into a 19’ trailer. 414 days, over 40,000 miles, 4 flights, and over 70 campsites later, we have now interviewed over 190 survivors in 50 states. In our documentary film series, you’ll get to know some of them and their stories. And you’ll hear from experts who answer our questions about this virus as we drive through the heart of the outbreak across America.
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CHAPTERS
00:00 Episode intro
05:13 Season 1 intro
06:23 Chapter 1: Defining POTS
12:14 Chapter 2: Pre-Existing Conditions
15:08 Chapter 3: Ongoing Symptoms
27:31 Chapter 4: Gaslighting
34:18 Chapter 5: Treatment
40:10 Final Reflections
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Wow. This is a very accurate anecdotal account of my lived experience for the past 19 months with LH covid and resulting POTS/dysautonomia. My dysautonomia has caused paralysis and oxygen saturation issues which has stumped all of my doctors thus far. Thank you for highlighting the tremendous amount of medical gaslighting that has been occurring. It is VERY REAL and can be a barrier to seek care. It’s nice to know that I’m not alone on this journey. Thank you for helping to spread awareness about the long term effects of this awful virus. Every patient needs advocates like you to help spread the word so we can start to receive the care we deserve. Sending you love and light. ❤
I just made a video on my post covid Pots story as a NYC healthcare worker...its a tough condition to have.
I never had COVID but suffer from all these symptoms and more since Feb 2019. I really don't think life will ever improve. Want to get approved for dignity to die but since it is not " terminal" it's impossible. So where does that leave patients with no treatment or hope and that's finding their own way out which is unfair.
Lmao, if you have all the symptoms without having Covid the. That means long Covid dosent exist
My goodness hearing from another long hauler who also went through Rheumatic Fever that resulted in a heart murmur, just dropped my jaw.
I just made a video about my personal post covid POTS story . Its a tough condition to deal with!
Very tough! Thanks for sharing your story.
Interesting. Can't wait.
Thank you for this. I’ve had pot since 2011 I am a health expert and have an extensive biological science background. I’ve had full fledged arguments with cardiologists both in New York and Florida for three years before I got diagnosed. I am a sports biomechanics, athletic injury correction and conditioning expert in nyc. And I know that I was only diagnosed because of my background and being able to speak the language. I was able to get myself back to full capacity for working, although I was not able to run anymore, I was able to work on all of my athletes and that was my work out. I’ve been a dancer since I’m three years old and that was ripped from me as well, I was able to dance again but nothing like I used to. Dancing would not make me feel very sick at the drop of a hat. I have extremely low blood pressure and very high heart rate but now I can’t get my heart rate very high and it feels like 120 is 200 in my chest. I also do athletic heart conditioning so I’m also well-versed in The cardiovascular system. I got Covid in May 2022 and it sent me back about eight years with my pots. Covid felt like the worst parts flair I had ever had and I am still managing it to this day as Pots is progressive and we really don’t know what the next day is going to be like. I originally got pots from a really bad flu in Feb 2011 But my diagnosis didn’t come until Sept 2013 by an electrophysiologist. I was maxed out on the only medication that raises your blood pressure, beta blocks, steroids and sodium medication all of which was actually making me 10 times worse than I was ordered to stop them all immediately. I’ve not had any medication since December 25, 2013. I’ve worked with many athletes that have had pots but can still actually do cardiovascular work where I cannot. However my programming works very well on people with pots because of how it’s delivered and received to and from the body. Yet and still I cannot run and I do struggle to dance again now since I’ve had Covid it’s made me much much worse my G.I. issues are much worse my body aches are much worse my migraines are much worse my vision is much more blurry my chest pains are pretty consistent and the palpitations gel kind a-fib now. there’s really nothing anybody can do. If I have one piece of advice for anybody reading this is don’t you ever tell somebody with pots they have anxiety because none of us have anxiety we have a heart working its ass off to help us because nothing inside of our processing systems is actually processing properly and the entire system is tripped up and the whole body is over working to complete exhaustion to do basic tasks like talking, breathing, heart control, digestion, thinking…even urinating. It’s debilitating and steals your life from
You. People are getting this from Covid the same way I got it from the flu it’s a bad virus that completely rattles your autonomic nervous system. I have actually personally worked with a lot of long haulers and they’ve all recovered and are running marathons with no problem, the difference I see in pots from people who got Covid versus people who had pots pre-Covid is that the people who have gotten pots post Covid are recovering, whereas people like me our pots is just worse.
I just made a video on a similar experience regarding post covid pots..I also had pots as a preexisting condition that got worse from covid and I was a competitive runner before. I'm a Healthcare worker.
Is your muscle pain.from.pots or cfs
@@tomsale5142 pots. I don’t have anything else. Ive had it 12 years now, but when i was diagnosed everyone had the same as me. Now, however, it’s said that inputs is the more severe. Covid inflated pots and since no drs know to treat it OR mistreat as ok seeing more and more overstepping in the medical fields, it makes people sicker. Muscle aches with pots is from not getting suffice oxygen to them, blood pump deficiency and muscle loss. I’m much better now thankfully. But it’s daily work to do so.
@@justritasimi hope you’re feeling better! Thank you for commenting!
I’ve had long Covid since my last flu/Covid jab in October 22…the fatigue, low blood pressure, low oxygen, rapid heartbeat is a nightmare. I’m thinking of going to alternative therapies as the medical system won’t acknowledge it and all my tests come back fine. Can you explain to me what exactly pots is??? Thx
Thank you so much for this.
You are so welcome! Have you had a similar experience?
THIS IS IT!!! Thank you so so very much ♥️
Thank you for the encouragement!!
Tough having POTS then given covid. Blows up Dysautonomia into overdrive
Sounds like you’ve had experience?
Thanks for watching!!
Could it be the jabberwocky?
wow
Thanks for watching! I hope it was helpful for you.
Best hypothesis ever from the JHH profressor. But what is the cure?
NAC
Did we know at what tissue temperature did SARS COV2 better replicate ?
Why ?
Because at TWiV 659 at min29 Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature.
Thanks for watching!!
POTS spelt backwards = STOP
Sorry if you are experiencing similar symptoms… you are not alone!
What other content would you be interested in seeing on this channel? More info about POTS or survivor stories on other topics?
BRAVO. You said it.
Did any of them get the COVID jabs?
Thanks for watching!
What does it matter? Most people that have " Long Covid " have been jabbed, but this is happening to a ton of people that haven't as well. The jabbed aren't your enemies either. Many are victims that were coerced into taking it without informed consent, as you know. Not everyone that took it was vaccine Nazi or a Covidian.@@SurvivorDiariesOfficial
How many boosters have you had?
Thanks for watching!!