Hi Michael, thank you for your comment. We know that access to PERT is incredibly important for people affected by pancreatic cancer, crucial to managing symptoms and maintaining a good quality of life. We also know that having trouble accessing PERT is incredibly stressful and worrying. We're working hard to ensure key stakeholders are treating PERT supply issues as a priority and taking urgent action to address the situation. We have met with the UK Government Department of Health and Social Care, as well as the main PERT supplier to discuss the supply issues and understand what plans are in place to address these. We will continue to raise this with whoever forms the next government. We are working with relevant stakeholders including specialist health professionals and other patient charities to develop guidance and information around PERT supply issues. We have information to support patients who are experiencing problems, on our website. You can also contact our specialist nurses on the Support Line for information and support if you are running low on PERT. We can help with managing symptoms linked to a lack of enzymes. Please be aware though that we can’t help you access PERT - we can only provide information. In the longer team, we are also starting to look at how research may help us to find alternative ways to make PERT. We hope this helps! If you need any support, you can reach our specialist nurses on freephone 0808 801 0707. 💜
So sorry to hear of your Dad's diagnosis. Our specialist nurses are free to call on 0808 801 0707; they can provide guidance, advice, emotional support or whatever you and your loved ones need at this time. 💜
Thank you so much.
Informative video; thank you. Please can you do something to help address the chronic shortage of Creon in our pharmacies.
Hi Michael, thank you for your comment. We know that access to PERT is incredibly important for people affected by pancreatic cancer, crucial to managing symptoms and maintaining a good quality of life. We also know that having trouble accessing PERT is incredibly stressful and worrying. We're working hard to ensure key stakeholders are treating PERT supply issues as a priority and taking urgent action to address the situation.
We have met with the UK Government Department of Health and Social Care, as well as the main PERT supplier to discuss the supply issues and understand what plans are in place to address these. We will continue to raise this with whoever forms the next government.
We are working with relevant stakeholders including specialist health professionals and other patient charities to develop guidance and information around PERT supply issues.
We have information to support patients who are experiencing problems, on our website. You can also contact our specialist nurses on the Support Line for information and support if you are running low on PERT. We can help with managing symptoms linked to a lack of enzymes. Please be aware though that we can’t help you access PERT - we can only provide information.
In the longer team, we are also starting to look at how research may help us to find alternative ways to make PERT.
We hope this helps! If you need any support, you can reach our specialist nurses on freephone 0808 801 0707. 💜
How can we connect with you, my dad has pancreatic cancer mets to the liver pls help
So sorry to hear of your Dad's diagnosis. Our specialist nurses are free to call on 0808 801 0707; they can provide guidance, advice, emotional support or whatever you and your loved ones need at this time. 💜