It’s also important to make lifestyle changes while on LDN and not rely on it entirely. Diet, exercise, and self care are a must. For me LDN effect was immediate but I was also doing many other things that I think at that point only LDN could address so it helped tremendously.
Thank you for your video .💞 I'm taking LDN since September 2020. Brainfog and POTS went away. Energy ist better. The pains are VERY slowly getting better. Love from Austria 🇱🇻
I used to take LDN and when I had to change Drs due to her no longer being in network with my insurance my new Dr refused to refill it. Said it was dangerous long term. But, I can honestly say I never felt better than what I did when I was taking it. I have an appointment with the Dr that prescribed it before and see if I can get back on it. I have an auto immune disorder and live in constant pain due to inflammation. That helped tremendously with my pain and inflammation. Also, I lost about 20 pounds without trying. She had told me that was a “good” side effect if you’re overweight. I’ve finally decided I’m willing to pay out of pocket to get back on it.
I found out about LDN while I was looking for fibro, lyme disease treatments being desperate. My doctor prescribed it and I'm waiting for the RX to be filled. I'm so glad to hear it has helped you, gives me hope.
Good luck with everything! Ive heard you can herx on it or flare with lyme especially if you start too high but I’m sure you probably already know that! 💚 I hope it helps!
LDN completely changed my life. My rheumatologist prescribed me this, I have high inflammation and positive ana speckled bloodwork but don't cone back positive for lupus or RA. LDN has given me sooo many more good days than bad and am able to live a way normal life. I've had no negative side effects so far besides insomnia so i was put back on a low dose sleep medication.
Same here, I take 4.5, compound it myself. It's the best drug ever. I have autoimmune, tick disease (Alpha Gal Syndrome) which brought on joint pain (allergic to all NSAIDS) and ME/CFS. It's made me feel normal again. I've been on it for about 4 months.
@@wagwag630 that's awesome, how long did it take, I'm on 2 months and it feel like I'm detoxing. A few really good normal feeling days with energy and clear brain which have been a tease because the rest of the time I'm still sick.
My pain specialist gave me a prescription but I had to pay out of pocket $50 bc I had to get it from a compound pharmacy. It’s only been a week and I’m still nauseous. I was warned by the pharmacist about others having vivid dreams. Praying for everyone’s healing process.
Thanks so much for sharing your experience with this. I have never heard of it and looked at one of the links you posted and was amazed at all the different conditions listed on there that it could help people with - it's incredible! I am so glad it is helping you! I am also so sorry to hear where you were at your worst and everything you have gone through to get to where you are now. You are working so hard and it's paying off. I hope things continue to improve for you. Thanks again for sharing your story with us
Thank you so much!! ❤️️ It really is amazing how many conditions its been known to help with. I hope they continue to research and learn more about it so more people can benefit from it!
Hi Rachael. I received my giraffe from Etsy, with your beautiful embroidery. Thank you. You are very talented. As to this current video, it sounds like your journey is taking a positive up-turn. Thank God for that. Keep fighting the good fight. 🌹🌹🌹🙏🙏🙏😇😇😇
I'm so happy for you! It's changed mine too, with autoimmune issues, ME/CFS and tick disease. I think it's also great for depression, watched a video on that today. Out of five doctors on my team only one knew about LDN and I am so thankful! The key is to start slow and low and work up to 4.5.
So happy to hear of your LDN therapy and that it is working for you. And it should work even better for you the longer you are staying on it. Only thing I would recommend is that you do whatever you can to switch to nighttime dosing. LDN works by significantly increasing the number of Endorphin hormones (as much as a 3X increase). While you are getting for sure benefits taking it in the AM. You will get even greater benefits by taking it at night -- usually between 10 - 11 PM. That is because your body produces MOST of the Endorphin hormones (through the Brain's Pituitary Gland) that support your Immune System during the Overnight hours (1-5 AM) per the Circadium Rythm. So talking LDN between 10 - 11 PM will cause you to get the greatest BOOST in Endorphins from the medication. Even if you have to use Sleep Meds to take LDN at night---there should be no problem. Not aware of any conflict with taking LDN with sleep meds. At any rate, I have been taking LDN now for over an incredible 10 years now. LDN is without doubt my MOST important medication. I truly believe I would not live very long if I were ever to go off it. I take it for my Hashimot's autoimmune disorder. And like you -- I was extremely sick to the point of being nonfunctional before being able to get on my LDN medicastion. I am also a patient advocate for LDN. Not as active as I used to be. Got frustrated because so many Doctors still refuse to accept LDN and prescribe it. The main problem with LDN is that it is still not supported very much at all by Mainstream Doctors who are generally married at the hip to only very expensive Big Pharma medicines that mostly don't work at all in comparison to LDN which does. The other thing many doctors do not like about LDN is that is very cheap. Only about a $1 per dose generally. A cheap dollar per day drug like LDN simply gets easily dismissed by a majority of Doctors. Unfortunately. Finally, I did put out my own TH-cam advocacy video for LDN a few years ago. I think it is certainly one of the best things I have ever done and I still get steady views from people interested in LDN. Here is a link to it if interested in my experiences with LDN. th-cam.com/video/w8nylF-uGvQ/w-d-xo.html
If you take LDN at night, you might have sleep issues. I just woke up 1am CET and took 1mg at 5pm, so even that time in between was not sufficient, can not sleep, slight tachycardia, and just awake now
@@AlexSelf-Help Sleep issues are fairly common when initially starting LDN therapy. But they generally go away. And if they persist, you can take sleep meds on LDN. There is no conflict that I know of.
@@PatrickOCnMD just strange why LDN increases pulse…I mean it’s supposed to regulate immunsystem on micro dose. I m on 3mg, not sure why body readers with slight tachycardia
@John P OConnell: Hi again, I quit LDN after 3 weeks, due to sexual side effects like weak orgasms/no joy, and much less sexual interest, like I never felt before. Did you have that too, is that normal, obviously LDN blocks opiate/joy receptors, which is why it s also used for getting people of alcohol and other pleasures such as shopping addiction etc., but concerned this is now permanent?! Any advice! Would appreciate a lot, as this is scary... btw. I read also LDN messes with prolacting, which explains why I m no longer tired after climax, which sounds good for my wife, but the issue is I don't have any joyful intimate feelings. (maybe 20%) Thank you!
I'm on EDS spectrum and it led to lyme and chronic infections. I was about to try LDN but went with reiki, but I'm thinking that LDN probably would have made a huge impact too. In addition to reiki I do lots of supplements and a raw vegetable heavy Mediterranean diet it is absolutely changing my life I was bed bound and having near death experiences and now I'm dancing and back to daily activities.
Can I ask what exactly you are doing? I've done Reiki and a million things myself but I've recently switched over to Chi Energy and something called Spinal Flow which you can look up on TH-cam. I also do tons of things like watching my diet, ozone therapies of all kinds, light, heat, and frequency medicine, and tons of scalar and plasma stuff. However, I'm still considering LDN because my functional MD thought it might help with some of my still-existing back pain and inflammation. However, I am now working on brain entrainment since I'm pretty sure most of this still exists due to past trauma from various different negative experiences that I've had in my life and have been chronically ill for so long. However, I do eat a very strict diet, but I have noticed that it has had to change drastically over the years as my body heals different conditions and imbalances.
I have been on it for 3 months now. I started at .5 and added the same weekly. I really noticed pain reduction in my back at around 4 and am at 4.5 now. It seems to be getting better daily. I plan to stay at 4.5 as that is the recommended dose. I notice if I take it an hour prior to sleep there is less dreams. Good luck. Definitely a wonderful drug. I feel very clear headed and rested, more energy and the runners high affect is fantastic.
You are doing good. It was about 3 months on LDN before I felt significant positive effects. I also settled at 4.5 mgs. And now I have been on LDN for an incredible 10 years now. And LDN has never failed me. All LDN does is fix your Immune System. Normalizes it from a state of disease and non-function. And the way you know it is working is you stop getting sick. Before starting LDN I was getting sick all the time. Colds and illnesses all the time. Now on LDN....I can't even remember the last time I had a cold. It has been quite a few years. Pretty hard to get sick on LDN -- my experience. In 2009 I had a Colonoscopy. It was bad -- 9 polyps as I recall. Started LDN in March 2012. In September 2014 I had a 2nd follow-up Colonoscopy. They found NOTHING. Could not believe it. Absolutely sure it was the LDN that so improved me. To me, LDN is the main reason I am still above ground and walking the Earth still. To me...everybody past the age of 48 or so should be on LDN. Think about all the pain and suffering it could prevent. But unfortunately, It is never going to happen. Mainstream Medicine and BigPharma are still doing their best to prevent wide-spread knowledge and use of LDN. They just view LDN as "Bad for Business." And for all that LDN can do for $1 per dose, it really would severely impact Mainstream Medicine profits. I am so thankful I learned about LDN when I did. Saved my life for sure.
@@AlexSelf-Help No, not any sexual side-effects for me. Am almost 70 years old and still have pretty good interest in sex still. Just can't function as when I was 20 of course.
@@PatrickOCnMD thanks for quick reply, and glad it didn’t affect you anyhow negatively. whilst the mechanism - blocking opiate receptors, obviously doesn’t differ from person to person, it seems not to affect everyone in the same way. But to me it makes sense, as blocking opiate receptors is related to endorphins, (ChatGPT) and LDN is used as an anti-addiction drug for all sorts of ‚excessive pleasures‘.
Thank you for this information. I am starting LDN in one month for RA, Chron’s and chronic pain and inflammation. None of the 5 RA drugs I have taken have worked, over the past 6 years; most of them caused me unbearable side effects, even worsened my RA to the extreme (using Humira for a year). I’m starting LDN at 1.5. I currently take L-Theanine and Melatonin for sleep and have a wonderfully restful sleep.
@@catysparks I also have Crohn's, potentially EDS (which is probably due to Bartonella), Lyme and co-infections, had POTs, excruciating pain in my middle back, neck, and hips, fibromyalgia-like pains, cysts throughout my body, hemangiomas on my liver, anemia, a perianal abscess that turned into a fistula,etc. However, all my symptoms are now much better but I have done and am doing a ton of holistic healing modalities for the mind, body, and spirit in order to get where I am today. In fact, now I am fully concentrating on brain entrainment since I think a lot of my residual symptoms that exist now are from damaged neuro-pathways due to experiencing chronic pain for all those years. That is why I've really wanted to try LDN as well as continue to do what I am dong now. However, of course my conventional doctors want me on biologics asap (my Functional MD however wants me to try LDN) but I refuse to put chimeric cells (which is what most Biologics are made of monoclonal antibodies) in my body I was just curious as to which one you are on now and has it worked at all? They want me on Infliximab (technically Remicade) but the only one that I have ever heard anyone having any success with these days with minimal side effects is Stellara, the name brand and not the generic drug.
I'm on LDN with Fibro, likely hEDS, POTS, likely MCAS, etc. Biggest thing I notice with LDN is it significantly improves my pain. I t makes me dizzy so I take it before bed. Intense dreams stopped after a couple weeks.
I just found this video! I am looking to start LDN and not many videos explain how to start at very low doses and titrate up to what dose works for you. I have Fibro, Lupus and Chronic Fatigue Syndrome and Adrenal issues. It is so important to get inflammation under control in folks like us before it causes more conditions like Crohns, Colitis, RA, etc. Thank you so much for this video!!!
Omg, I think you will love it from the first day. Start very low. It’s a miracle drug. I use it as I’m in chronic pain in my neck and lower back. I stopped using it for a week as I wanted some other pain medication, but then I realised how even more sick I got🥵I tried morfin instead but it didn’t help at all so I got back on ldn 3 mg..from the first pill it lowered the inflammation straight away. Still so sick and I’m still desperate to find more help. But I couldn’t live without my ldn.
@tiffdate1 The end of the first week It helped tremendously with fatigue but I also had terrible insomnia. The 2nd week I had a flare up and inflammation was bad. The 3rd week insomnia went away, fatigue was much less and my chest pain stopped....but I noticed weakness in my legs and some blurry vision issues. I'm not sure what to attribute to the medication and what is maybe just part of the autoimmune issues I'm dealing with and the CFS. Overall, at this point I think it's maybe too early to give it 100% support but I will say I think just what it's done for fatigue and my chest pain outweighs the side effects so far.
I started 1.0mg I was on pain medication for terrible fscial nerve pain from a trauma. I quit that for health reasons. Not able to take serotonin medication, I just need help healing my neurotransmitters. I found a great medical team that new about LDN. 1.5mg seemed too much but did help my pain. I am going to .05 and later go up. I am on 4th day. I've had nausea abdominal pain and headache. & agitation. But it is helping pain, cravings for oxycodone. I was able to accomplish tasks... so hoping this issue the answer for repair of dopamine.
Yay! Today I found a doc who has no problems prescribing LDN for M. E./CFS. Before that no-one would. I've waited 10 years for this! 😁 I'll be getting it this evening (the pharmicist here delivers for free). I'll update and let you know if it helps! Even if it doesn't - surely it is worth a try. 🎉
@@LissBraunweiß nicht wie es ihr geht aber ich nehme es schon 4 Jahre ein für Hashimoto. Es wird in der City Apotheke in Göttingen hergestellt. Mir hilft es gut und war fast direkt merkbar. Im Serum bereits nach 4 Wochen senkende Antikörperwerte. Ich nehme meistens nür 0.5 mg ein.
من در ایران زندگی میکنم و الان ۲ ماه هست مصرف نالترکسون رو شروع کردم و این دارو به نظر من به هر کسی که به هر چیزی وسواس دارد کار میدهد. خداروشکر من الان خوبم و زندگیم تغییر کرده است.
Hello Rachael, I hope you see this. Here in Denmark the professor in chronic pain i talked to, told me to use the LDN first thing in the morning, and not at night. Because it would often interfere with sleep. There isnt a big difference in overall effects. This is an old post so i hope you have found this out already
My Dr said take at night but I saw side effects were insomnia so I’m in the morning. Took the first time at night and got 4 hrs of sleep and the sleep deprivation triggered my Hashimoto flare up. So I am taking my 1.5mg for the flare ups and fatigue.I think it will help!
Thanks for your encouraging report Rachael, I too have battled Lyme, in remission we think and a host of other auto immunes. I was Dx'd w adrenal insufficiency around 11 yrs ago and was put on Cortef and have been on it for all this time. About a year ago I was DX'd w osteopenia which is the warning for Osteoperosis. My Dr thinks it's from the corticosteroid even though it's low dose and I was told it would not harm me. Well I feel it has. I eat nutrient dense foods and should not be in this shape at 53. I also feel it damaged my renal pathways. So I have been weaning off for about 6 months and have gone down from 20 mgs per day to 2 mgs per day which is amazing but the pain an fatigue is ...well...you know. My new Dr wants me to go on Naltrexone and gave me super low dose Trokes but like you I hyper react to EVERYTHING, so I have had it for a month and have been afraid to take them. I too am researching everything to be sure I feel good about taking it. So I may have more questions for you later but is it something you can wean off of later in time? Thanks so much! Sue
Hi Sue, yes, be careful with it. I am like you super sensitive and reacted badly to LDN ingesting. Vomiting and nausea for 4 weeks, only after 1 dose. I will be taking to my doctor see if I can get compounding cream versus taking through digestive tract.
I started using a liquid version of LDN (preservative free). A syringe is used to get it out of the bottle. It is a 4.5mg strength, but I used a little amount & slowly titrated it up. If I got any bad vivid dreams I would reduce the quantity. It took a while to get results. But they were great. Now I have titrated it down. That is the new train of thought. It works. I woman in England (MS pt) said it took 2 years before she could be wheelchair free. Dr Bihari (now deceased) was responsible for figuring out the benefits of it.
I am waiting for my LDN to arrive in the mail and so hopeful it will help with my Lyme induced SIBO. I did not even bother going through my primary - I ordered it online via a service that has an ordering MD who prescribes it.
@@santella.story.healing unbelievably better! I'm eating all the fodmaps, dairy, wheat... No more bloating at all! It's unreal. I've suffered for years. Eliminated all the foods, took the 4 weeks of antibiotics, spent thousands on herbs/ supplements/functional medicine appts... I no longer have neuropathies in all four extremities. And my migrating joint pain is almost fully resolved.
@@sara-mc3rk wow, that’s amazing, can I ask what the cost was. I have Fibromyalgia multiple chemical sensitivities interstitial cystitis etc. thank you so much chronic pain constant
@@lindapelle8738 It's $30ish per month, paid in 3 month supply at a time. Took a few weeks to kick in and then I started noticing I was not complaining of bloating and joint pain as much. I tried to eat more FODMAPS foods like beans and broccoli and was surprised they were ok again. It's been about 6 months now and I can go for long walks again without needing a week to recover from the pain and fatigue and am eating so many more foods than I was 5 years ago.I was totally worth it. I went through ageless Rx, if you are curious. Reading reviews on trust pilot was reassuring to me that it was not a scam (the name sounds sketch to me) and then of course when I started to get better.
Also try cycling if possible. After a few months every day you will notice a big improvement. I also cut out all sugar. There’s a great book called “How I Cured My Arthritis” which has a lot of good info on autoimmune diseases.
This is a very informative video thank you for sharing I was born with congenital issues and have been experiencing chronic pain on my life I tried everything from injections to pain psychiatrists and much more today I saw my doctor and she told me about this LDN I'm looking forward to the journey she's going to start me at 1.5mg I'm praying for so much relief God bless you young lady and may God bless us all in Jesus name
@@santella.story.healing blessings actually I'm doing better pain level is down I'm not paying free I'm able to rest more I'm able to be a little more mobile at this juncture I am pleased with the benefits I have no side effects kudos to my doctor and I'm excited for better days ahead
I have read that taking the liquid form allows much slower and more consistently accurate titration up or down. For example, 1.0 mg, then 1.1 mg, with the change every other day versus daily.
Hi Rachael, I very happy to hear you are doing well. I too take LDN and, after a few months, it helped with chronic pain (the future is less gloomy). I am looking forward to fatigue reduction. Take care and stay well during these difficult times. From Fay (a fellow hEDS, Chiari, MCAS, and POTS) xx
Thank you so much for this video. I've been looking into LDN after reading about it in a RA book. I'm cautiously optimistic that it might help and your video gave me a bit more hope.
I recently saw a video by a doctor that uses LDN a lot in his clinical practice, and he basically said there's no magic to the 4.5 mg dose. It just happens to be kind of in the middle of the range. Based on all I've seen it is good advice to start out at a lower dose. The reason to increase is to get more benefit, but if it starts to cause harm, go back down to the previous dose. I've seen people say they are "cured" on 1.5 mg, but they're still talking about wanting to get up to the 4.5. Why? No need. There's a Dr Younger that wants to study dextronaltrexone which is a form where you might be able to take higher doses without the side effects. This will be for people who seem to need a higher dose, but can't tolerate it.
Thank you so much for sharing 😀 My doc here in Australia has recommended this to me for Interstitial cystitis/ME/Fibro/Endometriosis. I'm nervous about insomnia side effects. I already have terrible light broken sleep and nightmares.
Hi, I am new to this channel and read your post. I was diagnosed with interstitial cystitis fibromyalgia Severe TMJ many many years ago. I am wondering how the LDN helped you. I gave up on Dr’s a while back and I wasn’t even aware they were giving this I read it could be used but my neurologist has not heard of it being used for fibromyalgia. I also have trigeminal neuralgia from the surgery to fix the TMJ that’s actually the worst pain of all. Anyway I would love to hear your response with the IC fibromyalgia etc. thank you so much
@Emma Brent Hi thanks for replying I’m curious what kind of face pain you have? If you can tell me I’d appreciate it and what kind of diet help to reduce the pain thanks so much.
I have been ill for 30 years, the first 5 completely confined to a wheelchair. I've spent tens of thousands in different supplements trying to 'fix' myself hecause my HMO wouldn't. I saw a new doctor yesterday and it was the first time anyone ever mentioned LDN to me. He told me to go home and read about it. 🙌 I understand having a body that overreacts to everything. May I ask how often you have increased your dosage?
I am one of those. After 1.6 years of long covid and a diagnosis of lupus I began LDN 5 days ago. I got IMMEDIATE relief with no side effects. I'm incredibly lucky and so greatful to finally be able to get back to work and get my life back
I’ve been on LDN at 4.5mg compounded pills for about 1 year for EDS/POTS/MCAS/Gastroparesis. I take it in the morning because it disrupts my sleep. Originally it was prescribed to help with pain, which it hasn’t. At all. However, I have noticed a marked improvement (from severe down to moderate most days) in my fatigue levels, brain fog, POTS symptoms, and MCAS reaction severity. I noticed the improvement in fatigue after a couple of months. But the other improvements I didn’t notice until 6-9 months after I started taking it. It’s certainly been immensely helpful.
Some people say taking at night keeps them awake and others say the opposite. How did you find what worked? I'm about to start taking it for chronic pain.
@@santella.story.healing I'm sorry, I'm not good at finding replies on here yet. I answered somewhere else. I'm only on 2 mg in the morning. I still have most of my pain but I feel so much better mood wise I'm going to keep taking it. I got a bunch of .5mg tablets and didn't increase until all my side effects were gone. It's taken me this long to get to 2mg but I have no side effects now. I just feel better.
Hey girl, thank you so much for sharing your story :) I started LDN right around the time you did and it’s so encouraging to hear it has helped so me. If you don’t mind, could you share some of your symptoms of adrenal insufficiency that you have had?
I started at 0.75 and in process of working up. The first dose it felt like a niacin flush- like my brain was squeezing. Only that one time though. Seems like when I increase the dosage the dreams get weird.
Sorry you can’t sleep. I dosed up to 4.5mg over 20 days. I got nauseous and insomnia but it wore off. My crps in my feet is starting to go away and I can jog on a treadmill again!
I have long covid for 2 years now.... I have chronic fatigue, brain fog, memory loss, skin rashes, severe chest pain etc..... I have Dr appointment this week and I hope I can get my Dr to prescribe LDN for me.... What dosage size dosage do you take? Thank you for the information......
@@TrendyNewsByRajDubey Yes, I've been taking it for over 5 weeks now... 5 mgs LDN..... I can't say that I feel any different but I know it will take more time to see potential positive results..... 😀
I hope you continue to improve. I have been taking ldn sublingually for 3 weeks now. How long did it take to really notice a change in your overall health and wellbeing?
I just got ldn prescribed for long haul covid and chronic fatigue syndrome, brain fog, I nearly died of covid last year and suffered an ischemic stroke from the covid. I was on life support for 16 days etc. I'm excited to try this since I'm at such a low point in life quality of life wise. I'm very scared to take my first dose bc I have such bad panic attacks. It's for 1mg. Is side affects bad for this medicine? So nervous Thank you for your story and hope.
I had the worst experience on it... I took my first dose of 1.5 a week ago and all my symptoms did come back really bad and I have not taken another dose again. I do plan to take it again but at a really low dose, I am just trying to get back to my baseline before I try. Kind of scared.
Oh no! I'm really sorry to hear that. I hope you can find something that helps! I understand the fear. That's why I started at 0.1mg, haha! ❤️️Hope you find something to help!
@@deana.amlott thank you for replying Deana. I'm starting next week with .5mg. I reati badly to everything. I know this isn't the best place to chat, but how long before the bad symptons went away. House or days? Thanks
@@savvysilvia5075 for me it took a good week…. I restarted about two weeks later at about .3 and worked up to .5 but it began affecting my sleep again so stopped “for a couple of days” and have yet to restart. I think it depends on what you are taking it for. I have autoimmune issues and arthritis which it also revved the pain up there a little bit. I did have a little more energy during the day. But don’t let my experience scare you. You can always dilute your .5 down to .1 and start super low and work your way up. It’s better to do that then have a bad time like me out of the gate. This doctor also touches on that as well. vimeo.com/293553098?ref=fb-share&fbclid=IwAR2Sk0-yGnOo40KhK7e1HTA2jiL0mkEDTrFIzLj-h4CJcwLcJUi0Dz9eC_o
So pleased for you! 😀...I am in the UK and going to ask my doctor if I can try it ( not sure if he will say yes though) ..Can I ask which brand you take? Also I worry about the fillers...( I have Fibromyalgia) ...hate being in pain all the time 😣xxx
I'm very glad it worked for you & very proud of you always! I did get it after watching your first video about it but unfortunately I couldn't tolerate even the 0.25 mg dose! I don't know why! It makes me very tired & sleepy! I've undiagnosed autoimmune disorder & adrenal insufficiency!
If you don't mind me asking, what protocols does your Lyme doctor prescribe for you? I'm curious in hearing testimonials from others dealing with this terrible disease.
I wonder if you would continue to improve even more if you increased to 3.0. Maybe not though 😊 trust your gut! I worked up to 4.5 in one month (kinda quick) but had a gut feeling that would be best for my fatigue and fibromyalgia. Best wishes ❤
I have a good doctor, and he prescribed me LDN for my POTS/MCAS/chronic pain but I am too scared to try it. 😖 Edit: I should add I also already have vivid dreams and nightmares and restless sleep so I really don't want that to get worse.
DarkBlue Matter Hey, I’ve been on LDN for a year and I have EDS/POTS/SFN. I got very vivid dreams each time I went up a dose. For me, those dreams lasted 2 weeks but then it went away. LDN has really helped my neuropathy.
Start slow & low. I started with .5 and worked up to 4.5. It's wonderful! There are plenty of videos to show you how to compound your own. My insurance won't pay for 4.5 they will only pay for 50mg, and then it's free...go figure?
I totally understand the fear of trying it! I am super sensitive to medications and so I'm really glad I decided to start much lower than what my doctor recommended. Low and slow. I struggled with insomnia before as well--its hard to describe, but it definitely feels different on LDN. All that being said, definitely don't try it if you're not comfortable with it! Whatever it may be, I hope you find something that helps!
@@HealingWithRachael That's true, at first my doc said cut my 50 mg into fourths which would be 12.5 if you can cut it correctly. I did that, about 8 hrs later was as sick as a dog. Then I started doing my own research I started on .5
I have a hard time getting it. I really need it and felt wonderful when on it for a year but then a turn if events led to not having refills and new docs won’t prescribe it bc they don’t know what it does.
@ Autumn I have been thinking of trying AgelessRX but I'm concerned that after I pay for the Dr consult that they won't prescribe it. Can you share how the process went for you, please? Maybe hearing you positive experience will motivate me to give it a go 🙂 I thank you for your time
Thanks la for the video. Did you notice any sexual side effects, like low libido/weak orgasms or just little pleasure? Heard it blocks endorphins, so it would make sense ..
I know this is an old video but did LDN help with the barometric pain?. I have C4,5,6, Stenosis and Chiari Malformation and will get results of C.T. scan this week for Cervical Instability and I have Psoriatic Arthritis and all my conditions 10 times worse when wet , or stormy weather. I think it might help. x
Hi Rachael, Do you share anyware what type of treatment, and which doctor/practitioner you go to? Also wondering what type of adrenal insufficiency you refer to, and what the symptoms are? I have been trying to find out if I am having adrenal insuficiency as well, without luck with doctors, as I am not positive for Addison´s disease,but dealing with extreme symptoms of adrenal issues which are debilitating, and holding me to the bed. Really appreciate you sharing
Hi Racheal I know this was put out a long time ago can I ask what Country your in please? I’m in Uk & iv been prescribed 0.5mg LDN but The doctors can only get 50mg tablets any feedback would be fantastic thanks for putting this out there
You have to have them made at a compounding pharmacy. So far as I know, low dose naltrexone is not approved in any country as a standard therapy and so no pharmaceutical companies have it as part of their regular offering.
All your other afflictions, are from Lyme and/or co infection. I was completely healthy 34 yo male at the time. 1 tick bite and 10 years later, I still suffer. I am getting ready to try ldn. What are you doing for treatment?
A strict carnivore diet / no plants GAPS has been one of the most helpful things for me so far. I’d recommend reading “Gut & Physiology Syndrome” by Dr. Natasha McBride. She addresses lyme and similar issues and why they are becoming so prevalent. I hope you find relief!
Thanks so much for sharing! I was prescribed this recently, but have been hesitant. My doctors will no longer give me tramadol (or anything stronger) They barely even want to give me Flexeril, but I need it to sleep & was denied Medical Marijuana . I have Lupus/Fibro/Endo and more... I have found that the only thing that has been helping me get thru this pain recently , is a glass or two of wine. I'm just wondering if I take the low dose naltrexone, if I will not be able to drink , as I know in higher doses it's used to treat addiction. I know most of my meds I'm not supposed to drink on, so that's not what I'm referring to lol.
So wrong that you were denied medical Marijuana with those conditions. And no help with pain. I have experienced all of those together. I feel for you. You might investigate trazodone for sleep.
Kratom is less well known over here in the US and I wouldn’t be surprised if it eventually gets regulated the way big pharmaceutical companies work here. That’s part of the reason LDN isn’t a common therapy. It’s not pushed because it doesn’t have that big of a profit margin and has to be compounded.
Betsy Friedrich 👋🏼😬🇸🇪.. Its not so common here in sweden either and ofc its regulated..🥴.. All thats work, you know🙄. It was more a Q if its interract bc its kind of opium/morphine like substance.. and LDN is what LDN is..soo.. LDN is mostly used in the integrative medicine here so I think its likely how you have it.. But we has no LLMD:s at all here.. we have to rely on those integrative practicioners.. Who still has their License.. Sadly very, very few😔.. Thank you any way❣️//stay safe//much Love// Linda E 🇸🇪
Rachael Elizabeth ok🥺.. NO.. Im from sweden.. so no LLMD here.. and the integrative doc that helped me is probably of with his License.. 😞.. Poor guy, work his as* off to help and say one true thing on something...swoosh.. so were that License gone🥺😡☹️ Thank you anyway❣️ //stay safe//much Love// Linda E 🇸🇪
I started at 1.12. One week later jumped to 2.25. I have felt awful the past 3 weeks. I swear it is making me worse. I have had so much nausea and migraine and insomnia but I can't tell if it is coincidence or not so idk if I should quit. It helped me in the past. Should I start over at a smaller dose? Is there any benefit to using the gel?
@alexanderpriv Interesting. I originally went up to 3mg and was on that for 2 or so yrs. I stopped taking it because I was doing well and then had a relapse months later. This time, every time I try to go up I feel horrible, so finally, I figured since I felt good when I first started, I'd just go down instead of up. Been on the 1mg since sep now, and it's working. Good to know that if it stops I can try increasing again.
It’s also important to make lifestyle changes while on LDN and not rely on it entirely. Diet, exercise, and self care are a must.
For me LDN effect was immediate but I was also doing many other things that I think at that point only LDN could address so it helped tremendously.
Has it helped muscle pain I think most of us have Asperger's hypomobility with this albeit undiagnosed mostly
Which did it help with u immediately and how much did u start with?
@@jennifersalazar6837 I've been in it ,6 weeks still got pain
So far it has helped me immediately.
Also make sure you’re not living or working in a water damaged building.
Thank you for your video .💞
I'm taking LDN since September 2020. Brainfog and POTS went away. Energy ist better. The pains are VERY slowly getting better.
Love from Austria 🇱🇻
Servus, darf ich fragen an wen Du Dich damit gewandt hast? Einfach zum Hausarzt? Grüße aus Wien ;)
@@dekkard Suki dot com sells it globally, I got from there
Im not understanding.. Energy IS or ISNT better? Thank you.
@@cryptochainbreaker6396 ist is IS in German
How r u now
One of my docs told me that it was impossible for me to have both Lyme and EDS. He’s no longer my doctor.
Bartonella maybe? Look into it’s interactions with collagen
Glad you knew to leave!
@@kristenjohansson3084 you people and your arm chair junk science
Well done 👍
Will this help my wife's nasal cyst me and my wife are nervous about the side effects
The one who found LDN I want to meet him/her and fall on my knees and say thank you.
Totally agree ❤️
@@HealingWithRachael and those who destroyed us with f vaccines need to hang on a string of piano
How r u
Dr. Bernard Binari who has passed away. I believe Dr.Ian Zagon is sometimes falsely credited as having made the discovery.
Story of my life. A lot of doctors don't know about LDN, I went to the ER once and the nurse suggested that I was under treatment for substance abuse.
I Take LDN for my Hashimoto’s. I take 4mg daily. It has changed my life!
I have Hashimoto’s and adrenal dysfunction. How long were you on it before you felt better?
glad to hear! did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
How long did it take you to feel better?
I used to take LDN and when I had to change Drs due to her no longer being in network with my insurance my new Dr refused to refill it. Said it was dangerous long term. But, I can honestly say I never felt better than what I did when I was taking it. I have an appointment with the Dr that prescribed it before and see if I can get back on it. I have an auto immune disorder and live in constant pain due to inflammation. That helped tremendously with my pain and inflammation. Also, I lost about 20 pounds without trying. She had told me that was a “good” side effect if you’re overweight. I’ve finally decided I’m willing to pay out of pocket to get back on it.
How r u
No Dr. should deny the help! Good luck
I found out about LDN while I was looking for fibro, lyme disease treatments being desperate. My doctor prescribed it and I'm waiting for the RX to be filled. I'm so glad to hear it has helped you, gives me hope.
Good luck with everything! Ive heard you can herx on it or flare with lyme especially if you start too high but I’m sure you probably already know that! 💚 I hope it helps!
Please post your updates.
Hope it’s a good change!
How r u
LDN completely changed my life. My rheumatologist prescribed me this, I have high inflammation and positive ana speckled bloodwork but don't cone back positive for lupus or RA. LDN has given me sooo many more good days than bad and am able to live a way normal life. I've had no negative side effects so far besides insomnia so i was put back on a low dose sleep medication.
Same here, I take 4.5, compound it myself. It's the best drug ever. I have autoimmune, tick disease (Alpha Gal Syndrome) which brought on joint pain (allergic to all NSAIDS) and ME/CFS. It's made me feel normal again. I've been on it for about 4 months.
That's amazing Mariah! Thanks for sharing!
@@wagwag630 that's awesome, how long did it take, I'm on 2 months and it feel like I'm detoxing. A few really good normal feeling days with energy and clear brain which have been a tease because the rest of the time I'm still sick.
@@MariaAudioChick It's taken about 7 months and I am still improving.
@@MariaAudioChick were you succeeded with it?
Doctor today told me this is only for alcohol abuse and he isn't prescribing me. Not ever seeing him again.
Keep hope and switch drs. I was told the same thing and I just got a new dr and he listened to me and looked it up and prescribed it to me
I was told the same thing. I googled online docs and found a website that will evaluate you via questionnaire and prescribe an rx…then send it to you!
@@Djk8263 what website is that
@@jeremycoscino6009
Ageless
Rx
My pain specialist gave me a prescription but I had to pay out of pocket $50 bc I had to get it from a compound pharmacy. It’s only been a week and I’m still nauseous. I was warned by the pharmacist about others having vivid dreams. Praying for everyone’s healing process.
this has helped me recently with CFS/ME. normally, i struggle so much with waking up. LDN lets me get up and stay alert.
So glad to hear that!
Dose?
Thanks so much for sharing your experience with this. I have never heard of it and looked at one of the links you posted and was amazed at all the different conditions listed on there that it could help people with - it's incredible! I am so glad it is helping you! I am also so sorry to hear where you were at your worst and everything you have gone through to get to where you are now. You are working so hard and it's paying off. I hope things continue to improve for you. Thanks again for sharing your story with us
Thank you so much!! ❤️️ It really is amazing how many conditions its been known to help with. I hope they continue to research and learn more about it so more people can benefit from it!
@@HealingWithRachael someone also gived me this ldn but after some weeks building it up to 4.5mg i felt the effect was going away?
Hi Rachael. I received my giraffe from Etsy, with your beautiful embroidery. Thank you. You are very talented. As to this current video, it sounds like your journey is taking a positive up-turn. Thank God for that. Keep fighting the good fight. 🌹🌹🌹🙏🙏🙏😇😇😇
I'm so glad to hear you like your giraffe! Thank you so much!
Young lady you have
gave the best video on ldn I have seen yet thankyóu
I’ve just started the process of getting a prescription for LDN! I have EDS/POTS/ME and really hope it gives some relief.
I hope it goes well, Ellie!
Did you start
I'm very thankful that my doctor knows about it and prescribed it to me. He's the one who told me about it.
I'm so happy for you! It's changed mine too, with autoimmune issues, ME/CFS and tick disease. I think it's also great for depression, watched a video on that today. Out of five doctors on my team only one knew about LDN and I am so thankful! The key is to start slow and low and work up to 4.5.
I'm so glad to hear its helped you too!! I was amazed to read the long list of conditions it has helped. I hope more doctors become aware of it. :)
So happy to hear of your LDN therapy and that it is working for you. And it should work even better for you the longer you are staying on it.
Only thing I would recommend is that you do whatever you can to switch to nighttime dosing. LDN works by significantly increasing the number of Endorphin hormones (as much as a 3X increase). While you are getting for sure benefits taking it in the AM. You will get even greater benefits by taking it at night -- usually between 10 - 11 PM. That is because your body produces MOST of the Endorphin hormones (through the Brain's Pituitary Gland) that support your Immune System during the Overnight hours (1-5 AM) per the Circadium Rythm. So talking LDN between 10 - 11 PM will cause you to get the greatest BOOST in Endorphins from the medication. Even if you have to use Sleep Meds to take LDN at night---there should be no problem. Not aware of any conflict with taking LDN with sleep meds.
At any rate, I have been taking LDN now for over an incredible 10 years now. LDN is without doubt my MOST important medication. I truly believe I would not live very long if I were ever to go off it. I take it for my Hashimot's autoimmune disorder. And like you -- I was extremely sick to the point of being nonfunctional before being able to get on my LDN medicastion.
I am also a patient advocate for LDN. Not as active as I used to be. Got frustrated because so many Doctors still refuse to accept LDN and prescribe it. The main problem with LDN is that it is still not supported very much at all by Mainstream Doctors who are generally married at the hip to only very expensive Big Pharma medicines that mostly don't work at all in comparison to LDN which does. The other thing many doctors do not like about LDN is that is very cheap. Only about a $1 per dose generally. A cheap dollar per day drug like LDN simply gets easily dismissed by a majority of Doctors. Unfortunately.
Finally, I did put out my own TH-cam advocacy video for LDN a few years ago. I think it is certainly one of the best things I have ever done and I still get steady views from people interested in LDN. Here is a link to it if interested in my experiences with LDN.
th-cam.com/video/w8nylF-uGvQ/w-d-xo.html
If you take LDN at night, you might have sleep issues. I just woke up 1am CET and took 1mg at 5pm, so even that time in between was not sufficient, can not sleep, slight tachycardia, and just awake now
@@AlexSelf-Help Sleep issues are fairly common when initially starting LDN therapy. But they generally go away. And if they persist, you can take sleep meds on LDN. There is no conflict that I know of.
@@PatrickOCnMD just strange why LDN increases pulse…I mean it’s supposed to regulate immunsystem on micro dose. I m on 3mg, not sure why body readers with slight tachycardia
@John P OConnell: Hi again, I quit LDN after 3 weeks, due to sexual side effects like weak orgasms/no joy, and much less sexual interest, like I never felt before. Did you have that too, is that normal, obviously LDN blocks opiate/joy receptors, which is why it s also used for getting people of alcohol and other pleasures such as shopping addiction etc., but concerned this is now permanent?! Any advice! Would appreciate a lot, as this is scary... btw. I read also LDN messes with prolacting, which explains why I m no longer tired after climax, which sounds good for my wife, but the issue is I don't have any joyful intimate feelings. (maybe 20%) Thank you!
I had to switch it to morning. I got awful insomnia when I take it before bed. Much better now. Everyone is different.
I'm on EDS spectrum and it led to lyme and chronic infections. I was about to try LDN but went with reiki, but I'm thinking that LDN probably would have made a huge impact too. In addition to reiki I do lots of supplements and a raw vegetable heavy Mediterranean diet it is absolutely changing my life I was bed bound and having near death experiences and now I'm dancing and back to daily activities.
Can I ask what exactly you are doing? I've done Reiki and a million things myself but I've recently switched over to Chi Energy and something called Spinal Flow which you can look up on TH-cam. I also do tons of things like watching my diet, ozone therapies of all kinds, light, heat, and frequency medicine, and tons of scalar and plasma stuff. However, I'm still considering LDN because my functional MD thought it might help with some of my still-existing back pain and inflammation. However, I am now working on brain entrainment since I'm pretty sure most of this still exists due to past trauma from various different negative experiences that I've had in my life and have been chronically ill for so long. However, I do eat a very strict diet, but I have noticed that it has had to change drastically over the years as my body heals different conditions and imbalances.
What a lovely and hard working spirit. Very best to you.
Watching my favourite inspiration makes my day expecially when she is educating people
You're so sweet, thank you Amy!
I have been on it for 3 months now. I started at .5 and added the same weekly. I really noticed pain reduction in my back at around 4 and am at 4.5 now. It seems to be getting better daily. I plan to stay at 4.5 as that is the recommended dose. I notice if I take it an hour prior to sleep there is less dreams. Good luck. Definitely a wonderful drug. I feel very clear headed and rested, more energy and the runners high affect is fantastic.
You are doing good. It was about 3 months on LDN before I felt significant positive effects. I also settled at 4.5 mgs. And now I have been on LDN for an incredible 10 years now. And LDN has never failed me.
All LDN does is fix your Immune System. Normalizes it from a state of disease and non-function. And the way you know it is working is you stop getting sick. Before starting LDN I was getting sick all the time. Colds and illnesses all the time. Now on LDN....I can't even remember the last time I had a cold. It has been quite a few years. Pretty hard to get sick on LDN -- my experience.
In 2009 I had a Colonoscopy. It was bad -- 9 polyps as I recall. Started LDN in March 2012. In September 2014 I had a 2nd follow-up Colonoscopy. They found NOTHING. Could not believe it. Absolutely sure it was the LDN that so improved me. To me, LDN is the main reason I am still above ground and walking the Earth still.
To me...everybody past the age of 48 or so should be on LDN. Think about all the pain and suffering it could prevent. But unfortunately, It is never going to happen. Mainstream Medicine and BigPharma are still doing their best to prevent wide-spread knowledge and use of LDN. They just view LDN as "Bad for Business." And for all that LDN can do for $1 per dose, it really would severely impact Mainstream Medicine profits. I am so thankful I learned about LDN when I did. Saved my life for sure.
did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
@@AlexSelf-Help No, not any sexual side-effects for me. Am almost 70 years old and still have pretty good interest in sex still. Just can't function as when I was 20 of course.
@@PatrickOCnMD thanks for quick reply, and glad it didn’t affect you anyhow negatively. whilst the mechanism - blocking opiate receptors, obviously doesn’t differ from person to person, it seems not to affect everyone in the same way. But to me it makes sense, as blocking opiate receptors is related to endorphins, (ChatGPT) and LDN is used as an anti-addiction drug for all sorts of ‚excessive pleasures‘.
Thank you for this information. I am starting LDN in one month for RA, Chron’s and chronic pain and inflammation. None of the 5 RA drugs I have taken have worked, over the past 6 years; most of them caused me unbearable side effects, even worsened my RA to the extreme (using Humira for a year). I’m starting LDN at 1.5. I currently take L-Theanine and Melatonin for sleep and have a wonderfully restful sleep.
Update, I won’t be starting the LNR. Due to other circumstances, Ive just started a difference biologic.
@@catysparks I also have Crohn's, potentially EDS (which is probably due to Bartonella), Lyme and co-infections, had POTs, excruciating pain in my middle back, neck, and hips, fibromyalgia-like pains, cysts throughout my body, hemangiomas on my liver, anemia, a perianal abscess that turned into a fistula,etc. However, all my symptoms are now much better but I have done and am doing a ton of holistic healing modalities for the mind, body, and spirit in order to get where I am today. In fact, now I am fully concentrating on brain entrainment since I think a lot of my residual symptoms that exist now are from damaged neuro-pathways due to experiencing chronic pain for all those years. That is why I've really wanted to try LDN as well as continue to do what I am dong now. However, of course my conventional doctors want me on biologics asap (my Functional MD however wants me to try LDN) but I refuse to put chimeric cells (which is what most Biologics are made of monoclonal antibodies) in my body I was just curious as to which one you are on now and has it worked at all? They want me on Infliximab (technically Remicade) but the only one that I have ever heard anyone having any success with these days with minimal side effects is Stellara, the name brand and not the generic drug.
I'm on LDN with Fibro, likely hEDS, POTS, likely MCAS, etc. Biggest thing I notice with LDN is it significantly improves my pain. I t makes me dizzy so I take it before bed. Intense dreams stopped after a couple weeks.
I just found this video! I am looking to start LDN and not many videos explain how to start at very low doses and titrate up to what dose works for you. I have Fibro, Lupus and Chronic Fatigue Syndrome and Adrenal issues. It is so important to get inflammation under control in folks like us before it causes more conditions like Crohns, Colitis, RA, etc. Thank you so much for this video!!!
How r u now
Omg, I think you will love it from the first day. Start very low. It’s a miracle drug. I use it as I’m in chronic pain in my neck and lower back. I stopped using it for a week as I wanted some other pain medication, but then I realised how even more sick I got🥵I tried morfin instead but it didn’t help at all so I got back on ldn 3 mg..from the first pill it lowered the inflammation straight away. Still so sick and I’m still desperate to find more help. But I couldn’t live without my ldn.
@@charlottevik9849 side effects like anxiety? Or more depressed?
Just going to.start it
How are you today
Started LDN 4 days ago, no relief yet but praying 🙏
any update?
@tiffdate1 The end of the first week It helped tremendously with fatigue but I also had terrible insomnia. The 2nd week I had a flare up and inflammation was bad. The 3rd week insomnia went away, fatigue was much less and my chest pain stopped....but I noticed weakness in my legs and some blurry vision issues.
I'm not sure what to attribute to the medication and what is maybe just part of the autoimmune issues I'm dealing with and the CFS. Overall, at this point I think it's maybe too early to give it 100% support but I will say I think just what it's done for fatigue and my chest pain outweighs the side effects so far.
I started 1.0mg I was on pain medication for terrible fscial nerve pain from a trauma. I quit that for health reasons. Not able to take serotonin medication, I just need help healing my neurotransmitters. I found a great medical team that new about LDN. 1.5mg seemed too much but did help my pain. I am going to .05 and later go up. I am on 4th day. I've had nausea abdominal pain and headache. & agitation. But it is helping pain, cravings for oxycodone. I was able to accomplish tasks... so hoping this issue the answer for repair of dopamine.
I have chronic back pain and chronic fatigue syndrome. I’ve had both for 24 years. I’m going to talk to my doctor. I’ll be in touch. Thank you.
Wishing you all the best!
I ordered contrave cuz my MD said no
@@longislandbirria8157 doesn’t it also require a prescription?
How u now
Any updates?
Yay! Today I found a doc who has no problems prescribing LDN for M. E./CFS. Before that no-one would.
I've waited 10 years for this! 😁
I'll be getting it this evening (the pharmicist here delivers for free).
I'll update and let you know if it helps!
Even if it doesn't - surely it is worth a try. 🎉
Hoping all the best for you!!
Wie geht es Dir mit der Einnahme ?
@@LissBraunweiß nicht wie es ihr geht aber ich nehme es schon 4 Jahre ein für Hashimoto. Es wird in der City Apotheke in Göttingen hergestellt. Mir hilft es gut und war fast direkt merkbar. Im Serum bereits nach 4 Wochen senkende Antikörperwerte. Ich nehme meistens nür 0.5 mg ein.
Isn't it strange that most doctors don't know about naltrexone 🤔
I’ve been on it for 9 years. Never coming off.
❤️❤️
What dosage did you take?
@@IlIKRATOSIlI normal is 4.5 mg
May I ask why are you on it?
@@kseniyaalive3772 I’m on for pots, me/cfs, mcas, and a hundred other things but those are why I started.
من در ایران زندگی میکنم و الان ۲ ماه هست مصرف نالترکسون رو شروع کردم و این دارو به نظر من به هر کسی که به هر چیزی وسواس دارد کار میدهد.
خداروشکر من الان خوبم و زندگیم تغییر کرده است.
👍
Hello Rachael, I hope you see this. Here in Denmark the professor in chronic pain i talked to, told me to use the LDN first thing in the morning, and not at night. Because it would often interfere with sleep. There isnt a big difference in overall effects. This is an old post so i hope you have found this out already
Thank you for sharing! I actually have always taken in first thing in the morning :)
@@HealingWithRachael oh nice, is it working just as good today
Agreed. Strange dreams. I take 4.5 at night.
My Dr said take at night but I saw side effects were insomnia so I’m in the morning. Took the first time at night and got 4 hrs of sleep and the sleep deprivation triggered my Hashimoto flare up. So I am taking my 1.5mg for the flare ups and fatigue.I think it will help!
Thanks for your encouraging report Rachael, I too have battled Lyme, in remission we think and a host of other auto immunes. I was Dx'd w adrenal insufficiency around 11 yrs ago and was put on Cortef and have been on it for all this time. About a year ago I was DX'd w osteopenia which is the warning for Osteoperosis. My Dr thinks it's from the corticosteroid even though it's low dose and I was told it would not harm me. Well I feel it has. I eat nutrient dense foods and should not be in this shape at 53. I also feel it damaged my renal pathways. So I have been weaning off for about 6 months and have gone down from 20 mgs per day to 2 mgs per day which is amazing but the pain an fatigue is ...well...you know. My new Dr wants me to go on Naltrexone and gave me super low dose Trokes but like you I hyper react to EVERYTHING, so I have had it for a month and have been afraid to take them. I too am researching everything to be sure I feel good about taking it. So I may have more questions for you later but is it something you can wean off of later in time? Thanks so much! Sue
Hi Sue, yes, be careful with it. I am like you super sensitive and reacted badly to LDN ingesting. Vomiting and nausea for 4 weeks, only after 1 dose. I will be taking to my doctor see if I can get compounding cream versus taking through digestive tract.
I started using a liquid version of LDN (preservative free). A syringe is used to get it out of the bottle. It is a 4.5mg strength, but I used a little amount & slowly titrated it up. If I got any bad vivid dreams I would reduce the quantity. It took a while to get results. But they were great. Now I have titrated it down. That is the new train of thought. It works. I woman in England (MS pt) said it took 2 years before she could be wheelchair free. Dr Bihari (now deceased) was responsible for figuring out the benefits of it.
How u now
I am waiting for my LDN to arrive in the mail and so hopeful it will help with my Lyme induced SIBO. I did not even bother going through my primary - I ordered it online via a service that has an ordering MD who prescribes it.
How r u now
@@santella.story.healing unbelievably better! I'm eating all the fodmaps, dairy, wheat... No more bloating at all! It's unreal. I've suffered for years. Eliminated all the foods, took the 4 weeks of antibiotics, spent thousands on herbs/ supplements/functional medicine appts... I no longer have neuropathies in all four extremities. And my migrating joint pain is almost fully resolved.
@@sara-mc3rk wow! Does it help with fatigue
@@sara-mc3rk wow, that’s amazing, can I ask what the cost was. I have Fibromyalgia multiple chemical sensitivities interstitial cystitis etc. thank you so much chronic pain constant
@@lindapelle8738 It's $30ish per month, paid in 3 month supply at a time. Took a few weeks to kick in and then I started noticing I was not complaining of bloating and joint pain as much. I tried to eat more FODMAPS foods like beans and broccoli and was surprised they were ok again. It's been about 6 months now and I can go for long walks again without needing a week to recover from the pain and fatigue and am eating so many more foods than I was 5 years ago.I was totally worth it. I went through ageless Rx, if you are curious. Reading reviews on trust pilot was reassuring to me that it was not a scam (the name sounds sketch to me) and then of course when I started to get better.
Also try cycling if possible. After a few months every day you will notice a big improvement. I also cut out all sugar. There’s a great book called “How I Cured My Arthritis” which has a lot of good info on autoimmune diseases.
What type of arthritis?
This is a very informative video thank you for sharing I was born with congenital issues and have been experiencing chronic pain on my life I tried everything from injections to pain psychiatrists and much more today I saw my doctor and she told me about this LDN I'm looking forward to the journey she's going to start me at 1.5mg I'm praying for so much relief God bless you young lady and may God bless us all in Jesus name
Wishing you the best, I hope it helps for you!
How r u now
@@santella.story.healing blessings actually I'm doing better pain level is down I'm not paying free I'm able to rest more I'm able to be a little more mobile at this juncture I am pleased with the benefits I have no side effects kudos to my doctor and I'm excited for better days ahead
@@michaelholton1796 does it help fatigue
What dose are you on?@@michaelholton1796
I have read that taking the liquid form allows much slower and more consistently accurate titration up or down.
For example, 1.0 mg, then 1.1 mg, with the change every other day versus daily.
Hi Rachael, I very happy to hear you are doing well. I too take LDN and, after a few months, it helped with chronic pain (the future is less gloomy). I am looking forward to fatigue reduction. Take care and stay well during these difficult times. From Fay (a fellow hEDS, Chiari, MCAS, and POTS) xx
How r u
Does it help with yr chiari ? How long u been taking this medication
How long did it take for pain
My wife took a 1.5 dosage and woke with a fast heart rate of 175bpm.....LDN is trash be careful
@@Carlos-od7jr it's making me ache more at 4.5 but pushing threw best I can
Thank you so much for this video. I've been looking into LDN after reading about it in a RA book. I'm cautiously optimistic that it might help and your video gave me a bit more hope.
Thank you young lady for this information. I'm a great grandma and got fibromyalgia at age 30. Hopefully my Dr. will help me get this drug
Very helpful thanks. Starting now with 1mg. I have HEDS. Love to chat more about that
I recently saw a video by a doctor that uses LDN a lot in his clinical practice, and he basically said there's no magic to the 4.5 mg dose. It just happens to be kind of in the middle of the range. Based on all I've seen it is good advice to start out at a lower dose. The reason to increase is to get more benefit, but if it starts to cause harm, go back down to the previous dose. I've seen people say they are "cured" on 1.5 mg, but they're still talking about wanting to get up to the 4.5. Why? No need.
There's a Dr Younger that wants to study dextronaltrexone which is a form where you might be able to take higher doses without the side effects. This will be for people who seem to need a higher dose, but can't tolerate it.
Thank you so much for sharing 😀
My doc here in Australia has recommended this to me for Interstitial cystitis/ME/Fibro/Endometriosis. I'm nervous about insomnia side effects. I already have terrible light broken sleep and nightmares.
I hope it goes as well as possible for you, Kendall! ❤️
It's ok to experiment with taking it at different times of day, even though bed time is recommended.
How r u
Hi, I am new to this channel and read your post. I was diagnosed with interstitial cystitis fibromyalgia Severe TMJ many many years ago. I am wondering how the LDN helped you. I gave up on Dr’s a while back and I wasn’t even aware they were giving this I read it could be used but my neurologist has not heard of it being used for fibromyalgia. I also have trigeminal neuralgia from the surgery to fix the TMJ that’s actually the worst pain of all. Anyway I would love to hear your response with the IC fibromyalgia etc. thank you so much
@Emma Brent Hi thanks for replying I’m curious what kind of face pain you have? If you can tell me I’d appreciate it and what kind of diet help to reduce the pain thanks so much.
I have been ill for 30 years, the first 5 completely confined to a wheelchair. I've spent tens of thousands in different supplements trying to 'fix' myself hecause my HMO wouldn't. I saw a new doctor yesterday and it was the first time anyone ever mentioned LDN to me. He told me to go home and read about it. 🙌 I understand having a body that overreacts to everything. May I ask how often you have increased your dosage?
Their are many that also have immediate results 🌻
Oh please let that be me!! 🙏🙏🙏
I am one of those. After 1.6 years of long covid and a diagnosis of lupus I began LDN 5 days ago. I got IMMEDIATE relief with no side effects. I'm incredibly lucky and so greatful to finally be able to get back to work and get my life back
I got given 5mg and wasn't told to taper. Big mistake, felt even worse fatigue, constipation and brain fog. I've started tapering again
I’ve been on LDN at 4.5mg compounded pills for about 1 year for EDS/POTS/MCAS/Gastroparesis.
I take it in the morning because it disrupts my sleep.
Originally it was prescribed to help with pain, which it hasn’t. At all. However, I have noticed a marked improvement (from severe down to moderate most days) in my fatigue levels, brain fog, POTS symptoms, and MCAS reaction severity.
I noticed the improvement in fatigue after a couple of months. But the other improvements I didn’t notice until 6-9 months after I started taking it.
It’s certainly been immensely helpful.
I'm so glad to hear its been helpful for you!!
Some people say taking at night keeps them awake and others say the opposite. How did you find what worked? I'm about to start taking it for chronic pain.
@@savvysilvia5075 how r u
How r u now
@@santella.story.healing I'm sorry, I'm not good at finding replies on here yet. I answered somewhere else. I'm only on 2 mg in the morning. I still have most of my pain but I feel so much better mood wise I'm going to keep taking it. I got a bunch of .5mg tablets and didn't increase until all my side effects were gone. It's taken me this long to get to 2mg but I have no side effects now. I just feel better.
So glad it’s been helping you! I’ve been on it a few years as well.
did you have any sexual side effects while on LDN? Like weak orgasms/no joy, and much less sexual interest? Thank you!
Ldn & ozempic makes me not hungry at all .. I love it
You should do Dr Brooke Goldners goodbye autoimmune protocol. Life changing
The worst I ever felt in my healing was being vegan 😢😅
Hey girl, thank you so much for sharing your story :) I started LDN right around the time you did and it’s so encouraging to hear it has helped so me.
If you don’t mind, could you share some of your symptoms of adrenal insufficiency that you have had?
How u now
Naltrexone I been on it for a week 50 mg I feel sick most of time should lower my dose ,it's my first time use it ,I try to lose weight
That is a high dose…low dose
I thought this medication was used to treat addictions. My doctor wants to prescribe me for a food addiction I also have A.I.
It is! With lower doses it is used to treat many chronic conditions. :)
I started at 0.75 and in process of working up. The first dose it felt like a niacin flush- like my brain was squeezing. Only that one time though.
Seems like when I increase the dosage the dreams get weird.
LDN was quite the rage a few years ago but I don't believe it ever cured anyone.
I don't think anyone is claiming LDN is a cure, but rather that it has been helpful (in varying degrees) for a lot of people with chronic illnesses.
So what cures?
Not a cure, but helps with many symptoms.
@@dogfeliz nbprotocol.proboards.com/thread/272/modulating-micro-rna
Lol nah
Sorry you can’t sleep. I dosed up to 4.5mg over 20 days. I got nauseous and insomnia but it wore off. My crps in my feet is starting to go away and I can jog on a treadmill again!
Hi Rachael I am happy you are are recovering from your condition. I was wondering if you are taking LDN now.
In another comment she said she's not. That she doesn't need it anymore.
Where did you get the gel form of the LDN?
I have long covid for 2 years now.... I have chronic fatigue, brain fog, memory loss, skin rashes, severe chest pain etc..... I have Dr appointment this week and I hope I can get my Dr to prescribe LDN for me.... What dosage size dosage do you take? Thank you for the information......
Did your doctor prescribed it?
@@TrendyNewsByRajDubey Yes, I've been taking it for over 5 weeks now... 5 mgs LDN..... I can't say that I feel any different but I know it will take more time to see potential positive results..... 😀
I hope you continue to improve. I have been taking ldn sublingually for 3 weeks now. How long did it take to really notice a change in your overall health and wellbeing?
How r u
I just got ldn prescribed for long haul covid and chronic fatigue syndrome, brain fog, I nearly died of covid last year and suffered an ischemic stroke from the covid. I was on life support for 16 days etc. I'm excited to try this since I'm at such a low point in life quality of life wise. I'm very scared to take my first dose bc I have such bad panic attacks. It's for 1mg. Is side affects bad for this medicine? So nervous Thank you for your story and hope.
How r u doing on it?
No side effects except insomnia…I m also on it due to long Covid, took last dosage 5pm but can’t sleep
Did you people diagnosed with long Covid also have the covid jabs?
@@SnailWhales no vaxxed
@@SnailWhales You can get longhaul from the virus or jab . Me and my family have been long hauling since 2020 and we are all unvaxxed
I had the worst experience on it... I took my first dose of 1.5 a week ago and all my symptoms did come back really bad and I have not taken another dose again. I do plan to take it again but at a really low dose, I am just trying to get back to my baseline before I try. Kind of scared.
Oh no! I'm really sorry to hear that. I hope you can find something that helps! I understand the fear. That's why I started at 0.1mg, haha! ❤️️Hope you find something to help!
What symptoms did you get that scared you? I'm scared also. :(
@@savvysilvia5075 chills, a depressive episode, pain, head pressure, anxiety, insomnia…. I would just start really really low
@@deana.amlott thank you for replying Deana. I'm starting next week with .5mg. I reati badly to everything. I know this isn't the best place to chat, but how long before the bad symptons went away. House or days? Thanks
@@savvysilvia5075 for me it took a good week…. I restarted about two weeks later at about .3 and worked up to .5 but it began affecting my sleep again so stopped “for a couple of days” and have yet to restart. I think it depends on what you are taking it for. I have autoimmune issues and arthritis which it also revved the pain up there a little bit. I did have a little more energy during the day. But don’t let my experience scare you. You can always dilute your .5 down to .1 and start super low and work your way up. It’s better to do that then have a bad time like me out of the gate. This doctor also touches on that as well. vimeo.com/293553098?ref=fb-share&fbclid=IwAR2Sk0-yGnOo40KhK7e1HTA2jiL0mkEDTrFIzLj-h4CJcwLcJUi0Dz9eC_o
I just started talking 1.5. I have Addison's and EDS. I'm hoping for some relief from fatigue.
How u now
How are you now?
@@Damiengames10 It did nothing.
So pleased for you! 😀...I am in the UK and going to ask my doctor if I can try it ( not sure if he will say yes though) ..Can I ask which brand you take? Also I worry about the fillers...( I have Fibromyalgia) ...hate being in pain all the time 😣xxx
I’m also in the U.K.. I take the liquid form and it’s fantastic without heavy fillers. Did you have any luck with your Dr? Best wishes 😊
@@PandaA-cv3mm how r u now
How r u now
@@PandaA-cv3mmHow did you convince your GP to prescribe it?
Can you explain more about the adrenal issue? Was it like adrenaline rushes?
I'm very glad it worked for you & very proud of you always!
I did get it after watching your first video about it but unfortunately I couldn't tolerate even the 0.25 mg dose! I don't know why! It makes me very tired & sleepy!
I've undiagnosed autoimmune disorder & adrenal insufficiency!
I'm sending you very kind hugs! Super warrior princess! I'm keen you would post a video one day fod your complete healing ❣🙏
It takes time to get used to it
Thanks for sharing!
You are welcome!
I'm so glad for you! Does your cervical fusion helped too? What type of EDS you have? Are you still taking Lyme medication?
If you don't mind me asking, what protocols does your Lyme doctor prescribe for you? I'm curious in hearing testimonials from others dealing with this terrible disease.
I wonder if you would continue to improve even more if you increased to 3.0. Maybe not though 😊 trust your gut! I worked up to 4.5 in one month (kinda quick) but had a gut feeling that would be best for my fatigue and fibromyalgia. Best wishes ❤
Thanks Sarah! Glad its helped you! I'm actually not even on LDN anymore, as I don't need it. But I'm grateful it helped :)
@@HealingWithRachael What?! You don't need it? How is that?
@@cfoster6804 look at my recent videos. Brain rewiring and nervous system regulation has brought me the most healing. ❤️
@@HealingWithRachaelOooh! How did you rewire your brain and nervous system?
Any links? ❤️
Yes, I'm very interested in how you rewired your brain and how to do nervous system regulation
I have a good doctor, and he prescribed me LDN for my POTS/MCAS/chronic pain but I am too scared to try it. 😖 Edit: I should add I also already have vivid dreams and nightmares and restless sleep so I really don't want that to get worse.
DarkBlue Matter Hey, I’ve been on LDN for a year and I have EDS/POTS/SFN. I got very vivid dreams each time I went up a dose. For me, those dreams lasted 2 weeks but then it went away. LDN has really helped my neuropathy.
Start slow & low. I started with .5 and worked up to 4.5. It's wonderful! There are plenty of videos to show you how to compound your own. My insurance won't pay for 4.5 they will only pay for 50mg, and then it's free...go figure?
I totally understand the fear of trying it! I am super sensitive to medications and so I'm really glad I decided to start much lower than what my doctor recommended. Low and slow. I struggled with insomnia before as well--its hard to describe, but it definitely feels different on LDN. All that being said, definitely don't try it if you're not comfortable with it! Whatever it may be, I hope you find something that helps!
@@HealingWithRachael That's true, at first my doc said cut my 50 mg into fourths which would be 12.5 if you can cut it correctly. I did that, about 8 hrs later was as sick as a dog. Then I started doing my own research I started on .5
Rachael Elizabeth thank you!
Hi, I was wondering which compounding pharmacy offers the gelatin form? I cannot find one in my area. Thank you for the testimonial!
I trying to lose weight is the best thing to take if don't have a addiction,
How are you doing now my friend?
Thanks for the great information. I have POTS. Have you found that LDN helps crashes? I have terrible Exercise Intolerance and really need help.
I have a hard time getting it. I really need it and felt wonderful when on it for a year but then a turn if events led to not having refills and new docs won’t prescribe it bc they don’t know what it does.
Look up AgelessRx! It's a website that prescribes it to you. Just received my order today 👍😊
@@AutumnC22 OMG you’re a life saver! Thank you so much!
@@amber3574 Glad I could help! ❤
Me too. I went to the contrave website and got that. Wow what. Change
@ Autumn
I have been thinking of trying AgelessRX but I'm concerned that after I pay for the Dr consult that they won't prescribe it. Can you share how the process went for you, please? Maybe hearing you positive experience will motivate me to give it a go 🙂
I thank you for your time
Thanks for sharing your experience with LDN. Have you ever heard of Coimbra Protocol to treat autoimune deseases? - Best wishes
Has anyone taken LDN and then stopped? It is hard to come off of if necessary? I’ve had trouble with other drugs with that in the past! 🙏🏼❤️Tia.
I don’t take it anymore :)
Thanks la for the video. Did you notice any sexual side effects, like low libido/weak orgasms or just little pleasure? Heard it blocks endorphins, so it would make sense ..
Cant stop hearing about ldn....wondering how I can get ahold of some? Seems like it helps so many
It never helped me
AgelessRx is where I got mine from.
@@AutumnC22 what was the cost
@@lindasplaylist100 around $30 a month. Cheaper if you do the 3 month at a time subscription.
How u now
CBD works really well for sleep while on LDN :)
I know this is an old video but did LDN help with the barometric pain?. I have C4,5,6, Stenosis and Chiari Malformation and will get results of C.T. scan this week for Cervical Instability and I have Psoriatic Arthritis and all my conditions 10 times worse when wet , or stormy weather. I think it might help. x
How r u feeling I am thinking abt taking this medication did it help with yr chiari
Glad this has fast forward.
How do you get the gelatin or drops form?
Have you tried CBD Oil for the chronic Pain?
CBD and marijuana complement LDN for me they both help with pain and anxiety
Hi Rachael, Do you share anyware what type of treatment, and which doctor/practitioner you go to? Also wondering what type of adrenal insufficiency you refer to, and what the symptoms are? I have been trying to find out if I am having adrenal insuficiency as well, without luck with doctors, as I am not positive for Addison´s disease,but dealing with extreme symptoms of adrenal issues which are debilitating, and holding me to the bed. Really appreciate you sharing
Hi Racheal I know this was put out a long time ago can I ask what Country your in please? I’m in Uk & iv been prescribed 0.5mg LDN but The doctors can only get 50mg tablets any feedback would be fantastic thanks for putting this out there
You have to have them made at a compounding pharmacy. So far as I know, low dose naltrexone is not approved in any country as a standard therapy and so no pharmaceutical companies have it as part of their regular offering.
All your other afflictions, are from Lyme and/or co infection. I was completely healthy 34 yo male at the time. 1 tick bite and 10 years later, I still suffer. I am getting ready to try ldn.
What are you doing for treatment?
A strict carnivore diet / no plants GAPS has been one of the most helpful things for me so far. I’d recommend reading “Gut & Physiology Syndrome” by Dr. Natasha McBride. She addresses lyme and similar issues and why they are becoming so prevalent. I hope you find relief!
Is there a way to get this without a prescription? It’s almost impossible to find a doctor who will prescribe it
A naturopath will! :)
Have you looked into microdosing iboga?? Or psilocybin? Lots on line for research
Tysm 🥰
💚💚
Ps I just started ldn for Ms
All the best, Gary!! Hope it helps!
How did you go? 🙏
Doctor Behari invented the protocol.
are you still taking this and is it still working?
Thanks so much for sharing! I was prescribed this recently, but have been hesitant. My doctors will no longer give me tramadol (or anything stronger) They barely even want to give me Flexeril, but I need it to sleep & was denied Medical Marijuana . I have Lupus/Fibro/Endo and more... I have found that the only thing that has been helping me get thru this pain recently , is a glass or two of wine. I'm just wondering if I take the low dose naltrexone, if I will not be able to drink , as I know in higher doses it's used to treat addiction. I know most of my meds I'm not supposed to drink on, so that's not what I'm referring to lol.
So wrong that you were denied medical Marijuana with those conditions. And no help with pain. I have experienced all of those together. I feel for you. You might investigate trazodone for sleep.
@@paul2019monte Thank you
Thank you❣️ sweet vid😍..Can you take kratom with LDN?!🙄..😖.. and if you start with disulfiram (for lyme💚) can I still take LDN then?!.
Kratom is less well known over here in the US and I wouldn’t be surprised if it eventually gets regulated the way big pharmaceutical companies work here. That’s part of the reason LDN isn’t a common therapy. It’s not pushed because it doesn’t have that big of a profit margin and has to be compounded.
Hi Linda, I'm not sure if LDN is ok to take with those specific drugs. Maybe if you have a lyme doctor they could help direct you with that!
Betsy Friedrich 👋🏼😬🇸🇪.. Its not so common here in sweden either and ofc its regulated..🥴.. All thats work, you know🙄. It was more a Q if its interract bc its kind of opium/morphine like substance.. and LDN is what LDN is..soo.. LDN is mostly used in the integrative medicine here so I think its likely how you have it.. But we has no LLMD:s at all here.. we have to rely on those integrative practicioners.. Who still has their License.. Sadly very, very few😔.. Thank you any way❣️//stay safe//much Love// Linda E 🇸🇪
Rachael Elizabeth ok🥺.. NO.. Im from sweden.. so no LLMD here.. and the integrative doc that helped me is probably of with his License.. 😞.. Poor guy, work his as* off to help and say one true thing on something...swoosh.. so were that License gone🥺😡☹️ Thank you anyway❣️ //stay safe//much Love// Linda E 🇸🇪
How u bow
Anyone connecting POTS with vaccine injuries??
Definately, my daughter and I got pots after the covid vaccine
Hi Rachel, do you still take this or any medications still? Sorry if too personal, not my intentions
Not too personal at all. I don't take LDN or any medications anymore :)
@@HealingWithRachael that's wonderful!
I started at 1.12. One week later jumped to 2.25. I have felt awful the past 3 weeks. I swear it is making me worse. I have had so much nausea and migraine and insomnia but I can't tell if it is coincidence or not so idk if I should quit. It helped me in the past. Should I start over at a smaller dose? Is there any benefit to using the gel?
How did it work out for you? Did you continue and improve?
@@AlexSelf-Help yes. I actually do best at only 1mg!
@@emilye709 thanks, in the beginning I did as well perfect on 1-2mg. But effect faded after weeks, so now on 4mg to get the same benefits….good luck!
@alexanderpriv Interesting. I originally went up to 3mg and was on that for 2 or so yrs. I stopped taking it because I was doing well and then had a relapse months later. This time, every time I try to go up I feel horrible, so finally, I figured since I felt good when I first started, I'd just go down instead of up. Been on the 1mg since sep now, and it's working. Good to know that if it stops I can try increasing again.