Thank you so much to The Patient Story for allowing me to share my story and for all of your kind comments. Just a quick update: I had my surgery on September 6th, it went very well! I actually got to keep my spleen as the fluid build up around it presented with no malignancy and all of the visible cancer was removed from my body. Pathology also showed that there was no spread into my lymph nodes. I have one more round of chemotherapy left in November and maintenance therapy following. Hopeful to be in full remission when I complete treatment and it's all said and done!
My sister had a granulosa cell ovarian tumor diagnosis at age 26 when she was pregnant with my identical twin nieces. The tumor was bigger than my nieces combined weight. She had emergency surgery and my nieces were born 3 months early each weighing 2 lbs. 3 oz. My sister turned 57 this month and my nieces turned 30 years old in June and follow in their mamas footsteps as nurses. Keep the faith 🙏 I wish you health, healing and many many more years with your beautiful family.
OR RN here. I worked a lot and gynecological surgeries. One of my favorite doctors was a gynecological oncologist. She gave a lecture once about ovarian cancer, and she entitled the lecture “the disease that whispers.”
My friends daughter was diagnosed as stage 3 last year.She has the brac gene.She is only 4% askanazie Jewish and probably thought it wouldn't happen to her.She knew 8 yrs.ago that she had the gene.I pray that you will beat this disease.I have breast cancer and I had a negative mammogram 3 months before it was found!
I’m thankful for what you said, we are prepared for the road to be difficult, but we are not just statistics. I’m not just the 1 in 8, I am a Breast Cancer survivor and it has been 16 years since diagnosis and almost 16 years since I finished treatment. Still, the reality of fear, it’s something that remains in the back of mind. I try and remain hopeful that I will never have cancer ever again. Praying for you sweet lady.
I wish you all the best! So glad your surgery was a success. Just want to mention that there are several genetic mutations that raise risk for different cancers, including breast and ovarian. I don’t want women who are BRCA negative to think genetic cancer is ruled out. Thank you for sharing your story!
You are so beautiful inside and out and thank you for advocating for women that are often pushed to the side with different diagnosis or this is normal answers. Had both of my ovaries removed because of large cyst and went through menopause when I was 38 and now I’m 50 and it has definitely aged me, but at least I’m alive. I did not have cancer, but I always have issues with pain in my lower abdomen. And I often feel like I can’t eat a complete meal and that has been going on for the last five years. But all my doctor say that I’m OK they can’t find anything. It’s definitely a frustrating road. But I think since seeing your story, I’m going to see a genetics doctor and see what might be going on in that area. Thank you so much and God bless many prayers and I know you’re going to live along and healthy life! God bless.💯🙏🏽♥️♥️😉
I am so glad you did not get gaslighted!! I pray that you have many happy decades with your daughter and her future children!! The whole benadryl thing, i have heard that taking claritin before treatments helped, but as always ask the experts.
Hi, Queens! I’m Brooklyn! Thank you for your video. I hate it that you and so many other young people are diagnosed with cancers that used to be rare in young people. I wish you everything good as you go through treatment and surgery and beyond to many decades more with your family. Say hi to the #7 train!
Thank you for sharing your story & challenges. I also really, really appreciate your encouragement to advocate well for ourselves when we are dismissed or not given respect & worthy recognition for our symptoms! God bless you & your famiky! I hope you keep healthy & strong for many years to come! ❤❤
So disappointing that her doctor canceled her and the way that she did. The doctor whould have provided a very thorough and specific counseling about the significance of being BRCA 1 positive as it pertains to risk. I've been an oncology nurse for 15 years at a cancer hospital and my BRCA1 patients who underwent these procedures shared that their doctors strongly encouraged a hysterectomy and a prophylactic mastectomy asap after discovering gene status because this variant moves very quickly in the body between screening exams. There is data that can be shared with the patient about the True risk of getting ovarian cancer, which could perhaps help someone with a hard decision about getting pregnant or saving their life. Another option is to have the hysterectomy as soon as possible after giving birth. Wishing her all the best.
I always say the extreme fatigue that you have never experienced before in life was my biggest sign that I had cancer. I was told over and over by physicians it’s age, it’s your thyroid disease, it’s being a mother of 4, it’s your job ( I traveled as a nurse). The last diagnosis was chronic fatigue. My sister was diagnosed with breast cancer and finally doctors started actually taking my symptoms seriously and I was diagnosed 6 months after my sister with breast cancer. I still can’t get any oncologist to test my CA levels to see if the cancer spread anywhere. 😢
Maybe get another oncologist. Both my Mil and Sil were diagnosed with breast cancer. They did not have the Brca gene but they were negative. They both did come up positive for the ATM gene. This meant my husband also had to be tested, thankfully he was negative. But this gene took his mom's sister, his mom, his grandfather and his grandmother. Apparently all the cancer in the family should have meant earlier testing. Thankfully my s'il is in remission. We got almost nine years with my MIL, due to us being adamant about another physician's opinion. ATM gene means you got a higher chance of not only breast cancer, but other types of cancer too. So be your own advocate.
I'm shaking in my boots watching this, my first mystery ultrasound mass was 5cm two (2!!) years ago, two partial BRCA1 mutations, and the medical system has failed me every step of the way since then, being bounced around, lost paperwork in the system and given PTSD, and we are still no closer. The bloating is horrible, digestion is painful, my back and abdomen throb and spasm, i've had bladder and kidney infections, i had ANOTHER ultrasound and the tech, out loud, said "What is That", doctor said it was normal except for "some fluid distention, probably nothing". I had a CT scan done now and three weeks and 2 days have gone by and my doctor has not contacted me in any way. Why. Two Years i have had this sick pit in my stomach that something was so wrong and no one will listen. (added: am 26 years old no children)
Prayers for you. I grew up in ozone Park. My parents owned the brick two family house that was next to the cross bay movie theater. The theater has been gone for many years. I will keep you in my prayers.❤
Marina, I’am so sorry for your health problem at such a young age, with a beautiful baby. You’re a unicorn and will live a long happy life. Starve the cancel cells do not eat any sugar, look up starving cancer. Young women have all their energy after having a baby before 3-months, for a doctor to tell you it’s postpartum at ten months or a new mother and tired, occurs too often. Follow the treatment, research yourself, starve cancer cells, pray have Christians with strong faith pray over you. Read Jesus and the fig tree, and put on the Armor of God. God heals and preforms miracles to firm believers. Refrain from saying My Cancer, its not yours and not what God wants you to say or believe.
Matthew 11:28-29 "28 Come unto me, all ye that labour and are heavy laden, and I will give you rest. 29 Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls." Jesus Christ from Nazareth ❤
idk why this isnt talked about...maybe im wrong in this ....but ive watched many cancer sfories by now. and it just seems like an overwhelming number of them happen (either starts or progresses rapidly) during pegnancies.... im assuming its all hormone related but just odd that it isnt mentioned
I’ve read it’s from hormone fluctuations. I am not qualified to know more than that detail - but lots of cancers - particularly breast and gynecological cancers are influenced by hormonal changes.
lord right now i lift up the patient story and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of Cancer in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome cancer free report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite the situation still i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on this sister to much help her pull through this ordeal and by all means please help her faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
Thank you so much to The Patient Story for allowing me to share my story and for all of your kind comments. Just a quick update: I had my surgery on September 6th, it went very well! I actually got to keep my spleen as the fluid build up around it presented with no malignancy and all of the visible cancer was removed from my body. Pathology also showed that there was no spread into my lymph nodes. I have one more round of chemotherapy left in November and maintenance therapy following. Hopeful to be in full remission when I complete treatment and it's all said and done!
Sending prayers and love to you sweet lady🙏🏼🥰🕊
Great news!
Yay! So happy for you! God bless you sweetheart ❤
Wonderful!!
Praying for a full remission ❤
My sister had a granulosa cell ovarian tumor diagnosis at age 26 when she was pregnant with my identical twin nieces. The tumor was bigger than my nieces combined weight. She had emergency surgery and my nieces were born 3 months early each weighing 2 lbs. 3 oz. My sister turned 57 this month and my nieces turned 30 years old in June and follow in their mamas footsteps as nurses. Keep the faith 🙏 I wish you health, healing and many many more years with your beautiful family.
Lifting you up in prayer …you’re gorgeous with or without hair. Your bravery is beyond impressive .
yes she is!
OR RN here. I worked a lot and gynecological surgeries. One of my favorite doctors was a gynecological oncologist. She gave a lecture once about ovarian cancer, and she entitled the lecture “the disease that whispers.”
So true. My sister has stage 4 and is only 58…they said it was acid reflux, etc…is a horrific disease and has been relentless for my poor sister.
@@blucky1250 I’m so sorry. Prayers🙏
@@blucky1250🙏
we hear over and over again it's a silent disease :(
@@Villager565 thank you-she’s been dealing with ascites..it’s a nightmare. 💚
My friends daughter was diagnosed as stage 3 last year.She has the brac gene.She is only 4% askanazie Jewish and probably thought it wouldn't happen to her.She knew 8 yrs.ago that she had the gene.I pray that you will beat this disease.I have breast cancer and I had a negative mammogram 3 months before it was found!
🙏
Praying for you! Remember God is a healer! I love your determination to live! Never stop fighting!
thank you for listening to her story!
I’m thankful for what you said, we are prepared for the road to be difficult, but we are not just statistics. I’m not just the 1 in 8, I am a Breast Cancer survivor and it has been 16 years since diagnosis and almost 16 years since I finished treatment. Still, the reality of fear, it’s something that remains in the back of mind. I try and remain hopeful that I will never have cancer ever again. Praying for you sweet lady.
so glad to hear you're a survivor!
That worry is ALWAYS in the back of one's mind!
Oh my goodness. You are such a beautiful spirit; I will keep you in prayer.
thank you for listening to her story!
I wish you all the best! So glad your surgery was a success. Just want to mention that there are several genetic mutations that raise risk for different cancers, including breast and ovarian. I don’t want women who are BRCA negative to think genetic cancer is ruled out. Thank you for sharing your story!
thank you for listening to her story!
You are so beautiful inside and out and thank you for advocating for women that are often pushed to the side with different diagnosis or this is normal answers. Had both of my ovaries removed because of large cyst and went through menopause when I was 38 and now I’m 50 and it has definitely aged me, but at least I’m alive. I did not have cancer, but I always have issues with pain in my lower abdomen. And I often feel like I can’t eat a complete meal and that has been going on for the last five years. But all my doctor say that I’m OK they can’t find anything. It’s definitely a frustrating road. But I think since seeing your story, I’m going to see a genetics doctor and see what might be going on in that area. Thank you so much and God bless many prayers and I know you’re going to live along and healthy life! God bless.💯🙏🏽♥️♥️😉
I am so glad you did not get gaslighted!! I pray that you have many happy decades with your daughter and her future children!! The whole benadryl thing, i have heard that taking claritin before treatments helped, but as always ask the experts.
Hi, Queens! I’m Brooklyn! Thank you for your video. I hate it that you and so many other young people are diagnosed with cancers that used to be rare in young people. I wish you everything good as you go through treatment and surgery and beyond to many decades more with your family. Say hi to the #7 train!
I pray your surgery goes well 🙏🏻
update pinned at top
You speak very well. Thank you 😊 💓
Thank you for sharing..I’m an OVCA survivor.
so happy to hear from survivors! hope for so many!
I wish you a long healthy life with no further cancer. Thanks for sharing. Enjoy every minute with your baby.
Thank you for sharing your story & challenges. I also really, really appreciate your encouragement to advocate well for ourselves when we are dismissed or not given respect & worthy recognition for our symptoms! God bless you & your famiky! I hope you keep healthy & strong for many years to come! ❤❤
thank you for listening to her story!
You gave her life and that decision makes you a hero for her.
♥♥♥
Thank you for sharing your story. You are a warrior. Much love from the UK ❤
Marina I’m so proud of you ! May god continue to heal you and thank you for sharing your story with us
So disappointing that her doctor canceled her and the way that she did. The doctor whould have provided a very thorough and specific counseling about the significance of being BRCA 1 positive as it pertains to risk. I've been an oncology nurse for 15 years at a cancer hospital and my BRCA1 patients who underwent these procedures shared that their doctors strongly encouraged a hysterectomy and a prophylactic mastectomy asap after discovering gene status because this variant moves very quickly in the body between screening exams. There is data that can be shared with the patient about the True risk of getting ovarian cancer, which could perhaps help someone with a hard decision about getting pregnant or saving their life. Another option is to have the hysterectomy as soon as possible after giving birth. Wishing her all the best.
May Gods Peace and His Light give you the strength and direction you need.
My biggest fear! I have so much bloating ‘my grandmother died from ovarian cancer. I want to get tested too.
GYN MD should be able to run a CA125 level. Mine did.
we encourage you to see a doctor if you're concerned!
Please see a doctor ASAP!
Prayers for your continued healing.🙏🏽
Thank you for sharing. You are a very brave. Praying God blesses you, holds you, and heals your body. I wish this disease didn't even exist.
I always say the extreme fatigue that you have never experienced before in life was my biggest sign that I had cancer. I was told over and over by physicians it’s age, it’s your thyroid disease, it’s being a mother of 4, it’s your job ( I traveled as a nurse). The last diagnosis was chronic fatigue. My sister was diagnosed with breast cancer and finally doctors started actually taking my symptoms seriously and I was diagnosed 6 months after my sister with breast cancer. I still can’t get any oncologist to test my CA levels to see if the cancer spread anywhere. 😢
Maybe get another oncologist. Both my Mil and Sil were diagnosed with breast cancer. They did not have the Brca gene but they were negative. They both did come up positive for the ATM gene. This meant my husband also had to be tested, thankfully he was negative. But this gene took his mom's sister, his mom, his grandfather and his grandmother. Apparently all the cancer in the family should have meant earlier testing. Thankfully my s'il is in remission. We got almost nine years with my MIL, due to us being adamant about another physician's opinion. ATM gene means you got a higher chance of not only breast cancer, but other types of cancer too. So be your own advocate.
@@da1stamericus i have been to 3 oncologist and the all say too many false positive test for CA levels.
I'm shaking in my boots watching this, my first mystery ultrasound mass was 5cm two (2!!) years ago, two partial BRCA1 mutations, and the medical system has failed me every step of the way since then, being bounced around, lost paperwork in the system and given PTSD, and we are still no closer. The bloating is horrible, digestion is painful, my back and abdomen throb and spasm, i've had bladder and kidney infections, i had ANOTHER ultrasound and the tech, out loud, said "What is That", doctor said it was normal except for "some fluid distention, probably nothing". I had a CT scan done now and three weeks and 2 days have gone by and my doctor has not contacted me in any way. Why. Two Years i have had this sick pit in my stomach that something was so wrong and no one will listen. (added: am 26 years old no children)
Prayers for you. I grew up in ozone Park. My parents owned the brick two family house that was next to the cross bay movie theater. The theater has been gone for many years. I will keep you in my prayers.❤
It sounds so scary what you went through. I hope the best for you. ❤
I will put you 2:04 on my prayer list...you have a battle in the days ahead. Put your Faith, Hope and trust in the Lord!❤🙏🙏🙏🙏🙏
Hang in there!!❤
Marina,
I’am so sorry for your health problem at such a young age, with a beautiful baby.
You’re a unicorn and will live a long happy life. Starve the cancel cells do not eat any sugar, look up starving cancer.
Young women have all their energy after having a baby before 3-months, for a doctor to tell you it’s postpartum at ten months or a new mother and tired, occurs too often.
Follow the treatment, research yourself, starve cancer cells, pray have Christians with strong faith pray over you. Read Jesus and the fig tree, and put on the Armor of God. God heals and preforms miracles to firm believers. Refrain from saying My Cancer, its not yours and not what God wants you to say or believe.
Wow! You made it.👏🏾
Matthew 11:28-29
"28 Come unto me, all ye that labour and are heavy laden, and I will give you rest.
29 Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls." Jesus Christ from Nazareth ❤
Silly 🤪 religious mythology. 😁😁😁
🎅🐰🧚♀️
Amen 🙏🏽
So true, Ionia5283 ❤
@@alphaomega1351Thank you!
idk why this isnt talked about...maybe im wrong in this ....but ive watched many cancer sfories by now. and it just seems like an overwhelming number of them happen (either starts or progresses rapidly) during pegnancies.... im assuming its all hormone related but just odd that it isnt mentioned
I don’t they know for sure.
I've been noticing that as well!
I’ve read it’s from hormone fluctuations. I am not qualified to know more than that detail - but lots of cancers - particularly breast and gynecological cancers are influenced by hormonal changes.
I think I heard them say in other videos that pregnancy ‘feeds’ cancer,like speeds it up.
Good luck!
Soo many women don’t have their cancers caught especially if they had just been pregnant
You will do very well … ❤
dont lose hope keep faith! stay strong :）
lord right now i lift up the patient story and all according to your perfect will I just ask in Jesus Name that you would just totally rebuke curse and cast out this evil spirit of Cancer in the name of the father son and holy spirit and according to your perfect will please deliver us an awesome cancer free report lord that’s my prayer and that’s my hope!!!!!! oh God even now despite the situation still i just ask that you please just wrap your warm and comforting arms around this sister and no matter what might transpire may unimaginable perfect rest peace grace mercy satisfaction and comfort be totally multiplied and poured out on this sister to much help her pull through this ordeal and by all means please help her faith to grow stronger each and everyday and help her not to in any way get discouraged but to totally trust your will and lean on the everlasting arms of Jesus each and everyday to the fullest extent
and i still believe you’re the God of miracles and the impossible so finally my major prayer is that you please break the unbreakable move the immovable and from the impossible we’ll see a miracle God we believe for it in the name of the father son and holy spirit lord that’s my prayer and that’s my hope amen!!!!!
🙏
🙏🏽
🙏🙏🙏🙏🙏🙏🙏
Wtf? You cannot wait a year for having surgery when you have cancer.
I really don t get it. People are you serious?
Strong
Get a second opinion from other hospital.Maybe they don't have to remove your ovaries❤❤❤❤
She wanted them out prior to cancer. Also, yes they need to be removed
@@ericcajo I'm so sorry💖💖💖💖💖