Guys, I checked it out, and Tiffany is still alive and doing well. She is now the president of the Acid Maltase Deficiency Association (AMDA). I am so glad to see her living her life to the fullest, and it is partly thanks to her parents, who never gave up on her and did everything they could to help her :)
No, it's not weird - we all long to be loved and valued. Even if you did die unnoticed and not be missed, this does not change the value of who you are - a treasure on earth. Perhaps you could find someone in the same boat as you & make sure they don't die unnoticed, & they'd know they will be missed by someone - you :). A treasure - remember that.
I have a problem with my digestive system that no doctor that ive seen in my life can say what is it... and well, i suffer from extreme pain sometimes and my parents think I fake it.... so I understand how you feel... I feel kinda lonely thanks to my problems... Im jealous that their parents really care about their kids problems and actually people believe them...
My mothers aunt switch from perfectly healthy to dead in 2 months because of an auto immune desease that affect she's muscles. After a month she can't move their mouth to talk or eat, and 2 weeks later start having problems to breathe. I don't remember the name of the desease, but that is a horrible death.
wow, this is so interesting and challenging! I am so impressed of both patients and their loving relatives that they never gave up!!! My heart goes out to them ❤
I can't get over on how great these documentaries are, so informative and give us an insight into what we as human can go through in life. Thank you for uploading it.
My whole childhood doctors would dismiss my issues, saying I was a "weak child" or an "unfit child" - turns out I suffer from chronic pain. Always keep searching for the answers because you know your child and your child knows their body best.
@@mirikira8632 it's Fibromyalgia and chronic fatigue. Don't you worry, I fought hard to get diagnosed, though I had to get badly injured for the doctors to take notice!
@@sarahrebeccatippling it took years for my relatives to get my diagnosis because my pediatrian first was like-oh you kid,you probably acting up.Second pediatrian immediately helped and i was diagnosed with reumathoid arthritis at age of 10.
The video is great and informative and it's so nice that it spreads the information, but the editing is atrocious with the cuts, the flickering all the time, but still i commend the spreading of awareness for these topics
My mum past away from lung cancer due to doctors not doing ANY test on her once they finally done a chest xray after 5 yrs she had a tennis ball sized tumor on her lung she passed 10 months later. PUSH FOR TEST ADVOCATE FOR YOURSELF!!!
So many, I watch Dr Pamela Popper who talks about how many medical interventions are unnecessary and harmful particularly breast cancer. I will not have another mammogram now I know what I know. Remember most doctors receive most of their ongoing medical training from drug company funded research only.
Not that many actually. Fujimoto disease is so extremely rare that there are only a handful of doctors worldwide that are specialized in it. There are other conditions that are misdiagnosed way more than lymphoma…
these types of documentation deserves a million viewS, how weird human are nowadays theyre just wasting their times in non educational stuff and now most of their times in TIKTOK.
Even her jaw muscles got weak her mandile moved downward and forward, her faceshape changed. She still pretty tough. But think how different for her to breath.
U can always tell us Brits by the spelling of certain words like programme theatre colour the usual suspects!!! Great episode and such a happy ending for Tiffany in the first story!!
Does anyone recognise what episode this case is from, I saw it years ago and can't track it down. - it was a grown man - he had balance and dizziness issues - there was an inner ear problem - then they found out his brain had fallen into his inner ear That's all I remember but it was the most interesting episode of Mystery Diagnosis and I can't find it at all!
The “XPatientX can’t help but wonder why it took so long to get a diagnosis” drives me nuts. Obviously because it’s rare?? Or is that not common sense??? 🤧
2nd storie is shockingly l like most I’ve done 20 years and so ill I’ve give up got no fight left after everyone I see say I’m ok in 1 st ten years I knew dr that believe what I say after found I had cancer now dr closed down moved too new 1 now get same thing nothing wrong again I have no fight left feel like I wanna die
What blows my mind is that that pediatrician was a cousin... I mean... I don't want to be mean and they are wonderful people and parents but the first thing for me would have been to ask my husband to get in touch with that cousin.
I always wonder when i watch these mysteries: dont US doctors and nurses have systemic ways of working? Are they just doing what pops in their head, or do they actually have a plan?
If this would be happen in the Philippines that Doctors can't figure out the disease, well only one can figure it out in the Philippines "albularyo" and Pinoy could call it "Kulam" 🤦🤦🤦 specially in the province.
SOoOOOOO just for general knowledge, humans die if fever goes above 40 something celsius, so you tell me which one you think it is if 100 is more than double that
Steven Hawking had ALS - Amyotrophic lateral sclerosis Normally, people die from this so fast...but he defied the odds and reached a very normal life span!
Guys, I checked it out, and Tiffany is still alive and doing well. She is now the president of the Acid Maltase Deficiency Association (AMDA). I am so glad to see her living her life to the fullest, and it is partly thanks to her parents, who never gave up on her and did everything they could to help her :)
thank for the update , so how old is she now?
@@Jolenesmart1980 she is in her 30s
Gosh I’m so glad she’s ok.
What a wonderful family.
Thank you for letting us know
Thank you for the update glad she’s doing well
I can feel all the love of Tiffany's parents for their children. Our world needs more of this kind of people.
Man her story and her dad and mom really moved me
Definitely 💕
@@BlackLabelSlushie😮
The parents in all these clips go above and beyond, they are incredible and they deserve a lot of respect
Tiffany's parents loved her to the point of invention. Thats amazing
Addicted to these medical mysteries 🤷😊😅....idk if it's normal or not
I'm addicted to:)
Me too. I've been watching for about 2 years now. I've seem all episodes and most several times
You and me both!
Same
am also addicted 😹😹😂
what a love these parents have for her beyond blood and flesh😪❤️❤️❤️
Ikr...😓
Btw the usual order is flesh and blood....
Exactly what I though!! It’s amazing that there are people capable of such love!!
Is it weird to be jealous of them all for having someone that really cares about and for them?
I would just die unnoticed and not be missed.
My dear u may think that but the real thing is that the r many people in the world who care for u just that u have not meet yet.
No, it's not weird - we all long to be loved and valued. Even if you did die unnoticed and not be missed, this does not change the value of who you are - a treasure on earth. Perhaps you could find someone in the same boat as you & make sure they don't die unnoticed, & they'd know they will be missed by someone - you :). A treasure - remember that.
Same here
@@johndaleabesamis3526 why do u think nobody care about you
I have a problem with my digestive system that no doctor that ive seen in my life can say what is it... and well, i suffer from extreme pain sometimes and my parents think I fake it.... so I understand how you feel... I feel kinda lonely thanks to my problems... Im jealous that their parents really care about their kids problems and actually people believe them...
I love it when l see adoptive parents doting on children so much, expecially when you compare biological parents totally unworthy
Trust your dance teacher’s assessments, they know a great deal about musculoskeletal systems.
My mothers aunt switch from perfectly healthy to dead in 2 months because of an auto immune desease that affect she's muscles. After a month she can't move their mouth to talk or eat, and 2 weeks later start having problems to breathe. I don't remember the name of the desease, but that is a horrible death.
wow, this is so interesting and challenging! I am so impressed of both patients and their loving relatives that they never gave up!!! My heart goes out to them ❤
I can't get over on how great these documentaries are, so informative and give us an insight into what we as human can go through in life. Thank you for uploading it.
Our immune system is such a mystery. . .
Yes, that's why adjuvants in vaccines can cause autoimmune diseases. Watch Vaxxed the movie. Doctors really don't know everything.
The loveliest parents so much love here , her mum never gave up
My whole childhood doctors would dismiss my issues, saying I was a "weak child" or an "unfit child" - turns out I suffer from chronic pain. Always keep searching for the answers because you know your child and your child knows their body best.
Chronic pain caused by what? Chronic pain is not a diagnosis, it is a result. You just have to find out what causes it. Don't give up.
@@mirikira8632 it's Fibromyalgia and chronic fatigue. Don't you worry, I fought hard to get diagnosed, though I had to get badly injured for the doctors to take notice!
@@sarahrebeccatippling it took years for my relatives to get my diagnosis because my pediatrian first was like-oh you kid,you probably acting up.Second pediatrian immediately helped and i was diagnosed with reumathoid arthritis at age of 10.
@@sarahrebeccatippling try AIP. There are support groups on Facebook and it is just amazing.
@@sarahrebeccatippling Same here, hope you are doing okay? x
Tiffany is such a brave and beautiful girl.
Tiffany you are great woman! You are going to win your battle against this horrible desease!❤❤😊
Wait y'all this is a new one!!!!!
I've been watching these so much I can't even notice when they were uploaded.
There's nothing more satisfying than finding a new episode 😅❤️
I love medical mysteries. Keeping me sane through lockdown lol
Finally not a repetition 👏👏
This reminds me of the movie Lorenzo’s Oil which was based on a true story.
There are so many “dramatic turn for the worse” in these episodes.
I really don't like the naration, I'd prefer to have only the people that went through it talk
The video is great and informative and it's so nice that it spreads the information, but the editing is atrocious with the cuts, the flickering all the time, but still i commend the spreading of awareness for these topics
I agree, it's very interesting but a big sensory overload unfortunately.
My mum past away from lung cancer due to doctors not doing ANY test on her once they finally done a chest xray after 5 yrs she had a tennis ball sized tumor on her lung she passed 10 months later. PUSH FOR TEST ADVOCATE FOR YOURSELF!!!
I hope she sees this message You go girl stay strong your awesome
That made me think how many were misdiagnosed as lymphoma..??
So many, I watch Dr Pamela Popper who talks about how many medical interventions are unnecessary and harmful particularly breast cancer.
I will not have another mammogram now I know what I know.
Remember most doctors receive most of their ongoing medical training from drug company funded research only.
Not that many actually. Fujimoto disease is so extremely rare that there are only a handful of doctors worldwide that are specialized in it. There are other conditions that are misdiagnosed way more than lymphoma…
Fantastic programme such sad stories but out of the havoc comes human strength and love of families to bring them through those tough times!!
only the billionth episode iv seen haha anyone else binging???
Great Amanda!😊😊
Such an interesting episode!!!!
these types of documentation deserves a million viewS, how weird human are nowadays theyre just wasting their times in non educational stuff and now most of their times in TIKTOK.
Even her jaw muscles got weak her mandile moved downward and forward, her faceshape changed. She still pretty tough. But think how different for her to breath.
Mandibul
@@localwalker5696 Still wrong, it's mandible
Tiffany you are so brave and your father adores you!!💕
you know when they show the doc and his/her name that they are the one who solved it
Yay one I haven’t seen!! Uk viewer 🤍
Ayyy, me too!
Hello fellow UK viewer
Uk 😎
Same here. This programme is so interesting.
U can always tell us Brits by the spelling of certain words like programme theatre colour the usual suspects!!! Great episode and such a happy ending for Tiffany in the first story!!
Beautiful girl Beautiful family..
So special all of you
Dr Marc Patterson- Australian university of Queensland alumni
Off topic, but the mother is gorgeous.
I am happy for her. I hope one day someone will work out what is wrong with me.
Where was Dr House to help Tiffany House? But it takes an Australian specialist to diagnose something ‘unusual’.
Spiral Python Not true for all of us, dearie. At least we have Medicare though - thankfully. 🇦🇺
Sounds more like a kiwi
Either Australian or South Africa brought up in Australia.
A new drinking game :-
Every time you see a slow blink ... have a drink!
Cheers 😊😊
**do not do this, you may die**
Why would you even say/do that? it's not something to make a joke of
Does anyone recognise what episode this case is from, I saw it years ago and can't track it down.
- it was a grown man
- he had balance and dizziness issues
- there was an inner ear problem
- then they found out his brain had fallen into his inner ear
That's all I remember but it was the most interesting episode of Mystery Diagnosis and I can't find it at all!
You could try emailing the channel to ask to see if you can contact mystery diagnosis…. You never know…
The name of this episode is Falling through the cracks, its on TH-cam 😊
Amazing in the world here a lots of things in mystery,Stay connected.
Antibioics don’t have any impact on a virus, so that doctor made a bad decision.
These uncureable diseases are saddening
The “XPatientX can’t help but wonder why it took so long to get a diagnosis” drives me nuts. Obviously because it’s rare?? Or is that not common sense??? 🤧
The healthy human body is extremely complex and intelligent.
And a minor abnormality has such an impact.
All starts for genes it's human coding.
Subhan Allah💚
In the case of the girl, the symptomes in the eaarly years can also be caused by a big lack from vitamine D.
*Very often a simple granuloma can be misdiagnosed as cancer in the throat etc.*
Nah totally different histology.
One if got misdiagnosed then might be not that much different from normal tissue means less severe
@@moodmeditation4458 - You don´t know what you don´t know...
Lymphadenitis is NOT a diagnosis
i wonder because tiffany was adopted you wouldnt know her biological parents full medical history
2nd storie is shockingly l like most I’ve done 20 years and so ill I’ve give up got no fight left after everyone I see say I’m ok in 1 st ten years I knew dr that believe what I say after found I had cancer now dr closed down moved too new 1 now get same thing nothing wrong again I have no fight left feel like I wanna die
Wait wait, amoxicillin for a cold?!?
Well it doesn't seem like it was 2020 back then :)
Yes I drank pints of it every year turns out I had winter allergic rhinitis
Better to take antibiotic with throat infection Bec it's staph mostly.
go tif! you made a bigger mark in this world than me
Autoimmune diseases seem to be extremely common.
the houses needed House!!!
i hate the dramatic blinking it ruins everything💀
Prayers
I wonder how many of the people in these shows actually watch the episode
Parents know when something is wrong
Is there a update on Tiffany?
I googled her and 2017 she was still alive and 32 years old. She wrote a paper about herself. I really hope she's still out there defying her "fate" ❤
I googled her and as of this year she’s still very much active within the organization ❤️
Reminder for people watching these things to watch it at 1.75 speed :)
Breakfast at Tiffanys turned into lunch and dinner also. 🤣😂🤣
She's on her way to Pompeii to sell Glucose 🤣😂🤣
And no one did a blood test?!!
Why didn't allow translation
You dont treat a cold with antibiotics!
Surely all the parents had to do was to take her to the specialist and ask them to watch the girl go up the stairs and climb into their car?
What blows my mind is that that pediatrician was a cousin... I mean... I don't want to be mean and they are wonderful people and parents but the first thing for me would have been to ask my husband to get in touch with that cousin.
Slow blink syndrome >
I always wonder when i watch these mysteries: dont US doctors and nurses have systemic ways of working? Are they just doing what pops in their head, or do they actually have a plan?
If this would be happen in the Philippines that Doctors can't figure out the disease, well only one can figure it out in the Philippines "albularyo" and Pinoy could call it "Kulam" 🤦🤦🤦 specially in the province.
Not that figuring out the disease helped the patient.
And her name is House!! To bad there is no real dr House..
It wasn't a mystery, just incompent drs. If a child falls over their definatly a problem
You do wonder if with all today's diagnostic techniques many of these cases could have diagnosed sooner.
What is it with this piece of film, its very shuddery and flickering lights! gives me a headache
Tissue warning.
♥ Dr.Sokol = czech dr. ♥
Yeah! Czech here 😍♥😇
The doc. that found out the rear condition is he Russian?
Try the Alkaline Diet for Tiffany.
Peace and Blessings 💖
The dad of Tiffany looks like an off-brand Tom Hanks I'm so sorry
The second case is clearly a COVID-5 infection.
Giorg189 it’s called COVID 19 not COVID 5 you idiot
Its covid 74 you idiot it cant be covid 5 or 19
what are u talking about whats covid?
@@sjsksgwkwksksjw3092 😑
@@killingeveedits8228 whAt?
The doctor is a Kiwi
Maybe Australian?
That is an Aussie accent, and he went to Queensland Uni.
kikuchi fujimoto disease (KFD)
👁👁
When Tiffany’s temperature was 101-104 degrees, do people think it was Celsius or Fahrenheit coz idk
Are you serious? 🙄
USA=Fahrenheit, most of the rest of the world=Celsius
SOoOOOOO just for general knowledge, humans die if fever goes above 40 something celsius, so you tell me which one you think it is if 100 is more than double that
Uh... She'd be boiling from inside out at 101-104 C
I know this is very off topic, but I am just here to reassure you that not all Czechs have this terrible accent like dr. Sokol does.
😅👍 jojo 😄😉
Hey, your name reminded me of the former tennis player, Hana Mandlikova.
Useless doctors ??!!!!!!!!
So over dramatized music too loud jumpcut after jumpcut all in the first minute don't waste your time.
This is old video
Yup
she is cute
Same thing Steven Hawkins had it seems, he was a Scientist.
This is VERY different from what Hawkins had. She has a missing enzyme, his brain and spinal cord was actively dying over the course of his life.
@@wendillon92 no his muscles were dying
Steven Hawking had ALS - Amyotrophic lateral sclerosis
Normally, people die from this so fast...but he defied the odds and reached a very normal life span!
@@andisgirl no he had motor neuron desease
Jesus is the only path to the Father. Believe on him and you'll be saved.
Nah, believe in actual science that can cure you or at least help you
Not everyone has your faith I’m afraid ! 🙏