2018 MG Conference: Remission - What, Why, How 14
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- เผยแพร่เมื่อ 4 ส.ค. 2024
- Myasthenia Gravis Remission - What, Why, How, in MG Research, presented at the 2018 National MG Conference in Kansas City, MO, hosted by the MGFA.
Speaker: Michael Hehir, MD, Neurologist & Associate Professor, University of Vermont Medical Center & Larner College of Medicine Alameda Ballroom I A/B
For more about myasthenia gravis, check out our website: myasthenia.org
Published on June 13, 2018
![เจ้าผู้เดียว - ดิด คิตตี้ [OFFICIAL MV]](http://i.ytimg.com/vi/q0NLCYKBOTo/mqdefault.jpg)
I understand the thymus isn't super useful for an adult... so why is thymectomy usually only performed for GENERAL (not ocular only -- InterNuclear Ophthalmoparesis / Ophthalmoplegia , ptosis and diplopia ) MG, and only if there is hyperplasia or abnormal growth?
Regarding remission, if long-term treatment can halt/reverse the progression in < 25%... if left untreated, would the disease most likely to spread from the eyes to the rest of the body (ex. bulbar)?
Does Thyroid-Eye-Disease have any role in Ocular MG?
I've seen some great videos by neurologists that specialize in MG (Michael Hehi , Ali Hamedan , Devin D. Mackay , Dr. Maria Lina Renales ,etc), but they aren't local.. anyone know of a specialist that can do a remote consultation?
Thank you.
My daughter got diagnosed with Ocular MG when she was 14 years old. She had severe double vision and lost control of her eye movement. It was a long road before we had a full diagnoses. Untimely we she had a Thymectomy when she was 16 and she is 18 now and takes no medication. I haven't heard a lot about the Thymectomy.
I got it when i was her age and now i am 22 years old. For a month now i feel severe double vision too and almost losing control my left eye i take medications but still no progress and my doctor going to give me Rituximab then ill see if that helps. I just wanna ask did your daughter recover her eye ? I hope , its a difficult disease but keep her mental up it makes different tbh .
And i had thymectomy too.
Dear Riku
How are you doing?
How is this new med for you?
Have you ever got IGIV?
Sorry IVIG
He had a surgery similar to open heart surgery when he was first diagnosed,....
so I do believe they had removed his thymus gland....
Right before he passed away he sent me a message about how he would get into the tub after turning his water heater up to almost 150 now I see that he doesn't affect mg very well he says that she bought him a heating blanket for his bed and apparently he had had him thinking that heat would be good for it I guess...
Hello my name is Joshua....
My father is diagnosed with mg around age 35 I believe....
IVIG treatment how does it work in severe Myasthenia gravis
Yo tengo miastemias y toi es perando. Por una cura. Ya k esta enfermedad tienes mucho mas de un ciglo. Ya tienen k buscarle la cura
Look into MG remission with large doses of Vitamin D.
Please how do you take vitamin D? Is it 1daily or what