If the doctor cant figure out what's wrong, theres nothing wrong with admitting that. But at least make referrals to specialists. Baffles me that some docs dismiss patients when they cant figure out.
Why can't they just refer baby to a specialist instead of putting family and sweet baby through all of this suffering for no reason. Gp drs just got to be right or what? I do not get it!
These aren't true stories I think they have built up a drama around an actual rare diagnosis. In reality, someone taking an infant to a GP would be given an immediate referral to a pediatrician. They would also be admitted not told to take a sick child home.
@@angelasmith7912 Angela thanks for your reply. I worked for many years in Australia as an RN so I am familiar with that system Now retired in the UK where we have the NHS. I am not familiar with the US system but I thought they would work in a similar way but I am aware that insurance can be an issue. Very scary if a patient needs an urgent referral cannot get it.
If you can not wake up your baby, it is a medical emergency! Go to another doctor, or another hospital, or whatever it takes till someone pays your baby the attention it deserves.
The last doctor they went to said that it's a disease that you would never find if you werent already looking for it. Even he wouldn't have found it unless the mother did the research online and asked him to do tests for it on a hunch.
This happend with my cousin as a baby no dr would listen until he was rushed to hospital then eventually transfered to specialist childrens hospital and they found out he has a super rare illness as in only 4 children in the world has had it and all died by age 2 he was lucky hes the only one who survived it and reached adulthood but he spent the first years of his life in hospital
So true. I had a entero virus and went to the doctor because the hives had gone but I felt worse than before, my head hurt so bad that even moving my eyes was painful and my neck was stiff and sitting up made the room spin. Doctor: "Oh don't worry, it's just that you were quite sick and you're still recovering. Just rest, get some ibuprofen for the head ache and take it easy for a while." At home I googled what complications entero can have because this can't be normal. One is meningitis and my symptoms matched so my parents immediately took me to another doctor and lo and behold I had meningitis. I had the less dangerous type so they sent me home with strong pain medication etc. for it and they told me to come back immediately if I start feeling any worse or if it doesn't start to get better in a few days. In the end I had to skip school for 2,5 weeks because first I was down with the entero virus and after the meningitis too essentially cleared it took me a few days to be able to be up long enough to actually be able to attend school again.
So, they weren't worried at all that this kid was severely dehydrated, obviously having nourishment issues, and unresponsive? This is a baby we're talking about. This is part of the reason why the child mortality rate in the U.S. is the highest in the western world. It's ridiculous. This baby was so clearly very ill. He should have at least been put on fluids and kept in hospital for observation. And how in the world can the doctors keep saying it will "run its course" and "it just needs time". The kid was dealing with the same issue for the whole first year of his life. That's long enough to be concerned. To make matters worse, how in the world did the family not believe them? That makes no sense at all.
As furstrating as the carelessness of the doctors can be, to see how resilient and thankful the patients are and how loving their family is towards them, still has to give one hope.
I have seen this documentary before and I'm so glad to see it posted again. I myself have dysautonomia (POTS) and this condition is a true nightmare which is made 20 times worst by other people sometimes not believing unless you collapse before their eyes. At times I had unbelieving doctors send me home unable to walk and without no help so leaving me having to crawl around my house. I cant do things like stand at the sink to do my dishes and have trouble sitting with my legs down as that triggers it too (so have to use a legs raised wheelchair).
I have POTS too! I have to sit on the floor of the shower when i take a shower, and the last year and a half for me has seen me go from able to stand and run around at work, to in and out of the hospital last summer, and unable to go much of anywhere.
Wishing you improved health. It’s so frustrating to not be able to complete even the simplest tasks. Try and stay positive. Look for the little pleasures in life and pray for healing.
I have orthostatic hypotension. Similar to POTS but tachycardia isn't usually involved. It took me passing out while having a casual conversation with my doctor for him to realize I had an issue. I was first sent to a pediatric cardiologist because my doctor swore up and down I had a heart problem. The cardiologist was the one who figured everything out. I was so relieved and I could finally start treating my problem. I was in my early teens when I was diagnosed. I'm 24 now and everything is so much better. I get dizzy spells at least once a week and I only pass out a couple times a year which is a huge improvement.
I have POTS as well. It's terrifying to walk down the street and then suddenly feel like you are going to faint. I've had so many doctors tell me that it's just vertigo. I've had vertigo before and it feels entirely different. I wish I had a dollar for every misdiagnosis I've had over the years.
Finally one diagnosis I knew: Orthostatic Intolearnce. I would have done a tilt test the first day she would have come to me with episodes of syncope and tachycardia. I am a lowly GP.
Go you keep up that attitude. As someone who has and does experience this horrible dismissing attitude from drs in hospitals many times in regards to my chronic illness; FND functional neurological disorder and Fibromyalgia accused of lying, going crazy ect my GP was and is my best advocate. I have also been misdiagnosed because of this dismissal I suffered from. 2016 and drs said depression and serotonin syndrome for my first seziure and my chronic fatique and pain as overworking it was actually FND. I was diagnosed in 2019 but only after a week and almost being sent home from ED after my bloods came back normal my speech was sluring I was dizzy but still were going to send me home then I had a 45 minute seziure so they decided oh well we 'better admit you' gee thanks. it took a week to get a diagnoses from the neurologist so please keep up this attitude you won't know the difference you make but you will by being persistent and listening to us, so thankyou from someone who needed an advocate like you in the beginning of my journey
if someone presents as mostly normal and has a extremely rare disease I can understand why most doctors wont catch the disease. that being said if your doctor doesn't listen go to a new doctor.
K Ebonhawk There are so many diseases out there, how can any doctor possibly know all of them. That is why there are specialists, so that all the diseases can be known but the knowledge is spread out among different specialists.
Honestly, it's so scary that this happens. I've been suffering with breathing problems and chest pains for some time now, and doctors have never found anything and just keep telling me it's anxiety - which I admit is very possible. But it also makes you wonder whether you really do have something nasty that they just haven't seen or diagnosed.
Ksenia it’s so easy for them to pass everything off as anxiety. What if the anxiety is caused from something being actually wrong and no one cares. That happens all the time. They’d be anxious too if they were ignored.
The way ppl are forced to that level of advocacy, knowing and feeling deep down something IS WRONG just makes me angry. As someone who is living with life long disease, it's the absolute worst thing to fight for care. Those who cannot and have no one to help are the ones who die needlessly
Watching these Mystery Diagnosis episodes I wonder how many people were sent home with "It's nothing, don't worry" or sth similar and then died at home. It's sad that many doctors don't seem to care much.
I went in to the doctor with migraines, fatigue, and lightheadedness when standing up and they immediately suspected Orthostatic Intolerance. So awful that they didn't test her sooner.
I have POTS (postural Orthostatic tachycardia syndrome)and gotdiagnosed at eighteen, eight years after I started having symptoms. Only reason i got diagnosed was because one of my highschool teachers was a RN and called mymother and told her to take me to the cardiologist. My heart actually stopped on the tilt table test.
So So Sad that Most Doctors do not listen to a patient or Mother when the are paying the Doctor for an Office Visit to discuss symptoms !!!!! I explained my symptoms for over 10 years before ONE Nurse practitioner listened to me and in under 5 minutes she ordered an MRI because she knew it was MS and she was Right. I too was made to feel like I was crazy in the 10 years before I was diagnosed.
I understand where you are coming from. It's absolutely maddening that so many doctors don't listen and wrote you off if you have a condition that isn't clear to them. None of them do any research or actually try to figure out what is wrong with you.
I feel you. I have orthostatic hypotension and It took me passing out, mid conversation, standing in front of my doctor for him to realize there may be something wrong.
It’s taken a year but I have finally been diagnosed with POTS (Postural Orthostatic Hypotension Syndrome). I can’t seem to walk more than a few feet before I feel so lightheaded that I have fainted. My head feels like it’s going to explode, my whole body starts shaking and down I go. Usually I will have pain in my neck and shoulders and even feel burning in my ears. My doctors are conferring about treatment but I’m relieved that they have finally diagnosed it.
I love that they cover dysautonomia/ autonomic dysfunction in the time period that one of the most recognized types (POTS, which I'm assuming Linda's diagnosed with since I'm not at the end of the episode yet) was medically recognized! 1993 was when that happened.
18 years ago i always have migraine headache and i started taking vitamins and my migraine headache gone. About 7 years ago i had a customer, she had migraines headache almost everyday for few years. She had to take botox all the times for her migraine headache .I feel sorry for her. I have tried to help her make her migraines headache go away. Since she know me her migraine headache go away slowly. She seems happy and I'm happy too. Her migraine headache disappeared and she stop using botox.But she told me that her doctor get angry cause he loss a patient. I was afraid that her doctor will after me 😀.I hope she always healthy and her migraine headache will go away forever.
I have pots too! I’ve been dismissed by my doctors as well. Until I was in a clinic to treat an eating disorder when I collapsed so often that the doctor there did some tests and gave me the diagnosis pots. They also gave me meds that have helped me since. So I am very luckily to be diagnosed at the age of only 17😊
I knew this episode was about dysautonomia before watching it , I haven’t yet , but can see by the comments . I have NCS . This condition is similar to POTS , a true living nightmare
Wow, who woulda thought chronic diarrhea and vomiting causes dehydration, lethargy and listlessness huh? Well that's why they get paid the big bucks I spose.
I agree I had a specialist behaving badly towards me .I was in terrible pain.he could not diagnose me but didn't refer me ! Turns out I had ankylosing spondylitis
the first case was delayed really long. i can understand the initial symptom presence would not equate a serious condition but subsequent episodes are clearly indicators that it is serious. for the last case, the doctor’s diagnosis is remarkable and he deserves a standing ovation for that.
Both off the people in this episode I could guess what they had because I recognized it from the youtuber Chronically Jaquie, she had both of those. RIP Jaquie
Medical intuition helps! ..... Within reason .... whenever possible ..... be your own medical advocate! ...... Use and or acquire a "second sense" ........ This gift has saved many lives! .......
Why do most of the people who are interviewed show rash like blotches around the neck and face? I honestly feel like most drs are not interested in what you tell them and what you’re going through. I’m sorry the baby was suffering so bad. I probably would have fired the pediatrician also.
Ehlers Danlos Syndrome complications of autonomic dysfunction with porphyria types. Some can have stenosis, CCI, Chiari, tethered spinal cord, spinal fluid leaks the list goes on & on it is not only OI Orthostatic Intolerance or Syncope or POTS it is more... The major symptoms of porphyria is Tachycardia, shortness of breath, abdominal pain, but pain also, fatigue. Dysautonomia, ME/CFS EDS labels even told they have lyme
Hannah C. Rosenblatt I‘m not a US citizen, so I could be wrong, but apparently ambulance rides can be very expensive. There are subscriptions to specific ambulance service providers; those are way cheaper. Otherwise you can end up with a bill of either 500 dollars or 5000 dollars; in spite of there being rules and guide lines for the billing, it seems to be pretty arbitrary.
In South Africa some of the ambulance drivers stop at KFC to get some food. They leave the patients on their own in the ambulance while they take tea- or lunch breaks...
Why not breast feed this baby? F.G.Sake Dairy formula, he's not a cow! Seriously the medical system in the US is ridiculous You can make an appointment with any specialist you feel like? So many examples of Drs on these shows are negligent.
If the doctor cant figure out what's wrong, theres nothing wrong with admitting that. But at least make referrals to specialists. Baffles me that some docs dismiss patients when they cant figure out.
Why can't they just refer baby to a specialist instead of putting family and sweet baby through all of this suffering for no reason. Gp drs just got to be right or what? I do not get it!
Agreed, so wrong of them to do that!
My own doctor looks about 12 and inspires no confidence!!
These aren't true stories I think they have built up a drama around an actual rare diagnosis. In reality, someone taking an infant to a GP would be given an immediate referral to a pediatrician. They would also be admitted not told to take a sick child home.
@@robertfletcher3421 in an ideal world, yes, but sadly not in my experience
@@angelasmith7912 Angela thanks for your reply. I worked for many years in Australia as an RN so I am familiar with that system Now retired in the UK where we have the NHS. I am not familiar with the US system but I thought they would work in a similar way but I am aware that insurance can be an issue. Very scary if a patient needs an urgent referral cannot get it.
i know this is way besides the point but linda's voice is *so* relaxing
Kpop is everywhere 😂
Hi Dahyun 👀
I agree
If you can not wake up your baby, it is a medical emergency! Go to another doctor, or another hospital, or whatever it takes till someone pays your baby the attention it deserves.
They did..
The last doctor they went to said that it's a disease that you would never find if you werent already looking for it. Even he wouldn't have found it unless the mother did the research online and asked him to do tests for it on a hunch.
@@izaicslinux6961 Hola
@@izaicslinux6961 ñaaaaaaaasssassssssssss
This happend with my cousin as a baby no dr would listen until he was rushed to hospital then eventually transfered to specialist childrens hospital and they found out he has a super rare illness as in only 4 children in the world has had it and all died by age 2 he was lucky hes the only one who survived it and reached adulthood but he spent the first years of his life in hospital
*patient* "my head feels like it's going to explode"
*doctor* "it's nothing, don't worry about it"
🙄
Thats so true..
So true. I had a entero virus and went to the doctor because the hives had gone but I felt worse than before, my head hurt so bad that even moving my eyes was painful and my neck was stiff and sitting up made the room spin.
Doctor: "Oh don't worry, it's just that you were quite sick and you're still recovering. Just rest, get some ibuprofen for the head ache and take it easy for a while."
At home I googled what complications entero can have because this can't be normal. One is meningitis and my symptoms matched so my parents immediately took me to another doctor and lo and behold I had meningitis. I had the less dangerous type so they sent me home with strong pain medication etc. for it and they told me to come back immediately if I start feeling any worse or if it doesn't start to get better in a few days. In the end I had to skip school for 2,5 weeks because first I was down with the entero virus and after the meningitis too essentially cleared it took me a few days to be able to be up long enough to actually be able to attend school again.
So, they weren't worried at all that this kid was severely dehydrated, obviously having nourishment issues, and unresponsive? This is a baby we're talking about. This is part of the reason why the child mortality rate in the U.S. is the highest in the western world. It's ridiculous. This baby was so clearly very ill. He should have at least been put on fluids and kept in hospital for observation. And how in the world can the doctors keep saying it will "run its course" and "it just needs time". The kid was dealing with the same issue for the whole first year of his life. That's long enough to be concerned. To make matters worse, how in the world did the family not believe them? That makes no sense at all.
Exactly! Unbelievable.
This series shows the incompetence of the medical system rather than a mystery diagnosis
Its how american doctors study medicine. Won't happen in Austria
Hate it when Drs pat you on the head and send you away either not knowing or caring.
I can name 20 of these kind of doctors in northern Virginia alone.
@@catherinehermansen4376 I've been to so many doctors like that, makes me so mad
It’s infuriating. I hope that I never become that kind of doctor...
Dr Google will help you
@@rohitkhosla8110 true, many a time Google has been helpful in research.
it blows me away how much in general doctors study to be able to just dismiss people and not listen to what they are saying!!!
As furstrating as the carelessness of the doctors can be, to see how resilient and thankful the patients are and how loving their family is towards them, still has to give one hope.
I have seen this documentary before and I'm so glad to see it posted again. I myself have dysautonomia (POTS) and this condition is a true nightmare which is made 20 times worst by other people sometimes not believing unless you collapse before their eyes. At times I had unbelieving doctors send me home unable to walk and without no help so leaving me having to crawl around my house. I cant do things like stand at the sink to do my dishes and have trouble sitting with my legs down as that triggers it too (so have to use a legs raised wheelchair).
I have POTS too! I have to sit on the floor of the shower when i take a shower, and the last year and a half for me has seen me go from able to stand and run around at work, to in and out of the hospital last summer, and unable to go much of anywhere.
Wishing you improved health. It’s so frustrating to not be able to complete even the simplest tasks. Try and stay positive. Look for the little pleasures in life and pray for healing.
I have orthostatic hypotension. Similar to POTS but tachycardia isn't usually involved. It took me passing out while having a casual conversation with my doctor for him to realize I had an issue. I was first sent to a pediatric cardiologist because my doctor swore up and down I had a heart problem. The cardiologist was the one who figured everything out. I was so relieved and I could finally start treating my problem. I was in my early teens when I was diagnosed. I'm 24 now and everything is so much better. I get dizzy spells at least once a week and I only pass out a couple times a year which is a huge improvement.
I have POTS as well. It's terrifying to walk down the street and then suddenly feel like you are going to faint. I've had so many doctors tell me that it's just vertigo. I've had vertigo before and it feels entirely different. I wish I had a dollar for every misdiagnosis I've had over the years.
Finally one diagnosis I knew: Orthostatic Intolearnce. I would have done a tilt test the first day she would have come to me with episodes of syncope and tachycardia. I am a lowly GP.
Your patients must be lucky to have you!
Go you keep up that attitude. As someone who has and does experience this horrible dismissing attitude from drs in hospitals many times in regards to my chronic illness; FND functional neurological disorder and Fibromyalgia accused of lying, going crazy ect my GP was and is my best advocate. I have also been misdiagnosed because of this dismissal I suffered from. 2016 and drs said depression and serotonin syndrome for my first seziure and my chronic fatique and pain as overworking it was actually FND. I was diagnosed in 2019 but only after a week and almost being sent home from ED after my bloods came back normal my speech was sluring I was dizzy but still were going to send me home then I had a 45 minute seziure so they decided oh well we 'better admit you' gee thanks. it took a week to get a diagnoses from the neurologist so please keep up this attitude you won't know the difference you make but you will by being persistent
and listening to us, so thankyou from someone who needed an advocate like you in the beginning of my journey
I want to know just who these doctors are. I don’t ever want to be in their “care”. Reminds me of the abusive elder care facilities you hear about.
if someone presents as mostly normal and has a extremely rare disease I can understand why most doctors wont catch the disease. that being said if your doctor doesn't listen go to a new doctor.
@@kercchan3307 So, by your reasoning, it's ok to not be able to do their job?
K Ebonhawk There are so many diseases out there, how can any doctor possibly know all of them. That is why there are specialists, so that all the diseases can be known but the knowledge is spread out among different specialists.
Sweet little baby he
Had a long suffering
Periods of time. And
Now he's a healthy, happy boy ☺
Thank you for another MD episode! Now my week's gonna be complete 😍😍😍
Honestly, it's so scary that this happens. I've been suffering with breathing problems and chest pains for some time now, and doctors have never found anything and just keep telling me it's anxiety - which I admit is very possible. But it also makes you wonder whether you really do have something nasty that they just haven't seen or diagnosed.
Ksenia it’s so easy for them to pass everything off as anxiety. What if the anxiety is caused from something being actually wrong and no one cares. That happens all the time. They’d be anxious too if they were ignored.
The way ppl are forced to that level of advocacy, knowing and feeling deep down something IS WRONG just makes me angry. As someone who is living with life long disease, it's the absolute worst thing to fight for care. Those who cannot and have no one to help are the ones who die needlessly
Watching these Mystery Diagnosis episodes I wonder how many people were sent home with "It's nothing, don't worry" or sth similar and then died at home. It's sad that many doctors don't seem to care much.
Also, how many people are treated for conditions that they don’t have, then suffer side effects from the treatment and round and round it goes.
I love this channel, I learn so much
I can't believe the hospital didn't keep Avery in for observation for a few days 😱
Seriously, what kind of doctors are these that completely discount some pretty bad symptoms?! I hope they watch this and apologize to these families.
My heart stopped momentarily when I passed out on a tilt-table test. Fun days.
I would have swapped doctors and once i ER I'd refuse to leave and want him admitted.was anyone even weighing him??.
I went in to the doctor with migraines, fatigue, and lightheadedness when standing up and they immediately suspected Orthostatic Intolerance. So awful that they didn't test her sooner.
I have POTS (postural Orthostatic tachycardia syndrome)and gotdiagnosed at eighteen, eight years after I started having symptoms. Only reason i got diagnosed was because one of my highschool teachers was a RN and called mymother and told her to take me to the cardiologist. My heart actually stopped on the tilt table test.
@@labaccident2010 holy cow that is horrible!
@@labaccident2010 thank the Lord for your teacher! How did they start your heart again?
So So Sad that Most Doctors do not listen to a patient or Mother when the are paying the Doctor for an Office Visit to discuss symptoms !!!!! I explained my symptoms for over 10 years before ONE Nurse practitioner listened to me and in under 5 minutes she ordered an MRI because she knew it was MS and she was Right. I too was made to feel like I was crazy in the 10 years before I was diagnosed.
I understand where you are coming from. It's absolutely maddening that so many doctors don't listen and wrote you off if you have a condition that isn't clear to them. None of them do any research or actually try to figure out what is wrong with you.
It took me 7+ years for me to get a doctor to help me with my panic attacks. It can be hard work sometimes to get help.
I feel you. I have orthostatic hypotension and It took me passing out, mid conversation, standing in front of my doctor for him to realize there may be something wrong.
@@becgould3772 I have a panic attack too, I can't understand it. They said I was just so scared.
@@rheajoymacni8545 they can hit out of nowhere and are totally scary, I am sorry you have them as well
That boy Avery is so cute and I didn’t wine till hear the Diagnosis
* *Dramatically blinks* *
I think this show just proves how negligent so many doctors are and shouldn't be doctors at all...
arianefr78 yes. One year when doctors went on strike there were hundreds less deaths....hmmm.....
I have POTS like symptoms (waiting for cardiology referrals) and it’s heartbreaking to see how long she suffered for!
I am so happy than that couple have another baby! This is very right!❤😊
It’s taken a year but I have finally been diagnosed with POTS (Postural Orthostatic Hypotension Syndrome). I can’t seem to walk more than a few feet before I feel so lightheaded that I have fainted. My head feels like it’s going to explode, my whole body starts shaking and down I go. Usually I will have pain in my neck and shoulders and even feel burning in my ears. My doctors are conferring about treatment but I’m relieved that they have finally diagnosed it.
Welcome to the POTS club---getting a fitbit or something similar that can track your heartrate is super handy.
We've had to travel out of state to another hospital to get the right diagnosis....how and why do doctors/nurses not see the problem?
Linda's husband looks younger now than then. When he was young, he looked like he was in his mid 50s!
I love that they cover dysautonomia/ autonomic dysfunction in the time period that one of the most recognized types (POTS, which I'm assuming Linda's diagnosed with since I'm not at the end of the episode yet) was medically recognized! 1993 was when that happened.
I DON'T HAVE POTS I DO KNOW A COUPLE OF PEOPLE WHO HAVE POTS
@@lindathrall5133 I've got it!
I am very happy that you okay with your condition, when i was child passing away because my nose was blinding all the time
If symptoms persist consult your doctor. If doctor persists consult your symptoms.
18 years ago i always have migraine headache and i started taking vitamins and my migraine headache gone. About 7 years ago i had a customer, she had migraines headache almost everyday for few years. She had to take botox all the times for her migraine headache .I feel sorry for her. I have tried to help her make her migraines headache go away. Since she know me her migraine headache go away slowly. She seems happy and I'm happy too. Her migraine headache disappeared and she stop using botox.But she told me that her doctor get angry cause he loss a patient. I was afraid that her doctor will after me 😀.I hope she always healthy and her migraine headache will go away forever.
What vitamins did you take to treat your migraine. I have migraine too.
@@peiching1363 I took vitamin C and B-12 with some zinc
@@rahadulislam950 Thank you so much Rahadul. Really appreciate your reply. I will give it a go. 🌈😃👍🏻🙏🏻 Happy new year 🎉
Honestly I would have gone insane if I was this mother! I would have screamed and cried and not have left until they listened to me.
I have pots too! I’ve been dismissed by my doctors as well. Until I was in a clinic to treat an eating disorder when I collapsed so often that the doctor there did some tests and gave me the diagnosis pots. They also gave me meds that have helped me since. So I am very luckily to be diagnosed at the age of only 17😊
I knew this episode was about dysautonomia before watching it , I haven’t yet , but can see by the comments . I have NCS . This condition is similar to POTS , a true living nightmare
I've got POTS, and i heard the first few lines about the lady and I was like "OHP- THAT SOUNDS FAMILIAR"
YAY
How often will these be uploaded?
Oh, that poor baby.😢
Amazing to find out that Dr. David Robertson was her father and that he worked at a clinic called "Heaven".
So intriguing, thanks! 👍💜
All doctors should be forced to watch all episodes....
Wow, who woulda thought chronic diarrhea and vomiting causes dehydration, lethargy and listlessness huh? Well that's why they get paid the big bucks I spose.
I agree I had a specialist behaving badly towards me .I was in terrible pain.he could not diagnose me but didn't refer me ! Turns out I had ankylosing spondylitis
the first case was delayed really long. i can understand the initial symptom presence would not equate a serious condition but subsequent episodes are clearly indicators that it is serious. for the last case, the doctor’s diagnosis is remarkable and he deserves a standing ovation for that.
I battled 11years before I got diagnosed.
The mum found the diagnosis, the doctor took the credit 😮
This child was very misdiagnosed by the doctors. As usual the discounted everything mom told them as a "historical " new mom.
And she wasn't even a new mom. So freaking ridiculous.
"hysterical" I suppose
they should rename this series 'doctors dont know how to admit when they dont know something' cuz.....I have less faith in doctors now
Yes i was waiting for this
You can never discount what a mother says.
how is it that doctors let people down and they have to diagnose themselves? And do it better than their doctors in the end? 😐😐
Frustrating when you don't know whats going on...
Wow, poor Avery
Both off the people in this episode I could guess what they had because I recognized it from the youtuber Chronically Jaquie, she had both of those. RIP Jaquie
So she had both this intestines issue and OI?
It’s AVRY! Not Arvy. Correct the title 🙄
I have Mast Cell Activation Syndrome/Disorder and POTS. I know lots of people who have both of these.
what ia the cause of Mast cell Disease?
A sensitive stomach-what medical condition is that?
Loosing a baby is one of the most terrible thing that can happen to a woman!😮
Medical intuition helps! ..... Within reason .... whenever
possible ..... be your own medical advocate! ...... Use and
or acquire a "second sense" ........ This gift has saved many
lives! .......
And that lady, its quite irresponsible for not going to the doctor earlier, ignoring her symptoms for so long
Wow that kid seems to be a pleasure to have around ! Ewww "projectile vomiting". I felt queasy during the description of his symptoms :-/
Yeah because that's your first reaction to having a sick child. Don't reproduce.
This doctors and medical staff is a joke.
I would have taken my baby to another Dr.!!
The Woman Who Kept Falling Down is about a baby there is sick..???
Crazy Custom Mopeds there’s two stories and the woman is the second one
@@anwensu4381 ...ok
Why do most of the people who are interviewed show rash like blotches around the neck and face?
I honestly feel like most drs are not interested in what you tell them and what you’re going through. I’m sorry the baby was suffering so bad. I probably would have fired the pediatrician also.
I cannot believe those stories are real... I have never experienced doctors like that in Europe or Asia... What's going on in the US??
That's what I was thinking 🤔
It's annoying to know the parents not going to many doctors especially in this situation that the baby is very sick
My cousins husband didnt know - as a medical doctor - that women have only one ovation a month🙈
I'd go looking for all opinions. Drs can't understand what's going on. It has to be a specialist in that area.
they should not become doctors if all they do is be dismissive, ignorance and defiant to find out what is wrong with their patients.
I had the same thing at age 8 or 9
They moved from another state without knowing if the doctor could help them or not?
desperation will do funny things to a persons thinking.
Is it just me or does the doctor in the second story look extremely like Benny Andersson from ABBA?
Ehlers Danlos Syndrome complications of autonomic dysfunction with porphyria types. Some can have stenosis, CCI, Chiari, tethered spinal cord, spinal fluid leaks the list goes on & on it is not only OI Orthostatic Intolerance or Syncope or POTS it is more...
The major symptoms of porphyria is Tachycardia, shortness of breath, abdominal pain, but pain also, fatigue. Dysautonomia, ME/CFS EDS labels even told they have lyme
Why do they use tap water to fill the bottles
I does fell sorry for these people doctors need to show concern
cern and stop ignoring patience
Was the lady with high catecholamines assessed for pheochromocytoma? Isn’t that also a cause of high catecholamines?
gosh what is it that US-people drive to the ER by themself - whats the matter with calling an ambulance? (really i don't know it - why is this?)
Hannah C. Rosenblatt I‘m not a US citizen, so I could be wrong, but apparently ambulance rides can be very expensive. There are subscriptions to specific ambulance service providers; those are way cheaper. Otherwise you can end up with a bill of either 500 dollars or 5000 dollars; in spite of there being rules and guide lines for the billing, it seems to be pretty arbitrary.
Money. Costs a lot for an ambulance journey in America.
In South Africa some of the ambulance drivers stop at KFC to get some food. They leave the patients on their own in the ambulance while they take tea- or lunch breaks...
wow.
I have had postural drop falling was due to the medication the hospital gave me
i swear i wouldve went to another doctor
I'm sorry but that drawing of the Mast Cell looks like it was made by a four year old on Microsoft Paint.
I knew what it was shortly into the second video. My daughter & I both have POTS.
My cousin is 2 years old and has had a pacemaker since 2 days old does that mean hes old??
I obviously know that its sarcasm
That baby's early treatment is malpractice.
WHY THIS MUM SMILES ALL TIME??!!!Sick!
As to the baby sounds like an allergy
When my baby has a problem, I go whit him to 3 diferite dr., but they allways do the job perfect and gues what, I am from Romania 😉
SPLRADU CRISRTINA you do a perfect job at your English grammar too 😜
@@sandyavalos3305 FATE
200,000 seems like a lot still. Just saying
Linda Smith is frustrating me. She didn’t go to the doctor soon enough
She was turned down every time so I can't blame her.
Funny how u think cream will help can't solve everything
The alternative title of this show should be "Women Who are not Believed by the Patriarchy ".
Full makeup while going into surgery?
Of course not. They are just acting out what had happened.
@@Springfairy92 Obviously. Just not a very realistic reenactment.
I noticed that too
Why not breast feed this baby? F.G.Sake Dairy formula, he's not a cow! Seriously the medical system in the US is ridiculous You can make an appointment with any specialist you feel like? So many examples of Drs on these shows are negligent.
Because he puked when he was breastfed. That's why they suggested formula in the first place.