How This 24-Year-Old Finally Discovered She Had Ovarian Cancer | ELLE Out Loud
ฝัง
- เผยแพร่เมื่อ 27 มี.ค. 2019
- When Amanda Kabbabe was 24 years old, she had just moved into her own apartment, was working at her dream job, and was settling into a serious relationship with her boyfriend of three years. And then, a curveball: In October 2017, she was diagnosed with an extremely rare type of cancer called ovarian germ cell cancer.
In this episode of ELLE Out Loud, Amanda shares her journey: from diagnosis, through intense chemotherapy treatment, and the decision she made to freeze her eggs while fighting her disease.
Read Amanda's full story on ELLE.com: www.elle.com/life-love/sex-re...
SUBSCRIBE to ELLE bit.ly/SubscribeToELLE
Not having a doctor listen to you is the worst feeling. It’s so scary. It’s so frustrating.
so fed up with hearing about the dr saying to people that its nothing!!!
If you went to medical school and sat in one the classes and observed the culture you’d better understand why doctors behave the way they do - the culture in Med schools needs to change
I think that when a doctor doesn't listen you, you don't have to waste your time with it, change/search for a doctor that listen to you.
Even worse when they tell you “it’s all in your head”.
I had an autoimmune issue rip by body apart before a doctor finally took enough interest to really look into what was going on. I assume it’s because they felt I “looked” fine.
My 24 year old daughter went to her doctor with bloated symptoms and abdominal pain. The doctor told her to lose weight. A year later, after no relief and a CT scan, she was diagnosed with Stage 4 Ovarian Center. After two years of surgery and repeated sessions of chemotherapy, she passed away at the age of 26. Had the first doctor taken her seriously, or at least sent her to emergency, she might still be alive today.
Robert Murie....I’m so sorry for the loss of your beautiful daughter😔I pray that you and your family have found peace🌈❤️🕊
😥 There are seriously some stupid, stupid doctors out there.
My heart goes out to you and your Family Robert having lost your Daughter to an illness that should have been diagnosed earlier, truly heartbreaking.
So so sorry for your loss- the advice is to keep asking for help! Take care x
my father is still alive but he has stage 4 cancer now because of a doctor that told him it was nothing (he told youre too sensitive) he went back a year later to another doctor because he couldnt take the pain anymore and he discovered he had prostate cancer and it had already spread in all of his body
I am so sick of medical professionals ignoring their patients pain and worry.
Kay Bee ignoring the patient and making them feel bad for being in pain. Turning it into the patient overreacting!
I always preach get a 2nd, 3rd opinion, get some tests. My dad naively followed one dr andvtirnwd he had stag4 prostate cancer
Kay Bee KAISER
I've seen this first-hand. When I was 3, if my parents hadn't kept searching for answers, I would've died. I kept vomiting, sick, and poor balance. The doctor wouldn't do anything about it. He said it was a virus, but it was stage 4 cancer! If my parents hadn't of went to Children's Hospital, I wouldn't have made it. Moral of the story, please take patients seriously!
Fire your doctor. And find another one.
Doctors seriously NEED to stop playing guessing games with women's health issues, stop telling us "it's probably nothing" when u haven't even done adequate tests for our symptoms
It's so frustrating hearing that the urgent care dr could feel a lump while palpating which is the absolute minimum the obgyn should have done before diagnosing it as bloating.
Doctors don't play games. I have several doctors in the family, and they take every patient seriously, they just try not to make patients panic. But medecine is not an exact science, it's very complicated, and the life of a doctor is very stressful.
msinvincible2000 Hi it isn't ok if doctors are guessing you know cancer can be a death sentence if not treated early enough.Doctors have a responsibility to treat people with respect and fairness. Wheres the fairness if symptoms are mis diagnosed by doctors. It isn't rocket science making sure that the individual doesn't have cancer and to be honest being diagnosed with cancer too late because doctors miss the symptoms is heartbreaking and stressful especially if you have children its a double punch in the gut.
I think you're forgetting that they're human beings and not a super hero not all doctors are the same. Be active in your care and they'll see that and start listening, demand testing.
@@jonathonbritten6153 always get a second opinion, research and be active in your care dont leave it to doctor's
I was Diagnosed with grade 2 Ovarian Cancer on July 13, 2019...today I am cancer free, but I start Chemo 12/30/2019 wish me luck 🤞🏽
Monique Knowles God bless you 🙏🏾
what test had u done to dignose ovarian cancer? plz help us to dignose correctly
@Da To The main symptoms are heavy bleeding and severe abdominal pain.
Hope your ok. ♥️
I wish you the best of luck! I hope 2020 is the year where you kick cancer's ass
I'm going to be graduated soon . Ill make sure that I hear my patient's words before going for the diagnosis
Always make sure it's not a cancer !!the rest we will survive.
@@nadyulik sure. Will do my best !
Thank you
Thank you!!!
You can never know better than them what's going on inside their bodies. We always have intuition of what's happening, but we're so busy making money and paying bills that we don't connect with our bodies as much as we should. Never think you know it all or be condescendent with a patient and you'll already be 50% of a good doctor.
I know the feeling: I was diagnosed with endometrial/Ovarian cancer 17 years ago and given a few months to live yet I’m still here. Don’t give up people and keep fighting.
Jude Knight How did you do that love to know thanks
Wow thats incredible, im glad u are still fighting through this. God bless.
Scary Hours Thanks for your kind words!
Jonathon Britten To be told that you have only months to live is horrendous especially when you have children and it took me a couple of weeks to get over the shock tbh! I then starting researching how to make my immune system as strong as possible whilst I recovered from having a radical hysterectomy due to my having stage 3 endometrial/ovarian cancer. I started with the chemotherapy which of course made most of my hair fall out and then went on to the radiotherapy after which I told that I was cancer free but that it would quickly return and that would be that. I chose not to accept that and started drinking a small glass of fresh organic celery or beetroot juice every morning cutting sugar completely from my diet and eating healthy foods. I also had regular reflexology and Reiki sessions to calm me and keep me in a positive and calm state of mind. I literally THOUGHT myself better and would lie on my bed with my crystals hanging on my windows with the sun shining through them making their colours fill the room and imagine them removing any cancer from my body. I’m sure some people will scoff at all this but this is exactly what I did and I am still cancer free after 17 years! Give it a go people as the mind is the most powerful tool we have😊
Miri Am For your daughter:
Number one: NEVER GIVE UP HOPE - yes you are in a scary, vulnerable and dangerous position but you CAN come through it. You have youth on your side which is a good thing but positivity and the idea that cancer IS beatable is utterly crucial so try your very best not to let scary and negative thoughts consume you which is easier said than done I know☹️.
Number two: Buy a good quality juicing machine and every morning have a small glass of organic celery or beetroot juice -plus other fruits and vegetables. - not too much as it can give you wind. Cut out sugar completely and not too much dairy but fish and other heathy nutritious foods are a must. Just a small plateful is fine as I know that loss of appetite can be a problem.
Number three: SPOIL YOURSELF if you feel well enough and if possible have a few Reiki sessions - once a month is fine as I know these therapies can be a little expensive plus reflexology which will calm you and focus your mind on getting better.
Number four: buy one or two good quality crystals and hang them in a room which gets the sun then spin them around so they catch the light and fill the room with their beautiful healing colours then lie down and imagine the lights are moving through your body and destroying the cancer.
This is precisely what I did for the year it took me to complete my treatment ie surgery, chemo and a little radiotherapy. I am thinking of you my darling and sending you love and positive thoughts - I KNOW that you can beat this. x
My wife had the same stabbing pain. As she was growing up she would tell the doctors and they would pretty much ignore her. She dealt with this pain until she was 40 years old. Always mentioning this pain she had to each Doctor. No one found a thing or took it seriously, as usual. At 41 years old, my wife was diagnosed with stage 4 colon cancer. It started in her uterus. My wife passed away at 43 years old. No one listened to her.
🙏🏾🙏🏾
I'm so sorry for your loss, and her loss. What does it take to get early detection??!!
I'm so sorry, that is horrible.
Oh my gosh…that’s so horrible 😔😔
May she rest in peace💔
Similar story with my daughters diagnosis at 23. No one would listen. Diagnosed stage 4.
She fought for 3.5 years
RIP my Shauna O'Hara, you are still the sun and the moon and all that is in between. I miss you so.
Will there ever be early detection?
shannonohara I’m so sorry. Warrior women everywhere.💜
@@lazybeth8442 Thank you. She was really special. I miss her so.
shannonohara 😪So sad.
I followed her. So sorry
❤️✨
My best friend died of cervical cancer that spread to her bladder and kidneys. She kept having pain on and off for several years but refused to go get checked because she was afraid. I begged her to go but she refused. When she got so bad she could barely walk and could not urinate she was admitted to the ER. The cancer was stage 4 and already spread. On her death bed she kept saying she wanted another chance to live. Ladies please get your yearly checkup. It could save your life!
so sorry to hear about your best friend passing away Beth 😭🙏
except when your yearly checkup isnt allowed because you are too young. Haha. No seriously. They don't do physicals until you get to your 30's where I am. It is sad what the canadian health care system has become.
Marley This is scary to know; here in the states we just assume the healthcare system in Canada is without flaws.
Beth I have been having that stabbing pain on my bottom right side right where my ovary is. I do my annual pap smear faithfully. I was told 4 years ago that I had a cyst the size of a golf ball on it. But have since had 2 ultrasounds of the area and my doctor can't even find my right ovary. Only the left. Strange but he says not to worry. I have a question. Was your friend getting her pap smears done? I'm sorry you had to go thru losing someone like this😢... ❤
@@ClaireNicole33 No she wouldn't get her yearly exams because she was afraid of the results. The doctor's think she went in remission for a while before the cancer spread with a vengeance. I had a dermoid cyst 2 inches big removed that was encapsulating and crushing my ovary. I hope the doctors can find the source of your pain.
“Stop eating so many carbs....” you’re kidding right. I’m furious for you
Sugar is horrific for the body ,also red meat
@@SRBOMBONICA86 doesn’t change the fact that the woman was ignored and neglected by doctors???
@@kayla6103 by female doctors even ,crazy ,but it happens to men too
@@SRBOMBONICA86 historically speaking, i can honestly say that women’s issues are more frequently ignored or discounted by medical professionals than men’s issues. But to speak to your point, doctors shouldn’t ignore or demean ANYONES issues, male or female! They get paid hundreds of dollars per hour and they took an oath to protect and heal people.
@@kayla6103 that's not true ,our female biology is much more complex in general ,that's not the fault of men ,they developed many things for us women to ease our discomfort .Besides men were not spared in ANY war or tragedy ,they are always to die first
A friend of mine was diagnosed with ovarian cancer on her 21st birthday. She had both ovaries removed within a few weeks, chemeo and the whole shebang. It’s been almost 15 years since she was diagnosed and here she is, still fighting everyday.
Is your friend alright now? I hope she's doing well. Literally the same is happening with me rn.. I was diagnosed with ovarian cancer a month ago and went on with total hysterectomy after a week of diagnosis on my 21st birthday.. my 1st chemo is next week and I'm really scared.. Can you please give me her contact mail or phone number.. I really need help
@@angelenethomas5692 I hope you’re doing better 💜
@@angelenethomas5692 I will pray for your recovery, wishing you all the very best.
I'm also going to see the doctor soon since i'm having these symptoms since and long time but never went to see a doctor cause of some family problems.
@@angelenethomas5692 💖🙏💖🙏💖🙏💖
@@angelenethomas5692 how are you?
“Oh don’t worry, we’ll do our own scan” read: we’ll bill your insurance again
@Sarah, she should have said, 'uh, NO, get your ass to the hospital and look at the scan. Actually, the scan department could have emailed it to her office.
Sue they asses
No. its not always to bill insurance. Sometimes its because providers are able to see the images. when you get reports from a provider they see the interpretation and not the images. Its sad all around and providers DO need to listen however its not always a billing issue
yaa a. Which is EASILY obtainable by having patient sign a release of information and the doctor contact medical records of the outside hospital. But that’s too much work and it’s more convenient to click a single button on your computer to order another set of imaging.
Seriously, what a greedy cash grab that was !!
Wtf the doctors all so nonchalant "oh we'll just remove the cyst AND YOUR OVARY" as if it's a pimple 😳
Queen Mercy yes, they have a tendency to say this in many cases
If it's in your ovary and spreads you might be dead. You are more important than your fertility.
This whole case is sad. All the initial doctors involved in her care were lackadaisical. Why tell her this devastating news OVER the phone? Especially after not knowing 💩
That's when a male Dr needs to be told by his patient "how about one of your testicles is removed and half your dick?" Not so simple now, huh?
@@PthaloGreen2 It's still a struggle to process the emotion behind it.
My granddaughter was diagnosed at 8 years old of germ cell ovarian cancer. She went thru every treatment available. She was a great fighter and never wanted to give up. The doctors gave up on her. She passed away in Nov. of 2021. She fought for 13 years. RIP my sweet angel Emily.
In this modern day and age, you basically have to be dying for any doctor to take you seriously. It's horrendous and makes me beyond angry.
And yet they are now TOTALLY paranoid if we have a sight fever now or runny nose...... cause everything is now covid
And this is what we pay $$$$ for
You have to be your own health advocates! Especially going forward w overworked staff.
@@calliehilbert no we actually pay for illegal aliens! MA rationed care to elder by EO for over 75 Covid patients as they treated illegals.
Especially if you don't have medical aid,day hospitals just tell you oh it's menopause without examining the patient
My stepmother died because doctors dismissed her severe headaches as the flu. Turned out to be a brain tumor.
Im so so sorry
Robyn Salaver oh my god. I am sooooo sorry. 😪
So so sorry for your loss. Let me tell you the night I read the Bible out loud for a few minutes is the night I went to bed with no neck pain. It was pain I had for a few years so bad I couldn't sleep on my sides or tummy. Could only sleep on my back. My reading must have healed me I think. I try to read the bible every night since that healing.
:(
My little sister when she was 12 kept complaining about headaches. My mom thought she was just trying to get out of school. She finally took her to the doctor. She have a tumor on her brain. Not cancerous but it end up growing back. She have 2 brain surgeries. She is a healthy 21 year old now but that was a scary time.
I’m 19 and just had a laparotomy done two weeks ago. I had bloating and gained 10 pounds a few monthes back. My weight had always stayed consistent but I thought the weight gain was normal due to quarantine. My stomach looked like I was pregnant. So we went to the doctors and they told me it was my eating habits and constipation. I had that diagnosis for three monthes. Until my mom pushed for an ultrasound. They found a teratoma the size of a small watermelon at 20 cm. It was benign and I’m recovering from surgery. Always push for your health and if they don’t listen find another doctor that will!!
I'm 18 years old and suffering from the same symptoms(left side abdominal pain). Also, sometimes, I feel like a frequent need to urinate. I'm soo worried. :(
@@angrybird5699 get to the doctor, NOW! Don't wait!
A teratoma, wow. Did they find any recognizable body parts? My brother had a cyst that had hair and teeth in it
@@angrybird5699 me too! But I'm 15 and the frequent urination is accompanied with constipation and heavy periods.
@@kawayama12 Oh no.. Get to the doctor ASAP. Hope you get well soon. :)
My mom went through the same thing.. they told her she had fibroids.. but it wasn’t.. she has been having pain for a while.. she did exactly the same thing and found out she had stage 4 ovarian cancer.. it’s was devastating experience.. she has been cancer free for 10 years now!
Thank you saw a lot comments of people that passed away your mom is strong 🙏🏻💪🏻 .. it is possible to survive stage 4 ovarian cancer
cindy sanchez yes Cindy it is possible..
Thank you for this hope. My mama is 65 and diagnosed with stage 3 ovarian cancer, her chemo starts this week.
The lord make miracles!
@@pearl1357 I’m so sorry how is your mother today
She’s lucky she had connections and such a loving supportive boyfriend
She doesn’t sound like she feels lucky or grateful at all to be alive. She sounds quite vain.
@@shaybatty3785 I think that’s just her personality. She is firm and assertive
@@shaybatty3785 I mean she defeated death so I’d probably be a little bit cocky too
@@abihenderson8300 *delayed not defeated
She had insurance just imagine if you had limited insurance or no coverage.
Terrifying
I had to go 4 years without preventative care when the recession came and my husband lost his family farming business. Many family farmers in our area went bankrupt. Because we had our old family homestead and a few acres left I couldn't qualify for any programs to get a free pap smear, pelvic exam or mammogram. One elderly man in our community said that he was told he had to sell his truck and cemetary plot to get government assistance. It angers me when people who don't need the help scam to get it and people who genuinely need it go through hell to get it.
@@bethparker3205 , Sadly people call this help " socialism" like it is a bad thing! Who knows when any of us could fall on hard times.I haven't had med ins for almost 2 yrs now while living with chronic diseases.
@@sallyl5071 i understand your frustration. If it wasn't for having affordable insurance through what was originally Obamacare we still wouldn't be covered. I am so thankful for the affordable coverage. I would definitely apply if you haven't already.
@@bethparker3205 , i had it the first few years when it was affordable but once you know who got in and didn't do anything to strengthen it, it became too unaffordable for me with the crazy high premiums and copays ect.Believe me i studied ins plans like a hawk. Hoping at the minimum for a chance to buy into medicare early but would love it for all.
Doctors NEED to start listening to women. STOP telling us our pain doesn't matter. STOP telling us "it's all in our head." Even female doctors dismiss their female patients and don't listen to us!!! My PCOS has been misdiagnosed for 20 years and now I'm having surgery for it in 2 weeks because my ovaries are enlarged. Doctors, get off your freaking high horses and do your damn jobs better. Start by listening!
It will be a huge improvement when robots replace doctors, you'll finally get a proper diagnosis. At this point google is a better diagnostician than your average doctor. They're simply trained to pass out pharmaceuticals in med school now cuz they're paid drug pushers for Big Pharma..
Hope your surgery was successful & you are well again 😊
Yeah they keep saying don’t worry blood tests all normal. Well you can still be very ill and have normal blood tests!
I’m a medical assistant in the OB/GYN I have worked with numerous Doctors, and if YOU EVER FEEL LIKE YOUR VISIT DID NOT GO WELL and the N.P. Or Doctor was not understanding book an appointment with a different doctor! I consider myself a patient advocate and always make sure the patients I have are satisfied with their visit, if not I always tell them to book a appointment with a different doctor!
That's not free. It's easier said than done. I can't afford multiple visits.
maybe you should become a real doctor then
@@biancadesousa I agree with wildflower, you would be a great doctor!
I had the very same cancer at 26 stage 1c. Went through everything she did! Great to see other people’s journey.. cancer free at 32
❤🙏❤🙏❤🙏
Hi! May i ask what were your symptoms before you went to the doctor?
What were your signs of it
Hi are you alive
The doctors really tried to minimize her pain and cyst at every turn.
Because in most cases, cysts are benign. She really was the 1% that turned out cancer. If i were her, i would get dna testing because if she had ovarian cancer this young, she's at high risk for breast cancer.
@@rumblefish9 all ovarian cysts are painful. As big as hers was, they should have removed it immediately.
It’s to cover their own asses honestly. If they say “may be cancer” people start freaking out and if the test comes back negative some people get mad like “ how dare you scare me like that” and try to sue.... I read a couple stories in the news. I was diagnosed with cervical cancer a few months ago and they were super vague when they talked to me so I already knew they suspected it they just didn’t want to tell me till they had the test as proof. I’m really good at reading people so I already knew even though everybody kept telling me not to get upset till the test confirmed it.
Unbelievable
I'm a medical professional, I have worked in Pediatrics oncology before , seeing this stuff brings me to tears because nurses can't diagnose patients but we're the most hands on and I have seen so many misdiagnosis... This neglect has to stop . A lot of medicine doctors are in it for the money not for the care of humanity.
Unbelievable 😡
Yes thank you for saying that
The greatness of American healthcare :/
Are nurses too afraid to speak up?
@@bonnierobinson8684 if they don't have a plan b I suppose so, I quit though and started my own herbal holistic business 🫡
What is happening in our medical schools and our research facilities? We've had decades of cancer research, yet screenings are no better?
callynt I have unbearable menstrual cramps and I went to the gynecologist. She said to use birth control. Birth control has mad my face break out and it’s like that’s their only option when dealing with this pain
Honestly I feel like because its for women the medical field doesn't consider it as important. Imo
Research momey going towards chemo,radiation and no to preventative research
@@tonekagrigsby-green769 I have been through decades of that... NSAIDs work great but hurt the stomach terribly. After I had a kid, the second cycle afterwards I was almost normal without a lot of pain (only minimal). If you are going to have a kid anyway, just do it sooner than later like I did.
@@globalfamily8172 yeah there's a Dr on TH-cam who said that periods after pregnancy tend to be alot more bearable.
We, as women, know our bodies! I had a benign tumor the size of a grapefruit on mine that was was dismissed for almost 6 mos bc of my age (25). I finally went to a different doctor who immediately requested an ultrasound followed by surgery. 3 years later I thought I had appendicitis. I was sent home saying it was a bladder infection. 2 weeks later when the pain got worse the surgeon said he thought it was "phantom pain" from my ovarian surgery. It was cancer in my appendix. LISTEN TO YOUR BODIES!
Are you ok now?
@@misshoneynevercame4832 yes thank you. I'm cancer free. Having trouble getting pregnant. We have been trying for 4 years. Nothing against anyone who uses IVF or any other method, it's just not for us. If it doesnt happen we are okay with that.
@@honeysuckleesq.3757 Glad that you are doing better now. I hope that you will be a mother one day ❤. IVF is not for everyone so I understand your choice.
@@misshoneynevercame4832 thank you. I have a 15 yo son and 2 stepsons that were adopted by my husband and his ex wife but I wanted us to have one that is biologically his. Doesnt seem to be in the cards right now. It will prob happen when all of our kids are grown and out of the house lol.
A coworker had appendix cancer. It is a miracle she is still alive.
I cried with her to have cancer is just awful but to be so young how frightening. I wish her a full recovery and a long and happy life. I am so grateful for my health.
Sorry to let everybody know but eating eggs ham and pork Bologna bread milk I'm sorry but I did a study and all of these things give you cancer health not eating healthy gives you cancer chocolate gives you cancer milk gives you cancer
@@catlove111 chocolate ???Red meat and too much sugar yeah ,but chocolate
@@SRBOMBONICA86 Yes for me yes
If I go to a doctor and they say oh it’s probably nothing and don’t want to run tests and are not equally concerned about your health issue, I walk out the door and keep looking. Make sure you find a doctor who wants to get to the bottom of it and doesn’t downplay your symptoms. I trust my doctor and she has the same concern as I do. She will orders tests, ultrasounds, MRIs right away, she doesn’t mess around with her patients’ health.
This. This is what i needed to see. Not another post antagonizing doctors.
They don’t run tests immediately and do the slow process because it costs the patient money
I read somewhere if they dont do tests you make sure they write down in your papers that they did not do a test you asked them to do. You push them to write it down. I dont remember why, but yeah.
GV LU agree. Some people don’t realize there’s something called a “2nd opinion, 3rd opinion,...” don’t stop until someone listens to you.
GV LU Glad to hear you found a good doctor.
It took an entire year for me to be diagnosed with endometrial cancer. I feel so blessed to have a doctor who believed me when I said I had pain. She kept doing tests, she kept asking questions until we finally found it. She was such a blessing to me and was there for me emotionally. I’m so thankful for doctors who don’t stop just because the tests say nothings wrong. I know your journey was hard and thank you for enlighten women. Don’t ever let a doctor tell you our pain is nothing to worry about. Be persistent.
I'm going through this now. I go for my results on March 4th. Wish me luck. I'm afraid. Pray for me.
I hope everything turned out ok for you??
Praying for you.
@@openyourmind3763 I'm doing better. Thank you! ❤
@@kendramoon4722 Thank you for your prayers ❤.
I’m waiting for my results too
The irony is the male ER doctor was more receptive if her issues than the FEMALE GYNECOLOGIST she had 🙄
And he even apologized for getting it wrong the first time. Her gyno sure didn’t apologize for IGNORING HER! So infuriating
@@nathedanladi5578 Herbs cannot cure cancer.
and her bf
This is actually quite common. All the female gynos I've had were very cold and irritated with any questions I had. Male gynos were very warm and reassuring.
My dr was female and I had the SAME problem!
My story is very similar. The full and bloated stomach. Primary doctor and ER doctor not listening and calling it a cyst that will eventually go away. My blood levels were out of wack. Having surgery and having a very massive germ cell tumor that had spread to other areas, surgically removed. I was diagnosed with stage 3C ovarian-teratoma cancer. I’ve gone through several rounds of chemo and have had 5 surgeries but Today Life is Celebrated and I’m grateful I had my children before the age of 29. The journey was tough and is tough for many but if you just keep pushing and fighting through it, there will be sunshine coming through the dark clouds.
Are you alright now?
Same thing happened to me. My pediatrician told me I my stomach muscles weren’t tight???????? Anyway a year later I was diagnosed with a melon sized teratoma.
This is appalling. Even as a nurse I have had doctors give me diagnosis of IBS for almost no reason. Ridiculous that none of these doctors are listening to ANY of us.
Wow, 24 but with the strength and maturity of way older. My god, she’s amazing.
Yes she is
I am a 2-time cancer survivor. It sounds strange but cancer has made me my best self as well as emotionally and mentally strong. YOU are strong Amanda.
To the person who said get cancer a 3rd time, I forgive you.
Her last comment was so important, " I wish my doctors would have listen to me sooner, but I also wish I was more aggressive." I can totally relate. My experience made me realize to listen to my body telling me something IS wrong, and not go by what doctors are saying. When it comes to your health you have to be your biggest advocate. Amanda, keep fighting the good fight!
I was just diagnosed with PCOS and diabetes at 26yo, BMI 28, which is not skinny by any means but is also not obese. I had to HOUND and pressure doctors so bad for like two years to finally get a diagnosis of why I was feeling shit all the time. I hate doctors.
This lady particularly had a bad run with doctors. Like they failed her hugely. Thankfully she's still alive.
Great video and yes, no matter what age or how young, cancer doesn’t discriminate. I was diagnosed with Uterine Cancer at age 24. It can and it does happen so all women need to get their yearly OBGYN Pap and screening completed. I am sitting here cancer free, now age 42, and I can say “cancer is just something I went through, not something that defines me”. Thank you, Elle, for bringing further awareness.
Thank you for sharing your story, Kara!
That’s amazing! What were your beginning symptoms?
Doctors need to take the word “probably” out of their vocabulary
why. they can never say for sure unless they run tests. that “probably” needs to be in their vocab so they don’t assume it’s something until it’s proven
They really need to better diagnose patients. It's ridiculous!
Shimmer ok boomer
@@himeshreshamiya7830 I'm 22.
Himesh Reshamiya stfu
When her boyfriend was standing there as she was getting her head shaved just made me tear up so much. Ugh, what a moment.
He’s a keeper 🙂
My gynecologist takes everything so serious! I’m fortunate for that!
It says a lot about our medical system that her concerns were repeatedly and routinely ignored or played down. That ER doctor and her decision to go to the ER saved her life. Women are too often dismissed about their health concerns. "Oh you just need to lose some weight." "Oh that's just the way women's bodies are." They have put so little in to the study of a woman's body that they don't even know what to look for when it comes to something serious. They treat our bodies like a magical mystery. "Haha yeah we don't know why it does that but it does haha."
I hate it so much!!! For even female doc/gynecologist to be saying that to u is irritating then they be like ur gonna be fine blah blah when things get worse..we all need to jus eat healthy to help keep these sicknesses away from us
Thank you Amanda for sharing your story! My body was diagnosed December of 2017 with renal cancer. " There's life before cancer and after cancer" is my truth.
That’s so sad that her doctors didn’t believe her, until the ER doctor actually said something.
Amanda thank you for sharing your story. My mother passed away from ovarian cancer before her 50th birthday. She was diagnosed late and it was very aggressive. Her experience has definitely made me proactive about my health. Thank you so much for speaking out about being your own advocate for your health and well-being. May you continue to be healthy and cancer-free.
sorry for the loss of your sweet Mom Rachel😭, I’m sure she is watching over you ❤️🙏
So you now on listen very carefull to your own body .you are in a risk group. Always extra tests ,extra caution, extra attention.
@@nadyulik that creates even more stress for a person ,it worsens phobia and hypochondria
@@SRBOMBONICA869
The helplessness you feel when a professional you trust with your health and your life ignores you or is incompetent, is incredibly devasting. 😭😌
I was diagnosed with Ovarian Cancer at age of 12. (Now 22) I had a 10lb tumor on my left ovary that somehow all my pediatric doctors missed.
My symptoms included:
- excruciating abdominal pain during menstrual cycles
- heavy bleeding
-fatigue
-constantly feeling bloated
- bowel issues, constipation
- my menstrual blood had a smell as well (Sorry TMI)
Symptoms are very similar to pains during menstrual cycle. If you feel that something is wrong. Keep pushing until you find answers!
These are my exact symptoms.
All of my tumor marker tests are elevated as well. Im having surgery next Thursday
Thank you for sharing your story. I’m dealing with endometrial cancer - stage 4. Diagnosed in August. Wish I had listened to my body earlier. Anyway I love your spirit and I relate to so many of your words.
I’m taking one day at a time and making the best of everyday. Knock on wood I’m doing ok with chemo for now. Have my 9th and last for a while in March.
If this helps just one person it’s so worth it!!!
Wishing you well, Linda! 💗
Prayers
Praying for you 🙏🏾💜
Praying for you dear.
Great that you're doing well on chemo!I have an 11x19x13 abdominal/pelvic mass (ultrasound & ct scan) going for an mri tomorrow..Its been a month of doctor/testing/doctor/etc...I'm terrified by the size,whatever it is,its coming out..I have an appt next tues with a gnc-onc...Preparing for the worst
My sister passed away at 15 years of ovarian cancer in 2005. I was 6. Had a full hysterectomy at 13. I can’t believe there’s still very little knowledge on this
Was it too far in that the doctors missed it ?
Social Rejectz no. They barely know anything about ovarian cancer TODAY imagine in 2005. :/. If it means anything she hated wearing her wig. She rocked her bald head that’s why I’m growing my hair out to donate it will probably be too my knees next summer :)
Krystal She Poppin Bless you xx
My mom passed away in 2016 from stage 4 ovarian cancer she was 46 years old. More research really needs to be for this type of cancer
My mom passed away of ovarian cancer in 2016
I'm a RN & the pain or condition you just always had is what ends up killing you. When a patient tells me its always just there or I have had it for years I know we need to check it out ASAP. My dad had lower back pain for years. Drs said its his job or the train accident he was in. He passed away in July with Stage 4 metastatic spine cancer.
My mom was diagnosed with late-stage 3 ovarian cancer when I was 9. She passed away several months later a month before my 10th birthday. I'm glad you were given a second at life and I hope you are doing well.
💗💗💗
We have to be our own patient advocate. I was told I had melanoma, after having surgery which left me incapacitated for a few months and 2 scars I was told they found no cancer. Then the wound was not healing so dr told me he may have to amputate. I removed bandages and it started healing and was healed within 2 weeks. I kept telling the dr all the wound needed was oxygen to heal. Most doctors are greedy. Thanks for sharing this video and God bless!
Yeah, they're greedy. In this case, it would have cost you an arm and a leg!
Sitting here and watching this on the 3rd day after my surgery. I find it amazing that ever since my diagnosis, I am finding all these sorts of videos! Proud of you!
I had to go to the emergency room twice because no one believed me. The pain was unbearable! I stopped eating, and I started to look pregnant. It turned out I had ovarian cancer. It was the size of a watermelon. Glad to say I've been in remission for 3 years.
Wonderful news.
Was the pain n your stomach or internally
@@reg8297 Internally...the pain travels over the body.
Please help
This breaks my heart. I literally cry to these people’s stories.
I had a similar pain and went to the ER and the doctor played it down and said it was an endometrial stripe and fibroids. I had to BEG for testing. The doctors always play down women’s pain and it s frustrating!!!
I have the same pain and was told it's probably a fibroid
My gyno just called me today and told me more fibroids have grown on my ovaries. From what they say fibroids are non cancerous. Due to my age and not having children I'm prone to get them. Can fibroids be tested? Should I ask her to get them tested if they can be? Idk what to do because she says its a lot of them.
@@aleakitty I went to my gyno for severe lower pelvic pain. She ordered an ultrasound. The results came back that I have even more fibroids that have grown on my uterus than the few I had before. IDK what to do she wants to see me back in the office. They say they are non cancerous.
@@Purppusay hi. I had surgery on November 2018 (a year and 3 months ago) i had over 50 fibroids removed and a cyst. I would be really upset if they came back so fast. 🤦🏾 i have my annual coming up so I'll have to see. Smh
@@aleakitty thanks for sharing your story. Im sending you healing prayers for those fibroids that they don't return.
At age 40, I went to the doctor 3 times before I was finally diagnosed with Stage 3C Ovarian Cancer.
Thank you for posting this. I needed to see this, I go in next week to have my ovary removed. They did the same bullshit to me as they did to this girl. The one recommendation I can give to anyone, is being an advocate for your own health care. If you think something is wrong Don’t Stop! I also have lupus which took them 12 years to diagnose. I flatlined in the hospital elevator and still they were like oh you’re fine. I never stopped fighting and I’m here today. Next week‘s going to be just another challenge that I will get through. If you’re reading this and you’re suffering from a physical health problem or a mental health problem Please know you’re not alone
How are you today?
How are you doing now 🙏🏽
#1ACervicalCancerSurvivor here 👐👋 we do recover, we can survive! Sending my love!!!!!
She’s so intelligent and I’m so pleased for her progress. She’s so young to go through that type of cancer and for every medical professional to not believe her it’s frustrating. I’m so proud of her for sharing her story.
I didn't think i would react with tears. I compare my oldest sister. The delay in treatment was what got her. Don't forget to be positive !!!!
Thank you for your testimony. My aunt just passed away from Stage 4 Ovarian Cancer. Praying for your continued health.
I wish her a happy and healthy life.
Girl you are so strong. An inspiration to all of us. Through all those scary time of not having the right diagnosis and not getting the right feedback, you stood strongly. Truly said, nothing is more valuable than health.
So proud of you lady! Thanks for sharing your story.
Thank you for your honesty and for offering up this video!
Similar story. I kept advocating for myself. ER first round benign. 2 years later ER visit again, ruptured cyst (10cm), which I was in pre op stage, and they told me the same thing, "oh it will dissolve on itself". .. I said nope give me another laparoscopy. Long story short it was stage 1C ovarian cancer. 6 rounds of chemo. 5 years in remission as of now 🙏.
This was exceedingly helpful. Thank you for sharing.
Thank you for sharing. I’m one year in with no answer but they haven’t even ordered one test. :( they keep saying I’m healthy and fine. I’m 38, gained 30 lbs in one year (I’ve only done this once when I was pregnant) something is definitely not right and this came up through my TH-cam this morning. I’m taking it as a sign and will find answers. Thank you again, your story is sure to save someone 💙
Be well. Thinking of you x
Omg! Same. I’m freaking out.
A trans vaginal ultrasound could check for fibroids and cysts I would mention this on your next doctor visit. I had both plus other symptoms
Amanda, you've done a great service to humanity by sharing your story. I was also told my situation was probably benign. I identify with everything you said. Thanks for saying that you have to heal from chemo. People think once the chemo stops flowing, it's over. I had to advocate for myself on many occasions during my journey, and I still am. God bless!
What a brave and beautiful woman.
I’ve been putting off a long overdue gynecologist appointment. I’m going to call first thing tomorrow.
I am so grateful to her for sharing her story.
The exact same thing happened to me at 38. Watching this was incredibly difficult because she touched on a lot of things people who haven’t been through it can never understand.
Hello 👋 how are you doing?
She is so well spoken and brave 💛
Thank you for such a beautifully honest reflection
She has so much strength. Wishing her happiness 💕
I am 40 years old and am currently going through the same. Everything you are describing is exactly how I feel. Just over a year ago I had to spend 3 days in the hospital for severe pelvic pains. Since then I have gone through so many medications and testings....lupron, gabbapentin, high dosage penicillin, ultrasounds, ct scans, xrays...nothing helped. I have a complex cyst but nothing done about that yet. Now after a year my doctor wants me to go see an oncologist. I have so many other symptoms and I know something isn't right. We have to advocate for ourselves. I feel like nobody is hearing me. Thank you for the video and I wish you the best xo
What??? I hope the outcome was positive. Man, the stories keep getting worse. Should have pushed for a laparoscopy. I'm tired of these docs ignoring us.
Thank you for shearing you’re story with us ❤️
Powerful story. You are becoming a very good advocate for yourself. Keep it up! As you've learned, docs are not all the same nor are medical facilities. You speak well and present your story in a way that holds a person's interest. My best to you.
She’s a true inspiration for all the woman fighting against all sorts of ovarian problem ❤️
I want to hug her so bad. Shes incredibly strong and so inspiring. ♡
This is incredibly similar to my story. My "cyst" is also 13cm, saw a gyno and a specialist, I'm waiting for my oncology appointment now, but keep getting told it's nothing serious, and I think it's because of my age (I'm 27). It must be serious if I'm seeing an oncologist! You've given me hope and strength to know I can kill this just like you did. 💪
Karlie Marshall You are 100% correct about doctors factoring age. I was told by a former gyn that “it’s probably just pcos and it will resolve itself.” My primary care doctor was floored by this response and referred me to another gynecologist. Then he gave me a firm lecture of not sticking with doctors that don’t listen to my concerns. His exact words were, “It is pure laziness and unprofessional for a doctor to make a diagnosis without testing. If a doctor sends you away without testing with an issue unresolved, never go back there.” When you’re under 50 years old and you have cancer it is considered rare but rare does not mean impossible.
Please look into medical medium. Don't eat eggs. They feed the viruses that cause cysts to develop and grow. Many are healing. He has an instagram.
Karlie Marshall, i went for a fertility screening today and there was a 10cm cyst on my right ovary and 5cm on my left. The right looks ‘fine’, but they are concerned about the left. I’m 32 and desperate for a baby. I’m terrified, but, if I’ve got to fight this, I guess I’ve got to fight this.
Sending love to everyone going through something similar. 💪🏼
@@gracebird3271 Hope all is well, wishing you health and happiness :)
Was it cancer?
Im so proud of you. Your incredibly strong and brave
Im so glad i found your story! I wish you are well! Sending u love and prayers.
I'm so sorry you had to go through the experience of cancer. And so grateful to you for sharing your experience so openly. This will help a lot of women understand why they need to be proactive when it comes to their health. Thank you so much. May God's blessings be upon you.
Having PCOS I worry about this so much 🥺
NamiGoddess same girl ! :(
What an amazing woman you are!!! So glad you won your fight❤️
Having family and friends who support and love you is the most important thing when going through something like this... Imagine going through this all alone
You are such a inspiration. I have papillary carcinoma thyroid cancer. I've been going threw such a rollercoaster & my goodness you have helped me so much.💙 I'm so grateful for this video.
You’re strong and an inspiration to many 💯🙌🏽🙏
Thank you for telling your story! much love to you sis!
Such a brave, strong young lady. Thank you for sharing your story with us beautiful warrior ❤️
When she said I was looking for someone to believe me!! I felt that so much!!!
I was 64 when it ended for me. I've been overweight most of my life and I'm short. I started my period when I was 15, had a baby at 16 and from then on always had a really heavy period; think wearing 3or 4 heavy days or overnight pads for years. Then one day after I'd gotten out of a nursing home for a non-related incident I started spotting again. Been home 3 or 4 months after Christmas and I started bleeding very badly even worse than a regular one I was used to having. I bled down to a 3 volume of blood maybe just enough to allow my heart to beat. My husband called the ambulance because I was too pale and I hurt all over. I had a DNC and a appointment was made for me to an oncologist. Had a complete hysterectomy on 9/11/18. Lived for two weeks depressed and on edge. I had cancer but it was all removed. Didn't have to have chemo. Coming up on 2 years but, my heart meds made me lose most of my hair on top of my head. I have CHF with a side of AFib. Still dying but DAMN I enjoy everyday with my husband and Lab Sadie. You'll get there. And the hair meant nothing, it was that beautiful survivor staring back at you in the mirror.
Best wishes! Keep on living your best life.
❤️🤗🌺
Uterine cancer?
@@allisonlew4508 dies sound like it--chronic fibroids that eventually became cancerous.
Best to you dear girl! Thank you for sharing your journey.
Inspirational lady with an important message...thank you for sharing ❤️
I WISH HER THE BEST.
SHE IS A FIGHTER.
MUCH LOVE AND RESPECT...
❤
I'm 24 and I've yet to go to a gynaecologist. I've been having lower pains and I'm dealthy afraid to hear bad news. You're so strong and amazing.
I got my first ultrasound at 29.. Just a chocolate cyst (endometriosis).. Second ultrasound at 30.. "nothing but dermoid cysts".. Third ultrasound like a month later.. "a dermoid cyst and a chocolate cyst".. A fourth ultrasound "both could be chocolate cysts or maybe the other one is a dermoid cyst, you need to get a scan..".. Well on the 13th they will check what's going on.. Fck the last 14 months have been exhausting.. 4 different doctors.. I still don't know
TheInternet Sucks same, I’m 24, haven’t seen a gynecologist and I’m waiting for them to call me to make an actual appointment. I had a ruptured cyst recently and my doctors didn’t even tell me. I’ve lost so much weight and I’m always bloated. None of the doctors know what’s wrong with me.
Hello Hayley, how are you?? Have u seen a gynecologist yet?
You have to go. Chances are the first three doctors will miss something or they won't take you seriously. I hope you went.
@doloresm7396 I still haven't seen anyone for it. I went to 2 different doctors and they wouldn't check me
Incredible story, thank you for sharing! ♥️
Thank you for sharing your story 💗