My Recovery from Blepharospasm and Meige Syndrome

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  • เผยแพร่เมื่อ 30 ก.ย. 2024
  • This video is about my use of Neuroplasticity to recover from Blepharospasm and Meige Syndrome through hard work and the help of Dr. Joaquin Farias.
    Link to Dr. Farias:
    www.fariastech...
    Link to my story and ongoing diary which describes my symptoms and strategies for recovery:
    dougpatt.com/m...
    Link to Facebook group, Neuroplasticity Therapy for Blepharospasm, which has been great support:
    / 1425592381040551

ความคิดเห็น • 237

  • @GS-ff5dd
    @GS-ff5dd 2 ปีที่แล้ว +8

    A million thank you for making this video and giving us the link to Dr. Farias. I have been receiving botox injections for years but my life is still limited by this condition- Facial Dystonia. this gives us hope

  • @JohnFisk-OHS-78
    @JohnFisk-OHS-78 4 ปีที่แล้ว +42

    Doug, I've got Meige Syndrome which, like you, came on in mid-life. I've had serious symptoms for well in excess of a decade with milder symptoms for a few years before that. I was at the point of being functionally blind before I was able to convince my primary care physician that what I was experiencing was real. Pointedly, I'm a physician. I work as a senior attending pathologist and spend 8-10 hours a day at a microscope reviewing cases. This threatened my ability to practice. About a decade ago, I self diagnosed and got myself referred to a neurologist who confirmed my suspicion and referred me to a very talented ophthalmologist for treatment. I get Botox injections every 13 weeks to help manage the blepherospasm. I just live with the oromandibular dystonia. I cannot smile. I haven't been been able to smile in over a decade. When I try, all that happens is a grotesque grimace that frightens people. I've just stopped trying. Every year or two I would do a Pubmed search and see if anything new has been reported. It's quite a rare disease, as you're aware. Amazingly, your TH-cam video is the first I've heard of anything that approximates treatment with the hope of cure, rather than just managing symptoms. I'm indebted to you. Congratulations on your obvious improvement in symptoms - I understand the work involved. I plan to get in touch with Dr. Farias. Best wishes, John

    • @howtoarchitect
      @howtoarchitect  4 ปีที่แล้ว +6

      Hi John. What a moving note! I'm so glad you found the video. For starters, the doctor's 4 day seminar is the way to go. I'm not sure how he's doing things with COVID right now so hang tight if dates are on hold. I visited Toronto for a seminar and even though I was nearly asymptomatic at the time just being there for his discussion with others was incredibly valuable long term. There were some really miraculous (and I don't use that term lightly) things that happened with his patients when I was there. I am not a member of his online group but I'm certain it has a lot to offer. The Facebook group Neuroplasticity therapy for Blepharospasm also has lots of great resources and regulars always ready to listen and help. Also, make sure you read through my diary (link in the description box below the video) for some surely helpful insights. Also of note. My father could never smile. My mother used to tease him about this years before his diagnosis with Meige. His dystonia came on in his early 50's (mine late 40's). This condition is slippery. We can anticipate symptoms, but we can never really forecast severity. We can have good days and awful. However, with hard work, Neuroplasticity is an incredibly fruitful route. I am virtually symptom free at times and every day a little better still. It's a daily battle. You're welcome to contact me (contact on dougpatt.com if not YT) if you'd ever like to talk. I wish you all the best and thanks again for your thoughtful and well written note.

    • @andyrojas9387
      @andyrojas9387 2 ปีที่แล้ว

      @@howtoarchitect, i have orbicular dystonia, it is very painful,

    • @headtrips1
      @headtrips1 11 หลายเดือนก่อน +2

      How are you doing now?

  • @jpmoench21
    @jpmoench21 4 ปีที่แล้ว +14

    Dang Doug! Glad to hear you're doing a lot better. I started watching your videos back in 2010ish. While I didn't become an architect, I did get a degree in architectural engineering with an emphasis in electrical. I've been working at an electrical engineer for the past 4 years. Your videos inspired me all those years ago to better myself. God bless you.

  • @Yaralla46
    @Yaralla46 4 ปีที่แล้ว +7

    I've just watched your video on Dr Farias' Dystonia Recovery website. I too have BEB and I look forward to reading about your journey towards recovery. Thank you so much for posting!

  • @MsBattikha
    @MsBattikha 4 ปีที่แล้ว +7

    I admire your strength and persistence. Thank you for sharing. Stay amazing.

  • @HuntedGamerFilms
    @HuntedGamerFilms 2 ปีที่แล้ว +3

    I have the same thing but I feel the irritation under my eye instead of behind. Hoping to get better

  • @ATLTraveler
    @ATLTraveler ปีที่แล้ว +7

    My dad also had blepharospam, it was so bad he almost had to retire because he couldn't keep his eyes open to see. Luckily botox worked wonders for him and he's completely fine now.

    • @lokeshsanka2228
      @lokeshsanka2228 ปีที่แล้ว +3

      My father has the same condition, he has been going through this, past 6-7 years, He had diagnosed with botox injections but it is only effective for hardly 3-4 months. At first, to be honest, after so much of research and consulting n number of doctors finally they have concluded that this condition is called Bhlepharospasm. It is extremely rare atleast in the area where we live (Andhra Pradesh, India) so obviously, even for the doctor's, it is very rare to treat these condition, they have struggled alot at first. It is really important to educate and share the knowledge you know as it helps other patients in one or other way like this gentleman did a video on it. The main problem of this particular condition is, it is a serious condition and there is no permanent cure for it. Every person or a relative of the patient needs to open up on this atleast to propagate some knowledge about this. Strength to all.

    • @shwetaverma9761
      @shwetaverma9761 10 หลายเดือนก่อน

      Hey help me plz my father is also suffering frm blepharospasm 😢

    • @ATLTraveler
      @ATLTraveler 10 หลายเดือนก่อน

      @@shwetaverma9761 Botox is the only thing he can try that isn’t invasive.

  • @meghanmacklin8234
    @meghanmacklin8234 2 ปีที่แล้ว +1

    I have been suffering with this syndrome and diagnosed by two doctors for 5 years I cannot get an answer it's the ability and it's ruining my life please can you reach out to me and help me with the techniques that you used to get better because it's so painful the blepher spasms and now it's going into the neck and my face and jaw

  • @hkaufman007
    @hkaufman007 2 ปีที่แล้ว +2

    Hi Doug. Is there any way I could talk to you one evening about my eyes! I’ve been suffering for about 6 years

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      sure. send me a note through the email at the end of my diary (link in description box) and we can connect. best, Doug.

  • @RachelBalunsat
    @RachelBalunsat 2 ปีที่แล้ว +4

    Thank you Sooo much for making this video! I’ve been praying for this for years! I believe in recovery!🙏🏽💖 yay❣️

  • @MrLelopes
    @MrLelopes 4 ปีที่แล้ว +5

    I didn't know you were facing such struggle. Thanks for all you efforts enlightening architects all around the globe. I know I love your content. It is really smooth and pleasuring. I love to know that you are getting better.

  • @jesusisthetruth8297
    @jesusisthetruth8297 2 ปีที่แล้ว +2

    GOD LOVES YOU🌟🔥❤

  • @suerogers-zimmerman2422
    @suerogers-zimmerman2422 ปีที่แล้ว +3

    Hi Doug, I have been diagnosed with blepharospasm and now mesh syndrome for five years. Up until the time I was diagnosed I was very active and still working as a therapist even though I’m 75 years old blepharospasm has greatly limited my life the pain is sometimes and unbearable. The only relief I have is when I am resting my eyes or sleeping. And because of all the tension in my face, I feel very tired most of the time. The Botox does help many people but it has really not helped me at all and I feel at my wits end . I had been thinking of going and taking the four day class with Dr. Farias. And since I happen to be on your TH-cam presentation, I’m beginning to think that that would be very helpful .Thank you so much for sharing your story.
    Valinda Zimmerman Tx

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      It was a game changer. I highly recommend the seminar. Thanks for the note and all the best!

  • @ABB14-11
    @ABB14-11 2 ปีที่แล้ว +3

    Damn, I just found your videos and it turns out you're going through this illness. I pray for your recovery and healing good sir.

  • @ChinqMiau1
    @ChinqMiau1 4 ปีที่แล้ว +4

    Fascinating therapy and idea behind it. Glad you’re doing well, I’m sure it’s a lot of work and effort. Good luck! 💪

  • @carlenedouglas9412
    @carlenedouglas9412 2 ปีที่แล้ว +1

    Hi..i have the same problem but you not . Say who.and how 🤔

  • @hudspace
    @hudspace 2 ปีที่แล้ว +2

    Doug thanks for making this video. It’s very encouraging to say the least. I don’t think you mentioned, had you tried any other treatments before you discovered Dr. Farias? Botox, for instance?

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Hello Brian. I found Dr. Farias before my symptoms were pronounced so there was really no need at the time. A couple years later once my symptoms had become too severe to hide I did try botox twice. It just wasn't for me. As antithetical as it sounds, it took away the control I was learning to harness with neuroplasticity. Thanks for the note.

  • @deasysukarno7233
    @deasysukarno7233 2 ปีที่แล้ว +1

    Hi..nice to meet you.
    Please explain your neuroplasticity treatment?Is it with Transcranial magnetic stimulation?thx

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Hi Deasy. No. Best to read my diary for answers to your question and find Dr. Farias online here: www.fariastechnique.com/joaquin-farias. Diary found here: dougpatt.com/my-recovery-from-blepharospasm-and-meige-syndrome/. I wish you all the best:)

  • @yorchlopezguitarman
    @yorchlopezguitarman 2 ปีที่แล้ว +1

    Thanks because in 2008 I learned everything about you

  • @meghanmacklin8234
    @meghanmacklin8234 2 ปีที่แล้ว +1

    I have video footage it is so hard like you said to even walk through my house I try to press through life and be a survivor but this disease is very unknown and rare this disorder I cannot find an answer from doctors in my area it just keep giving me medicine I'm going to give me BOTOX for two weeks every two weeks for the rest of my life I can't imagine needles in my face there has to be another answer please reach out to me thank you

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Hi Meghan. I'm so sorry you're having such a challenging time. I might recommend reading my diary. The link is in the description box below my recovery video - dougpatt.com/my-recovery-from-blepharospasm-and-meige-syndrome/. I would also follow the various links to the Facebook Neuroplasticity Therapy for Blepharospasm group and Dr. Farias live Semiar which was incredibly helpful for me. If you are interested in using neuroplasticity as a path toward healing these are all a great start. I wish you all the best. Hang in there:)

  • @mariatalbot2723
    @mariatalbot2723 ปีที่แล้ว +1

    Hello Doug I have been experiencing similar symptoms with my eyelids and face around the eyes. My eyelids will close uncontrollably and I have small facial tics as well. I have seen a lid specialist and a cornea specialist but they were treating me for dry eye with no results. Is there and exercise or therapy you can recommend?

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      Hello Maria. I'm so sorry to hear that. I can recommend the links in my video description box. I've copied them here too. If you've got BEB (A sure way to be diagnosed is a neurologist.), Dr. Farias is a wonderful resource for alternative therapy. I would also recommend reading my diary which describes my journey and various strategies I used to overcome challenges. The Facebook group is also a wonderful means of support and information. Stay in touch and I wish you all the best:) Hang in there.
      Link to Dr. Farias:
      www.fariastechnique.com/joaquin-farias
      Link to my story and ongoing diary which describes my symptoms and strategies for recovery:
      dougpatt.com/my-recovery-from-blepharospasm-and-meige-syndrome/
      Link to Facebook group, Neuroplasticity Therapy for Blepharospasm, which has been great support:
      facebook.com/groups/1425592381040551/

  • @MrsPark-ld6zx
    @MrsPark-ld6zx 2 ปีที่แล้ว +2

    Does this start with lower eye lid twitching and tongue twitching/rippling?

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว +1

      Hello Mrs. Park. Blepharospasm is an involuntary closure of the eyelid. For me it began with uncontrollable eyelid closure - lots of uncontrollable blinking. It eventually led to functional blindness. In my experience an eyelid twitch, which can be incredibly annoying as well, is also called blepharospasm (or a type of Myokymia) but is a much more mild muscle fasciculation in the eyelid that usually clears up in a couple days to weeks. The tongue twitching / rippling, if involuntary, sounds closer to a movement issue which a neurologist would need to diagnose. I did not have this with Meige syndrome but, In my experience with other Meige patients, can be a symptom. I developed Meige Syndrome only after I had blepharospasm (Benign Essential Blepharospam / BEB) for a couple years - which I believe is typical.

  • @gregeckhart8567
    @gregeckhart8567 ปีที่แล้ว +1

    I’m pretty sure I have blephorspasms. It happens mostly while driving. It’s horrible. I have an appointment on Wednesday to address this. I am scared to drive. No other facial twitching. But excessive blinking and dry eyes . I’m worried because I’m only 35. I found your video and your symptoms look exactly like mine.

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      Hang in the Greg and stay in touch. I'm happy to talk. Best, Doug.

  • @gg-xn6mp
    @gg-xn6mp 4 ปีที่แล้ว +3

    This is amazing!! You look wonderful. If anyone can beat this terrible condition it’s you !!!

  • @Pikminiman
    @Pikminiman 4 ปีที่แล้ว +2

    A few days ago, I found myself wondering what happened to this channel. This condition of yours sounds really lousy. Best wishes.

  • @jasonsmith5456
    @jasonsmith5456 4 ปีที่แล้ว +4

    Doug I have used your content for YEARS in my classes (I teach HS Arch Design & Eng Design). You explanations and examinations of subjects far exceed my abilities to succinctly capture concepts. I had no idea (a tribute to your video making!), and I am glad to hear you are on the mend. Thanks for all you have done for us TH-cam dwellers that appreciate masterful people lie you who share their immense skill and knowledge. Speedy recover and positive thoughts my friend.

  • @MNS5286
    @MNS5286 2 ปีที่แล้ว +1

    My mom's having this problem

  • @tonyfghattas
    @tonyfghattas 2 ปีที่แล้ว +3

    Doug, Thank you so much for posting this video. I have been experiencing the same conditions for almost 2 years. Initially, I thought it was due to the major changes in my life, but then thought it was due to an issue with dry eyes, which led me to visit several ophthalmologists. There were good days, but mostly very bad days. Today is one of those bad days that led me to start this research, which landed me in your video. The severity of the situation reached critical levels with my inability to conduct simple things like typing this message. I am glad that you are cured and will certainly continue to review the material that you are suggesting to pursue. Hoping for the best. Thank you, again.

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว +1

      Hi Tony. Thanks for the note and I'm so sorry you're going through this. Definitely check out my diary and I'm happy to talk if you're interested. Kind Regards, Doug.

  • @tinaheselgrove3836
    @tinaheselgrove3836 ปีที่แล้ว +1

    Hi doug
    I have dystonia bad I must be honest life is bad for me I'm 4yrs in getting worse. Now my neurologist wants to do deep brain stimulation as botox not working. Iv gone frome a person larger than life to a none excisting person. I'm in uk so don't know what to do I'm desperate

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      Hi Tina. I know that Dr. Farias offers online seminars. I would definitely look him up. You're also welcome to read my diary (link found in the description page of this video) for insights into living with BEB and Meige. I wish you all the best. There is hope.

  • @Beans_on_Bread
    @Beans_on_Bread 2 ปีที่แล้ว +3

    Thankyou so much for making this video, I really appreciate it. Im now 18 and had a bad head injury 3 years ago. My eyes have flickered and twitched uncontrollably over time. It has progressed since and became more frequent and it is now impacting me a lot more mentally that ever before, especially in public and with social interactions. I informed my parents since day 1 however am only now just taking proper action into seeking advice and treatment. The worst of all is the muscle pains in my upper face and eyelids. Sleeping has become a lot more difficult as involuntary, constant blinking throughout the day has lead to my eyes being sore at night when most importantly needing to be closed. This has lead to not getting enough sleep and feeling even worse about it day after day. I’m glad I can communicate with others in similar or relatable situations and I greatly appreciate you making this video regarding it. Thanks very much

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว +1

      Hello Beans on Bread:) I'm so sorry to hear about your challenges and wish you all the best. I understand how difficult something you have no control over can be. Hang in there and thanks so much for the note! I believe there is hope in all things challenging. Seek and you will find.

  • @weaner232323
    @weaner232323 4 ปีที่แล้ว +3

    Thanks for sharing Doug, I truly wish you the best in your recovery!

  • @annalisawiese7377
    @annalisawiese7377 2 ปีที่แล้ว +2

    How were you diagnosed? I started to cry watching this. I still have no answers. Do you have issues with your hands as well? It's painful

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      I saw a neurologist, however, because the disorder runs in my family I knew what I had within the first few months of symptoms. Please see the links in the description box below the video. Lots of great resources including my diary which describes my journey toward recovery. I wish you all the best Annalisa:)

    • @FullTimePatient37
      @FullTimePatient37 ปีที่แล้ว

      It took them SEVEN YEARS to diagnose dystonia 😔😔😔😔😔😔😔😔

  • @LowScoville
    @LowScoville 3 ปีที่แล้ว +2

    I'm in optometry school and this came up in my studies. The textbooks don't talk about BEB or Meige syndrome in this type of detail, so thank you.

  • @bman778
    @bman778 2 ปีที่แล้ว +1

    my problems started about 3or so yrs ago i did not know what it was ithought it was a problem from when i banged my head and i thought it was brain tumor my eyeguy wanted me to see a specialist who deals with this but i chickened out because my conditition had all of a sudden changed and vision was crystal clear again but problem was not gone i blamed everything else for my condition used a ton of eye drops to no avail but this month i had to see neurologist about something else and while there asked about vision prob he had me do a ct brain scan and they are trying botox i sure hope this works because i drive a bus for a living

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      So sorry to hear of your challenges. I wish you all the best with the botox and hope it's of immense help with your driving capabilities. Best, Doug.

  • @dylanwang2369
    @dylanwang2369 4 ปีที่แล้ว +3

    Really happy to hear you're recovering and that your efforts have borne fruit. I wish you a quick recovery and the ability to enjoy life to the fullest!

  • @ElectricalAssociatesKansasCity
    @ElectricalAssociatesKansasCity ปีที่แล้ว +2

    I just got diagnosed with BEB. I can 100% relate to you. I've been dealing with being undiagnosed for 16 months. Godsend..

    • @headtrips1
      @headtrips1 11 หลายเดือนก่อน +1

      How old were you when it started?

    • @DougsGarage-nw1qq
      @DougsGarage-nw1qq 11 หลายเดือนก่อน

      @@headtrips1 56 Yeats old

  • @TN3DStudio
    @TN3DStudio 4 ปีที่แล้ว +2

    Happy to see you recovering well Dough :)

  • @mandingowarlord
    @mandingowarlord 4 ปีที่แล้ว +2

    Wow, I'm sorry to hear & see what you've been thru. I hope & pray you can beat this. God Speed my friend!

  • @0rcryst
    @0rcryst 4 ปีที่แล้ว +3

    When you said "2019" I suddenly realized I've been watching this channel since '09.
    I learned a lot and I'm really glad you're recovering.

    • @nephaisurlo
      @nephaisurlo 4 ปีที่แล้ว +2

      Well, man Ijust realized it after your comment!:) It past 10 years after I saw this channel in my University years for the first time!

  • @79Hokie
    @79Hokie ปีที่แล้ว +2

    I just saw something you posted on instagram, so I came to check our your TH-cam channel. It obviously has been a while. I had no idea about your condition, but I am very happy you are getting better. I have always liked you information and presences on TH-cam. God bless and continued progress on your recovery!

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      Thank you Tim:) Nice to hear from you.

  • @r.mercado9737
    @r.mercado9737 2 ปีที่แล้ว +2

    Sir, thank you for sharing your profoundly impactful video. Moreover, I am equally joyed you are getting better. Granted, hard work is essential to conquering this debilitating syndrome. My sincerest hope and prayer is VICTORY. I do not know you, although I sense in my heart, that you will definitely get well. As I have often shared with my family, "I don't know-how, but I know who." Living life to its fullest. Blessings on you and yours. Semper Fi, Robert

  • @AlejandroSoriano1
    @AlejandroSoriano1 4 ปีที่แล้ว +2

    Glad to see you're better. Best wishes!

  • @aprilchan1323
    @aprilchan1323 2 ปีที่แล้ว +2

    praying for you.

  • @maryarnaud2658
    @maryarnaud2658 2 ปีที่แล้ว +1

    I too was diagnosed with BEB

  • @tadk9923
    @tadk9923 2 ปีที่แล้ว +2

    I hope you have recovered! I have read your book "How to Architect" (MIT Press) which I bought at the bookstore of Chicago Architecture Center several years ago when I visited Chicago. The content is so profound but easy to understand. It seems to me it covers what I have felt during my career as an architect. I have been working at a large architectural firm in Tokyo. I am also a Penn graduate, MArch '78. I took Mr. Edmund Bacon's class, too! One day after the class, he took us to the taichi studio where he attended to make us recognize the relationship between our body, architecture and urban design! Anyway, it is very nice to know your activity to let the people know the reality and raison d'etre of Architects!

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Thanks so much for the note. That's so cool! Penn and my book from Chicago. Great to hear. I'm glad you enjoyed it. I'm also very jealous. Japan is wonderful. I miss it a lot. Thanks again for the comment!

  • @rmkunishige
    @rmkunishige 2 ปีที่แล้ว +3

    I just want to say THANK YOU for making this video. The progression of my symptoms followed exactly how yours did and I've spent about 5 years trying to figure it out. It eventually turned into functional blindness and i was forced to take disability. During this time, I was researching other eye issues and came across your video. Turns out I also have the same condition and was treated with botox. It made a world of difference, and I was able to return back to work.

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      It's a shame it's such an orphan condition. With that said, I'm kind of glad it is. It's awful. I'm so glad to hear that you found a helpful treatment.. and you're working again. Congratulations. I still have subtle symptoms but when I look back I cannot believe how challenging it all was. I'm glad it's in the rear view mirror and I wish you all the best moving forward with treatments and solutions. There is hope! Kind Regards, Doug.

    • @amchou8072
      @amchou8072 ปีที่แล้ว

      can you please explain your first symptoms?

  • @philwilson2587
    @philwilson2587 4 ปีที่แล้ว +2

    stay well my friend... you are a significant voice to those of us in the profession, and a competent and encouraging face to the wider public and those considering the vocation... prayers and best wishes for your recovery and continuing success

  • @maanyemen7683
    @maanyemen7683 4 ปีที่แล้ว +2

    Thank you for sharing ...you really bring a hope of being cured

  • @dorispatriciapulidovelasqu5703
    @dorispatriciapulidovelasqu5703 6 หลายเดือนก่อน

    Mil gracias. Mi nombre es Doris Pulido, me diagnosticaron sindrome de meige y tengo bastante dificultad para hablar, masticar los alimentos, deglutir sólidos y líquidos, ha sido muy difícil.
    Esta técnica del Dr. FARIAS es una luz para esta condición. Dios lo bendiga Doug por compartir el link. 🙏

  • @fernandacastro7980
    @fernandacastro7980 4 ปีที่แล้ว +2

    I wish you a quick recovery and the ability to enjoy life to the fullest! Thanks for all you efforts enlightening architects all around the globe. I love your content. It is really smooth and pleasuring.

  • @GB-ty2uc
    @GB-ty2uc 4 ปีที่แล้ว +2

    Glad to know that you are getting better. Thank you for sharing your story with us. 🙏🙏

  • @venkateswaraosrikakolapu6144
    @venkateswaraosrikakolapu6144 2 ปีที่แล้ว +1

    Telugu

  • @paulinejackson5870
    @paulinejackson5870 2 ปีที่แล้ว +1

    Thank you for this information. 44 years old and this hit me. It’s been hard age depressing.

  • @Vasinvictor1
    @Vasinvictor1 4 ปีที่แล้ว +4

    From one architect to another, I wish you all the best as you advance toward a recovery. Thank you for sharing your condition and improvement so others can find hope, comfort, and, hopefully, their own recovery.

    • @howtoarchitect
      @howtoarchitect  4 ปีที่แล้ว +1

      Thank you:)

    • @tigeryilmaz
      @tigeryilmaz ปีที่แล้ว

      ​@@howtoarchitecthow can I reach you about this disease

  • @esraamohiey4929
    @esraamohiey4929 3 ปีที่แล้ว +1

    This simple video is a source of hope for many.wishing u the best of luck ✌️✌️✌️💪💪💪💪💪

  • @r.mercado9737
    @r.mercado9737 2 ปีที่แล้ว +2

    My wife and I have continued to embrace you in our thoughts and prayers. I have been listening and hearing you for a number of years. I have also enjoyed your presentations and lessons. Semper Fi

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว +1

      R. Thanks so much for the kind note. Very thoughtful. All the best! Doug

  • @merysia
    @merysia 3 ปีที่แล้ว +2

    Hi, I'm a medical student just wanting to know what a Meige-Syndrome is. I'm really impressed by what you achieved! Thank you for that video! It helps a lot! :) I hope you're doing well now or even better! All the best! :)

  • @nickolaura
    @nickolaura 5 หลายเดือนก่อน

    How are you doing today? Would you mind telling us what medication you were taking at the time.I will look into the course.Thank you very much and I hope this message finds you well

  • @ОлегОбвинцев-э8э
    @ОлегОбвинцев-э8э 4 ปีที่แล้ว +2

    Вы очень хороший преподаватель, желаю Вам крепкого здоровья, чтобы Вы могли и дальше давать нам эти очень важные уроки.

  • @carlozfrank8460
    @carlozfrank8460 2 ปีที่แล้ว +1

    Can you please sent reply me the correct Doctor name and add plz my moom has same issue

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Link to Dr. Farias: www.fariastechnique.com/joaquin-farias

  • @heartburn6160
    @heartburn6160 2 ปีที่แล้ว +1

    Were you under a lot of stress before your symptoms?

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Yes. Absolutely. A few years of intense personal and work stress along with insomnia just before the onset of blepharospasm.

  • @dtgrt2008
    @dtgrt2008 3 ปีที่แล้ว +2

    I glad your healing...I know it’s been 9 months but I had a couple of questions. Are you at 100 percent yet? How long did it take for you to see progress? Is it possible to be cured 100 percent. Do you have to keep practicing Neuroplasticity so that the symptoms won’t come back or once the vanish their gone for good?

    • @howtoarchitect
      @howtoarchitect  3 ปีที่แล้ว +1

      I started working at neuroplasticity from day one because I knew what I had. That would be mid 2017. It seems to me it took a couple years for the hard work to take hold and I started to notice a change. You can see my diary for the rough dates, but I think it was likely mid 2019. I'm not 100% recovered, but with that said, most people wouldn't know there's something wrong with me. I'd say I'm probably 90% - 95% most days. I no longer need to do the kind of hard work I needed to do to get to this level of recovery and don't think about my condition nearly as much as I used to. I still have symptoms when I get very overworked or stressed. I lose my voice and my eyes close when I don't want them to. I also still have challenges walking, talking or chewing on occasion. It seems to me that I've changed my brain mapping enough that my symptoms are diminished to the extent that they're mostly not noticeable. I'm sure If I worked as hard as I did the first few years I would likely eliminate things completely, but I guess I've become a bit lazy:) Bottom line - I'm doing very well and feel lucky to have found Dr. Farias and the BEB community for support.

    • @junaidakhter8699
      @junaidakhter8699 2 ปีที่แล้ว

      @@howtoarchitect can u plzzz explain about neuroplasticity sir 🙏🙏🙏

  • @SillyGillys
    @SillyGillys 3 หลายเดือนก่อน

    Thank you for sharing. We are on the hunt for answers to my husbands condition. This video may change his life. Thank you!

  • @AnhNguyen-sq5yg
    @AnhNguyen-sq5yg 4 ปีที่แล้ว +1

    Thank you so much for your all effort to keep making video, you have enlighted the way how to architect to alot of people , and i am very appreciated it. I hope you can be better soon. Fighting !!!
    Best wishes

  • @westcoasthaase
    @westcoasthaase 4 ปีที่แล้ว +1

    I have been watching you since your first post. I was the guy talked to you about doing voiceovers here is LA. I am glad you are doing better. I will pray for you.

  • @salilmohan8561
    @salilmohan8561 4 ปีที่แล้ว +1

    Take care man... You have inspired me as a young architect... Keep going... May God bless you.

  • @bobberner5482
    @bobberner5482 4 ปีที่แล้ว +2

    Hey Doug!! Glad to see that you are doing better and continuing to get better. I had no idea that things had gotten so bad with the facial tics and spasms. Wishing you continued recovery and, of course, all the best!

  • @ammanueltsegaye4412
    @ammanueltsegaye4412 7 หลายเดือนก่อน

    Hi Doug! Just viewed your video. I don’t know if you’re still sick or not; but I sincerely wish you to get well soon!

  • @banga8080
    @banga8080 4 ปีที่แล้ว +1

    Glad you're doing better never heard of merge before thank you for sharing your story stay well brother 👍🏾👍🏾👍🏾

  • @thelogicalanswer937
    @thelogicalanswer937 3 ปีที่แล้ว +1

    Thank you Doug! Going to check your links. It's good to see successes with our crazy organic bodies

  • @pareshtrivedi1
    @pareshtrivedi1 3 ปีที่แล้ว +1

    Good job. I think this is great information as still medical industry is learning.

  • @TRYtoHELPyou
    @TRYtoHELPyou 7 หลายเดือนก่อน

    I'm here because your first playlist is on my classes extra resources. It brings me great joy to see this video tho. Tks for sharing. I'm glad you have seen improvement and are trying to also help others!

  • @deezynar
    @deezynar 4 ปีที่แล้ว +1

    That's great news, I'm glad you are doing better. The treatment sounds quite interesting.

  • @furqanahmed5221
    @furqanahmed5221 7 หลายเดือนก่อน

    I have a question
    Do both of your eyes twich at a moment? Or timing of their twitching are different

  • @WanJae42
    @WanJae42 4 ปีที่แล้ว +2

    Glad to hear that you are recovering! 🙂

  • @ricardozk
    @ricardozk 4 ปีที่แล้ว +1

    Thank God you are recovering. All the best.

  • @phonevoc
    @phonevoc 4 ปีที่แล้ว +1

    I have similar symptoms and thanks for your sharing

  • @Archiktonstudio
    @Archiktonstudio 3 ปีที่แล้ว +1

    Wishing you all the best. Continue to take care of yourself

  • @c.sharon8038
    @c.sharon8038 2 ปีที่แล้ว +1

    I have Blepharospasm, diagnosed in 2017, started Botox injections in 2018. I also have noticed the jerks in my facial & neck area.. it is HELL trying to adapt to this kind of lifestyle 😫

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว +1

      Hi Sharon. I have the same on occasion. Particularly when I'm stressed. The facebook group listed in the description box below the video has been very helpful as was the seminar hosted by Dr. Farias. Hang in there and know there is hope for reducing symptoms.

  • @5dreamaura
    @5dreamaura 3 ปีที่แล้ว +1

    Hey Doug, I also have BEB, my brother has cervical dystopia, I live in the uk and am finding it difficult to find a doctor that understands, mine came on 20 years ago when my 19 yr old daughter was tragically killed, it gets worse with stress and can be very exhausting and debilitating as well as embarrassing,
    Where can I find seminars that your neuro dr did,
    I’m soo glad you’re improving.

    • @howtoarchitect
      @howtoarchitect  3 ปีที่แล้ว

      I would recommend his four day seminar. It is a game changer. www.fariastechnique.com/onlineseminars

  • @furqanahmed5221
    @furqanahmed5221 7 หลายเดือนก่อน

    Hi hope you arr doing fine
    I have a question does spasm on both eyes happen on the same moment?
    i mean does both eyes twich at same time

  • @paolajones1475
    @paolajones1475 4 ปีที่แล้ว +1

    I hope you can pass every difficulty, and i can only wish you could recover soon

  • @berner
    @berner 3 ปีที่แล้ว +1

    I have this too and it's put my potential acting career on hold because I can't do any scenes without blinking a lot. When you deliver lines, what people don't know until they get into studying acting is that it's better to keep your eyes open through the whole scene when you deliver a line unless you really have to.
    One example I can give is with Star Trek:TNG. See if you can spot any of the main cast blinking when they deliver their lines.

  • @julianadamico4702
    @julianadamico4702 ปีที่แล้ว +1

    I'm happy for you Doug that you found a way to get over it .I hope you go into complete remission and never have to fight it again. ~~~Juliana

  • @sezinun5819
    @sezinun5819 4 ปีที่แล้ว +1

    Thank you for sharing your journey with us. I’m glad to hear that you are getting better ☺️

  • @veekleek7535
    @veekleek7535 4 ปีที่แล้ว +1

    Thank you for sharing your journey. Glad you are recovering.

  • @nephaisurlo
    @nephaisurlo 4 ปีที่แล้ว +1

    Wish you faster recovery and stabile result!

  • @zingarus212
    @zingarus212 3 ปีที่แล้ว +1

    Hello there! Well, just to say you are an inspiration to me! I follow you for so many years now, followed you when I started my master in Architecture at the late age of 32 and in those tought times I thought about quitting you were there to support me by you sharing your love for architecture with all of us here on youtube. Keep strong!! All the best from Portugal! (By the way, I'm finally practicing architecture!)

    • @howtoarchitect
      @howtoarchitect  3 ปีที่แล้ว

      Thank you so much for the kind email. I'm glad you're getting after it! I used to live in Oporto. Portugal is amazing. All the best with your career!!! Congratulations.

  • @chetanthakare
    @chetanthakare 2 ปีที่แล้ว +2

    Did your doctor reffered you to do mri scan

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      No. It runs in my family so It wasn't discussed. I'm not even sure a scan can tell the Neurologist much about treating the disorder unless it's due to a lesion. I'm sure if I had chosen brain surgery it would have been on the docket.

  • @mmalone9650
    @mmalone9650 3 ปีที่แล้ว +1

    I have this illness from 5 or 6 years when I am depressed anxiety stressed my eyes squeeze even I didn’t know the name of this illness I didn’t know how to explain it for doctor help me sir please

    • @howtoarchitect
      @howtoarchitect  3 ปีที่แล้ว +1

      Click the links in the description box below the video. You will find help in varying ways at those locations. I'm so sorry that you're suffering and wish you all the best.

  • @KarenOlson-u2i
    @KarenOlson-u2i ปีที่แล้ว

    I too have meige syndrome, for about 8 years, started with cervical dystonia. I don’t see the links to the treatments you used but would very much like to know.

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว

      Link to Dr. Farias:
      www.fariastechnique.com/joaqu...
      Link to my story and ongoing diary which describes my symptoms and strategies for recovery:
      dougpatt.com/my-recovery-from...
      Link to Facebook group, Neuroplasticity Therapy for Blepharospasm, which has been great support:
      facebook.com/groups/14255...

  • @SUTU6000
    @SUTU6000 4 ปีที่แล้ว +1

    I’m glad you’re better we missed you

  • @HeatherKirklandHowe
    @HeatherKirklandHowe ปีที่แล้ว +1

    Your victory was what I needed to see today. I have dystonia and am hoping brain training from home will help me overcome. Any thoughts on at home treatment? Thank you for so bravely sharing- you shine!

    • @howtoarchitect
      @howtoarchitect  ปีที่แล้ว +1

      Hi Heather. I'm sorry to hear about your challenges. Yes. I would highly recommend Dr. Farias online platform and in person seminars for dystonia. His link is in my description box. I've never done the online portion but I did meet him in person and it was a game changer. I wish you all the best:)

    • @HeatherKirklandHowe
      @HeatherKirklandHowe ปีที่แล้ว

      @@howtoarchitect ok, I'm going for it- I'm signing up! Thank you for your response and informative video. All the best to you Doug! I hope life is beautiful for you :)

    • @kellyd8776
      @kellyd8776 ปีที่แล้ว

      ​@@HeatherKirklandHowe did you start the program yet? What are your symptoms? I'm researching right now.

  • @unapologeticella4540
    @unapologeticella4540 2 ปีที่แล้ว +1

    Did u feel numbing or tingling in and around he eye as well as pressure?

    • @howtoarchitect
      @howtoarchitect  2 ปีที่แล้ว

      Hi Ella. Nope. I did have some eye pain but much later in the disorder. No numbness. At first I had uncontrollable blinking then eventually my eyes started to shut and I had a lot of difficulty getting them open. Eventually I was, at various times of the day, functionally blind.

  • @archicurate9421
    @archicurate9421 2 ปีที่แล้ว +1

    I am crying watching this

  • @yuliyasidorova5126
    @yuliyasidorova5126 4 ปีที่แล้ว

    Hi,
    My name is Yuliya, I represent The URAIT Publishing House, one of the leading higher and secondary education publishers in Russia.
    With your written consent we’ll be happy to include your TH-cam channel videos in our targeted list of the best educational video content.
    Your video links will be placed on the margins of the books on our educational platform www.urait.ru, www.biblio-online.ru, and our users will follow the links to your TH-cam channel to watch videos on the specific subjects.
    I'll be waiting for your response!
    Looking forward to our cooperation.
    Best regards,
    Yuliya Samoylova
    Publishing Expert
    e-mail: expert@urait.ru

  • @arcdraw
    @arcdraw 4 ปีที่แล้ว +1

    I wish you all the best on your recovery

  • @Chi-MingLiu
    @Chi-MingLiu 9 หลายเดือนก่อน

    Hi Doug, thank you so much for your video, now I am subscribing for Dr. Farias’ on line platform, I do not have to face my condition alone. Best wishes in everything! 🏆🌹🙏

  • @jedsada89
    @jedsada89 3 หลายเดือนก่อน

    Where can I read your diary? Thank you.

  • @smittyforge5127
    @smittyforge5127 3 ปีที่แล้ว +1

    I wish you well Sir. I have learned so much form watching your videos, that I have to say ..."THANK YOU, for everything that you have done, are doing, and may do in the future.".... I just learned of what you have been going through today... I never knew. I wish you better. You are a great teacher. You're a good man. And Sir, You have my respect.

    • @howtoarchitect
      @howtoarchitect  3 ปีที่แล้ว

      Hi Smitty. Thanks so much for the kind email:)

    • @cansuerkek895
      @cansuerkek895 2 ปีที่แล้ว

      Merhaba lutfen gorun yorumumu annemdede 1 senedır meig sendromu var bız turkıyedeyız nasıl bır yol ızledınız ıyı olmanıza sevındım