The Rise of Dysautonomia: Unpacking the Relationship with COVID-19

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  • เผยแพร่เมื่อ 24 ม.ค. 2025

ความคิดเห็น • 20

  • @wildgardens
    @wildgardens ปีที่แล้ว +4

    Thank you so much for making these videos and raising awareness about POTS, ME/CFS and Long Covid!

    • @SurvivorDiariesOfficial
      @SurvivorDiariesOfficial  ปีที่แล้ว +1

      Thank you!! It's been an honor! Please share the word about our channel and ask people to follow the account. It might seem simple or silly, but it makes a big difference in getting sponsors or funding.

    • @wildgardens
      @wildgardens ปีที่แล้ว

      @@SurvivorDiariesOfficial I can tell you have both put a lot of work into these films and I really appreciate it! Sure I will share the link to your channel in the support groups! Thanks again!!

    • @SurvivorDiariesOfficial
      @SurvivorDiariesOfficial  ปีที่แล้ว +1

      Sorry for some reason didn't see this sooner! Thank you so much!!!

  • @jessicacortez7017
    @jessicacortez7017 ปีที่แล้ว +1

    I have this going on 2 years

    • @SurvivorDiariesOfficial
      @SurvivorDiariesOfficial  ปีที่แล้ว

      So sorry you’re experiencing this too! What has helped you?

    • @jessicacortez7017
      @jessicacortez7017 ปีที่แล้ว

      @@SurvivorDiariesOfficial my doctor diagnosed me with dysautonomia January of 2023 but my symptoms started Febuary 2022. What has helped me so far is compression socks water and electrolyte drinks they did prescribe me beta blockers but I found compression socks did alot of help with standing up. Last year I couldn't walk downstairs or barely shower but today with compression socks and extra fluids everyday I feel like it's becoming manageable hopefully by next year I will start taking off the socks slowly because without them my heartrate goes up to 150+ just eating so that does scare me a bit.

    • @SurvivorDiariesOfficial
      @SurvivorDiariesOfficial  ปีที่แล้ว

      So glad to hear you found things that are helping! We've talked with a number of people who wear compression socks for this. And, we know at least one that got a full-body suit! Glad you are doing better... hoping for a full recovery!

    • @dermotfitzpatrick5045
      @dermotfitzpatrick5045 ปีที่แล้ว

      Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Baroness temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps

    • @dermotfitzpatrick5045
      @dermotfitzpatrick5045 ปีที่แล้ว

      Consider talking to your doctor about taking Betaine TMG. Studies have shown that COVID-19 patients have increased levels of numerous inflammatory cytokines, including IL-1β, IL-2, IL-6, IL-10, IFN-γ, TNF-α, IFN-γ. Betaine lowers these key cytokines. Studies looking at the spike protein of the virus found that it triggers a hyper inflammatory T Cell immune response via TLR4 proteins. Betaine inhibits TLR4 proteins. Male Covid patients with severe Covid were found to have low or severely lower testosterone levels. Testosterone helps regulate systematic inflammation. Baroness temporarily increases circulating testosterone. Betaine also has anti inflammatory and anti thrombotic properties and lowers both cortisol and homocysteine levels. The virus maybe intentionally triggering this hyper inflammatory T Cell immune response in order to stimulate excessive release of cortisol to counter act the inflammation as cortisol can disrupt the immune response to infection by disrupting pathogen presentation pathways in dendritic cells and suppress IL-8 cytokines. Il-8 cytokines in a form of TB were found to bind to the infection and stimulate CD4 and CD8 T Cells to the site of infection. This effectively would disrupt the primary immune response. Cortisol can also lower circulating testosterone needed to regular systematic inflammation. Betaine TMG in high doses ie 4mg per day or more can increase blood cholesterol levels and cause diarrhoea so consult with your doctor before considering. I hope this information helps

  • @kylem8117
    @kylem8117 ปีที่แล้ว +1

    Thank you for you and your husband for producing this! It’s life altering condition and more needs to be done. You’re bringing awareness. God bless!

  • @decodr-ring
    @decodr-ring ปีที่แล้ว +3

    Dysautonomia has a similarity with Beriberi, they both can be improved by Benfotiamine which is a form of vitamin B1 Thiamine. Elliott Overton has several insightful lectures about the recent problem of Thiamine deficiency among people with high nutrition diets.
    The cause seems to be that the herbicide glyphosate is substituted for glycine in production of one or more proteins necessary for transporting thiamine across cell membranes. If that is true then this increase in dysautonomia will be more prominent in English speaking countries and others where the food crops are routinely poisoned as a matter of policy. Cheers.

    • @SurvivorDiariesOfficial
      @SurvivorDiariesOfficial  ปีที่แล้ว

      Interesting…please share links. It would be interesting to learn more.

  • @lealorrainebossler
    @lealorrainebossler ปีที่แล้ว

    You two are the best 💜

  • @teresakarr8328
    @teresakarr8328 8 หลายเดือนก่อน

    Just for the video, TAKE OFF THE MASK!