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Hi Poppy, thank you for your comment. The effectiveness of chemotherapy can vary from person to person and is influenced by factors such as an individual's overall health and fitness before starting treatment, as well as their response to the treatment. You can find out more about this here: bit.ly/3BRckOE. Or you can call our nurses for free on 0808 801 0707, email nurse@pancreaticcancer.org.uk or visit: bit.ly/3v4PFZk to find out more. Take care. 💜

We are sorry to hear you have pancreatic cancer and that your Creon supply does not seem to be helping you. We recommend talking to your GP or getting in touch with our specialists nurses on our support line. They can answer your questions, offer emotional support and provide practical advice. You can call the nurses for free on 0808 801 0707, email nurse@pancreaticcancer.org.uk or visit: bit.ly/3v4PFZk to find out more. Take care. 💜

Thank you for your comment. Researchers think that smoking causes more than one in five pancreatic cancers (22%) in the UK. Your risk of pancreatic cancer increases the more you smoke, and the longer you have smoked. We are glad to hear you are aware of this risk and that you're taking steps to change this. You can learn more about risk factors here: bit.ly/48r8E1P. Take care 💜

I smoked most of my life and got pancreatic cancer 17 yrs ago! I had the Distal operation and I am doing fairly!

Hi Anthony, we don’t fully understand exactly what causes pancreatic cancer, but we do know some risk factors. A risk factor is anything that increases your chances of getting a disease. You can read more about these here: bit.ly/48r8E1P. Please let us know if you have any more questions.

Hi Vicki, we're sorry your friend had pancreatic cancer but glad to hear they were eligible for surgery and are still with us 18 years on. Sending well wishes to you both 💜

We're so sorry to hear about your grandmother stage for pancreatic cancer diagnosis, Curtis. Our specialist nurses run a support line for people affected by pancreatic cancer, where they can answer your questions, recommend practical steps and provide the emotional support the person diagnosed, and their loved ones need. You can call the nurses for free on 0808 801 0707, email nurse@pancreaticcancer.org.uk or visit: bit.ly/3v4PFZk to find out more. Take care. 💜

Praying my mums has spread to lungs 😢

Thank you!

We are so sorry to hear about your pancreatic cancer diagnosis, and that this was misdiagnosed before you needed critical care. We have a support line that can offer you emotional support and practical advice during this time. Please call 0808 801 0707. Take care. Lisa

Thank you for your kind words. 💜

Hello Steve, we're incredibly sorry to hear you have received a terminal diagnosis of pancreatic cancer. However, it is good to hear you have been able to access Creon and that it is working well for you. Have you been in touch with our specialist nurses on our support line? They can offer practical advice and support, to you and your loved ones if needed. Please get in touch for free on 0808 801 0707. Take care. 💜

@PancreaticCancerUK Thank you. I will do. I'm currently undergoing palliative care at a hospice in London, however, as my abdominal and back pain is nearing controllable (after one month), the doctors are hoping to refer me to either a care home or supported accommodation. I'm very mobile, still have a good appetite. I was emergency repatriated by the British Embassy/Home Office after I got trapped in rural Cambodia. I will contact you either by phone or website soon. Much Appreciated.

@@Steveinthailand It's good to hear you aren't having any mobility issues and that you've still got your appetite. Fingers crossed you can soon leave the hospice and move to more suitable accommodation back in the UK. We look forward to hearing from you. Take care, Steve. 💜

Thank you! 💜

So sorry to hear of your Dad's diagnosis. Our specialist nurses are free to call on 0808 801 0707; they can provide guidance, advice, emotional support or whatever you and your loved ones need at this time. 💜

Porcine pig source of PERT enzymes contains alpha gal protein, which many people have allergy to alpha gal ..

I'm going speak to Mylan Viatris abt Gal Safe Porcine PERT production

So sorry to hear of the loss of your mom. If it helps, we have information on coping with loss from pancreatic cancer here: bit.ly/pccopingwithloss and have an online discussion forum that is always open should you need it: bit.ly/3X86hvP. Take care 💜

So sorry to hear of the loss of your mom. If it helps, we have information on coping with loss from pancreatic cancer here: bit.ly/pccopingwithloss and have an online discussion forum that is always open should you need it: bit.ly/3X86hvP - Lisa

If you make it to 70 you’ve won the game, a lot of people don’t make it that far.

@@lisamccullough5150 I know my 15 year old daughter was killed by a drunk driver in 06

My friend's mom (aged 57) is SERIOUSLY ILL, but the doctors are NOT telling us WTF it is, cuz they don't have enough 'conclusive evidence' to diagnose/prognose her. Basically just telling LIES, and NOT being honest about her illness. Well, she is put on MORPHINE now and I seriously doubt that could be a sign of anything good. She feels INTENSE PAIN in her spine, that spreads all the way to her hands/feet. When she sits down to eat, she has NO appetite and also feels pain in her throat and stomach. Her skin is all blackened from the side-effects of Morphine (multiple doses per day), and she needs help moving around cuz her legs are WEAK. It's been like 90+ degrees lately, and she is all bundled/covered up in heavy winter clothes and CAN'T leave the house. At this rate, I don't think she's gonna last very long. I've asked various people (pharmacists and herbalists), and most of them told me it could be some form of TERMINAL CANCER. What do YOU think it might be?

​@@OtomoTenzi WOW! TELL THEM YOU WANT ALL INFORMATION OR THREATEN SECOND OPPENION OR LAWYER!

Hi Marie, Thank you for your question. Pancreatic cancer can cause diarrhoea (runny poo) and constipation (when you find it harder to poo). If you have diarrhoea for more than 7 days and you don’t know why, contact your GP or call NHS 111. Your GP may do blood and poo tests. If you have lost weight and have diarrhoea or constipation, your GP should refer you for an urgent scan. Pancreatic cancer can also cause pale, oily poo. This is called steatorrhoea. Poo may be pale, oily, smell worse than normal, and be difficult to flush down the toilet. This is caused by fat in the poo. It happens if pancreatic cancer has affected your digestion, so that fat in your food isn’t digested properly. Hope this helps! - Ruth

I'm so sorry to hear this, Tom. Sending you all lots of love. 💜

How old?

🙏

I prayed

He passed away yesterday.

🙏🏽

Thank you Molly, we're glad to hear it was helpful!

So sorry to hear of the loss of your husband, especially so soon after diagnosis. Sending you love, take care. 💜

@@PancreaticCancerUK I plan to use my platform to raise awareness.

Hello, thank you for your comment. Please get in touch with our Specialist Nurses on (freephone) 0808 801 0707 who would be happy to help you with your enzyme dosages. Thank you.

Hi Michael, thank you for your comment. We know that access to PERT is incredibly important for people affected by pancreatic cancer, crucial to managing symptoms and maintaining a good quality of life. We also know that having trouble accessing PERT is incredibly stressful and worrying. We're working hard to ensure key stakeholders are treating PERT supply issues as a priority and taking urgent action to address the situation. We have met with the UK Government Department of Health and Social Care, as well as the main PERT supplier to discuss the supply issues and understand what plans are in place to address these. We will continue to raise this with whoever forms the next government. We are working with relevant stakeholders including specialist health professionals and other patient charities to develop guidance and information around PERT supply issues. We have information to support patients who are experiencing problems, on our website. You can also contact our specialist nurses on the Support Line for information and support if you are running low on PERT. We can help with managing symptoms linked to a lack of enzymes. Please be aware though that we can’t help you access PERT - we can only provide information. In the longer team, we are also starting to look at how research may help us to find alternative ways to make PERT. We hope this helps! If you need any support, you can reach our specialist nurses on freephone 0808 801 0707. 💜