Doctor, you are the only one in the world who understands how I feel. No matter how much I explain this to friends and family they simple don't understand. I stopped explaining and expecting them to understand. 😢 thank you for your videos.
As a recently diagnosed and new subscriber, I can't express my gratitude for your videos. They are helping me understand my new life I'm trying to figure out. Thank you so much.
Congrats on over 10,000 views! I just watched this again. I showed my husband the spoon theory to help with describing fatigue a while back, and ever since then we use it. He will ask how my stock of spoons is and how many spoons I have left when he is checking in with me on how I’m feeling. Thank you😊
Holy cr..! I have said for years I am blessed with a benign form of MS. Then I watched this video. I know my heat intolerance was due to MS, but the sleep apnea I was diagnosed with in April, the diabetes and iron defeciencies I was diagnosed with in May. The depression and anxieties I pretend I don’t experience. The obesity I know I need to manage. + many other ‘alarms’ like the foot drop I developed in the fall. The spasticity i thought was old age and stiffness from sitting too long. Restless legs at night. Time to go discuss everything with my neurologist.
Hey! Thank you, your a positive much needed knowledgeable resource. Thank you Again. I just finished transcribing the educational video presentation and completing a Spanish translation. I'll review with it my English speaking MS group and present a short video with the written transcription attached in Spanish & English. You know, started in 84, dx'd in 93, 2019 x 35 yrs with, age 62, life is good for many reasons including good people like you. Just for today Take and be well, Namaste.
I'm new to MS, and I am so happy to have your videos to reference. You provide me with nomenclature to better communicate with my doctor. Thank you for creating this channel. Keep up the great work!
I watched this video a few months ago. I loved it! I am just getting over a relapse that felt like a 20 passenger car train, full of fatigue, hit me and I wasnt going to recover. I'm not sure how many more years I have left being able to work full-time. I remembered this video to help me explain what exactly fatigue is, so I could start having this important conversation with my wife. Thank you for making this!
So very good again. I now understand about cog fatigue. Cognitive problems is what started my MS dx. Now I realize what my dx of MS means for me. Thanks for the information. 😄😄😄😄💜💜💜💜still thinking cloning you would be awesome for your patients.... LOL
My neuro gave me a rx for a medication to help with my fatigue that didn’t help. It is tough to deal with but I think caring for my disabled son is factor but I manage. I love your videos they are such a big help
OMG, I have not only MS, but I'm diabetic (T1) and high blood pressure AND the antibodies for both Hashimoto's Disease as well as Graves! And let's toss in the fact that I love my sweets and junkie foods!
Great video! Thank you, you've put it very well. I find exercise very difficult with fatigue, would you consider expanding on suggested exercises for folks with MS? Thank you again, greetings from the UK :)
Man this is my biggest problem with this dam disease I'm trying to go to college but I can't even get with a class with out feeling like crap and even thought I have seek help is no use specially considering all my memory problems I'm seriously considering dropping out of college but I know that isn't really an option I feel trapped in pool of self pity and pain
In the morning I'm okay but it can come on really saddened when you up town everything seem to take a nasty toll on your body that why I have to go bed people will never understand why I do this but I have to if they don't like it too bad
I think spoon theory is too limited a model. If there is enough energy to get started with an activity which nourishes in some way, a dynamo effect can kick in. I think the car battery model is worth considering. If there's not enough charge to get the car started, then activity can deplete the existing charge, so spoons are relevant, but if the engine starts, the alternator can charge the battery through carefully monitored activity. Another way to put it is "real-time calibration." If we are very sensitive to our bodies, then as long as we don't go "into the red" at any point, then activity may actually produce a net increase in energy, IMO.
Hey doctor this is so helpful thank u... My problem is that am a medical student.. This is soo stressful I wanna know what more I could do to get over this... Totally depressed even on SSRIs... Attacks numbers increase unfortunately
Sir i'm from bangladesh.suddenly i had pain in my left leg.i'm very weak that time.i have headacte and pain in my eyes.and blurring of vision.and also sleep problem.i have muscle spasm all over my body.what can i do now..plz sir tell me????
Any suggestions for those of us in EMS? I work 24 hour shifts so sleep is my downfall. Then there is no way to avoid heat/cold. I’m newly diagnosed and trying to get all information I can get.
Body temp? That's part of your autonomic nervous system. These can be dangerous symptoms (especially as they get worse). You should report to your neuro or your PCP as soon as possible. Let them help you evaluate your individual health needs.
Hey Dr. Boster! Ray from Middleburg, Florida here. You may have done a video on this already but I have not seen it and cannot find it. What I'm referring to is male sexual dysfunction in MS. I've had MS for over 22 years but only began treatment about 4 of 5 years ago (long story which I'll spare you!). I am now 48 years old. Anyway, I began experiencing ED, sporadically, a few years ago. Now it's all the time. I can acheive an errection but its quality is often not great, and it doesn't last as long as I'd like. Happily, that is very successfully treated with viagra. But I am also dealing with anorgasmia. The only way I can acheive orgasm is through masturbation, and even then not every time. Is there any hope for me ever regaining normal sexual function? Thank you for considering my question and for the time you spend on this channel. I often feel that you are treating my MS more effectively than my neurologist! Appreciatively, Ray
Howdy Rita! yes I'm a board certified Neurologist, fellowship trained in neuroimmunology. Here's a video about my journey: th-cam.com/video/gEcEEUvA8N8/w-d-xo.html
You're a creative, clear, comprehensible teacher, Dr. Boster. After about 30 years with MS, though, when it comes to spoons, I think I'm forked...
ha!
this cracked me up
😂😂😂
preach!
Doctor, you are the only one in the world who understands how I feel. No matter how much I explain this to friends and family they simple don't understand. I stopped explaining and expecting them to understand. 😢 thank you for your videos.
As a recently diagnosed and new subscriber, I can't express my gratitude for your videos. They are helping me understand my new life I'm trying to figure out. Thank you so much.
Why in the world does anyone dislike a video Dr. Boster makes!?!?
TY for the support Jay!
LOL, right?? Surely they clicked the wrong option by mistake. ;)
Congrats on over 10,000 views! I just watched this again. I showed my husband the spoon theory to help with describing fatigue a while back, and ever since then we use it. He will ask how my stock of spoons is and how many spoons I have left when he is checking in with me on how I’m feeling. Thank you😊
Holy cr..! I have said for years I am blessed with a benign form of MS. Then I watched this video. I know my heat intolerance was due to MS, but the sleep apnea I was diagnosed with in April, the diabetes and iron defeciencies I was diagnosed with in May. The depression and anxieties I pretend I don’t experience. The obesity I know I need to manage. + many other ‘alarms’ like the foot drop I developed in the fall. The spasticity i thought was old age and stiffness from sitting too long. Restless legs at night. Time to go discuss everything with my neurologist.
Howdy Marie! I'm glad to read you're going to discuss with your Neurologist!
Hey! Thank you, your a positive much needed knowledgeable resource. Thank you Again. I just finished transcribing the educational video presentation and completing a Spanish translation. I'll review with it my English speaking MS group and present a short video with the written transcription attached in Spanish & English. You know, started in 84, dx'd in 93, 2019 x 35 yrs with, age 62, life is good for many reasons including good people like you. Just for today Take and be well, Namaste.
I'm new to MS, and I am so happy to have your videos to reference. You provide me with nomenclature to better communicate with my doctor. Thank you for creating this channel. Keep up the great work!
TY for the kind words Ravintsara #WeHaveMS
I so appreciate you taking the time to make these videos! I've learned so much.
You are so welcome!
I'm so tired I could cry but even then I don't think I have the energy to even do that .
Hello everyone. MS patient here. 10 yrs now. We all need support. God bless.
#WeHaveMS
I watched this video a few months ago. I loved it! I am just getting over a relapse that felt like a 20 passenger car train, full of fatigue, hit me and I wasnt going to recover. I'm not sure how many more years I have left being able to work full-time. I remembered this video to help me explain what exactly fatigue is, so I could start having this important conversation with my wife. Thank you for making this!
Glad my vid helped with that conversation, thank you for sharing Marissa! Super appreciate you watching and commenting!
So very good again. I now understand about cog fatigue. Cognitive problems is what started my MS dx. Now I realize what my dx of MS means for me. Thanks for the information. 😄😄😄😄💜💜💜💜still thinking cloning you would be awesome for your patients.... LOL
ha!
It helped to rewatch this one. Thank you for this video. It's Christmas day. May you and your family have a great Christmas day.😊
My neuro gave me a rx for a medication to help with my fatigue that didn’t help. It is tough to deal with but I think caring for my disabled son is factor but I manage. I love your videos they are such a big help
YW Debbie!
Love your videos. Thanks!
👊
Watching 3/11/2020...
You seem much more comfortable in front of the camera these days
Thank you again!
OMG, I have not only MS, but I'm diabetic (T1) and high blood pressure AND the antibodies for both Hashimoto's Disease as well as Graves! And let's toss in the fact that I love my sweets and junkie foods!
I love that you said, "Ouchy" to describe pain. Thanks for the plain English! :)
Sudbury,OOntario,Canada/// Suzanne again I love 2 listen to your video's./
thank you!
Thank you so much need this!!
Thanks Aaron. Your videos are a great help.
YW Ken!
Great video! Thank you, you've put it very well. I find exercise very difficult with fatigue, would you consider expanding on suggested exercises for folks with MS? Thank you again, greetings from the UK :)
maybe consider very low impact activities like walking during the lunch hour or adding in 15 minutes of yoga before dinner
I had a low b12 test. I got supplements and it made a big difference. I know this because I have been out of b12. Need to get more but need money
glad it helped!
Polypharmacy - yes! Quite an issue. I might ask you about this in one of your live Q&As. :-)
Dr. B. I enjoy your videos
TY for watching and for that kind comment Sally!
Thank you, I dont have MS but I do have TN and all your tips are great!
YW Scott! Thank you for watching!
Best video and info ever👍to the point
Man this is my biggest problem with this dam disease I'm trying to go to college but I can't even get with a class with out feeling like crap and even thought I have seek help is no use specially considering all my memory problems I'm seriously considering dropping out of college but I know that isn't really an option I feel trapped in pool of self pity and pain
This fatigue makes me feel lazy when it hits. Ugh!
what’s your take on concerta to manage fatigue vs adderal for fatigue? or even provigil?
In the morning I'm okay but it can come on really saddened when you up town everything seem to take a nasty toll on your body that why I have to go bed people will never understand why I do this but I have to if they don't like it too bad
I think spoon theory is too limited a model. If there is enough energy to get started with an activity which nourishes in some way, a dynamo effect can kick in. I think the car battery model is worth considering. If there's not enough charge to get the car started, then activity can deplete the existing charge, so spoons are relevant, but if the engine starts, the alternator can charge the battery through carefully monitored activity. Another way to put it is "real-time calibration." If we are very sensitive to our bodies, then as long as we don't go "into the red" at any point, then activity may actually produce a net increase in energy, IMO.
Hey doctor this is so helpful thank u... My problem is that am a medical student.. This is soo stressful I wanna know what more I could do to get over this... Totally depressed even on SSRIs... Attacks numbers increase unfortunately
Can drugs used for depression cause any negative effects on my undiagnosed MS brain?
Hi Doc, do you have any suggestions for poor balance and dizziness with my MS. Regards Chuck
Sir i'm from bangladesh.suddenly i had pain in my left leg.i'm very weak that time.i have headacte and pain in my eyes.and blurring of vision.and also sleep problem.i have muscle spasm all over my body.what can i do now..plz sir tell me????
seems like I have only a couple of TEA spoons when I wake up :(
Any suggestions for those of us in EMS? I work 24 hour shifts so sleep is my downfall. Then there is no way to avoid heat/cold. I’m newly diagnosed and trying to get all information I can get.
Cognitive fatigue is taking over my life. Some days im at work just pretending to get by bc I can't concentrate on anything. Wish I can feel normal.
nyahmanis mommy my job carefully tracked our productivity and I couldn’t fake it anymore so had to leave on disability 🙁
What about a low temperature of 95.6 or 95.9
Body temp? That's part of your autonomic nervous system. These can be dangerous symptoms (especially as they get worse). You should report to your neuro or your PCP as soon as possible. Let them help you evaluate your individual health needs.
I have one teaspoon, no spoons on some days. 😂
Hey Dr. Boster! Ray from Middleburg, Florida here.
You may have done a video on this already but I have not seen it and cannot find it. What I'm referring to is male sexual dysfunction in MS. I've had MS for over 22 years but only began treatment about 4 of 5 years ago (long story which I'll spare you!). I am now 48 years old. Anyway, I began experiencing ED, sporadically, a few years ago. Now it's all the time. I can acheive an errection but its quality is often not great, and it doesn't last as long as I'd like. Happily, that is very successfully treated with viagra. But I am also dealing with anorgasmia. The only way I can acheive orgasm is through masturbation, and even then not every time. Is there any hope for me ever regaining normal sexual function?
Thank you for considering my question and for the time you spend on this channel. I often feel that you are treating my MS more effectively than my neurologist!
Appreciatively,
Ray
Hi doctor, are you a neurologist? Sorry for asking, I don't know it. Thank you.
Howdy Rita! yes I'm a board certified Neurologist, fellowship trained in neuroimmunology. Here's a video about my journey: th-cam.com/video/gEcEEUvA8N8/w-d-xo.html
Can't MS cause malnurishment?
Have you any advice for someone with primary progressive please?
Howdy Michael, here is a playlist with 10 vids on Progressive MS: th-cam.com/video/xROT3Uk7Z3U/w-d-xo.html
TY
#WeHaveMS
Saved a spoon to hear anything you gotta say.
right on