Thank you for posting. I’m going to Mayo in a couple weeks for a lot of testing. I just found out I may have EDS, after being sick for several years and quite a few medical problems a rheumatologist at the U of M suggested EDS which fits me perfectly. It’s a relief to know that what was thought to be random and worsening issues might not be random and that there’s a reason for feeling awful most of the time. You are a warrior! Keep fighting
Mickey, we all hope you had a great Christmas. Your will power is so encouraging and uplifting. If it helps, keep vlogging, and if it doesn't, take a break. Mean while we will keep praying!!
Such a bummer you were in the hospital for thanksgiving. Prauers that all your blood work gives you the answers you need. I hate being in the hospital, it is boring and very tiring. Take carr.
WoW what a lot you had to go through I hope all came out good for you and that there is nothing serious. Keeping you in my prayers, I understand a little of what you go through I have Fibromyalgia, Spina Bifida, IBS, Bladder Issues, Astigmatism and the list goes on. Keep on Fighting! Blessings from Whitby, Ontario, Canada
Ily❤️❤️your so inspiring and help me stay strong so much. I have a very rare case of childhood cancer and watching you, being able to relate helps me to much. Your so strong and so inspiring! Your such an amazing person and even if u don’t see this, I want to let you know ilysm 💞
It’s great your sugar took so long to drop low enough, shows things are actually quite normal in that department. Hope you can move forward from there.
I just found your channel and I have EDS Type 3, can’t wait to watch your videos. It’s hard to find people who understand what I go through on a daily basis so I’m pretty excited to your videos. I’m from the Florida Panhandle and I feel like I’m always alone because no one can relate💋 zebras for life!
Just found your channel and just wanted to say you’re awesome! I wish I was that chill at the hospital! I hope you get all the answers you’re seeking, and that you don’t have to go to the hospital for a very long time! 😁👍🏼❤️
Gosh I’ve been watching you for quite a while now. You have been through a revoltingly hard and arduous struggle. I am so glad you are taking us on this journey with you. You need to know that there are people who genuinely care for you and want nothing but the best life for you. I have a chronic illness myself with its accompanying horror stories. I do find it amazing how I recover from being terrified over some stuff, to feeling relatively normal. I hope that’s how you cope. On a lighter note, I notice you have lovely hands. You are awfully pretty too. A few compensations there. Not enough though I know for all the icky stuff you have to endure. Sending you my deepest and sincerest love.....
I know this video is older but I’m still so sorry that you had to go through with that test. I have type one diabetes and epilepsy so every time I get even in the 40s I seize. It’s so scary for me so I have no idea how you manage to get through it! Like last night I woke up to a 70 bg and I was shaking and sweating and I couldn’t talk. I am so in awe of you rn.
I am so happy when I watch you. You make me feel like I can do things whit my hEDS thx so much and can you make a vid Showing what helps the pain and symptoms. Thx ilysm
I hope you had a Merry Christmas! I’ve been having some issues post-spinal surgery with the nerves healing. It’s not been fun and I don’t know how the surgeon is going to address them or my neurologist. :/ I know you’ll get through this and I’ll be praying for you. I pray that 2019 is going to be SOOO much better for ALL of us!
One time in school my freshman year I checked my blood sugar in 2nd hour (2 hrs after breakfast) and it was 15! 😬😬 my nurse was asking how I was even conscious.
Its the first time i am discovering your page. An I totally admire you . And I wish you full of joy and health in your life. Hugs from Istanbul, Turkey..
You are lucky the glucagon works for you! I have been a type 2 diabetic for about 23 years now & I am completely insulin dependent & I have many lows (35-45) and I have to eat sugar to bring my number back up to the safe zone of about 90! Glucagon just does not work for me....why don't they add more carbohydrates to your diet to aid in keeping you from crashing all the time????
Samaria Walker type 2 can kind of become like type 1 where your body needs insulin to break down the sugar in your body. Most of the time type 2s just need no or oral meds but some people need insulin like type 1s. I am type 2 but my diabetes acts a lot like type 1.
Samaria Walker type 1 diabetes is an autoimmune condition that causes insulin dependence. Type two is not autoimmune but may result in insulin dependency. So, type two can not become type one but may result in insulin dependency
Hospital days are way to long!!! When I have appointments its so annoying! I hate all the finger pricks as well!! Blood sugar is a crazy thing. Keep ur head up ur amazing
They might not want you to drink because that could trigger the body’s digestive response which includes metabolic and endocrine processes. It may be enough to skew results but also it may not effect results.
The water could increase the volume of liquid on your blood. That's why you can't drink even that, it could mess with some of the lab results. Hope you're doing better. :)
I got 2 finger pricks because the first one my blood just stopped coming out so i had to do another one, and they left a bruise. I wonder what yours fingers looked liked after all of them!
i love watching yoir vedios, some can be really serious but i still love them, i hope you had a great chriatmas and i hope you will feel really better soon. ill pray for you everyday
@@catope1665 It can be because when it's taken from there, whatever has been going through it can dilute the blood and stop test results from coming up accurately.
Welcome to a diabetics life with all the finger prick marks! When I was first diagnosed with Type 1 I had soooo many black marks on my fingers :)))) Love the videos
Why do they have to prick your fingers at one of the most sensitive and painful places possible?? I remember when I was in hospital I had to have my blood sugar checked daily for a couple of weeks, it was horrible! I dreaded it. I feel for you sweetie. Stay strong you beautiful soul!
When you said that you feel really bad when you blood sugar is in 65 and when it’s really low you feel fine. I do the same thing. It’s really nice to know that I’m not the only one. I don’t get that. Anyway I hope you had a merry Christmas and happy new year !
I’m confused as 57 isn’t classed as low here in the UK, anything below 40 is considered low here in the UK, 57 is normal range in the UK so is why I was surprised why blood sugars are so differently interpreted in the US and UK lol. My sugars drop to always around 21 - 36 and when I’m at 21 I am barely conscious. Sorry you are feeling so unwell and going through all of this.
A M Thanks for converting the blood glucose levels from US to UK 😊 I now understand fully the way the blood sugars drop in the US as I honestly couldn’t get my head around the variations in blood sugar levels, and so when I hear a friend of mine in the US say their sugars dropped to 54 or 45, then I now know it’s very low, as I understand the comparisons from UK to US now, so thank you so much for this information ⭐️😀
What time do you have to check in your hotel 🏨 for how many nights you need to wait for the room it’s is magic 🪄 what time do you have to be at the hospital 🏥 for how long you have to wait for the doctors 🥼 what time is your appointment what time is your surgery day push you into the surgery room
I know you cant have meds by mouth without nausea and you cant have liquids with sugar. Have you tried the method of grinding up all the pills and then mixing with water and putting through your GJ tube? I have sever gasteroperesis and thats really reduced my nausea and pain. Ps. i absolutely love your videos and all the positivity and joy that you spread through your videos.
I’m 11 and have a condition called CH and had to have my 99% of my pancreas removed so am an insulin dependent diabetic now. Sorry for asking but what is your lowest low. Mine is 20.
Hey I really wanted to go to the Mayo Clinic for my gastroparesis and stuff but I have appointment with a new gastrointestinalist on January 3rd I hope this new gastrointestinalist can help me more than the other ones I went to the other ones I went to said they couldn’t do anything I just need to lose weight but that’s not the problem and the gastrointestinalist who diagnosed me with gp said they couldn’t give me help so they refired me to this new gastro doctor
@@LifewithStripes ohhhhhhh that makes sense! I was beginning to think that I had dreamt the whole thing 😂 Hope you're feeling better, Happy Belated Birthday and Happy New Year! 2019 will be great!
Thanks alot for your awesome and lovely personality, I really appreciate you for all the positivity and nice attitude you have. Hope the best for you. A disease can't destroy u, u will destroy the disease. :)
The one time I’ve been grateful for seizure pads I was in the mental ward at the hospital and the beds had lights under them-no idea why- anyway the seizure pads prevented mine from going off and I slept better than my roommates haha:p anyway I have epilepsy seizure free for 5ish years :)
ok so i’m 13 and i have like 3 different chronic illnesses, autoimmune hepatitis, failure to thrive, and one more but i don’t feel comfortable sharing 🥴 i almost was in a really bad situation where my body was going to completely shut down so i was immediately sent to the hospital and got labs done a iron test and endless amount of scans as well as a gastric study and an endoscopy. i was hospitalized for 10 days and was SEVERELY constipated which by the way that’s my other chronic illness, chronic constipation. i was so badly backed up to the point i couldn’t eat without throwing up. i was over 20 pounds under weight which made me severely susceptible to illnesses and getting very sick. i was put on an ng tube clean out and after that ng tube feeds and went home with my tube, 10 months later i still have it. i was on a diet to see if i was lactose intolerant and i wasn’t but that ment i couldn’t use my normal boost plus for my formula so i had to switch companies to get kate farms so i switched to coram, heard that name before? i just saw on your pump that you are with them. i absolutely hatred them, my orders never came so i went a day without my feeds and i was constantly not getting enough feed bags or any proper ng tubes, i hated the poll they provided. before i was put on that diet i was with hastings, a different health care company and i guess i was just spoiled with them, idk if coram is really bad or if i am just spoiled with hastings but anyways i’m back with hastings and now a new couple of problems have occurred, great. i’m sorry if i seem selfish and ungrateful but i just didn’t like it for me i hope it works better for other people but yeah i had to share plus i completely understand the hospital i’m there once a month for 3 days i get it too 🙂
I just have a question, I've watched several of your vlogs as well as others on here with dysautonomia/eds/mcad and the majority of the you wear beanies. And your hair is cut short, I just wondered if there was a reason? I have POTS/GP myself and while I get cold, wearing a beanie at the hospital mostly confuses me. Is it because it gets the message across to others that you're sick like a cancer patient?
Georgette Bershad that's the thing... I watch many of her vlogs and she, like many of the others only seem to wear them when they're at the hospital or out in public. I've been sick for a long time as well, I try not to care whether or I look sick or not because for heavens sake I'm at the hospital for a reason. I know also that it's so easy to define ones self as only "sick," because that's what life entails in those moments, but what really matters is how you learn to navigate life beyond illness. There is an entire group of individuals on FB/IG/YT with chronic illness who seem to find it necessary to prove their illness and it's very unhealthy, the key to surviving is not giving two F$&Ks and living life.
Long hair gets heavy and can make symptoms worse plus short hair is just easier to deal with. If you don’t have the energy to keep your hair clean and tidy wearing hats can make you feel more presentable and less of a mess not to mention keeping warm.
I have EDS and also wear beanies year round hahaha.. I think it's a mixture of loving how they look, keeping warm and not having any good hair days ever lol
I always say “I feel like death” and no one understands why I say that and it comforts me that you said that when you were crashing
Ik your videos can get pretty serious I just can’t help but smile watching them because of your personality and your own contagious smile :)
This is my favorite comment I've read so far! (I'm responding to comments right now 😉)
Life with Stripes YAY OMMMGGGG ILYSM ❤️❤️❤️
I know I've had many many hospital stays😩😩😩😩😩😩
The waiting can be forever long.
I don't have the same medical conditions as you though. Keep Smiling.
Thank you for posting. I’m going to Mayo in a couple weeks for a lot of testing. I just found out I may have EDS, after being sick for several years and quite a few medical problems a rheumatologist at the U of M suggested EDS which fits me perfectly. It’s a relief to know that what was thought to be random and worsening issues might not be random and that there’s a reason for feeling awful most of the time.
You are a warrior! Keep fighting
What is your religion?
How did the testing go? Hopefully you’ve found some answers
Mickey, we all hope you had a great Christmas. Your will power is so encouraging and uplifting. If it helps, keep vlogging, and if it doesn't, take a break. Mean while we will keep praying!!
Oh wow! I didn’t realize you lived in Minnesota! I’m actually going down to Mayo this week to get testing for VEDS - it runs in my family.
I hope you don't have it and if you do, trust in God.
The little foot dances always make my day 😂
Haha! Im glad you liked it
Water can affect blood sugar levels because it flushes glucose out of the blood 😉
They wanted hers to go down.
@@savannahm5529 can affect, sometimes its not worth the uncertainty in medicine culculations
Merry Christmas. I hope you’re feeling better. EDS is a full time job.
That it is!!
Such a bummer you were in the hospital for thanksgiving. Prauers that all your blood work gives you the answers you need. I hate being in the hospital, it is boring and very tiring. Take carr.
WoW what a lot you had to go through I hope all came out good for you and that there is nothing serious. Keeping you in my prayers, I understand a little of what you go through I have Fibromyalgia, Spina Bifida, IBS, Bladder Issues, Astigmatism and the list goes on. Keep on Fighting!
Blessings from Whitby, Ontario, Canada
i can’t believe how positive and smiley you are all the time, you poor girl have gone through so much.You deserve to be healthy💕
Ily❤️❤️your so inspiring and help me stay strong so much. I have a very rare case of childhood cancer and watching you, being able to relate helps me to much. Your so strong and so inspiring! Your such an amazing person and even if u don’t see this, I want to let you know ilysm 💞
Stay strong, you are the stronger one ❤️
this is so kind! thank you. keep fighting, you got this! Im cheering you on 💪
Life with Stripes Thank you so much! Stay strong to❣️
@@LifewithStripes
Hey you should put food coloring in your formula again.
"The car is haunted" made me laugh so hard😆
It’s great your sugar took so long to drop low enough, shows things are actually quite normal in that department. Hope you can move forward from there.
I’ve missed you, Mickey! I hope you had a lovely Christmas xxxxxxx
We missed you . glad to see your vlogs update wish you a healthy Christmas
My imoji is Mabel. Little did I know she would love me thru stage 3 cancer and all that goes with it. Keep strong young lady!
I just found your channel and I have EDS Type 3, can’t wait to watch your videos. It’s hard to find people who understand what I go through on a daily basis so I’m pretty excited to your videos. I’m from the Florida Panhandle and I feel like I’m always alone because no one can relate💋 zebras for life!
Just found your channel and just wanted to say you’re awesome! I wish I was that chill at the hospital! I hope you get all the answers you’re seeking, and that you don’t have to go to the hospital for a very long time! 😁👍🏼❤️
Gosh I’ve been watching you for quite a while now. You have been through a revoltingly hard and arduous struggle. I am so glad you are taking us on this journey with you. You need to know that there are people who genuinely care for you and want nothing but the best life for you. I have a chronic illness myself with its accompanying horror stories. I do find it amazing how I recover from being terrified over some stuff, to feeling relatively normal. I hope that’s how you cope. On a lighter note, I notice you have lovely hands. You are awfully pretty too. A few compensations there. Not enough though I know for all the icky stuff you have to endure. Sending you my deepest and sincerest love.....
I love you, Mickey! You are such an inspiration and I have been watching for a few months now. You are such a positive person!
I know this video is older but I’m still so sorry that you had to go through with that test. I have type one diabetes and epilepsy so every time I get even in the 40s I seize. It’s so scary for me so I have no idea how you manage to get through it! Like last night I woke up to a 70 bg and I was shaking and sweating and I couldn’t talk. I am so in awe of you rn.
Do not worry Mickey I have 2 bags for my allergies, diabetes and other medical stuff. Hope you all alright. 😃
I am so happy when I watch you. You make me feel like I can do things whit my hEDS thx so much and can you make a vid Showing what helps the pain and symptoms. Thx ilysm
I love how positive you are while in these serious situations and I can’t help but smile with that cute contagious smile you’re such an inspiration ❤️
I love your videos so much! You are such an amazing youtuber! I love how you always seem to be filled with joy!🦄
Girl the packing light thing I totally get! I used to be able to pack light.... not anymore lol
Your eyes are SO pretty
Ilysm 💖💖💖 I have me/cfs and some other illnesses and I look up to your positivity xx
Stay strong! You are such a great person
its always same when we need something to happen in hospital but it never does like at home
I’m from Minnesota as well. Mayo Clinic is amazing. You’re in good hands.
your very bubbly personality always makes me very happy even though you go through a lot😊
I hope you had a Merry Christmas! I’ve been having some issues post-spinal surgery with the nerves healing. It’s not been fun and I don’t know how the surgeon is going to address them or my neurologist. :/
I know you’ll get through this and I’ll be praying for you. I pray that 2019 is going to be SOOO much better for ALL of us!
One time in school my freshman year I checked my blood sugar in 2nd hour (2 hrs after breakfast) and it was 15! 😬😬 my nurse was asking how I was even conscious.
Jayla Carter 15?!?!? That’s insanely low!
Are you diabetic? Because usually before diagnosis you’re extremely high
Mandarin Bebe hypoglycemic
Its the first time i am discovering your page. An I totally admire you . And I wish you full of joy and health in your life. Hugs from Istanbul, Turkey..
@life with stripes oh man I feel you pain In going to be at Mayo impatient next week between 6 and 20 days!!
You are lucky the glucagon works for you! I have been a type 2 diabetic for about 23 years now & I am completely insulin dependent & I have many lows (35-45) and I have to eat sugar to bring my number back up to the safe zone of about 90! Glucagon just does not work for me....why don't they add more carbohydrates to your diet to aid in keeping you from crashing all the time????
I thought type 2 cant Turn Into Type 1 i were diagnosed with type 2 three years ago
Samaria Walker type 2 can kind of become like type 1 where your body needs insulin to break down the sugar in your body. Most of the time type 2s just need no or oral meds but some people need insulin like type 1s. I am type 2 but my diabetes acts a lot like type 1.
Samaria Walker type 1 diabetes is an autoimmune condition that causes insulin dependence. Type two is not autoimmune but may result in insulin dependency. So, type two can not become type one but may result in insulin dependency
Shelley Londry
Whoa those are some serious lows. That’s around what I get and I’m under 5ft tall
Not been able to watch vid yet but glad to see you back.
I missed your videos and I hope that you had a very merry healthy Christmas
Yes
Hospital stays suck. Your have great courage. Thanks for you videos.
You are really brave I would be scared 😱 I am always scared in a hospital
Have you ever thought about getting a cgm? So you can monitor your blood sugar?
Hospital days are way to long!!! When I have appointments its so annoying! I hate all the finger pricks as well!! Blood sugar is a crazy thing. Keep ur head up ur amazing
Didn’t know you were in MN! MN girl right here ❤️. Mayo is the best!
Hi, I'm happy to see you. When would your next Vlogs be
When I have my open heart surgery I want hospital socks with smiley faces on them 😫... (my hospital only gives the solid color hospital socks)
My husband gets so mad when they put the seizure pads on the bed anytime he has been hospitalized he says he feels like a grown man in a toddlers bed
I love how your so positive even though ur situation. your my romodel! be strong xx
You are so brave! I just started watching you but I still think that you are really brave!
Aw thank you! Welcome to the family
Poor baby...you do do good...my heart is with your mom too!
When I have my endoscopy there I got a cap like that but with white polka dots
They might not want you to drink because that could trigger the body’s digestive response which includes metabolic and endocrine processes. It may be enough to skew results but also it may not effect results.
My uncle works at mayo!! That is so cool you probably saw him.
Hope you had an amazing Christmas with your family.
The water could increase the volume of liquid on your blood. That's why you can't drink even that, it could mess with some of the lab results. Hope you're doing better. :)
Merry Christmas and Happy New year's Mickey .
I got 2 finger pricks because the first one my blood just stopped coming out so i had to do another one, and they left a bruise. I wonder what yours fingers looked liked after all of them!
i love watching yoir vedios, some can be really serious but i still love them, i hope you had a great chriatmas and i hope you will feel really better soon. ill pray for you everyday
Why can't they take the blood from your port?
I know
@@catope1665 It can be because when it's taken from there, whatever has been going through it can dilute the blood and stop test results from coming up accurately.
I have gastroparisis and insulinoma with vasovagal syncope
Yeah I know the feeling I mean I don't have as much as you but I have a lot of meds
Ouch hospital skin prickers hurt soooo bad!
I have the continues glucose monitor as well, how did you feel about it? Personally it annoys me a lil bit
Welcome to a diabetics life with all the finger prick marks! When I was first diagnosed with Type 1 I had soooo many black marks on my fingers :)))) Love the videos
She's not diabetic...
She only has low blood sugar. And the doctors don't know the cause.
I know, I watched the video. I was just commenting on her comment of having finger pricks done :)@@AM.000
What is your special word for 2019? I thought *inspire* :)
Great video I hope you feel better. I love how you smile through everything
Why do they have to prick your fingers at one of the most sensitive and painful places possible?? I remember when I was in hospital I had to have my blood sugar checked daily for a couple of weeks, it was horrible! I dreaded it. I feel for you sweetie. Stay strong you beautiful soul!
Get well soon sending love ❤️
When you said that you feel really bad when you blood sugar is in 65 and when it’s really low you feel fine. I do the same thing. It’s really nice to know that I’m not the only one. I don’t get that. Anyway
I hope you had a merry Christmas and happy new year !
I’m confused as 57 isn’t classed as low here in the UK, anything below 40 is considered low here in the UK, 57 is normal range in the UK so is why I was surprised why blood sugars are so differently interpreted in the US and UK lol. My sugars drop to always around 21 - 36 and when I’m at 21 I am barely conscious. Sorry you are feeling so unwell and going through all of this.
POTSy Buni it’s measured in different units I think.. kinda like weight
40 is actually 4.0 in the UK.
4.0 (UK), is 70 (US)
2.5 (UK) is the 45 the hospital was waiting for.
A M Thanks for converting the blood glucose levels from US to UK 😊 I now understand fully the way the blood sugars drop in the US as I honestly couldn’t get my head around the variations in blood sugar levels, and so when I hear a friend of mine in the US say their sugars dropped to 54 or 45, then I now know it’s very low, as I understand the comparisons from UK to US now, so thank you so much for this information ⭐️😀
What time do you have to check in your hotel 🏨 for how many nights you need to wait for the room it’s is magic 🪄 what time do you have to be at the hospital 🏥 for how long you have to wait for the doctors 🥼 what time is your appointment what time is your surgery day push you into the surgery room
For these tests they should use a CGM
I know you cant have meds by mouth without nausea and you cant have liquids with sugar. Have you tried the method of grinding up all the pills and then mixing with water and putting through your GJ tube? I have sever gasteroperesis and thats really reduced my nausea and pain. Ps. i absolutely love your videos and all the positivity and joy that you spread through your videos.
I hate low blood sugars. Do you have to eat for yours to come up or does it on it’s own
Whew! That was a close one! 🦓💪💜
Why can’t you eat? I thought the feed was for supplemental intake
Sharp Life I think it’s cause she’s allergic to sugar
There’s sugar in formula she takes for tube feeds
Sharp Life oh then I have no idea I’m not a doctor
She gets sick when she eats even the slightest bit of food.
Mickey has gastroparesis which causes her, when she eats to sometimes gets sick
17:29 I thought that was at my end.
I’m 11 and have a condition called CH and had to have my 99% of my pancreas removed so am an insulin dependent diabetic now. Sorry for asking but what is your lowest low. Mine is 20.
Mayo is one of the best hospitals in the US, you’re very lucky
Hi i am about to get a steroid injection in my knee for joint pain and i was wondering if you have had one and if you have any advice?
Hey I really wanted to go to the Mayo Clinic for my gastroparesis and stuff but I have appointment with a new gastrointestinalist on January 3rd I hope this new gastrointestinalist can help me more than the other ones I went to the other ones I went to said they couldn’t do anything I just need to lose weight but that’s not the problem and the gastrointestinalist who diagnosed me with gp said they couldn’t give me help so they refired me to this new gastro doctor
Wait wasn't a vlogmas a couple weeks back? How have I travelled back in time all the way back to Thanksgiving! 😂😀😄
Yeah I couldn't understand it either
I got too sick to finish vlogmas so I took the few I did down. Because of the chaos I just got around to editing this now 😊
@@LifewithStripes ohhhhhhh that makes sense! I was beginning to think that I had dreamt the whole thing 😂 Hope you're feeling better, Happy Belated Birthday and Happy New Year! 2019 will be great!
Thanks alot for your awesome and lovely personality, I really appreciate you for all the positivity and nice attitude you have. Hope the best for you. A disease can't destroy u, u will destroy the disease. :)
What's the manometry???? 😮😮 Sounds too creepy for me😱
Lol, the car is haunted it can happen . My TV goes on by itself.
Wow I hope you are getting some rest now!!
Ahhh perforated fingers. So familiar. Sorry you had such a bad experience.
"you dont really wanna be in the car after a cleanout" oh if its the same cleanout i had to do for some testing then yeah that was a mistake i made 😅
The one time I’ve been grateful for seizure pads I was in the mental ward at the hospital and the beds had lights under them-no idea why- anyway the seizure pads prevented mine from going off and I slept better than my roommates haha:p anyway I have epilepsy seizure free for 5ish years :)
ok so i’m 13 and i have like 3 different chronic illnesses, autoimmune hepatitis, failure to thrive, and one more but i don’t feel comfortable sharing 🥴 i almost
was in a really bad situation where my body was going to completely shut down so i was immediately sent to the hospital and got labs done a iron test and endless amount of scans as well as a gastric study and an endoscopy. i was hospitalized for 10 days and was SEVERELY constipated which by the way that’s my other chronic illness, chronic constipation. i was so badly backed up to the point i couldn’t eat without throwing up. i was over 20 pounds under weight which made me severely susceptible to illnesses and getting very sick. i was put on an ng tube clean out and after that ng tube feeds and went home with my tube, 10 months later i still have it. i was on a diet to see if i was lactose intolerant and i wasn’t but that ment i couldn’t use my normal boost plus for my formula so i had to switch companies to get kate farms so i switched to coram, heard that name before? i just saw on your pump that you are with them. i absolutely hatred them, my orders never came so i went a day without my feeds and i was constantly not getting enough feed bags or any proper ng tubes, i hated the poll they provided. before i was put on that diet i was with hastings, a different health care company and i guess i was just spoiled with them, idk if coram is really bad or if i am just spoiled with hastings but anyways i’m back with hastings and now a new couple of problems have occurred, great. i’m sorry if i seem selfish and ungrateful but i just didn’t like it for me i hope it works better for other people but yeah i had to share plus i completely understand the hospital i’m there once a month for 3 days i get it too 🙂
I just have a question, I've watched several of your vlogs as well as others on here with dysautonomia/eds/mcad and the majority of the you wear beanies. And your hair is cut short, I just wondered if there was a reason? I have POTS/GP myself and while I get cold, wearing a beanie at the hospital mostly confuses me. Is it because it gets the message across to others that you're sick like a cancer patient?
Georgette Bershad that's the thing... I watch many of her vlogs and she, like many of the others only seem to wear them when they're at the hospital or out in public. I've been sick for a long time as well, I try not to care whether or I look sick or not because for heavens sake I'm at the hospital for a reason. I know also that it's so easy to define ones self as only "sick," because that's what life entails in those moments, but what really matters is how you learn to navigate life beyond illness. There is an entire group of individuals on FB/IG/YT with chronic illness who seem to find it necessary to prove their illness and it's very unhealthy, the key to surviving is not giving two F$&Ks and living life.
Long hair gets heavy and can make symptoms worse plus short hair is just easier to deal with. If you don’t have the energy to keep your hair clean and tidy wearing hats can make you feel more presentable and less of a mess not to mention keeping warm.
Being sick are their identity sadly....they wouldn’t have “spooning” accounts etc if that wasn’t true. Why not try to focus on actually living life?
I have EDS and also wear beanies year round hahaha.. I think it's a mixture of loving how they look, keeping warm and not having any good hair days ever lol
Have a great Christmas
Feel better
you are absolutely gorgeous ❤️ I hope your sugar levels are much better.
Thinking of u
I know in hospital time is so slow it literally drags
I feel so bad
Be encouraged by strength and an enduring spirit. Keep watching Mickey and she WILL lift your spirit up!
I live in Rochester and volunteer at the hospital
I was just thinking about the whole “not being able to pack light” thing 😂 flew home from my Christmas trip today and it was nearly a nightmare
ILYSM UR SO INSPIRING PLZ ♡ THISS