Trying to recognize Sanfilippo Syndrome in an undiagnosed child from facial features alone (Don't!)

"It's not just about the facial features, it's about the symptoms too" - Sanfilippo mom Christin Ulrich explains that one of her roles in the 'Does My Child Have Sanfilippo Syndrome' group is to remind concerned parents that there's more to Sanfilippo than just the unique facial features.