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This is great info. Thanks for recording it.

Can digestive issues and myasthenia gravis be related?

excellent podcast

Thymis can grow back? What effect will thymectomy have on those who get thymus regrowth? And Dr. Kvin O Connor thanks

I hope this doesnt happen often. 😰 I am new to all this...I dont want this disease i mean i know noone does. This is like a nightmare ...

i only have weaknesss after i lift something very heavy. i also have nerve damage all over (sfn) no eye dropping or anything! could my weakness be just from the damaged nerves

Thank you🎉

God Bless you and your courage

We need a Myasthenia Gravis community on here. I am now 3 and a half tears on from diagnosis and now pretty much wheelchair bound. I also use mobility scooter.

Just got diagnosed with MG

Very interesting 💜

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I really need help. Where i am, the doctors can't help me. It's been about 6 years now

Am also having seronegative mystania. sometimes am ok and sometimes realy weak sleep long hours too recover,mestinon helps jes specialy if a wont too go too gym . dropping eye diffuculties talking even thinking cost a lot of energy does are the bad days.Its realy challenge too find balance in daily life .Specialy if a have bad period of weakness a just want too sleep ,people dont untherstand that even talking is diffucult double blured vision ,weakness arms and chest .

I also have mg I hope the best we have in Florida in st Petersburg a very good Dr for myasthenia he,'s mame is Dr Weiss he has patients with myasthenia in all states

Very insightful- Thanks for sharing

What were the other diagnosises

I send you all my Blessings 🙌 🙏✨️💖🥰👍

She’s so Strong 💪🏻I also have Myasthenia Gravis but I’m still strong 💪🏻

I have mg please help me

Mg patient from India

How many types of MG is there?

❤

Jennifer, Thank you for posting your experience with MG. I was diagnosed with it in November, 2019 as I was displaying the same droopy left eye you describe. It took a team of neurologists to finally pinpoint MG as the symptoms often mimic other neurological issues. Fortunately, I am doing well at this juncture. Yes, we can go on with life. Blessings as you continue your life's pathway wherever it may lead you.

So inspiring ❤❤❤ in hospital and this video surely lifted my spirits and made me feel better and more confident in God’s grace and love and mercy ❤❤❤ty

Oh no, I thought Batoclimab is being developed for Graves Disease. Not all graves patients has TED. Currently, there is Tepezza meds already for TED. Hope there is another option for Graves or other thyroid auto immune disease.

Do you have the facial pain . And bother with the eyes

Lupus and Sjorens and Fibromyalgia and MGD and Myasthenia Gravis ❤ pray for me

Thank you this was very helpful for me.

Amen!!!!!!!!!!! Thank you for this!

Can yo loose your eye sight

Do yous have any support people in Uk

Having MG SHOULD I HAVE PAINS IN BONES

I remember when all that started. I treasured my snowflake from Grandma Bev ... seems like yesterday and forever ago.

Very awesome to validate the sero neg experience and difficulty with doctors. Thank you

i know i have it as my grandfather did and i looked into my promethius and yes i have the genes. im 29 amd starting to have the pain with swallowing. its so sore.

Andrew E is a king of Tagalog rap.. a godfather

I will sign up has I’ve diagnosed with mg

Is it true that when you participate in clinical trials, you would have to stop all other neds?

I'm ACHR positive. How would you sign up for this triall if interested

Wow, everyone seemed so energetic, I got exhausted just thinking I was there I can't muster up the energy to mingle and participate like that.

My bloods came back twice with it says I’ve got MG I’ve had MRI on my brain and spinal cord I don’t know the prognosis yet I do drop things with my right hand and my left eye lid closes on it’s own so where do I go from here please help

13:02 interesting

Good old MG crisis 10/90 three more weeks and you will be almost good as new ( 18 months 2* distresses 1* crisis all up 29 days ICU).

Thankyou thankyou thanyou

oMG Seronegative here. I guess I am one of the lucky ones. (at least so far) I appreciate this information being available to all.

I was diagnosed this September after more than 2 years of suffering and after seeing more than a dozen of doctors , I was diagnosed with acid reflux,stroke and being bombarded with unnecessary medications ,I feel very disappointed indeed

I have MG. I have great results following the carnivore diet.

Do you have a tube down your throat? It looks like intabation. If so I always understood that they put you in an induced coma when they do it. I would think it would hurt too. Teach me about it. I’m so happy that you can enjoy some music even though you are in hospital and not feeling good.

I don't live in the US, but I have shared on my LinkedIn account. Hope it helps others [from a fellow MG patient in the UK].