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I was diagnosed in 2016. At age 35 married with 2 young children. Severe in my arms and legs. Had some very difficult years. I refused and still refuse to give in to the disease. My mindset has been with the advancements in medicine and modern science there will be a cure one day. That's what keeps me going

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God is good 🙏🙏🙏❤❤❤

My father got Myasthenia Gravis days after his first Covid vaccine he was forced to take in 2021 to be able to get a surgery he needed.

Thanks for this well done video. There has been so much progress toward better treatment since I was diagnosed 19 years ago. This gives me hope!

well said, makes me feel good about the surgery i am about to do

I’ve been in remission for more than 8 years. I have videos about my journey. For me fasting, diet and high dose vitamin D3 was key to getting off meds and getting in remission.

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A best friend was recently diagnosed with MG. I learned a TON about MG watching this recording. Outstanding!

Hello, I have been suffering from severe sinusitis for exactly 30 years. I am Brazilian, I am 45 years old and today they are treating me at the HC Hospital das Clínicas in São Paulo. I had a relapse because I had COVID and ended up with consequences, but with a lot of effort and prayers, today I am partially with limitations in my hands, I want to have better treatment for a better quality of life, and I know that in the United States everything is much more detailed and they give the best treatment in the world, I would like to know if you have any form of an exchange of treatment, as I have a dream of visiting the United States and taking part in the treatment of myasthenia gravis, I would really like to be able to go and get treatment there, could you tell me if there is any way for me to apply for a scholarship? study, oh please, I really want a better quality of life, I await your response and thank you

We are a great team together, but it's lonely on your own,we need each other to share stories. It's in this together condition.

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Martin Mark Perez Margaret Garcia Linda

Thank U

Hi I am a MG patient, I leave in Papua New Guinea in the Pacific islands and how can I get these treatments.

Thank you. how long can this treatment reach the Pacific Island region. PNG

Great!

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Thank you.

I have OMG and as a complication severe dry eye in the droopy eye. I was prescribed the eye ointment Lotemax and it worked on the dry eye and decreased the Ptosis.

God bless you and I hope your much better now ❤️ love from London

If you wanted to educate people you could have explained what this was in your video, just a thought

We love you 💪🏾

I attended the Newton Massachusetts health fair. It was a nice time. Very informative. I was diagnosed in April.

Well done I have the same

Please if you can help me

Please tell me treatment s

I have mayastheniya gravis. I am from sri lanka. I'm girl .l am17 years old.

Mg? Did it gradually get like that? Or quickly?

Ask them to be as fast as possible. Even with a mouth prop, you'll probably still struggle with swallowing. Which, for me was the biggest issue I had when sitting in a dentist chair with my mouth open...

Anne south Africa. My daughter was diagnosed with my genetica. When she was 6 and is in remission since 12. She is 33 years old with 2 kids. Can it came back. Thank you

Great, thanks for sharing this

I seem to make this mistake every week, when I feel good one day I do too much and pay for it the next day. Slow learner... Watching this is educating me to be smarter with energy.

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Beautiful 🙏🙏🙏🙏❤️❤️❤️❤️.

Thank you so much for this video. ! It helped me understanding more my OMG

how do you get meds? I am so tired

This is great info. Thanks for recording it.

Can digestive issues and myasthenia gravis be related?

excellent podcast

Thymis can grow back? What effect will thymectomy have on those who get thymus regrowth? And Dr. Kvin O Connor thanks

I hope this doesnt happen often. 😰 I am new to all this...I dont want this disease i mean i know noone does. This is like a nightmare ...

i only have weaknesss after i lift something very heavy. i also have nerve damage all over (sfn) no eye dropping or anything! could my weakness be just from the damaged nerves

Thank you🎉

God Bless you and your courage

We need a Myasthenia Gravis community on here. I am now 3 and a half tears on from diagnosis and now pretty much wheelchair bound. I also use mobility scooter.

Just got diagnosed with MG

Very interesting 💜