I’m on the milder end with the work and crash version being most prevalent for me. I don’t get to do much else. I hate the days when I suddenly can’t think, can’t see well, can’t tolerate light, sound or anything touching my skin. It could be one thing or all of them. I’m always in pain, but sometimes I can manage that better than at other times, and I use time as a measure because it is moment to moment on some days. I remember seeing Unrest for the first time, and crying because M.E. was me, and I was so thankful to know that I wasn’t crazy.
I wondered how you were doing and so happy to have found this update. Ren Gill is in your documentary “Unrest” and is doing better. He is currently getting treatment in Cananda. He was eventually diagnosed with Lyme disease. He just released his album Sick Boi which has blown up online and got the #1 album of the year in the UK. I wonder if you have kept up with him over the years. His music is so relatable especially if you suffer from chronic illness, mental illness, etc.
I had lyme as well, osha root, fringed sage, and lomatium root cured me after the doxycline and buhner's protocol failed. I had mercury poisoning and emeramide cured me. I had c. diff and oregon grape root cured me. I had covid multiple times including the two times i had the cytokine storm and gumweed leaf, zinc, and white horehound cured me. I look forward to the host blocking this comment as she did on twitter to me before.
When I go to doctor its after I recover from a flare up When got flare up I cant even leave my house so doctor not going seem me when am at my worse it so so frustrating that why Long Covid programs have been such a scam in helping their patient or document a patient complaints or putting in our charts even the disgnosis of long covid it was incredibly frustrating so glad for talks like this
Jen was so right to describe sensory processing issues. The whole illness is understudied, but this area has been extra neglected. I have sensory storms...outside of general light and sound sensitivity.
I had sensory processing disorder from.birth undiagnosed then with a trigger CFS fybromyalgia genes hypomobility heds and now diagnosed autism ADHD as it's comorbid 80 percent
Jenn Brea has done a wonderful job giving ME/CFS legitimacy by explaining what people go through with ME/CFS - very difficult to do WHILE suffering with the illness. However, I sense she might, as a high acheiver, be putting a lot of pressure on herself to "fully recover" from an illness very few if any, truly recover from. Exposing the reality of the illness is a HUGE benefit to those with the illness. Giving the impression the condition can be fully cured in a significant proportion of patients, if in fact recovery is rare, might put most ME/CFS patients right back into the situation where they are blamed for the persistence of their illness. I would LOVE if Jenn and all other ME/CFS patients were totally cured, however so far I observe very few recovering, a quite a few claiming to be cured returning a year later with ME/CFS.
So glad that you feel so much better now, Jennifer, after all you went through! You are a brave individual that also helps so many other people with same or similar issues.
I will be 66 soon and my life is ruined. My first symptoms started after a car crash in 1998. It has been a steady decline but much worse with my aging process and degenerative spine disease.
I am so glad she also did mention post-covid after a certain medical intervention given over the last few years, unfortunately, this has been seen in me./cfs too its just not talked about. I have met more than a few m.e. patients who got m.e. after some type of va........ this was over 20 years ago
I am so happy to see Jen doing well. Raelan Agle another lady who cured her ME and created a channel about different recovery stories from people all over the world. It is very informative and gives the latest updates on all of the differrent modalities that are now being used to help people recover from ME/CFS.
I think it can be triggered by menopause - my fibromyalgia/insomnia (I've also had POTS). I am going to try estradiol patches as soon as I can get an appointment with an obgyn nurse practitioner. The only one in this area has a waiting list.
My CFS became so strange after the first 5 years, I had a considerable disruption of my normal life then I started to have neurological decline, then problems retaining water, cysts etc, hypersensitivity crisis where I had to leave one room after another, this then later turned into multiple chemical sensitivity, mold hypersensitivity, food sensitivity / flushing, weird reactions to traffic fumes, pollen season etc, then SIBO and food intolerances / reactions, later figured out part of this was thiamine deficiency aka beri beri. I'm using bioresonance and frequency treatment now because my situation is too complicated and doctors have never been any help.
Pls put the medical terms on the screen when speaker says them. It helps ppl understand if they didnt understand the word but they could also look it up because the spelling it on the screen.
@@maryr7593 yeah have you got Autism diagnosis didn't no I had it until last year son's now diagnosed to and lost my mum last year to severe ms obvously autism heds to my father has CFS to obvously adhd
Feldenkrais Method calls for giving LESS effort with each repetition, and can be done alone lying in a bed and even without moving at all, which makes it a nice therapy for ME/CFS folks with limited energy and limited time standing each day. I highly recommend this therapy - have not seen it cure this illness but I have see many amazing and permanent positive changes in myself and others.
Pretty sure they found some cervical instability so she had spinal surgery… don’t quote me on that. And she’s had a big improvement. I’m happy for her, and it’s a win for us! She’s a great educator.
@@sea_hous I read about surgeries . I don’t get why that would do it . ? Had long Covid , took me a year & half to get better . This surgery isn’t anything to do with cells & and other biological factors . It’s not even neurology, it’s orthopaedic surgery. I’m convinced This was psychological I got better telling myself /brain a different story to the one my body wanted to do . It took time but I got there .
I would take it with a grain of salt. There was a part of her movie where she had a mild improvement only to crash again. Maybe that’s what they’re talking about.
In my case was not vírus was ondas eletromagneticas 5 G tecnology is Very cruel thanks you a Lot for the movie ☺️ I try tô brief cells.😔thanks from Brasil IM happy tô see you great and strong🥰
I wish she would slow down a bit and speak words more clearly, especially words that may be unfamiliar- medical terminology. She is presumably speaking to people who do have brain fog and it would help if she remembers that. They also don't have the energy or patience to continually re-listen to various words and statements.
She isn’t completely recovered, I wouldn’t be surprised if she still has word finding issues. I’m kinda surprised someone would make this criticism considering the topic. But I think she’s doing great.
I think they’re referring to it as “in remission “ Because there’s improvement but its not guaranteed to last. I don’t know much about it. But it seems like really good news.
It’s great to see you doing so well Jennifer, it gives the rest of us hope. Thank you for continuing to speak for us.
So happy to see her being a lot better. I am so glad that she is raising awareness to that horrible illness!
I’m on the milder end with the work and crash version being most prevalent for me. I don’t get to do much else. I hate the days when I suddenly can’t think, can’t see well, can’t tolerate light, sound or anything touching my skin. It could be one thing or all of them. I’m always in pain, but sometimes I can manage that better than at other times, and I use time as a measure because it is moment to moment on some days. I remember seeing Unrest for the first time, and crying because M.E. was me, and I was so thankful to know that I wasn’t crazy.
Any hypomobility? Also have you had sensory processing disorder prior
I wondered how you were doing and so happy to have found this update.
Ren Gill is in your documentary “Unrest” and is doing better. He is currently getting treatment in Cananda. He was eventually diagnosed with Lyme disease. He just released his album Sick Boi which has blown up online and got the #1 album of the year in the UK. I wonder if you have kept up with him over the years. His music is so relatable especially if you suffer from chronic illness, mental illness, etc.
I had lyme as well, osha root, fringed sage, and lomatium root cured me after the doxycline and buhner's protocol failed. I had mercury poisoning and emeramide cured me. I had c. diff and oregon grape root cured me. I had covid multiple times including the two times i had the cytokine storm and gumweed leaf, zinc, and white horehound cured me. I look forward to the host blocking this comment as she did on twitter to me before.
Careful with chronic Lyme narrative: pubmed.ncbi.nlm.nih.gov/30685081/
Great...where in Canada?
When I go to doctor its after I recover from a flare up
When got flare up I cant even leave my house so doctor not going seem me when am at my worse it so so frustrating that why Long Covid programs have been such a scam in helping their patient or document a patient complaints or putting in our charts even the disgnosis of long covid it was incredibly frustrating so glad for talks like this
Jen was so right to describe sensory processing issues. The whole illness is understudied, but this area has been extra neglected. I have sensory storms...outside of general light and sound sensitivity.
I had sensory processing disorder from.birth undiagnosed then with a trigger CFS fybromyalgia genes hypomobility heds and now diagnosed autism ADHD as it's comorbid 80 percent
Jennifer save us all please 🙏🏻
timestamps will go a long way for these podcasts
That would be great! 👍
Definitely timestamps needed
At 1:01:37 she explain how she recovery from Me Cfs
Thank you very much 🙏
Thank You!!
Thank you so much
Thank you
Cranial instability can cause symptoms related to ME/CFS....wow.
Jenn Brea has done a wonderful job giving ME/CFS legitimacy by explaining what people go through with ME/CFS - very difficult to do WHILE suffering with the illness. However, I sense she might, as a high acheiver, be putting a lot of pressure on herself to "fully recover" from an illness very few if any, truly recover from. Exposing the reality of the illness is a HUGE benefit to those with the illness. Giving the impression the condition can be fully cured in a significant proportion of patients, if in fact recovery is rare, might put most ME/CFS patients right back into the situation where they are blamed for the persistence of their illness. I would LOVE if Jenn and all other ME/CFS patients were totally cured, however so far I observe very few recovering, a quite a few claiming to be cured returning a year later with ME/CFS.
So glad that you feel so much better now, Jennifer, after all you went through! You are a brave individual that also helps so many other people with same or similar issues.
Nice to see Jen healthy again. Gives me hope
Thank you very much for your video. From a Japanese old man. Now I feel like everything has come true.
Where can we find the framework with the buffet ???
I saw “unrest” years ago and wondered about you. Good to hear you’re better!
I will be 66 soon and my life is ruined. My first symptoms started after a car crash in 1998. It has been a steady decline but much worse with my aging process and degenerative spine disease.
So good to see you well ❤❤❤😊
At the last 10 minutes of the video, she speeks about her live now, after Me- Cfs
Jen you look and sound fantastic! So great to hear from you ❤
Where can we find the sepcard?
I am so glad she also did mention post-covid after a certain medical intervention given over the last few years, unfortunately, this has been seen in me./cfs too its just not talked about. I have met more than a few m.e. patients who got m.e. after some type of va........ this was over 20 years ago
Looking forward to your next documentary, Jennifer Brea. 🌳
I am so happy to see Jen doing well. Raelan Agle another lady who cured her ME and created a channel about different recovery stories from people
all over the world. It is very informative and gives the latest updates on all of the differrent modalities that are now being used to help people recover
from ME/CFS.
I think it can be triggered by menopause - my fibromyalgia/insomnia (I've also had POTS). I am going to try estradiol patches as soon as I can get an appointment with an obgyn nurse practitioner. The only one in this area has a waiting list.
My CFS became so strange after the first 5 years, I had a considerable disruption of my normal life then I started to have neurological decline, then problems retaining water, cysts etc, hypersensitivity crisis where I had to leave one room after another, this then later turned into multiple chemical sensitivity, mold hypersensitivity, food sensitivity / flushing, weird reactions to traffic fumes, pollen season etc, then SIBO and food intolerances / reactions, later figured out part of this was thiamine deficiency aka beri beri. I'm using bioresonance and frequency treatment now because my situation is too complicated and doctors have never been any help.
Do you have MCAS?
@@DonnaandRhondasurely is mcas mcas linked
@@DonnaandRhondasounds like it
Thanks jen
good podcast thank you !!!!
One very complex condition....ME/CFS
Pls put the medical terms on the screen when speaker says them. It helps ppl understand if they didnt understand the word but they could also look it up because the spelling it on the screen.
Captions can sometimes (but not always) help.
It is sad how much of a batlle this has to be.
At minute 44:00 she say that not eat for a while she helps, and she can walk for a jear but then this stops to work
This is 3 years I have been really sick 2 days after my second vac physer I feel worse now
Found out related to asperger's ADHD.heds ancestry so true
Hypermobile spectrum disorder too
@@maryr7593 yeah have you got Autism diagnosis didn't no I had it until last year son's now diagnosed to and lost my mum last year to severe ms obvously autism heds to my father has CFS to obvously adhd
@@maryr7593are you any better
Increased use of quaternary ammonium compounds during COVID could be a factor. They affect mitochondria.
Gel? Well I've had CFS prior but with OCD years ago I used alot but not in covid covid didn't concern me
I have ME/CFS and find Feldenkrais really helpful.
Feldenkrais Method calls for giving LESS effort with each repetition, and can be done alone lying in a bed and even without moving at all, which makes it a nice therapy for ME/CFS folks with limited energy and limited time standing each day. I highly recommend this therapy - have not seen it cure this illness but I have see many amazing and permanent positive changes in myself and others.
How did it help you and how did you do the lessons?
@@paulmaurer294 Me too Paul!!
What kind of surgeries did she have?
Pretty sure they found some cervical instability so she had spinal surgery… don’t quote me on that. And she’s had a big improvement. I’m happy for her, and it’s a win for us! She’s a great educator.
@@Miss_Distressshe had the froze surgery I have heds but not had any operations
Did her and Omar split?
What makes you think that
Is this recent?
?
She said midst of the pandemic.
How did she recover, she doesn’t explain that would be helpful
@@Ladybird22373
Yes she does. Watch till the end.
@@sea_hous I read about surgeries . I don’t get why that would do it . ?
Had long Covid , took me a year & half to get better . This surgery isn’t anything to do with cells & and other biological factors . It’s not even neurology, it’s orthopaedic surgery.
I’m convinced This was psychological
I got better telling myself /brain a different story to the one my body wanted to do . It took time but I got there .
Traducir al español !!!!!! 40:06
Coloque os pés descalços na terra o quanto puder ... Contato com a natureza ajuda muito... ❤🙏
Jennifer, did you ever try D-Ribose?
You will get more power but it will not heal you.
@@sebimmbastithat's true
Does she have heds?
Concussion I one illness that the NOw take very very serious in the rest factor
I heard she relapsed after recovery.
Do you know if this is documented anywhere?
People keep saying this but ive never seen any article or blog she made saying such a thing happened
@@mariasperduti5316 don't remember where i read this.
I would take it with a grain of salt. There was a part of her movie where she had a mild improvement only to crash again. Maybe that’s what they’re talking about.
This unbelievable disease has ruined my life. Any ideas on how to help myself is necessary because I have no support.
In my case was not vírus was ondas eletromagneticas 5 G tecnology is Very cruel thanks you a Lot for the movie ☺️ I try tô brief cells.😔thanks from Brasil IM happy tô see you great and strong🥰
Looks like the AHS has been destroyed from the inside.
I wish she would slow down a bit and speak words more clearly, especially words that may be unfamiliar- medical terminology. She is presumably speaking to people who do have brain fog and it would help if she remembers that. They also don't have the energy or patience to continually re-listen to various words and statements.
Exactly
You can just watch in 0.75 speed or 0.5
Masks for COVID? Lol! You lost me.
There are so many CFS recovery programs out there. You don’t need to suffer with this?
DNRS - Gupta - Miguel from CFS Recovery, etc.
Exactly !! Search for CFS recovery stories - there are so many and a lot of proof that our nervous system can come back into balance👌👌
She’s says “UM” too much for someone who is a public speaker.
She isn’t completely recovered, I wouldn’t be surprised if she still has word finding issues. I’m kinda surprised someone would make this criticism considering the topic. But I think she’s doing great.
When was this ? Is Jen all healed ?
It seems like she is
I think they’re referring to it as “in remission “ Because there’s improvement but its not guaranteed to last. I don’t know much about it. But it seems like really good news.