2018 MG Conference: Is Your Glass Half Full

Published on June 13, 2018
Is Your Glass Half Full, in MG Research, presented at the 2018 National MG Conference in Kansas City, MO, hosted by the MGFA.
Speakers:Melissa Wohlust, Economic & Community Development Professional and Mediator/Consensus Builder Alameda Ballroom Salons 1 A/B
For handouts from this session, check out our website: myasthenia.org/...

[@cherylcarlson3315]

Have listened 3 times now, being in the pandemic isolation makes being sero neg with good response to Mestinon even when MD says would be really rare to have MG with IBM so don't think that is it. Big dog got really upset with fluctuations in med and put me to bed when bad, little dog is support for the anxious big dog and my bad day walking companion... all 150 feet. Cat meows persistently at 2030 and races to my bed ready to curl on any aches. When asked for help around muscle biopsy was told take them to shelter, chronic illness and animals don't mix. Counselor says just need to accept aging restrictions, started to get really bad at 58, now 63. Son couldn't handle the decline. being positive is really, really hard. If I didn't have a MG buddy I know the neuro would have killed me months ago. Really want more guidance as feel as if I live in the poison ivy, thornbush, boggy ground garden.